Catching Up On Cystinuria!

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  • เผยแพร่เมื่อ 14 ต.ค. 2024
  • Someone asked how I've been doing and if I could make a video just recounting how my current health and such is. Happy to report I'm still stone free!

ความคิดเห็น • 4

  • @AlyneGagne
    @AlyneGagne 6 ปีที่แล้ว +1

    Hey me too one kidney with cystinuria. Lost my kidney at 14years old from this nonesense. You are the other other person I have found with the same situation. I am in a chronic pain loop now and about to have an autotransplantation. Yikes!

  • @kimberlyjohnson7685
    @kimberlyjohnson7685 3 ปีที่แล้ว

    How can I personally contact you. I also have cystinuria and was diagnosed at 12.