'Triple-neg breast cancer is aggressive, and we need to be aggressive back’ | TNBC Project
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- เผยแพร่เมื่อ 13 ก.ย. 2024
- Disclaimer: Originally branded as Pink Hope, this video was produced before changing our name to Inherited Cancers Australia. While we no longer operate under the Pink Hope name, the video’s message continues to reflect our mission of supporting individuals and families facing inherited cancer risk.
'My oncologist said triple-negative breast cancer is the most aggressive, and it's going to be really tough.’ When the mother of three discovered that her stage 2 triple-negative breast cancer had spread to her lymph nodes, Rhiannon's immediate reaction was to fight back.
‘It's being aggressive, and we need to be aggressive back. My motto while growing up was to be prepared for anything. Even if you bite off more than you can chew, just bite like hell.’
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‘Beyond the Diagnosis: Confronting Triple-Negative Breast Cancer’ unfolds as a 3-part documentary series by Pink Hope, sharing the compelling stories of Keely, Rhiannon, and Susan, all navigating the challenges of triple-negative breast cancer.
Triple-negative breast cancer (TNBC) accounts for approximately 15% of all breast cancer diagnoses in Australia each year. This aggressive form of cancer predominantly affects younger women, resulting in poorer clinical outcomes, including higher relapse rates and lower survival rates.
By giving a voice to these patients and sharing their lived experiences, this documentary series serves as a call to action, advocating for early detection, better support, further research, and medical advancements for triple-negative breast cancer with Australian political decision-makers.
Director & Producer: Arielle Thomas
Executive Producer: Lisa Caterina
Production Co-ordinator: Molly Smith
Cinematographer: Matthew Jenkins
Editor: Lyreca Corloncito
Assistant Editor: Isabella Watson
Colourist: Daniel Witt
Sound Mixer: Mark D’Angelo
A special thank you to the Theobald family.
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LinkedIn: / inheritedcancersaus
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I had triple negative breast cancer. Had a mastectomy and eight rounds of chemo. That was 17 years ago and I’ve not had a recurrence!!! Attitude is everything, ladies, you can beat this.
This. This is what I needed to see. I'm freshly diagnosed with Invasive-ductal-carcinoma and it's Nottingham grade 3, high grade, triple negative, clinical stage 1.
Thank you. Needed this. Just diagnosed with invasive breast cancer two weeks ago.
@@Sharon-pb7so🫂🌹🫂
Thank you for the encouragement
Do the mastectomy and ductal removal . Lympectomy does not work its just so they can make more money from you if you don't remove it all it will go other places my mom had all three types at the same time
In your own words, "Hit it hard." TNBC stage 3C here. Had chemo, mastectomy, all lymph's removed, radiation and currently taking oral chemo. No regrets whatsoever. In all my research I found, this is not something to mess around with. Survivable yes but you have to not only "hit it hard," you have to crush it! Sending you the best of wishes for your fight and your recovery.
I wish you a positive journey l am eighty five and. Have the same cancer and on along series of chemo and radiation lam a strong great grand
Mother and lstill have a lot of. Living to do lsend to you good health and love from esther❤❤❤
Wehhuj mom
Oh man you should not have done any of that substandard of care. Geez you destroyed your body.
Thank you for doing this video. I have Triple negative breast cancer, stage 1. I did 6 months of chemo. I'm getting ready for a lumpectomy and then radiation. I am 56. I'm thankful that my son is grown. I can only imagine how scary it would be to have young children. You are strong and brave. I hope only the best for you❤
Darling, I also had TNBC and I opted for the mastectomy and reconstruction.
It will be a while before you feel safe. It’s like you lost your ability to ignore anything new with your body. My mastectomy was December of 2008. I’m still here.
My opinion is remove the breast, remove the cancer.
🙏🏼🙏🏼🙏🏼 and ❤❤❤ to you!
Thank you for sharing 🙏
I opted for a mastectomy/reconstruction and currently doing chemo. Happy to hear you have been cleared for this long ❤
God Bless you. You are brave, you are strong, you will get thru this. Imagine yourself healthy and strong. The mind is so powerful. Pray. Prayer is very powerful and I believe in miracles! Love, hugs, and prayers for your complete healing. ❤️🤗
From Indinesia . Its so hard . TNBC stage 2A . Had first chemo .will have second one on 29. Hope i will to trougth it . ❤❤❤❤
I have TNBC and I get my third chemotherapy next week. Stay strong
@@yolandas8819 thanks Yolanda . after my third chemo drop for a week and stay in hospital . now got problem the heart . cant continue the chemo😢
I am going thru this right now, triple negative. I found a lump in Oct, Dr appt not til end of Nov, mamo + ultra sound in Jan, end of Jan biopsies as it is already in 3 lymph nodes. Now in February, last week finally surgeon+oncologist appt. This week, bone scan+CT. Next wk echo, then March MR... All while it is spreading. Used to be a soft grape. Now it is hard and bigger. Afraid it has spread too much due to the delays for appts/tests in how our healthcare in the US operates. Waiting on answers but not optimistic.
Oh honey, go to a different dr. One who really cares. Within two weeks I was in surgery. It was a cray 2 weeks. Biopsy first, then mri, cat scan, mammoth, and finally they removed it, I was lucky, no lymph nodes, and on I go from here. I wish you the best.
Same with me was very small n ow due to referral nightmares it's a lot bigger!
It has been 6 wks, did bone scan-negative, CT showed liver spots then MRI liver then liver biopsy- negative then breast MRI shows spread there, echo, port and finally chemo started. A lot of tests to determine treatment. More optimistic now.
@@WherePinkyou will be fine! Your doctors know what they are doing. Their attention to detail in the beginning was to get it right the first time. One day at a time!
I fought this disease on my own and had minimal support. I wish I had had a supportive husband. It was the hardest year of my entire life but I got through.
I had TNBC too, stage two.And yes, with something that agressive, you need to be more agressive.but there is a good part as always: it responds very well to chemo, so that is the key part of treatment in TNBC.I had chemo, double mastectomy and radiation
Thank you for sharing the hardest time in your life. Good luck to the future. You are one strong lady
Thankyou for sharing your story. Such a nasty disease but you are fighting it with such determination. I’m glad that you have such a loving supportive family to give you strength ❤
I'm currently in the second phase of chemo for TNBC (TC followed by AC) and it's not easy. I will take your "slay day" mentality into my next infusion session on Friday. I'll keep you in my prayers, Rhiannon. Hang in there!
Thank You for sharing your story ❤❤ My mother had triple negative breast cancer 30 years ago. She had lumpectomy and lymph nodes removed first, then chemo, then radiation and finally Brachy Therapy. Very aggressive treatment but it's necessary.
How is she doing now?
@@deepikasharma8428 she is 78 now and had no further issues I think it is interesting that her lumpectomy was first then the other therapies and this was in Hobart Tasmania
@@lmcp1038 my sister has been diagnosed with tnbc. Has been suggested chemo first followed by surgery and radiation. Stories like these give me hope. I consider myself mentally weak. But giving it my all to support my sister in this difficult time. Hope her story turns out like your mother’s
This was so beautifully made!! Thank you for sharing!❤
What an inspiration you are, and thank you for sharing your story. You have an amazing, supportive family. Your dad is so sweet and loving. My dad, was very emotional as well❤️❤️❤️! I am praying for you and your family, you are in good loving hands. ❤️🙏✝️ God bless you!
Good luck for the future - you are a strong woman x
Joe Walsh was my first concert. And absolutely if I had cancer I would have a bucket list..I have always wanted to See the Northern Lights: Experience the beauty of the Aurora Borealis. Also have always wanted Go on a Road Trip: Explore new places and enjoy the journey across country. Skydiving or Hot Air Balloon Ride: Meditation Retreat: Spend time focusing on inner peace and mindfulness.. just to name a few.. the treats you made for your picnic looks amazing.. sending hugs n love.❤️
My wife is currently fighting TNBC after lumpectomy chemo and radiation 6 months of no evidence of disease it came back and spread to her lungs and and brain. Currently doing SRS to the brain and chemo. Thanks for sharing
I wish your wife health and a long life! Keep fighting and believing. God will take care of everything.
Which chemo she's getting as my mother's condition is also same she's also fighting with tnbc stage 4 plz help
It's interesting how here in the US we seem to do more mastectomies than lumpectomy. My sister was just diagnosed with TNBC, surgery is in a few days. I hope this lady does well, she has a great attitude.
Hang in there, folks! Good luck and God blessed ❤
Sending good vibes and wishing you a full recovery x
Thank you for this dear heart.... ❤️
Bless your heart. 🙏
Keep strong ❤
Are you guys taking joe tippins deworming protocol fenbendazole?
❤
💜
Did anyone do Keytruda?
Good question! Was going to ask too. Did anyone reach out to you to say they had used it?
I did and I got PCR.
My treatment is Keytruda, Cytoxan, and Taxotere every 3 weeks, then I go the next day to have a shot Pegfigrastim.. I have TNBC and Mastastic Lymph Node in the right breast, and I was diagnosed in June 2024. I was also diagnosed with thyroid cancer and had surgery to remove both thyroid. My treat will be completed in November, then I start radiation for the thyroid cancer cleanup, and they will talk to me about surgery for breast cancer. The lump in my breast has disappeared, at least we can't feel it anymore. Hopefully, it is shrunk.
♥
Selenium is good for fighting cancer. Also Ivermectin and quercetin
I agree!!! Fenbendazole 222mg, curcumin 1000-1500mg and high grade CBD 25mg….all these daily!! Don’t tell your Oncologist though…they won’t work with you. It works though!
@@leannedohmann5069 would you recommend taking them with ‘standard of care’ treatments or on their own?
and for phyllodes? Do they work for phyllodes too?...
update? Instagram?
Hai
does anybody s having BRACA positive......?
I got TNBC and I was negative for BRAC and other genes that cause BC
Thank you for sharing the hardest time in your life. Good luck to the future. You are one strong lady