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shut up

Returning home by Wednesday. Freedom by Richie Havens Woodstock

Thank u 4 sharing ❤. As much as i need my family to understand this video feel explaining on point. It feel like im talking to myself from the 1st to the last confession. There must b many of us going thru the same but cant find the words to explain to our dear ones. One flare and it takes a week to recover then full of energy and feel i can do everything in a day. The constant feeling of guilt just dont or cannot leave m. Gentle hugs 💜💜💜

Hi , I don’t know what I have .. but I’ve so much muscle stiffness on my upper body area like it’s so stiff that I feel like my muscle are getting rock like hard 🥺 have anyone has this type of muscle pain ?

I was referred to a doctor of physical medicine and rehab to have an EMG test done after my MRI had come back normal and he’s who diagnosed me. Didn’t end up doing the test, but he knew right away what I was dealing with and was very helpful. I’m very blessed to have a doctor that was helpful from the start. I’m so sorry to anyone that’s not having good luck with doctors

Right now I'm having a hard time.

Pots has ruined my life

Raise your hands. Tom Jones Janis Joplin

Got to admit when I saw your dehydrator I was hoping it was the dishwasher. Sink washing is the root of all evil

Google doesn't want you to know this. The tarlov cyst disease website has a Toronto interventional radiologists available. That you know your cyst location might help. A nice radio frequency ablation jolt could be educational pretty sure it would be in the foramina. At least a lesson and CSF leak mitigation. What that feels like. The fibromyalgia tarlov cyst protocol is still the answer though.

Looking up trigger point therapy in Canada. I believe Ontario medical insurance pays for three visits per year not including diagnostic shot bloks. The fibromyalgia tarlov cyst protocol requires 6 visits. Blocking the brachial plexus has that diagnostic drug. Hey that's up to five visits. If you have to finance one visit $150 is typical

When you go to bed at night do you ever feel like your body is rocking?

God freaking damn. That video hit a nerve 🥲🥲🥲🥲🥲🥲🥲

Thank you for the video and to all who are sharing their experiences. I’m 61 and have had fibromyalgia since my 30’s. It still amazes me all different symptoms and I question myself. So reading these comments helps me realize I’m not losing my mind. It’s very scary at times. Right now it’s the fibro fog. I’m convinced I’m going to get dementia early. The other thing is I attribute everything new symptom to fibro. Yes this disease comes with many symptoms, please don’t ignore a symptom if it gets worse. Better to have it checked and come back negative than to ignore something more serious. I’m still working and push myself to exercise at least 4 days a week. For me , if I sit too long, lay down too long or move too much I’m in pain. So I minus well exercise and get some benefits from it. Hang there and God bless you all.

is this happens bcoz of sedentary lifestyle? bcoz i m facing this.. i m litttle sedentary

Love your videos! Envious of your dehydrator! Those apples looked delicious! Such a great quote to live looking back but moving forward. Journalling has always been off such a help to me. Sadly since my health has declined considerably I stopped journaling 🥵 I will get back to it as I have been journaling since I was 16. I also used to write my own songs which I haven’t done for years another thing to do which is good for me! 😊

Light & sound are the worst.

Why do I have the same symptoms? Exercising intense jogging. Is it due to jogging, given that I had a sore throat a few days ago?

Totally! Im 63 have the same feelings!😢

I looked up trigger point injections in Canada. Only allowed three times a year pretty sure that means the protocol won't work has to be Detroit

Does anyone feel sweaty with chills??

Adderall’s changed my life. Don’t get me wrong, I still have the tiredness but I can actually stay awake, and do stuff like the tribal fiber art stuff I do. It also has this odd side effect of rare migraines now. Only bad effect is eating very sugar heavy food since it cuts my appetite more, but without it I could not stay awake. And yes I feel season and weather changes, it’s like it literally flares the nerves with electricity that singes and burns.

With the holidays not very far off, it might be hard for many people with chronic illness to get into the spirit and feel the cheerfulness that our families seem to expect from us. It’s my prayer and desire that each and every member of our community will receive the kindness, compassion and support that they need and deserve. With so much going on and so little free time to enjoy the holidays, it’s all too easy to forget that our families, first and foremost, are there to offer us their unconditional understanding and love. Please take care of yourselves and remember that there are a lot of us all over the world who care. Daniela has created a judgement-free space for people to sympathize, share and grow. Happy holidays to all!

I had this when after I got Covid in 2021. It was a bad one and I couldn’t make a step without my heart racing and says dropping after I get up. I had to sit for awhile and stand for a few minutes to let my body regulate. Eventually it got better. I wonder if these seeming increase in POTS is due to the Covid pandemic?

Would sitting up First for a few minutes help?

I can feel the chest pains just watching it.

My own family, my dad even mocks it. Says it’s due to my “sleep habits” and for not “exercising enough”

Yeap, same here. I think I’m not making the effort to look great so I can manage to be out of the door, but the true is…if I’m going out to do something that’s a victory lol Driving makes me panic and drown in pain so, there is not much I can do. As for the shower…girl, I do need to shower everyday but I can go a whole week without washing my hair because it’s super tiresome to get it done.

Yeah, im 99% sure I have POTS since i was little but no one ever looked into my low blood pressure. Now with perimenopause its gotten much worse. I just started HRT hoping to get back to my old normal.

I have those pill cases, but for my vitamins.

I keep those salt packets on me at all times just in case. They help quickly.

Being censored in real time. TH-cam doesn't want you to know about countertop dishwashers even though that's where I learned about them

This is amazing TH-cam won't allow you to know about countertop dishwashers

Hello Daniela, I so appreciate your perspective on life and its challenges. I have been caregiving for my husband who has severe pulmonary fibrosis and his condition has declined in recent weeks. As I had mentioned in previous comments, I too, have chronic inflammation and pain. You are so right. The journey with chronic illnesses is ever-changing and we cannot do anything about that but I love your outlook. We have to accept what we ourselves cannot control or change, as hard as it is. I try now to savor every moment that I yet have with my husband. Tomorrow is not promised for any of us. You always provide inspiration and a positive outlook, no matter how rough the road is. Sending much love and many hugs!!🤗🤗💝💝 Geri

The song succeed. By Sonic's rendezvous band perfectly illustrates what your Destined for

Two songs by Patti Smith, Frederick and because the night are w about her husband's Fred Sonic Smith

The thing about me is I happen to know how close you are. All the Hope in the world that's what you represent. You are going to succeed

I worry about all your typing and fiddling with the phone period using voice typing is good mental exercise

That's the thing about your channel. It's impossible not to consider what you're going through . Endless details maybe. I'm glad I'm listening to your video this second. For hand and arm pain a topical lemon essential oil and lavender. They are the only ones that work on the arms 9:28

Sorry I have to repeat this this is being restricted. I guess that's how important this is. Move heaven and Earth to get a countertop portable dishwasher. Make sure it's countertop not the one that fits in the sink

Over the counter portable dishwashers on TH-cam

Saw your comment on Amy Esther's channel about washing dishes in the sink. Wish you wouldn't cuz that's the number one way to to tweak the cyst

Was a little worried you went too far on your trip

This is such a fall inspired fall! I hope you have a great fall and upcoming winter!

I learn something new with each video you create. I am so happy that I found you, finally someone who really understands. Thank you for the time and effort you put into making them, it cannot be easy, but it is much appreciated. I have received your emails, but reading is difficult for me these days. I am saving them, one day I will be able to manage. I appreciate your efforts with them as well. You are an inspiration ❤ I have not journaled for a long time because it started with gratitude and always ended with whining and when I looked back on them I could see how long. I have been miserable and it was depressing. Maybe I will try again.

Great video. I bet your kitchen smelled so good with those apples dehydrating. Do they turn out crispy or chewy? We just got a dehydrator!

should really try nettle tea, almost immediately it helps sinus and clears brainfog

It's refreshing in a way knowing I'm not alone and how you feel... is validation for my fibromyalgia.

translate eng I have been watching you for a long time. I also have Birt Pots. I am very tired, I can't breathe, my head hurts a lot, I am very scared and I haven't been well for 5 years. What did you do? I hope you are well. Can you tell me a little about your condition and what you did. Love. Turkish Seni uzun süredir izliyorum. Bende birt pots hastasıyım. Çok yorgunum, nefes alamıyorum, başım çok ağrıyor, çok korkuyorum ve 5 yıldır iyi olamadım. Sen ne yaptın, umarım iyisindir. Bana biraz durumundan ve neler yaptığından bahsedermisin. Sevgiler.