Holidays Are Different Due to Chronic Illness (7/4/17)
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- เผยแพร่เมื่อ 4 ก.ค. 2017
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Thank you for sharing your stories, they are so interesting (including the Canada Day stories ❤)! Whether you were in the hospital, the comfort of your own home, or out with friends/family, I hope you had a great 4th. Or if you are in another country, I hope you had a great day! 😊
Chronically Jaquie I live in Scotland so I don't celebrate but happy Fourth of July jaq
Chronically Jaquie you should meet up with mary from the frey life
Chronically Jaquie I spent my 3rd of July celebrating with my family and my 4th of July on an airplane flying home. 🎆🎇
Because of my chronic illness and the heat here in California. I just stayed home with the ac on and slept nearly all day because I wasn't feeling well.
Chronically Jaquie you hit puberty at age 15?! wow I hit puberty not to long ago I hit puberty at age 10! my dad said I hit puberty faster than my brother is because girls mature faster than boys my 14 year old brother hasn't hit puberty yet but he's about to
I'm an expat and live in Switzerland with my boyfriend (he's Swiss). He knew I was a little bummed because I usually go out or to a BBQ and he surprised me by bringing me an American flag that he bought from a flag store, American beer, and grilling burgers! It was probably my favorite Fourth of July even though I wasn't even in America.
Femalehemingway he is so sweet! Glad he made you feel at home! ❤️
I stayed in bed while my parents went to get more supplies for the building on of my end of the house. Expanding my room and bathroom to accommodate my new life.
Jill Rabon we are here for you. Its all going to be okay
Have you ever tried to watch the fireworks on tv? You can mute it so if you like pretty fireworks that could be a solution ☺️
We stayed home and cooked for my neighbors party later that night. I read a new book called "The dysautonomia project" , which is a great book for anyone reading this, I highly recommend it. It reminded me of you because of a doctor you put input was from Tampa Bay. I wasn't able to go until about 8:30 because of the Texas heat. We live in the country so fireworks are a plenty, so I had to wear headphones. I was outside for about an hour, then I fainted because of my POTS. I have lovely new scrapes form falling in the pavement, but my new compression socks are covering them today , they have whales on them! I realized watching that years before I was even diagnosed I can remember staying in because I was too tired, dizzy or because of the heat we always thought I had symptoms from the brain tumor I had removed when I was 10. I am so glad you had a good day!
I celebrated by feeding my horses because I have a baby horse who was born on the 4th of July so I chopped up some pears and water melon and mixed it into the feed. They loved it but if your going to do it make sure not to do a lot of the pears and water melon.
Jozi Hammer so did I
Yesterday I walked in a parade to promote a haunted house for its 3rd year. I've volunteered at this haunted house since year one so I'm happy to do anything to help. I just wish I hadn't dressed in head to toe black haha! Top hat, leather plague doctor mask, steam punk goggles, longsleeve button up shirt, pants, boots... all black.
I've been dealing with severe anxiety and you have helped me so much to accept where I am at and listen to what my body is trying to say and it's okay that I'm not doing everything everyone else is doing. Thank you!
Rachycakes59 From a fellow severe anxiety sufferer (diagnosed with GAD and OCD for around 3 years) I find that she is such an amazing help as well! She and Mary Frey from The Frey Life give you such a positive outlook on life and how we should treat ourselves.
This video really hit hard- this week I 'started ' my chronic journey (I went to the doc and they are sending me to a neurologist- my sister has eds and I've had symptoms for years which are getting worse(signs of IBS, POTS, hearth palpitations as well as huge problems with joints etc)- hence the doc visit.) The part where you said you look back and grieve sometimes what you used to be able to do, I think at the moment I am grieving what I won't be able to- that my life will be different to what I initially planned. I want to say thank you though as watching you is slowly showing me that chronic illness doesn't have to be the 'end of it all- you just have to be willing to adapt to your current situation. You are definitely giving me strength, so thank you.
Could you maybe do a video about how you met/ how to meet others with chronic illnesses? At the moment, I have no one but my sister who I can really speak to about this and I'd love to know how you found people that you can relate and talk to.
I hope you have a lovely day x
Em dot cheering you on! I also wrestle with learning to be content with a new normal!
Em dot you are not alone!
i spent the 4th with my family and our dogs. i had to hide in my room with loud music because fireworks can give me panic attacks, but other than that, I had a great day. I'm glad you had a great day too!
knowing I'm not the only one! Of course, it sucks that they give you anxiety, but it is comforting to know I am not the odd one out with this feeling.
I lost my love to someone being dumb with fireworks. So I don't like them either. The sound is a strong reminder. Every 4th I have his old workmates over and make a 4th of July lunch for them. Then it's an early night with my headphones on listening to music.
I started crying when Jaquie flipped hippos ear over when it was flipped I just thought it was so cute. I was crying because I was sad it was just so so so so adorable! Also I have stage 2 breast cancer so I'm in the hospital doing a month of chemo so I didn't do anything for the 4th of July but stay at the hospital with my lovely fiancée and ate a really nice chocolate pudding!!!
I helped my grandmother with a puzzle, played videogames and talked with my boyfriend. Very calm evening. I relate to your feelings alot.
I got diagnosed with an autoimmune disease in may and have had to make sooo many lifestyle changes...I grieve as well for what I used to be able to have and do. But this year we spent the day at my parents (they made me special food so I could eat with everyone) with my pup. My dog does really well with them, she actually watches them and goes out of her way to see them. But the biggest surprise of the night is that my bf proposed!! He's been such a god send through all of these changes and is incredibly supportive!
We drove to a "free" fireworks show but it was so hot and they kept sending us to different lots so far away. My husband and I both have chronic illnesses and disabled parking passes but they were trying to make us park a mile away from the event, literally. Nope. We GTFO, went to 7-11 for hot dogs, grabbed a tiny bag of fireworks and let our 7 year old set them off in the driveway. He was a happy little guy. Having a super chill kid is a godsend when both parents are sick.
I have major depression and anxiety and anorexia, which I guess could generously be described as a chronic illnesses. It's a very stagnant feeling: anxious because depressed, too depressed to do much about it. Watching your vlogs, I am in awe (and envious) of the unwavering positivity you display. If you don't mind me saying, you're quite frank about what illnesses you have, and I admire the way you say you use the best of your abilities and the medical equipment available to you live a happy life -- despite the obstacles you face, you persevere. My body is healthy; my mind is my biggest obstacle stopping me from living a happy life. I really like how you said "just because it's a new reality, doesn't mean it's a worse one," because I always struggle with wanting to go back to the time when I wasn't like this. But I just need to do my best and use medical supports (now am going to a mental health program), as well as friends, to keep me afloat. Keep on keeping on.
I stay home and have a nice dinner with my family and do a lot easier things at home, i cant watch fireworks because they mess with my epilepsy but spending time with my dog and family is all i need
Thank you for sharing about your neurology appointment and the new medicine on the horizon! It gives me hope!
Jaq, I'd just like to let you know I find your channel very encouraging and I am very happy to have found your channel.
Through your illnesses, you are 24/7 fighting and I feel like that's so special, because in my opinion you're very strong.
A wonderful husband and a beautiful, smart service dog. Also, you're very pretty yourself.
I don't know if you'll see this comment but I just wanted to tell you that's you're amazing. And I have so much gratitude towards you.
Love from a huge fan~Kat.
I was like you, taking it easy at home and relaxing, then our neighbors had us over in the evening for a bit. I love visiting them because when I get tired and start to crash I just walk a few steps and I'm back home! Harlow looked too adorable in her festive gear :)
yogi and i stayed home and chilled,although i was disappointed that there were no city of springfield fireworks.my disability pretty much keeps me at home,except for when i go to the store.
I love Harlow when you're working out is like "Excuse me you're on the floor as your medical alert dog and service dog I am informing you that you are on the floor hey you're still on the floor by the way you're still on the floor just letting you know"
I can't express to you how much inspirational this video, and just you in general! Love you so much!!
I recently happened upon your Chanel and I'm addicted now! I love your positivity in all the things you go through and of course Harlow ❤
I cooked a dish for a cookout we attended. My family and I went to the cookout yesterday evening then watched the fireworks from our porch.
Hope you had a fun day despite the headache! Sending love
For the fourth, I had a nice home-grilled dinner courtesy of my dad and I got to design my own fireworks show for a few friends and my parents! Fireworks and other pyrotechnic things are one of my special interests, so I make sure to pick out fireworks that don't have sounds added in like whistling so I can tolerate them better. My silly dog tries to chase the bottle rockets when the sticks fall back down. Happy late 4th, and I hope you had a fun time with your mom!
I wound up going to my brother's house by the beach. He had a crazy amount of people, and I have bad social anxiety but I got through it. I had my cane with me, so it made it easier. I don't mind fire works, but at the end, it got a little much for me. Glad to see you had mommy to enjoy 4th of July with you!!!
Hi Jaquie, you've got a great partner in Harlow to help you workout. Every day I find something on your page to make me laugh. You really brighten my day. Hope you had a great 4th of July.
Happy 4th of July, from Singapore! You're such an inspiration, Jaquie!☺ ❤️
Love ur videos keep up the inspiration
i have bad depression so coming home helps alot and doing what i find fun helps me from not wanting to lay in bed 24/7 with my bad depression somtimes it gets out of hand were i have to take my meds and sleep off the break downs but here i dont have them as much its just so peaceful and i love my home in the summertime besides having the sun out 24/7
Happy fourth!!😊❤ I'm glad you got to spend it with your momma. That's always nice. I just relaxed at home with my boyfriend and our dog. We watched our neighbors fireworks haha. Our dog is surprisingly not afraid of the fireworks!
Jaquie> Are Harlow scared of the fireworks?🐕🐾🎆
Love from Elina in Sweden!!🇸🇪🙃❤️
I stayed home for the 4th of July. HOPE YOU GET WELL SOON JAQUIE. #KeepMovingForward
I celebrated the 4th of July at a family reunion. I have anxiety so crazy parties are hard for me to manage with, but I was able to enjoy the family gathering. Hope everyone had a great holiday.
Out in the rain, enjoying the mud and family. Hope you'd was great!
i loved it how you were wearing novelty glasses whilst saying something important
I love your amazing, leggings Jaquie! Super stylish as always & I love Harlow & Judd also being so patriotic & celebrating that you're here & have everything to thankful, for! I'm so happy you're just listening to your body & having your own traditions, too! Lots of love & best wishes to you, all! 👐🎉🇱🇷🌠♥️
You and Har's festive outfits look so cute! Happy 4th!
Whoopie - those sunglasses ;D That whole OOTD on Harlow is darling!!!
Hung out with family and friends this Fourth of July also celebrated Canada day too!
Harlow is so cute trying to help you during your workouts!
Happy 4th of July :) Harlow all dressed up in her 4th if July stuff put a huge smile on my face! I am actually Canadian so we celebrate July 1st. We went out with some friends and their 2 kids to downtown then one of the parks and walked around with them. They got their faces painted :) We were supposed to go to the fireworks but my anxiety could not handle 10000 people in one small area. So we watched a movie and listened to them from home :) xo
I'm an introvert so I stayed home for my forth of July. watched the fireworks on tv. played with my baby doggy. nothing special.
Hi Jaquie! I love your videos and your pups! I hope you had a fun holiday! Keep posting!:D
i've been told by a couple different nutritionists that the skin of the cucumber is hard for the body to digest. i know personally with my eds it's difficult to peel them, but if you can do that then i definitely recommend you do!!
I don't know why but your videos are so interesting!I love them!I hope you keep fighting and stay positive.Oh and I don't celebrate the 4th od July but I hope you and Harlow enjoyed yourself.Love ya Bye!
My family and I went to a family friends house for a pool party and watched the city firework show from their house since they only live a half mile away from it. I love fireworks because using different senses stimulates my brain including my sense of smell because I love the smell of gunpowder ;) The only thing that was stressful was that I had to leave my dog at home and she is terrified of fireworks. luckily we gave her a sedative pill and turned a fan on to drown out the noise. she seemed to have slept through the whole thing and was happy when I came home.
Happy Fourth! Harlow looked adorable! My husband, 13 year old son and myself just stayed home during the day. We grilled some ribs and made french fries. Then went out to Menchie's for some salted caramel pretzel frozen yogurt. We did go to our local fireworks. Then home to bed. Enjoy your day! Sending prayers.
I fricken love Jaquies glasses!! 😂😂😂
i wish i was like you and cpuld remember life before I was diagnosed with severe IBS acute acid reflux and mild gastropernesis or however you spell it. I've had ibs and acid reflux since I was 3 and got gastropernesis symptoms this year. I never had a memory without pain but I still do everything(parade,cookout,fireworks. even against my will sometimes cuz my mom makes me go)
My hubby had to work so we just chilled at home, grilled dinner and caught up on our shows.
Love the vid Jaquie
Hi Jaquie. For Canada day I didn't really do anything, my depression kept me in the house, and I've been really tired lately. I also didn't really want to celebrate because of all the horrible things happening to Indigenous people in this country, and the racism that is experienced here. The money for the Canada 150 should have been better spent on people instead, like our poorest and most wanting. I did have really good fish and chips at my Dad's house the day before which was really nice, and I've seen a few good friends this week and am feeling a little better.
Anyways, it's really nice to hear the feeding tube is helping you and the good news about some of your medication. I hope that there continues to be improvements for your chronic illnesses (and others) so you can be more comfortable!
My husband and I did nothing for Canada Day this year. :/ I don't handle large crowds well and we went to a nice fireworks show last year... So I wasn't feeling like bothering to go this year. I've accepted I can't go to everything and if I try, I'm gonna be miserable. My friend drove us to the beach yesterday and that was way more enjoyable than fireworks!
I spent my first 4th of July in (on my very first trip to America 🌴) America 🙌🏼 4th was amazing in Orlando, there were so many fireworks and great food, thanks America 👑
Happy fourth of July Judd and jaquie
Went to Newport, OR and they set off fireworks in the middle of the bay. I love watching them from the pier.
Unluckily some one set of mortars right next to the my car and the loud noise that close to me sets off my PTSD and we had to leave early because my husband got in an argument with the guy setting them off. Anything that shoots sparks over eight feet is illegal in Oregon so the guy was committing a crime. I got showered with sparks and I had sparks land on my blanket. I had to put out the sparks and now there are holes in my blanket.
Hi chronically Jacquie I stood home with my husband on July 4th because I have chronic pain and going out causes me sooooo much pain. I go out only when I have a doctor's appointment. Because going out in the car causes me sooooo much pain it's not worth going out for me because I don't enjoy because of the extreme pain that I have. I've been going through this since I had an injury on my job on 7/24/91. I've had 6 surgeries since my injury. Love and prayers going out for you Jacquie. Love your videos of your family. God Bless you and always praying for you Jacquie.
I celebrated by playing a 3 hour game from the '80s called Dark Tower, and accidentally wearing a Canada shirt.
Some fireworks don't irritate my SPD (mostly the ones that make a low pitch boom and nothing else), but some do a lot (the fizzy sounding ones). It was interesting to see someone else's perspective on fireworks with a spd. We go swimming and then hang out with friends.
I was home resting on the 4th with my husband... Nothing exciting...Can you watch the fireworks on TV.?...Macy did an awesome job on theirs in NYC. Harlow looked amazingly cute with her 4th of July attire.. So happy you had your Mom there for the holiday...
I am glad my dog is not the only one that as soon as I am on the floor trying to work out thinks it is playtime with mom!
I went to my aunt and uncle's house in Tampa! We ate a bunch of food and swam in their pool🇺🇸 happy Independence Day! I'm glad you had a good and fun day!
My neighbors had a swim party on the third, then on the fourth I walked our neighborhood parade with my dog and then we swam in the pool because it was so hot out. Then I went to my grandma's house for a couple hours then went back home and laid around.
Spent the 4th at home in bed sick. I have IBS but over the past year have had really bad spells of nausea and upset stomach. I have an appointment with a new Gastroenterologist next week so hopefully we can figure out exactly what's going on.
happy Independence day! I went to my parents friends house and went swimming. I hope you had an amazing 4th of July !
I went to my uncles house and his house overlooks my entire city so we watched literally everyone's fireworks from his backyard 😊 it was lots of fun.
I didn't do anything for the Fourth of July, but I did go to the mall. Did you realize that the music used during exercise portion of the video was somewhat in line with their movements ?
I'm Canadian so for Canada day me and my BF watched Silicon Valley, had restraunt food for dinner and then watched the fireworks later on in the evening! Yesterday we went down to the river and had a fire which we roasted hot dogs on even though we don't celebrate the 4th. Was just for fun. ^^
It's ok to miss your past but we live in the now. The hardest thing for me to do is to be here. Love your Mama! She is so sweet. ¡Hola Senorita!
4 years ago I spent the 4th in the hospital and diagnosed with cancer on the 5th but this year was my first year without cancer!
I stood home with my husband on the 4th of July because I have chronic pain and I can't handle the pain out side of my recliner. I go out only for doctors appointments. Because going out in the car causes me sooooo much pain. Love you and God Bless you real good!!! ;-)
I went to university, had lunch with friends, held a presentation and worked on my puzzle some more. No 4th of July celebrations here in Germany :D I did have a nice day, though.
Your mom is so adorable... So sad that you are not able to see each other more often!
I am sooo close to my mom... We are pretty much best friends and I could not imagine living far away from her.
Greetings from Germany
I used to play in a youth orchestra during the fireworks, but playing violin has gotten painful, so instead I stayed home and watched 1776.
Also, I have a new sdit this year who's never heard fireworks so I wanted to stay home with him. He was totally chill, acted like he didn't notice the booming at all.
Went to play bingo with some friends. None of us won, but fun being together.
I spent my 4th on our boat! I even got to see fireworks on the lake
I have chronic illness and that includes extreme sensitivity to sound and so I spend a quiet night with friends in the 16th story of their apartment building because you can see fireworks but can't hear them!
Hola! comencé a ver tus videos por tu hermosa perrita Harlow, por cierto tienes una buena excusa del lado venezolano para celebrar el 5 también, saludos de otra venezolana como tu mamá desde España =)
Harlow putting the tire away!..too cute :) ....you are an inspiration Jaquie! :) ...((hugs))
I feel so sorry for you and what you go through everyday
I'm not a fan of watching fireworks either because I get really bad anxiety at the events because of all the people, the smell bothers me and can trigger a migraine along with the brightness, and because the fireworks themselves trigger my ocd. So instead, my family and I stayed in, binged Shameless on Netflix and ordered pizza for dinner, it was pretty great.
Awe how cute is Harrlow in her 4th gear!
Once you're more built up with strength you should really look into Pilates Reformer workouts. They're super low-impact because the machine helps with everything. The reformer was actually invented when Jospeh Pilates wanted to help hospital patients who couldn't get out of bed! So, very low-impact and can be specialized to help anyone for any level of ability. Plus, pilates instructors are often trained in physical therapy practices!
I didn't go to the parade because of sensory processing issues. Also my orthostatic hypotension would not have liked the heat. The Fireworks bother my tics, so not doing that either. I stayed home with my family and painted my toes today with flags and red, white, and blue!
Me and my bf have always gone to downtown to look at the fireworks for almost 4 years now but we got stuck in traffic for 3 hours and missed it.... 😔😔somehow it was my fave 4th of July because we where just in the car goofing off and opening up and singing and just making the best out of it ❤️❤️
Jaq have you seen the lalaroe Disney leggings!? I just got my first 2 pair they are adorbs! ♡
i had my wisdom teeth out this july, but that gave me an excuse to stay inside and keep away from the loud fireworks
I am currently camping out at Kentucky speedway for NASCAR. watched the fireworks here. 🎉🎉
i went to the county fair for two and a half hours in my wheelchair, came home to nap, and then went to sit in a store parking lot to watch the fireworks with music and plenty of water!
I spent the fourth in the hospital but had a good time w some glow sticks the nurses gave out :)
Well, this is a bit late, but I have aspergers, a friend of mine has autism, and our other friend doesn't have either. We celebrated the fourth by hanging out together, grilling, and swimming. Then we all went and joined my family who had a spot staked out to watch our town's fourth of July parade. Which is a bit much because as part of the parade police cars and big trucks come through and they like to run the sirens a little or rev engines which is extremely loud and quite hard to deal with, but I love the parade because there are also show horses.
After the parade we went back to my friend's house and set off some ground fireworks before heading out to watch my town's big fireworks display.
After that we went back to my friend's house and played cards against humanity on her porch outside.
I was planning on spending the night at her place, but my allergies started to act up really badly so in the end I had to call my mom for a ride home (I live close to my friend's house, but it was near midnight and there was a lot of partying so my friend didn't think I should walk).
In all it was a great night, my allergies cleared up nicely by the next day and the worst I woke up with was the realization that a mosquito bit me the night before leaving a welt on my arm.
I had to work on the 4th but only for 4 hours! Then I went home to get some dinner and watched TV until 2 AM 😎
I spent my 4th attempting to sleep through the fireworks before getting up for my overnight shift. Hope you're having a nice day :-)
I have a huge fear of sudden loud noise and loud noise in general
When I was a kid fireworks were the cat's pajamas at least to me but now that I'm older and my anxiety is worse, I don't enjoy them as much. The arials scare me a bit because we had a scare once when an arials firework tipped over and shot towards me and my family. No one was hurt and nothing caught fire but it scared me to my core. The fireworks that are shot off from a few miles away I can handle a bit better. In my city we can't shoot off fireworks unless we are certified and have alerted the police and fire station. Most often times we get fireworks during football games, my dog would freak out when they were going off but it wasn't ever too bad. Unfortunately June of 2016 he passed away and ever since me and my sisters have been begging for a dog and I think it would help my anxiety if I had a cuddle friend nearby.
Oh, Hippo... My gosh, she is so adorable! I can't even
Hi Jaquie! I was wondering - what would you like your viewers to do if they see you out and about? Would you like them to come up and say hi or just message you later in order to avoid distracting Harlow or interrupting what you're doing? I don't live in the area, but I thought it would be important for other viewers who might run into you to know what you would prefer since all TH-camrs are different! xx
I went to Corbett, Oregon's Fun Fest. And how do you deal with loud fireworks that neighbors set off?
Happy 4th of July! 😊🇺🇸