- 9
- 94 845
Inherited Cancers Australia
Australia
เข้าร่วมเมื่อ 9 มิ.ย. 2010
Inherited Cancers Australia (formerly Pink Hope) is committed to breaking the cycle of inherited cancer in Australian families. Our mission is to empower all Australians to understand and manage their inherited cancer risk by educating them about their health history, providing evidence-based resources, and connecting them to a supportive community.
“Pink Hope Community Limited” has changed its name to “Inherited Cancers Australia Limited”, and you will see that our website, social media pages and informational materials going forward are re-branded as “Inherited Cancers Australia.”
Our charitable mission and activities also have evolved to include all families with hereditary cancer risk.
Inherited Cancers Australia confirms that it has no ongoing affiliation with any persons or organisations who own a trademark to the terms “Pink Hope” or use the terms ‘Pink Hope” to conduct their charitable or other activities.
“Pink Hope Community Limited” has changed its name to “Inherited Cancers Australia Limited”, and you will see that our website, social media pages and informational materials going forward are re-branded as “Inherited Cancers Australia.”
Our charitable mission and activities also have evolved to include all families with hereditary cancer risk.
Inherited Cancers Australia confirms that it has no ongoing affiliation with any persons or organisations who own a trademark to the terms “Pink Hope” or use the terms ‘Pink Hope” to conduct their charitable or other activities.
Understanding HRD Testing Webinar
Disclaimer: Originally branded as Pink Hope, this video was produced before changing our name to Inherited Cancers Australia. While we no longer operate under the Pink Hope name, the video’s message continues to reflect our mission of supporting individuals and families facing inherited cancer risk.
What exactly is HRD testing? And how does it differ from germline genetic testing? In this webinar, our panel of experts explain HRD testing and answer these complex but important questions.
Hosted by:
- Robyn, Programs & Advocacy Manager
Moderated by:
- A/Prof Heather Thorne (OAM), National Manager of kConFab
Expert Panel:
- Prof Paul Cohen, Gynaecologist and Gynaecological Oncology Researcher
- Dr Cathy Kiraly-Borri, Clinical Geneticist
We are also privileged to have Upinder share her personal experience with HRD testing as an ovarian cancer patient.
Special thanks to GSK and AstraZeneca for supporting us to provide this webinar.
Visit our website for more evidence-based information and resources: www.inheritedcancers.org.au
Follow us:
Instagram: inheritedcancersaus
Facebook: inheritedcancersaus/
LinkedIn: www.linkedin.com/company/inheritedcancersaus/
Content of this webinar:
00:00 Introduction & Acknowledgement of Country
00:38 The goal of this webinar
02:36 Our panel of experts
08:11 HRD Testing vs Germline Genetic Testing by Prof Paul Cohen
35:28 Q&A: How often is HRD Testing being done clinically?
38:40 Q&A: Can HRD testing be done after a recurrence?
40:15 Patient sharing by Upinder
49:49 Q&A: Would a somatic testing for tumour helpful in case of future recurrence (with negative genetic testing results after hysterectomy)?
51:13 Q&A: Is PARP inhibitor helpful for treating ovarian cancer in BRCA gene mutation carriers?
56:50 Understanding HRD Testing by Dr Cathy Kiraly-Borri
01:03:33 Difference in HRD testing and germline genetic testing
01:04:37 Q&A: How would one decide between HRD testing and germline genetic testing?
01:06:36 Q&A: Can PARP inhibitor be 'outsmarted' by cancer? Does being on PARP inhibitor impact future recurrence chemotherapy treatment options?
01:10:52 Q&A: How is cascade testing organised and referred for the family members of a patient with ovarian cancer who has tested positive for a BRCA gene mutation?
01:14:07 Q&A: Should HRD and germline testing be done concurrently? Is HRD testing redundant if a patient tests positive for germline testing first?
01:18:06 Pink Hope's services and support for people managing hereditary cancer and its risk
What exactly is HRD testing? And how does it differ from germline genetic testing? In this webinar, our panel of experts explain HRD testing and answer these complex but important questions.
Hosted by:
- Robyn, Programs & Advocacy Manager
Moderated by:
- A/Prof Heather Thorne (OAM), National Manager of kConFab
Expert Panel:
- Prof Paul Cohen, Gynaecologist and Gynaecological Oncology Researcher
- Dr Cathy Kiraly-Borri, Clinical Geneticist
We are also privileged to have Upinder share her personal experience with HRD testing as an ovarian cancer patient.
Special thanks to GSK and AstraZeneca for supporting us to provide this webinar.
Visit our website for more evidence-based information and resources: www.inheritedcancers.org.au
Follow us:
Instagram: inheritedcancersaus
Facebook: inheritedcancersaus/
LinkedIn: www.linkedin.com/company/inheritedcancersaus/
Content of this webinar:
00:00 Introduction & Acknowledgement of Country
00:38 The goal of this webinar
02:36 Our panel of experts
08:11 HRD Testing vs Germline Genetic Testing by Prof Paul Cohen
35:28 Q&A: How often is HRD Testing being done clinically?
38:40 Q&A: Can HRD testing be done after a recurrence?
40:15 Patient sharing by Upinder
49:49 Q&A: Would a somatic testing for tumour helpful in case of future recurrence (with negative genetic testing results after hysterectomy)?
51:13 Q&A: Is PARP inhibitor helpful for treating ovarian cancer in BRCA gene mutation carriers?
56:50 Understanding HRD Testing by Dr Cathy Kiraly-Borri
01:03:33 Difference in HRD testing and germline genetic testing
01:04:37 Q&A: How would one decide between HRD testing and germline genetic testing?
01:06:36 Q&A: Can PARP inhibitor be 'outsmarted' by cancer? Does being on PARP inhibitor impact future recurrence chemotherapy treatment options?
01:10:52 Q&A: How is cascade testing organised and referred for the family members of a patient with ovarian cancer who has tested positive for a BRCA gene mutation?
01:14:07 Q&A: Should HRD and germline testing be done concurrently? Is HRD testing redundant if a patient tests positive for germline testing first?
01:18:06 Pink Hope's services and support for people managing hereditary cancer and its risk
มุมมอง: 154
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Sam's Story - "I didn't have a regular self-check routine. I thought I was invincible"
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Bone biopsy and bone marrow biopsies are horrendous! I worked in orthopedic oncology. I saw it and was with patients and friends.
❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤
Im so sorry...I so wish you the best ! Thank you for sharing your story! 🙏🙏
Rip Keely. May you fly high forever xxx
Joe Walsh was my first concert. And absolutely if I had cancer I would have a bucket list..I have always wanted to See the Northern Lights: Experience the beauty of the Aurora Borealis. Also have always wanted Go on a Road Trip: Explore new places and enjoy the journey across country. Skydiving or Hot Air Balloon Ride: Meditation Retreat: Spend time focusing on inner peace and mindfulness.. just to name a few.. the treats you made for your picnic looks amazing.. sending hugs n love.❤️
So much faith in these oncologists that are taught the wrong cause and treatment! RIP.. how awful
Sending love and prayers to you and your family! ❤️🙏✝️
What an inspiration you are, and thank you for sharing your story. You have an amazing, supportive family. Your dad is so sweet and loving. My dad, was very emotional as well❤️❤️❤️! I am praying for you and your family, you are in good loving hands. ❤️🙏✝️ God bless you!
my waiting period of 2 weeks feels insane, they diagnosed malignant lung cancer, but pretty sure its in my brain and more and they set up a pet scan,,,,,,,,,2 weeks aftere the biopsy, why???????? why so slow to try and help me, they gave me a few pain pills, said try not to take them, my cancer hurts,,,,,,,,all in me,,,,,,why do they not care to help me,,,,,,26th i see the cancer care doc ,,,,,,,sheesh, to see his plan or any help....i need morphine and some help,
I fought this disease on my own and had minimal support. I wish I had had a supportive husband. It was the hardest year of my entire life but I got through.
Did anyone do Keytruda?
Good question! Was going to ask too. Did anyone reach out to you to say they had used it?
I did and I got PCR.
My treatment is Keytruda, Cytoxan, and Taxotere every 3 weeks, then I go the next day to have a shot Pegfigrastim.. I have TNBC and Mastastic Lymph Node in the right breast, and I was diagnosed in June 2024. I was also diagnosed with thyroid cancer and had surgery to remove both thyroid. My treat will be completed in November, then I start radiation for the thyroid cancer cleanup, and they will talk to me about surgery for breast cancer. The lump in my breast has disappeared, at least we can't feel it anymore. Hopefully, it is shrunk.
so let me get this straight. They MISDXD you. POISONED you. STOPPED you from NURSING & you had no cancer.... gotcha
She did have triple negative breast cancer and, sadly, she died from it. May she RIP.
Gloryyyyyyyyyy hallelujah 🙌 love and blessings to you & your beautiful family!
God bless 🙏🏻🙏🏻🙏🏻💕
My condolences to family R.I.P keely
I have seen a lot of videos from doctors here on TH-cam explaining how to starve Cancer.I wish you all the best God bless you
I'm currently in the second phase of chemo for TNBC (TC followed by AC) and it's not easy. I will take your "slay day" mentality into my next infusion session on Friday. I'll keep you in my prayers, Rhiannon. Hang in there!
RIP Keely <3
The City of Hope is adding Ivermectin to TNBC treatment, University at Glasgow is adding Mebendazole to Docetaxel for PC, Dr. Marc-Eric Halatsch is using Itraconazole in a 9 repurposed drug protocol for Glioma and Glioblastoma. Dr Tom Rogers YT video on Artemisisin and Fenbendazole has some comments you may be interested in. Moreover, berberine was found to inhibit the colon cancer cell viability by regulating β-catenin signaling in a concentration- and time-dependent manner … Apr 29, 2023
They say pregnancy hormones are terrible triggers for cancer, my cervical cancer flares up after two babies, I then had radical hysterectomy. Bless you Keely, and your gorgeous family xx
She is so adorable 🥰
Cute baby 🍼
I gotta touch myself everyday to make sure no cancer ♋
Never remove your breasts
How heartbreaking 😮😨😧😦😮😯😲🤯
Lump size of marble
Thank you for this dear heart.... ❤️
Would have been nice to spotlight a 48 year old. No kids. BRAC negative but like everything they want young ppl to draw awareness to it. DO BETTER. I fought TNBC with no one with no loving husband. Not everyone is as lucky as her. Yet again single women are viewed as worthless!
Unfortunately she passed away.
My wife is currently fighting TNBC after lumpectomy chemo and radiation 6 months of no evidence of disease it came back and spread to her lungs and and brain. Currently doing SRS to the brain and chemo. Thanks for sharing
I wish your wife health and a long life! Keep fighting and believing. God will take care of everything.
Which chemo she's getting as my mother's condition is also same she's also fighting with tnbc stage 4 plz help
@@SnehaSharma-yi6nj keytruda immunotherapy
So so sorry for this loss! 💕
Bless your heart. 🙏
You r a super great fighter Susan. You arecgreat words too. My daughter and at least 1 granddaughter have have BRcA 1 gene. Youngest just turned 6 yrs this wk. MAR 25, 2024. MOM IS 38.
If it aint broke dont fix it motto
Selenium is good for fighting cancer. Also Ivermectin and quercetin
I agree!!! Fenbendazole 222mg, curcumin 1000-1500mg and high grade CBD 25mg….all these daily!! Don’t tell your Oncologist though…they won’t work with you. It works though!
@@leannedohmann5069 would you recommend taking them with ‘standard of care’ treatments or on their own?
and for phyllodes? Do they work for phyllodes too?...
Hang in there, folks! Good luck and God blessed ❤
What strucks me in patient stories is that people never expect cancer diagnosis. But why? Cancer happens. It can happen to ANYONE.
From the go found me page... 23. Februar 2024 von Joshua Burns , Spendenbegünstigte Ein sehr trauriges Update, unser lieber Keely ist letzten Sonntagmorgen friedlich verstorben. Ich möchte Ihnen allen für diese großzügigen Beiträge zu Keelys Behandlungsziel danken. Wir planen nun, dieses Geld in eine Stiftung für unsere kleinen Töchter ❤️ Josh, Polly und Tottie zu stecken.
Thankyou for sharing your story. Such a nasty disease but you are fighting it with such determination. I’m glad that you have such a loving supportive family to give you strength ❤
You are such a wonderful lady and l am so sorry that you got this terrible disease. Your children are so lucky to have you, such a wise intelligent person and lm sure you will help many others facing this battle ❤
Turn to Jesus He loves you, He is the healer of the body And savior of the soul, There is True Hope in Jesus, God protects Psalms 91, He is the God of miracles Acts 2:21 And everyone who calls on the name of the Lord will be saved Jesus alone saves Trust Him with your salvation John 3:16 1 Corinthians 15 1-4 Moreover Brethren, i declare unto you the gospel which i preached unto you, which also ye have received, and with wherein ye stand By which also ye are saved, if you keep in memory what i preached unto you, unless ye have believed in vain, For i delivered unto you first of all that which i also received, how that Christ died for our sins according to the scriptures And that He was buried, and that He rose again the third day according to the scriptures, Take care
Why couldn't they put you under for the bone biopsy
I 100% agree with you, but they don't.
I'm so very happy for you. I hope the rest of your journey continues to be as healthy and happy as you look right now.❤❤
God loves you, we live in a broken world but He hears your crys and your life is In Jesus hands.
My daughter had metastatic breast cancer. She passed away three years after diagnosis. I am so happy for you. Any survivor of this disease is a blessing. God bless you and your family.
I’m so sorry for your loss
She passed away sadly
Hi
WONDERFUL, WONDERFUL NEWS. I’m so happy for you all. 🥳🥳🥳🥳❤️❤️❤️❤️
Why she had another baby after had a breast cancer .. always is a high risk to get a cancer back
This women did zero research on her own cancer type. She should have read articles about it. I think being a pregnant mom was more important to her than being a 'Living' mom.
🩷🙏
I had triple neg breastcancer, when I was 36 and my child 3. My lympgnodes at my mammaria interna were full of cancer. It has been 20 years this february... It was hard, but I am cancerfree and happy to be alive!❤
I’m praying for healing for you.
YOU NEED TO CK OUT JOE TIPPENS CANCER PROTOCOL FENBENDAZOLE RIGHT AWAY, FENBENDAZOLE REDUCES AND KILLS CANCER CELLS WITH OUT ANY SIDE EFFECTS.,AND CAN BE USED AS A PROPHYLACTIC AGAINST CANCER. AND JESUS LOVES YOU ❤
You are beautiful Keely. I am an eleven year survivor of same cancer. Live your best life girl.💖💗💖
Sadly she passed away
❤❤❤❤❤❤