My husband was diagnosed with Glioblastoma Multiforme in Dec. 2013. They gave him 2 years to live max. He is still with us!! He went through radiation and chemo. He also had a change in seizure med. Don’t lose hope!! The doctors have to say the worst case scenario. God can do miracles!! I know it is a scary not knowing what the future holds. Just live each day your best with your loved ones! Reading the Psalms helped me when my husband was going through his routine MRIs every three months. Sending much love and prayers!! ❤️🙏🏼
@@kats_journey_00 So sorry to hear!! My condolences. 😔It is an awful disease. There are continuing to do research and clinical trials. Praying they will find a cure soon!!
I heard an interview with a cancer researcher. He said not to give up hope and to keep getting treatments because cancer breakthroughs are happening so often, and the pipeline is full, what looks hopeless today could be curable in the not too distant future. I also read another statistic that I think is important to remember. Not all doctors or cancer centers are comparable. They found that people with cancer who were willing to travel for the best treatment lived 50% longer (if my memory serves me). Should you ever encounter a recurrence, look for the best doctor/surgeon in the world for your particular cancer type. Raise money if you need to, I would gladly donate. We all want you to live the long, happy life you deserve, Eireann.
It is always helpful to be rich. I can only afford to go to my local cancer center for my treatment. I lack the beauty and TH-cam channel to raise money.
I all honesty, there hasn't been any true development (read: breakthrough) since 2017. There's a lot of focus on prolonged treatment (which introduces a lot of side effects) but for certain cancers they're still clueless on how to eliminate the cause. A lot of so called "progress" you read about is targeted towards cancers like leukemia, which can be dealt with a lot more effective and efficient these days. But those have been curable for quite some time. I'm confident that humanity will eventually be able to treat most cancers successfully, but none of us will live to see that happen. That doesn't mean there isn't any hope for Éireann, on the contrary, but it doesn't hurt te be realistic.
My dear, I don’t know how is living with the fear of a new tumor appearing, but what I do know is that the only difference between you and me is that you've had a tumor and I haven't. But that does not make it more likely that I will live longer than you, in fact I am much older than you and logically I will leave sooner. what I want to tell you is that we all carry the danger of dying at any moment, either from an illness, from falling down the stairs ,from an accident... Nobody knows! You are doing very well, beautiful. Cry, laugh, scream, enjoy and let go because life is the moment and that what we have lived, tomorrow does not exist for anyone. A big hug.
Fostering that led to adoption in my fifties I'm raising my boys, 18 and 14 now, autism and adhd, and have a 44 year old daughter... And an amazing husband. Never a complaint out of me♥️🙏
My sisters brain tumor was inoperable until 6 mos before it started growing they developed a treatment… praying for you to have the same “save” right before you need it (a long time from now I hope) 💛🙏🏻
My daughter turned 22 on October 23, 2023. She has stage 4 Glioblastoma. She had her left amygdula and anterior temporal lobe removed. Pathology came back pretty wild. Her cells mutated 400 times. She had radiation for 6 weeks and is taking Keytruda. We are trying not to be sad everyday but it is tough. Thank you for sharing your experiences. I hope you and my daughter will live a long life. ❤
My mother was diagnosed with stage 4 cancer at 60. She lived a beautiful 25 more years and died peacefully at 85!!! Doctors can only guess. Anything can happen and anything always does! Sending lots of love ❤ and hope.
I think the fact that your tumor hasn't changed is very good news. The fact that the Dr. is putting you on 6 months MRI schedule means that the tumor has not moved. I feel positive for you. I know that everything will work out at the end. Allow yourself to have sad days. Everything will be all right.
Agreed! But from across the world away Im wondering why tests are sent to another country?? If Eirann lives in Ireland, why is she letting them send anything to England?
London has some of the best medical facilities in the world and compared to traveling to different medical facilities in the US it’s not far from Ireland.
Omg, my mom just past away from glioblastom grade 4, only 14 months we had after surgery, we had it all- ray therapy, chemical, mri multiple times, epilepsy, she was fading every day, l was with her every day, left my job, she died in my arms. The grief is outstanding.
Thanks for your honesty Éireann - please don't feel you need to apologise for your less positive updates. You have an inspiring attitude. Best wishes to you and your famiy.
Hello Éireann, this is my first post to you. I have watched nearly all of your updates. I survived a hemorrhagic stroke about 5½ years ago, when I was 55 years old. By all medical accounts, I should not have survived. They don't know how or why I survived. It remains a mystery. I have high blood pressure. I also had a heart attack and a seizure when I collapsed from the stroke. I take daily medication. My point - There is something deep inside all of us that doctors cannot regulate. It is the will to live. Some have a stronger will. I can see it in your eyes that you have that same will. You are inspiring beyond explanation. It is amazing to see such a strong super human. I believe that every single person who watches your videos, wants you to live to a very old age. You have so much life in your eyes. I see hope too. Fight for all you've got inside you. You are very powerful! ~ Dave.
Dave I am so so sorry to hear that but I am so incredibly happy to hear that you’re okay. You’re such a lucky person and I am beyond happy for you. This comment literally made me cry so thank you so so much for being so kind and for sharing your story with me. I am forever grateful for your support and kindness 🙏
@@diaryofeireann 🥰 I learned that there are two ways to go when you are facing your own mortality: 1) You can fall into the deep well of despair and feel even worse or 2) You can continue to do like you are doing now - by sharing your journey, and being that powerful light that guides you through the tunnels of the unknown. After I was released from the hospital, I began writing a journal online; and I shared it with whoever wanted to read it. I wanted to remember everything I felt and did while I was healing. It was the greatest therapy, and it still is to this day. What you are doing is giving hope to everyone. You have this special gift, this special purpose to share every nuance, every stage of your journey - all the peaks and valleys, every step, with the thousands of people online who only know your story from afar, and yet they still feel like family. Several years from now, when the day comes when you watch these videos again, your long journey will reveal how strong you were, how much stronger you have become, and just how much you have grown as a wonderful, beautiful human being.
Nice words, although it doesn't always work. But it is true that we must always fight to maximize our chances. I had many severe diseases, and by not giving up and reacting smartly you may have better outcomes. Also, do not always believe doctors blindly. Pick and read latest research papers and do your own analysis. That's how I found a very high steroid treatment for my condition recently issued by Mayo clinics that no doctor knew about and they thought I was crazy to take such a high dose (I took the exact same dose as recommended in this case report from Mayo clinics). Doctors often think they know and understand everything while it is super rare that they simply know more than 50% of all up to date knowledge within their own specialty (they earn enough money to not spend evenings or weekends deepening their knowledge)
I understand your anxiety sweetie! I also have a Brain Tumor, I’m at 6 months for follow up MRIs. My Neurologist feels I can go yearly but I said no way! I want to give you a big hug hon! Keeping you in my prayers ❤
You are amazing. I would never have been able to keep people informed about my progress - different cancer but Stage 4. I just 'phoned my family on diagnosis, told them how long treatment would take, told them of my prospects of success, and declared radio silence until treatment was over. That was 12 years ago. I was lucky, but that scansiety (mostly blood test anxiety in my case), is real. Half way between tests (they went on for 5 years post treatment), I began counting down to the next. The week between test and Consultant appointment awash with anxiety. All the very, very best to you Éireann. ♥🙏
@@camiburchett9602 Thank you so much, and amen. I was diagnosed purely by chance. I had no relevant symptoms, but a trivial blood test for a different condition entirely rang the alarm bells.
Eireann I *heard* and *felt* you when you said you know what you're going to die from. Being hyper aware of your own mortality is neither normal nor easy, nor anything someone who doesn't know can relate to. I'm hoping against the odds (for both of us) because stats are just stats after all, but I think mainly it's just about ignoring it, isn't it? I SO understand being at the doctor's and not being given hope (my doctor's line was "let's not write you off *just* yet"). Sending you so much love and understanding and huge hugs xxxxx And your positivity is bolstering to all of us
Believe it or not, there is power in the thoughts you carry. Don't tell yourself you know what you will die from...decide you won't die, keep your thoughts on this belief and live large!
So glad to see you back. I feel like I was holding my breath since your last video. Grand new and frustrating news. You are very good and processing this all. I’m rooting for you 🎉💚
@@pappypapnot sure what this means but Pharma gives back ++ including meds for compassionate use to many patients. Without Pharma, life expectancies would be what they were in the Middle Ages
Fellow Irishman here, My mam had a Glibo and unfortunately it was not operable from day 1. She passed in April. I found your channel a few months back and have been following your story ever since. I just want to say your attitude and outlook on life as a whole has comforted me a lot in this hard time. My mam had the same attitude as yourself when facing all of her challenges that comes with this sort of thing and your way reminds me of her determination and positive outlook. Keep pushing forward and living everyday to the fullest and I’m sure you have many years of a happy life ahead of you ! You are not at this stage and may never be there but it might be worth mentioning Carr-T cell therapy treatment for BTs if you ever need more treatment down the road. As I’ve read it has been successful in recent clinical trials. Keep being you, you are a light in strangers lives and you have certainly lit up the dark in mine. Thank you. DG
If I were you Eireann I would go on living life with as much passion, spontaneity, love and compassion as you can muster since none of us know when our time will come. No one knows how much time we have left or how we will die so try not to worry about it and just continue to live your life each day with as much happiness and love that you can muster. I live with a disability and god knows I can get down some days but if I surrendered to my thoughts I'd never leave the house and would just merely exist. My Dad has recently decided he wants no treatment for metastatic prostate cancer and my Mum is very fragile as well with heart and lung issues but they continue to live as though every day is an opportunity to see another sunrise and another sunset. You are young and let's hope you have many many more years left before your time and until then live life, be adventurous, see the sights, smell the flowers, eat the ice cream and love with all your heart. It's all any of us can do. Sending you so much love and support from Ontario, Canada.
Eireann, your positivity is another tool in your toolbox in this fight. It is an important weapon to have at the forefront of this battle. The road ahead may appear rocky, but I can’t imagine anyone who is more well-equipped to win this challenge. I will continue to pay for you, Devin, and your family. 🥰
Énireann, this is my first time viewing your journey with brain cancer. When my team of brain cancer doctors told me in May 2024, I didn't believe it. Just finished radiation and am still taking a chemotherapy pill. My next MRI is August 29. My cancer is high-grade glioma benign tumor of cerebral meninges. Here is what I believe, when God is ready to me to die, I will. I have prayed and asked God to let me live. I believe God has answered my prayer. I am praying God will let you live as long as you want to. I will keep you in my prayers. God bless you.
High grade benign glioma? High grade gliomas are not benign.. they are extremely malignant and very fatal brain tumors. If the terminology you are using is correct, most if not all gliomas, especially glioblastoma are incredibly malignant and almost always fatal brain tumors..
❤️🙏🏼🕯️✝️ May the Lord bless you on this journey. We have great hope in Him. It is certainly a difficult time. I am just finishing my radiotherapy this week for Grade IV GBM. Love and blessings to you.
I have had a brain tumor for almost 17 years. It’s benign but there have been changes. I get an MRI every 6 months and also see my neurologist. My most recent appointment, I saw the neurosurgeon again because there was another slight change. I haven’t seen the surgeon in 14 years. I do what the neurologist says every time I see him, I enjoy my life and my family. It’s okay to have feelings! This is a tough time. It’s okay to advocate for yourself! If there is something you’re uncomfortable about, you can speak up. Don’t feel bad. This is your life! I agree for getting a second opinion. I do pray for you all the way across the pond in the United States. I originally would go to my appointments with a list of questions since my memory was affected by the tumor. Thank you for the update!
I started watching your videos because we are the same age and I had an MRI about 1.5 years ago where they found a thickened region deep in my head and they weren’t sure if it was a brain tumor. I have basically been told that I will regularly (every 4 months) get MRI scans and it will either never grow or I will have a low grade glioma. The unknown of it all is something I wouldn’t wish on anyone.
The hospitals are just seeing tumors everyday, thats why they will give you the standard information. Always remember things can be different for everyone, especially you dont fit the typical age and health criteria, so you could be the lucky one since your young :) There are a lot of ppl talking about how they was only given some month to live, but are tumorfree for over 10 or 20years and so on and i believe it can be you too ❤ keep hope, even if they talk so hopeless about that. If you watch some ppl sharing about how they overcame everything and what they have tried it could help you :) ! 🎉 I hope you dont feel too much pressure and fear and wish you the best, you can be cured 💖.💖
Every oncologist hears the same questions from patients about their chance of longevity and if there are any new special treatments ,they have patients that die frequently from cancer,it is a very hard life to take as a human and they also deserve respect and patience as when you are asking questions they have somones family calling for help as they have found out a member to be terminal...the best thing is to type out questions on paper and if time allows have the oncologist answer the questions right there or email the answers back to you asap.
Sweet girl, I, as a momma, want to hold you, hug you, wrap you in my arms and pray. Your inner beauty is absolutely shining through. I cannot imagine how this feels. What I can say, is just like they have a clinical trial (damn missing it this time) new things are happening every day. ANYTHNG could be different going forward. But, still, I cannot imagine for you or your family. DO NOT reduce your MRI's if at all possible. I have never seen such a sweeter, kinder, more lovely person on here, and I am just so deeply sorry you have to go through this. You have a whole internet family out here praying for you and your loved ones. Keep up your positivity but of course, let yourself grieve and be sad as you need.
Christ Jesus, please hold Eireann's hand as she travels through this difficult course. She needs you. All power in heaven and earth has been given you and whatever the course, you can bring her through. Thank you.
@@donaldjuan4934because we are here to learn from our traumas, we learn to value life and love. Maybe you don’t have faith or spirituality and that’s everyone’s choice. Those who are spiritually strong, believe we have a soul plan, sometimes we are only on the earth realm for a shorter period. Eireann’s cancer may well heal, and she would have learnt a lot from her experiences. Giving and feeling hope is far more powerful in manifesting our own reality - with or without any belief system. You’re entitled to your view, it’s always respected and on community forums or videos it’s important to give hope, love and an open heart/mind. In peace ✌🏻
I have my follow up MRI in 3 weeks. I feel you. I think it's a good decision to stay positive. We don't know what will come in the future. They research and test all the time, maybe there will be a treatment in the future. Please don't give up hope. Try living every day to the fullest, enjoy your loved ones and all the experiences. I get it to get stuck in this circle of worrying and it feels like you can't enjoy anything in this moment and it's really hard to live life and be present. But you have so much to look forward too, you're such a beautiful soul and I wish for you to have as many happy moments as possible. Biiiig hug. ❤
A lot will change just in 5 years with brain tumor treatmemt! And 10 even more so. You will live a long full life. We could die crossing a crosswalk tomorrow. My friend knew his whole life he wouldnt make it past age 25 with cystic fibrosis. You will be ok❤❤ I have this incredibly strong affinity to be very right and I feel good about you❤
Eireann, we are on the same schedule. I have a serious blood condition that could turn into cancer and have to go to a cancer center every 3 months to be checked. Your last MRI, I was also about to get labs. I always try to remind myself that medical advancements are moving exponentially as we speak and soon, there will be answers for all of these things. Praying for you ❤
I appreciate your honesty. I’ve just finished my immunotherapy treatments and dealing with side effects. Thanks for the encouragement for giving grace and feeling my feelings. I wish you all best and much love from Gensac, France.
Your energy is so beautiful, and you would be so comforting for anyone to come across your videos in experiencing what you have endured, as they are reaching out desperatly, to not feel alone, not that anyone would want another to go thru, but to reach out for comfort. I think, as you said, your Dad & Sister there, yes, they get updates, but to actually experience this and be present with you, is a whole different feel, and becomes much more real. just even the dr. Walking through door and sitting down which takes seconds, but seem like an hour went in that moment...uhhh Idk what brought me to your video actually, but ive watched a lot of them today. Happy to see you have so much support from a lot of people and your family is amazing... ❤❤❤
Thank you for speaking out about your diagnosis. My daughter found a lump on breast last year. We did the ultrasound. It was rated rad 3 so they didn't do a biopsy. Now they've found a lesion on her bone. I'm terrified for her appointment monday. I will be pushing for biopsy. Luckily we have a good cancer center here. We really feel they down played it. Doctor's need to start screening younger people, even a blood test. Sending love prayers and healing your way. Your videos are really helping young people💜💞
I know that my wife still hasn't gotten over the day I arrived in intensive care for my brain tumor and the doctor told her they didn't know if I would make it through the night... It's hard for us to hear, but even more so for the family. I understand that this appointment stressed your father. Stay strong, all of you
You have such grace despite all you are going through. I simply cant imagine what you have to deal with. New clinical trials are out there so im hoping and praying there will be one to suit you very soon.Take care ❤
I've been watching your whole journey and while I understood when you've said in the past that it will most likely come back, this update really hit me for some reason. I'm tearing up over a woman I follow on the internet as if it's my friend even though we've never even talked or met before! The internet is a funny thing. Continuing to follow your journey and support you here from the US and I hope you & your family start hearing some better news soon. In the meantime like you always say, stay positive and take it one day at a time. Cherish that you have your family with you and find comfort in each other during times that are rough like this!
Sending you so much love Eireann ❤ thank you for saying that it’s ok to feel shit sometimes, it’s ok to cry, and it’s ok to rest. Thank you for being real and relatable and doing all of this. You’re surrounded by so much love, in your real life and online and all your supporters are praying science catches up xxx
It is good news it hasn't changed or come back. Everything you're feeling, you're entitled to feel. I'm glad you're back in Ireland now, and you can be close to your family again. The support network you'll have now will help boost your mood, especially on those down days. I am sending you lots of love.
Hi Eireann, I have just found your channel and listened to your update regarding your brain tumour. Firstly, I want to say that I know nothing about this but you are the bravest, most amazing young girl and I will keep you in my heart and I hope and pray you will get good news soon. You are helping others in your situation and anyone with any king of cancer. Aine
Éireann, it's your health journey. Don't let them talk you out of or into anything you are not comfortable with. Their "sorry" will be worthless if something is missed in that 6 months. You stay strong luachmhar. Big hugs and love from Montana.
I have never wanted to give anyone a big Hug as much as I wish I could hug you Eireann. I could see you strggling so much to get through this without crying and it brought tears to my eyes. You have so many prayers from me. I also wanted to tell you to never give up on hope. There are new things everyday in the fight against Cancer and you just need the one that will work for you. What a beautiful woman inside and out you are and you deserve the best! Big Hug for you
Have you heard of this guy - Professor Richard Scolyer AO? He's a scientist who does research on melanoma, and he was diagnosed with glioblastoma a couple of years ago, I think. He used himself as a guinea pig and had melanoma treatments used in his own cancer. He's now cancer free! It might be something to look into to see if they start trials for this.
He is a wonderful individual who has made major contributions recently to glioblastoma research. Unfortunately, his specific treatment is not yet available for use in other patients at this time. However, that said, it is being used to develop treatments in the future. The next few years is very possible. I suggested this research to Eireann a few months back when he marked his first 12 month 'tumour free' anniversary. He is stage 4 but is doing remarkably well. His research/results have been groundbreaking.
I'm glad to hear your MRI came out well, though as someone who has dealt with several quite serious illnesses/diseases over the last 20+ years, I know how you felt when you were kind of seeking an answer that physicians are not willing to go that far with, so you feel a bit like you're left hanging, so to speak. The one thing I've always tried to keep focus on is that none of us are even promised tomorrow, so every day we make it through, it truly is a blessing.
Hello, Éireann! I'm sorry they aren't giving you the answers you want. Good, bad, or otherwise isn't in the book for now. Breathe and be grateful for the now in your life. Love Devon, your family, your friends and each day. We should all be doing that, but we don't have any diagnosis hanging over our heads and don't think about whether or not we'll wake up tomorrow. All of us are in the same boat. Live in the now. That's all we have. I can't possibly know how you feel. I can only tell you to be patient and positive and live life as best as you can. It's easy for me to say this, but it's what I tell myself. I'm grateful for everything, you do that too. Angels are watching. Don't make them cry. Peace, happiness and so much love. 💕💕💕
I have a brain tumor too Got surgery and radiotherapy three years ago You will make it Every day is just another fight Good luck you are very courageous
My feelings are... you are going to be just fine. One day at a time, beautiful! We're praying for you 🙏! (I swear... you get more beautiful every day). God has you in the palm of His hand! ❤
Thank you so much sweet Eireann for your inspiring update. ❤️ I am praying for you and your family. 🙏🏼🕯️ I have Grade IV unmethylated GBM but I am much older than you. I am very thankful for the many people who are praying for me. You are very special and such a blessing to us. Every time I see an Oncologist I come out crying. But God is with us and will carry us as a loving Shepherd carries His lambs in His arms. Love and blessings from Melbourne Australia.💝
I just came across you this morning and you are the sweetest and so beautiful!! I am praying for you precious girl!! God may have another plan for you!! Stay hopeful and strong!! 💕💕
You are an absolute inspiration, so strong and dignified despite what you are having to face. I hope all future news is good for you and you kick this terrible disease.
Sweetie I feel for you and can’t begin to imagine how difficult this process is. You are a strong cookie 😊Bless you sweet young lady. Sending love and healing. ❤
Hi Eireann, always checking in for updates on how you’re doing. I’d just hoped to suggest; it may be well worth checking on TH-cam people who’ve beat cancer with raw vegan diets. I’ve heard some really incredible testimonials there! I’ve had a bit of a different experience of having MS, and raw food has really helped me to turn my life around. Thoughts and prayers are with you and yours! Keep your head up, you’ve got this! You will get through it ❤
I saw your video. I don’t pray often, and when I do I make sure it’s only for others and not myself. I prayed for you after watching this, I hope a miracle happens. Please remember, positive thinking can move mountains. Your body can fight this, and please look into metabolic therapy
I’m really sorry about what you’re going through. I have cancer as well. I’ve had several but my stomach cancer is inoperable & untreatable. You’re really brave & strong. I will pray for you. Just stay positive. One day at a time. 💖💕
I'm sorry you weren't given a different opinion, I'm sorry for what you are going through.. Our world is changing so quickly, one thing today and something so different tomorrow, let's all hope that the doctors, science and experts have a breakthrough. I know that sounds farfetched but breakthroughs have happened for many things over the years and how great would it be if it happened for you. You are very positive and it's sweet for you to share what you are going through, especially to help others who are also going through what you are experiencing. I continue to hope and pray that you get better news as you go along.
You are such a trooper beautiful Eireann. You are always in my heart and prayers. There is always hope and miracles do happen. Sending you lots of love and hugs ❤️
Éireann - Glad to see you're staying positive and that the move was not so bad. I agree with you that you should push for continued 12-week MRIs. Based on my (limited) medical knowledge as an imaging technologist, I very much think that keeping on a 4X/yr. MRI schedule is wise, especially considering your young age and diagnosis. Months matter when we're talking about cancer (especially cancer where the science is still pretty...flexible), and despite the (temporary) scanxiety, more frequent imaging will likely put your mind at greater ease as well, while giving your doctors a really good chance to catch recurrence when it's minor, which could result in a far better outcome. These types of cancer are so poorly-understood that I really think you have a fighting chance. Considering how few people face this kind of diagnosis, and how poorly our collective understanding of this kind of cancer really is, despite the concurrence of a bunch of radiologists and oncologists (across 2 nations), I do think that hope is warranted. And I'm glad your personality tends towards positivity, because that's a barrier that few people are able to cross. Please keep us updated, and I wish you all the best.
Been following you for a while now and it's so inspiring to see how brave, genuine and honest you are while sharing your story with the world. Hopefully you eventually get into the clinical trial you mentioned or find an even better one! Wishing you all the best Éireann!
You are so brave! I give you so much credit for going through this in the way that you are doing. A church friend of mine has the same cancer as you, and she's just been through a 2nd round of chemo. She also has an electrode therapy that is continuous (a portable device that she wears almost all day long) to apparently keep any regrowth at bay. The downside - she has to keep her head shaved all the time. So, her hair was something she had to give up in order to hopefully have more years ahead. Thank you for continuing to share your journey here. You're not alone and you have a diverse community here on TH-cam cheering you on :) Hugs from Wisconsin, USA.
Other than my 76 year old mother....you are hands down the strongest woman I know!!! ❤ I pray for you always and love and enjoy seeing you getting out there with Devin and enjoying life!! Just keep your faith you are a beautiful person and I am blessed to follow you and tell you how much of an inspiration of courage and encouragement you are...I’d call this whole thing slaying your dragons...so keep slaying!!! Someday you will slay the last one and call victory!!! ❤❤❤
2nd, i'm just so glad you are with your family you can lean on them as well as your fiancé you are not alone and you also have all of us. We are all praying for you. Also its good your doctors have your records that's a big help i'm sure
Hi Eireann, good to see ya! Thanks for update. Just wanna say it’s ok not to be ok! What you’re going through is tough and it’s important that you can express your feelings openly, which you are doing with great courage! I’m glad you have Devon and your family with you. Good luck with your appointment during the week. Stay strong, and keep asking questions! Xx
You're amazing and so strong! With that being said, you can still cry and share your negative feelings. It doesn't make you weak or a "downer". You're inspiring regardless. We're all thinking of you! ❤️
I wish I could have hugged you @7:25. You’re such a sweetheart, Eireann. Don’t worry too much. You’re very young and strong. I have no doubt that you’ll persevere. ❤ from NY.
What is going to happen in future leave it.. Today yes we all have only present moment to live.. I m sitting miles away from you but still when i think of you, your wisdom, patience in such adverse situation in such small age... You are inspiration.. ❤❤❤❤❤
Thank you for being honest! XOXOXO I had brain surgery in 2020 they got what they could but now i have 3 tumors (original one is back and brought 2 friends) Its a rollercoaster! I have been depressed and frustrated, thank you for being so honest! IT sux and ya keep hoping for better news. I do MRI's every 6 months because they are worried about all the contrast might do damage to my kidneys and liver. Scansiety is REAL!!!! And putting your head in that tube being pinned down SUX! i am a bit Closter phobic since starting all this , i wasnt before. I so needed to hear your message today Thank you so much! Its really difficult. BIG HUGS keep smiling :)
I had breast cancer in 2006, and was told about the odds of cancer returning, and not necessarily in the same place, and I felt as though no matter what I was doing, in the back of my mind I was constantly thinking about "having cancer". I let those thought overshadow my life for so long, and it has now been almost 20 years. Don't let your worries overshadow your joy, I also believe that your thoughts have a major impact on your physical health, and there is power in positive thinking. If you live your life in fear, you are not really living.
Hi Eireann, I’m sorry the news wasn’t different or better. That’s got to be so hard. I’m sure it’s more validating that your dad and your sister heard the news too. I understand exactly what you meant. I’m a praying girl. I hope that’s ok with you so I will continue continue to keep you on my prayer list. Hugs your way.
I was thinking about you again this morning, and I wanted to say how grateful I am for you and your videos. I have had a major loss in my life (several of them actually) and I found myself getting down this morning. In that moment, the paradise I live in transformed into a very sad place, full of tears. Then I thought of you and something you said, that it's strange knowing how your life will end, so be present, be grateful, be kind and loving. It helped me reframe my present moment. I thought of you and how it's all right in front of you, there's no looking away from it, and how I still have the luxury of not knowing and in that, the gift of time (or the illusion?). Though we will all know at some point in our lives, I do not know now and that is so easily taken for granted. So thank you for reminding me of how precious and short life is. I'm hoping and hoping and hoping that the next answer you get brings you an alternate approach and a glimmer of hope. Sending love and thanks for you.
10:45 My daughter has the same kind of tumor. She had surgery in June. She will be going on a new medication called vorasidenib, which is one of the most promising drugs in 20 years for low grade glioma. Please ask your doctor about this medication. I wish you the very best.
Thank you for the update. Also, thank you for reminding us to appreciate everyday, to live and love....sometimes gets forgotten with the responsibilities upon us.
I definitely agree with you regarding the second opinion especially since it took so long for the diagnosis. Keep positive you have science on your side as they are working on treatments all the time. Even cures ❤
You are such a wonderful brave woman, I wish you all the best and thank you for your honest words. I loved what you said about how beautiful life is and how important it is to enjoy it while you still have it. Best wishes from Germany!❤🙏
Eireann , all I can say is fight, fight, fight and remember that each person you ask is giving their opinion and their interpretation. It’s your life and your fight ,not theirs ,so grab it and keep fighting.
I am sending hugs!❤ Mine won't compare to your family and Devon, who love you so very much!!🥲❤️ I pray for hope and happiness for you, and a long life filled with this love; meeting old friends, making new ones, and seeing new milestones. Xx
Don’t apologize for being sad - who wouldn’t be? You are going thru so much. Allow yourself those emotions when they come. You can 100% be super sad but still be hopeful for a change, a cure. I hope you get good news on your next appt. ❤
You are an incredible person, braver than I could ever be. But always remember that it’s ok, and absolutely normal, to have days where you don’t or can’t keep everything bottled up. We’re all rooting for you and if you ever find yourself needing support or help, or just a place to share the things you love, we are here for you. Don’t lose hope, science and medicine is always evolving and improving! I’m studying Forensic Psychology at University and we’re always being reminded that research, evidence etc. are constantly changing and improving. Always remember that. We’re all here for you, you got this! ❤
Never give up Hope. It is sometimes all we have to keep us moving forward. You have so many people pulling for you and praying for a new treatment for all the folks that are going through a very hard time. You are handling this with such grace You hang on to the family and friends that are there for you. Sending prayers and hugs for all of you.
Take heart Eireann! Your extremely rare braf v600e mutation is actually a big advantage in your type of tumor. There is new and emerging evidence that long term tumor control is possible with braf inhibiting drugs.
My husband was diagnosed with Glioblastoma Multiforme in Dec. 2013. They gave him 2 years to live max. He is still with us!! He went through radiation and chemo. He also had a change in seizure med. Don’t lose hope!! The doctors have to say the worst case scenario. God can do miracles!! I know it is a scary not knowing what the future holds. Just live each day your best with your loved ones! Reading the Psalms helped me when my husband was going through his routine MRIs every three months. Sending much love and prayers!! ❤️🙏🏼
How amazing! God bless you both!! 🙏 ❤️
How wonderful for you. My brother was diagnosed with GBM in May 2018 and passed on New Years' Eve 2019. It's such an awful dissease.
@@kats_journey_00 So sorry to hear!! My condolences. 😔It is an awful disease. There are continuing to do research and clinical trials. Praying they will find a cure soon!!
That’s awesome!
Praise the Lord!
I heard an interview with a cancer researcher. He said not to give up hope and to keep getting treatments because cancer breakthroughs are happening so often, and the pipeline is full, what looks hopeless today could be curable in the not too distant future.
I also read another statistic that I think is important to remember. Not all doctors or cancer centers are comparable. They found that people with cancer who were willing to travel for the best treatment lived 50% longer (if my memory serves me). Should you ever encounter a recurrence, look for the best doctor/surgeon in the world for your particular cancer type. Raise money if you need to, I would gladly donate. We all want you to live the long, happy life you deserve, Eireann.
This is an excellent comment!
It is always helpful to be rich. I can only afford to go to my local cancer center for my treatment. I lack the beauty and TH-cam channel to raise money.
@@drwrap3431this was heartbreaking to read- what are you battling and can we donate?
@@drwrap3431 True. Money has always bought better health to those smart enough to use it wisely.
I all honesty, there hasn't been any true development (read: breakthrough) since 2017. There's a lot of focus on prolonged treatment (which introduces a lot of side effects) but for certain cancers they're still clueless on how to eliminate the cause. A lot of so called "progress" you read about is targeted towards cancers like leukemia, which can be dealt with a lot more effective and efficient these days. But those have been curable for quite some time. I'm confident that humanity will eventually be able to treat most cancers successfully, but none of us will live to see that happen. That doesn't mean there isn't any hope for Éireann, on the contrary, but it doesn't hurt te be realistic.
My dear, I don’t know how is living with the fear of a new tumor appearing, but what I do know is that the only difference between you and me is that you've had a tumor and I haven't. But that does not make it more likely that I will live longer than you, in fact I am much older than you and logically I will leave sooner. what I want to tell you is that we all carry the danger of dying at any moment, either from an illness, from falling down the stairs ,from an accident... Nobody knows! You are doing very well, beautiful. Cry, laugh, scream, enjoy and let go because life is the moment and that what we have lived, tomorrow does not exist for anyone. A big hug.
How beautifully said 🙏. I too am an older woman and these are my exact thoughts. 🫶🏻
I am 67 and you said this so beautifully and I agree fully!
@@karinasanchez3285Thank you. A’m 62 next september.
@@marjilaplante9579 We are still youngs. I’ll de 62 next Setember. And i don’t think in tomorrow. ❤
Fostering that led to adoption in my fifties I'm raising my boys, 18 and 14 now, autism and adhd, and have a 44 year old daughter... And an amazing husband.
Never a complaint out of me♥️🙏
My sisters brain tumor was inoperable until 6 mos before it started growing they developed a treatment… praying for you to have the same “save” right before you need it (a long time from now I hope) 💛🙏🏻
That’s wonderful 💕
Praying for a healing for everyone amen try cannabis oil and THC and worm medicine for animals to kill cancer amen
How is she now? ❤
i hope and pray she doing good
😊😊😊😊😢@@girlloveshemp642
My daughter turned 22 on October 23, 2023. She has stage 4 Glioblastoma. She had her left amygdula and anterior temporal lobe removed. Pathology came back pretty wild. Her cells mutated 400 times. She had radiation for 6 weeks and is taking Keytruda. We are trying not to be sad everyday but it is tough. Thank you for sharing your experiences. I hope you and my daughter will live a long life. ❤
all the best for you daughter!
what do you mean her cells mutated 400 times, how do you measure that?
My mother was diagnosed with stage 4 cancer at 60. She lived a beautiful 25 more years and died peacefully at 85!!! Doctors can only guess. Anything can happen and anything always does! Sending lots of love ❤ and hope.
I think the fact that your tumor hasn't changed is very good news. The fact that the Dr. is putting you on 6 months MRI schedule means that the tumor has not moved. I feel positive for you. I know that everything will work out at the end. Allow yourself to have sad days. Everything will be all right.
Agreed! But from across the world away Im wondering why tests are sent to another country?? If Eirann lives in Ireland, why is she letting them send anything to England?
I would try to be 100% sure it's not for financial reasons. That's not an entirely absent factor in the administration of healthcare.
@@rubytuesday1316I'm assuming a bigger country has more research and such going on.
London has some of the best medical facilities in the world and compared to traveling to different medical facilities in the US it’s not far from Ireland.
@@lisayoung5136 Wow - So interesting
Omg, my mom just past away from glioblastom grade 4, only 14 months we had after surgery, we had it all- ray therapy, chemical, mri multiple times, epilepsy, she was fading every day, l was with her every day, left my job, she died in my arms. The grief is outstanding.
Thanks for your honesty Éireann - please don't feel you need to apologise for your less positive updates. You have an inspiring attitude. Best wishes to you and your famiy.
It helps others so much who are struggling with similar issues to hear these stories
Hello Éireann, this is my first post to you. I have watched nearly all of your updates. I survived a hemorrhagic stroke about 5½ years ago, when I was 55 years old. By all medical accounts, I should not have survived. They don't know how or why I survived. It remains a mystery. I have high blood pressure. I also had a heart attack and a seizure when I collapsed from the stroke. I take daily medication. My point - There is something deep inside all of us that doctors cannot regulate. It is the will to live. Some have a stronger will. I can see it in your eyes that you have that same will. You are inspiring beyond explanation. It is amazing to see such a strong super human. I believe that every single person who watches your videos, wants you to live to a very old age. You have so much life in your eyes. I see hope too. Fight for all you've got inside you. You are very powerful! ~ Dave.
Dave I am so so sorry to hear that but I am so incredibly happy to hear that you’re okay. You’re such a lucky person and I am beyond happy for you. This comment literally made me cry so thank you so so much for being so kind and for sharing your story with me. I am forever grateful for your support and kindness 🙏
@@diaryofeireann 🥰 I learned that there are two ways to go when you are facing your own mortality: 1) You can fall into the deep well of despair and feel even worse or 2) You can continue to do like you are doing now - by sharing your journey, and being that powerful light that guides you through the tunnels of the unknown. After I was released from the hospital, I began writing a journal online; and I shared it with whoever wanted to read it. I wanted to remember everything I felt and did while I was healing. It was the greatest therapy, and it still is to this day. What you are doing is giving hope to everyone. You have this special gift, this special purpose to share every nuance, every stage of your journey - all the peaks and valleys, every step, with the thousands of people online who only know your story from afar, and yet they still feel like family. Several years from now, when the day comes when you watch these videos again, your long journey will reveal how strong you were, how much stronger you have become, and just how much you have grown as a wonderful, beautiful human being.
Did you take the jab young lady, that was told to be safe and effective? @@diaryofeireann
Thank you so so much 💛 Your words are so kind and you have done amazingly. I would love to read your journal!
Nice words, although it doesn't always work. But it is true that we must always fight to maximize our chances. I had many severe diseases, and by not giving up and reacting smartly you may have better outcomes. Also, do not always believe doctors blindly. Pick and read latest research papers and do your own analysis. That's how I found a very high steroid treatment for my condition recently issued by Mayo clinics that no doctor knew about and they thought I was crazy to take such a high dose (I took the exact same dose as recommended in this case report from Mayo clinics). Doctors often think they know and understand everything while it is super rare that they simply know more than 50% of all up to date knowledge within their own specialty (they earn enough money to not spend evenings or weekends deepening their knowledge)
I understand your anxiety sweetie! I also have a Brain Tumor, I’m at 6 months for follow up MRIs. My Neurologist feels I can go yearly but I said no way! I want to give you a big hug hon! Keeping you in my prayers ❤
God bless you in your recovery!
You are amazing. I would never have been able to keep people informed about my progress - different cancer but Stage 4. I just 'phoned my family on diagnosis, told them how long treatment would take, told them of my prospects of success, and declared radio silence until treatment was over. That was 12 years ago. I was lucky, but that scansiety (mostly blood test anxiety in my case), is real. Half way between tests (they went on for 5 years post treatment), I began counting down to the next. The week between test and Consultant appointment awash with anxiety. All the very, very best to you Éireann. ♥🙏
Our God is an awesome God. Blessings for continuous remission!
@@camiburchett9602 Thank you so much, and amen. I was diagnosed purely by chance. I had no relevant symptoms, but a trivial blood test for a different condition entirely rang the alarm bells.
Eireann I *heard* and *felt* you when you said you know what you're going to die from. Being hyper aware of your own mortality is neither normal nor easy, nor anything someone who doesn't know can relate to. I'm hoping against the odds (for both of us) because stats are just stats after all, but I think mainly it's just about ignoring it, isn't it? I SO understand being at the doctor's and not being given hope (my doctor's line was "let's not write you off *just* yet"). Sending you so much love and understanding and huge hugs xxxxx And your positivity is bolstering to all of us
Believe it or not, there is power in the thoughts you carry. Don't tell yourself you know what you will die from...decide you won't die, keep your thoughts on this belief and live large!
Praying for you! Remember you’re not a statistic and every person is different!
Except for the pharma-industrial complex
So glad to see you back. I feel like I was holding my breath since your last video. Grand new and frustrating news. You are very good and processing this all. I’m rooting for you 🎉💚
@@pappypapnot sure what this means but Pharma gives back ++ including meds for compassionate use to many patients. Without Pharma, life expectancies would be what they were in the Middle Ages
Fellow Irishman here, My mam had a Glibo and unfortunately it was not operable from day 1. She passed in April. I found your channel a few months back and have been following your story ever since.
I just want to say your attitude and outlook on life as a whole has comforted me a lot in this hard time.
My mam had the same attitude as yourself when facing all of her challenges that comes with this sort of thing and your way reminds me of her determination and positive outlook.
Keep pushing forward and living everyday to the fullest and I’m sure you have many years of a happy life ahead of you !
You are not at this stage and may never be there but it might be worth mentioning Carr-T cell therapy treatment for BTs if you ever need more treatment down the road. As I’ve read it has been successful in recent clinical trials.
Keep being you, you are a light in strangers lives and you have certainly lit up the dark in mine.
Thank you.
DG
If I were you Eireann I would go on living life with as much passion, spontaneity, love and compassion as you can muster since none of us know when our time will come. No one knows how much time we have left or how we will die so try not to worry about it and just continue to live your life each day with as much happiness and love that you can muster. I live with a disability and god knows I can get down some days but if I surrendered to my thoughts I'd never leave the house and would just merely exist. My Dad has recently decided he wants no treatment for metastatic prostate cancer and my Mum is very fragile as well with heart and lung issues but they continue to live as though every day is an opportunity to see another sunrise and another sunset. You are young and let's hope you have many many more years left before your time and until then live life, be adventurous, see the sights, smell the flowers, eat the ice cream and love with all your heart. It's all any of us can do. Sending you so much love and support from Ontario, Canada.
Eireann, your positivity is another tool in your toolbox in this fight. It is an important weapon to have at the forefront of this battle. The road ahead may appear rocky, but I can’t imagine anyone who is more well-equipped to win this challenge. I will continue to pay for you, Devin, and your family. 🥰
I am looking forward to the day that you come on a video and tell us you are 100% better!!❤❤❤
same here🤲
Énireann, this is my first time viewing your journey with brain cancer. When my team of brain cancer doctors told me in May 2024, I didn't believe it. Just finished radiation and am still taking a chemotherapy pill. My next MRI is August 29. My cancer is high-grade glioma benign tumor of cerebral meninges. Here is what I believe, when God is ready to me to die, I will. I have prayed and asked God to let me live. I believe God has answered my prayer. I am praying God will let you live as long as you want to. I will keep you in my prayers. God bless you.
High grade benign glioma? High grade gliomas are not benign.. they are extremely malignant and very fatal brain tumors. If the terminology you are using is correct, most if not all gliomas, especially glioblastoma are incredibly malignant and almost always fatal brain tumors..
❤️🙏🏼🕯️✝️ May the Lord bless you on this journey. We have great hope in Him. It is certainly a difficult time. I am just finishing my radiotherapy this week for Grade IV GBM. Love and blessings to you.
If it’s benign then u don’t have cancer
@@MrTn629that’s what I said
I have had a brain tumor for almost 17 years. It’s benign but there have been changes. I get an MRI every 6 months and also see my neurologist. My most recent appointment, I saw the neurosurgeon again because there was another slight change. I haven’t seen the surgeon in 14 years. I do what the neurologist says every time I see him, I enjoy my life and my family. It’s okay to have feelings! This is a tough time. It’s okay to advocate for yourself! If there is something you’re uncomfortable about, you can speak up. Don’t feel bad. This is your life! I agree for getting a second opinion. I do pray for you all the way across the pond in the United States. I originally would go to my appointments with a list of questions since my memory was affected by the tumor. Thank you for the update!
I started watching your videos because we are the same age and I had an MRI about 1.5 years ago where they found a thickened region deep in my head and they weren’t sure if it was a brain tumor. I have basically been told that I will regularly (every 4 months) get MRI scans and it will either never grow or I will have a low grade glioma. The unknown of it all is something I wouldn’t wish on anyone.
The hospitals are just seeing tumors everyday, thats why they will give you the standard information. Always remember things can be different for everyone, especially you dont fit the typical age and health criteria, so you could be the lucky one since your young :) There are a lot of ppl talking about how they was only given some month to live, but are tumorfree for over 10 or 20years and so on and i believe it can be you too ❤ keep hope, even if they talk so hopeless about that. If you watch some ppl sharing about how they overcame everything and what they have tried it could help you :) ! 🎉 I hope you dont feel too much pressure and fear and wish you the best, you can be cured 💖.💖
Every oncologist hears the same questions from patients about their chance of longevity and if there are any new special treatments ,they have patients that die frequently
from cancer,it is a very hard life to take as a human and they also deserve respect and patience as when you are asking questions they have somones family calling for help
as they have found out a member to be terminal...the best thing is to type out questions on paper and if time allows have the oncologist answer the questions right there or email the answers back to you asap.
Sweet girl, I, as a momma, want to hold you, hug you, wrap you in my arms and pray. Your inner beauty is absolutely shining through. I cannot imagine how this feels. What I can say, is just like they have a clinical trial (damn missing it this time) new things are happening every day. ANYTHNG could be different going forward. But, still, I cannot imagine for you or your family. DO NOT reduce your MRI's if at all possible. I have never seen such a sweeter, kinder, more lovely person on here, and I am just so deeply sorry you have to go through this. You have a whole internet family out here praying for you and your loved ones. Keep up your positivity but of course, let yourself grieve and be sad as you need.
Christ Jesus, please hold Eireann's hand as she travels through this difficult course. She needs you. All power in heaven and earth has been given you and whatever the course, you can bring her through. Thank you.
Amen 🙏🏻
@@donaldjuan4934because we are here to learn from our traumas, we learn to value life and love. Maybe you don’t have faith or spirituality and that’s everyone’s choice. Those who are spiritually strong, believe we have a soul plan, sometimes we are only on the earth realm for a shorter period. Eireann’s cancer may well heal, and she would have learnt a lot from her experiences. Giving and feeling hope is far more powerful in manifesting our own reality - with or without any belief system. You’re entitled to your view, it’s always respected and on community forums or videos it’s important to give hope, love and an open heart/mind. In peace ✌🏻
Amen.God bless you Eireann.Praying.
I have my follow up MRI in 3 weeks. I feel you. I think it's a good decision to stay positive. We don't know what will come in the future. They research and test all the time, maybe there will be a treatment in the future. Please don't give up hope. Try living every day to the fullest, enjoy your loved ones and all the experiences. I get it to get stuck in this circle of worrying and it feels like you can't enjoy anything in this moment and it's really hard to live life and be present. But you have so much to look forward too, you're such a beautiful soul and I wish for you to have as many happy moments as possible. Biiiig hug. ❤
A lot will change just in 5 years with brain tumor treatmemt! And 10 even more so. You will live a long full life. We could die crossing a crosswalk tomorrow. My friend knew his whole life he wouldnt make it past age 25 with cystic fibrosis. You will be ok❤❤ I have this incredibly strong affinity to be very right and I feel good about you❤
Eireann, we are on the same schedule. I have a serious blood condition that could turn into cancer and have to go to a cancer center every 3 months to be checked. Your last MRI, I was also about to get labs. I always try to remind myself that medical advancements are moving exponentially as we speak and soon, there will be answers for all of these things. Praying for you ❤
I appreciate your honesty. I’ve just finished my immunotherapy treatments and dealing with side effects. Thanks for the encouragement for giving grace and feeling my feelings. I wish you all best and much love from Gensac, France.
Your energy is so beautiful, and you would be so comforting for anyone to come across your videos in experiencing what you have endured, as they are reaching out desperatly, to not feel alone, not that anyone would want another to go thru, but to reach out for comfort.
I think, as you said, your Dad & Sister there, yes, they get updates, but to actually experience this and be present with you, is a whole different feel, and becomes much more real. just even the dr. Walking through door and sitting down which takes seconds, but seem like an hour went in that moment...uhhh
Idk what brought me to your video actually, but ive watched a lot of them today.
Happy to see you have so much support from a lot of people and your family is amazing...
❤❤❤
Thank you for speaking out about your diagnosis. My daughter found a lump on breast last year. We did the ultrasound. It was rated rad 3 so they didn't do a biopsy. Now they've found a lesion on her bone. I'm terrified for her appointment monday. I will be pushing for biopsy. Luckily we have a good cancer center here. We really feel they down played it. Doctor's need to start screening younger people, even a blood test. Sending love prayers and healing your way. Your videos are really helping young people💜💞
I know that my wife still hasn't gotten over the day I arrived in intensive care for my brain tumor and the doctor told her they didn't know if I would make it through the night... It's hard for us to hear, but even more so for the family. I understand that this appointment stressed your father. Stay strong, all of you
You have such grace despite all you are going through. I simply cant imagine what you have to deal with. New clinical trials are out there so im hoping and praying there will be one to suit you very soon.Take care ❤
i thought the same❤❤❤ so graceful
praying for you🩷🩷
I've been watching your whole journey and while I understood when you've said in the past that it will most likely come back, this update really hit me for some reason. I'm tearing up over a woman I follow on the internet as if it's my friend even though we've never even talked or met before! The internet is a funny thing. Continuing to follow your journey and support you here from the US and I hope you & your family start hearing some better news soon. In the meantime like you always say, stay positive and take it one day at a time. Cherish that you have your family with you and find comfort in each other during times that are rough like this!
Praying that you live a very long, tumor free life Eireann! 🙏🏻🙏🏻🙏🏻
Sending you so much love Eireann ❤ thank you for saying that it’s ok to feel shit sometimes, it’s ok to cry, and it’s ok to rest. Thank you for being real and relatable and doing all of this. You’re surrounded by so much love, in your real life and online and all your supporters are praying science catches up xxx
You are a light and so brave. Thank you for sharing. I’m sorry you are going through this. Praying for ways to kill the cancer!!
It is good news it hasn't changed or come back. Everything you're feeling, you're entitled to feel. I'm glad you're back in Ireland now, and you can be close to your family again. The support network you'll have now will help boost your mood, especially on those down days. I am sending you lots of love.
Thank you so much 🙏❤️
Hi Eireann, I have just found your channel and listened to your update regarding your brain tumour. Firstly, I want to say that I know nothing about this but you are the bravest, most amazing young girl and I will keep you in my heart and I hope and pray you will get good news soon. You are helping others in your situation and anyone with any king of cancer. Aine
Sending you lots of love - hope you are getting support xxx
So many people are praying and sending positive thoughts. You are surrounded by love all over the world.
🌞🦋🙏🧚♀️❤️
Éireann, it's your health journey. Don't let them talk you out of or into anything you are not comfortable with. Their "sorry" will be worthless if something is missed in that 6 months. You stay strong luachmhar. Big hugs and love from Montana.
We all pray for new and better cancertreatmentts. T-cells is one of them.
I have never wanted to give anyone a big Hug as much as I wish I could hug you Eireann. I could see you strggling so much to get through this without crying and it brought tears to my eyes. You have so many prayers from me. I also wanted to tell you to never give up on hope. There are new things everyday in the fight against Cancer and you just need the one that will work for you. What a beautiful woman inside and out you are and you deserve the best! Big Hug for you
Have you heard of this guy - Professor Richard Scolyer AO? He's a scientist who does research on melanoma, and he was diagnosed with glioblastoma a couple of years ago, I think. He used himself as a guinea pig and had melanoma treatments used in his own cancer. He's now cancer free! It might be something to look into to see if they start trials for this.
He is a wonderful individual who has made major contributions recently to glioblastoma research. Unfortunately, his specific treatment is not yet available for use in other patients at this time. However, that said, it is being used to develop treatments in the future. The next few years is very possible. I suggested this research to Eireann a few months back when he marked his first 12 month 'tumour free' anniversary. He is stage 4 but is doing remarkably well. His research/results have been groundbreaking.
I've seen huge numbers of glioblastomas since the 💉 rollout.@@katem3961
All glioblastoma are stage 4@@katem3961
I’m sending you a big hug. xxx
I'm glad to hear your MRI came out well, though as someone who has dealt with several quite serious illnesses/diseases over the last 20+ years, I know how you felt when you were kind of seeking an answer that physicians are not willing to go that far with, so you feel a bit like you're left hanging, so to speak. The one thing I've always tried to keep focus on is that none of us are even promised tomorrow, so every day we make it through, it truly is a blessing.
Eireann,live life everyday don't allow this ongoing problem too waste a day of your time. 50yrs later your still waiting for answers ❤
Hello, Éireann! I'm sorry they aren't giving you the answers you want. Good, bad, or otherwise isn't in the book for now. Breathe and be grateful for the now in your life. Love Devon, your family, your friends and each day.
We should all be doing that, but we don't have any diagnosis hanging over our heads and don't think about whether or not we'll wake up tomorrow.
All of us are in the same boat. Live in the now. That's all we have.
I can't possibly know how you feel. I can only tell you to be patient and positive and live life as best as you can. It's easy for me to say this, but it's what I tell myself. I'm grateful for everything, you do that too.
Angels are watching. Don't make them cry.
Peace, happiness and so much love. 💕💕💕
I have a brain tumor too Got surgery and radiotherapy three years ago You will make it Every day is just another fight Good luck you are very courageous
Thank you for your courage to share! Your positivity is contagious ❤ Sending you love 🧡
Even if the chances are 1 in a million- someone still has to be that 1, and why can’t it be you? 💜
My feelings are... you are going to be just fine. One day at a time, beautiful! We're praying for you 🙏! (I swear... you get more beautiful every day). God has you in the palm of His hand! ❤
Thank you so much sweet Eireann for your inspiring update. ❤️ I am praying for you and your family. 🙏🏼🕯️
I have Grade IV unmethylated GBM but I am much older than you. I am very thankful for the many people who are praying for me. You are very special and such a blessing to us. Every time I see an Oncologist I come out crying. But God is with us and will carry us as a loving Shepherd carries His lambs in His arms. Love and blessings from Melbourne Australia.💝
I just came across you this morning and you are the sweetest and so beautiful!! I am praying for you precious girl!! God may have another plan for you!! Stay hopeful and strong!! 💕💕
You are an absolute inspiration, so strong and dignified despite what you are having to face. I hope all future news is good for you and you kick this terrible disease.
Éireann, your grace is beautiful. ❤
😭❤️
Sweetie I feel for you and can’t begin to imagine how difficult this process is. You are a strong cookie 😊Bless you sweet young lady. Sending love and healing. ❤
You are such a beautiful, bright light. I pray they find an advancement in treatment, and you end up with the best news, and a potential cure. 💜🙏💜
Hi Eireann, always checking in for updates on how you’re doing. I’d just hoped to suggest; it may be well worth checking on TH-cam people who’ve beat cancer with raw vegan diets. I’ve heard some really incredible testimonials there! I’ve had a bit of a different experience of having MS, and raw food has really helped me to turn my life around. Thoughts and prayers are with you and yours! Keep your head up, you’ve got this! You will get through it ❤
I saw your video. I don’t pray often, and when I do I make sure it’s only for others and not myself. I prayed for you after watching this, I hope a miracle happens. Please remember, positive thinking can move mountains. Your body can fight this, and please look into metabolic therapy
I try to think of MRI machines as the worlds most expensive vibrating bed and enjoy it.
I used to work in mri. You sound like a dream patient 😊
I’m really sorry about what you’re going through. I have cancer as well. I’ve had several but my stomach cancer is inoperable & untreatable. You’re really brave & strong. I will pray for you. Just stay positive. One day at a time. 💖💕
I'm sorry you weren't given a different opinion, I'm sorry for what you are going through..
Our world is changing so quickly, one thing today and something so different tomorrow, let's all hope that the doctors, science and experts have a breakthrough.
I know that sounds farfetched but breakthroughs have happened for many things over the years and how great would it be if it happened for you.
You are very positive and it's sweet for you to share what you are going through, especially to help others who are also going through what you are experiencing.
I continue to hope and pray that you get better news as you go along.
You are such a trooper beautiful Eireann. You are always in my heart and prayers. There is always hope and miracles do happen. Sending you lots of love and hugs ❤️
Éireann - Glad to see you're staying positive and that the move was not so bad. I agree with you that you should push for continued 12-week MRIs. Based on my (limited) medical knowledge as an imaging technologist, I very much think that keeping on a 4X/yr. MRI schedule is wise, especially considering your young age and diagnosis. Months matter when we're talking about cancer (especially cancer where the science is still pretty...flexible), and despite the (temporary) scanxiety, more frequent imaging will likely put your mind at greater ease as well, while giving your doctors a really good chance to catch recurrence when it's minor, which could result in a far better outcome. These types of cancer are so poorly-understood that I really think you have a fighting chance. Considering how few people face this kind of diagnosis, and how poorly our collective understanding of this kind of cancer really is, despite the concurrence of a bunch of radiologists and oncologists (across 2 nations), I do think that hope is warranted. And I'm glad your personality tends towards positivity, because that's a barrier that few people are able to cross. Please keep us updated, and I wish you all the best.
Been following you for a while now and it's so inspiring to see how brave, genuine and honest you are while sharing your story with the world. Hopefully you eventually get into the clinical trial you mentioned or find an even better one! Wishing you all the best Éireann!
You are so brave! I give you so much credit for going through this in the way that you are doing. A church friend of mine has the same cancer as you, and she's just been through a 2nd round of chemo. She also has an electrode therapy that is continuous (a portable device that she wears almost all day long) to apparently keep any regrowth at bay. The downside - she has to keep her head shaved all the time. So, her hair was something she had to give up in order to hopefully have more years ahead. Thank you for continuing to share your journey here. You're not alone and you have a diverse community here on TH-cam cheering you on :) Hugs from Wisconsin, USA.
Other than my 76 year old mother....you are hands down the strongest woman I know!!! ❤ I pray for you always and love and enjoy seeing you getting out there with Devin and enjoying life!! Just keep your faith you are a beautiful person and I am blessed to follow you and tell you how much of an inspiration of courage and encouragement you are...I’d call this whole thing slaying your dragons...so keep slaying!!! Someday you will slay the last one and call victory!!! ❤❤❤
2nd, i'm just so glad you are with your family you can lean on them as well as your fiancé you are not alone and you also have all of us.
We are all praying for you. Also its good your doctors have your records that's a big help i'm sure
Hi Eireann, good to see ya! Thanks for update. Just wanna say it’s ok not to be ok! What you’re going through is tough and it’s important that you can express your feelings openly, which you are doing with great courage! I’m glad you have Devon and your family with you. Good luck with your appointment during the week. Stay strong, and keep asking questions! Xx
My heart !! 😢 your such a strong girl!!! Absolute inspiration to everyone!!!! Sending a virtual hug right now ❤
You're amazing and so strong! With that being said, you can still cry and share your negative feelings. It doesn't make you weak or a "downer". You're inspiring regardless. We're all thinking of you! ❤️
I wish I could have hugged you @7:25. You’re such a sweetheart, Eireann. Don’t worry too much. You’re very young and strong. I have no doubt that you’ll persevere. ❤ from NY.
Prayers!!! Thanks for the update. We are all here for you!
What is going to happen in future leave it.. Today yes we all have only present moment to live.. I m sitting miles away from you but still when i think of you, your wisdom, patience in such adverse situation in such small age... You are inspiration.. ❤❤❤❤❤
I Pray u get better
Thank you for sharing with us. You advocate every day! I’m advocating for my Mom right now.❤
Praying that the tumor never returns!! Miracles happen and I’m praying for a miracle for you! Stay positive!! You’re in my thoughts and prayers!
Thank you for being honest! XOXOXO I had brain surgery in 2020 they got what they could but now i have 3 tumors (original one is back and brought 2 friends) Its a rollercoaster! I have been depressed and frustrated, thank you for being so honest! IT sux and ya keep hoping for better news. I do MRI's every 6 months because they are worried about all the contrast might do damage to my kidneys and liver. Scansiety is REAL!!!! And putting your head in that tube being pinned down SUX! i am a bit Closter phobic since starting all this , i wasnt before. I so needed to hear your message today Thank you so much! Its really difficult. BIG HUGS keep smiling :)
Love you Eireann. Glad scans were clean. Best wishes to you from Minnesota.
I had breast cancer in 2006, and was told about the odds of cancer returning, and not necessarily in the same place, and I felt as though no matter what I was doing, in the back of my mind I was constantly thinking about "having cancer". I let those thought overshadow my life for so long, and it has now been almost 20 years. Don't let your worries overshadow your joy, I also believe that your thoughts have a major impact on your physical health, and there is power in positive thinking. If you live your life in fear, you are not really living.
Thank you for your update, Eiteann. You are strong and smart. My prayers are with you. Love from Georgia US ♥️🌍🌹🤗🌟
Big hugs, and prayers for you from little old New Brunswick, Canada 💜 All the good vibes being sent to you 💙
Hi Eireann, I’m sorry the news wasn’t different or better. That’s got to be so hard.
I’m sure it’s more validating that your dad and your sister heard the news too. I understand exactly what you meant.
I’m a praying girl. I hope that’s ok with you so I will continue continue to keep you on my prayer list. Hugs your way.
I was thinking about you again this morning, and I wanted to say how grateful I am for you and your videos. I have had a major loss in my life (several of them actually) and I found myself getting down this morning. In that moment, the paradise I live in transformed into a very sad place, full of tears. Then I thought of you and something you said, that it's strange knowing how your life will end, so be present, be grateful, be kind and loving. It helped me reframe my present moment. I thought of you and how it's all right in front of you, there's no looking away from it, and how I still have the luxury of not knowing and in that, the gift of time (or the illusion?). Though we will all know at some point in our lives, I do not know now and that is so easily taken for granted. So thank you for reminding me of how precious and short life is. I'm hoping and hoping and hoping that the next answer you get brings you an alternate approach and a glimmer of hope. Sending love and thanks for you.
10:45 My daughter has the same kind of tumor. She had surgery in June. She will be going on a new medication called vorasidenib, which is one of the most promising drugs in 20 years for low grade glioma. Please ask your doctor about this medication. I wish you the very best.
Thank you for the update. Also, thank you for reminding us to appreciate everyday, to live and love....sometimes gets forgotten with the responsibilities upon us.
Take it day by day, sending you all the love & strength 🩷🩷 we will be with you every step of the way! xx
I definitely agree with you regarding the second opinion especially since it took so long for the diagnosis. Keep positive you have science on your side as they are working on treatments all the time. Even cures ❤
You are so strong and beautiful inside and out. Stay strong and try to enjoy every moment God gives you.
You are such a wonderful brave woman, I wish you all the best and thank you for your honest words. I loved what you said about how beautiful life is and how important it is to enjoy it while you still have it. Best wishes from Germany!❤🙏
You've been changing lives with these little timecapsules Éireann.
Your strength is immense, your soul is beautiful, and you deserve the world.
Eireann , all I can say is fight, fight, fight and remember that each person you ask is giving their opinion and their interpretation. It’s your life and your fight ,not theirs ,so grab it and keep fighting.
I am sending hugs!❤ Mine won't compare to your family and Devon, who love you so very much!!🥲❤️ I pray for hope and happiness for you, and a long life filled with this love; meeting old friends, making new ones, and seeing new milestones. Xx
Sending you all my love from Germany dear Eireann ❤❤❤ You are in my prayers dear ❤❤❤
Don’t apologize for being sad - who wouldn’t be? You are going thru so much. Allow yourself those emotions when they come. You can 100% be super sad but still be hopeful for a change, a cure. I hope you get good news on your next appt. ❤
You are such an incredible person, I wish you only the best ❤
You are an incredible person, braver than I could ever be. But always remember that it’s ok, and absolutely normal, to have days where you don’t or can’t keep everything bottled up. We’re all rooting for you and if you ever find yourself needing support or help, or just a place to share the things you love, we are here for you. Don’t lose hope, science and medicine is always evolving and improving! I’m studying Forensic Psychology at University and we’re always being reminded that research, evidence etc. are constantly changing and improving. Always remember that. We’re all here for you, you got this! ❤
Never give up Hope. It is sometimes all we have to keep us moving forward. You have so many people pulling for you and praying for a new treatment for all the folks that are going through a very hard time. You are handling this with such grace You hang on to the family and friends that are there for you. Sending prayers and hugs for all of you.
Praying for you. Thank you for sharing your story.
Take heart Eireann! Your extremely rare braf v600e mutation is actually a big advantage in your type of tumor. There is new and emerging evidence that long term tumor control is possible with braf inhibiting drugs.