The Girl Who Needs Other People's Blood To Survive | Extraordinary Children
ฝัง
- เผยแพร่เมื่อ 1 ต.ค. 2024
- 5 year old Heidi has Diamond Blackfan-Anemia a condition that affects her blood cells, so she needs blood transfusions every month to live.
--
Click here to subscribe to BBC Three: bit.ly/BBC-Thre...
Did you know that we’re up to other things in other places too?
Best of BBC Three: www.bbc.co.uk/bbcthree
iPlayer: www.bbc.co.uk/t...
Twitter: / bbcthree
Facebook: / bbcthree
Instagram: / bbcthree
Tumblr: / bbcthree
Oh, we’re on Snapchat too - just incase you were wondering… add us, bbcthree.
![[Live] ศึกมหึมันส์มวยไทยสังเวียนเดือด เวทีมวยชั่วคราวสวนสยาม | จันทร์ 30 กันยายน 2567](http://i.ytimg.com/vi/pM1k6f7JXUc/mqdefault.jpg)
At least she can brag to kids at school about how she's the closest thing to a vampire.
*But she'll always be the cutest little vampire I've ever seen, and the bravest little girl I've seen as well.*
Claire Maclean don’t call her a vampire. She is so cute
@DIYA the light You can't even take a joke.
I first thought of that when I saw the video.
@DIYA the light well. Read the whole comment, it said the cutest vampire.
She is not a vampire and in all seriousness she will probably get bullied here whole life for here condition.
My heart broke when I saw how Meg (the sister) was reacting to all of this.
JohnRomeroHD, what the heck!?!?
Wew
JohnRomeroHD lmaoooo
JohnRomeroHD LMAO hahaha
JohnRomeroHD LMAO
I hope she's on the list for bone marrow donors... Surely they didn't just stop at her sister?
Either way, bone marrow recipients AND donors can either die or get seriously ill. Its not a saving grace but let's hope she gets lucky
I’m sure she’s on a list but it can take years to find a match
bone marrow donation can be very dangerous. if the bone marrow isn’t a 100% match with the donor and recipient, the donor has the chance of getting graft vs host disease, where the bone marrow is rejected and it’s very painful and it can be deadly.
@@hannahbailey6424 That's not true, the only risk of complications for the donors are related to the anesthesia or damage to nerves and bones, there is no risk of a donor getting graft vs host disease (because he's not the one on the receiving end). It is indeed a risk for the receiver of the marrow, though. (Source: bethematch.org/support-the-cause/donate-bone-marrow/donation-faqs/)
@@Chanhee Donors are carefully selected to make sure they're low risk. I wanted to add myself to the donor registry but I didn't qualify because of a medical condition I have. In addition, many bone marrow transplants only require the donation of blood. They're not dangerous at all for the donor. The type that require drilling into bone are only risky for people with certain medical conditions, who are excluded from donating, and people at high risk of anesthesia complications are also excluded. The recipient can get graft vs host disease, but careful testing is done to reduce the chance of that happening.
Hey my name is Amos O’Neill & I’m 23 yrs old now. I was diagnosed with the same disorder and know exactly what that little girl is going through because that was me. The doctors said I wasn’t going to live past the age of 13 yrs old (obvs I’ve proven them wrong being 23 now). I stopped having blood transfusions around the age of 16/17 and I haven’t taken any steroid medication for at least 7/8 yrs. I am very fortunate and blessed to have overcome something that felt impossible.
This girl is my hero!
Amos O'neill if you don’t mind me asking: Why did they say you would not live past 13? I also have this condition.
@@laurenbromet6393 well just some prediction on life expectancy and the likely outcome? That's not to say people can't beat the odds
Why did you stop having blood transfusion s?
Wow that's crazy. I was told i wouldnt live past 18 but here i am 22 now. We tried taking me off steriods twice but my hemoglobin would go down. So unfortunately I gotta stay and continue to live off of them.
I am similar I don’t produce enough red blood cells and also need a blood transfusion once a month but even if I have a bone marrow transplant it won’t help I hope I can overcome this and won’t have to have blood transfusions again ( I’m 15 now)
Omg, when she said "do you want me to dress up as a mouse" then plopped down in front of the camera .. My goodness. She's just the cutest thing
ikr
She cannot live with here supply of blood so she needs it from other people,but at least she can brag that she's a REAL Vampire.
@Doofs you ever here of a joke and it's called, if you have to live with something troubling then you might as try to make the best of it.
Pide Tods lol except she's not drinking it
I'm sure shell have a vampire phase lol
@@whytho3774 Nothing wrong with joking about an illness when you have it. I do. I often say that I traded boobs for height because... well, I did. I took shots to grow and had to stop puberty via a monthly shot. It left me with smaller boobs than I'd otherwise have.
Sir Loin Of Beef lol nice one. I’ve never taken offense to jokes. So let these people be salty. I have epilepsy and I make jokes about myself. It helps ease the mood.
Omg she is so cute bless her
Cecilia Hammer ikr :)
JohnRomeroHD what the heck id wrong with u
JohnRomeroHD
What is wrong with you?!
JohnRomeroHD
Screw you.
Cecilia Hammer thats so nice of saying that😀
Her poor sister, her whole life will be about her sister and not her, hope she doesn´t grow up resenting her parents or sister.
Scorpio Queen reminds me of my sisters keeper by Jodi P
What a disgusting assumption.
you have a better way, eh?
A1rPun It does happen very often in these situations though. Having a sibling with a severe condition tends to take away the older ones childhood. It’s not saying anything bad about the parents though. They’re doing an amazing job and I have no clue what happens in their personal life.
Wow,what a dillusional!!!!
People like u think themselves to be the center of universe,and can't think out of it,can't think for others,may they be ur own blood or not!!!
Have u ever heard of kindness/compassion????
When her Mom got off the phone and said the trials failed I felt my heart drop. I wish there was something that could be done for her. ❤️
StItChEs X-x-X I do not speak for all people that have DBA, but I do have it. I want to assure you that transfusion for me personally was better than steroids. I do not know if she feels this way but she is a strong girl who will get through it!
I get 1 liter of white bloodcells every month, im so thankfull for everyone who’s donating their blood
But she needs red...
@@natasha5852 bruh...she is just saying that she is gratefull
Aditi Kaushik
'grate'ful?
6
-)
6
umm y do u care she’s talking about her own personal experience dimwit
IDTS
Did they give up on bone marrow because the sister doesn’t match? Plenty of people would help that child. I would.
IonIsFalling7217 are you already on the donor register?
I was wondering that, and why not have a number to call at the end.
I would do anything for that cutee
I'm on the donor list! Been on it for at least 5 years, still waiting for the call to hopefully save a life.
IonIsFalling7217 same I would help (if we matched )
Poor girl! I've never heard of this condition before and I'm sorry to find out that it exists!
Ice Queen my sister has thalassemia.. it is really hard but we are always there for her. especially her mother (my aunt) she is an angel
Ice Queen so do I😢
I have condition very similar to DBA called Beta-Thalassemia Major. I use a central line (port-a-cath) for blood transfusions every 3 weeks. All my cells don't work properly because I have Mitochondrial Disease on top of the blood disorder and other conditions. Honestly the blood disorder sometimes is the easiest one to deal with because threes at least an actual treatment for it unlike my other diseases.
Sana Madaan wait. Your sister's mother is your aunt? Um what😂
2 types of people
1. OMG SHE CAN HAVE MY BLOOD!
2. Darwin says let her die
Come on guys , blood transfusions once a month isn't such a big deal and the steroid treatment is temporary. She seems like a happy little girl who enjoys life despite her challenges. Saying her life is not worth living is simply disgusting. However I agree that from an evolutionary standpoint she's clearly got a massive disadvantage. But as humans we are past that point. Most of us would've actually died at birth or live an unhealthy lifestyle that would make us unfit for survival , so most people would've to be weeded out if you really think that way.
you disgusting excuse for a person maybe you should be put down for being so damn heartless
Thereza Loftus We are Dr House fans
3. People who doesnt care
4. Mixed
And that's how I decided that when I turn 18 I will become a blood donor, even if I'm a bit scared of transfusions and that kind of stuff.
My fear is nothing, compared with the difficulties that so many people have to overcome in their lives.
Exactly. I give blood whenever I can. Quite convieniatly the local blood donation service turns up at my university every couple of months or so so if I can I give blood then. And the trick with giving blood (or having a blood test too) is to make sure you have had plenty of fluids. This makes the blood vessels easier to find and get blood from.
My hb always fluctuating becoz of i am a carrier for thalassemia. But i try to donate each time my HB reach the allowed level.
I think you can do it at 16 with parent consent. That was the first time I donated.
I 100% wish I was allowed to donate blood. Sadly I will never be allowed due to my own health conditions but I think it's a wonderful thing to do. Good luck for when you are able to give blood. X
Never regret donating blood, you never know who's life, you will save literally blood donation saves lives throughout the world. It can be packed & stored in many various ways and just overcoming your fear is something you will feel good about.
I never thought donating blood was that important, I thought there were thousands of people until I donated once. You know, there are many different blood types and all of a sudden they kept calling me every week, and I would go every month when the blood mobile showed up. Finally, one day, I was exasperated, because they kept calling, and I didn't have a problem going, but why were they so worried, pressuring, hopeful I was donating? I had survived leukemia, I had it for 10 years, untreatable, incurable. I was lucky a geneticist saved my life, and I went into remission miraculously as a matter of fact, my oncologist thought I had gone to another country and got a cure. After that, I started donating. I asked them why they were asking me so often, and I found out that my blood is only 2% of the population! Think about that, I also found out that was why I couldn't have children by my husband, because he didn't have the same blood type as I did, because mine was so rare. I wish I had known that 30 years before, I would have tried to find somebody but war has shrank my blood type. So they were so excited to find someone else in the local area that had this blood type, which is very uncommon where I live in Southern California.
Sadly, I'm not allowed to donate anymore, as the new director have them interview, as for any medical problems. And I said, well, I'm a leukemia survivor, and that's why I donate. The new director went ballistic, it's not that they thought I would give them leukemia in my blood, they were terrified, they would give me the key me by removing my blood. It breaks my heart that I can not donate to help others who have my rare blood type. The people I admire are the ones who have the universal blood, because they can give for everybody. Can you imagine that a person's blood can literally save someone else's life. What a wonderous design, the body is.
Meg just wants to help Heidi so bad. That's a good big sister right there😊
That’s so sweet! I’m a big sister myself, and I hope that If the time comes then my little brother will step up. I would give him lol my blood if necessary. Heidi and her sister are by definition brave.
Meg is so understanding and patient especially considering she is 8.
kjdnyhmghfvb thats a kid who had to grew up fast for the sake of her family
She can have some of mine 🙁
gangstalishis I was just writing the same thing bless her
Do you donate blood already.
I'm blood type A. I'm ready to help if someone need my blood.
Donate your blood then...
I already part of red cross
That poor family. I do feel so sorry for them 😞
Plum_Stone me too it's it's it's just soo sad😖
"When she gets a blood transfusion it's like a stranger comes to hold her hand for the next 4 weeks." wow
I’m so thankful for being born healthy I feel so sorry for these kids I hope they make it through and enjoy a happy life :)
I dream to become a blood donor but I have iron deficiency anemia 😞 People if you are healthy, please share your blood with the ones who need it
Yelizaveta H. Have you changed your diet to increase your iron levels? I always do a week before donating just in case
Al Funcoot Bit of a personal question don't you think?
Thanks, it is okey. I take supplements for 4 years. Caffeine free diet does not help a lot.
I have A LOT of blood problems, including iron deficiency anaemia, so I ain't donating blood anytime soon; honestly I wish I could because people like her need it more than I do. :/
Since u was young, I've always wanted to give my blood but I also can't because I have an iron deficiency 😭
I hope I will be able to give my organs
My partner was also born with dba, fortunately he responded to steroid treatment and hasn't had to think about his condition since, until recently we fell pregnant and have the risk of our child having dba. Hoping for the best x
I hope everything turned out well.
Paige Madison update? X
How is the baby?
We hope everything is okay with the baby and ur future children
Thank you all for the well wishes, my daughter is Nearly 2 now and she doesn’t have DBA, She is doing amazing, I am so so grateful ❤️❤️
The cutest little vampire
I literally saw this and was like omg a real life vampire
Actually there is a rare genetic condition where people need fresh hemoglobin which is the red protein inside of red blood cells and they are also allergic to sunlight and can only go out at night. There was a story I saw about some little girls with this condition. I think conditions like these are what started the Vampire stories. There might even have been a virus or bacteria at some point in history that could cause this kind of condition that could be spread among people also. Vampirism nowadays is better understood and medically treated just like any medical condition.
@@onidaaitsubasa4177 yes actually Dracula was based off a man who had that he would blister and burn if he saw sunlight and he needed vitamin D from blood since the sun gives you that I believe
*:or in weeb's term*
*"the cutest little ghoul*
Baleigh Nielsen i am 100% a vampire. 1. I have DBA also. 2. I get hives if in the sun for to long(even with sunscreen). 3. I am pale as hell. 4. I am always vitamin d deficient.
Aww bless her she's so cute.
"Do you want me to get dressed up as a mouse?" That made me smile
On Monday I’m going to make my first donation to my blood bank and I honestly feel overwhelmed knowing I could help save someone’s life is magic
As long as her type is negative I could donate. I'm O- it's a universal blood type that is compatible with all the other - types. So by default O+ types can donate to all + types. Which is why when I'm 18 I'll be donating blood
All blood types can receive O-, including positive blood types! So it would be very good of you to donate. :)
O- can actually go to absolutely everyone! I'm O+ and can only donate to other + people, but you can give to anyone
Lexi Barrow O-blood is like having coffee without sugar, anyone can have it where O+ blood is like having coffee with sugar, people who have no sugar (- blood) can't have it
Lexi Barrow same here
I’m O+ :) my dad is O- and my mom is O+ soooo
My boyfriend who's 26 years old has DBA. Everyday is a struggle 😢 I love him so much though and admire his courage and strength ❤
God bless him.
I feel so sorry for her
dancer 4 life - the disabled and chronically ill don't want your pity. We want understanding, a fair chance at life, and people who love us. It's no more than anyone else asks for and it's what everyone should receive in life.
Cassie C I say that I feel sorry for her because I have a serious condition to, and I am not asking for empathy I just hope that as time goes on, in the future as medicine improves that condition like this can be managed.
Me to
To be loved is what everyone wants - regardless of what kind of a body we are in.
Please don’t feel sorry. I also have DBA. People with medical conditions don’t want pity. I understand completely where you are coming from but she is a strong brave girl who can get through these tough treatments and medicines.
I work in a large Hospital lab. We need all types of blood!
We can also used the liquid part of the blood - plasma, etc. Plasma, cryo, and platelets are the liquid part of the blood. The last 2 weekends I've worked, I've needed Blood, Plasma, cryo, and platelets - with all these components, the nurse and doctors were able to SAVE THE PATIENTS LIFE!!
Thank You for Donating!!
(I hate to tell the doctor that we don't have what they need for their patients. We do run short in my city sometimes. ) Please help if you can!
I'm anemic and recently received packed red blood cells but hoping to get back to donating plasma soon!
I’ll donate when I turn eighteeen.
Heidi: "Do you want me to dress up like a mouse?"
Me: YES!!!🥺🥺
I wish I could give her mine.
We all love you little one! Stay strong, we've all got your back!
I would love to give blood but I cant because I have type 1 diabetes.
Libby having diabetes doesn’t effect you donating blood. I work for the American Red Cross and we have people with type 1 and 2 donate all the time.
I would too but I was born in england in 95 when there was weird stuff going on with blood transfusions
Lucy Snider That only matters of you've had a blood transfusion, dude. You're eligible
No it doesn't. Even if you haven't had a blood transfusion you can't give blood if you were in the UK in the early 90's because of the risk of Mad Cow Disease
Summer Russell yup that's the one!
I Have DBA !! It is sooooo cool to see someone with what I have on a Channel that I'm subscribed to 😄😄
do people with dba have blood at birth?
Are you kidding me? Please tell me you're joking... Ofc they have blood at birth, however once they leave the placenta they are unable to make their own red blood cells, from what I remember red blood cells only live for 60 days.
Did grace marry mamrie or hannah?! (Username)
It's neat to see your own rare disease represented in media. There are extremely few examples of my primary disability (full body CRPS type II) in the media. Actually, I don't know if I've ever seen a type II-er on tv before. I think everyone I've seen (all 2 or 3, lol) had type I. Which would make more sense- it's 10 times more common than type II (though it's still rare, happening to only 1 in 5,000 people- type II is 1 in 50,000).
Completely unrelated but your profile picture is beautiful
My friend is in the same condition as Heidi, now she's 24 years old and she's been relying on blood transfusions all her life. I've been seeing her struggle since we were in elementary school. I've got to learn many things from her, she is so inspiring.
I wish all the best for her and Heidi ❤ they are brave and strong!
i genuinely want to donate my blood to that cute lil vamp
My heart goes out to this lovely child. I am going to donate blood for my 16th birthday. In my state, parents can't sign a release form for someone to donate until 16 unfortunately (but you can become an organ donor at any age which I highly recommend!) it's really just 20 minutes to save someone's life
Bella 138 - Good for you!! Blood donation is so critical. My brother received blood more than once during his life. I wish I could donate and give back, but my own disability rules me out. So instead I convince healthy people to donate, lol.
Cassie C I'm so glad to hear that your brother has benefited from blood donation. I hope he and you are doing well. I'm sorry that you are unable to donate- I'm anemic so before I do donate I'll have to get my iron count up to a certain level. A lot of people I know aren't eligible to donate because they are gay men or they have a blood disorder; I feel very lucky to get the opportunity to donate. It's really great that you are encouraging healthy people to donate!
Donating is great! Been doing since I turned 16.
In my country you can only donate blood from the age of 18, and you can't donate after getting a tattoo for I think a year (?) I don't know exactly.
Keep in mind that you can only donate whole blood once every 3 months but plasma can be donated more often and in between whole blood donations.
She's so beautiful I hope things work out for her
Kel 〈3 me too I am crying so much 😭😭😭😭😭😭
0:44 a bit creepy but so cute!
Thank you
Adrian De León I got creeped out at tht part too the way she talks is creepy damn
Adrian De León
ok
Adrian De León a
“Do you want me to get to get dressed up as a mouse?”
Me: *YES CHILD BE ADORABLE YOU ARE SO CUTE AND SWEET AHHHHH*
This just opened my eyes. When I always thought about blood transfusion I always thought "how odd to have a random persons blood. Who knows what kind of person this blood is" but now I like to see it how the mother sees it "holding hands for the next 4 months" that sounds more like a journey with someone's help and that's really what it is
She's so precious :( the world is so cruel to give her this kind of sickness
The Mika I am from saudi Arabia I am willing to treat this young girl on my expenses from hotels to hospitals in any country please if there a way to reach these people please enter my page and send me e-mail to there were place please I tried I couldn't reach them
The Mika it wasent the world Hun it was genes and stuff
Maggie C it wants genes and stuff it's god that creates everybody differently some ppl are normal some have things that others don't have I grew up with allergies that 10 percent people have and it hurts but I am still thankful for god this is how I am created
Unicorn lover I'm going to assume you meant wasent by wants correct me if I'm wrong but it was genes and stuff because that's science
The Mika ii
She is the most adorable thing...
Can we just take a minute to appreciate how cute and lovely she is ♥️♥️♥️🐰🐇
So sweet awwwww❤️
My goal for next year is to donate blood. Thos has inspired me even more❤
It reminds me a little of my treatment, I had blood cancer and I only recently finished treatment, I had numerous of blood transfusions and bone marrow aspirations and I also have beads of courage I have over 1,000 beads on mine, I’m finally of treatment and had my port out about 2 weeks ago and I’m so happy it’s all over
How are you doing now? =)
You go girl!
This little girl is so brave. Bless her heart
True courage .
She is a little girl with a beautiful and wise heart..
I cannot imagine how can 5y.o girl explain by herself what happened to her with her own word.
And her sister is wise too, knowing the condition both of her sister and her mom that take care of her sister, rahter than being jealous, she giving comfort instead :)
They're parents must be giving a good explanation about the condition...
I’d love to donate blood, but I’m underweight and am prone to passing out. I guess my job is to spread it along!
I can't donate cause I tried but kept freaking over the needles so I helped in other ways like volunteering at the red cross which helped raise money for all the good work they do, like paying the nurses who take the blood, transportation and processing and even paying for the cookies and water bottles.
Shelley So you *can* ... you're just being a baby about a fuckin needle.
Actually I can't cause they suggested that I don't try again until I have my panic attacks under control.
Skyler Gray she's helping in other ways though I wouldn't donate blood because of the needles too
Skyler Gray that's abit ignorant. Some people have real phobias of needles 😂 but if that were me I would definitely donate regardless :)
My heart breaks for this sweet girl. I have DBA as well and the condition effects people differently and stories like her give me great hope and strength and encouragement. There’s people whose bodies reject blood, steroids and bone marrow. I’ve been fortunate to have been in remission for a few years now but I understand others stories aren’t as blessed as mine and I wanna raise awareness and help whenever I’m able to. People like this angel are heroes to me
I have DBA also.
I feel bad for kids that live their life in the hospital and not able to do the little kid stuff, school, parks, etc
I ben on steriods since 8 months old now 22 yrs old. I'm very fortunate to be able to graduate school and hang/ play with my neices and nephews.
Im proud where I am. And I hope these kids get to enjoy alot ❤💎❤💎
I Will GIVE MY BONE MARROW !!!!!! And MY BLOOD What is her blood type ? I am A positive !!!!!!!!!!!!!
ok, now all i need is your social security number, your credit card, expiration date, and the pin on the back
jefflo168 😂😂😂
I think she is also a positive because it said on the blood bag
My Allah give her complete health.
Ameen.
abdulhaseeb muslim ‘Allah’ took away her health...
'Allah' gives problems to us for solving and pray for someone is also included in the effort of problem solving.
abdulhaseeb muslim not trying to shit over your believe but have you ever thought about what you are saying? Allah just says "this little girl shall have a disease that will kill her if she does not get help from others" and thats it? Why her and why doesn't every one get such a hard trial. Listen I do not know if there are gods and I do not know if life has a meaning but please try to think without influence from others. I was raised with some christian influence but I do not think that there is a caring god. Maybe there is and it just created life for the sake of creating life without caring for it. maybe it's goals are beyond our understanding but I do not think it tries to test us with such horrid tests.
inshallah
drn000 you can't know the wisdom of Allah because you are human which is also created by Allah.
I want to donate everything I can. I’m going to ask my mom if I can donate blood and what ever I can cause people need it more than me. (I’m also terrified of needles but would still do it)
Nadine Enblom good on you! Really selfless of you to want to give blood despite your own fear 💚
Nadine Enblom if you donate blood you get free cookies too!
lmao
Nadine Enblom beautiful.
Thank you :) I have DBA and fortunately the corticosteroids shock treatment worked for me when I was very small but people like you saved my life 27 years ago.
*I wish I could help her but I have sickle cell, I can't help people with giving blood unfortunately*
Tasha Jefferson we just have to get the word out in our situation
I have severe iron deficiency anemia so I can't even make enough of my own blood
Never mind trying to give blood but making enough of my own to keep me healthy
In order to do that I have to take a high dosage of iron tables every day twice
350mg twice a day so I can make enough of my iron rich blood to keep me healthy and well
Which means I can't donate even if I wanted to
I have the same thing as you.
My sister also has sickle cell
I have it too and it's terrible. I would love to sign up for blood donations and bone marrow registry but I can't because defective blood isn't going to help much :(
i have beta thalassemia, my body also doesnt make its own red blood cells and my body has too much iron ;) im with you heidi
Same, me too! It’s the first time I’ve seen someone with the same conditions as me!
the iron overload is calles hemochromatosis, right? can it damage your liver? anyway, good luck and good health to you
I found out I was a carrier for beta thalassemia a few years ago so I did some research on it. I wish you well!
Her sister is so nice she just wants to help
I would give blood
But I get blood draws all the time because of MY condition
If you don’t mind me asking, what condition do you have?
This makes me wanna go donate blood right this second but it's 11PM. :(
did you end up doing it? :)
Nicole Taboada no but I am donating plasma right now. :)
A wha
What on earth for me too o___o
I so wish I could give my blood but I can't because of T1d and it being unsafe due to autoimmune. God bless her
This Is also known as thalassemia ..... When my brother was about 5 months old he also got the same disease he had to go to hospital every 20 days to 1 month to get blood when he was around 17 years old he passed away..... And now I have the same disease I have to go to hospital every month to get blood.. Its really hard life with it now I'm 13 years old .. When I was 6 months old we found out that I m also having the same disease.... I don't feel like normal kids I get week when my blood finishes I can't run much or fast.... Its really hard ... Guys 1 request pls pray for me I'm leaving the country in which I get blood and my really expensive tablets which are more expensive than gold.... I don't how i ll be there... There are no tablets which I want .. And it's really difficult to find the blood which I have ... O negative group is my which is very rare to find... Guys pls pray for me
She gets injection in her stomach which my brother also had but I use the expensive tablets instead of injection
Ketty Brwn I pray that you get all that you need no matter where you are.
It’s a different condition to thalassaemia but it may resemble diamond blackfan anaemia if it’s a very severe form of thalassaemia in a young infant. People with diamond blackfan are incapable of making new red blood cells so after their maternal red blood cells are used up they require monthly transfusions, unless they are able to successfully receive a bone marrow transfusion. People with thalassaemia can make their own blood cells but make an abnormal form of haemoglobin. The disorder results in excessive destruction of red blood cells by the body which causes the anaemia. So they are treated the same way, if the thalassaemia is severe but they are two separate conditions.
Ketty Brwn I agree with Fiona. This is not the same as Thalassemia. I'm a Thalassemia carrier myself and I researched a lot about Thalassemia for my offsprings' wellbeing, so I know quite a lot about it :/
My family has always been a blood type O family for generation, and at least 7 people in my family that I know of is type O Rh negative. We live in Indonesia and has been on the fixed donor list of blood type O Rh +/-, and some of us also enlisted in the Rh - blood donor community. If you're ever in the area and in need of donor, you can ring me a bell. Best of luck dear. I will be praying for the best
Fiona -Jane Kelly Yes they are two different conditions but they are rather similar. People with beta thalassemia major or Cooley’s anemia do not produce normal blood cells, thus they are incapable of carrying out the function properly. This can lead to severe complications as the cells are destroyed much faster causing the iron from the cells to deposit on the liver and heart damaging it. BTM (Beta Thalassemia Major) patients seem healthy when they are born but as they grow their bodies are unable to produce enough cells, causing severe anemia this can be fatal if the patient does not receive a blood transfusion. I got my first transfusion at 4 months old and have been transfusion dependent ever since. I take at least two transfusions a month and I’m now 24 years old. The only known cure is a bone marrow transplant. In addition, we have to take injections to remove all the excess iron that comes from the transfused blood from our bodies. Patients have to constantly monitor their iron levels to make sure the heart and liver don’t go in to failure. Very similar to the condition this little girl has.
Aww bless Heidi she is so positive and sounds like a sweetheart she appears to be a bundle of joy and her parents seem so lovely 😊
What a beautiful family, you have Heidi🌹💕. Sending lots of love, light & positive vibes, that perhaps, one day real soon, a cure will be found. Heidi is such a strong young girl, and things can change💓. Wishing this whole family, the very best, of what life has to offer💓
Love from Canada💋..
I'm a donor and this makes me feel even better about donating. O- here 👐
Me too 😁 universal donors unite 👍🤗
Me too.. 🤗🤗🤗
Damn. One person is cold hearted.
now there is 4 dislikes sadly
if you want a cold hearted person look at mr pepe's comment in reply to memes and hearthstone's comment that is truly cold hearted.
Mr.Pepe19 hours ago
3. out of compassion she need to be put down painlessly so she doesnt have to suffer.
she never asked for this life.
that is the comment i mean
i use to be a member of a teen and college age support forum many of the members would tell me if they knew their kid was going to be born like i was hydrocephalus cleft palate possible spina issues ect they would abort or think it best that the child didnt live or at least wasnt theirs it really bothered me and hurt me so sadly many feel the way that person does but thats no excuse for that comment they made
sadly, the number of monsters on this video don't even begin to match the number of those in real life.
41 cold hearted people now
Man, this makes me really want to donate my blood. But I have an illness already so I can't ugh ;-; for the people who can and are thinking to donate, please do it! You'd possibly save a life ❤️
Not your fault. Depending how well you are, maybe you could volunteer the for your local blood bank?
I would donate but I have an extreme phobia of needles. One time I kicked a nurse in the shin because I was scared.
I wish I were near her so that I could help her. They could've mentioned her blood group in the video.
W-what did you expect her to answer by asking "what happens when you run out of blood" -
And this is why I give blood
That's exactly what I was going to comment. If anything happens to me the doctors are free to take any organ that could potentially save another person. I signed up YEARS ago... I should check to see if I'm still on the organ donar register...
aside from this poor sweet baby girl, this document was beautiful. the different scenes and the coloring of the film was lovely. it shows that even though this family is going through such a time consuming and saddening condition, they're still a happy family, human beings playing and loving each other. amazing job at capturing and editing this film, id love to watch more like these that feel more natural.
Install a VPN (most are free and can even just be browser extensions rather than fully installed applications), set the VPN to United Kingdom, load up www.bbc.co.uk/iplayer and then have a ball...
You can find the full episode and a million similar to it.
why not a bone marrow transplant???
Coco Crooks She's probably on the list for one, but it's very difficult to find a match for especially when most don't go through the process to test what type they are 'cause they don't think about it/it's expensive/there's not enough awareness out there about it.
It's also only a 50/50 chance even with 100% match. And a few people with DBA have not survived their transplants in recent years.
If I didn't already have my own illness to deal with I would most definitely donate to this sweet girl! She is amazing,adorable, and unique,hope she grows up to be a strong woman!
she's so precious, I hope the doctors find a way to treat her without all the blood transfusions. Hang in there sweetheart
She is so precious. Sending love and positivity her way. Such a beautiful strong young woman ♡♡
Oh she is so lovely! We need more videos showing the real people who benefit from blood donations. Maybe more people would want to be donors then, even though 'needles are scary' and all that.
She’s such an adorable little girl,
She' s a cute smol vampire
Its small not smol
I am O- if you need some, I am more than happy to help you.
Wow this is similar to sickle cell anemia I have sickle cell anemia and I have to get a lot of blood transfusions to
I’ve never wanted to give blood before until I watched this because she’s so stinking cute 😭😭😭😭
Absolutely adorable
People are right chickens who dont donate their blood. 3 times a year is all it takes. I am an O- donor that means I am a universal donor and my blood can go into anybody no matter their blood type. Every time I donate a very special sticker is placed on my bag of blood that lets medical staff know that it is suitable for children. Believe me I wouldn't donate if it was in anyway painful or unpleasant (well I would) but for people out there that have this horror feeling when the think about donating. Not too bad at all. I actually find it quite relaxing., Anyone out there that is O- and doesnt donate you are crazy. Just do it!! Very brave little girl and I would be utterly proud if my blood ever went to you sweetheart!!
cells at work all over again
Best comment ¯\_(ツ)_/¯
team Once Upon a Time... Life
This makes me so glad that I donate blood consistently. I hadn’t even thought of it being used to treat illnesses like this- more along the lines of helping people who had lost too much blood in an accident or surgery. The possibility of it being used for a child or adult like this makes me all the more determined to continue to donate as often as allowed
I wish her the best in life. Good luck girl, I hope life will give you amazing things❤⭐
What if she has period in her future?And she still need blood transfuction
Joan Aurelia Tefanus omg
How the heck do u think periods work??
You do realise that with periods 90% of what comes out isn't blood, it's just the lining of the uterus which takes some blood with it because blood vessels rip when it comes loose. Saying periods are a problem is like saying: "what if she gets a papercut?"
@@totallynoticarus Right? It's not like periods consist of pure blood waterfalls.
@@totallynoticarus what if she gets a paper cut tho?
I have sickle cell anemia and I have to get blood transfusions every 2 weeks and I hate it.
She's so innocent she don't know what's happen to here conditions
Hopefully DNA genetics Will change her life with good blood😔😢
At least she couldn't possibly ever get leukemia.
Unfortunately this is not true. Studies done on DBA patients have shown a increased risk of cancers such as leukaemia, colon cancer, and other types of bone cancers.
As a diabetic i can never have the opportunity to donate blood. I hope those who can will 💝
This type of animina is common in pakaistan sadlay
That's because of incest in Pakistan unfortunately. You see, there are some areas in the middle east where marriage of cousins is completely normal.
The reason why you shouldn't marry within your family is because there's more chance that genetic diseases will appear because both parents will carry similar ''wrong'' genes when they are family. It's okay to have some genetic ''mistakes'' in your DNA-code but incest causes a lot of repeated genetic ''mistakes'' that lead to rare diseases or disability. So if you want to have a smaller chance of getting children with anemia and other disorders, marry someone from another country/city.
L5940 "Another country" wtf no. You just don't marry your cousin but you can marry men outside of your family. What are you on about??
L5940 yes I'm also have the same disease as I'm from Pakistan and because of my parents are cousins
786CH well i know pakistan peoples and i live close to pakistan but dont say mean things about pakistan, maybe u guys are right but dont say mean things doesnt matter if u from pakistan or other citie’s
@Nilu Abdurakhmanova It's not ''mean'' if it's just an observed truth. It's important that the Pakistani people know that there are options to prevent these kinds of diseases, just by not marrying within the extended family. It's not like I'm saying all Pakistani people marry their cousins but there are *some* people there who do. And those people create genetic problems for their offspring.
Came here to dislike clickbate topic.
After met heidi: Like...
Next time BBC next time...
She is one very very brave little girl and I would donate quite a lot of blood even though needles are my biggest fear ❤️
Heidi is such a strong 💪 baby may god continue to bless her through her journey 🗣 I’ll continue to donate blood because you never no who life you can save
I had never heard of this specific disease before. Constant transfusions have to be so overwhelming and disruptive! Hopefully a cure can be found soon😊
Thoughts and prayers for this amazingly strong willed girl.
I'm A+ and I would love to help but problem is I'm on to many medications
I can't remember what you said about the steroids but I really hope she doesn't need them. I've been on and off all my life and just thinking about them makes me want to cry. And yet, ... they save your life. Amazingly powerful in some ways and totally destructive in others. Praying for you.
Judy S I also despise prednisone!
What’s going to happen when she is on her period in Future?
That's what I was thinking. Maybe birth control to stop her period? or more blood transfusions..
People with DBA have irregular periods and are more likely to be infertile. Because your period isn't like, a wound, persay, it's not going to cause complications like you'd think. She'll shed her uterine lining like everyone else if she has a period.
It's Mia X
4:12 she is so brave i will be screaming and she is much younger than me
God bless the cute lil girl n may she get cured of this rare disease ...soon 😘😘
I saw this video about a year ago after which I’ve donated my blood every month now.
awesome job!!
I have a friend who has a child with DBA. It’s scary but he’s a fighter! He’s always so positive!