I've had my ileostomy for 15 yrs now (due to crohn's disease)......and I only order 2 products, my convatec bags & stoma powder - and that's it!! I can get 5-7 days wear time out of my bags....no skin problems, no leaks, great wear time.....I used to use paste, barrier wipes, duo derm, all sorts of stuff....but when I just went to using the stoma powder (I use the powder strictly right around my stoma only) I noticed how much better the seal was, like my bag would adhere to my skin so beautifully, then the wear time was also amazing....so ya, that's all I use, and to be honest, most times I'm just ordering my bags because a bottle of stoma powder lasts for quite a long time, so maybe 3x a year I have to order a bottle of stoma powder!! In my opinion, it's like less is better.....but I know everyone is different, has different issues, different techniques....just thought I'd share mine because after having a stoma for 15yrs now, I feel like a veteran in this area.....I wish everyone the best of luck with everything....I thank God everyday for my stoma, it saved my life - literally!! Be well my fellow ostomates!! ;)
Interesting. Several people post on here that are rookies,and some of the stuff they post is shite. I like your post. Shaving around the area is good too. I do this every time I changed my bag,6/7 days. I also you sto a powder,I also use barrier wipes I like them. I wash the area with warm water and soap too.. it’s a real event… I suffer with ocd so I do a proper job. Also I’m in the uk so all my stuff is free….
I'm a newbie, 3 weeks this Friday. I'm having great difficulty keeping the bags on and have had multiple leaks and a couple blowouts. Any kind of movement activity helps to loosen the seal rings. Simple walking will do it it, too. It really sucks! I should mention that I live in Hawaii and we're in humid season now. So, I'm sure that doesn't help. The hospital has me using the Hollister brand and I'm not at all happy with it, plus I'm developing sores. Right now I'm using a 1 piece bag, a barrier ring, stoma powder, paste to cover the sores and fill in any holes, skin prep wipes (that sting a lot), and barrier strips to hold the bag flanges down in place. Also, an adhesive remover, because as much as these products leak, there are areas where everything sticks like glue. Go figure! I hadn't heard of the skin barrier you showed. The first layer to put on before everything else and that makes so much sense! I'm surprised no one has mentioned it or offered it yet. I like the idea of the lemon essential oil and I'm going to look into that. I think "acidic" was the word you were looking for? I typically go the homeopathic way as often as possible, but then I got colorectal cancer, and just going along with what they're telling me now, for now. Thank you for the tips! I found your video very helpful.
I’ve stopped using adhesive remover and using lemongrass oil it’s a game changer thank you, I also use calamine lotion and pour that into one of the roller balls bottles too x
My mom in law has a ileostomy and she will be using ostomy pouches for 2 years or until the fístulas heal she gets her monthly supply each month and as soon as I receive it I put everything I use to Change her bag in a sandwich bag so for example I put her new image wafer, plus the pouch with the little brown plastic bag to despose the old and the Allkare Adhesive remover, 3M cavilan no sting barrier wipe, and the adapt ceraRing barrier ring there all in one place it’s helpful for wen we are in a hurry I just Grace a baggie and baby wipes and we are ready to change
Thanks for sharing! I’ve only had my ostomy for four months but I’m always interested in more natural resources. I love the idea of the lemon and the roller. I found the brands that are working for me but I’m definitely open to looking at using less chemicals on / in my body.
Kay Nichols your video helped me immensely, I am a new ostomy patient, I was using Coloplast from 11/16/18 to 12/05/18, a Certified Ostomy RN from the hospital taught me to just put the small golden waver on me and then my colostomy bag. Everything was going great, but then, later, the Visiting nurses finally one day (11/29) talked me into taking a "skin prep wipe", I think it was an "adhesive skin prep wipe", (it was in a in a rip packet), and she had me wipe it on my skin. Within an hour, I started noticing my hands would itch and burn, then the next day, it was my hands and my feet, then, over the next few days, I got itchy on about 50% of my whole body, especially in soft skin areas, like the upper underneath of my arms, the small of my back, my neck, chest, even my EYE LIDS itched! It was absolute TORTURE, I had a horrific all-over-body allergic reaction. On 12/03 at 1 AM, I took the bag off. I left it off for 11 hours. And all this time, when this was happening, I spoke to my VNA RN and others at the VNA at least 10 times about it over about a week's time, no one knew how to help me or what to do, I called my surgeons office three times, and I spoke to a Certified Ostomy RN one time that is at the hospital that I had surgery at. I should mention none of my issues were due to leakage, I had no leakage. I spent half a day Googling phrases like "Itchy hands and feet colostomy bag" with no answers, no one reported the type of allergic reaction I was having, at least I could not find anyone or anything about it, even the RN / DR's office said they'd - "Never heard of that type of reaction". RN's that have been doing this for 20 yrs had never heard of it!!! - Anyway, after that 11 hours I tried putting on just the wafer and the bag, no other products, but, that only lasted a day and I felt so tortured that I then took the bag off and went 27 hours bag-less, as my skin was still red and blistered. Once it seemed to calm down, I tried another brand, Hollister, I put it on, on Thursday December 6. (just right on my skin with the wafer first). I could only stand having it on from 6 am to 9 pm. I took it off that night, and my itching and burning and all-over-body allergic reaction, and my big red blistering surface of my skin were SO bad that when calling my nurse & my DR yielded no real actual help (they said take Benedryl, I tried it twice, it did nothing) , that I almost went to the E.R. Each time I took a bag off, I used an Adhesive Remover, so, that must have made everything worse. Now I am on DAY 4 of NO Bag, trapped at home, walking around with paper towels cupped in my left hand under my stoma at all times and doing everything one-handed, and, I was thinking that I was allergic to the BRANDS, I have been sitting here waiting for the mail to come, (of all things!); waiting for samples from NU-HOPE and from TRIO OSTOMY USA. (I was hoping to try them and not react). (As of today, 12/10/18, my skin is at 80% healed, my allergic reaction is a 85% better so I am ready to try a bag pretty soon.) In the meantime, I have been on the verge of tears. However, what your fantastic video has taught me is: (1.) I probably reacted to that wipe the RN told me to put on, as it must have been an adhesive (2.) I probably should try that Brava Coloplast Item #3105 protective sheet, and, ask my RN for all my COLOPLAST stuff back , as I handed it to her, all freaked out that I could not use it. It would have been nice if my RN or , like, ANYONE, had suggested I use something like that. The good news is, finally this past Friday my surgeons' office suggested something that I think is the exact same thing, but I did not realize it until just now, and I only have one, a sample, that thankfully my RN dropped off Friday afternoon. I have not tried it yet but I'm going to, it's called "Duo Derm" or something like that. Again, thank you SO much, Lynne Sullivan, Belchertown, Massachusetts. Update, as of 12/12, my skin and my allergies are about 95% better. I think by tomorrow I can finally put on a protective sheet and my wafer and bag. Hoping it will all work out and my allergic reaction will not return.
Aww bless you,for sore skin I use opus lavera cream ,I've never used adhesive remover but changing to coloplast and they stick so well might need it,you should be on antihistamine if your skin reacts,you need to see or phone a stoma nurse,they always say less is best,I've always used barrier wipe,and cleansing wipe,I do hope you find answer and I'll keep reading here,xxxx
Such an ordeal for you I'm new to this changed my bag 3 times in 20 hours now I have a build up of paste I cant revove so I just put on another bag hopefully when I change it the paste will come off as well
To remove leftover residue from the adhesive I use...a cotton pad and believe it or not.... lighter fluid! I got this tip from a ostomy rep, it's alot cheaper and made of the same thing as the name brands... get washing with dove soap, all clean, and don't have to worry about oil leaving any leftover that would weaken your wafer.
Loved your video. Use the same 3 products, minus my Eakin barrier ring is the large (eliminating the Coloplast sheet you use (Eakin breaths better and added security to 1pc) The same reaction to spray barrier along with sheet you use. As for removal...drum roll ‘pamper all natural wipes’ removes all adhesive or with warm water and cleans area. The adhesive removers create ‘glass like skin over time’. Have purchased Coloplast barrier cream, it’s wonderful (only a very small amount to area, and allow time to dry pre change). This is the first video, mentioning 1pc Coloplast. My 3rd ostomy (22years ago reversed in 6 months), 2016 (reversed 6 months later), now I’m 7 weeks post op with a permanent.
I use the Eaken Cohesive rings! I use a flat appliance for the time being but if i ever switch to convexity, I'm you bet your behind I'm going with the slims of the same ilk! Nice, simple choices! Very helpful! I need to try the protectove sheets now!
Hello I found you really helpful,honest and fun . Like you I found myself drowning in products,,,this has cleared a path for me, thank you. I live in Ireland but most of the items shown in your video are duplicated here.
I'm going to have to try the essential oil and non-residue soap. I'm having a lot of issues with the adhesives and itching (and it isn't leaking). I didn't consider that the adhesive remover or skin prep might actually be exacerbating the problems. I should have, however. When the nurse applied the powder to my irritated skin while in the hospital, it burned so badly, I scared the nurse with my scream. The idea that the items that are supposed to help may actually be hurting should have been obvious.
thanks for the video i have been an ileostomate since 2001 and have been using Coloplast for most of that time it is the best product I have found easy on the skin easy to remove ... the Real game changer for all of it is the Eakin seals I get the fatter ones and roll it thin with a rolling pin.... average wear time seven days dependent on activity levels temperature hot out equals less time on.... some advice is change before it leaks ,,,, then all you need is water to clean up I have not used any remover or soap since about 2002 all of them gave me grief ..... So Coloplast eakin seals and regular changes....... works for me ... As long as there has not been any leaks all the old eakin seal does not have to come off just clean it...... i know everyone is different and this works for me but the least amount of product on your skin the better of one usually is...... cheers and thanks for the video....
The best suggestions I have come across online! I am definitely going to stick (unstick???) with essential oils from now on. They work like a charm. The baby wipes mentioned in one of the comments work really well too for cleaning up the residue. I have what my nurse calls "porcelain skin" and was having a lot of irritation. Things are much better as of this week, so I will stick with this routine. In fact, I may mention it to any medical staff I deal with! Good luck to everyone dealing with this!
Do you dilute the essential oil or use it concentrated? One thing I am wondering about is this,,,, In New Zealand the government have pays for everything but they are strict on what they will pay for,. For instance they pay for three bags a day max for colostomies, they don't like to pay for the rings, the skin prep wipes they go for the cheapest and removal wipes they will pay for but it's always the cheapest. I need the stuff you can put in your bag for pancaking as that is ongoing for me , I have been sent a sample of it but not tried it yet as I havnt needed a bag change,. I don't know if they will pay for this product. If you are on a bag you empty they pay for two bags a week. I was using the empty bags when I first got the stoma and vomit and gag while doing it,. I was so glad when it went thick they put me on a closed bag,. Anyway I use the bag, skin prep and remover, I buy water wipes,. That's all, but hoping they will fund the bag lubricant to help with the bag pancaking problem
You are an inspiration to me I will soon have my procedure and with your videos and your comfortable presentation i am not feeling so anxious in learning about this although i am watching as many videos as i can ......thank you for sharing and your openness !!!
I’d Love you, more information on how you get 7 days out of your appliance changes, especially with bathing. Will you share about your experience switching from two piece over to a one piece system. I’m fairly new and I’m uneducated about the products. I don’t feel like I’m very different than most patients. We seem to only know about what is given to us in the hospital. After that I feel we are on our own. There is so much out there I just don’t even know which samples to ask for. The supplier will gladly send samples but I’m not sure what I should ask for. Any advice you can give is extremely appreciated.
Wow, so very helpful. Thank you. I have been having skin issues and my girlfriend suspected the adhesive remover, but I just did not think that would be it. But, I use the same brand you showed. For the essential oils do you dilute it, or just straight on the skin? Thank you for sharing this video, you have been more helpful than going to wound care. They seem pretty clueless for ostomy skin breakdown.
Tried to clean from top removing the whole unit then using a tacky glue which did not work. The tube of adhesive provided is unable to push thru the top. I sleep every night the best I can without any protection as I'm w/o bags for weeks
Coloplast Brava PROTECTIVE Seals are THE best on the market. I've tried them ALL and nothing beats the Brava PROTECTIVE Seal. The BRAVA "Mouldable" seal is not good. It's got to be the Protective one.
I get my bags...adhesive remover wipes..skin protecting wipes and adapt paste but I hate the paste so much!!!!!! Its so sticky and messy. So i just recently changed my order to the rings so im hoping they do better than the paste.
Hi! I'm from philippines and coloplast one-piece i do like to try but not available here. Can anyone help me on this? Thanks. I had an ileostomy for 2 mos now.
I am 2 1/2 weeks into my ileostomy and am having skin pain at the top of my ostomy. Feels bruised! Is this normal? My ostomy nurse says it looks like normal sloughing, but I just want to be sure that I’m not ignoring something that could be worse. Thanks for all of your videos, they are so great....especially for a newbie like me!
OMG, who first got my osotmy in 2006 was using like 12-15 different products each time changed my ostomy & needed each thing. Even was medical adhesive spray to keep the suckers on me....over the years my skin started to get so so bad & is now currently all broken out with yeast, staph, dermatitis, & just plain irritation from the adhesive from wafers. Have EXTREMELY sensitive skin & now my skin around stoma is turning dark color & my skin that the barrier covers is always red aa weeping. NOT FUN, and find myself changing my ostomy sometimes 1-3 times a day(bad days), or once every 1-2 days. Wish I could change my ostomy like once every 3-5 days! But haven't done that since the time was using the 15 diff products. Currently use paste, protective barrier(under it put sterile gauze and medicated cream for the weeping or infective or broken out skin), adhesive remover wipes, barrier/wafer, & pouch/bag, & sometimes I use barrier protective wipes before apply wafer/barrier. To c,ran I use soap & water after adhesive remover wipes. Would appreciate any suggestions if have any(from products to how change ostomy etc... Also, need to shave cuz of hair growth & am constantly dealing with ingrown hairs or infected hair follicles etc...not fun either & sucks). Takes me 2 hrs to change my ostomy each time & if bad day & change 3 times.....that's 6 hrs right there😭😰. The ostomy nurses that come to help when get really bad(my GP will order home health for me to get an ostomy nurse cuz really no "experts" where i live; far as I know & my doctors, GP & GI, don't know any places around that I can go & have no clue about ostomy stuff....just an FYI. I no more than they do😱). K, sorry about all the above, but living with this for 12 yrs & am kinda "stuck & frustrated", sorry to vent to you. Be well! Thanks, A
That sounds awful for you,I think you need to start again and stop using products,you'll need cream from doctor for yeast infections or see stoma nurse,when I've had sore skin I use lavera lavender cream it's really good,I've never had bag on more than 24 hours some days 2 to 3 bags a day,leaks not sticking,I went online to coloplast and did trial, amazing products so I am waiting on new supplies,can you go online and get some company to call you and get help,xxxx
Ellie Goldie. I have had 2 temporary ileostomies 2019 permanent. First one was 1-2 changes a day. The amount of product I used to keep it on. 2016 same issues, started using 1pc, Eakin barrier ring (size of wafer) and a convex ring. The convex ring changed everything. 2029, now permanent ileostomy, same issues...finally returned to solution in 2016. It’s amazing! Getting 3-4 days even 5 day wear. No spray barrier, had a reaction to skin.
Thanks so much for this video. My husbands surgery was yesterday so just starting out with this. Would you write out a list of the 4 product names? I tried to catch them all but didn’t get 3rd one.
My bm is too thick and 1 day is full and smelly. Cannot clean thru the bottom. 2 days is the most. Cannot clean from commode as I can push thru. I have to use an oil funnel at the sink to poor hot water up which means quite an unsanitary way with only 1/2 clean. My supplier is horrible, waiting a month after my order to receive. Who do u order from
I used to use Edgepark but they had terrible service so now I use Shield healthcare and I have used them for about 4-5 years. It takes me less than 2 minutes to order and its always been here within 3 days. EP would take months and their process was always held up somewhere by someone not pushing the order through. Hope this helps!
Pour a dab on the hard to remove adhesive edge and watch it melt off your stomach. If you don't like the idea, that's cool, but if wondering how...just dot it along the area you are pulling off...it melts the adhesive easily.
I've had my ileostomy for 15 yrs now (due to crohn's disease)......and I only order 2 products, my convatec bags & stoma powder - and that's it!! I can get 5-7 days wear time out of my bags....no skin problems, no leaks, great wear time.....I used to use paste, barrier wipes, duo derm, all sorts of stuff....but when I just went to using the stoma powder (I use the powder strictly right around my stoma only) I noticed how much better the seal was, like my bag would adhere to my skin so beautifully, then the wear time was also amazing....so ya, that's all I use, and to be honest, most times I'm just ordering my bags because a bottle of stoma powder lasts for quite a long time, so maybe 3x a year I have to order a bottle of stoma powder!! In my opinion, it's like less is better.....but I know everyone is different, has different issues, different techniques....just thought I'd share mine because after having a stoma for 15yrs now, I feel like a veteran in this area.....I wish everyone the best of luck with everything....I thank God everyday for my stoma, it saved my life - literally!! Be well my fellow ostomates!! ;)
Interesting.
Several people post on here that are rookies,and some of the stuff they post is shite. I like your post. Shaving around the area is good too. I do this every time I changed my bag,6/7 days. I also you sto a powder,I also use barrier wipes I like them. I wash the area with warm water and soap too.. it’s a real event… I suffer with ocd so I do a proper job.
Also I’m in the uk so all my stuff is free….
I'm a newbie, 3 weeks this Friday. I'm having great difficulty keeping the bags on and have had multiple leaks and a couple blowouts. Any kind of movement activity helps to loosen the seal rings. Simple walking will do it it, too. It really sucks! I should mention that I live in Hawaii and we're in humid season now. So, I'm sure that doesn't help. The hospital has me using the Hollister brand and I'm not at all happy with it, plus I'm developing sores.
Right now I'm using a 1 piece bag, a barrier ring, stoma powder, paste to cover the sores and fill in any holes, skin prep wipes (that sting a lot), and barrier strips to hold the bag flanges down in place. Also, an adhesive remover, because as much as these products leak, there are areas where everything sticks like glue. Go figure!
I hadn't heard of the skin barrier you showed. The first layer to put on before everything else and that makes so much sense! I'm surprised no one has mentioned it or offered it yet.
I like the idea of the lemon essential oil and I'm going to look into that. I think "acidic" was the word you were looking for?
I typically go the homeopathic way as often as possible, but then I got colorectal cancer, and just going along with what they're telling me now, for now.
Thank you for the tips! I found your video very helpful.
I’ve stopped using adhesive remover and using lemongrass oil it’s a game changer thank you, I also use calamine lotion and pour that into one of the roller balls bottles too x
My mom in law has a ileostomy and she will be using ostomy pouches for 2 years or until the fístulas heal she gets her monthly supply each month and as soon as I receive it I put everything I use to Change her bag in a sandwich bag so for example I put her new image wafer, plus the pouch with the little brown plastic bag to despose the old and the Allkare Adhesive remover, 3M cavilan no sting barrier wipe, and the adapt ceraRing barrier ring there all in one place it’s helpful for wen we are in a hurry I just Grace a baggie and baby wipes and we are ready to change
Thanks for sharing! I’ve only had my ostomy for four months but I’m always interested in more natural resources. I love the idea of the lemon and the roller. I found the brands that are working for me but I’m definitely open to looking at using less chemicals on / in my body.
Kay Nichols your video helped me immensely, I am a new ostomy patient, I was using Coloplast from 11/16/18 to 12/05/18, a Certified Ostomy RN from the hospital taught me to just put the small golden waver on me and then my colostomy bag. Everything was going great, but then, later, the Visiting nurses finally one day (11/29) talked me into taking a "skin prep wipe", I think it was an "adhesive skin prep wipe", (it was in a in a rip packet), and she had me wipe it on my skin. Within an hour, I started noticing my hands would itch and burn, then the next day, it was my hands and my feet, then, over the next few days, I got itchy on about 50% of my whole body, especially in soft skin areas, like the upper underneath of my arms, the small of my back, my neck, chest, even my EYE LIDS itched! It was absolute TORTURE, I had a horrific all-over-body allergic reaction. On 12/03 at 1 AM, I took the bag off. I left it off for 11 hours. And all this time, when this was happening, I spoke to my VNA RN and others at the VNA at least 10 times about it over about a week's time, no one knew how to help me or what to do, I called my surgeons office three times, and I spoke to a Certified Ostomy RN one time that is at the hospital that I had surgery at. I should mention none of my issues were due to leakage, I had no leakage. I spent half a day Googling phrases like "Itchy hands and feet colostomy bag" with no answers, no one reported the type of allergic reaction I was having, at least I could not find anyone or anything about it, even the RN / DR's office said they'd - "Never heard of that type of reaction". RN's that have been doing this for 20 yrs had never heard of it!!! - Anyway, after that 11 hours I tried putting on just the wafer and the bag, no other products, but, that only lasted a day and I felt so tortured that I then took the bag off and went 27 hours bag-less, as my skin was still red and blistered. Once it seemed to calm down, I tried another brand, Hollister, I put it on, on Thursday December 6. (just right on my skin with the wafer first). I could only stand having it on from 6 am to 9 pm. I took it off that night, and my itching and burning and all-over-body allergic reaction, and my big red blistering surface of my skin were SO bad that when calling my nurse & my DR yielded no real actual help (they said take Benedryl, I tried it twice, it did nothing) , that I almost went to the E.R. Each time I took a bag off, I used an Adhesive Remover, so, that must have made everything worse. Now I am on DAY 4 of NO Bag, trapped at home, walking around with paper towels cupped in my left hand under my stoma at all times and doing everything one-handed, and, I was thinking that I was allergic to the BRANDS, I have been sitting here waiting for the mail to come, (of all things!); waiting for samples from NU-HOPE and from TRIO OSTOMY USA. (I was hoping to try them and not react). (As of today, 12/10/18, my skin is at 80% healed, my allergic reaction is a 85% better so I am ready to try a bag pretty soon.) In the meantime, I have been on the verge of tears. However, what your fantastic video has taught me is: (1.) I probably reacted to that wipe the RN told me to put on, as it must have been an adhesive (2.) I probably should try that Brava Coloplast Item #3105 protective sheet, and, ask my RN for all my COLOPLAST stuff back , as I handed it to her, all freaked out that I could not use it. It would have been nice if my RN or , like, ANYONE, had suggested I use something like that. The good news is, finally this past Friday my surgeons' office suggested something that I think is the exact same thing, but I did not realize it until just now, and I only have one, a sample, that thankfully my RN dropped off Friday afternoon. I have not tried it yet but I'm going to, it's called "Duo Derm" or something like that. Again, thank you SO much, Lynne Sullivan, Belchertown, Massachusetts. Update, as of 12/12, my skin and my allergies are about 95% better. I think by tomorrow I can finally put on a protective sheet and my wafer and bag. Hoping it will all work out and my allergic reaction will not return.
Aww bless you,for sore skin I use opus lavera cream ,I've never used adhesive remover but changing to coloplast and they stick so well might need it,you should be on antihistamine if your skin reacts,you need to see or phone a stoma nurse,they always say less is best,I've always used barrier wipe,and cleansing wipe,I do hope you find answer and I'll keep reading here,xxxx
Such an ordeal for you I'm new to this changed my bag 3 times in 20 hours now I have a build up of paste I cant revove so I just put on another bag hopefully when I change it the paste will come off as well
To remove leftover residue from the adhesive I use...a cotton pad and believe it or not.... lighter fluid! I got this tip from a ostomy rep, it's alot cheaper and made of the same thing as the name brands... get washing with dove soap, all clean, and don't have to worry about oil leaving any leftover that would weaken your wafer.
Loved your video. Use the same 3 products, minus my Eakin barrier ring is the large (eliminating the Coloplast sheet you use (Eakin breaths better and added security to 1pc) The same reaction to spray barrier along with sheet you use. As for removal...drum roll ‘pamper all natural wipes’ removes all adhesive or with warm water and cleans area. The adhesive removers create ‘glass like skin over time’. Have purchased Coloplast barrier cream, it’s wonderful (only a very small amount to area, and allow time to dry pre change). This is the first video, mentioning 1pc Coloplast. My 3rd ostomy (22years ago reversed in 6 months), 2016 (reversed 6 months later), now I’m 7 weeks post op with a permanent.
I now use lemon essential oil to remove my bag. Thanks for the tip!
When I get the extra adhesive around the edges of my wafer I used jojoba oil to rub it off with out hurting the skin works like a charm :)
I use the Eaken Cohesive rings! I use a flat appliance for the time being but if i ever switch to convexity, I'm you bet your behind I'm going with the slims of the same ilk! Nice, simple choices! Very helpful! I need to try the protectove sheets now!
Sorry for the typos!
Hello I found you really helpful,honest and fun .
Like you I found myself drowning in products,,,this has cleared a path for me, thank you.
I live in Ireland but most of the items shown in your video are duplicated here.
I'm going to have to try the essential oil and non-residue soap. I'm having a lot of issues with the adhesives and itching (and it isn't leaking). I didn't consider that the adhesive remover or skin prep might actually be exacerbating the problems. I should have, however. When the nurse applied the powder to my irritated skin while in the hospital, it burned so badly, I scared the nurse with my scream. The idea that the items that are supposed to help may actually be hurting should have been obvious.
thanks for the video i have been an ileostomate since 2001 and have been using Coloplast for most of that time it is the best product I have found easy on the skin easy to remove ... the Real game changer for all of it is the Eakin seals I get the fatter ones and roll it thin with a rolling pin.... average wear time seven days dependent on activity levels temperature hot out equals less time on.... some advice is change before it leaks ,,,, then all you need is water to clean up I have not used any remover or soap since about 2002 all of them gave me grief .....
So Coloplast eakin seals and regular changes....... works for me ... As long as there has not been any leaks all the old eakin seal does not have to come off just clean it...... i know everyone is different and this works for me but the least amount of product on your skin the better of one usually is...... cheers and thanks for the video....
Why do you wear seals I've never used them my stoma is tiny once bag on not much pokes through,I've been ostomate 2008 and 2014 ileostomy for good,xxx
The best suggestions I have come across online! I am definitely going to stick (unstick???) with essential oils from now on. They work like a charm.
The baby wipes mentioned in one of the comments work really well too for cleaning up the residue.
I have what my nurse calls "porcelain skin" and was having a lot of irritation. Things are much better as of this week, so I will stick with this routine. In fact, I may mention it to any medical staff I deal with!
Good luck to everyone dealing with this!
Do you dilute the essential oil or use it concentrated?
One thing I am wondering about is this,,,,
In New Zealand the government have pays for everything but they are strict on what they will pay for,. For instance they pay for three bags a day max for colostomies, they don't like to pay for the rings, the skin prep wipes they go for the cheapest and removal wipes they will pay for but it's always the cheapest. I need the stuff you can put in your bag for pancaking as that is ongoing for me , I have been sent a sample of it but not tried it yet as I havnt needed a bag change,. I don't know if they will pay for this product. If you are on a bag you empty they pay for two bags a week. I was using the empty bags when I first got the stoma and vomit and gag while doing it,. I was so glad when it went thick they put me on a closed bag,. Anyway I use the bag, skin prep and remover, I buy water wipes,. That's all, but hoping they will fund the bag lubricant to help with the bag pancaking problem
The main problem with the one-piece is you can't burp them to get rid of gas buildup so I never use them.
Have you tried Osto E-Z Vents?
Yes wonderful truly. Those Eakin skins do their absorbing sponge-like and are invaluable in creating a proper ‘seal’. God bless you. Cyrus
Thank you for your help. I'm a very recent colostomy patient with a mind swerling with questions.
You are an inspiration to me I will soon have my procedure and with your videos and your comfortable presentation i am not feeling so anxious in learning about this although i am watching as many videos as i can ......thank you for sharing and your openness !!!
That means so much to me! 😭 please let me know if you have any more questions I might be able to help with!
I’d Love you, more information on how you get 7 days out of your appliance changes, especially with bathing. Will you share about your experience switching from two piece over to a one piece system. I’m fairly new and I’m uneducated about the products. I don’t feel like I’m very different than most patients. We seem to only know about what is given to us in the hospital. After that I feel we are on our own. There is so much out there I just don’t even know which samples to ask for. The supplier will gladly send samples but I’m not sure what I should ask for. Any advice you can give is extremely appreciated.
Wow, so very helpful. Thank you. I have been having skin issues and my girlfriend suspected the adhesive remover, but I just did not think that would be it. But, I use the same brand you showed. For the essential oils do you dilute it, or just straight on the skin? Thank you for sharing this video, you have been more helpful than going to wound care. They seem pretty clueless for ostomy skin breakdown.
Tried to clean from top removing the whole unit then using a tacky glue which did not work. The tube of adhesive provided is unable to push thru the top. I sleep every night the best I can without any protection as I'm w/o bags for weeks
Wow! Another person in South Texas.
Donald Willinger if you think that’s surprising you should check out the Ostomy Association of South Texas ❤️
Love, love Eakin seals.
As a new ostomate I found this very helpful.
Where did you get your cute shirt!??!😍
I love DoTerra Lemon is something I order each month. good information.
I love doTERRA, but found NOW at my grocery is about the same for way less money. I am a savings hound!
Have you tried the Y strips , they are awesome.
Coloplast Brava PROTECTIVE Seals are THE best on the market. I've tried them ALL and nothing beats the Brava PROTECTIVE Seal. The BRAVA "Mouldable" seal is not good. It's got to be the Protective one.
Teddy Burr what is the difference between the protective seal and the moldable ring? Thank you 🙂.
I get my bags...adhesive remover wipes..skin protecting wipes and adapt paste but I hate the paste so much!!!!!! Its so sticky and messy. So i just recently changed my order to the rings so im hoping they do better than the paste.
Hi! I'm from philippines and coloplast one-piece i do like to try but not available here. Can anyone help me on this? Thanks. I had an ileostomy for 2 mos now.
Thank you thank you thank you!!!
Do you use a carrier oil or water with the lemon oil or do you just put 100% lemon oil in your roller bottle?
I am 2 1/2 weeks into my ileostomy and am having skin pain at the top of my ostomy. Feels bruised! Is this normal? My ostomy nurse says it looks like normal sloughing, but I just want to be sure that I’m not ignoring something that could be worse.
Thanks for all of your videos, they are so great....especially for a newbie like me!
Brandy Spencer it took my skin and body about 6 weeks. I am 9 weeks post-op hang in there it will hey better!
QHM (Quality Home Medical) has all types and sizes.
OMG, who first got my osotmy in 2006 was using like 12-15 different products each time changed my ostomy & needed each thing. Even was medical adhesive spray to keep the suckers on me....over the years my skin started to get so so bad & is now currently all broken out with yeast, staph, dermatitis, & just plain irritation from the adhesive from wafers. Have EXTREMELY sensitive skin & now my skin around stoma is turning dark color & my skin that the barrier covers is always red aa weeping. NOT FUN, and find myself changing my ostomy sometimes 1-3 times a day(bad days), or once every 1-2 days. Wish I could change my ostomy like once every 3-5 days! But haven't done that since the time was using the 15 diff products. Currently use paste, protective barrier(under it put sterile gauze and medicated cream for the weeping or infective or broken out skin), adhesive remover wipes, barrier/wafer, & pouch/bag, & sometimes I use barrier protective wipes before apply wafer/barrier. To c,ran I use soap & water after adhesive remover wipes. Would appreciate any suggestions if have any(from products to how change ostomy etc... Also, need to shave cuz of hair growth & am constantly dealing with ingrown hairs or infected hair follicles etc...not fun either & sucks). Takes me 2 hrs to change my ostomy each time & if bad day & change 3 times.....that's 6 hrs right there😭😰. The ostomy nurses that come to help when get really bad(my GP will order home health for me to get an ostomy nurse cuz really no "experts" where i live; far as I know & my doctors, GP & GI, don't know any places around that I can go & have no clue about ostomy stuff....just an FYI. I no more than they do😱). K, sorry about all the above, but living with this for 12 yrs & am kinda "stuck & frustrated", sorry to vent to you. Be well!
Thanks, A
That sounds awful for you,I think you need to start again and stop using products,you'll need cream from doctor for yeast infections or see stoma nurse,when I've had sore skin I use lavera lavender cream it's really good,I've never had bag on more than 24 hours some days 2 to 3 bags a day,leaks not sticking,I went online to coloplast and did trial, amazing products so I am waiting on new supplies,can you go online and get some company to call you and get help,xxxx
Ellie Goldie. I have had 2 temporary ileostomies 2019 permanent. First one was 1-2 changes a day. The amount of product I used to keep it on. 2016 same issues, started using 1pc, Eakin barrier ring (size of wafer) and a convex ring. The convex ring changed everything. 2029, now permanent ileostomy, same issues...finally returned to solution in 2016. It’s amazing! Getting 3-4 days even 5 day wear. No spray barrier, had a reaction to skin.
Thank You for taking your time in helping us all. FR
New to this how do I remove stoma paste Hollister from my skin between bag changes change 2 times during nite feces leaked through sides of water
Paste can be removed with adhesive remover or warm water and a clean wash cloth. Can you describe your stoma and what products you use?
Thanks so much for this video. My husbands surgery was yesterday so just starting out with this. Would you write out a list of the 4 product names? I tried to catch them all but didn’t get 3rd one.
Do you have the reference number or product name of the seals that you use?
My bm is too thick and 1 day is full and smelly. Cannot clean thru the bottom. 2 days is the most. Cannot clean from commode as I can push thru. I have to use an oil funnel at the sink to poor hot water up which means quite an unsanitary way with only 1/2 clean. My supplier is horrible, waiting a month after my order to receive. Who do u order from
I used to use Edgepark but they had terrible service so now I use Shield healthcare and I have used them for about 4-5 years. It takes me less than 2 minutes to order and its always been here within 3 days. EP would take months and their process was always held up somewhere by someone not pushing the order through. Hope this helps!
You said ostomy community in south texas...I'm in corpus Christi...can you tell me more about this organization?
Thanks for the info..
Could you tell me all the references or product numbers?
Where do i get these things in india
Thank you ❤️
I have to use Hytape because the elastic strips give me hives :(
FLONAISE comes to mind...spray a little ~ goes a long way to avoid allergic reactions.
Nice video! New ostomate here. Any info helps.
i need that 4 things badly for my sister,she just have iloustomy surgerry1 month ago
You such a bad ass...i know the company you are talking about..i bet! 😆
You’re a wealth of information! :)
HILARIOUS!
you lost me at essential oil
Pour a dab on the hard to remove adhesive edge and watch it melt off your stomach. If you don't like the idea, that's cool, but if wondering how...just dot it along the area you are pulling off...it melts the adhesive easily.