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🤗 Hugs.

Thank you so much for checking it out on both platforms! I’ve had feedback from some people that reading can be really challenging for them, so I wanted to make it accessible in a way that works for more people. It means a lot to me that you noticed and took the time to experience both! Honestly, I’d love to know. What’s your favorite way to take it in? For me, it depends on the day, sometimes I love the intimacy of reading, but other times hearing the words feels more alive. What about you?

@@tt_looking_glass exactly the same

@@tt_looking_glass I honestly can’t say categorically. It depends on my mood and how I’m feeling physically at the time. But it’s nice to have a choice. Having it both ways makes it more of an “experience” than simply reading. ❤

The way you tied the sun and moon together is a beautiful metaphor for what it means to live with chronic illness, finding balance in the contrasts. I’m so touched that this resonated with you so deeply. Honestly, comments like this keep me going, especially on the hard days. Thank you for seeing the heart in what I shared and for always bringing such thoughtful reflections. You inspire me to keep going.

@@tt_looking_glass oh my God you me too. There is something shocking about you. I guess I always felt that you were always holding something back . Why do that? I haven't a clue not exactly sure how that works. Just glad that you take the time to do that

@@tt_looking_glass We together will keep going.!!! We all seem to have what it takes to be a good soul, a truly good being! To truly care and to reach out to try to help others while being permeated with pain. It takes a lot of perseverance for the long haul. Diagnosed in 1997. There is a book that says trials and tribulations are what gives you character. long time before that diagnosis. My back is totally out last few days. So have not been up to .............feels like a hard baseball that chewed up and inserted in my lower back. have not been out in days now. These are an upsweep to my mood among other things. Still a lot to be grateful for! These meaning coing here and listening to everyone and their hearts!

You’re absolutely right, it takes so much perseverance to keep going when you’re living with pain. I’m so sorry your back has been so bad these past few days,it’s such a relentless kind of pain, and I know how isolating it can feel to be stuck at home. Sending you so much love and hoping for a little relief to come your way soon!

I’m so sorry you’re going through this, it’s absolutely exhausting to be in that kind of pain, especially when it wakes you up in the middle of the night. You are so strong for enduring it, even when it feels impossible. I’m really glad this video gave you some comfort tonight, it means so much to me to hear that. Please know you’re not alone in this. We’re in this fight together, even on the hardest nights. Sending you so much love and strength right now.

Fortunately I don’t. I’m sorry if you do. I’ve heard it’s awful.

Trying to navigate copyright rules while making content that’s engaging is like walking a tightrope. I had to appeal one of my videos. Scape your pain- 5 movies to watch when you are in a flare, has clips from movies and the clip from Pulp Fiction has the dance scene with a song and I got flagged for that song. I appealed and won but I lost all the income from that video in the first month which really is when my videos get the views. It sucked!

@@tt_looking_glass whenever somebody mentions dance scenes I always think of the dance scene in boogie nights. So you watch that and then look at the Mills Brothers break dancing from the 1930s. Everything's the same even the music. An artist never borrows they steal. At least as one as good as Paul Thomas Anderson .

@@tt_looking_glass into that case TH-cam owes you that money. Just because pulp fiction would be the perfect flare movie. They should pay you just for pointing out this truth.

Oh, my heart goes out to you. Spending your birthday in bed alone sounds so tough, and I wish I could’ve been there to make it a little brighter for you. Please know that your birthday still matters, even if it didn’t feel like much of a celebration this year. I’m sending you the biggest hug and a belated “Happy Birthday!” You’re stronger than you probably even realize, and I hope this next year brings more moments of peace and joy for you. ❤️

Welcome back! It’s always such a joy to see familiar faces pop up again. Thank you for taking the time to comment, it means so much, especially knowing how busy your life is. I’m so glad you still enjoy the channel. Don’t be a stranger, but no pressure, come by whenever you have some time!❤️

First off, I absolutely love that you find the tapping of the MRI soothing! But yeah, that hard surface is brutal. It’s like they’re trying to make it as uncomfortable as possible! Thank you so much for acknowledging the time and energy that goes into TH-cam. It means the world to me, especially on those days where it feels like I’m running on fumes. Hearing that you enjoy my Substack stories too makes me so happy, it’s such a special space for me to share things more deeply. Maybe I’ll share more of my time as a midwife in the future, there’s just so much to unpack there. A video update on meds is a great idea! I’m always tweaking and adjusting, and it feels so validating to know you’re interested in hearing about it. Big, soft hugs right back to you, and thank YOU for being here. Your kindness and support really brighten my day!

@@tt_looking_glass ♥♥♥

I got it on Amazon. It’s called IceKap. Here is the link.amzn.to/4advQlJ I hope you enjoy it. It makes such a big difference for me.

Thank you so much

Thank you. ❤️

I resonate with your words so much and a big soft hug to you too. ❤

Thank you so much for sharing , you put into words so much of what so many of us feel but struggle to express. That loss you described, career, social life, even your sense of self, it’s so real, and it’s so heavy. It’s like grief that never fully leaves. I know exactly what you mean about waking up feeling like you’ve been run over, bruised, burning, and with this mountain of tiny tasks ahead that feels like Everest. It’s exhausting in every way, and then trying to explain it to people who don’t get it? That can feel even lonelier. But I hope you know your story is powerful. You being here and writing this? It’s a reminder to me and everyone reading that we’re not alone in this. And that’s huge. You’re right-l, we’ve lost so much, but there’s still connection and understanding here. And honestly, that keeps me going on the low days. Sending a massive soft hug right back to you. Let’s keep holding each other up, one comment, one day at a time.

@@CuteCatsofIstanbul I know it doesn't seem like it but everything's going to be okay. You know how I can tell? Your way with words. You're right a diagnosis of fibromyalgia isn't enough.. A differential diagnosis from neurology of Tarlov cyst is in order

Join the crowd! You nailed it! No one calls, no one comes by..

@@tt_looking_glass another wordsmith is born? This is a good day!

Your comment absolutely made my day, thank you for being so kind and open. I can’t tell you how much it means to hear that the videos bring you even a little bit of light on those hard days. That’s exactly why I share, and knowing it resonates with you reminds me why this community is so special. MRIs do feel like lying on a cold stone slab, you described that perfectly! But wow, I completely get why ultrasounds can be hard for you. I’m hoping right along with you for fewer flare-ups and more moments of peace for all of us this year. Sending so much love your way, and I’m so grateful you’re part of this community. Here’s to brighter days ahead, together. ❤️❤️❤️

Yeah, I’m not a huge fan. And you know what’s even worse? They are not agreeing on the report.

@@tt_looking_glass only one opinion matters, your own

@jamesmcconnell2473 think you.

@@tt_looking_glass think you Daniela?

@@tt_looking_glass I wasn't allowed to say it on the other thread. North DAKOTA has declared war on kratom because too few are dying from fentanyl

Oh my gosh, Amy, your comment just gave me all the feels. 🥹 Seriously, knowing that my content resonates with you like that means the absolute world to me. I put so much of myself out there, raw and real, because I want people to know they’re not alone in all the messy, beautiful, emotional stuff we go through. You’re why I keep doing this, even on the hard days. Thank you for sharing this with me, it makes me feel so seen, too. Sending you the biggest hug and so much love. 💕

@@tt_looking_glass see what I mean? When the tears start to Flow

@tt_looking_glass ❤️

Ah, invoking Dante, I see! Such beautiful and profound words. I feel both inspired and flattered. It’s amazing how his work still resonates through the ages, don’t you think? Thank you for bringing a little poetic brilliance to my day! 🌟

No need to read it if you never get a chance to use it

Yes, I absolutely do! 🏕️ There’s just something so peaceful about being out in nature, it’s like a reset for my soul. Do you enjoy camping too?

@@tt_looking_glass I would like to do it one day with some great people :)

@Dimich1993 where are you from? Where would you be camping?

@@tt_looking_glass I'm from Ukraine :) Carpathians, Crimea, Polissya, Podillia, around Dnipro river, there are a lot of lovely places. Actually I can start at the Trukhaniv island in the middle of Kyiv. :) Now that I'm in the military, there is always a chance I'll be camping somewhere.➕

You’re right, it’s definitely that time of year when flares like to creep in, and I did have one, but thankfully it wasn’t a very long one. I’m starting to feel better now and have been able to get more active again. I’ve even been walking every day and hitting about 10k steps, which feels like such a big win! It’s little things like that that remind me progress is always possible, even after a rough patch.

Thank you so much, Cassandra! ❤️ Your encouragement means so much to me,it keeps me going on the tough days. I’m so grateful to have such amazing support from you and this community. Sending you a big virtual hug!

Absolutely, I rewatch my own videos several times. It really helps me process my emotions and reflect on the journey. It’s almost like having a conversation with a past version of myself. I’m so glad the content feels healing for you, it means the world to know it resonates with others in the chronic illness community. Thank you for sharing that, it truly motivates me to keep going. 💖

Right?! Puppy teeth are like tiny little needles! 😂 It really was such a nice Christmas. I hope your Christmas was just as full of love and laughter! 🥰

Joan, thank you so much for sharing your story with me. I can feel the weight of all those years through your words, and I just want to say, I see you. This constant betrayal by our own bodies is something I wrestle with too, and it’s so hard not being able to plan or even dream the way we want to because this illness keeps throwing curveballs. It’s okay to feel the disappointment and the grief for what could have been, you’ve been carrying so much for so long. But I also want you to know that your strength and resilience shine through, even when it doesn’t feel like it. You’ve lived through decades of this, and that takes courage. You’re not alone in this, Joan, and I’m sending you so much love and understanding.

Sorry to hear that. Try turning the volume off. I watch things without sound sometimes.

It could be. You need to be assessed by a cardiologist.

@tt_looking_glass I'm looking into that with my parents thank you so much ❤️

You’re so right, most people just don’t get it, and that can feel so isolating. We may have to deal with so much that others can’t see, but at least we have spaces like this where we’re understood. Sending you love and strength, you’re not alone in this! 💛