ฝัง
- เผยแพร่เมื่อ 22 ก.ค. 2024
- Another health update! I had a seizure recently, my first since before my brain surgery, but I'm feeling absolutely grand now! 😊
I just wanted to dive into my brain tumour diagnosis today to answer some of the questions I've been getting recently. I hope you're all feeling okay physically and emotionally with whatever you're going through.
I will be starting a Facebook group for brain tumour support ASAP 💗
If you're also going through this right now I'm here for you ❤️ If you want to chat please feel free message me on instagram @diaryofeireann
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☆ Instagram: / diaryofeireann
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I'm feeling grand now so please don't worry 😊
Glad to hear! keep your head up. You WILL beat this.
I am so glad to hear you are doing grand now, but being a mother worrying is what we do!😊
My and my Mum hope and wish that you don’t have any more seizures 🍀
The Body is Beautiful
I've been dead a lot f times it doesn't matter
Éireann, please re-think the go fund me. Having one less thing to worry about will leave you more energy to look after your health. 🙏
Just fyi, underneath her video where you see the like button, there is a 'Thanks' button. Anyone who wants to support her financially, can use that 😊
I think youtube takes a portion of that money, right? @@LittleLemon1000
@@LittleLemon1000 thanks for that. Just tried but can’t use it because I’m not in an area of US$. 🥲
@@LittleLemon1000 YT takes like 30% tho
@@69Kevrod2012 Whaaaaaaat? I had no idea! Ok, forget what I said. Gofundme it is!
Im born and raised in canada and girl, get a lawyer for that employer. Thats malicious dismissal
Absolutely disgustingly shocking !!!!!!
I agree. Employment lawyers can be well worth the fees they charge. Personal experience.
7:55 that person was fine letting someone die... seizures can get very dangerous & her not calling you back is literally her risking someones life like wtf is wrong with people in the health sector
that's the NIH for you. everybody praises the free healthcare but there are so many gatekeepers to just about everything it's nearly impossible to seek care when you need it unless you go private which ends up being just as expensive as america.
I can’t take it
Excuse me. Did they ever tell her if the tumor is benign or malignant???
Those drs are disgraceful. Leave the country!!!!!!!
You shouldn't feel guilty about another gofundme. The community wants to help you. When you make these videos you are pouring out into the community, helping family members and patients with chronic neuro issues and tumors, let the community pour back into you.
I agree with you
please set up fund
Getting friends and family to subscribe to her channel will help.
Someone might have to do it for Her, she seems humble!,✨
What is wrong with these people involved in your care? Constantly saying they'll call and then not doing it, to the point that you risk running out of a very important medication (despite them being well aware that this will happen). This is completely unacceptable.
Welcome to Canadian healthcare!!!
@@HandbagDivawelcome to world health care.
@@CL-un9ggAbsolutely! I thought it was just USA too many people & not enough doctors. They are overwhelmed
@@CL-un9gg I'm a doctor in Scandinavia, and I actually don't see this type of behaviour. I've been a cancer patient myself as well, and they didn't screw me around like this.
We have a shortage of neurologists in Canada. My daughter in law has epilepsy and I thought what we went through was a nightmare. That’s actually pretty fast to see a specialist here. TOTALLY unacceptable to run out of meds. Inhumane and verging on negligence.
Not returning promised phone calls is totally unacceptable! It just adds to the nightmare.
Wishing you much strength, health and happiness.
Best of wishes, you are such a brave and beautiful role model for us all.
Éireann, you need another Go Fund Me. You cannot go through this and also have the money worries that you inevitably have with job insecurity, getting back to Ireland from Canada, Devin's visa, which I recall you saying was very expensive and who knows what other expenses. It's a tribute to the amazing, decent person you are that you feel that you can't take any more donations. Yes you can - for the simple reason that many of us are very happy to offer you some financial support in your hour of need. And yes, it is our way of giving you an online hug when we would so like to give you a hug in person. I'm so moved by your latest video and so worried about you but if anyone can be on the right side of all these statistics and averages then it's you. I'll keep praying for you and thinking of you. We're all here for you. Take care, Rob xx (and daughter Soph! xx)
Gofundme takes alot in fees, even just having her PayPal for people to donate would be good.
❤
Rob your comments are always filled with kindness. Thank you and Sophie so so much 😊 Every single message you have sent me has been so lovely and greatly appreciated. Thank you xx
Eireann, please still consider a go fund me. Other TH-camrs like me who have been following your story would want to share it with our audiences!
You’ve been through so much already, you have a lot more to go through, and your health doesn’t need more stress by worrying about money. Even if you don’t need it for health stuff- you would 1000% deserve just donations to go do some fun things.
Please Eireann rethink the go fund me. There are people who are new to your story and would like to give. Many blessings! Praying for you!
What kind of doctor is this one? Time to change! Unacceptable in every way! Doesn’t call you back and then leaves the country without somebody covering for him?
Two doctors got moved after my diagnoses they told me it was all in my head for ten years having full proof guess what it was all in my head two brain tumors and an anuirism now I just pray all day everyday for him to heal me because most doctors don't speak the truth they hide behind rules of the veil of the world ❤
That’s the mandatory Canadian public health system for you, no accountability or incentive to do right by the patients
@@mjad7yeah the one they keep saying is so great the United States should emulate it! No thanks! No wonder the rich Canadians come to the US for medical care.
@@jeannegeiger4750 the very small important detail is the RICH people can get care in america
that's normal
Hi Eireann, oh I’m so frustrated for you. I don’t understand why you’re having to be your own advocate, chase up doctors for your diagnosis/medicine. I’m sorry for what you are going through, I send all my love and prayers ❤
I've been a wee bit run down by it recently lol. Having mostly good days but definitely some bad days. Trying my best to stay positive through it 😊 thank you so much ❤️
In a perfect world it would not be this way, but we don’t live in a perfect world. The people that care the most about you are yourself and hopefully any friends and family you might have. Doctors are great people for dedicating their life to helping others but at the end of the day they are just people and they make mistakes. What I am trying to say is don’t you ever feel bad about being insistent or demanding or whatever. You are worth more than someone being annoyed by a phone call.
Canadas medical system is in total disaster
I feel the same way. I sympathize with because my brother is going through the same thing- 4 months later... barely today he's beginning his first treatment!
Except for he has 4 brain tumors and is stage four 😢
@@akitajapan1651Wishing your brother the best. 🙏🏻
The way they just left without giving you a call back or even a new prescription. I'm baffled. I'm sorry you're having to deal with it 😢
To have someone say they will call you back and then don't is just so horrible. I will continue to pray for you.
As someone going through initial tests after a first seizure, thank you for sharing your experiences so far. I wish you the very best of news in your journey ahead.
Thank you so much for your kindness ❤️ This is way too much. You're incredibly selfless. I'm so so sorry to hear that you're going through that right now. I will be here for you if you have any questions or need someone to talk to. I will be saying a wee prayer for you today and sending you all the positive vibes so everything is okay and you get all your good answers soon 😊
You need to get the hell out of THAT medical system you are in. Good Lord. I would cry too Eireann. I am so sorry you have to go thru this and can't even get decent medical care. Let alone good medical care. It makes me feel just sick, I can't imagine how you are holding it together so well. God bless you dear heart. Keeping you in my prayers.
As a fellow cancer patient, I’m in year 13 fighting. Eireann take any help people are willing to give. A cancer fight is expensive, very expensive. I have lost not only my health I also lost my job, home, car, financial security when I say It has cost me everything I have , I’m not exaggerating now I’m losing my vision and can’t even memorise a floor plan because I lost our home paying for treatment so I could be alive for my husband and kids. All the best to you
I agree! I'm sorry for your pain.
Look up Cannabis oil for cancer. It takes 3 months to cure breast and 6 months for all others. Dietary and lifestyle changes needed for that period too. Watch a film called ....Running from the cure.
😢
May God be with you
Praying for you!
What a fantastic donation - you should be proud of yourself. It will mean so much to her. Well done.
❤
Carrie this makes me want to cry. Thank you so much for being so incredibly kind 🙏❤️ Every prayer is appreciated and you're literally an angel. I wish I had the words to explain how thankful I am.
I saw this quote on Instagram. I hope it is comforting. "Men do not care how nobly they live, but only how long, although it is within the reach of every man to live nobly, but within no man's power to live long." I wish you a long and noble life, Eireann.
Éireann, I have been watching all of your videos since your brain tumor diagnosis. You are such a lovely person and my heart just breaks for you! As someone with several autoimmune diseases/chronic illnesses, I know how stress and expensive being sick can be. No one should have to worry about those types of things when they are going through what you and Devon have gone through. It absolutely breaks my heart!! Please never stop being you because you are a truly beautiful and incredible human being!
This was so incredibly kind of you ❤️ Please know I appreciate this but it's your words that really fill my heart. Thank you so so much and I hope you're feeling okay 😊
I can't believe how bad Canada is for serious medical care!!!
Keep on keeping on❤
I live in Canada and our healthcare system is run buy the provinces. Yes, our universal healthcare is outdated and needs an overhaul, I agree! However I work in oncology in British Columbia and, if you are going to have cancer this is the province to have it in. Our funding and expertise is second to none.
I am in Manitoba and our oncology system is well run too. Many other disciplines are overstretched though.
Do another gofundme for sure!! Do not feel guilty!! ... travel, bring your family over, take a trip home, get another dog, help someone else in the brain cancer community who is struggling, start a foundation, get a pedicure and a massage, a new pair of shoes. You are sharing so much, and being so brave, and being so giving of your time and energy...let some of that energy come back in money to make your life easier.
I can't imagine how frustrating and stressful it is to keep calling people who are supposed to help you, having them promise you a call back and then ignore you. Your life is at stake, that is absolutely unacceptable! I'm livid. I can't imagine ever putting another person in a situation like that. If I'm promising someone a call back then I do call back, even if just to tell I'm not able to help. Keeping someone waiting like that is inhumane.
I really hope your new seizure medication works well and your breathing gets better. You don't deserve any of this to be happening. Sending you hugs from Poland
My son had cystic fibrosis and a double lung transplant at the age of 18 and if it had not been for our community and surrounding communities we could not have made it!!! Let people help you during this process!!!! Make sure your saved!!! Praying for you!!! God will keep you in the palm of his hand. My son Brian died in 2008 he was 24 years and 6 months old.
I LOVE your idea about starting an online group/forum for people who have brain tumors! I think that would help so many people :-) best wishes!
😊❤️
There are online support groups. Those for the warrior fighting disease and for those who are the caregiver supporting the warrior. I would have done as well as I have without the support of those who loved someone battling brain cancer. Posting anytime day or night works. Also there are ones who get closer by Pm communication each other.
I agree. Only positive things can come from it so it's a brilliant idea
Hey I get the frustration of Grade 1 starting me having a seizure in a pizza restaurant got me to hospital to have the scan for Grade 3 I felt for half year before that I had something wrong but it can't be changed hoping all us brain tumour survivors to cured I still believe in it 🙏
Hi I'm so so sorry to hear that. I hope you're keeping well both physically and mentally during this time. I'm still feeling hopeful for research and medication but it's just hard some days ☹️ Also yours started in a pizza restaurant and mine in an ice cream shop? lol.
God loves you! Please reconsider the gofundme!
Thank you so much - really not needed but appreciated 😊
You stand firm on a healing honey 14 years later two brain tumors and an anuirism I'm still here sweet lady be the healing that makes all those docs and nurses and the whole youtube community believe in miracles and Jesus and the Great Creator he can and will heal u I stand firm with u or anyone on here willing and able to be the were two or more are gathered in his name with me we will rebuke that cancer and u shall be healed much love your way honey ❤
You are such a beautiful person, inside and out and I'm so sorry you're going through this. Life isn't fair sometimes. I love your spirit and your attitude, the way you're handling this. It is so inspiring! I pray that God grants you a miracle with your health and pull through this cancer free. Sending you love and prayers from U.S.
Thank you so so much for being such a kind soul! I'm excited to be one of the first people to ever beat their diffuse glioma 🙏 ❤️
@@diaryofeireannThis 🙌🙌🙌 If anyone can, it’s you!
My nephew 53 years old had glioblastoma for over 3 years. He was so brave and a successful guy all his life. Wishing for a cure❤
Just a little help. But I hope lots of people will follow. Stay safe.
Thank you so much - really not needed but greatly appreciated 😊
I am so sorry. I mean, I’m glad it’s slow growing, but… Lord, you are so young. This is so heavy. 😢 i wish I knew what to say. My heart goes out to you & your loved ones.
You are so, so lovely - inside & out! Thank you for the update. If it can help relieve the stress around calling an ambulance, don't be shy to ask the operator to pass on the message to turn off the lights/siren when driving down your street. I've done that twice before without issue. Sending you strength & big hugs from Ottawa!💕🇨🇦
wow thank you so so much for this. I feel like this tip will be useful to sooo many people so thank you! 😊 I hope you're feeling okay now ❤️
Thank you! You're so kind and such a shining light! 💫💕
Oh my. You are a remarkable human. I wonder if you are aware of that. Your attitude towards this situation is amazing.
If anyone here works where you speak with patients on the phone, if you say you will call them back PLEASE call them back for the love of God. Even if you cannot give them an answer of what they need, just call them back and let them know. It's better to have closure than nothing at all. Something so simple can cause so much distress and worry for patients already going through the worst. Please just help them a little, so they don't feel forgotten about. ❤
On the issue of your seizure tablets - years ago, I dropped my dosage by just a small amount after consultation with a doctor. Within a month I had my first seizure in 4 years. I went back up to the previous level - havn’t had a seizure for over a decade. The balance of chemicals in the brain is VERY delicate.
Loads of respect for your strength Eireann.
I hope the doctors who have so blatantly failed you see your videos and change their ways. I know you've had some good experiences with members of your medical team, but the level to which you've been dismissed and ignored by some doctors blows my mind.
it is actually pretty normal for doctors to act like this nowadays.
Hey Eirann,
first time posting a comment on youtube.
I found out last year that I also had a grade II glioma astrocytoma in the right temporal lobe, I had just become a mother from my little Aurora.
The prognosis of 10 to 15 year olds destroyed me morally, it is not understandable to hear about the end of my life when one has just given birth but it is not more acceptable when one has begun it like you.
But I tell myself that we are one of the lucky ones, we are young you are even younger, medicine is evolving there is a drug that will soon be released: vorasidenib which gives good results in low grade gliomas mutant for IDH .
My husband who is a mathematician tells me that I do not fit into the statistics, firstly because of my age + the fact that I was able to have an awake surgery allowing a supramarginal removal and in my case the discovery was fortuitous. All this to say that the statistics today are based on people who had diagostics much later than you, we must keep hope. I got a tattoo after the surgery “Outlier” on my right arm above the vaines to remind me during each MRI which is always so distressing.
I sincerely believe that we are not in the statistics because they are based on data before MRIs were done so often and before tumors were treated with surgery and before new drugs. I pray every evening to be with my daughter and every evening I pray that every mother can also be there for their children, I also pray for you and your family and evryone with this.
You look so healthy, it's sad you have to face this in your younger years 😥
What a beautiful and brave person you are. Hope God restore your health soon. Never mind the darkness, you'll still find the way. Stay blessed. From South Africa
Eireann, you are just an angel. You have looked this diagnosis right in the eyes, and said "I'm not giving up!" You are so incredibly strong, and yet so incredibly kind. We're continuing to pray and manifest ALL the good vibes possible for you!
I’m so sorry , but never lose hope, have faith 💕🙏
Trying my best 😊🙏
Hi Éireann, I am so sorry you are going through all of this. You have not left my prayers since I came across your first video about your symptoms. You've been a huge inspiration to me over the past several months - I had my first seizure back in September, and am still going through tests searching for an answer. I have been absolutely in awe of your positivity throughout your surgery, diagnosis, and all of the waiting in between. Keep fighting! You have lots of people cheering you on. 💗
Darrian I'm so so sorry you're going through this right now ❤️ Thank you so much for your kindness it's overwhelming honestly. Thank you for such a lovely positive message it really means so much to me. I will be thinking about you and praying for you and hope you get some good news soon. If you need anything at all I'm here for you 😊🙏
Best of luck, Darrian - and well done for giving the lovely Éireann such a generous donation. I hope your tests will give you some reassurance about your own condition.
I just cant believe how awful you're being treated Éireann... I'm in even more disbelief with how you're dealing with it all. ❤❤❤ sending all my love to you, you absolute warrior
Thanks for the update. We are all with you all the the time. Remember that the future is not written for any of us.
Lots of Love ❤ to you and yours from Scotland 🏴
Very well said ❤️ thank you 😊
Beauty, Grace and Courage. Thank you for sharing your story
Thank you so much for such kind words ❤️
@@diaryofeireann I had a gestational trophoblast. By the time I was diagnosed I had tumors in my brain and lungs. it was a saga and my heart goes out to everyone who is "invaded". For some reason the long term side effect was a bizarre sense of humor? Be Charmed, Hon
I can’t believe how calm and clear you are. It’s just impressive. Your strength is incredible.
Thank you for the update. Thinking and praying for you everyday. ❤
Continued prayers for you. Thankful for your update.
You have a heart of gold. And a very heartwarming optimism. You are in a challenging spot in your life. Your kindness shines through and is so helpful to you and to the many others who see your videos. When I was being treated for advanced cancer, there were no support groups available due to Covid. I turned to TH-cam to seek out others who were dealing with cancer. I’m so grateful to the other cancer patients who chose to take the extra efforts to put their stories up on TH-cam. I hope you realize how your TH-cam efforts, combined with your lovely personality, help many others who are dealing with cancer. Many thanks to you Erieann.
I’m so sorry you are going through this. You are so strong ❤ 🥺
Sending so so so much love I’m so so sorry for everything that you’ve been through and are going through 💕💕💕💕🩷🩷🩷🩷
Sorry to hear about your recent seizure Eireann. Sending best wishes as always. You're handling everything in amazing fashion.
As bleak as the prognosis information feels, medicine has advanced so much in the last 20-30 years already. There is always hope the situation can change and improve for you. I am crossing my fingers and will be following along every video.
Thank you 😊 I'm trying my best to stay as hopeful as possible so thank you for reminding me ❤️
You're worth the world and I hope you and Devon and your dog can travle soon. Hugs from sweden ❤
thank you so so much 😊❤️
Thank you for your update today, you are such a thoughtful and selfless person despite everything that you are going through. I’m so glad to hear that you connected with the doctor who is going through a similar situation! I’m so sorry to hear about all the roadblocks that have caused extra stress on top of coping with your diagnosis! I pray that you have the best outcome possible and that you can stay positive as you go through this journey!!
Been watching for your update and appreciate your time to do this. Your ability to process this mess and keep your positive attitude is impressive. Wishing you the best outcome from all of this and will continue to pray for you. Kindest regards.
You so courageously share what you're going through Eireann. Thank you. It's motivational and inspirational to see your courage in action.
How on earth can you be so incredibly lovely and beautiful and brighten my day while I'm listening to you talk about such a devastating diagnosis. You truly are a ray of sunshine! Big hugs for your next appointment, I hope they can find a better medication for you. It would be nice if you had one less thing to stress over.
I think of you daily!!! Thank you for the update. You are in my prayers.
I’m so sorry to hear this! Let’s hope your a new surprise with this! My prayers are going your way!!!❤
You can be a kind person and still get angry and make sure you get what you need.
To have that experience with the surgeon and staff is unforgivable. I HIGHLY recommend that you consider calling the Mayo Clinic in Scottsdale, AZ to discuss with them and to have a 2nd opinion provided. I would go so far as to say anyone who would disrespect your time and disregard the stress caused by not meeting his obligation, should not be trusted. I don’t care where they sent the tumor. I know for a fact that you will be treated appropriately and you will be given accurate information with Mayo. I know you have a lot going on with a move impending and all the rest of it. But this is your life. NOW is the time to be sure. NOW is the time to consult the best people. Don’t wait. Nothing is more important than you living a long, healthy life.
thinking of you. your heart is so big trying to help those who going through the same thing.sending love xx
Eireann, every cancer has a first case to go into remission. Praying that you will be the first for your type of cancer.🙏🏻
This is so so kind for you to say ❤️ Thank you. I'm hoping and praying I'm one of the first so we can all live long happy lives 🙏
Wow Devon's boss was some piece of work. Speaking from his side of this, if what you're going through ever happened to my wife I don't know how I could concentrate on work period. For him to fire the poor guy because he wanted/needed to be with you for something so major shows some people really are awful. How someone like that could look at themselves in the mirror is beyond comprehension.
On to you, I'm so sorry you're dealing with all this and I am keeping you in my thoughts. There are always new drugs/trials on the horizon. Never lose hope that one of those will be the "magic wand" for you. Be well!
Agreed. The boss is a real arsehole. I wish nothing but bad vibes to him. The company should be named and shamed and put out of business for being horrible.
Thinking of you 🙏
Thank you so much for your kindness ❤️ Really not needed but appreciated 😊
wow, hang in there and stay strong, keep fighting through! But glad to hear you are better, be ready and take on any obstacles...you got this, and yes the community is all here to help you in your journey! Prayers up for you.....
Praying for you🙏🏻 your positivity is so beautiful as you are. You will be a positive powerful force for anyone going through a life changing event. 💙
Thank you for the update... been thinking about you!
Thank you so so much ❤️
I am horrified at the way your health provider is failing you. You have incredible strength and an incredible attitude. I love your idea of a FB group - it seems to me that we have to help ourselves in these crazy times and find strength in numbers and in each other. You have a warrior spirit like no other I’ve seen as a nurse. God be with you Éireann xxx
Can’t believe what you’ve had to deal with 😩 and you still have such a wonderful attitude and outlook 💞
I'm so sorry you had to through all that just to get your meds, Sending love and hugs your way from London UK and I'm keeping you in my thoughts and prayers xx 😊
I know we're only seeing a portion of your life but you seem so calm and collected particularly after what you've been going through. How could your consultant just disappear without adequate backup in place, it's just shambolic and as for Devon's boss firing him under these circumstances they should truly hang their head in shame. I also don't think you should feel guilty about the Go Fund Me, you have a lot of support here, you are not someone begging for money because you blew it all on a fancy car or something. Let people help and support you because there is absolutely no guilt here ❤ sending you all the love and hugs.
Thanks for the update, Éireann. It’s really lovely to come on here and get to see how your doing. I hope and pray for your ease, and your peace of mind. And that any new information which will be helpful to you, finds you. I’m sure it will
💗
You're so incredibly kind ❤️ Thank you so so much for being so lovely 😊 I really appreciate you!
Thank you for the update! I hate that you and your family have been through so much! I can’t imagine job loss, no car, and major health issues! Your beautiful attitude and energy still shine through all the trials you are going through! I am continuing my prayers, and pray for a miracle healing. Stay strong and keep shining!!!🙏
I am so sorry for what you are going through. Your positvity throughout all this is unbelievable. Your beautiful inside and out. I wish you all the luck in the world.
Eireann, The medical system you are living with is absolutely unacceptable. I hope you can move as soon as possible as we are all very concerned about the lack of reliability of the team involved in your care. You are a wonderful, curageous, beautiful person!❤❤❤❤
sending you loving kindness
Thank you so much for your kindness ❤️ Really not needed but appreciated 😊
You are beautiful inside and out, I'm so very sorry you're going through this
I'm so sorry to hear about your seizure. Stay strong. As always, you're in my prayers.
Hope this helps. Even if it’s just to buy a yummy drink and snack to cheer you up. ❤
Lauren this was too kind ❤️ Thank you so so much. It really is those wee things that make my day these days so I really appreciate you 😊 Too kind of you
Thanks!
This was way too kind of you ❤️ Thank you so so much
Thanks for the great rumor update. You have a lovely way of sharing information.
Éireann, I’m so sorry you’re having to go through all of this. I have Chiari Malformation & used to have seizures too & they’re so scary! The fact that you’re going through all of this yourself & thinking about setting up a FB group to help others shows what a beautiful heart you have. Try to stay positive and always remember you have people all over the world praying for you & sending love & good vibes your way!
Sending so much love to you, Eireann. I'm so sorry you are being given such a runaround, having to chase down doctors. You're a lovely, strong, smart woman. I hope you can feel all the support coming your way. Love from NJ. ❤
You’re such a beautiful person. Sending you big hugs ❤
Still praying for you every night, beautiful lady. Remember, God loves you! 💜
You are such a light! That Facebook group idea is brilliant, count me in
you are so lovely! im grateful you have such a supportive family. i know youll be happy to get back home! love and light to you! ❤
Never give up
thank you so so much 😊❤️
Thanks
Thank you so much ❤️
Sending you so much positive energy and holding you close in my heart.
Sending light and so much love. You're an amazing person.
As a doctor myself and current living in Brazil I can't even imagine such a bad medicine that's being practice in canada.. I mean, diagnosis sometimes are difficul and challenging but leaving you without medication, not even leaving someone on hold if you need any assistance and leaving the country like this is crazy!
Still praying for you all Know how hard the wait can be.
Stay strong! you are an example of strenght, thank you 😊
Keep in mind that with AI and some other advances in cancer tx you could end up living a long life. You are a warrior and are in my prayers often. You emit strength my friend.
It’s so great to see you more positive. It’s normal to feel sad sometimes. You are such an inspiration and thank you for continuing to share your story! ❤️
Praying for you god blessed you
It is exhausting having to advocate and fight but that is what you have to do.
I have stood in your shoes with my dad, what I would say is with the treatment you have had I would check out elsewhere. We didn’t and we endured the worst, I am offering you our hindsight. Get out and get out quick.
Ask your dad and family to reach out to all neurology consultants across the world who have experience in your tumour and see what they can share, know and examples of care, treatment and success.
Trials is a key. The Royal Marsden in the UK could be useful to reach out to Liam Christopher Welsh.
But if in your shoes I would be changing my care ❤
Thanks for your update what a frustrating you’re having. Never give up and stay positive. I realise it is hard but you can get through this. You’re a warrior Princess and in our thoughts and prayers. Sending hugs
I hope you manage to get sorted out. Stay strong, and pray! It can help! You are in my prayers!