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How does fibromyalgia affect the eyes ?
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- เผยแพร่เมื่อ 4 ต.ค. 2022
- 🙍Fibromyalgia is a chronic disease that causes severely disabling muscle pain. The nature of this pain is not known and it is accompanied by other symptoms: severe fatigue, memory and concentration problems, sleep disorders, anxiety, etc.
👁️Other symptoms, such as problems pertaining to the eye, which are often not talked about, may also develop.
❓But what is the link between the eyes and fibromyalgia? What are the different eye disorders the disease can cause? And what can be done about it?
🔗We explain more in our article! www.carenity.u...
#carenity #support #health #neveralone #together #comfort #treatment #information #hope #interview #treatments #health #blurredvision #eyes #medication #sideeffects #vision #fibromyalgia #fibrowarrior
Okay, sorry but your noise you played at the beginning was horrible for some one with fibromyalgia and I had to laugh at the small print telling about eye problems. Couldn't read it. Please if you're serious, redo your presentation. Thank you.
Completely agree with you! I couldn’t even finish the video😥
I could hardly see the print and definitely couldn’t finish reading it in time due to straining to try to read each word.
I agree with them. I thought it was an article that could help me because I do have fibromyalgia but who can read it?! It's supposed to be about your eyes and it prints so small you can't even see it. Please redo your video so people can see it. Thank you
Same here.
@@lynneruark I couldn't bare the noise, so I turned off the vol. And had to get eye glasses to read info.
I agree with the other comment about the horrible noise for people with fibromyalgia 🙉 As for the text, white on a yellow background! Seriously?! Who designed this and who signed off on it?! You seriously need someone who has the condition on your campaign/awareness team 🙄🤨
🤣yikes, yeah!
Horrible video no empathy in it almost click bate imho
I came here to say EXACTLY the same thing. 😂
Agree sound awful, had to mute.
You nailed it, not enough thought has gone into the presentation of this video.
Wow i thought i was the only one with this eye problem 😢😢😢 of all the fibromyalgia videos I’ve watched this is the only one about this. 🙏🏻🙏🏻🙏🏻 i fng hate fibromyalgia 🤬🤬😒
Myasthenia Gravis also causes double vision...
Don't you just LOVE when the solution suggested is "remember to get plenty of sleep" ?!?!
It's not like chronic fatigue and extremely bad sleep quality is one of the main symptoms of Fibromyalgia or anything...right?!
😂😂😂😂 laughable! (I also agree with all the comments on the horrible music and hard to read texts.... This entire video is a do-over!)
Yes, it really irritates me when they recommend plenty of sleep to alleviate fibro. I've had fibromyalgia and chronic fatigue for 30 years and of course, huge sleep problems. Only someone who didn't have fibro would be clueless enough to recommend that . . . grrrrrr.
If we could sleep, we would.
I cant see white on yellow😮
Actually, this video is really good. It CLEARLY INDICATES how fibromyalgia and ME/CFS are caused by pharmaceutical drug administration. 🎉
@@pamscarr8696 If you would like to sleep better, you must do some physical activity during the day; whatever you can manage. Aim to sleep at night. Then you will see your sleep patterns improve.
I cant read this because of the white letters on the yellow background. Please change it.
Would have been very interesting if we could read it , our eyes can't see that , could you redo the video and make the writing readable please . Thank you .
I took screen shots, then i could read it
I couldn’t handle all the drums. Funny, that’s also a symptom of fibromyalgia. 😊
A lot. Sore itching blurred vision all the time, as well as a blinding headache
This might be useful for someone: I had to go through physical therapy for the eye muscles. Yes, this exists lol. This may solve one of the problems associated with blurred vision. However, unfortunately, one of the other issues is that the muscle that control the pupils may also become affected, so your pupils keep slightly opening and closing depending on the light condition without really stopping at a focus point. In my case, this makes it more difficult to read texts because it's like the letters are "dancing" a few mm sideways. I can still read just fine, but it can be a little annoying depending on the time and light situation. I know for sure that even with my eyes corrected (have myopia), my reading of traffic signs at a distance is not equal to "normal" folks.
Be aware: Many ophthalmologists may dismiss this phenomenon as astigmatism until you press them further. I do have astigmatism but it's too little to justify the effects I feel (so was my ophthalmologists' conclusion, I have also had the astigmatism corrected with one of those astigmatism lenses and no difference). So, please, be aware! If your symptoms persist it might be this (pupil muscle, not the muscles that control eye movement)!! Also, until recently (2015,2016), there were no studies showing how fibro may be a degenerative disease. And the part of the body that it can actually "degenerate" is the eyes (blood flow problems, thinning of the optic nerve).
For those interested in the sources
Garcia-Martine E, Garcia-Campayo J, Puebla-Guedea M, et al. Fibromyalgia is correlated with retinal nerve fiber layer thinning. PLoS One. 2016 Sep 1;11(9):e0161574. doi:10.1371/journal.pone.0161574
Pilar Bambo M, Garcia-Martin E, Gutierrez-Ruiz F, et al. Study of perfusion changes in the optic disc of patients with fibromyalgia syndrome using new colorimetric analysis software. Journal francais d'opthalmologie. 2015 Sep;38(7):580-7. doi:10.1016/j.jfo.2015.01.010
Uceyler N, Zeller D, Kahn AK, et al. Small fibre pathology in patients with fibromyalgia syndrome. Brain: a journal of neurology. 2013 Jun;136(Pt 6):1857-67. doi:10.1093/brain/awt053
I hope this helps someone =)
Scary, but thsnkyou for the info!
I try to keep myself informed on any of my health issues ... I could not read this very stressful.
Fibromyalgia, how it affects your eyes, then you put up small white writing on a yellow background, very clever
My daughter has Fibromyalgia and when I asked the Neurologist if her condition could effect her vision he told me to take her to the eye doctor! I’m like you should be able to tell me how this condition does affect the entire body and what to expect and we’ve already been to many doctors for different things instead of one doctor helping us with this situation!
Please inform yourself further about the problem we have with sounds and movement. Please eliminate or change the music, and slow the presentation down. Thanks.
I just wanted to say that the BACKGROUND NOISE for this video is absolutely the worst for Fibromyalgia suffering. Headaches are made WORSE BY THAT . OMG 😲 An white font on Yellow Please No
Thank you this explains a lot of what else I’m going through with this torture chamber Body of mine this illness has me tore up from the floor up
Too small to read and noise gave me a headache.
It would have been nice to hear a voice when your discussing eye issues instead of making us read white lettering on yellow background. Good content but make it viewer friendly for those who have fibromyalgia. I had to keep stopping video to read it. Thanks
I Could Not Read Any Of This. Why would you put something up that hardly nobody could see?
Had to pause to read each bit so I could focus and not hear that terrible noise!who made this? NOT someone with Fibro obviously!!☹️
Can't read that white text on yellow background.
I guess i should have guessed my Fibromyalgia was the cause of my eye issues...but i never put it together. I'm glad I'm not alone although i hate other people suffer with this...hope that makes sense. ❤
Just can't read it, even with my super duper bifocals on lol 😑😑😑
You really expect someone to read this
Problem is walking at night it's difficult. I'm retired no longer but just walking to the corner market at night is a problem.
Thanks guys but I found the muted colours made it difficult to read the texts. 💖
I suffer from fibromyalgia and Sjogren's syndrome. Until this video, no one answered me why there are the visual phenomena described in the video. Thank you from the bottom of my heart, for allowing me to finally be sure to understand that I am not imagining things, as unfortunately, even doctors think about their patients.
I was diagnosed with Fibromyalgia in 2009 and have had eye problems ever since. Most of the symptoms on here I have.
I am sorry to know that you also have most of the symptoms as in my case. I actually suffer from more symptoms that weren't even mentioned in this video. I wish you and all of us, fibromyalgia patients, that the day will come when the cure will be found. And in the meantime, the awareness of this disease will rise and we will be freed from false accusations.
I also have bladder problems, Urinate a lot especially during the night. Easier in the day. Does anyone else with fibro have this difficulty?
@@rosefenton3005 Yes it is very common to have an irritable bladder and bowel in fibromyalgia. There are many symptoms in this disease, some of them are unusual (like the phenomenon of blue marks from every small bump that exists in some patients). I recommend that you look for information and videos on the subject because the field is considered relatively new and doctors are not at all aware of the many symptoms of the disease. Good luck and feel good.
@@rosefenton3005 I have problems today on TH-cam so I am sending my answer again, please confirm that you received my answer: Yes it is very common to have an irritable bladder and bowel in fibromyalgia. There are many symptoms in this disease, some of them are unusual (like the phenomenon of blue marks from every small bump that exists in some patients). I recommend that you look for information and videos on the subject because the field is considered relatively new and doctors are not at all aware of the many symptoms of the disease. Good luck and feel good.
So why would you make this video about how Fibro affects the eyes and then make people with Fibro read it?!?!
To top it off, white lettering on a yellow background! SMH!
🤦♀️ 🤷♀️🤦♀️
And they can’t tell you what causes fibromyalgia either. But I can. Can you say Mast Cell Activation Syndrome?
Good to get info about anything but agree with the presentation difficulties. Especially the visual ones and yellow background with white writing makes the small lettering even more difficult to distinguish.
I agree small white font on yellow not a very good choice but content is good
What about waking up with swollen eyes?
The color was really difficult for me. No disrespect, but I have had repeated eye issues since, Covid
Sorry, I can’t possibly read that small white print on the yellow back ground. We’re talking about eye and vision problems here, and you can’t read the information 🤷🏼♀️
I thought my eye problems were from my thyroid , it sounds more like my fibro 🤔
I have all you mentioned plus double epiretinal detachment and tons of dark floaters that make is difficult to see, especially when reading. Often the floaters hide entire words. I am sick to death of fibro/cfs. I know it won't kill me, but some days...
YES- the dark floaters that obstruct your vision to the point where you can't even read because whole words are missing! It's incredibly aggravating and it's so hard to explain to people what you mean or why I'm sitting at my desk at work with my hands over my eyes to try and rest them for a few minutes so the "dark" spots will go away. 😭😭😭
I have horrible floaters. It’s like seeing ghosts all day. Fibromyalgia: the gift that just keeps giving.
Awful color and graphics and reading time, for someone who has fibro and bad eyesight
Yes
The print is to small to read and music is horrible
I had 20/25 vision before. I got fibro overnight due to a physical trauma that shocked my nervous system. I've been almost blind up close ever since. I can only see the outline of my hand. No details. After 11 years of readers I now have glasses with bifocals which are much better.
The writing in the white lettering is so small I can't even read it.
They designed this video to mess with us, obviously 😅 so much pain and discomfort trying to look at this and read
The mechanical problem described here is chemical in nature, most probably. Before you engage the services of an optician I would recommend a blood test, for a full work up The first thing you need to look for is the red blood cell count. If you have anemia your blood cannot deliver enough oxygen to work your eye muscles. If so you need Vitamin B12 immediately. It comes methylated or cyano- and I couldn't find the methyl so got the cyano- and it was a miracle, but then my health provider was happy to allow me to go blind and have my lower legs chopped off. You may have a problem with intrinsic factor which you need to absorb B12. It's connected to your internal Ph - how acid and alkaline you are. There are a ton of things you can do if you want to help your body chemistry. It's possible that you have undergone an event which has caused both an epi and exo genetic alteration and something which has removed or very significantly altered your fine tuning to the point where you are seriously ill Look at AMPHOTERIC POISONS.
Is it the Fibromyalgia or the medicine to treat it making the eyes sensitive?
I don't take all the meds as I can't tolerate them. My eyes aren't good.😢
Isn’t this the autoimmune Disease Sjogrens Syndrome / Disease!!???
I’m diagnosed with Sjogrens and later I was told I also have Fibromyalgia. The symptoms are the same!! Can doctors not join up the dots!!
Fibromyalgia in my old Nurses Dictionary meant Muscle pain. Doctors latterly have been giving a set of symptoms the name Fibromyalgia but people really have autoimmune disease, and Sjogrens is the actual disease imo so tell people the truth instead of fobbing them off! It’s not that long ago that doctors were saying Fibromyalgia was imaginary!! It’s not, Fibromyalgia is a symptom of Sjogrens imo! And is therefore an autoimmune disease we desperately need help for!!
It’s agony!!
A TH-cam video with no text audio for Fibromyalgia patients discussing their visual issues utilizing white print flashing at a mind numbing speed. Way to lose my attention.
😨 are you serious ?
White small text on light yellow...
WHAT A GOOD IDEA 👎👎👎💩💩💩
Move on by not really fibromyalgia friendly sadly 😟
If I wanted to read, I'd look this up on a website, not watch a video on it.
Can't see any of this! TINY White print on light orange, perfect for people having trouble seeing!!!, Right?😂
I don't know about the rest of you but if I could read it I'm not sure how much faith I'd put into the wise guy who produced, whatever it's about!!
Do the presenters really understand fibromyalgia ?
Noise , colour etc
OMG, I couldn't read the small print, it needs to be larger and use a different color not yellow or light colors. Thanks
culprit: microwaves. it can last 2 years before musclepain goes away
I have CFS so could not read the text in your video, as it affects my vision.
Please change the writing to black or narrate.
The irony of that. You can't see what it says.😂
discard
You forgot eye pain!
As a fibro senior, HOW DO YOU EXPECT US TO READ YOU WHITE ON YELLOW, ??????? the music is disturbing!!!!!
Only when I have a flare
noise and white print on yellow background. no thanks
Ummm invant see it to read it.
Hallo, ich sehe ihr Video aus Deutschland 🇩🇪, gibt es die Möglichkeit, das Video mit Untertitel in mehreren Sprachen zu erstellen? Im Ausland gibt es auch sehr viele Menschen mit FMS. Hier in Deutschland sind die zugänglichen Informationen über unsere Medien spärlich. Von Seiten der Ärzte ist kaum etwas zu erwarten, außer Antidepressiva 😂.
Also bitte, wir brauchen wohl weltweit Informationen, ohne Sprachbarriere. 🙏🙏🙏🤗
Can’t read it!
This noise was unnecessary, and you shouldn't print white on a yellow back ground, very difficult to read !😔
How am I supposed to read this? WTH
I have to agree as l with having fibromyalgia the noise in this video needs to go and also the white writing on yellow needs to go if your serious about this redo it again
Cant read it
Could not read in the yellllow
Can't read this.
Respectful fyi.... I could not listen to your video. Music is triggering to fibro hypersensitivity to sound/noise.
Fibromyalgia patient take thiamine (vitamin b1) vitamin D and co q10 and they will recover from fibromyalgia
Double vision
Horrible music and white tiny print on yellow? Are you kidding me? Couldn’t tolerate! Fibro for forty years!
I looked this video because I have FM and visual problems 😢 get rid of music and not only put up written eye problems but SAY IT TOO 😅😅😅 are you sure your professional ???
I can't stand the background "music"
Sooo many complaints in the comments section. lol
Are you expecting ppl. To Read in that speed. Bad production. Sorry
This is real nonsense surely ? The noise is awful and why would you put white ketters on a yellow background in a video advertising ' advice ' for folk with visual problems ?
"get plenty of sleep" um,you do realize that fibromyalgia affects sleep,right?? How uneducated
Who could read this yellow on white tiny print if you have eye problems? And the repetitive horrible music when a symptom of fibro is noise intolerance! How can genuine sufferers believe anything produced by someone clearly unfamiliar with the condition?
OMG. Get rid of the music, please! The colours are far too bright. I have suffered with Fibromyalgia for 28 years. No way can I watch or listen to this again. Do the research.
Well that wasn’t much help
OH MY DAYS...... SERIOUSLY WHOEVER MADE THIS VIDEO FOR FIBRO WARRIORS..........
PLEASE BLOOMING WELL CHANGE THE HORRIFICALLY ANNOYING MUSIC ALONG WITH SLOWING DOWN THE INFO THAT'S FLASHING UP ON THE SCREEN!!!! ANYONE THAT'S GOT FIBROMYALGIA AND ALSO HAS SJOGRENS SYNDROME WILL BE UNABLE TOO SEE AND READ THE VIDEO AS ITS TOO FAST FOR SOMEBODY WITH SJOGRENS SYNDROME AS WE'RE UNABLE TOO FOCUS ON IT!!!🙄🤦🏼♀️😔😤🙄🤔😢😞🤔🙄😤😞🤦🏼♀️🙄🤦🏼♀️
PLEASE BE MINDFUL WHEN MAKING VIDEO'S FOR FIBROMYALGIA WARRIORS TOO WATCH ESPECIALLY IF YOU WANT GOOD FEEDBACK 🤦🏼♀️🤭😁🤭🤦🏼♀️
THANK YOU HOPEFULLY IN ADVANCE FOR LISTENING TO PEOPLE'S COMMENTS xXx 😁
Can’t read it.
Remove this music .so crazy
Why the fu.., are you driving this spedy tempo in your "program"?
Do you not want people to read?
Or are you on "speed"?
I’m also neurodivergent and this impossible to watch or hear. 🫣
culprit: microwaves. it can last 2 years before musclepain goes away