Living with two disabilities Storytime (Charcot marie tooth and potocki lupski syndrome)

แชร์
ฝัง
  • เผยแพร่เมื่อ 8 ก.พ. 2025
  • Hey! so yes I'm disabled mentally and physically, in the video, though i talk about both disabilities, their symptoms some fun little storytimes, my view on living with a disability too!
    Questions are welcomed!
    Information Links
    CMT
    www.mayoclinic...
    www.ninds.nih....
    www.betterheal...
    mdaustralia.org...
    PTLS
    ptlsfoundation....
    ghr.nlm.nih.go...
    rarediseases.i...
    Popular Questions,
    How old am i? 19, july 21th 2000
    Where am i from? Australia
    What do I use to film Cannon m50 EF 15-45 lens
    What do i use to edit? Davinci Resolve

ความคิดเห็น • 10

  • @skyechats6276
    @skyechats6276  4 ปีที่แล้ว +1

    Please feel free to give me feedback on my video everyone
    Good or bad

  • @atlanticstar219
    @atlanticstar219 4 ปีที่แล้ว

    You so cute !!! 😍😍 I hope you keep dealing well with these sux .

    • @skyechats6276
      @skyechats6276  4 ปีที่แล้ว

      Thank you so much! im curious though how did you come across my video? :)

    • @travisvdb7555
      @travisvdb7555 4 ปีที่แล้ว

      Well done, your videos are very well put together and informative. What are you studying post school?

    • @skyechats6276
      @skyechats6276  4 ปีที่แล้ว

      @@travisvdb7555 sadly i stopped my course due to not wanting to do it anymore but I've got my RSA and my sign language course

    • @skyechats6276
      @skyechats6276  4 ปีที่แล้ว

      @@travisvdb7555 also thank you for the feedback!

  • @ashleyhinson2436
    @ashleyhinson2436 4 ปีที่แล้ว

    I have cmt also and love how you are so cheerful about it. Mine got worse within months and I'm just now coming down from the shock. I would love to hear about the surgeries you had to see if some can help me.

    • @skyechats6276
      @skyechats6276  4 ปีที่แล้ว

      Sure thing! i was thinking of doing that video, i'll get it up asap :) how about a shoe haul video too i think i want to do a video like that but would love to hear if you'd be interested in seeing it

    • @skyechats6276
      @skyechats6276  4 ปีที่แล้ว

      oh a cmt page on fb i also posted good excises to do for me personally but i think this will be good for you facebook.com/groups/CMTAssociation/?post_id=10158069224460027