🚨PLEASE READ 🚨 There is now some disturbed person with a fake youtube account impersonating me. They're trying to add people on telegram and say I'm doing a giveaway. PLEASE do not fall for this. What a horrible, horrible person to do this at this time. Their TH-cam name is "@Tele.gram.me-- Offical_Eireann" PLEASE REPORT THEM!
That's disgusting! I will Never understand people who do things like this. They are definitely disturbed. What worries me about this is that if they get enough followers I wouldn't put it past them to try to do a go fund me in your name.
Please consider to neither dye your hair nor do your nails again. All these chemicals are no good for your precious body. Try to avoid sugar and gluten since doing so will promote healing of your body. Sending much, much love and light to you, girl!❤🌞 Try to listen to some healing frequency music and subliminal health affirmations on TH-cam!
please note, that phishing account is everywhere on popular youtube channels, it’s a bot, not a real human, and it just means your channel is getting more popular. please take it as a positive element of your popular content. (but i DO report them all!) … and sending you positive energy and hope for great results from Montreal ❤🙏🏻
I'm a cancer researcher, and let me tell you, your case is every laboratory personnel's worst nightmare. We want to give you the correct diagnosis as soon as possible, but that also means we will not give you half/potentially wrong diagnoses... and as for the timing, usually labs prefer to run tests sequentially instead of concurrently, due to the pricing. So we start with the easy, cheap tests that find most of the diagnoses, and then move on to harder and more expensive methods until we find an answer. The test I am most familiar with takes anywhere between 24-48 hours to run and then another 12 hours to properly analyze the data. So in a bad scenario, lets say the test is set up on a thursday, it could be the monday that the data is analyzed.... and if the answer does not come from that test, we have to run another one. This is not to make you feel less bad about the time it is taking (because I fully agree, this is taking long) but just to help you understand what is going on behind the scenes. I imagine the scientist assigned your case is having sleepless nights over it. And for the question why not put your most advanced test first? Well..... so the test I mentioned previously is somewhere in the middle of extreme testing and can cost 10 grand per test.... 😬 hospitals and labs make choices based on their resources (which is probably also why it was send to London, they have more resources) and then you end up with scenarios like this. The doctor not understanding the report is also not surprising to me, they are experienced in entirely different lingo than the molecular jargon. Keep on fighting! I assure you the scientists and doctors will too ❤
Tests are not run in batches in histology to my knowledge! It isnt run through a machine! This requires sectioning and preparation of tissue and microscopy doesn't it..surely the delays are due to the specialised examination involved of what seems to be something rather atypical here and likely involving more than one histopsthologist and transfer between hospitals.
No. Wrong on so many levels!! WHO has NO authority over local medical practices country by country!! Secondly there are no laws about making diagnoses! Thirdly each specialty anywhere might follow particular GUIDELINES about particular areas of medicine in best practices but they are guidelines on standards of care. IF a hospital has a standard of practice for reporting on results in a lab that is one thing but you are too presumptive about how medicine works .
And apparently the WHO does have some bearing on the dx and classification Since the 2016 WHO classification of the central nervous system tumors [36] and advances in immunohistochemistry, glioblastomas are now defined by their Isocitrate dehydrogenase (IDH) status dividing this entity into glioblastoma IDH-mutant or IDH-wild type.
My Wife had a Glioblastoma removed in 2006 and she is still here with me doing great. Her outlook was 20% for 5 years. You need to surround yourself with positive people and positive thoughts. Keep Moving forward and keep the faith in your own strength.
@chadsmith946 May you and your wife be blessed and enjoy your [long] lives together and may He [Abba Father {God}] protect you and guide you continually. So glad your wife had a good outcome on a devastating illness.
Just to help inform: Diagnosis of gliomas has become incredibly complex. They have been subdivided ad nauseum based on molecular markers and genetic analysis, which makes categorizing the tumors both more specific and more labor intensive. Just in 2021 (I know, just) they updated the list of tumors introduced a lot of different subtypes of glioma. So, some categories were changed, some tumor types moved based on new information, and new tumor types were created. So, to help give you some explanation as to why it takes so long, it is because they have to run a lot of tests on your pathology. This is especially necessary because it seems so rare. Your neurosurgeon not having any idea what the pathologists are saying makes some sense, because again many of these tumor markers may be new and you have to piece together a lot of different components. Surgeons are great at their jobs, but their job isn't necessarily to know every tumor type under the sun because they are primarily focused on the surgical treatment of tumors. Knowing it is a glioma vs a meningioma is more important for surgical treatment as far as they are concerned, so sometimes surgeons may be a bit rusty on the details. That does not discount their expertise or experience, and often when we are confronted with something more unusual we go and do research. The bread and butter cases are what surgeons are familiar with, and sometimes we need refreshing with the rarer cases.
Thanks for shedding light on how complex this type of situation can be. Us regular people have no idea just how complex medicine, diseases and the body can be. It is amazing humans have figured out all they have and yet it still gets even more complex. We expect doctors to be the "experts" and therefore have all the answers immediately. Like you explained all doctors are the experts, but there is always more to know as more is discovered.
Hang in there! We admire your strength and determination. The comments written by Brandonkaye are very enlightening and hopefully reassuring. Waiting is just so difficult.
@brandonkaye5227 is right. Surgeons are specialists in their field but pathology is an entirely different field that requires an entirely different set of knowledge and that scope of information changes and evolves rapidly unlike. My father had a hemangiopericytoma removed from his leg and it took weeks to get the tumor identified. The wait is frustrating but worth it because without knowing the specific tumor type, it’s a challenge to put together the most appropriate treatment plan if you don’t really know what you’re dealing with. Keep that lovely smile going. ❤
Thank you @brandonkaye5227 especially for putting up a bit of protection from those making negative uneducated remarks that obviously are not needed, and also heartbreaking to hear about.
Another thing to add to this as well is that certain genetic tests or further testing they may be doing is usually done on a schedule - ie. DNA analysis for a certain mutation may only be done once a week or once a month which SUCKS when you're the patient waiting for results but financially techs/labs can't just run 1 sample on a run, they usually build up a few samples to be able to do their run. It costs time, reagents, and resources to do it for every single specimen so that could also be why it's delayed. (we deal with this a lot with some samples we receive in our lab - certain tests are only run once a month or even sent to New York to be run because we don't have the specific machine needed to run certain detailed analyses).
The Pleomorphic xanthoastrocytoma is rare, but typically benign. Also the survival rate is over 90%...grade 2 makes it even better. I think you're going to be ok. Sending lots of love and & prayers.
I read that grade 2 of your brain tumor is considered benign and slow growing, while grade 3 is considered cancerous and malignant so that means good news for you that your tumor is grade 2 :)
I read that grade 2 of your brain tumor is considered benign and slow growing, while grade 3 is considered cancerous and malignant so that means good news for you that your tumor is grade 2 :)
I'm 58. Ovarian cancer stage 4. I've no idea what my survival is. I'm to scared to look. It's not likely to be great. I can tell you at 58 I'm not happy about that either and I cry when I think about it. You are not alone in this. It's hard.
I’m sorry you have to wait so long for your diagnosis. I’m a brain cancer researcher (Glioblastoma) and can only imagine the stress this is causing you. Sending good thoughts and hope you still manage to have a happy Christmas 🎄and praying for the best possible diagnosis for you!
Thank you so much :) Is there any chance you have an idea to why it's taking so long? No worries if not! I also hope you have a lovely Christmas I really appreciate your kind comment ❤️
@@diaryofeireann Dear Éireann. I know that patology is a very complicated prosess with many steps, analyses and manual labor. Sometimes they need to be several people to control the same procedure, and even send the material to another country for a spesialist opinion. This is to be 100% sure they are giving you the correct diagnosis. This is very unfortunate for you, but I'm sure it's to give you a verified and correct diagnosis. Wishing you the best news, and a merry christmas. Lots of love from Marie, Norway.
@@diaryofeireann I agree with Marieh’s comment on that, Unfortunately brain cancer is extremely complex, and the process of differentiating one type from another depends on so many factors, that in some cases it might not be distinct enough to know and further study on the sample is needed. Without expressing any type of medical opinion, as I’m a researcher and not a doctor, knowing that the diagnosis is not distinct - my initial thought is that it *might* be a good thing, as they seem to not be able to immediately determine the type as one of the aggressive types. Do continue to advocate for yourself and maybe actively try to get answers, so your mental health could improve and so you can start getting treatment as soon as possible. Hope my comment was of help somehow. Sending much love and positive energy, keep your head up!❤️
@@jeremywright9511 the brain cancer field is widely studied and there are many incredible studies suggesting different strategies for targeting it. For some cancer types there are sufficient treatment methods available, and for others not yet. In terms of Glioblastoma, which is the more advanced kind, there is a relatively new treatment method called Optune that helps prolong patients lives, which is a great breakthrough in this field. The search for a cure though is always ongoing but seeing all the new papers constantly being published I’m remaining positive despite the complexity of this disease.
Eireann As someone old enough to be your mum, I'm so proud of your strength and courage. Every day is one day closer to feeling yourself again. Healing physically and emotionally takes time. I found making a win jar helpful. Take a glass jar and write down your daily wins, and pop them in that jar. Even as simple as getting dressed, going for a walk, whatever it is. Put it in a daily view so when you're feeling sad or challenged, glance at that win jar and feel accomplished for how far you've come. Much luv from a grandma in Massachusetts.
Anne, thank you so so much for such a lovely comment. This literally made me feel so much better today. I absolutely love that idea so thank you again ❤️
@diaryofeireann Hello sweetie, you've been on my heart in my busy day. Just felt the need to pop in and tell you i was thinking of you. Sending hugs and prayers. 🙏❤️
Eireann, our 16-year-old nephew was diagnosed with a non-operable brain tumor - ganglioma rings a bell,but I could be wrong on that - over 10 years ago. He couldn't have it removed due to its location so had chemo and radiation. I can tell you he is still living his life fully and healthily to the max all these years later, so don't let the 5-year timeline scare you. Those are general statistics and mean nothing to your individual case. Blessings to you and your family. You've got this xxx
Thank you so much for sharing this! I really hope she reads this, you are absolutely correct, people are not '80 percent...' so it doesn't tell that whole story at all. One of my closest friends at 28 got diagnosed with a very rare kind of cancer of the optic nerve. It had an absolutely awful prognosis and was a very aggressive type typically. He had only developed it in one eye but the oncologist told him it was almost always bilateral and so he'd almost certainly lose his sight completely once the other eye became affected. His 5 year survival rate was put at 10 percent. That was 26 years ago last month. It never did appear in the other eye and he's been N.E.D for 2 decades now. He got married and had a beautiful daughter I'm godfather to and yeah, I'm a man but I'm tearing up just typing this Point is, hopefully her prognosis will end up good but even if it's not there's always hope. I'm not at all religious but I really believe that. Anyway I've rambled on enough 😄
@@willsmith39 That's a wonderful story, Will! I'm so happy for you and your friend and godchild! I'm not particularly religious either, but just hearing about how well other people have fared in similar situations has to be an encouragement to sweet Eireann and anyone else reading be it mentally, physically or spiritually :) Happy holidays to you and a blessed, healthy New Year xxx
I am a Biomedical scientist in the UK in London. Some tests can take absolutely weeks to process due to logistical challenges, laboratory problems, supply issues, etc. even someone having to manually check and report the results before even reporting back. To add to this, histological processes can take a lot of time, especially if calcification has occured, as obtaining slides to look at under the microscope requires softening and this alone takes time. If some are inconclusive due to poor processing etc. it can take a long time due to resectioning. Sometimes it may take second and third opinions from multiple pathologists who are the absolute top experts in the field. Believe me, the pressure of getting these types of results out there can be highly challenging and frustrating when we know patients are waiting for literal life changing information. This is a reminder of why I do what I do as i usually dont know patient outcomes. Im sorry you have to wait, but waiting also means getting it right💕 i wish you all the luck and light in the world and get the support and care you need.
@@diaryofeireann I hope you get better your so brave you’ve got your family to help you through this and they will hold your hand and be with you every step of the way if you wanna talk to me as well I can help because I’m really good at cheering people up if they would like to talk to me if they are scared worried or upset and I can help you to feel better again
Its tough being patient and maybe feels that no one can have what we might have. But I can see why labs are overwhelmed. It seems the world is so unbelievably populated that all labs take longer than just years ago. Coming from a huge mormon family in USA (so, I had 2 ) Just 2 kids in hopes the world's medical teams, labs, research etc can catch up! Your persistence helped them catch this early on. You didnt wait for labs to move fwrd so you are already winning!
You’re doing awesome. Just remember. Don’t compare your recovery to anyone else’s. I’ve had 40+ brain surgeries. And they definitely knock the wind out of you. You’re doing great!
I'm a retired Speech Language Pathologist= I used to see many patients with many kinds of brain tumors. Hooray for you and how far you've come so far. My recently retired Guide Dog and I are rooting for you every day. Thanks Heaps for sharing your story.
My father was diagnosed with glioblastoma in september and we've been fighting with him since then. I really hope the tumor you have is less aggressive. Thank you for sharing your story. It must be very hard, not knowing. I wish you the best.
I’m so so sorry you’re all going through that right now. Thank you for your kind words. I will definitely be saying prayers for you, your father and your whole family tonight ❤️
Hey Éireann! I am a surgery nurse in the United States and I've scrubbed and circulated several craniotomies for tumors in my career. It's not abnormal for pathology to take several weeks to come back with a definitive diagnosis, especially if the tumor is particularly abnormal. Your strength and positivity during this time of grief and uncertainty is truly inspirational.
Have a nice Xmas your self! Don't be overly alarmed about that 80% chance of surviving 5 years. I got diagnosed 8 years ago with a sickness that has three stages, and if it gets to the third stage, you only have a 50% chance of living for 5 years. Mine was in late second stage when it was diagnosed, almost at third stage, but my disease is in remission with proper medication and I am feeling quite healthy, as much as a 57 year old can feel. You are young and have a great chance of beating your cancer even if it is not the most benign kind. Stay positive!
🦋 What I find so remarkable about you is that even while you are dealing with the agony of not knowing fully what you are dealing with yourself, you have the sensitivity and empathy to think of the feelings of those individuals who have diagnosed brain tumours. Your family must be so proud of you. 🌹
1- I am SO sorry people are saying this is a scam. You are clearly the most beautiful soul. I will be praying for you. I am in a waiting game too, but nothing like you. You are so sweet, your beautiful inside and out, and your inner beauty shines through. I have been waiting to hear from you, and I am so thankful for the update! Stay positive....Hugs!!!!!
Ok so… I could’nt tell you last last time I prayed but I just prayed for you Eireann. My best friend had brain surgery on his pituitary gland. He had a tumor as well and it was the toughest time of his life. He has since then, completely recovered, living a wonderful life. I really hope my prayers and the prayers of others for you come true. I hope these videos help others going through the toughest time of their lives. Merry Christmas and God bless!
My dad was diagnosed with glioblastoma 5 years ago. The doctors already knew it was a glioblastoma before the operation, just from the MRI images. So maybe it's a good sign that they didn't know straight away in your case? Even if the wait is agonizing.... Everything is still possible, nothing is decided! I wish you all the best and lots of strength! 💜
Both my parents died of GBM, Dad in 1979 and Mom in 2003. It's a brutal, terminal cancer. I took care of both of them at home and they both had pretty good deaths.
@@tiportangeles2696 both your parents? thats so rough and what are the chances. I hope all is well with you! You were a great son/daughter for helping them out to have peaceful deaths.
@@tiportangeles2696I'm genuinely very sorry for your loss - that's very tough to take But do you really think in the context of this video it's all that helpful/ constructive for her to read things like this right now while she's waiting? She's only 26 and obviously underneath all the positivity she'll be scared sh#tless I'm sure. Lots of other people seem to be sharing similar awful outcome stories so I'm not picking on you, just wonder if it's the right thing to be doing.
@@tiportangeles2696I'm so sorry you had to go through that. Twice! I admire you for caring for both parents at home until the end. My father had to go into a nursing home a few weeks ago. He's a big, heavy man, it was no longer possible for us to help him get up or support him when he stumbled.... Lately he has been sleeping most of the time, so we assume the end is near. But that's okay, we've made our peace and so has he.
6:50. I started crying. Guess I need to share my story, which I will do in upcoming days. Had no idea I was holding this emotion about my past year, but your video and courageous sharing is definitely letting me know that I can be of benefit for others, in the way you're being of benefit for me. Thank you. Sending the very best vibes that you get information soon... not knowing is hardest. And sending even more vibes that the news is good news.
You are mature and wise beyond your years... To be dealing with this and still be concerned for other people's feelings and how this video will affect them makes you a very special soul. My thoughts and prayers are with you 💜
I perfectly understand , I have gone through 6 brain surgeries and recovery is always hard with the neurological sequels that can last for months or years or even never go away. I hope the results of your tumor are good and that you have a non cancerous grade 1 o 2
You are doing amazing!! My father was diagnosed at age 52 with a glioblastoma multiforme grade 4. He had 6 weeks of radiation after he had debulking surgery. He lived 21 months after diagnosis. This was in 1996, things have really improved in treatment success. I am sure your tumor will be the best case scenario. You have done everything in your power to advocate for yourself, you are doing well.
I've read your comment through 3 times to see if I'm missing something. You come across as a genuine person, not some horrible troll so I'm very sorry to hear about your dad - that's way too young. BUT, honestly - what is the point of your comment. Despite her positivity she's obviously incredibly anxious as she awaits her final results so how is telling her - a 26 year old young woman - about someone who lived for 21 months from diagnosis? In what world do you think that information is helpful to her ? I don't get it, and you're not the only one sharing these types of stories.
Please, keep us updated, on which kind of tumor it is. I feel for you. I have a brain tumor myself. But it is “only” a meningioma, just the place is bad, at the spine near the nerve canal. As long as it is not growing too quickly, it could stay where it is. I got cyber knife treatment, and we hope, this will stop the growth. If I have to go to surgery, I will take your journey as encouragement. All the best for you and your family!
I know you will be married with four children and I promise you will be fine. I was told I had a brain tumor they told me that very minute it was benign. I knew I would be fine and I know you will be as well. I am praying overtime just for you 🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🍀🍀🍀🍀🍀🍀🍀🍀🍀🍀
So sorry you are going through this. The waiting is terrible. Survival rates are usually based on studies that were done 5 or more years ago, which means they are even higher now with more research and medical advancements. I was diagnosed with a condition called MGUS this year, which is a premalignant blood condition. I now have to be checked every 3 months to see if it's progressing or not (I'm 35). I totally feel your pain and wish you all the absolute best!!
From 10,000 km away from you sending you all my love and prayers , I’m sure you know being negative doesn’t help , so get up start doing your best as always, keep praying and get close to god he knows the best for you, stay strong ❤
Good Eve'n Eireann ..... How "over it" you must be feeling about hearing "still more research" and "we just want to be thorough". Having only recently been told they've found my 7.8mm in center of crown of my head, I know I'm just running the gambit of all those possibilities, right now. Here's how you're helping me immensely. I'm thanking God that I don't feel so isolated anymore. I understand I'm not unique. It's out there and until finding your vlog, I felt I was trudging through this experience and nobody knows anything about it. Then I find you!!!!. A young lass that shouldn't have to be dealing with this. But you've been dealing with a lot of my own thoughts and I truly am thankful. I don't feel so all alone anymore either. Just want you to know that other than my concern now, for you and your journey thus far, I'm still sending good vibes and mucho prayers for you. As far as the Holiday Season and having to deal with this........ I was rushed to ER on Dec 23, 2014 with all pointing to an infection of prosthetic and stainless poles, in my left leg. My leg was removed December 24th, at 1:30 in the morning. When I finally woke up on Christmas day, I had no pain anymore and actually felt good about beating 82% blood poison (2 different germs). My 4 kids came through to visit.......and the consensus was.......... I was alive and oh so very thankful to be alive!. It was exactly the way that Holiday Season was to be, that year. I know you must be thinking that "timing" for you is the worst. Stay as strong as you already are and know that there's a reason for everything. And this is just Eireann's plan for 2023. That word will come soon...... My own situation will work it's way out too. I thank you for your patience and strength during this time. You're amazing gal........Devon's a fortunate lad! Best wishes for a Christmas filled with Peace, Love and (continued) Prayers.
Bless your sweet heart. I had ovarian cancer in 2020 and I completely understand how you’re feeling during this waiting stage. It was one of the hardest parts! You’re strong and you’ll handle whatever comes your way…we can do hard things! I’m sending you all the positive vibes that everything turns out the best for you!! 🤞❤️😘
Thank you so much for sharing that with me ❤️ I'm hoping and praying that you're doing amazing right now and I really appreciate having someone that understands the waiting process. Thank you so much ❤️
You hit the nail...on the head....A really nice quote about patience is by Joyce Meyer, "Patience is not the ability to wait, but the ability to keep a good attitude while waiting." Keep going. Lovely nails and can't wait for you to enjoy the small things like your hair too which feels absolutely amazing to be doing those tasks for some normalcy!
I have been waiting for your update and I wish it was better news. You never know, you could be an outlier. I recently had a friend who passed from Glioblastoma, they did't expect her to make 3 months but she lasted 5 years! Your positivity is wonderful to see and I sincerely wish you a full and active life.. I hope you'll be making encouraging videos 50 years from now! Hang in there and know you touch a lot of people!
There are no words that anyone can say to make you feel better, it’s tough and it’s bloody horrible to have to wait so long. My fingers and toes crossed that you find out before Xmas . Your a tough cookie, but also let off steam, no one will judge you. It’s a lot to take in… will keep checking in for any updates.. take care off yourself…
I knew from the first video about your tumor that you would be fine. You are an angel on this earth. And you are also the only person I have ever seen who uses "wee" unironically. Remember: It's your channel. You can cry if you want to.
All you can do is live in the moment. Whatever diagnosis they will give you, you seem like the kind of person that has the strength to find your way with it eventually, however hard it will be. Sending you love from the Netherlands.
Love your videos and My wife and I are both praying for you. After my fifth heart surgery, I took up the motto of "I Day At A Time, I Step At A Time" It took me forever to learn to slow down. What I did not expect was 4 more heart surgeries. Now that we have finally figured out the problem, I have been much better. Stick in there, Adjust and "Take One Step At A Time, One Day At A Time" Again, I will pray for you and hope you can post more videos.
Thank you so much for your honesty about your situation. Being positive doesn’t mean you can’t share the truth about how you are coping. Continuing to pray for you from Tennessee,USA❤️🙏❤️
I too was recently diagnosed with cancer and for me I didn’t realize stress can cause unwarranted back pain. If you find your self in a situation where you’re not in a good place. Practice doing breathing exercises. I found it help me calm down. Keep positive you have the right mindset! It is a u fortunately an emotional rollercoaster. I see you are strong and I am praying for u. From Canada.
You have every right to cry; don't ever feel sorry for that! Thank you so much for sharing your story, and I'm praying for you. I just know that everything is going to be OK. Have a merry Christmas!
Hi Éireann, so sorry you're going through this, I'm also 26 and we never even contemplate things like this can just suddenly happen to us. I can only imagine the anxiety and pain the whole uncertainty and delay with the diagnosis is causing on top of your body physically trying to recover. Praying for as good news as possible for you sooner rather than later but keep that positivity and bravery going and you'll nail it no matter what. x
I know cancer is invisible outwardly but you look amazing. You have a great spirit and are definitely an inspiration. I hope you heal as quick as possible.
Hello Éireann! I can understand the conflictual feelings you have right know, as you are waiting for the correct diagnostic from the doctors! It is hard to live with the uncertainty of the situation and with different opinions of your medical team! Especially in the holiday season! If you feel your team is less experienced with brain tumors, you can have other consultations with doctors that have more experience with it. I have decided to change doctors when I felt my neurosurgeon was over his head with my case as I have a brain tumor and had to have an awake surgery 3 years ago with an other doctor than him. I was diagnosed in 2017 at 23, and right know, I'm 29 and finishing my second bachelor degree this year. Also, I ran my first marathon in September! Even when we have a difficult diagnosis, we can thrive. I'm not implying you should make a change, but it is an option. Don't stop advocating for your health, you deserve the best treatment!
Thank you for posting this update! I sincerely hope all turns out well for you; you certainly look healthy and beautiful! I know it would be hard to wait for news like you're waiting for, but keeping yourself busy with happier things will make the time go by more smoothly. Many wishes for a happy and joyful holiday, as best you can!
You are one strong Lady. My dear friend had her brain tumour op yesterday and I only wish she could have watched your videos before her surgery. Bless you for the support you are giving so many people in the same position. Love and prayers to you. Xxx
Hello! I had a craniotomy in October to remove a brain tumor. I have metastatic breast cancer so my tumor was the progression/spread of that. I just wanted to say that it is a tough thing to go through and some days it is hard to stay positive and that is ok. All of those feelings are valid. I hope you get some answers soon and that you enjoy a lovely relaxing holiday with your dad! Sending good vibes and strength your way! ❤
You are a strong young lady. Trust in Jesus as you walk through this storm in your life. He will carry you through it. Praying for a complete recovery ❤️
You are handling this so beautifully, I don’t even know you and yet I’m so proud. What I will say working in hospice and long term care…Odds are just odds! I’ve seen many people surpass their 5, 10 and even 15 year mark with cancer or organ transplants. Numbers are helpful, but NEVER something to focus your entire outlook upon. ❤️
You’re doing brilliantly. I’m still having to be patient after surgery in 2020 (bladder cancer) and I’m still getting used to training my body to the changes. Some days are great but some days I can have set backs mentally. Time really is a healer. ❤
Hello- I’m a cancer survivor diagnosed at 20 and I know waiting for what your future might hold and what the game plan will be is the worst. It’s very gut wrenching and anxiety filling. I wanted to share a story close to my family that might give you some hope My Nana’s best friends daughter was diagnosed with a brain tumor at 19. I don’t know the kind of tumor, I wish I did but my Nana has passed so I can’t ask. She was told she’d never have kids, and didn’t have long. Surgery, and treatment went exponentially well. She lives on another 20+ years, got married, had her children, and by the time it came back she was in her 40’s and her kids were grown. The doctors couldn’t believe it. Your journey is what you make it, and your hope plus a strong will to survive can keep you going longer than expect❤️ hang in there. Your story is definitely being heard. I pray for the best outcome of the diagnosis. 🙏
Bless your heart… I think you are doing great. Today was my 1 month university of surgery for melanoma of my left eye. So far, no sign of spreading but this has a long way to go. I’ll be praying for your positive diagnosis and a long and fruitful life. Merry Christmas 🌲
I'm so sorry you're going through this. I am sending you lots of love and strength. I hope you hear good news from your doctor before Christmas. Look after yourself. Hugs! ❤️ Merry Christmas! 🫶🏻🎄🎅🏼☃️🩷
Shame on those saying this is a scam! They should be ashamed of themselves! Sending you all positive energy & love from Australia. You’re a beautiful woman inside & out. Merry Christmas darling ❤ 🎄
Hang in there. You’re such a beautiful person inside and out. Thanks for the updates, thinking about you and praying happy tears are coming. Merry Christmas!
I hope you don't have to wait much longer but it's a relief to know they're doing their homework. I wish you peace and happiness over Christmas. Hugs from Ontario.
Sending you peace and positive, positive thoughts! And also, for what it's worth, I know how scary doing your own research can be. Numbers can be overwhelming, but those are all "big number statistics", describing trends for large groups of people. You're an individual with an incredibly positive, strong disposition, and those numbers may not be appropriate to describe you at all. I'll keep looking forward to your updates, there are already so many people rooting for you! Sending you the best!
Thank you so much for such kind words :) Hoping and praying that they're 100% wrong lol or that I'm misunderstanding them. You're definitely right and I think I'll stop checking them. Thank you so much again ❤️
London has one of the best hospitals in Ontario, I hope you get some better news before Christmas. I’ve never seen someone so positive and bright during a time like this during their life. My Mom had cancer and I know she found a lot of strength in us that were around her, supporting her, I hope you’re leaning on Devin and your Da during this time and soaking up this time together 🤍 sending you the best vibes
Eireann you're doing a wonderful job dealing with the stresses of all of this, it's admirable. Sending warm best wishes your way. I hope you make a full recovery and know that everyone who has subbed to your channel is behind you.
Éireann you are a very strong woman! Keep your positive mentality as you go through this, it helps you out so much more than you could imagine! You are already doing so much better than the doctors originally said you may experience after surgery with being able to talk. I went through this 6 years ago myself and was told almost everything you were to the degree of what I’d experience and everything. Thankfully I am healthy now but you seem to show all of the same signs of progress I was showing at that stage if not better. Keep your head up high and you can get through it! I’m rooting for you
God bless you honey! You got this! Hang in there. I have a friend with a glioblastoma and she is a fighter. You are right, it is a tough tumor to fight. I am praying for you both!❤🙏🏻
So good to see you and get an update. Stay positive and don't let rumors of how long you have to live and or percentages get you down, as an individual those literally mean nothing especially when they are uncertain of specific diagnosis. You are making wonderful progress, just take it a day at a time. You are in our prayers. xoxoxoxoxoxo
Yes I agree, my dad has had kidney failure and back in 2012 they told him he won’t live more than 5 years He’s still alive today and doing great (for his age-85)!
You will get through it! Don't be discouraged by the long waiting time - it might just be that the situation is going to resolve itself - always be hopeful and remember: Each day is a new beginning :) I pray that you will receive a massive blessing! Wishing you all the best
Ugh this reminds me so much of the process of figuring out what my fiancé's tumor was. It felt like we kept getting dates on when we would get the diagnosis, and when the day would come, it would be pushed off to another date. His is unfortunately Glioblastoma at 33 😢 I'm so sorry you are going through this. It's so scary.
You are such a sweetie! The first time I had metastisized liver tumors I had to fight with my insurance company every day for three months and it was through the holiday season. So I know how hard it is to stay positive. Be thankful your da is able to be there with you and have a wonderful Holiday Season!
❤ you have a good outlook👍 You have recovered so well. My sis in law had stage 4 lung cancer. Her scans are clear now. I really feel you are in that 80 percent. Hugs and best wishes! 🤗
Eirinn, you're doing so awesome! The hard days are hard and that's totally ok. I'm sorry that this is the road you're on, no one deserves it. We're still waiting for my niece's pathology and she had her craniotomy around the same time as you. They were able to figure out my nephew's grade 1 astrocytoma quickly but it took a while for his glioblastoma pathology to return because it was a "fascinating and unusual" case. You've got a lovely support system. Lean into them. You don't owe anyone a good mood/attitude but you'll probably want to continue trying for positivity when you can for your own benefit and make the most of your good days when you can. You've got this! ❣️
Something that I once read has always helped me when I wanted to be positive, but found myself struggling … and that’s that it’s healthy and real to tell yourself that in this moment, I’m not ok. This is what sadness (or fear or anger) looks like. And it’s ok to be here in this moment. We all love your strength and positivity, but we also know that you need to feel your feels ~ and it’s ok. Hang in there. We are sending loving energy your way ~
Im so sorry your even having to go through this. Crazy how our own bodies can turn on us and do things that hurt us. Really hope you get the best possible outcome. Ive had a similar scare of my own and im still in limbo waiting for my body to do the work and fight it. Thank you for the update n wish you well.
Sending you the biggest hug. What a kind person you are giving consideration to other people. Praying for a positive outcome for you. Have a blessed Christmas. Xx
You are such a strong Girl, with so much positive vibes despite all, wow! If I were your daddy, I'd probably be bursting with pride. Please, don't loose your good mood. I wish you a very peaceful and beautiful Christmas time. May you heal 100% physically and mentally in the coming year! Be blessed!
You are so brave for having to go through this. I'm sorry they are taking so long with the results. I'm wishing and praying for the news to arrive behind Christmas and for it to be good!
You're such a brave, confident and beautiful young women. Sending positive vibes and wish you all the best. It's sad to hear your possible diagnosis, let's stay positive and hope for the better option. Sending hugs 🤗
Thank you for the update, such as it is. You're being very brave to do these videos, and I'm sure they're helpful to many people. I'll continue to pray for you, and hope you say a prayer for all the people who are following you and hoping for the best. Sending Christmas blessings your way!
You are so so brave to share your story. Cancer is horrible at any age , but especially sad when it strikes young healthy people. Still, there is so much hope. New treatments are always around the corner. Keep fighting. Everything is possible 💓You are in my thoughts every day, sending all my positive energy to you 🌌🤗🤗Take care x Maggie
Tough times indeed..sending you massive air hugs ♡ People always say there's "someone worse off than you", which is true enough, but when you're in a situation like this (especially an unknown) it can really get you down and feel like the absolute worst.. I hope you feel better real quick- physically and mentally- and get good news soon. Very glad you have a supportive family & friends to share the weight of the battle with, but I know at times it can still get lonely and dark no matter how much support there is. I'm sure you're helping so many others by sharing your journey (I don't have a tumour but still find your videos helpful ha 😊) and good _will_ come of this. 🌤 (P.s I love your accent so much! And really thought you were older than 26..in a good way!!)
Thank you for this comment it's so lovely :) You're 100% right and that's something for me to be grateful for every day. Hoping and praying I get news soon ❤️ PS oh noooo lol I hope I don't look older 😅
You might not realize, but London is one of the best team's to narrow down the Geno type so they better understand what it does and which one it is. Also how to later treat. A lot of individual tests which each take time and very meticulous. They repeat when they find a marker to be sure. No one wants to mislead. You have to hold on and focus on healing for now. Get your energy back. I'm so glad your father is with you and can share this Christmas and enjoy the chill in the air.🎄 Thank you for providing us an update. I wish you the best from 🇨🇦.
Hello!!.. I was looking forward to your video!! Although waiting is horrible, don't lose hope, you look as beautiful as always and know a lot of us admire you a lot! Keep your positivity up and try to enjoy your time with your family! Sending you the best vibes and wishes!!❤
You seem to be a beautiful person inside and out and I want to thank you for sharing this extremely difficult experience! Like another one of your commenters, I am old enough to be your mom, and I've definitely learned that positivity helps tremendously. I love how you smile and you're trying to stay positive. I also understand that this is such a scary and stressful time, so do have a cry when you need it! Listening to you talk is very soothing and I attribute that to your wonderful energy and light inside you that definitely shines! Sending sincerely good vibes your way.
🚨PLEASE READ 🚨 There is now some disturbed person with a fake youtube account impersonating me. They're trying to add people on telegram and say I'm doing a giveaway. PLEASE do not fall for this. What a horrible, horrible person to do this at this time. Their TH-cam name is "@Tele.gram.me-- Offical_Eireann" PLEASE REPORT THEM!
That's disgusting! I will Never understand people who do things like this. They are definitely disturbed. What worries me about this is that if they get enough followers I wouldn't put it past them to try to do a go fund me in your name.
Some folks are very evil and sick.
I'm so sorry you have to even make a post of such a thing. SMH
Please consider to neither dye your hair nor do your nails again. All these chemicals are no good for your precious body. Try to avoid sugar and gluten since doing so will promote healing of your body. Sending much, much love and light to you, girl!❤🌞 Try to listen to some healing frequency music and subliminal health affirmations on TH-cam!
please note, that phishing account is everywhere on popular youtube channels, it’s a bot, not a real human, and it just means your channel is getting more popular. please take it as a positive element of your popular content. (but i DO report them all!) … and sending you positive energy and hope for great results from Montreal ❤🙏🏻
@@louern123 True, those spambots are everywhere and when you report and block them, another twenty show up; it's infuriating.
I'm a cancer researcher, and let me tell you, your case is every laboratory personnel's worst nightmare. We want to give you the correct diagnosis as soon as possible, but that also means we will not give you half/potentially wrong diagnoses... and as for the timing, usually labs prefer to run tests sequentially instead of concurrently, due to the pricing. So we start with the easy, cheap tests that find most of the diagnoses, and then move on to harder and more expensive methods until we find an answer. The test I am most familiar with takes anywhere between 24-48 hours to run and then another 12 hours to properly analyze the data. So in a bad scenario, lets say the test is set up on a thursday, it could be the monday that the data is analyzed.... and if the answer does not come from that test, we have to run another one. This is not to make you feel less bad about the time it is taking (because I fully agree, this is taking long) but just to help you understand what is going on behind the scenes. I imagine the scientist assigned your case is having sleepless nights over it. And for the question why not put your most advanced test first? Well..... so the test I mentioned previously is somewhere in the middle of extreme testing and can cost 10 grand per test.... 😬 hospitals and labs make choices based on their resources (which is probably also why it was send to London, they have more resources) and then you end up with scenarios like this. The doctor not understanding the report is also not surprising to me, they are experienced in entirely different lingo than the molecular jargon. Keep on fighting! I assure you the scientists and doctors will too ❤
Tests are not run in batches in histology to my knowledge! It isnt run through a machine! This requires sectioning and preparation of tissue and microscopy doesn't it..surely the delays are due to the specialised examination involved of what seems to be something rather atypical here and likely involving more than one histopsthologist and transfer between hospitals.
Doesn’t the WHO require several pathologists to agree on the histology before a definitive dx can be relayed?
10k for a test. Price gouging, but legal because it’s the medical industry
No. Wrong on so many levels!! WHO has NO authority over local medical practices country by country!! Secondly there are no laws about making diagnoses! Thirdly each specialty anywhere might follow particular GUIDELINES about particular areas of medicine in best practices but they are guidelines on standards of care. IF a hospital has a standard of practice for reporting on results in a lab that is one thing but you are too presumptive about how medicine works .
And apparently the WHO does have some bearing on the dx and classification
Since the 2016 WHO classification of the central nervous system tumors [36] and advances in immunohistochemistry, glioblastomas are now defined by their Isocitrate dehydrogenase (IDH) status dividing this entity into glioblastoma IDH-mutant or IDH-wild type.
My Wife had a Glioblastoma removed in 2006 and she is still here with me doing great. Her outlook was 20% for 5 years. You need to surround yourself with positive people and positive thoughts. Keep Moving forward and keep the faith in your own strength.
That's amazing, I'm so happy for her. My daughter had Glio, it's a very scary journey.
@@CindyinArizona 100% agree, a lot up of ups and downs. I am still scared every time she has an bi-annual MRI.
@chadsmith946 May you and your wife be blessed and enjoy your [long] lives together and may He [Abba Father {God}] protect you and guide you continually. So glad your wife had a good outcome on a devastating illness.
Wow❤️ I hope I can go this long!
@@bekeneel Remember that Stats are just Stats and not the rule. You MUST stay positive and know you will be ok, not just hope!!
Just to help inform: Diagnosis of gliomas has become incredibly complex. They have been subdivided ad nauseum based on molecular markers and genetic analysis, which makes categorizing the tumors both more specific and more labor intensive. Just in 2021 (I know, just) they updated the list of tumors introduced a lot of different subtypes of glioma. So, some categories were changed, some tumor types moved based on new information, and new tumor types were created.
So, to help give you some explanation as to why it takes so long, it is because they have to run a lot of tests on your pathology. This is especially necessary because it seems so rare. Your neurosurgeon not having any idea what the pathologists are saying makes some sense, because again many of these tumor markers may be new and you have to piece together a lot of different components. Surgeons are great at their jobs, but their job isn't necessarily to know every tumor type under the sun because they are primarily focused on the surgical treatment of tumors. Knowing it is a glioma vs a meningioma is more important for surgical treatment as far as they are concerned, so sometimes surgeons may be a bit rusty on the details. That does not discount their expertise or experience, and often when we are confronted with something more unusual we go and do research. The bread and butter cases are what surgeons are familiar with, and sometimes we need refreshing with the rarer cases.
Thanks for shedding light on how complex this type of situation can be. Us regular people have no idea just how complex medicine, diseases and the body can be. It is amazing humans have figured out all they have and yet it still gets even more complex. We expect doctors to be the "experts" and therefore have all the answers immediately. Like you explained all doctors are the experts, but there is always more to know as more is discovered.
Hang in there! We admire your strength and determination. The comments written by Brandonkaye are very enlightening and hopefully reassuring. Waiting is just so difficult.
@brandonkaye5227 is right. Surgeons are specialists in their field but pathology is an entirely different field that requires an entirely different set of knowledge and that scope of information changes and evolves rapidly unlike. My father had a hemangiopericytoma removed from his leg and it took weeks to get the tumor identified. The wait is frustrating but worth it because without knowing the specific tumor type, it’s a challenge to put together the most appropriate treatment plan if you don’t really know what you’re dealing with. Keep that lovely smile going. ❤
Thank you @brandonkaye5227 especially for putting up a bit of protection from those making negative uneducated remarks that obviously are not needed, and also heartbreaking to hear about.
Another thing to add to this as well is that certain genetic tests or further testing they may be doing is usually done on a schedule - ie. DNA analysis for a certain mutation may only be done once a week or once a month which SUCKS when you're the patient waiting for results but financially techs/labs can't just run 1 sample on a run, they usually build up a few samples to be able to do their run. It costs time, reagents, and resources to do it for every single specimen so that could also be why it's delayed. (we deal with this a lot with some samples we receive in our lab - certain tests are only run once a month or even sent to New York to be run because we don't have the specific machine needed to run certain detailed analyses).
The Pleomorphic xanthoastrocytoma is rare, but typically benign. Also the survival rate is over 90%...grade 2 makes it even better. I think you're going to be ok. Sending lots of love and & prayers.
Thank you so so much for letting me know. I’m hoping and praying this is the one. This comment makes me feel sooo much better!
@@diaryofeireann Thank you for sending Eireann this info. It made me feel hopeful for her and strong in my belief that she soooon will be OK.
I read that grade 2 of your brain tumor is considered benign and slow growing, while grade 3 is considered cancerous and malignant so that means good news for you that your tumor is grade 2 :)
I read that grade 2 of your brain tumor is considered benign and slow growing, while grade 3 is considered cancerous and malignant so that means good news for you that your tumor is grade 2 :)
I'm 58. Ovarian cancer stage 4. I've no idea what my survival is. I'm to scared to look. It's not likely to be great. I can tell you at 58 I'm not happy about that either and I cry when I think about it. You are not alone in this. It's hard.
sending you love
I hope you are going ok India ❤ sending you lots of love ❤
Only just saw this hope you're still fighting this Linda, big hugs x
I’m sorry you have to wait so long for your diagnosis. I’m a brain cancer researcher (Glioblastoma) and can only imagine the stress this is causing you. Sending good thoughts and hope you still manage to have a happy Christmas 🎄and praying for the best possible diagnosis for you!
Thank you so much :) Is there any chance you have an idea to why it's taking so long? No worries if not! I also hope you have a lovely Christmas I really appreciate your kind comment ❤️
@@diaryofeireann Dear Éireann. I know that patology is a very complicated prosess with many steps, analyses and manual labor. Sometimes they need to be several people to control the same procedure, and even send the material to another country for a spesialist opinion. This is to be 100% sure they are giving you the correct diagnosis. This is very unfortunate for you, but I'm sure it's to give you a verified and correct diagnosis. Wishing you the best news, and a merry christmas. Lots of love from Marie, Norway.
Sorry to bother but how is brain cancer research coming along? Hey there been any big recent breakthroughs in that field that you know of?
@@diaryofeireann I agree with Marieh’s comment on that, Unfortunately brain cancer is extremely complex, and the process of differentiating one type from another depends on so many factors, that in some cases it might not be distinct enough to know and further study on the sample is needed. Without expressing any type of medical opinion, as I’m a researcher and not a doctor, knowing that the diagnosis is not distinct - my initial thought is that it *might* be a good thing, as they seem to not be able to immediately determine the type as one of the aggressive types. Do continue to advocate for yourself and maybe actively try to get answers, so your mental health could improve and so you can start getting treatment as soon as possible. Hope my comment was of help somehow. Sending much love and positive energy, keep your head up!❤️
@@jeremywright9511 the brain cancer field is widely studied and there are many incredible studies suggesting different strategies for targeting it. For some cancer types there are sufficient treatment methods available, and for others not yet. In terms of Glioblastoma, which is the more advanced kind, there is a relatively new treatment method called Optune that helps prolong patients lives, which is a great breakthrough in this field. The search for a cure though is always ongoing but seeing all the new papers constantly being published I’m remaining positive despite the complexity of this disease.
Eireann
As someone old enough to be your mum, I'm so proud of your strength and courage.
Every day is one day closer to feeling yourself again. Healing physically and emotionally takes time.
I found making a win jar helpful. Take a glass jar and write down your daily wins, and pop them in that jar. Even as simple as getting dressed, going for a walk, whatever it is. Put it in a daily view so when you're feeling sad or challenged, glance at that win jar and feel accomplished for how far you've come. Much luv from a grandma in Massachusetts.
Anne, thank you so so much for such a lovely comment. This literally made me feel so much better today. I absolutely love that idea so thank you again ❤️
@diaryofeireann Hello sweetie, you've been on my heart in my busy day. Just felt the need to pop in and tell you i was thinking of you. Sending hugs and prayers. 🙏❤️
Eireann, our 16-year-old nephew was diagnosed with a non-operable brain tumor - ganglioma rings a bell,but I could be wrong on that - over 10 years ago. He couldn't have it removed due to its location so had chemo and radiation. I can tell you he is still living his life fully and healthily to the max all these years later, so don't let the 5-year timeline scare you. Those are general statistics and mean nothing to your individual case. Blessings to you and your family. You've got this xxx
Praise the Lord !
Thank you so much for sharing this! I really hope she reads this, you are absolutely correct, people are not '80 percent...' so it doesn't tell that whole story at all.
One of my closest friends at 28 got diagnosed with a very rare kind of cancer of the optic nerve. It had an absolutely awful prognosis and was a very aggressive type typically.
He had only developed it in one eye but the oncologist told him it was almost always bilateral and so he'd almost certainly lose his sight completely once the other eye became affected. His 5 year survival rate was put at 10 percent.
That was 26 years ago last month. It never did appear in the other eye and he's been N.E.D for 2 decades now.
He got married and had a beautiful daughter I'm godfather to and yeah, I'm a man but I'm tearing up just typing this
Point is, hopefully her prognosis will end up good but even if it's not there's always hope. I'm not at all religious but I really believe that. Anyway I've rambled on enough 😄
@@willsmith39 That's a wonderful story, Will! I'm so happy for you and your friend and godchild! I'm not particularly religious either, but just hearing about how well other people have fared in similar situations has to be an encouragement to sweet Eireann and anyone else reading be it mentally, physically or spiritually :) Happy holidays to you and a blessed, healthy New Year xxx
@@keira-P007 Thank you so much Keira for this and the same to you and your loved ones - all the best ! ❤️
I am a Biomedical scientist in the UK in London. Some tests can take absolutely weeks to process due to logistical challenges, laboratory problems, supply issues, etc. even someone having to manually check and report the results before even reporting back. To add to this, histological processes can take a lot of time, especially if calcification has occured, as obtaining slides to look at under the microscope requires softening and this alone takes time. If some are inconclusive due to poor processing etc. it can take a long time due to resectioning. Sometimes it may take second and third opinions from multiple pathologists who are the absolute top experts in the field. Believe me, the pressure of getting these types of results out there can be highly challenging and frustrating when we know patients are waiting for literal life changing information. This is a reminder of why I do what I do as i usually dont know patient outcomes. Im sorry you have to wait, but waiting also means getting it right💕 i wish you all the luck and light in the world and get the support and care you need.
You're so incredibly brave, I really hope you get some positive news soon.
me too :) thank you for such a lovely comment
@@diaryofeireann I hope you get better your so brave you’ve got your family to help you through this and they will hold your hand and be with you every step of the way if you wanna talk to me as well I can help because I’m really good at cheering people up if they would like to talk to me if they are scared worried or upset and I can help you to feel better again
Its tough being patient and maybe feels that no one can have what we might have. But I can see why labs are overwhelmed. It seems the world is so unbelievably populated that all labs take longer than just years ago. Coming from a huge mormon family in USA (so, I had 2 ) Just 2 kids in hopes the world's medical teams, labs, research etc can catch up! Your persistence helped them catch this early on. You didnt wait for labs to move fwrd so you are already winning!
You are so strond and beautiful.. I really hope you get some positive news soon 🖤🙏
You’re doing awesome. Just remember. Don’t compare your recovery to anyone else’s. I’ve had 40+ brain surgeries. And they definitely knock the wind out of you. You’re doing great!
40?!? omg I am so sorry
@@kumozumo it’s ok. I’m stronger because of it. And I value the unseen that much more.
@@kimisorensen4974 I see, that is amazing. I really wish everything goes right for you ❤️
Mine was 64% chance when I was 17 with NHL. I'm 28 now. You got this!
I'm a retired Speech Language Pathologist= I used to see many patients with many kinds of brain tumors. Hooray for you and how far you've come so far. My recently retired Guide Dog and I are rooting for you every day. Thanks Heaps for sharing your story.
My father was diagnosed with glioblastoma in september and we've been fighting with him since then. I really hope the tumor you have is less aggressive. Thank you for sharing your story. It must be very hard, not knowing. I wish you the best.
I’m so so sorry you’re all going through that right now. Thank you for your kind words. I will definitely be saying prayers for you, your father and your whole family tonight ❤️
Did he have the mandated injectable? Seems like a lot of people damaged
Hey Éireann! I am a surgery nurse in the United States and I've scrubbed and circulated several craniotomies for tumors in my career. It's not abnormal for pathology to take several weeks to come back with a definitive diagnosis, especially if the tumor is particularly abnormal. Your strength and positivity during this time of grief and uncertainty is truly inspirational.
Have a nice Xmas your self! Don't be overly alarmed about that 80% chance of surviving 5 years. I got diagnosed 8 years ago with a sickness that has three stages, and if it gets to the third stage, you only have a 50% chance of living for 5 years. Mine was in late second stage when it was diagnosed, almost at third stage, but my disease is in remission with proper medication and I am feeling quite healthy, as much as a 57 year old can feel. You are young and have a great chance of beating your cancer even if it is not the most benign kind. Stay positive!
🦋 What I find so remarkable about you is that even while you are dealing with the agony of not knowing fully what you are dealing with yourself, you have the sensitivity and empathy to think of the feelings of those individuals who have diagnosed brain tumours. Your family must be so proud of you. 🌹
Very true it's admirable
1- I am SO sorry people are saying this is a scam. You are clearly the most beautiful soul. I will be praying for you. I am in a waiting game too, but nothing like you. You are so sweet, your beautiful inside and out, and your inner beauty shines through. I have been waiting to hear from you, and I am so thankful for the update! Stay positive....Hugs!!!!!
Ok so… I could’nt tell you last last time I prayed but I just prayed for you Eireann. My best friend had brain surgery on his pituitary gland. He had a tumor as well and it was the toughest time of his life. He has since then, completely recovered, living a wonderful life. I really hope my prayers and the prayers of others for you come true. I hope these videos help others going through the toughest time of their lives. Merry Christmas and God bless!
Sending you peace and patience as you wait to learn more. It must be so hard to wait. May the news be good for you for Christmas!
Thank you so much for your kind words :) I'm hoping and praying for that Christmas gift lol
My dad was diagnosed with glioblastoma 5 years ago. The doctors already knew it was a glioblastoma before the operation, just from the MRI images. So maybe it's a good sign that they didn't know straight away in your case? Even if the wait is agonizing.... Everything is still possible, nothing is decided! I wish you all the best and lots of strength! 💜
Both my parents died of GBM, Dad in 1979 and Mom in 2003. It's a brutal, terminal cancer. I took care of both of them at home and they both had pretty good deaths.
@@tiportangeles2696 I lost my brother to that as well and took care of him.
@@tiportangeles2696 both your parents? thats so rough and what are the chances. I hope all is well with you! You were a great son/daughter for helping them out to have peaceful deaths.
@@tiportangeles2696I'm genuinely very sorry for your loss - that's very tough to take
But do you really think in the context of this video it's all that helpful/ constructive for her to read things like this right now while she's waiting?
She's only 26 and obviously underneath all the positivity she'll be scared sh#tless I'm sure.
Lots of other people seem to be sharing similar awful outcome stories so I'm not picking on you, just wonder if it's the right thing to be doing.
@@tiportangeles2696I'm so sorry you had to go through that. Twice! I admire you for caring for both parents at home until the end. My father had to go into a nursing home a few weeks ago. He's a big, heavy man, it was no longer possible for us to help him get up or support him when he stumbled.... Lately he has been sleeping most of the time, so we assume the end is near. But that's okay, we've made our peace and so has he.
6:50. I started crying. Guess I need to share my story, which I will do in upcoming days. Had no idea I was holding this emotion about my past year, but your video and courageous sharing is definitely letting me know that I can be of benefit for others, in the way you're being of benefit for me. Thank you. Sending the very best vibes that you get information soon... not knowing is hardest. And sending even more vibes that the news is good news.
I hope that you get the diagnosis that you are hoping for. All the best from the UK.
You are mature and wise beyond your years...
To be dealing with this and still be concerned for other people's feelings and how this video will affect them makes you a very special soul.
My thoughts and prayers are with you 💜
I perfectly understand , I have gone through 6 brain surgeries and recovery is always hard with the neurological sequels that can last for months or years or even never go away. I hope the results of your tumor are good and that you have a non cancerous grade 1 o 2
You are doing amazing!! My father was diagnosed at age 52 with a glioblastoma multiforme grade 4. He had 6 weeks of radiation after he had debulking surgery. He lived 21 months after diagnosis. This was in 1996, things have really improved in treatment success. I am sure your tumor will be the best case scenario.
You have done everything in your power to advocate for yourself, you are doing well.
I've read your comment through 3 times to see if I'm missing something. You come across as a genuine person, not some horrible troll so I'm very sorry to hear about your dad - that's way too young.
BUT, honestly - what is the point of your comment. Despite her positivity she's obviously incredibly anxious as she awaits her final results so how is telling her - a 26 year old young woman - about someone who lived for 21 months from diagnosis? In what world do you think that information is helpful to her ?
I don't get it, and you're not the only one sharing these types of stories.
I'm so sorry it's taking so long. Waiting is the worst part. Wishing you the best. Hoping and praying it's good news
Thank you so much :)
Please, keep us updated, on which kind of tumor it is.
I feel for you. I have a brain tumor myself.
But it is “only” a meningioma, just the place is bad, at the spine near the nerve canal.
As long as it is not growing too quickly, it could stay where it is.
I got cyber knife treatment, and we hope, this will stop the growth.
If I have to go to surgery, I will take your journey as encouragement.
All the best for you and your family!
I am sure that everything will be OK. Love and best wishes from Greece.
I think so too! It better be lol. thank you :)
My father had glioblastoma. I myself am going through multiple myeloma. I will pray for you! Waheguru walks with you!!
I know you will be married with four children and I promise you will be fine. I was told I had a brain tumor they told me that very minute it was benign. I knew I would be fine and I know you will be as well. I am praying overtime just for you 🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🍀🍀🍀🍀🍀🍀🍀🍀🍀🍀
So sorry you are going through this. The waiting is terrible. Survival rates are usually based on studies that were done 5 or more years ago, which means they are even higher now with more research and medical advancements. I was diagnosed with a condition called MGUS this year, which is a premalignant blood condition. I now have to be checked every 3 months to see if it's progressing or not (I'm 35). I totally feel your pain and wish you all the absolute best!!
From 10,000 km away from you sending you all my love and prayers , I’m sure you know being negative doesn’t help , so get up start doing your best as always, keep praying and get close to god he knows the best for you, stay strong ❤
Had to shed a tear. I held my daughter close. You're in my thoughts. Hoping for the very best outcome.
Good Eve'n Eireann ..... How "over it" you must be feeling about hearing "still more research" and "we just want to be thorough". Having only recently been told they've found my 7.8mm in center of crown of my head, I know I'm just running the gambit of all those possibilities, right now.
Here's how you're helping me immensely. I'm thanking God that I don't feel so isolated anymore. I understand I'm not unique. It's out there and until finding your vlog, I felt I was trudging through this experience and nobody knows anything about it. Then I find you!!!!. A young lass that shouldn't have to be dealing with this. But you've been dealing with a lot of my own thoughts and I truly am thankful. I don't feel so all alone anymore either. Just want you to know that other than my concern now, for you and your journey thus far, I'm still sending good vibes and mucho prayers for you.
As far as the Holiday Season and having to deal with this........ I was rushed to ER on Dec 23, 2014 with all pointing to an infection of prosthetic and stainless poles, in my left leg. My leg was removed December 24th, at 1:30 in the morning. When I finally woke up on Christmas day, I had no pain anymore and actually felt good about beating 82% blood poison (2 different germs). My 4 kids came through to visit.......and the consensus was.......... I was alive and oh so very thankful to be alive!. It was exactly the way that Holiday Season was to be, that year. I know you must be thinking that "timing" for you is the worst. Stay as strong as you already are and know that there's a reason for everything. And this is just Eireann's plan for 2023. That word will come soon......
My own situation will work it's way out too. I thank you for your patience and strength during this time. You're amazing gal........Devon's a fortunate lad! Best wishes for a Christmas filled with Peace, Love and (continued) Prayers.
Bless your sweet heart. I had ovarian cancer in 2020 and I completely understand how you’re feeling during this waiting stage. It was one of the hardest parts! You’re strong and you’ll handle whatever comes your way…we can do hard things! I’m sending you all the positive vibes that everything turns out the best for you!! 🤞❤️😘
Thank you so much for sharing that with me ❤️ I'm hoping and praying that you're doing amazing right now and I really appreciate having someone that understands the waiting process. Thank you so much ❤️
You hit the nail...on the head....A really nice quote about patience is by Joyce Meyer, "Patience is not the ability to wait, but the ability to keep a good attitude while waiting." Keep going. Lovely nails and can't wait for you to enjoy the small things like your hair too which feels absolutely amazing to be doing those tasks for some normalcy!
I've been waiting for you 🤗 I'm so glad to see you shining! 🙏🏻🫶🏼 💪🏼💪🏼💪🏼
This is so nice to say :) thank you!
Thank you for the update. You are in my prayers. Yes, it’s hard. You are a strong and beautiful person! 💖🌟🙏
I have been waiting for your update and I wish it was better news. You never know, you could be an outlier. I recently had a friend who passed from Glioblastoma, they did't expect her to make 3 months but she lasted 5 years! Your positivity is wonderful to see and I sincerely wish you a full and active life.. I hope you'll be making encouraging videos 50 years from now! Hang in there and know you touch a lot of people!
"When you're going through hell, keep going". Winston Churchill. You will conquer this, Eireann. I see tremendous strength and resolve in your eyes.
There are no words that anyone can say to make you feel better, it’s tough and it’s bloody horrible to have to wait so long. My fingers and toes crossed that you find out before Xmas . Your a tough cookie, but also let off steam, no one will judge you. It’s a lot to take in… will keep checking in for any updates.. take care off yourself…
I knew from the first video about your tumor that you would be fine. You are an angel on this earth. And you are also the only person I have ever seen who uses "wee" unironically. Remember: It's your channel. You can cry if you want to.
Eireann - I am praying for the best news when you finally get it. You are very strong and inspiring!
All you can do is live in the moment. Whatever diagnosis they will give you, you seem like the kind of person that has the strength to find your way with it eventually, however hard it will be. Sending you love from the Netherlands.
Love your videos and My wife and I are both praying for you. After my fifth heart surgery, I took up the motto of "I Day At A Time, I Step At A Time" It took me forever to learn to slow down. What I did not expect was 4 more heart surgeries. Now that we have finally figured out the problem, I have been much better. Stick in there, Adjust and "Take One Step At A Time, One Day At A Time" Again, I will pray for you and hope you can post more videos.
Thank you so much for your honesty about your situation. Being positive doesn’t mean you can’t share the truth about how you are coping. Continuing to pray for you from Tennessee,USA❤️🙏❤️
I too was recently diagnosed with cancer and for me I didn’t realize stress can cause unwarranted back pain. If you find your self in a situation where you’re not in a good place. Practice doing breathing exercises. I found it help me calm down. Keep positive you have the right mindset! It is a u fortunately an emotional rollercoaster. I see you are strong and I am praying for u. From Canada.
Dear Eiireann, you are in my thoughts and prayers. Sending you brightest blessings for positive news soon and a happy Christmas with your family 🙏
You have every right to cry; don't ever feel sorry for that! Thank you so much for sharing your story, and I'm praying for you. I just know that everything is going to be OK. Have a merry Christmas!
Hi Éireann, so sorry you're going through this, I'm also 26 and we never even contemplate things like this can just suddenly happen to us. I can only imagine the anxiety and pain the whole uncertainty and delay with the diagnosis is causing on top of your body physically trying to recover. Praying for as good news as possible for you sooner rather than later but keep that positivity and bravery going and you'll nail it no matter what. x
I know cancer is invisible outwardly but you look amazing. You have a great spirit and are definitely an inspiration. I hope you heal as quick as possible.
You are in my thoughts and prayers! ❤
thank you so so much ❤️
Hello Éireann! I can understand the conflictual feelings you have right know, as you are waiting for the correct diagnostic from the doctors! It is hard to live with the uncertainty of the situation and with different opinions of your medical team! Especially in the holiday season!
If you feel your team is less experienced with brain tumors, you can have other consultations with doctors that have more experience with it. I have decided to change doctors when I felt my neurosurgeon was over his head with my case as I have a brain tumor and had to have an awake surgery 3 years ago with an other doctor than him. I was diagnosed in 2017 at 23, and right know, I'm 29 and finishing my second bachelor degree this year. Also, I ran my first marathon in September! Even when we have a difficult diagnosis, we can thrive. I'm not implying you should make a change, but it is an option. Don't stop advocating for your health, you deserve the best treatment!
Thank you for sharing your story our lovely Eireann. We are all rooting for you, there is so much love here for you here xxx
Prayers for you that you find out! Enjoy you hair appointment ❤️
Thank you for posting this update! I sincerely hope all turns out well for you; you certainly look healthy and beautiful! I know it would be hard to wait for news like you're waiting for, but keeping yourself busy with happier things will make the time go by more smoothly. Many wishes for a happy and joyful holiday, as best you can!
Thank you so so much :) I really appreciate how kind you are. I hope you have an amazing holiday season!!
You are one strong Lady. My dear friend had her brain tumour op yesterday and I only wish she could have watched your videos before her surgery. Bless you for the support you are giving so many people in the same position. Love and prayers to you. Xxx
Hello! I had a craniotomy in October to remove a brain tumor. I have metastatic breast cancer so my tumor was the progression/spread of that. I just wanted to say that it is a tough thing to go through and some days it is hard to stay positive and that is ok. All of those feelings are valid. I hope you get some answers soon and that you enjoy a lovely relaxing holiday with your dad! Sending good vibes and strength your way! ❤
Bless you xx
You are a strong young lady. Trust in Jesus as you walk through this storm in your life. He will carry you through it. Praying for a complete recovery ❤️
You are handling this so beautifully, I don’t even know you and yet I’m so proud. What I will say working in hospice and long term care…Odds are just odds! I’ve seen many people surpass their 5, 10 and even 15 year mark with cancer or organ transplants. Numbers are helpful, but NEVER something to focus your entire outlook upon. ❤️
You are a remarkable young girl. Praying for a great outcome for you.
You’re doing brilliantly. I’m still having to be patient after surgery in 2020 (bladder cancer) and I’m still getting used to training my body to the changes.
Some days are great but some days I can have set backs mentally. Time really is a healer. ❤
Hello- I’m a cancer survivor diagnosed at 20 and I know waiting for what your future might hold and what the game plan will be is the worst. It’s very gut wrenching and anxiety filling. I wanted to share a story close to my family that might give you some hope
My Nana’s best friends daughter was diagnosed with a brain tumor at 19. I don’t know the kind of tumor, I wish I did but my Nana has passed so I can’t ask. She was told she’d never have kids, and didn’t have long. Surgery, and treatment went exponentially well. She lives on another 20+ years, got married, had her children, and by the time it came back she was in her 40’s and her kids were grown. The doctors couldn’t believe it.
Your journey is what you make it, and your hope plus a strong will to survive can keep you going longer than expect❤️ hang in there. Your story is definitely being heard. I pray for the best outcome of the diagnosis. 🙏
You’re beautiful inside and out! Stay strong! Waiting is so hard!! Sending you lots of positive vibes and prayers!!!!
Bless your heart… I think you are doing great.
Today was my 1 month university of surgery for melanoma of my left eye.
So far, no sign of spreading but this has a long way to go.
I’ll be praying for your positive diagnosis and a long and fruitful life.
Merry Christmas 🌲
I'm so sorry you're going through this. I am sending you lots of love and strength. I hope you hear good news from your doctor before Christmas. Look after yourself. Hugs! ❤️ Merry Christmas! 🫶🏻🎄🎅🏼☃️🩷
Shame on those saying this is a scam! They should be ashamed of themselves! Sending you all positive energy & love from Australia. You’re a beautiful woman inside & out. Merry Christmas darling ❤ 🎄
Hang in there. You’re such a beautiful person inside and out. Thanks for the updates, thinking about you and praying happy tears are coming. Merry Christmas!
I hope you don't have to wait much longer but it's a relief to know they're doing their homework. I wish you peace and happiness over Christmas. Hugs from Ontario.
Sending you peace and positive, positive thoughts! And also, for what it's worth, I know how scary doing your own research can be. Numbers can be overwhelming, but those are all "big number statistics", describing trends for large groups of people. You're an individual with an incredibly positive, strong disposition, and those numbers may not be appropriate to describe you at all. I'll keep looking forward to your updates, there are already so many people rooting for you! Sending you the best!
Thank you so much for such kind words :) Hoping and praying that they're 100% wrong lol or that I'm misunderstanding them. You're definitely right and I think I'll stop checking them. Thank you so much again ❤️
We're all rooting for you!
London has one of the best hospitals in Ontario, I hope you get some better news before Christmas. I’ve never seen someone so positive and bright during a time like this during their life. My Mom had cancer and I know she found a lot of strength in us that were around her, supporting her, I hope you’re leaning on Devin and your Da during this time and soaking up this time together 🤍 sending you the best vibes
Eireann you're doing a wonderful job dealing with the stresses of all of this, it's admirable. Sending warm best wishes your way. I hope you make a full recovery and know that everyone who has subbed to your channel is behind you.
This is such a lovely comment thank you so so much :)
Éireann you are a very strong woman! Keep your positive mentality as you go through this, it helps you out so much more than you could imagine! You are already doing so much better than the doctors originally said you may experience after surgery with being able to talk.
I went through this 6 years ago myself and was told almost everything you were to the degree of what I’d experience and everything. Thankfully I am healthy now but you seem to show all of the same signs of progress I was showing at that stage if not better. Keep your head up high and you can get through it! I’m rooting for you
God bless you honey! You got this! Hang in there. I have a friend with a glioblastoma and she is a fighter. You are right, it is a tough tumor to fight. I am praying for you both!❤🙏🏻
So good to see you and get an update. Stay positive and don't let rumors of how long you have to live and or percentages get you down, as an individual those literally mean nothing especially when they are uncertain of specific diagnosis. You are making wonderful progress, just take it a day at a time. You are in our prayers. xoxoxoxoxoxo
Thank you so so much :) Trying my best to stay positive and you're right. Thank you!
Yes I agree, my dad has had kidney failure and back in 2012 they told him he won’t live more than 5 years
He’s still alive today and doing great (for his age-85)!
And not on dialysis either
You will get through it! Don't be discouraged by the long waiting time - it might just be that the situation is going to resolve itself - always be hopeful and remember: Each day is a new beginning :)
I pray that you will receive a massive blessing! Wishing you all the best
Ugh this reminds me so much of the process of figuring out what my fiancé's tumor was. It felt like we kept getting dates on when we would get the diagnosis, and when the day would come, it would be pushed off to another date. His is unfortunately Glioblastoma at 33 😢
I'm so sorry you are going through this. It's so scary.
You are such a sweetie! The first time I had metastisized liver tumors I had to fight with my insurance company every day for three months and it was through the holiday season. So I know how hard it is to stay positive. Be thankful your da is able to be there with you and have a wonderful Holiday Season!
Positivity is half the battle. Beating any cancer needs your best thoughts for yourself. Wishing you all the best from CT
❤ you have a good outlook👍
You have recovered so well. My sis in law had stage 4 lung cancer. Her scans are clear now. I really feel you are in that 80 percent. Hugs and best wishes! 🤗
Eirinn, you're doing so awesome! The hard days are hard and that's totally ok. I'm sorry that this is the road you're on, no one deserves it. We're still waiting for my niece's pathology and she had her craniotomy around the same time as you. They were able to figure out my nephew's grade 1 astrocytoma quickly but it took a while for his glioblastoma pathology to return because it was a "fascinating and unusual" case.
You've got a lovely support system. Lean into them. You don't owe anyone a good mood/attitude but you'll probably want to continue trying for positivity when you can for your own benefit and make the most of your good days when you can. You've got this! ❣️
Something that I once read has always helped me when I wanted to be positive, but found myself struggling … and that’s that it’s healthy and real to tell yourself that in this moment, I’m not ok. This is what sadness (or fear or anger) looks like. And it’s ok to be here in this moment. We all love your strength and positivity, but we also know that you need to feel your feels ~ and it’s ok. Hang in there. We are sending loving energy your way ~
Im so sorry your even having to go through this. Crazy how our own bodies can turn on us and do things that hurt us. Really hope you get the best possible outcome. Ive had a similar scare of my own and im still in limbo waiting for my body to do the work and fight it. Thank you for the update n wish you well.
Sending you the biggest hug. What a kind person you are giving consideration to other people. Praying for a positive outcome for you. Have a blessed Christmas. Xx
You’re very brave, sending you so much love. Your positivity is inspiring ❤️🌻
You are such a strong Girl, with so much positive vibes despite all, wow! If I were your daddy, I'd probably be bursting with pride. Please, don't loose your good mood. I wish you a very peaceful and beautiful Christmas time. May you heal 100% physically and mentally in the coming year! Be blessed!
You are so brave for having to go through this. I'm sorry they are taking so long with the results. I'm wishing and praying for the news to arrive behind Christmas and for it to be good!
You're such a brave, confident and beautiful young women. Sending positive vibes and wish you all the best. It's sad to hear your possible diagnosis, let's stay positive and hope for the better option. Sending hugs 🤗
Thank you for the update, such as it is. You're being very brave to do these videos, and I'm sure they're helpful to many people. I'll continue to pray for you, and hope you say a prayer for all the people who are following you and hoping for the best. Sending Christmas blessings your way!
You are such a sweet soul. I admire your strength and cheerfulness as you wait for a real answer. Best wishes to you!
Please God next time you’ll know more. Enjoy your time with your Dad. Your positivity is inspiring, I understand it can be hard but hang in there! Xx
Thank you so much Joan i really appreciate this comment :) xx
You are so so brave to share your story. Cancer is horrible at any age , but especially sad when
it strikes young healthy people. Still, there is so much hope. New treatments are always around the corner. Keep fighting. Everything is possible 💓You are in my thoughts every day, sending all my positive energy to you 🌌🤗🤗Take care x Maggie
Tough times indeed..sending you massive air hugs ♡ People always say there's "someone worse off than you", which is true enough, but when you're in a situation like this (especially an unknown) it can really get you down and feel like the absolute worst.. I hope you feel better real quick- physically and mentally- and get good news soon. Very glad you have a supportive family & friends to share the weight of the battle with, but I know at times it can still get lonely and dark no matter how much support there is. I'm sure you're helping so many others by sharing your journey (I don't have a tumour but still find your videos helpful ha 😊) and good _will_ come of this. 🌤
(P.s I love your accent so much! And really thought you were older than 26..in a good way!!)
Thank you for this comment it's so lovely :) You're 100% right and that's something for me to be grateful for every day. Hoping and praying I get news soon ❤️
PS oh noooo lol I hope I don't look older 😅
@diaryofeireann not at all haha its just I'm 2yrs younger and you seem so wise & confident & experienced compared 😄 I aspire to it!
🥰❤️
You might not realize, but London is one of the best team's to narrow down the Geno type so they better understand what it does and which one it is. Also how to later treat.
A lot of individual tests which each take time and very meticulous. They repeat when they find a marker to be sure.
No one wants to mislead.
You have to hold on and focus on healing for now. Get your energy back.
I'm so glad your father is with you and can share this Christmas and enjoy the chill in the air.🎄
Thank you for providing us an update. I wish you the best from 🇨🇦.
Eireann! Great to see and hear you're healing well ...💚
Hello!!.. I was looking forward to your video!! Although waiting is horrible, don't lose hope, you look as beautiful as always and know a lot of us admire you a lot! Keep your positivity up and try to enjoy your time with your family! Sending you the best vibes and wishes!!❤
You seem to be a beautiful person inside and out and I want to thank you for sharing this extremely difficult experience! Like another one of your commenters, I am old enough to be your mom, and I've definitely learned that positivity helps tremendously. I love how you smile and you're trying to stay positive. I also understand that this is such a scary and stressful time, so do have a cry when you need it!
Listening to you talk is very soothing and I attribute that to your wonderful energy and light inside you that definitely shines! Sending sincerely good vibes your way.