From Misdiagnoses to Making Demands: Stomach Cancer Patients Speak

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  • เผยแพร่เมื่อ 21 พ.ย. 2024

ความคิดเห็น • 112

  • @KayClarke-i8y
    @KayClarke-i8y 8 หลายเดือนก่อน +20

    Have watched around a hundred videos from/on people with cancer. It is disconcerting to hear so many describe how their symptoms were ignored/misdiagnosed by their doctors and after many continued complaints over time. I believe I am in that same boat now. Though my symptoms are vague, they are getting worse. Something is wrong. These videos are helpful on a variety of levels. People are their own best patient advocates.

    • @elisedunstan2080
      @elisedunstan2080 7 หลายเดือนก่อน +2

      I think some doctors do not want to know the truth because it horrifies them.

  • @Cancerwarrior24
    @Cancerwarrior24 6 หลายเดือนก่อน +21

    I was diagnosed at 33 with stage 4B stomach cancer. I was given less than 6 months to live if I didn’t do any palliative chemo. So I did 12 rounds and it was absolutely horrid but still alive after almost 15 months. 95%chance it will become unstable once again but there is no way I’m going back on treatment. So I’m gonna enjoy everyday and whatever happens happens. ❤️

    • @Wittyklef
      @Wittyklef 3 หลายเดือนก่อน

      How’re you now?

    • @Cancerwarrior24
      @Cancerwarrior24 3 หลายเดือนก่อน +2

      @@Wittyklef still here almost 18 months later! Not doing any more chemo. Still have cancer but doing a very low dose of immunotherapy to get me by to the holidays and then will probably stop.

  • @lisascott2841
    @lisascott2841 ปีที่แล้ว +21

    Im in tears. Sadly she passed away 😢 Rest In Peace beautiful ❤️ Going through this now..

    • @elisedunstan2080
      @elisedunstan2080 7 หลายเดือนก่อน

      Oh that is awful. Poor little thing.

  • @kellymcdonell9687
    @kellymcdonell9687 4 หลายเดือนก่อน +14

    I was told I didn’t have cancer by a “cancer specialist”, ten months later, I almost died. I had late stage lymphoma. Doctors have got to figure out how to diagnose sooner.

    • @giorgosvasilakis1548
      @giorgosvasilakis1548 3 หลายเดือนก่อน

      I don't know what is wrong with some doctors!
      You are better now?

  • @jet44444
    @jet44444 ปีที่แล้ว +22

    I had to lie to get taken seriously too, was able to get a gastroenterologist on video call. I’m getting a colonoscopy and endoscopy in 2 months. Sometimes you have to lie to get taken seriously. Hopefully it’s a false alarm, but better safe than sorry.

  • @tdecarlo7395
    @tdecarlo7395 2 ปีที่แล้ว +39

    Doctors told me I was too young for heart problems at 42, 3 doctors later I finally found one that listened. He did a nuclear stress test and found I was 100% block in my right artery. I was in surgery the next day.

    • @uniquecin
      @uniquecin 2 ปีที่แล้ว +5

      What symptoms did u have?

  • @amandaallen7378
    @amandaallen7378 3 ปีที่แล้ว +27

    My beloved Papa Carlyle passed away from stomach cancer on June 22, 2010 at just 70...barely a month after being diagnosed with stage 4 stomach and esophageal cancer..how I miss you every day Papa, almost as bad as the day that you left..until we meet again...love you forever.. Amanda

    • @nivocoelho6502
      @nivocoelho6502 ปีที่แล้ว +2

      I feel you.
      How long did he suffer from it if i may ask, sir?

    • @CHELSEABuckhannon
      @CHELSEABuckhannon 7 หลายเดือนก่อน +1

      GOD bless you all ❤❤❤❤

  • @mz.tali3274
    @mz.tali3274 2 ปีที่แล้ว +58

    My brother is 31 n just found out he has stage 4 stomach cancer n spread already to liver please pray for him n if any advice n help be appreciated god bless u all

    • @HopeForStomachCancer
      @HopeForStomachCancer  2 ปีที่แล้ว +5

      please check out our support groups at stocan.org. We also offer free bags of info.

    • @MrsJFJ
      @MrsJFJ 2 ปีที่แล้ว +5

      Turmeric curcumin high dose.

    • @yougotaluvme
      @yougotaluvme 2 ปีที่แล้ว +6

      Prayers for you, your brother and family. Keep the faith and keep, walking with Jesus.

    • @Skumar-ly5cq
      @Skumar-ly5cq 2 ปีที่แล้ว +1

      My father is also suffering from similar cancer(stage4)..pls go for low carb diet..drink turmeric water.

    • @bappibabu3988
      @bappibabu3988 ปีที่แล้ว +1

      God help you and everyone 🙏🙏🙏🥺

  • @gretavanpuyvelde7048
    @gretavanpuyvelde7048 5 หลายเดือนก่อน +6

    Luk (49 yo male) from Belgium here. Almost 1 year ago I was diagnosed with stomachcancer adenocarcenome at the stomach entrance (cardia). Gastrectomy after chemo. All seems fine at this moment. Eating doggybag the next day 😂 is necessary. I had 4 chemo sessions followed by surgery. No follow up treatment because the disection of all extracted tissues (stomach, spleen and 28 lymphs ) showed no spread. When I read up on testimonies I realise I’m very fortunate having had treatment in the finest university hospital. No fizzy drinks on heavy alcohol for me anymore. I lost 21kg of weigth. The only symptomen I had was that I had sometimes black feces and that's how I went to the GP initially.

  • @pattyfitz317
    @pattyfitz317 2 ปีที่แล้ว +25

    My gosh I can relate. Had a pain in my side, heartburn, fatigue, bloating, and off blood counts. Told multiple doctors. Something just made me keep looking for a cause. No one was listening and one dr. told me "maybe this is just how your blood is". Finally 8 months later, I am diagnosed with stomach cancer. Starting treatments in 2 weeks. Now hoping for more extensive genetic testing given I have 1 sister (breast cancer and ovarian cancer), 1 niece (breast cancer), 1 brother (bladder cancer) and myself( breast and Stomach cancer)

    • @yougotaluvme
      @yougotaluvme 2 ปีที่แล้ว +6

      Prayers for all of you🙏🏿

    • @MrsJFJ
      @MrsJFJ 2 ปีที่แล้ว +1

      Turmeric curcumin high dose with black pepper for absorption.

    • @nivocoelho6502
      @nivocoelho6502 ปีที่แล้ว

      Prayers for you. How long did you suffer from it if i may ask?

    • @SharonCentrone
      @SharonCentrone ปีที่แล้ว +1

      Sounds like a Lynch Syndrome genetic cancer syndrome. Prayers for you and your family

    • @remus2533
      @remus2533 11 หลายเดือนก่อน

      I am very sorry to hear that 😞! Your family history alone should have been enough to get them investigating. Overpaid morons ! Good luck to you !

  • @belindahutchinson5333
    @belindahutchinson5333 ปีที่แล้ว +24

    Yes..doctors should learn how to listen..and in the very least send you for tests 😢

  • @experiment_lain3292
    @experiment_lain3292 ปีที่แล้ว +14

    It's a shame people have to lie to get the help they need. I sadly just lied as well #self advocate

  • @rachelb8394
    @rachelb8394 ปีที่แล้ว +8

    I suffered for close to three years before being diagnosed with bladder cancer. Three doctors passed my symptoms off as my urine cultures came back negative for UTIs and my former primary doctor lied on my health notes that my symptoms were due to anxiety even though I said I wasn't stressed but in pain. I'm doing fine after surgery and have one more year of chemo left. I just found out I'm at a 3-fold risk for gastric cancer due to an autoimmune disorder that causes anemia and B12 deficiency. Praying I don't have to face another cancer in my future.

  • @lisam.5958
    @lisam.5958 4 หลายเดือนก่อน +1

    Watching these videos as I was diagnosed with h pylori but still have pain even after medications. I am grateful I do not need a referral and made an appointment directly with a GI doctor, seen within 2 days and scheduled for an endoscopy in 2 wks. Hoping for positive results.

    • @SupKaVideos
      @SupKaVideos 3 หลายเดือนก่อน

      Could you please your endoscopy results

  • @justine66100
    @justine66100 ปีที่แล้ว +41

    this infuriates me…why don’t doctors discount the worst case scenario first????

    • @rickyspanish6261
      @rickyspanish6261 ปีที่แล้ว +3

      I've been desperately trying to get Help for this 5 to 6 years. Multiple doctors say the same thing, similar Scenario As the first story. They just keep telling me They don't think it's anything. But fail to properly check. And I push for months and wait for months for tests fir them to reschedule or cancel the appointment... trying a whole new gastrointestinal practice this coming Monday and I hope they will help me. Through all this I have learned to push, But not enough

    • @kimtanguay6901
      @kimtanguay6901 ปีที่แล้ว +2

      Exactly my question

    • @rebeccakarlsson1395
      @rebeccakarlsson1395 ปีที่แล้ว +1

      These EXACT words come out of my mouth quite regularly. It’s insane

    • @remus2533
      @remus2533 11 หลายเดือนก่อน

      Because is all about turning over as many patients as possible. Investing takes time. Time to them is money! Healthcare companies that they work for is pressuring them to ser so many patients a day. For profit Healthcare is making Americans sick and killing them. Unfortunately, Americans are to ignorant or stupid to realize that! I am very disappointed with the average American! Most brainwashed citizen in the developed world!

    • @CHELSEABuckhannon
      @CHELSEABuckhannon 7 หลายเดือนก่อน +1

      Exactly because it actually makes too much sense 😂😮😔 sad doctors got too listen and do better ❤

  • @clancycreations
    @clancycreations 3 หลายเดือนก่อน

    Gotta love when you’re either too young and healthy for a certain medical issue or too unhealthy to be treated with respect & intelligent compassion. 💜

  • @normabyde4766
    @normabyde4766 ปีที่แล้ว +15

    We have a different system in the UK. Your primary care doctor arranges everything with doctors and hospitals. Any suspicious cancer symptoms have to be investigated within two weeks. Not perfect but better than what I’m reading here.

    • @anothercampervanchannel
      @anothercampervanchannel 5 หลายเดือนก่อน +1

      People still get fobbed off over here. Misdiagnosed over here.

  • @amandaamadori7756
    @amandaamadori7756 3 ปีที่แล้ว +38

    Drs do NOT always know .
    Actually they are wrong a LOT of the time

  • @noemifitzpatrick6039
    @noemifitzpatrick6039 8 หลายเดือนก่อน +2

    ❤❤❤❤❤❤❤🙏Another WARRIOR HERE: WELL SAID & GOD BLESS. ❤❤❤❤❤❤❤❤❤🙏

  • @rickyspanish6261
    @rickyspanish6261 ปีที่แล้ว +7

    Seriously.... iv been pushing for 6 years now in everyday stomach pain and the docs have done NOTHING. Multiple different docs. Im so scared and in severe daily pain.😢😢

    • @rickyspanish6261
      @rickyspanish6261 ปีที่แล้ว +1

      I relate very much with The first guys story. All the docs keep saying they don't think it's cancer but fail to follow through with any tests. I have another appointment this coming Monday with yet another gastrointestinal practice and I very very very much hope they help me. I want to live, I have to much to give

    • @jet44444
      @jet44444 ปีที่แล้ว +1

      Sometimes you have to exaggerate the symptoms to get taken seriously.

    • @susanvelasquez7059
      @susanvelasquez7059 11 หลายเดือนก่อน +2

      I agree. Exaggerate your symptoms. Tell them it is like nothing you have felt before. Go to gospital er and not.urgent care or a standalone er. I just got diagnosed with stage 4 stomach cancer. I've always struggled with heartburn had hpylor 16 years ago. Dr had not ordered an endoscopy in 10 years. Advocate for your health. Do not accept being told its heartburn or gerd.

  • @TheCambra
    @TheCambra ปีที่แล้ว +11

    They found mine through an endoscopy all they had to do is as simple PET scan to see if it spread

  • @AidaShares
    @AidaShares 5 หลายเดือนก่อน +1

    There is data from Valter Longo at the University of Southern California about the fasting mimicking diet has shown 40% improvement in response to conventional chemotherapy.

  • @EmmaCruz-tu2xo
    @EmmaCruz-tu2xo หลายเดือนก่อน

    My G.I told me after I told her that I have chronic gastritis that everyone in the world has gastritis , and that u shouldn’t think too much about it

  • @ramseywilliams9089
    @ramseywilliams9089 3 ปีที่แล้ว +13

    Dr’s kept telling me the same thing and I ended up having breast cancer

    • @keishacox3735
      @keishacox3735 2 ปีที่แล้ว +4

      You have to lie, it’s sad but so true

    • @ladiosa1116
      @ladiosa1116 ปีที่แล้ว +1

      Me going through same how u coping

  • @charmainehutchinson7281
    @charmainehutchinson7281 ปีที่แล้ว +5

    I’m having severe gut pain and I’m getting no results with my doctor been to ER twice on second time they did an cat scan but nothing show up but since then the pain have gotten worse

    • @marys3738
      @marys3738 ปีที่แล้ว +1

      Same here! Have they found what’s wrong?

  • @anglophils645
    @anglophils645 ปีที่แล้ว +11

    Hispanic people have a significantly higher rate of stomach cancer, even as very young people. All children, especially Hispanic children, who have frequent stomach aches, should be screened for the H. Pylori bacterium, which is the leading cause of stomach cancer.

    • @raychelhill9208
      @raychelhill9208 ปีที่แล้ว +4

      ​@AK-fk8zo a simple Google it says people of color are more likely to have stomach cancer I think it's the spicy food but I'm not sure colon cancer is more prevalent in the black community I believe it's from the soul food and seasonings and greasy foods what I find weird is that there are very few TH-cam videos made by black people with colon cancer.

    • @jeaninedoyle5039
      @jeaninedoyle5039 7 หลายเดือนก่อน +1

      I had H Pylori in 2021. I'm currently having stomach aches and dry heaving.

  • @adamtedder1012
    @adamtedder1012 2 หลายเดือนก่อน

    Exact thing is happening to me. Same symtpoms as Jason. They did an endo but didnt find anything but it is the VA. Been a year and a half of fighting all this. Severe stomach pain. They said i have ibs, and gerd. None of the medications are working. I feel like this years endo migjt find it but again its the VA.

  • @ShirazAlhassan-bu1hy
    @ShirazAlhassan-bu1hy ปีที่แล้ว +2

    My condition started the same year and I still have the same pains please I'm Ghanaian and I need a referral to where you got treated

    • @Wittyklef
      @Wittyklef หลายเดือนก่อน

      Are you in Ghana or in the us

  • @morningstarshabbath
    @morningstarshabbath ปีที่แล้ว +3

    How did this turn out? Ive been battling a long time with the same symptoms

    • @Catherine-zv4wd
      @Catherine-zv4wd ปีที่แล้ว +2

      Would love to hear responses to this

  • @bbyrd500
    @bbyrd500 6 หลายเดือนก่อน +1

    there is a shortage of GI’s in US - huge deficit! and most only want to do simple colonoscopy endoscopy

  • @rdizzy1
    @rdizzy1 ปีที่แล้ว +7

    A huge percentage of people with H Pylori infections have absolutely no symptoms, and no ulcers. And a low percentage of people with stomach cancer test positive for H Pylori, thus, there may be a connection, but I highly doubt the connection is causal.

    • @Katie_purry02
      @Katie_purry02 5 หลายเดือนก่อน

      He has a genetic mutation CDH1. He mentioned in his slide. His aunt died of stomach cancer. I believe his cancer is not caused by H pylori infection but it was genetic. Hope crispr can fix this in the future and other therapies.

  • @bluesmoke8826
    @bluesmoke8826 9 หลายเดือนก่อน +2

    How are these 2 doing today?

    • @femmeredlockz
      @femmeredlockz 7 หลายเดือนก่อน +1

      The lady is deceased

    • @giaaig9460
      @giaaig9460 5 หลายเดือนก่อน +1

      And the man is a 6-7 years survivor.

  • @elisedunstan2080
    @elisedunstan2080 7 หลายเดือนก่อน +1

    My ex boyfriend's mother was from Japan. Both her parents died from Stomach cancer.

  • @anothercampervanchannel
    @anothercampervanchannel 5 หลายเดือนก่อน +3

    How is it that you can google symptoms of cancer, have all those symptoms and then have a doctor say that cancer doesn't present like that? Where do they get their information from exactly if they're getting it so wrong?? And this idea that folks can't possibly have cancer because they are too young is just plain wrong!! I know that and I'm not a doctor! It absolutely boils my p*ss!! 🤬 How many more people will die because doctors are so uninformed?? There's just no accountability either...

  • @chahinezbenabderrahmane4441
    @chahinezbenabderrahmane4441 ปีที่แล้ว +2

    OMG my story is similar to Branny's

  • @charmainehutchinson7281
    @charmainehutchinson7281 ปีที่แล้ว

    Whst advice can u give me

  • @ShirazAlhassan-bu1hy
    @ShirazAlhassan-bu1hy ปีที่แล้ว

    Please I need the speakers contact and his country

  • @haramgaspile328
    @haramgaspile328 3 ปีที่แล้ว +2

    how can i contact you guys??please help my boyfriend Jason from Arizona..i think he has stomach cancer too😭😭😭

  • @andreasanchez2815
    @andreasanchez2815 2 ปีที่แล้ว +14

    i HATE doctors. they don't take me seriously either!!!!!!!

  • @laniegonewild
    @laniegonewild 8 หลายเดือนก่อน +1

    Sounds like me 😢

  • @haramgaspile328
    @haramgaspile328 3 ปีที่แล้ว

    how can i contact you??please help my boyfriend from Arizona ..i think he has stomach cancer too😭😭😭

  • @JustmandyD
    @JustmandyD 4 หลายเดือนก่อน

    If you need to lie about symptoms to get Doctors to take you seriously... Do it!

  • @laavalus696
    @laavalus696 7 หลายเดือนก่อน +1

    Yeah, the doctors always know you better than you know yourself 🙄

  • @AkhisLabcenter
    @AkhisLabcenter ปีที่แล้ว +2

    Would urge you guys to talk to *Dr Bastin* about any disease that you are battling with.
    He is the best herbal doctor I know.❤

  • @amritsangra81
    @amritsangra81 2 ปีที่แล้ว +4

    🙏🏽🙏🏽🙏🏽

  • @andreasanchez2815
    @andreasanchez2815 2 ปีที่แล้ว +2

    oh no they knew about the side effects but they dont care.

  • @AkhisLabcenter
    @AkhisLabcenter ปีที่แล้ว +3

    Would urge you guys to talk to *Dr Bastin* about any disease that you are battling with.
    He is the best herbal doctor I know.❤

    • @remus2533
      @remus2533 11 หลายเดือนก่อน

      How do we find him?