What are the symptoms of FBROMYALGIA- what does it feel like?

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  • เผยแพร่เมื่อ 1 ต.ค. 2024

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  • @jamesmcconnell2473
    @jamesmcconnell2473 6 วันที่ผ่านมา +1

    Two songs by Patti Smith, Frederick and because the night are w about her husband's Fred Sonic Smith

  • @jamesmcconnell2473
    @jamesmcconnell2473 6 วันที่ผ่านมา +1

    I worry about all your typing and fiddling with the phone period using voice typing is good mental exercise

  • @captnse
    @captnse 2 ปีที่แล้ว +5

    I’ve had some very severe fibro flares over the past 25 years...I’m in a terrible flare right now for the past 5 months...these flares are mostly brought on by prolonged emotional and/or physical stress. In addition to the symptoms you described, Fibro for me creates digestive issues (bloating, gas, nausea, etc), along with overactive bladder, which can be products of anxiety also. Thanks for doing your vids on the subject....many days I can’t even text a msg on my phone without feeling pain in my fingers, shoulder, or back. I know most of your audience seems like women, but men definitely can get fibro also (which I’m sure you’re aware of).

    • @tt_looking_glass
      @tt_looking_glass  2 ปีที่แล้ว +1

      That’s is a long time to be in a flare. I’m so sorry. That’s awful. I do agree that stress definitely triggers flares. Unfortunately it’s impossible to live a life without any kind of stress. As far as the demographics of my audience it really reflects the demographics of the illness. 80% women, 20% man. Thanks for supporting my channel.

  • @teresa.daniel
    @teresa.daniel 2 หลายเดือนก่อน +1

    ❤❤ Tnq
    V. Beautifully explained. 😅 im suffering.from last.26byears. Though Drsmdiag nosed they were givings only pain killers..didn't know the.seriousness of. The aches n pains
    Only now I'm seeing in tube
    I.always suffered. But had to manage
    Suddenly during last 8 months ot
    badly flared up. Im.on treatment with with good Artho n Neuro dr.
    Tnx for yourv Doingblotbofvhardcwork..but suffer a lot..unable to get up. From.bed. i sleep only at3am.😮😮..still no one understand my situations .. After seeing videos people will open their eyes.pnce again tnx a lot. My warm wishes
    GBU you too.❤
    .

    • @tt_looking_glass
      @tt_looking_glass  2 หลายเดือนก่อน

      Thank you so much, Teresa! ❤️❤️ I’m really glad you found the explanation helpful. It’s so frustrating when doctors don’t take the seriousness of our pain into account and just hand out painkillers without a proper diagnosis. Suffering for 26 years is such a long time, and I’m sorry you had to go through that without proper understanding or support. It’s good that you’re finding more information now, and I hope it helps you find better ways to manage and cope. Take care, and thank you for sharing your experience. 🌼

  • @Iamnosey
    @Iamnosey 5 หลายเดือนก่อน +3

    😢 you have covered itt quite well! Hoping they find a cure soon. Hugs and rrock on! ❤

    • @tt_looking_glass
      @tt_looking_glass  5 หลายเดือนก่อน

      Thank you so much for your comment! I'm really glad to hear that you found the video comprehensive and informative. It's definitely a challenging topic, and knowing more about fibromyalgia can help both those who are dealing with it and their loved ones understand what it feels like.
      Hugs back to you ❤️ Stay strong!

  • @Teresa-K
    @Teresa-K 2 ปีที่แล้ว +4

    My fibro flares are so painful. I feel like my arms and legs are on fire, a red hot raging fire that I can’t put out. All I can do is lay there in pain.

    • @tt_looking_glass
      @tt_looking_glass  2 ปีที่แล้ว +1

      I know very well what you mean. I’m sorry you too go through this awful illness. Tomorrow I have a video coming up of my 5 top items to help me deal with pain. The last one I share is what I use when I’m at that point when everything is one fire and there is nothing else I can do. Don’t miss it, I think I will be helpful for you.

  • @wendygraham7787
    @wendygraham7787 2 ปีที่แล้ว +5

    Great video. My worst symptom is neck pain.

    • @tt_looking_glass
      @tt_looking_glass  2 ปีที่แล้ว +2

      Thank you. My neck used to be the worse for me too but now it’s my back and migraines.

  • @jamesmcconnell2473
    @jamesmcconnell2473 6 วันที่ผ่านมา

    The song succeed. By Sonic's rendezvous band perfectly illustrates what your Destined for

  • @anannaafrin2017
    @anannaafrin2017 วันที่ผ่านมา

    Hi , I don’t know what I have .. but I’ve so much muscle stiffness on my upper body area like it’s so stiff that I feel like my muscle are getting rock like hard 🥺
    have anyone has this type of muscle pain ?

  • @TampaBMan
    @TampaBMan 4 หลายเดือนก่อน +2

    Omg!! I can so identify! Thank you!

    • @tt_looking_glass
      @tt_looking_glass  4 หลายเดือนก่อน

      I'm glad to hear that you can relate! It's amazing to know that we are not alone in this. Your support means a lot. Let's keep sharing our stories and lifting each other up! 😊

  • @jamesmcconnell2473
    @jamesmcconnell2473 6 วันที่ผ่านมา

    Sorry I have to repeat this this is being restricted. I guess that's how important this is. Move heaven and Earth to get a countertop portable dishwasher. Make sure it's countertop not the one that fits in the sink

  • @jamesmcconnell2473
    @jamesmcconnell2473 หลายเดือนก่อน

    The folks at YT thumbnail labs are crazy good

  • @miriamburden6233
    @miriamburden6233 2 หลายเดือนก่อน +1

    I have everything you talked about, it’s the all over the body pain that’s worse. 😢 every day there’s something to deal with also.

    • @tt_looking_glass
      @tt_looking_glass  2 หลายเดือนก่อน +1

      Hey Miriam, I totally get you. The all-over body pain is so overwhelming, and it's something that really gets to me too. 😢 It's like every day brings a new challenge, and it can be hard to find a moment of relief. Just know that you're not alone, and we're all here supporting each other. Keep hanging in there, and take things one day at a time. 🌸

    • @FIZZGIG-RARF
      @FIZZGIG-RARF 2 หลายเดือนก่อน

      The classic tale of "where am I going to hurt today!?" 😖😮‍💨

    • @tt_looking_glass
      @tt_looking_glass  2 หลายเดือนก่อน

      @@FIZZGIG-RARF or… where am I going to not hurt, right? 🤣

  • @teresa.daniel
    @teresa.daniel 2 หลายเดือนก่อน

    Sry. I have severe pain from head to the toes..Every part is paining ..
    Im.stressed out mentally N physically. Rgds.im.Teresa from.Chennai
    India.
    .
    ..
    .

    • @tt_looking_glass
      @tt_looking_glass  2 หลายเดือนก่อน

      Hi Teresa, I'm so sorry to hear that you're in such severe pain. I wish there were more words to help ease what you're going through. Please know you’re not alone in this, and there’s a whole community here supporting you. Sending you lots of love and strength from across the miles. Take care of yourself as best you can. 🌼💖

  • @jamesmcconnell2473
    @jamesmcconnell2473 หลายเดือนก่อน +1

    Ever try Irish sea moss. ?

  • @FrostInFreezer
    @FrostInFreezer 11 หลายเดือนก่อน +1

    For me, the pain and fatigue is bad, but the fibrofog bothers me most. Im a writer, who often cant write, bevause the words disappear. And the social aspect with fibrofog is very difficult.
    Thank you, for a very informative video. 🙏🏻

    • @tt_looking_glass
      @tt_looking_glass  11 หลายเดือนก่อน

      I know how challenging fibrofog is, especially for a writer where words are essential. I experience this when trying to create my youtube videos both in the creation of scripts and again in remembering it and speaking got the camera. It's frustrating when something you're passionate about becomes difficult due to the symptoms of fibromyalgia. You're not alone in this struggle, and many others with fibromyalgia face similar difficulties with cognitive symptoms like fibrofog.
      I'm glad you found the video informative, and I hope it provided you with some valuable insights into the symptoms of fibromyalgia. Remember that you have a supportive community, and sharing your experiences can help raise awareness and understanding of this condition. 🙏🏻

  • @krisebbeler36
    @krisebbeler36 ปีที่แล้ว +1

    My pain is 24/7. Chronic since August 15,2012. Never goes away!!!

    • @tt_looking_glass
      @tt_looking_glass  ปีที่แล้ว

      I’m so sorry to hear you too suffer from this awful disease. Hang in there. We will survive!!

  • @elizabethconroy7665
    @elizabethconroy7665 2 ปีที่แล้ว +1

    The more I learn about this chronic illness,the more I’m grateful for very good health
    Hoping that as awareness is brought people will be more compassionate and understanding towards sufferers
    Do you ever feel that a lot of anxiety and stress may exacerbate symptoms at times
    Is very hot weather also a trigger
    Take care
    Warm Hugs 🤗

    • @tt_looking_glass
      @tt_looking_glass  2 ปีที่แล้ว +1

      Absolutely! My biggest triggers are stress, (either emotional or physical), weather changes (any pressure change, could be cold or heat), sickness (especially viruses) and lack of sleep. I believe that Fibromylagia is a malfunctioning of the central nervous system caused by being stressed out to its extreme for too long. It makes all the nerves that carry information be in overdrive and it takes much less stimulus for the brain to interpret it as big sensations. That is my understanding, at least. Have you ever heard of phantom pain in amputees? They feel pain in a part of the body that does not exist any longer. But the pain they feel is real even though the body part is not there anymore. The remaining nerves fire for no reason other than the trauma they experienced. Even though the limb is not there anymore, the nerves cannot stop firing.

  • @loonylinda
    @loonylinda ปีที่แล้ว +1

    i have quite a few of the symptoms you described but my worst is feeling vicious electric shocks in my body...anywhere...shooting repetative electric shocks. and the feeling so tired.

    • @tt_looking_glass
      @tt_looking_glass  ปีที่แล้ว +1

      This sounds like a nerve issue. I have had those feelings before. It's horrible. I tell my husband it feels like someone has a voodoo doll of me and is sticking needles in me. I only get it sometimes and it is awful. I can't imagine having this all the time. Poor you. It must drive you crazy.

    • @kimlewter
      @kimlewter 3 หลายเดือนก่อน

      @@tt_looking_glassI have those symptoms as well feels like someone is sticking you with needles

  • @sandyandies8309
    @sandyandies8309 2 ปีที่แล้ว +3

    Glad I found you! I am 61yrs. old. I was diagnosed 2yrs ago. I have had this since I was a child. Growing pains is what I was told. My periods were terrible. Cramps and clots. I had endometriosis and hysterectomy at age 40. All the symptoms you have I have also. My worst pain is my bones in my legs and wrist feel like they are on fire. Also the feeling of a knife jabbing the muscles in my leg. It dont last long maybe 10 jabs and then goes away. Makes you think you are crazy. I can go on and on about my pain but you describe it very well. Thank you! I'm not alone.

    • @tt_looking_glass
      @tt_looking_glass  2 ปีที่แล้ว +1

      Thank you for watching my video. Yes, you are not alone. Yes, Fibromyalgia makes you feel like you are crazy! So many inexplainable symptoms. I believe it’s supper important to spread awareness and to foster a supportive community.

  • @vickim.851
    @vickim.851 ปีที่แล้ว

    Hi. I've had fibro for a long time, many years. Sleep issues, burning pain, pins and needles, brain fog, all over pain and achiness, fatigue. I have other health issues as well. The things that help reduce the fibro pain for me have been heating pads, therapy cane, gentle yoga, short rest periods throughout the day, especially on my really bad days. I also drink a green smoothie every day. Spinach, arugula, bananas and berries with water. I find that it really helps with the fatigue. 32 oz. Nothing makes the pain go away but those things help. You pretty much have to be your own advocate. A lot of doctors just don't know what to do with fibromyalgia patients. Meds have never helped me much, but I'm all for using them if they work. Be patient with yourself. Do something you enjoy, even a small thing, every day.

    • @tt_looking_glass
      @tt_looking_glass  ปีที่แล้ว

      Hi there! I understand how challenging it is to manage the various symptoms of Fibromyalgia and find relief. It's great to hear that you've discovered some strategies that help reduce your fibro pain.
      Being your own advocate is crucial when dealing with fibromyalgia because it's true that many doctors may struggle to understand or effectively treat this condition. Each person's experience with fibromyalgia is unique, and finding the right combination of treatments and strategies often requires trial and error.Taking care of your mental and emotional well-being is equally important. Like you said, being patient with yourself, finding small moments of joy each day, and engaging in activities you enjoy can make a significant difference in managing the overall impact of fibromyalgia on your life. Keep advocating for yourself, exploring different approaches, and taking care of your physical and emotional well-being. You seem to be doing an amazing job navigating the challenges of fibromyalgia, and I hope you continue to find ways to improve your life.

  • @atiqrahman7289
    @atiqrahman7289 2 ปีที่แล้ว

    Fibromyalgia is very difficult and painful disease. Diagnosis is difficult. There is no lab or imaging test to diagnose it. Lot of psycho- somatic issues. Difficult to diferentiate from psychiatric ailments. For a long time, fibromyalgia was not recognized as physical disease----- still some may consider it psychic disease only! Treatment is difficult as well. Disease is life-long, management is life-long.

    • @tt_looking_glass
      @tt_looking_glass  2 ปีที่แล้ว +1

      Absolutely. People often fail to recognize how everything is inteconected. Body-mind-spirit. They all influence one another.

  • @jamesmcconnell2473
    @jamesmcconnell2473 หลายเดือนก่อน

    This is before eds diagnosis ?

    • @tt_looking_glass
      @tt_looking_glass  29 วันที่ผ่านมา +1

      I haven’t been diagnosed with EDS.

    • @jamesmcconnell2473
      @jamesmcconnell2473 29 วันที่ผ่านมา

      @@tt_looking_glass thought you did

  • @aryas2995
    @aryas2995 10 หลายเดือนก่อน

    I feel very happy to see your channel ,thanks for the support ❤❤❤

  • @janmartell9792
    @janmartell9792 9 หลายเดือนก่อน

    The unrelenting fatigue is worse than the pain for me.

    • @tt_looking_glass
      @tt_looking_glass  9 หลายเดือนก่อน

      Fatigue can indeed be a silent yet overwhelming opponent, sometimes even more so than pain. It's like carrying an invisible weight that just doesn't let up. Sending you strength and hope for more energizing days ahead.

  • @KarniaSarkar
    @KarniaSarkar 7 หลายเดือนก่อน

    Do you have random bruises! 😐

    • @tt_looking_glass
      @tt_looking_glass  7 หลายเดือนก่อน

      I do actualy! Forgot to mention that one.

  • @jamesmcconnell2473
    @jamesmcconnell2473 6 วันที่ผ่านมา

    That's the thing about your channel. It's impossible not to consider what you're going through . Endless details maybe. I'm glad I'm listening to your video this second. For hand and arm pain a topical lemon essential oil and lavender. They are the only ones that work on the arms 9:28

  • @jamesmcconnell2473
    @jamesmcconnell2473 6 วันที่ผ่านมา

    The thing about me is I happen to know how close you are. All the Hope in the world that's what you represent. You are going to succeed

  • @mayrarodriguez732
    @mayrarodriguez732 2 ปีที่แล้ว +1

    I was diagnosed with fb about a month ago I do have a lot of symptoms but I feel like I do have something more.
    Rheumatologist and neurologist look at me like have 2 heads when I explain symptoms. They don’t know how to answer my questions or pretend not to know.
    What medication helps you with fb?

    • @tt_looking_glass
      @tt_looking_glass  2 ปีที่แล้ว +1

      Welcome to the club! One of the hardest things about chronic illness is navigating the healthcare system and doctors. On my own research I found that Low Dose Naltrexone 4.5mg (also known as LDN) is what has made the most difference pain wise without any side effects that I’m aware. When discovered in its very early years of research and was following its progress until I found comfortable trying it. When I forget to fill my prescription and I go without for 5 days, that is when I know it works, because, oh man! What a difference. I still have flares, and exercise intolerance, allergies, over sensitivity but pain wise it is a lot more manageable. I wish you the best of look on your health journey. Subscribe for more chronic illness content.

  • @Chronictonic134
    @Chronictonic134 2 หลายเดือนก่อน

    I related to everything in this video I have anxiety depression ibs and endometriosis 🥹 trying to get a diagnosis

    • @tt_looking_glass
      @tt_looking_glass  2 หลายเดือนก่อน +1

      I’m so glad you could relate to the video. That struggle is all too familiar for many of us. Just know that you’re not alone in this, and sharing your journey helps others feel less isolated too. Keep pushing for answers - you deserve to have your experiences acknowledged and understood. Sending you lots of love and strength! 💜🥹