Holiday Tips from a Chronic Illness Warrior 👊
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- เผยแพร่เมื่อ 4 ก.ค. 2024
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This advice is excellent for people who don't even have chronic illness. Everyone can benefit from self care. Your family should understand.
I had the exact same thought. It's very hard to be good to ourselves sometimes. Thankfully, I managed to slowly improve my self care starting in my early twenties:-)👍 Awesome advice, Jacqui! :)
@@philima same, took me til early 20's...and had chronic illnesses since 13 or 14...when became apparent how sick I was. Gotta listen to the body & practice self-care. Also hard when have to ignore discomforts. Basically gotta know when to listen & when to somewhat ignore lol.
12 with a VERY bad case of Tourett's syndrome. not going to go into detail because the list of all my tics is looooong. but like some chronic illnesses it makes you very tired because tics are exhausting. and the more tired you get the worse the tics get. see, its an endless cycle.😴
It really p..... me off when family or when I hear of families not understanding or wanting to understand stuff like this. But I'm glad for you Jaquie that your family is trying to be understanding. Families should understand and should have your back not only in times like this, but have your back all the time..... ☮️
Well said Jaquie! It is so important to have very good & strong boundaries. Also, knowing and respecting your own limits = saving your mental and physical health.
Happy Thanksgiving Jaquie to you and your family! A suggestion I have is to take breaks. Today I had a rough day, But I still was able to help my mom get dinner ready, and spend time with family but I also excused myself a few times to lay down in bed for a few minutes. Not all of my family is supportive and understanding of my health, But I'm thankful for the one's who are.
Managing the holidays is a nightmare when bedbound with severe malnutrition Gastroparesis flare for a year so weak at 22% weightloss in 5 mths and the UK NHS won’t help me.. I’ve also had to re-apply for disability so I have no finances at all this year and being a single mum my kids won’t be getting anything this year feel dreadful for them but nothing I can do.. sending you lots of love from the other side of the pond the UK 🇬🇧❤️❤️
I love spending Christmas and new years eve with my family.. Mostly I like spending new years eve with them cause we shoot up fireworks (don't live in U.S.) people will do that for 30 minutes to an hour or even longer! But my favourite Christmas was few years ago when I and my parents went on a two week vacation over Christmas, there were no cleaning, cooking (went out to eat 3 corse meal) and then just back to the hotel and relaxed :) Would love to do that agin but some family members got mad and upset that they where not invited on the vacation or that we didn't have Christmas together.....
My family doesn’t celebrate holidays anymore. My dad has an old leg injury and I have hEDS, POTS, MCAS and GP. It’s just us and holidays are too much work.
Hope you had a great Thanksgiving Jacqui!
So true to struggle trying to keep up, you are so right, reassessing for a real view on what to do.Naps are great. Great you have a loving family, praying for everyone to have those to help. You are right again, kind is good, when we start with ourselves we can then be kinder to others. We used to do Christmas Eve night too as well as on Christmas Day, so on the Eve we do it earlier like 4 in the afternoon and get to bed with movies and sleep. Then on the Day we wake up late and do something in the afternoon but also hang in the evening. Great tips so glad you share, makes me think too. Blessings to you all, stay strong as you can.
Baked a small turkey and tried to make this an easy meal for today but autoimmune fatigue and headache plus fighting sore throat...it has all caught up with me. Tomorrow to grocery store and cooking for our Saturday Thanksgiving get together with hubby's family. Just praying I can hold up thru it all. 😧
Can you do a video on what you and your hubby are doing for the holidays? Black Friday hacks, shopping hacks, etc. i would love to hear more about your faith.
I'm currently paying the price...a cold, too busy of a wk, and then Thanksgiving. Glad I had time w/ family & friends though. And good food!
Happy Thanksgiving to you and your family! We are going to my daughter's for dinner on Friday since she and her fiance went to his folks' today. It is also my husband's birthday. I mean, the 22nd was. I like your tips! :)
I took a big nap after Thanksgiving lunch/dinner for about three hours since I went home not feeling well and it helped so much. Honestly if I feel exhausted on Christmas I'll do the same thing and that helps when my POTS flares up.
Hi Jaquie and Harlow i have cerebral palsey which is being difficult to manage right now i do look forward to your video alerts stay strong keep fighting 😀😀😉
I expect that your family will understand and wish everyone happy holidays.
I have a HUGE tip!
So I send an email to all family members before the holidays, updating them on my health. I also add in the email that I can't wait to see them, but I would prefer not to talk about my health on the day because it's exhausting having to repeat and update everyone in person and individually. I add that I may need to rest, but that I will still check in and visit with loved ones.
I have a massive family, and although they are incredibly caring and have them best intentions, sometimes its just too exhausting and overwhelming to repeat and share constantly.
This works WONDERS and has massively improved my ability to get through the holidays! I am cheering for you all!
Safe care for anyone is a good idea. Enjoy your holidays
This video was very helpful to me and I appreciate it. I also want to let you know I really like your top - it has nice fall, earthy colors in it :)
Happy Thanksgiving!!!❤️ I just wanted to say thank you so much for your helpful advice. I have learned so much from your channel.
Well said i have trouble eating around the holidays with my chronic pancreatitis your right its all about adapting
Happy Thanksgiving and many blessings to you and your family 💗
Happy Thanksgiving! Thank you for the video!
You are a source of inspiration! Thank you for this video!
So anxious today. Im excited to see my family and share some food (i made a vegan chickpea chili) but i overworked myself yesterday and my fibromyalgia is flaring so im nervous to see what happens tomorrow pain wise.
Quinn Johnson Its so hard not think about the consequences but try as much as possible to enjoy your loved ones and food!
Quinn Johnson I can’t eat very much food because of my tummy
Quinn Johnson Hope you have a great Holiday!!!
Good luck! Don’t hesitate to take breaks and medicines as you need, Don’t push yourself too hard!
Happy Thanksgiving sweetie, You’re a pretty woman
Thank you so much for this video. I needed this.
Happy thanksgiving!❤
I love your videos. I was just diagnosed with colitis.
I’m actually spending thanksgiving with my fiancé’s family this year... they are very different from my family and do a day long thanksgiving and then the day after they go to a huge gym and play a bunch of sports together... I have both POTS and EDS so as you know it’s almost impossible to do a two day event let alone going to the gym. So I told him I could only go to one single event and take it easy. I hate not being able to do the things that I want. I also don’t want to be judged for not going. It’s a constant struggle. Plus I have Black Friday shopping to do so I’m really trying to figure out how I’m going to get through this without overdoing it. Chronic illness is such a constant fight
Amanda Palermo you sound like your doing your best so just stay on track and keep doing what your doing...watching out for yourself!! Happy Holidays !!!
Maybe you can take advantage of cyber Monday? That’s made a huge difference for me personally.
I know how you feel. I have POTS and MAST CELL etc.
Jaquie has helped me tremendously with her videos.
Keep your positive attitude and don’t worry about others judging you. They will eventually see the wonderful person you are and will begin to understand that you aren’t lazy but have physical limitations. Keep your head up. 😀💕🙏
Happy Thanksgiving everyone!
Good sound advice ! Thank you!
I hope you and your family have a great thanksgiving love you Jacquie you are such a strong person iam so proud of you
HAPPY THANKSGIVING WARRIORS! This year i am really doing well over all soo thankful for that! Hope everyone enjoys time with loved ones and food!
Alsoooo happy holidays!!! I hope you have an amazing thanksgiving as well as all of the viewers too
HAPPY THANKSGIVING FROM A WINTER WONDERLAND in South Lake Tahoe
Hi Jaquie,
I couldn’t of said it better myself about the part when dealing with positive and negative family members when it comes to someone’s chronic illness and or disability. We have to be kind to ourselves and we have to be understanding of ourselves, except ourselves in that moment in how we feel. Happy Thanksgiving to you, Judd, Harlow and Fam. Y’all been a great support to me thank you for making videos. I’m glad I’m not alone in the way I feel.
Happy Thanksgiving! Enjoy the holiday with family and make happy memories. Take your time, rest when you need to and most important take care of you.
I always have an issue with my family not understanding and/or not willing to understand my chronic illnesses both mental and physical. All I’ve found I can really do after years of trying is to just do what I can, don’t do what I can’t, don’t try and push myself to please others (that’s really hard for me), and to just essentially not listen to or care about my families criticism 😅
I understand.I gave up explaining.Most people are in their own little world and do not want sick people to slow them down.I kinda gave up on holidays 20 years ago.No gifting=no hassels.Everyday should be a celebration.****
I have a sister who is on the Spectrum, and they get she has to pull away. I am not. But I still struggle with holiday, and they don't get why even though they know my challenges. But I do the best I can
Jaquie, just made lasagna in my Instant Pot. It was good and took less than an hour. I know how you like to cook.
Take care happy thanksgiving🙌🙌🙌
Perfect timing for a reminder!
Keep fighting! I Love ur channel so much! Happy Thanksgiving!
Hope you three have a happy Thanks Giving
Take care happy thanksgiving 🍁🦃
Happy thanksgiving from the McMillens, I love you guys you’re such a inspiration and I’m thankful for you. Give Harlow a hug for me. I love that dog her smile makes me smile
Happy Thanksgiving to you and your family. 🦃
Happy Thanksgiving!!!🦃🍁🍽
Happy thanksgiving to you
HAPPY THXGIVING TO ALL OF US! I’m thankful I found this group on TH-cam!😘😃
CShire60 Happy Thanksgiving to you also!!!
Happy Thanksgiving
This was an awesome video for those with chronic illness!!! Thanks so much for reminding us know we don’t always have to be so strong 💪 ❤️❤️❤️❤️Happy Thanksgiving !!!!
Happy thanksgiving
I bet it's hard for you this year since it's the first year Judd is going to be working. He's doing amazing work and you should be very proud of him! Have a happy thanksgiving!
Thanks for posting this, it's very encouraging. I've always loved this time of year and I've grown to enjoy Thanksgiving more and more as time has gone on...then I got sick. xD Most of my health problems are gastrointestinal so this time of year is murder on my gut. In general, I've formed a rule of 'one rich thing a day' if that depending on how I'm doing. Thanksgiving/Christmas day themselves are my exceptions and I generally feel pretty awful afterwards. It's just how it is, I can deal with it.
As for pacing myself? I have a hard time with that. |D I love baking/cooking/helping with making all the delicious foods that everyone can enjoy. My family are my biggest supporters and often are the ones helping me pace during this time, usually telling me I've done enough and to go sit down, even if I really want to keep going. I'm usually okay at pacing myself but this time of year makes it much, much harder 'cause I wanna help 'cause it's fun! They're really gracious and we can come up with compromises so I can keep helping without pushing too hard.
Was supposed to go to families on Tuesday for thanksgiving but messed up on upping my one med I did it too fast instead of adding one then in a couple of weeks adding the second so my body freaked out on me so I decided not to go and I’m kinda glad I did cause my mom said there was way to many people there. Today we are doing a small thanksgiving I’m feeling much better finally. Not sure about Christmas yet was supposed to go to Cali but didn’t realize I’d be on the road during finals so rescheduled that and now I’m taking a winter class that counts towards spring semester. I just wanna say I am thankful for your videos if it wasn’t for you I don’t think I would of become my own advocate and fought to get to Mayo Clinic it’s because of going there and changing things in my life that I am feeling better everyday and am able to be doing online classes and hopefully eventually be able to do classes on campus
Happy thanksgiving! I'm going to my Aunts today for a thanksgiving meal, and then I don't know what we are doing for christmas. :)
Are you able to take a late nap on Christmas eve and then stay up most the night with your family so you can spend time with them?
Because of the Benadryl shortage, I was not up to making the drive to see my family. I have however gotten everything bought and wrapped for yule. So if this continues I am done with everything and can have my cousin take it with her to the family gathering for me.
Even though I may only be 11 I do have chronic illnesses such as asthma epilepsy and bad allergies plus juvenile arthritis and diabetes type one. Even though I am not deformed, i am a carrier of treacher Collins syndrome
Lulu Vlogs Happy Thanksgiving to you and your family!!!😊🍁🦃😊🍁🦃😊
Your age doesn’t change your illnesses, chronic illness can happen to anyone!
I’m somewhat like you. I was just diagnosed with cervical stenosis, cervical desiccation, chronic headaches/migraines and possibly fibromyalgia
Happy thanksgiving my family is nowhere as understanding so I have no tips
nadia salem I’m so sorry about the family’s lack of understanding. We can’t take their place but we reach out to you with ❤️🤗🤝, Love Hugs Empathy and Support! We fellow Warriors are always here for you. I give thanks you’re here, with us.
nadia salem so sorry !! Happy Thanksgiving 😊😊😊
I told my mom that I'm taking the day off. No, no, no... She doesn't listen.
Awesome video jaquie! While I don't have a physical disability, I have very bad anxiety and all the hassle of the holidays is very very stressful and scary for me since my mom is a firefighter and is working all of the holidays, I'll be anxious and worried all the time so thank you for the advice!
Olivia LaMotta Love her as much as you can. I completely understand the anxiety of hit because my mom was in her second bad accident a few weeks ago. Shes ok and doing well. 🙏❤️
Olivia LaMotta Happy Thanksgiving to you!!!🍁❤️🍁❤️🍁
I love you so much bless you and happy thanksgiving! 🍁
Hey jaquie happy thanksgiving 🦃🍁🍽❤️ so now for me thanksgiving I won’t be able to eat much I can’t eat much anymore anyways so yeah that sucks I have gastroparesis and gastritis and ulcers in my stomach and acid reflux it sucks but that’s my life food isn’t good for me anymore it hurts to eat and I feel sick after I eat anything and I regurgitate after I eat sometimes
Jacquie, I’ve been wondering if you have ever seen a therapist for counseling? Not saying you need it, just curious if you ever have done that, in relation to your multiple health issues.
That’s one of the hardest things to do as a chronic warrior - learning to let yourself do what you need to do to make yourself comfortable. Like making others aware of limitations or needs. Acknowledging we must consider our own needs or wants without feeling bad about it. And so on. But it’s the best way to make everything in your life more enjoyable.
I’ve been a chronic pain warrior since Christmas Eve 2000 when I was hit head on, on the highway, by a drunk driver. I’m happy to be alive and be here to see my family grow and succeed. Limitations and restrictions are a must for quality and quantity of good life!
Happy Thanksgiving.... I am home sick with a cold and we were supposed to go to a friends for dinner. No turkey for us...☹️
Yvonne Kass Why No turkey? Have some tomorrow or the next day etc.! 👍🏼. The day n date are just arbitrary numbers. Make your own Day of Thx 😃
I was the first person to like!
💓💓💓💞💞💞💓💓
Happy thanksgiving