You shouldn't feel guilty about another gofundme. The community wants to help you. When you make these videos you are pouring out into the community, helping family members and patients with chronic neuro issues and tumors, let the community pour back into you.
7:55 that person was fine letting someone die... seizures can get very dangerous & her not calling you back is literally her risking someones life like wtf is wrong with people in the health sector
that's the NIH for you. everybody praises the free healthcare but there are so many gatekeepers to just about everything it's nearly impossible to seek care when you need it unless you go private which ends up being just as expensive as america.
What is wrong with these people involved in your care? Constantly saying they'll call and then not doing it, to the point that you risk running out of a very important medication (despite them being well aware that this will happen). This is completely unacceptable.
@@CL-un9gg I'm a doctor in Scandinavia, and I actually don't see this type of behaviour. I've been a cancer patient myself as well, and they didn't screw me around like this.
We have a shortage of neurologists in Canada. My daughter in law has epilepsy and I thought what we went through was a nightmare. That’s actually pretty fast to see a specialist here. TOTALLY unacceptable to run out of meds. Inhumane and verging on negligence.
What kind of doctor is this one? Time to change! Unacceptable in every way! Doesn’t call you back and then leaves the country without somebody covering for him?
Two doctors got moved after my diagnoses they told me it was all in my head for ten years having full proof guess what it was all in my head two brain tumors and an anuirism now I just pray all day everyday for him to heal me because most doctors don't speak the truth they hide behind rules of the veil of the world ❤
@@mjad7yeah the one they keep saying is so great the United States should emulate it! No thanks! No wonder the rich Canadians come to the US for medical care.
Éireann, you need another Go Fund Me. You cannot go through this and also have the money worries that you inevitably have with job insecurity, getting back to Ireland from Canada, Devin's visa, which I recall you saying was very expensive and who knows what other expenses. It's a tribute to the amazing, decent person you are that you feel that you can't take any more donations. Yes you can - for the simple reason that many of us are very happy to offer you some financial support in your hour of need. And yes, it is our way of giving you an online hug when we would so like to give you a hug in person. I'm so moved by your latest video and so worried about you but if anyone can be on the right side of all these statistics and averages then it's you. I'll keep praying for you and thinking of you. We're all here for you. Take care, Rob xx (and daughter Soph! xx)
Rob your comments are always filled with kindness. Thank you and Sophie so so much 😊 Every single message you have sent me has been so lovely and greatly appreciated. Thank you xx
Not returning promised phone calls is totally unacceptable! It just adds to the nightmare. Wishing you much strength, health and happiness. Best of wishes, you are such a brave and beautiful role model for us all.
Eireann, please still consider a go fund me. Other TH-camrs like me who have been following your story would want to share it with our audiences! You’ve been through so much already, you have a lot more to go through, and your health doesn’t need more stress by worrying about money. Even if you don’t need it for health stuff- you would 1000% deserve just donations to go do some fun things.
Hi Eireann, oh I’m so frustrated for you. I don’t understand why you’re having to be your own advocate, chase up doctors for your diagnosis/medicine. I’m sorry for what you are going through, I send all my love and prayers ❤
I've been a wee bit run down by it recently lol. Having mostly good days but definitely some bad days. Trying my best to stay positive through it 😊 thank you so much ❤️
In a perfect world it would not be this way, but we don’t live in a perfect world. The people that care the most about you are yourself and hopefully any friends and family you might have. Doctors are great people for dedicating their life to helping others but at the end of the day they are just people and they make mistakes. What I am trying to say is don’t you ever feel bad about being insistent or demanding or whatever. You are worth more than someone being annoyed by a phone call.
I feel the same way. I sympathize with because my brother is going through the same thing- 4 months later... barely today he's beginning his first treatment! Except for he has 4 brain tumors and is stage four 😢
As a fellow cancer patient, I’m in year 13 fighting. Eireann take any help people are willing to give. A cancer fight is expensive, very expensive. I have lost not only my health I also lost my job, home, car, financial security when I say It has cost me everything I have , I’m not exaggerating now I’m losing my vision and can’t even memorise a floor plan because I lost our home paying for treatment so I could be alive for my husband and kids. All the best to you
Look up Cannabis oil for cancer. It takes 3 months to cure breast and 6 months for all others. Dietary and lifestyle changes needed for that period too. Watch a film called ....Running from the cure.
Do another gofundme for sure!! Do not feel guilty!! ... travel, bring your family over, take a trip home, get another dog, help someone else in the brain cancer community who is struggling, start a foundation, get a pedicure and a massage, a new pair of shoes. You are sharing so much, and being so brave, and being so giving of your time and energy...let some of that energy come back in money to make your life easier.
You need to get the hell out of THAT medical system you are in. Good Lord. I would cry too Eireann. I am so sorry you have to go thru this and can't even get decent medical care. Let alone good medical care. It makes me feel just sick, I can't imagine how you are holding it together so well. God bless you dear heart. Keeping you in my prayers.
I can't imagine how frustrating and stressful it is to keep calling people who are supposed to help you, having them promise you a call back and then ignore you. Your life is at stake, that is absolutely unacceptable! I'm livid. I can't imagine ever putting another person in a situation like that. If I'm promising someone a call back then I do call back, even if just to tell I'm not able to help. Keeping someone waiting like that is inhumane. I really hope your new seizure medication works well and your breathing gets better. You don't deserve any of this to be happening. Sending you hugs from Poland
You stand firm on a healing honey 14 years later two brain tumors and an anuirism I'm still here sweet lady be the healing that makes all those docs and nurses and the whole youtube community believe in miracles and Jesus and the Great Creator he can and will heal u I stand firm with u or anyone on here willing and able to be the were two or more are gathered in his name with me we will rebuke that cancer and u shall be healed much love your way honey ❤
Éireann, I have been watching all of your videos since your brain tumor diagnosis. You are such a lovely person and my heart just breaks for you! As someone with several autoimmune diseases/chronic illnesses, I know how stress and expensive being sick can be. No one should have to worry about those types of things when they are going through what you and Devon have gone through. It absolutely breaks my heart!! Please never stop being you because you are a truly beautiful and incredible human being!
This was so incredibly kind of you ❤️ Please know I appreciate this but it's your words that really fill my heart. Thank you so so much and I hope you're feeling okay 😊
On the issue of your seizure tablets - years ago, I dropped my dosage by just a small amount after consultation with a doctor. Within a month I had my first seizure in 4 years. I went back up to the previous level - havn’t had a seizure for over a decade. The balance of chemicals in the brain is VERY delicate. Loads of respect for your strength Eireann.
Hey I get the frustration of Grade 1 starting me having a seizure in a pizza restaurant got me to hospital to have the scan for Grade 3 I felt for half year before that I had something wrong but it can't be changed hoping all us brain tumour survivors to cured I still believe in it 🙏
Hi I'm so so sorry to hear that. I hope you're keeping well both physically and mentally during this time. I'm still feeling hopeful for research and medication but it's just hard some days ☹️ Also yours started in a pizza restaurant and mine in an ice cream shop? lol.
I live in Canada and our healthcare system is run buy the provinces. Yes, our universal healthcare is outdated and needs an overhaul, I agree! However I work in oncology in British Columbia and, if you are going to have cancer this is the province to have it in. Our funding and expertise is second to none.
There are online support groups. Those for the warrior fighting disease and for those who are the caregiver supporting the warrior. I would have done as well as I have without the support of those who loved someone battling brain cancer. Posting anytime day or night works. Also there are ones who get closer by Pm communication each other.
If anyone here works where you speak with patients on the phone, if you say you will call them back PLEASE call them back for the love of God. Even if you cannot give them an answer of what they need, just call them back and let them know. It's better to have closure than nothing at all. Something so simple can cause so much distress and worry for patients already going through the worst. Please just help them a little, so they don't feel forgotten about. ❤
I hope the doctors who have so blatantly failed you see your videos and change their ways. I know you've had some good experiences with members of your medical team, but the level to which you've been dismissed and ignored by some doctors blows my mind.
You are such a beautiful person, inside and out and I'm so sorry you're going through this. Life isn't fair sometimes. I love your spirit and your attitude, the way you're handling this. It is so inspiring! I pray that God grants you a miracle with your health and pull through this cancer free. Sending you love and prayers from U.S.
Eireann, you are just an angel. You have looked this diagnosis right in the eyes, and said "I'm not giving up!" You are so incredibly strong, and yet so incredibly kind. We're continuing to pray and manifest ALL the good vibes possible for you!
You are so, so lovely - inside & out! Thank you for the update. If it can help relieve the stress around calling an ambulance, don't be shy to ask the operator to pass on the message to turn off the lights/siren when driving down your street. I've done that twice before without issue. Sending you strength & big hugs from Ottawa!💕🇨🇦
Carrie this makes me want to cry. Thank you so much for being so incredibly kind 🙏❤️ Every prayer is appreciated and you're literally an angel. I wish I had the words to explain how thankful I am.
What a beautiful and brave person you are. Hope God restore your health soon. Never mind the darkness, you'll still find the way. Stay blessed. From South Africa
I just cant believe how awful you're being treated Éireann... I'm in even more disbelief with how you're dealing with it all. ❤❤❤ sending all my love to you, you absolute warrior
Hey Eirann, first time posting a comment on youtube. I found out last year that I also had a grade II glioma astrocytoma in the right temporal lobe, I had just become a mother from my little Aurora. The prognosis of 10 to 15 year olds destroyed me morally, it is not understandable to hear about the end of my life when one has just given birth but it is not more acceptable when one has begun it like you. But I tell myself that we are one of the lucky ones, we are young you are even younger, medicine is evolving there is a drug that will soon be released: vorasidenib which gives good results in low grade gliomas mutant for IDH . My husband who is a mathematician tells me that I do not fit into the statistics, firstly because of my age + the fact that I was able to have an awake surgery allowing a supramarginal removal and in my case the discovery was fortuitous. All this to say that the statistics today are based on people who had diagostics much later than you, we must keep hope. I got a tattoo after the surgery “Outlier” on my right arm above the vaines to remind me during each MRI which is always so distressing. I sincerely believe that we are not in the statistics because they are based on data before MRIs were done so often and before tumors were treated with surgery and before new drugs. I pray every evening to be with my daughter and every evening I pray that every mother can also be there for their children, I also pray for you and your family and evryone with this.
Hi Éireann, I am so sorry you are going through all of this. You have not left my prayers since I came across your first video about your symptoms. You've been a huge inspiration to me over the past several months - I had my first seizure back in September, and am still going through tests searching for an answer. I have been absolutely in awe of your positivity throughout your surgery, diagnosis, and all of the waiting in between. Keep fighting! You have lots of people cheering you on. 💗
Darrian I'm so so sorry you're going through this right now ❤️ Thank you so much for your kindness it's overwhelming honestly. Thank you for such a lovely positive message it really means so much to me. I will be thinking about you and praying for you and hope you get some good news soon. If you need anything at all I'm here for you 😊🙏
Best of luck, Darrian - and well done for giving the lovely Éireann such a generous donation. I hope your tests will give you some reassurance about your own condition.
I don't understand how the specialists are allowed to get away with that sort of behaviour, you must both be very frustrated. Keep strong and positive all the best
Wow Devon's boss was some piece of work. Speaking from his side of this, if what you're going through ever happened to my wife I don't know how I could concentrate on work period. For him to fire the poor guy because he wanted/needed to be with you for something so major shows some people really are awful. How someone like that could look at themselves in the mirror is beyond comprehension. On to you, I'm so sorry you're dealing with all this and I am keeping you in my thoughts. There are always new drugs/trials on the horizon. Never lose hope that one of those will be the "magic wand" for you. Be well!
Agreed. The boss is a real arsehole. I wish nothing but bad vibes to him. The company should be named and shamed and put out of business for being horrible.
Thanks for the update. We are all with you all the the time. Remember that the future is not written for any of us. Lots of Love ❤ to you and yours from Scotland 🏴
I am so sorry. I mean, I’m glad it’s slow growing, but… Lord, you are so young. This is so heavy. 😢 i wish I knew what to say. My heart goes out to you & your loved ones.
Dearest Eireann - so glad to see your update. I think because your situation has changed and is ever evolving I would not feel guilty starting up another gofundme and letting us as your community help you and Devon out- or even better yet direct donations through paypal or etransfer to avoid gofundme fees...please think about it! What a sh** employer so sorry that happened to you Devon. Sending love hugs and prayers from the east coast.
You have a heart of gold. And a very heartwarming optimism. You are in a challenging spot in your life. Your kindness shines through and is so helpful to you and to the many others who see your videos. When I was being treated for advanced cancer, there were no support groups available due to Covid. I turned to TH-cam to seek out others who were dealing with cancer. I’m so grateful to the other cancer patients who chose to take the extra efforts to put their stories up on TH-cam. I hope you realize how your TH-cam efforts, combined with your lovely personality, help many others who are dealing with cancer. Many thanks to you Erieann.
Eireann -- I've been struggling with my mental health lately, and for some reason, your videos popped into my feed...and I'm glad they did. Your positive outlook on life is so wonderful, it helps put things back into perspective for me. I'm glad you decided to allow us along this journey with you and I hope you know we're all here for you. Your videos literally make my day sometimes, and I feel like your example inspires me to be better and stronger and to try to share some of the positive energy you bring within my own circle of people, because none of us really knows what the people around us are going through at any given moment. Wishing you the absolute best outcome -- we're all pulling for you.
As someone going through initial tests after a first seizure, thank you for sharing your experiences so far. I wish you the very best of news in your journey ahead.
Thank you so much for your kindness ❤️ This is way too much. You're incredibly selfless. I'm so so sorry to hear that you're going through that right now. I will be here for you if you have any questions or need someone to talk to. I will be saying a wee prayer for you today and sending you all the positive vibes so everything is okay and you get all your good answers soon 😊
Dominic Hill’s Surviving Terminal Cancer film was first aired on World Cancer Day (4 February 2015) and was watched by 400 people affected by a brain tumour at the BFI in London. It was later aired in New York at the Lincoln Centre and watched by over 200 people affected by a brain tumour. The film argues that the long-term survival of three brain tumour patients who researched and devised their own treatment programmes challenges the orthodox approach to improving cancer treatments.
I am horrified at the way your health provider is failing you. You have incredible strength and an incredible attitude. I love your idea of a FB group - it seems to me that we have to help ourselves in these crazy times and find strength in numbers and in each other. You have a warrior spirit like no other I’ve seen as a nurse. God be with you Éireann xxx
Sorry to hear about your recent seizure Eireann. Sending best wishes as always. You're handling everything in amazing fashion. As bleak as the prognosis information feels, medicine has advanced so much in the last 20-30 years already. There is always hope the situation can change and improve for you. I am crossing my fingers and will be following along every video.
Eireann, The medical system you are living with is absolutely unacceptable. I hope you can move as soon as possible as we are all very concerned about the lack of reliability of the team involved in your care. You are a wonderful, curageous, beautiful person!❤❤❤❤
This is extremely frustrating when doctors do not know how to treat their patients. You are not just a number, you are a person. I am so sorry you are going through this and I will continue to pray for you.
People like you were the reason I couldn't study medicine. I really wanted to help people but the system just doesn't work for patients. That's why I chose veterinary medicine with the love of animals. I work in my clinic freely, I accept patients as much as I want, I make strong bonds and I even do medical researches. I'm so sorry you have to go through this. I hope things go well for you.
I know we're only seeing a portion of your life but you seem so calm and collected particularly after what you've been going through. How could your consultant just disappear without adequate backup in place, it's just shambolic and as for Devon's boss firing him under these circumstances they should truly hang their head in shame. I also don't think you should feel guilty about the Go Fund Me, you have a lot of support here, you are not someone begging for money because you blew it all on a fancy car or something. Let people help and support you because there is absolutely no guilt here ❤ sending you all the love and hugs.
Oh Eireann my heart hurts for you. When people tell me they will call me back that is what I expect to happen. I am so sorry these medical people left you hanging. So stressful for you. Much love and prayers for you. ❤ You are a lovely lovely young woman inside and out.
To have that experience with the surgeon and staff is unforgivable. I HIGHLY recommend that you consider calling the Mayo Clinic in Scottsdale, AZ to discuss with them and to have a 2nd opinion provided. I would go so far as to say anyone who would disrespect your time and disregard the stress caused by not meeting his obligation, should not be trusted. I don’t care where they sent the tumor. I know for a fact that you will be treated appropriately and you will be given accurate information with Mayo. I know you have a lot going on with a move impending and all the rest of it. But this is your life. NOW is the time to be sure. NOW is the time to consult the best people. Don’t wait. Nothing is more important than you living a long, healthy life.
Hi Eireann, everybody is saying the same thing, please just consider that so many of us want to help you. It would be our honor to help in a small way!!!!! Stay strong and may God bless you. We love you.
I saw this quote on Instagram. I hope it is comforting. "Men do not care how nobly they live, but only how long, although it is within the reach of every man to live nobly, but within no man's power to live long." I wish you a long and noble life, Eireann.
Many of us that follow your channel don’t personally know you but can easily sense that you are a kind and honest person. We all wish the best for you.
Lauren this was too kind ❤️ Thank you so so much. It really is those wee things that make my day these days so I really appreciate you 😊 Too kind of you
@@diaryofeireann I had a gestational trophoblast. By the time I was diagnosed I had tumors in my brain and lungs. it was a saga and my heart goes out to everyone who is "invaded". For some reason the long term side effect was a bizarre sense of humor? Be Charmed, Hon
I feel gutted listening to how the doctors and other staff in this clinic are treating the patients. This is really unacceptable to leave you in this situation without medications and keep saying that someone will call you and it's not happening. I feel sorry for you, I can only imagine how hard and stressful it must be. I work in the Oncology Center, and I can't imagine something like that happening. You are very strong! All the best.
How on earth can you be so incredibly lovely and beautiful and brighten my day while I'm listening to you talk about such a devastating diagnosis. You truly are a ray of sunshine! Big hugs for your next appointment, I hope they can find a better medication for you. It would be nice if you had one less thing to stress over.
Thank you for sharing your experiences, I've been having seizures since September, I still don't have a diagnosis, but your videos have helped me tonight and I am grateful for you! Wish you love!
Thanks for the update, Éireann. It’s really lovely to come on here and get to see how your doing. I hope and pray for your ease, and your peace of mind. And that any new information which will be helpful to you, finds you. I’m sure it will 💗
Seeing you face this adversity is inspiring, and I hope that you keep making your videos. I don't want to be insensitive, but I'm a biochemist by training and wanted to add something of a technical nature. V600E indicates that the valine (V) residue located at position 600 in the BRAF protein has mutated to glutamate (E). The glutamate mimics phosphorylation of BRAF's activation site, which means that the cell can't turn the BRAF off after it has been made. The DNA triplets for valine are G-T-(G/A/T/C), while the DNA triplets for glutamate are G-A-(G/A). So your BRAF mutation was the result of a thymine-to-adenine substitution in your DNA. This seems like it would be a dominant mutation, so your other copy of BRAF is probably just fine. I never studied cancer, but it seems like they could try selectively silencing the bad copy (like through RNA interference), while letting the good copy express normally. If that were possible, it would probably solve your problem.
I'm just 26 when I got Chiari Malformation(a major brain disease). I undergone already twice major brain surgeries(Totally risked my life to it). 3 yrs now, I am still struggling from all the surgical traumatic post(lifetime) complications but here I am still trying to live a normal life(I also made documentations of it through here youtube)💪,we can do it Eirean! My hugs and Prayers fr. Philippines
Keep in mind that with AI and some other advances in cancer tx you could end up living a long life. You are a warrior and are in my prayers often. You emit strength my friend.
As a father of two young girls, in the previous video, hearing you talk about your dad wanting to be there for you had me tearing up instantly. I can't imagine what it would have to be like. Doing all that is in your power and still feel helpless. Please tell your dad that he is hero no matter what. The hero every other dad aspires to be. And please know that you are forever his treasure. I would also like to thank you for sharing your story. And wish you all the time future can give you. I hope alongside all the tears this illness brings upon you, you can find also the joy that fills a heart with the warmth of a thousand loving fathers. (and mothers to of course ;-) Keep up the fight. (and the video's 😊)
I am so sorry your doctors have been so callous in returning calls. You should not have to chase them. I hope you get better care with your new Neurologist. All the best to you. And your BF former boss should be ashamed of himself.
As a doctor myself and current living in Brazil I can't even imagine such a bad medicine that's being practice in canada.. I mean, diagnosis sometimes are difficul and challenging but leaving you without medication, not even leaving someone on hold if you need any assistance and leaving the country like this is crazy!
Thank you for keeping us updated - your first video about your brain tumour popped up in my recommended videos a while ago and I've been following your journey since. I'm truly, so sorry you're going through this, but I'm in such admiration for how you are handling things. You are such a light and are building a strong community for people suffering like yourself, wanting to connect other people going through this is a wonderful idea. I can only imagine how isolating things can feel at times so that sense of understanding and support will really help other people. I'm sending all the love and hope in the world for you, you deserve every bit of happiness in the world. Also, please reconsider the GoFundMe situation, I understand why you feel guilty, but your community would really love to contribute to making your life a little easier right now
You are indeed a beautiful young woman. (I am 72, so to me you are young!). I admire your wonderful, positive attitude in facing your medical issues. Often you have mentioned that so many medical personnel do not return your calls-especially when they actually say they will call you back. I’d keep track of their names and write a sincere letter telling them what you are facing medically and that this person has let you down. Perhaps these people will do better with their next patients- even maybe you! I appreciate your posts to let us know how you are doing
Hello Eireann - I can't imagine how frustrating it must be when doctors and nurses don't call back when this is SO important. I'm wishing you all the luck in the world and good thoughts to you and your loved ones. We're here with you!
It is exhausting having to advocate and fight but that is what you have to do. I have stood in your shoes with my dad, what I would say is with the treatment you have had I would check out elsewhere. We didn’t and we endured the worst, I am offering you our hindsight. Get out and get out quick. Ask your dad and family to reach out to all neurology consultants across the world who have experience in your tumour and see what they can share, know and examples of care, treatment and success. Trials is a key. The Royal Marsden in the UK could be useful to reach out to Liam Christopher Welsh. But if in your shoes I would be changing my care ❤
I know you've said you like your surgeon, but honestly he is dropping the ball on your health. You need to get a doctor that is more responsive. I can't believe he left you hanging with the tablets.
Dr. Athur Malik of Rhode Island hospital has a trial for a vaccination on glioblastoma. There was an article in the Boston Glove that showed hope. I’m so sorry you are going through this. I’ll continue to keep you on my prayers. 🙏🏻🙏🏻☘️
TIP for SEIZURES-i put in capital letters hoping to get your attention😅 I usually have a few seconds warning when a seizure starts. i started keeping alcohol prep pads with me in a little “medicine bag” or in a pocket at all times. when i start to feel pad i open and smell the alcohol and it helps redirect me sometime aborting seizure. i get phantom smells (smell things that arent there like cigar , something burning, chemicals) and i crack open an alcohol pad for that too. my new seizure med is working great after several failed ones.
I agree with others on the gofundme. We all want to help you. I think it’s so unreal that Devin’s boss let him go and took the vehicle. What boss doesn’t let someone take off for their partners brain surgery? Wow I’m so sorry that happened but god is in control and solutions have been coming your way. Take care and know we are all here for you. 💕
I hope that with the life that you have left that it's the best damn life you can have. It's just not fair and I'm so sorry. I just learned of the passing of a friend from cancer, and I am devistated, and this just makes me so angry. She didn't deserve that, and you don't deserve this. I wish you much peace. May you be able to still find the joy in the sunrises and sunsets, and may you feel the love that we all have for you, and may you be able to breath calming breaths and may you know peace.
Wow, I can't believe that health-care workers would behave this way. I am a teacher and I always make sure that my students get eveeything they need, can't imagine behaving this way to a person that has gone through so much already. Wtf! Also the coldness of some people, can't believe your partner was let go from his job when you needed help the most, and to do that! Damn. But I am hoping the best for you! I really hope that there are better cures for all forms of cancer and tumors in the very near future!
I'm feeling grand now so please don't worry 😊
Glad to hear! keep your head up. You WILL beat this.
I am so glad to hear you are doing grand now, but being a mother worrying is what we do!😊
My and my Mum hope and wish that you don’t have any more seizures 🍀
The Body is Beautiful
I've been dead a lot f times it doesn't matter
Éireann, please re-think the go fund me. Having one less thing to worry about will leave you more energy to look after your health. 🙏
Just fyi, underneath her video where you see the like button, there is a 'Thanks' button. Anyone who wants to support her financially, can use that 😊
I think youtube takes a portion of that money, right? @@LittleLemon1000
@@LittleLemon1000 thanks for that. Just tried but can’t use it because I’m not in an area of US$. 🥲
@@LittleLemon1000 YT takes like 30% tho
@@ronan.pellen Whaaaaaaat? I had no idea! Ok, forget what I said. Gofundme it is!
Im born and raised in canada and girl, get a lawyer for that employer. Thats malicious dismissal
Absolutely disgustingly shocking !!!!!!
I agree. Employment lawyers can be well worth the fees they charge. Personal experience.
You shouldn't feel guilty about another gofundme. The community wants to help you. When you make these videos you are pouring out into the community, helping family members and patients with chronic neuro issues and tumors, let the community pour back into you.
I agree with you
please set up fund
Getting friends and family to subscribe to her channel will help.
Someone might have to do it for Her, she seems humble!,✨
7:55 that person was fine letting someone die... seizures can get very dangerous & her not calling you back is literally her risking someones life like wtf is wrong with people in the health sector
that's the NIH for you. everybody praises the free healthcare but there are so many gatekeepers to just about everything it's nearly impossible to seek care when you need it unless you go private which ends up being just as expensive as america.
I can’t take it
Excuse me. Did they ever tell her if the tumor is benign or malignant???
Those drs are disgraceful. Leave the country!!!!!!!
What is wrong with these people involved in your care? Constantly saying they'll call and then not doing it, to the point that you risk running out of a very important medication (despite them being well aware that this will happen). This is completely unacceptable.
Welcome to Canadian healthcare!!!
@@HandbagDivawelcome to world health care.
@@CL-un9ggAbsolutely! I thought it was just USA too many people & not enough doctors. They are overwhelmed
@@CL-un9gg I'm a doctor in Scandinavia, and I actually don't see this type of behaviour. I've been a cancer patient myself as well, and they didn't screw me around like this.
We have a shortage of neurologists in Canada. My daughter in law has epilepsy and I thought what we went through was a nightmare. That’s actually pretty fast to see a specialist here. TOTALLY unacceptable to run out of meds. Inhumane and verging on negligence.
What kind of doctor is this one? Time to change! Unacceptable in every way! Doesn’t call you back and then leaves the country without somebody covering for him?
Two doctors got moved after my diagnoses they told me it was all in my head for ten years having full proof guess what it was all in my head two brain tumors and an anuirism now I just pray all day everyday for him to heal me because most doctors don't speak the truth they hide behind rules of the veil of the world ❤
That’s the mandatory Canadian public health system for you, no accountability or incentive to do right by the patients
@@mjad7yeah the one they keep saying is so great the United States should emulate it! No thanks! No wonder the rich Canadians come to the US for medical care.
@@jeannegeiger4750 the very small important detail is the RICH people can get care in america
that's normal
Éireann, you need another Go Fund Me. You cannot go through this and also have the money worries that you inevitably have with job insecurity, getting back to Ireland from Canada, Devin's visa, which I recall you saying was very expensive and who knows what other expenses. It's a tribute to the amazing, decent person you are that you feel that you can't take any more donations. Yes you can - for the simple reason that many of us are very happy to offer you some financial support in your hour of need. And yes, it is our way of giving you an online hug when we would so like to give you a hug in person. I'm so moved by your latest video and so worried about you but if anyone can be on the right side of all these statistics and averages then it's you. I'll keep praying for you and thinking of you. We're all here for you. Take care, Rob xx (and daughter Soph! xx)
Gofundme takes alot in fees, even just having her PayPal for people to donate would be good.
❤
Rob your comments are always filled with kindness. Thank you and Sophie so so much 😊 Every single message you have sent me has been so lovely and greatly appreciated. Thank you xx
Not returning promised phone calls is totally unacceptable! It just adds to the nightmare.
Wishing you much strength, health and happiness.
Best of wishes, you are such a brave and beautiful role model for us all.
Eireann, please still consider a go fund me. Other TH-camrs like me who have been following your story would want to share it with our audiences!
You’ve been through so much already, you have a lot more to go through, and your health doesn’t need more stress by worrying about money. Even if you don’t need it for health stuff- you would 1000% deserve just donations to go do some fun things.
Please Eireann rethink the go fund me. There are people who are new to your story and would like to give. Many blessings! Praying for you!
Hi Eireann, oh I’m so frustrated for you. I don’t understand why you’re having to be your own advocate, chase up doctors for your diagnosis/medicine. I’m sorry for what you are going through, I send all my love and prayers ❤
I've been a wee bit run down by it recently lol. Having mostly good days but definitely some bad days. Trying my best to stay positive through it 😊 thank you so much ❤️
In a perfect world it would not be this way, but we don’t live in a perfect world. The people that care the most about you are yourself and hopefully any friends and family you might have. Doctors are great people for dedicating their life to helping others but at the end of the day they are just people and they make mistakes. What I am trying to say is don’t you ever feel bad about being insistent or demanding or whatever. You are worth more than someone being annoyed by a phone call.
Canadas medical system is in total disaster
I feel the same way. I sympathize with because my brother is going through the same thing- 4 months later... barely today he's beginning his first treatment!
Except for he has 4 brain tumors and is stage four 😢
@@akitajapan1651Wishing your brother the best. 🙏🏻
The way they just left without giving you a call back or even a new prescription. I'm baffled. I'm sorry you're having to deal with it 😢
To have someone say they will call you back and then don't is just so horrible. I will continue to pray for you.
As a fellow cancer patient, I’m in year 13 fighting. Eireann take any help people are willing to give. A cancer fight is expensive, very expensive. I have lost not only my health I also lost my job, home, car, financial security when I say It has cost me everything I have , I’m not exaggerating now I’m losing my vision and can’t even memorise a floor plan because I lost our home paying for treatment so I could be alive for my husband and kids. All the best to you
I agree! I'm sorry for your pain.
Look up Cannabis oil for cancer. It takes 3 months to cure breast and 6 months for all others. Dietary and lifestyle changes needed for that period too. Watch a film called ....Running from the cure.
😢
May God be with you
Do another gofundme for sure!! Do not feel guilty!! ... travel, bring your family over, take a trip home, get another dog, help someone else in the brain cancer community who is struggling, start a foundation, get a pedicure and a massage, a new pair of shoes. You are sharing so much, and being so brave, and being so giving of your time and energy...let some of that energy come back in money to make your life easier.
You need to get the hell out of THAT medical system you are in. Good Lord. I would cry too Eireann. I am so sorry you have to go thru this and can't even get decent medical care. Let alone good medical care. It makes me feel just sick, I can't imagine how you are holding it together so well. God bless you dear heart. Keeping you in my prayers.
I can't imagine how frustrating and stressful it is to keep calling people who are supposed to help you, having them promise you a call back and then ignore you. Your life is at stake, that is absolutely unacceptable! I'm livid. I can't imagine ever putting another person in a situation like that. If I'm promising someone a call back then I do call back, even if just to tell I'm not able to help. Keeping someone waiting like that is inhumane.
I really hope your new seizure medication works well and your breathing gets better. You don't deserve any of this to be happening. Sending you hugs from Poland
You stand firm on a healing honey 14 years later two brain tumors and an anuirism I'm still here sweet lady be the healing that makes all those docs and nurses and the whole youtube community believe in miracles and Jesus and the Great Creator he can and will heal u I stand firm with u or anyone on here willing and able to be the were two or more are gathered in his name with me we will rebuke that cancer and u shall be healed much love your way honey ❤
Éireann, I have been watching all of your videos since your brain tumor diagnosis. You are such a lovely person and my heart just breaks for you! As someone with several autoimmune diseases/chronic illnesses, I know how stress and expensive being sick can be. No one should have to worry about those types of things when they are going through what you and Devon have gone through. It absolutely breaks my heart!! Please never stop being you because you are a truly beautiful and incredible human being!
This was so incredibly kind of you ❤️ Please know I appreciate this but it's your words that really fill my heart. Thank you so so much and I hope you're feeling okay 😊
On the issue of your seizure tablets - years ago, I dropped my dosage by just a small amount after consultation with a doctor. Within a month I had my first seizure in 4 years. I went back up to the previous level - havn’t had a seizure for over a decade. The balance of chemicals in the brain is VERY delicate.
Loads of respect for your strength Eireann.
My nephew 53 years old had glioblastoma for over 3 years. He was so brave and a successful guy all his life. Wishing for a cure❤
You look so healthy, it's sad you have to face this in your younger years 😥
Hey I get the frustration of Grade 1 starting me having a seizure in a pizza restaurant got me to hospital to have the scan for Grade 3 I felt for half year before that I had something wrong but it can't be changed hoping all us brain tumour survivors to cured I still believe in it 🙏
Hi I'm so so sorry to hear that. I hope you're keeping well both physically and mentally during this time. I'm still feeling hopeful for research and medication but it's just hard some days ☹️ Also yours started in a pizza restaurant and mine in an ice cream shop? lol.
I can't believe how bad Canada is for serious medical care!!!
Keep on keeping on❤
I live in Canada and our healthcare system is run buy the provinces. Yes, our universal healthcare is outdated and needs an overhaul, I agree! However I work in oncology in British Columbia and, if you are going to have cancer this is the province to have it in. Our funding and expertise is second to none.
I am in Manitoba and our oncology system is well run too. Many other disciplines are overstretched though.
I LOVE your idea about starting an online group/forum for people who have brain tumors! I think that would help so many people :-) best wishes!
😊❤️
There are online support groups. Those for the warrior fighting disease and for those who are the caregiver supporting the warrior. I would have done as well as I have without the support of those who loved someone battling brain cancer. Posting anytime day or night works. Also there are ones who get closer by Pm communication each other.
I agree. Only positive things can come from it so it's a brilliant idea
If anyone here works where you speak with patients on the phone, if you say you will call them back PLEASE call them back for the love of God. Even if you cannot give them an answer of what they need, just call them back and let them know. It's better to have closure than nothing at all. Something so simple can cause so much distress and worry for patients already going through the worst. Please just help them a little, so they don't feel forgotten about. ❤
God loves you! Please reconsider the gofundme!
Thank you so much - really not needed but appreciated 😊
Just a little help. But I hope lots of people will follow. Stay safe.
Thank you so much - really not needed but greatly appreciated 😊
I hope the doctors who have so blatantly failed you see your videos and change their ways. I know you've had some good experiences with members of your medical team, but the level to which you've been dismissed and ignored by some doctors blows my mind.
it is actually pretty normal for doctors to act like this nowadays.
You are such a beautiful person, inside and out and I'm so sorry you're going through this. Life isn't fair sometimes. I love your spirit and your attitude, the way you're handling this. It is so inspiring! I pray that God grants you a miracle with your health and pull through this cancer free. Sending you love and prayers from U.S.
Thank you so so much for being such a kind soul! I'm excited to be one of the first people to ever beat their diffuse glioma 🙏 ❤️
@@diaryofeireannThis 🙌🙌🙌 If anyone can, it’s you!
I can’t believe how calm and clear you are. It’s just impressive. Your strength is incredible.
Eireann, you are just an angel. You have looked this diagnosis right in the eyes, and said "I'm not giving up!" You are so incredibly strong, and yet so incredibly kind. We're continuing to pray and manifest ALL the good vibes possible for you!
You are so, so lovely - inside & out! Thank you for the update. If it can help relieve the stress around calling an ambulance, don't be shy to ask the operator to pass on the message to turn off the lights/siren when driving down your street. I've done that twice before without issue. Sending you strength & big hugs from Ottawa!💕🇨🇦
wow thank you so so much for this. I feel like this tip will be useful to sooo many people so thank you! 😊 I hope you're feeling okay now ❤️
Thank you! You're so kind and such a shining light! 💫💕
Oh my. You are a remarkable human. I wonder if you are aware of that. Your attitude towards this situation is amazing.
Praying for you!
What a fantastic donation - you should be proud of yourself. It will mean so much to her. Well done.
❤
Carrie this makes me want to cry. Thank you so much for being so incredibly kind 🙏❤️ Every prayer is appreciated and you're literally an angel. I wish I had the words to explain how thankful I am.
What a beautiful and brave person you are. Hope God restore your health soon. Never mind the darkness, you'll still find the way. Stay blessed. From South Africa
I just cant believe how awful you're being treated Éireann... I'm in even more disbelief with how you're dealing with it all. ❤❤❤ sending all my love to you, you absolute warrior
You can be a kind person and still get angry and make sure you get what you need.
I was diagnosed with Epilepsy when I was 2 and got the brain Tumor surgically removed when I was 8.
24 years Seizure free.
Hey Eirann,
first time posting a comment on youtube.
I found out last year that I also had a grade II glioma astrocytoma in the right temporal lobe, I had just become a mother from my little Aurora.
The prognosis of 10 to 15 year olds destroyed me morally, it is not understandable to hear about the end of my life when one has just given birth but it is not more acceptable when one has begun it like you.
But I tell myself that we are one of the lucky ones, we are young you are even younger, medicine is evolving there is a drug that will soon be released: vorasidenib which gives good results in low grade gliomas mutant for IDH .
My husband who is a mathematician tells me that I do not fit into the statistics, firstly because of my age + the fact that I was able to have an awake surgery allowing a supramarginal removal and in my case the discovery was fortuitous. All this to say that the statistics today are based on people who had diagostics much later than you, we must keep hope. I got a tattoo after the surgery “Outlier” on my right arm above the vaines to remind me during each MRI which is always so distressing.
I sincerely believe that we are not in the statistics because they are based on data before MRIs were done so often and before tumors were treated with surgery and before new drugs. I pray every evening to be with my daughter and every evening I pray that every mother can also be there for their children, I also pray for you and your family and evryone with this.
Hi Éireann, I am so sorry you are going through all of this. You have not left my prayers since I came across your first video about your symptoms. You've been a huge inspiration to me over the past several months - I had my first seizure back in September, and am still going through tests searching for an answer. I have been absolutely in awe of your positivity throughout your surgery, diagnosis, and all of the waiting in between. Keep fighting! You have lots of people cheering you on. 💗
Darrian I'm so so sorry you're going through this right now ❤️ Thank you so much for your kindness it's overwhelming honestly. Thank you for such a lovely positive message it really means so much to me. I will be thinking about you and praying for you and hope you get some good news soon. If you need anything at all I'm here for you 😊🙏
Best of luck, Darrian - and well done for giving the lovely Éireann such a generous donation. I hope your tests will give you some reassurance about your own condition.
I don't understand how the specialists are allowed to get away with that sort of behaviour, you must both be very frustrated. Keep strong and positive all the best
Wow Devon's boss was some piece of work. Speaking from his side of this, if what you're going through ever happened to my wife I don't know how I could concentrate on work period. For him to fire the poor guy because he wanted/needed to be with you for something so major shows some people really are awful. How someone like that could look at themselves in the mirror is beyond comprehension.
On to you, I'm so sorry you're dealing with all this and I am keeping you in my thoughts. There are always new drugs/trials on the horizon. Never lose hope that one of those will be the "magic wand" for you. Be well!
Agreed. The boss is a real arsehole. I wish nothing but bad vibes to him. The company should be named and shamed and put out of business for being horrible.
Thanks for the update. We are all with you all the the time. Remember that the future is not written for any of us.
Lots of Love ❤ to you and yours from Scotland 🏴
Very well said ❤️ thank you 😊
I am so sorry. I mean, I’m glad it’s slow growing, but… Lord, you are so young. This is so heavy. 😢 i wish I knew what to say. My heart goes out to you & your loved ones.
Dearest Eireann - so glad to see your update. I think because your situation has changed and is ever evolving I would not feel guilty starting up another gofundme and letting us as your community help you and Devon out- or even better yet direct donations through paypal or etransfer to avoid gofundme fees...please think about it! What a sh** employer so sorry that happened to you Devon. Sending love hugs and prayers from the east coast.
You have a heart of gold. And a very heartwarming optimism. You are in a challenging spot in your life. Your kindness shines through and is so helpful to you and to the many others who see your videos. When I was being treated for advanced cancer, there were no support groups available due to Covid. I turned to TH-cam to seek out others who were dealing with cancer. I’m so grateful to the other cancer patients who chose to take the extra efforts to put their stories up on TH-cam. I hope you realize how your TH-cam efforts, combined with your lovely personality, help many others who are dealing with cancer. Many thanks to you Erieann.
Eireann -- I've been struggling with my mental health lately, and for some reason, your videos popped into my feed...and I'm glad they did. Your positive outlook on life is so wonderful, it helps put things back into perspective for me. I'm glad you decided to allow us along this journey with you and I hope you know we're all here for you. Your videos literally make my day sometimes, and I feel like your example inspires me to be better and stronger and to try to share some of the positive energy you bring within my own circle of people, because none of us really knows what the people around us are going through at any given moment. Wishing you the absolute best outcome -- we're all pulling for you.
Still praying for you all Know how hard the wait can be.
As someone going through initial tests after a first seizure, thank you for sharing your experiences so far. I wish you the very best of news in your journey ahead.
Thank you so much for your kindness ❤️ This is way too much. You're incredibly selfless. I'm so so sorry to hear that you're going through that right now. I will be here for you if you have any questions or need someone to talk to. I will be saying a wee prayer for you today and sending you all the positive vibes so everything is okay and you get all your good answers soon 😊
Dominic Hill’s Surviving Terminal Cancer film was first aired on World Cancer Day (4 February 2015) and was watched by 400 people affected by a brain tumour at the BFI in London. It was later aired in New York at the Lincoln Centre and watched by over 200 people affected by a brain tumour.
The film argues that the long-term survival of three brain tumour patients who researched and devised their own treatment programmes challenges the orthodox approach to improving cancer treatments.
I’m so sorry , but never lose hope, have faith 💕🙏
Trying my best 😊🙏
I am horrified at the way your health provider is failing you. You have incredible strength and an incredible attitude. I love your idea of a FB group - it seems to me that we have to help ourselves in these crazy times and find strength in numbers and in each other. You have a warrior spirit like no other I’ve seen as a nurse. God be with you Éireann xxx
Sorry to hear about your recent seizure Eireann. Sending best wishes as always. You're handling everything in amazing fashion.
As bleak as the prognosis information feels, medicine has advanced so much in the last 20-30 years already. There is always hope the situation can change and improve for you. I am crossing my fingers and will be following along every video.
Thank you 😊 I'm trying my best to stay as hopeful as possible so thank you for reminding me ❤️
the fact something so horrible can happen to such a sweet soul is infuriating. prayers!
Eireann, The medical system you are living with is absolutely unacceptable. I hope you can move as soon as possible as we are all very concerned about the lack of reliability of the team involved in your care. You are a wonderful, curageous, beautiful person!❤❤❤❤
This is extremely frustrating when doctors do not know how to treat their patients. You are not just a number, you are a person. I am so sorry you are going through this and I will continue to pray for you.
You're worth the world and I hope you and Devon and your dog can travle soon. Hugs from sweden ❤
thank you so so much 😊❤️
People like you were the reason I couldn't study medicine. I really wanted to help people but the system just doesn't work for patients. That's why I chose veterinary medicine with the love of animals. I work in my clinic freely, I accept patients as much as I want, I make strong bonds and I even do medical researches.
I'm so sorry you have to go through this. I hope things go well for you.
I know we're only seeing a portion of your life but you seem so calm and collected particularly after what you've been going through. How could your consultant just disappear without adequate backup in place, it's just shambolic and as for Devon's boss firing him under these circumstances they should truly hang their head in shame. I also don't think you should feel guilty about the Go Fund Me, you have a lot of support here, you are not someone begging for money because you blew it all on a fancy car or something. Let people help and support you because there is absolutely no guilt here ❤ sending you all the love and hugs.
Oh Eireann my heart hurts for you. When people tell me they will call me back that is what I expect to happen. I am so sorry these medical people left you hanging. So stressful for you. Much love and prayers for you. ❤ You are a lovely lovely young woman inside and out.
Still praying for you every night, beautiful lady. Remember, God loves you! 💜
This story should be on the news! Our Healthcare system is beyond a disgrace! Your strength darling is commendable ❤
To have that experience with the surgeon and staff is unforgivable. I HIGHLY recommend that you consider calling the Mayo Clinic in Scottsdale, AZ to discuss with them and to have a 2nd opinion provided. I would go so far as to say anyone who would disrespect your time and disregard the stress caused by not meeting his obligation, should not be trusted. I don’t care where they sent the tumor. I know for a fact that you will be treated appropriately and you will be given accurate information with Mayo. I know you have a lot going on with a move impending and all the rest of it. But this is your life. NOW is the time to be sure. NOW is the time to consult the best people. Don’t wait. Nothing is more important than you living a long, healthy life.
Hi Eireann, everybody is saying the same thing, please just consider that so many of us want to help you. It would be our honor to help in a small way!!!!! Stay strong and may God bless you. We love you.
I saw this quote on Instagram. I hope it is comforting. "Men do not care how nobly they live, but only how long, although it is within the reach of every man to live nobly, but within no man's power to live long." I wish you a long and noble life, Eireann.
Many of us that follow your channel don’t personally know you but can easily sense that you are a kind and honest person. We all wish the best for you.
Hope this helps. Even if it’s just to buy a yummy drink and snack to cheer you up. ❤
Lauren this was too kind ❤️ Thank you so so much. It really is those wee things that make my day these days so I really appreciate you 😊 Too kind of you
Eireann, every cancer has a first case to go into remission. Praying that you will be the first for your type of cancer.🙏🏻
This is so so kind for you to say ❤️ Thank you. I'm hoping and praying I'm one of the first so we can all live long happy lives 🙏
Beauty, Grace and Courage. Thank you for sharing your story
Thank you so much for such kind words ❤️
@@diaryofeireann I had a gestational trophoblast. By the time I was diagnosed I had tumors in my brain and lungs. it was a saga and my heart goes out to everyone who is "invaded". For some reason the long term side effect was a bizarre sense of humor? Be Charmed, Hon
I feel gutted listening to how the doctors and other staff in this clinic are treating the patients. This is really unacceptable to leave you in this situation without medications and keep saying that someone will call you and it's not happening. I feel sorry for you, I can only imagine how hard and stressful it must be. I work in the Oncology Center, and I can't imagine something like that happening. You are very strong! All the best.
Thinking of you 🙏
Thank you so much for your kindness ❤️ Really not needed but appreciated 😊
You are the sweetest thing! I get teary-eyed when I see how gracious you are to others during your battle against the tumor. I am praying for you. ❤
How on earth can you be so incredibly lovely and beautiful and brighten my day while I'm listening to you talk about such a devastating diagnosis. You truly are a ray of sunshine! Big hugs for your next appointment, I hope they can find a better medication for you. It would be nice if you had one less thing to stress over.
Thank you for sharing your experiences, I've been having seizures since September, I still don't have a diagnosis, but your videos have helped me tonight and I am grateful for you! Wish you love!
Thanks for the update, Éireann. It’s really lovely to come on here and get to see how your doing. I hope and pray for your ease, and your peace of mind. And that any new information which will be helpful to you, finds you. I’m sure it will
💗
You're so incredibly kind ❤️ Thank you so so much for being so lovely 😊 I really appreciate you!
Seeing you face this adversity is inspiring, and I hope that you keep making your videos. I don't want to be insensitive, but I'm a biochemist by training and wanted to add something of a technical nature. V600E indicates that the valine (V) residue located at position 600 in the BRAF protein has mutated to glutamate (E). The glutamate mimics phosphorylation of BRAF's activation site, which means that the cell can't turn the BRAF off after it has been made. The DNA triplets for valine are G-T-(G/A/T/C), while the DNA triplets for glutamate are G-A-(G/A). So your BRAF mutation was the result of a thymine-to-adenine substitution in your DNA. This seems like it would be a dominant mutation, so your other copy of BRAF is probably just fine. I never studied cancer, but it seems like they could try selectively silencing the bad copy (like through RNA interference), while letting the good copy express normally. If that were possible, it would probably solve your problem.
You so courageously share what you're going through Eireann. Thank you. It's motivational and inspirational to see your courage in action.
I'm just 26 when I got Chiari Malformation(a major brain disease). I undergone already twice major brain surgeries(Totally risked my life to it). 3 yrs now, I am still struggling from all the surgical traumatic post(lifetime) complications but here I am still trying to live a normal life(I also made documentations of it through here youtube)💪,we can do it Eirean!
My hugs and Prayers fr. Philippines
Keep in mind that with AI and some other advances in cancer tx you could end up living a long life. You are a warrior and are in my prayers often. You emit strength my friend.
This sounds like a focal aware seizure. I also get these due to low grade glioma. I'm so sorry, I know this is very scary.
Praying for you god blessed you
As a father of two young girls, in the previous video, hearing you talk about your dad wanting to be there for you had me tearing up instantly.
I can't imagine what it would have to be like. Doing all that is in your power and still feel helpless.
Please tell your dad that he is hero no matter what. The hero every other dad aspires to be.
And please know that you are forever his treasure.
I would also like to thank you for sharing your story. And wish you all the time future can give you.
I hope alongside all the tears this illness brings upon you, you can find also the joy that fills a heart with the warmth of a thousand loving fathers. (and mothers to of course ;-)
Keep up the fight. (and the video's 😊)
sending you loving kindness
Thank you so much for your kindness ❤️ Really not needed but appreciated 😊
I am so sorry your doctors have been so callous in returning calls. You should not have to chase them. I hope you get better care with your new Neurologist. All the best to you. And your BF former boss should be ashamed of himself.
As a doctor myself and current living in Brazil I can't even imagine such a bad medicine that's being practice in canada.. I mean, diagnosis sometimes are difficul and challenging but leaving you without medication, not even leaving someone on hold if you need any assistance and leaving the country like this is crazy!
Thank you for keeping us updated - your first video about your brain tumour popped up in my recommended videos a while ago and I've been following your journey since. I'm truly, so sorry you're going through this, but I'm in such admiration for how you are handling things. You are such a light and are building a strong community for people suffering like yourself, wanting to connect other people going through this is a wonderful idea. I can only imagine how isolating things can feel at times so that sense of understanding and support will really help other people. I'm sending all the love and hope in the world for you, you deserve every bit of happiness in the world. Also, please reconsider the GoFundMe situation, I understand why you feel guilty, but your community would really love to contribute to making your life a little easier right now
You are indeed a beautiful young woman. (I am 72, so to me you are young!). I admire your wonderful, positive attitude in facing your medical issues. Often you have mentioned that so many medical personnel do not return your calls-especially when they actually say they will call you back. I’d keep track of their names and write a sincere letter telling them what you are facing medically and that this person has let you down. Perhaps these people will do better with their next patients- even maybe you! I appreciate your posts to let us know how you are doing
Thanks
Thank you so much ❤️
Hello Eireann - I can't imagine how frustrating it must be when doctors and nurses don't call back when this is SO important. I'm wishing you all the luck in the world and good thoughts to you and your loved ones. We're here with you!
It is exhausting having to advocate and fight but that is what you have to do.
I have stood in your shoes with my dad, what I would say is with the treatment you have had I would check out elsewhere. We didn’t and we endured the worst, I am offering you our hindsight. Get out and get out quick.
Ask your dad and family to reach out to all neurology consultants across the world who have experience in your tumour and see what they can share, know and examples of care, treatment and success.
Trials is a key. The Royal Marsden in the UK could be useful to reach out to Liam Christopher Welsh.
But if in your shoes I would be changing my care ❤
I know you've said you like your surgeon, but honestly he is dropping the ball on your health. You need to get a doctor that is more responsive. I can't believe he left you hanging with the tablets.
Dr. Athur Malik of Rhode Island hospital has a trial for a vaccination on glioblastoma. There was an article in the Boston Glove that showed hope. I’m so sorry you are going through this. I’ll continue to keep you on my prayers. 🙏🏻🙏🏻☘️
a glioblastoma is a grade 4 glioma. Hers is grade 2, so it is not a glioblastoma.
TIP for SEIZURES-i put in capital letters hoping to get your attention😅
I usually have a few seconds warning when a seizure starts. i started keeping alcohol prep pads with me in a little “medicine bag” or in a pocket at all times. when i start to feel pad i open and smell the alcohol and it helps redirect me sometime aborting seizure.
i get phantom smells (smell things that arent there like cigar , something burning, chemicals) and i crack open an alcohol pad for that too. my new seizure med is working great after several failed ones.
Never give up
thank you so so much 😊❤️
I agree with others on the gofundme. We all want to help you. I think it’s so unreal that Devin’s boss let him go and took the vehicle. What boss doesn’t let someone take off for their partners brain surgery? Wow I’m so sorry that happened but god is in control and solutions have been coming your way. Take care and know we are all here for you. 💕
Thanks!
Thank you so much ❤️
I hope that with the life that you have left that it's the best damn life you can have. It's just not fair and I'm so sorry. I just learned of the passing of a friend from cancer, and I am devistated, and this just makes me so angry. She didn't deserve that, and you don't deserve this. I wish you much peace. May you be able to still find the joy in the sunrises and sunsets, and may you feel the love that we all have for you, and may you be able to breath calming breaths and may you know peace.
Thank you for the update... been thinking about you!
Thank you so so much ❤️
Wow, I can't believe that health-care workers would behave this way. I am a teacher and I always make sure that my students get eveeything they need, can't imagine behaving this way to a person that has gone through so much already. Wtf!
Also the coldness of some people, can't believe your partner was let go from his job when you needed help the most, and to do that! Damn.
But I am hoping the best for you! I really hope that there are better cures for all forms of cancer and tumors in the very near future!
Sending you lots of ❤love
Thank you so so much ❤️ You're an angel honestly. Not needed but greatly appreciated 😊