Living with two disabilities Storytime (Charcot marie tooth and potocki lupski syndrome)
ฝัง
- เผยแพร่เมื่อ 8 ก.พ. 2025
- Hey! so yes I'm disabled mentally and physically, in the video, though i talk about both disabilities, their symptoms some fun little storytimes, my view on living with a disability too!
Questions are welcomed!
Information Links
CMT
www.mayoclinic...
www.ninds.nih....
www.betterheal...
mdaustralia.org...
PTLS
ptlsfoundation....
ghr.nlm.nih.go...
rarediseases.i...
Popular Questions,
How old am i? 19, july 21th 2000
Where am i from? Australia
What do I use to film Cannon m50 EF 15-45 lens
What do i use to edit? Davinci Resolve
Please feel free to give me feedback on my video everyone
Good or bad
You so cute !!! 😍😍 I hope you keep dealing well with these sux .
Thank you so much! im curious though how did you come across my video? :)
Well done, your videos are very well put together and informative. What are you studying post school?
@@travisvdb7555 sadly i stopped my course due to not wanting to do it anymore but I've got my RSA and my sign language course
@@travisvdb7555 also thank you for the feedback!
I have cmt also and love how you are so cheerful about it. Mine got worse within months and I'm just now coming down from the shock. I would love to hear about the surgeries you had to see if some can help me.
Sure thing! i was thinking of doing that video, i'll get it up asap :) how about a shoe haul video too i think i want to do a video like that but would love to hear if you'd be interested in seeing it
oh a cmt page on fb i also posted good excises to do for me personally but i think this will be good for you facebook.com/groups/CMTAssociation/?post_id=10158069224460027