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I'm quickly figuring out that my chronic fatigue symptoms are returning because of my current 6 month battle with anxiety. All the medical testing comes back normal. I didn't have anxiety 33 years ago when I was first diagnosed with CFS, and I rebounded in 4 months. This has been grueling. You are an inspiration to regaining my health. Bless you.
The shot’s definitely made it worse for me. I researched XMRV’s and stealth adapted viruses that remain dormant until activated by something like a certain shot that causes a strong immune response. Note: stealth adapted viruses were probably introduced to your body at some point by a different “shot”. They have a mixture of virus rna and hence the viruses in your test results.
Western drs can go to hell ,I went through that ,w dr saying how do I know that you just dont want to work? I screamed ,after my friend carried me to drs ,and I was sitting on floor “ I wanna work “
Summary of how Raelan healed her chronic fatigue (from 37:00 - 52:00 in this video): * Learn to manage stress effectively: stress can be extremely toxic. Having strict boundaries to prevent people/things/places pulling her into too many emotional spaces. Putting boundaries on the content she consumes, on the people she interacts with, etc. Staying in a space of "Zen" seemed to maximize healing. * Drink lots of water * Get lots of sun * Cut out toxic foods and alcohol. In another video, she goes into more detail saying to (A) get rid of all the sugary / processed / junk foods, and (B) get rid of caffeine and alcohol-both are "energy loan sharks" ("they always took way more than they ever gave"). * Keto helped somewhat, but switching to a whole-foods plant-based diet was a "total game changer" (all sorts of things in her body started functioning better e.g. faster recovery from exercise). * Cutting out gluten didn't make a difference. * Rice causes her big problems (an example of why it's important to know your own body, not everyone has the same issues with the same foods). * Various kinds of fasting have helped a lot (intermittent fasting, low-glycemic juice cleanses). * Fermented foods (kimchi, kombucha, sauerkraut, kefir, etc) did wonders for healing her gut. * Physical activity throughout the day to build her strength. Some walking, but she put a lot of more focus on light strength training. In the first 6 months, physical activity would make her feel worse, but she noticed that from one month to the next she was building strength so she persevered. * Gently incorporating movement into her day that didn't make her feel worse. * Showers alternating between hot and cold helped a lot. * Full body massages once or more a week helped. * Making sleep a priority. * Manage body pain (post-exertion malaise) during recovery with stretches, hot baths, and sometimes painkillers. * Having love and support in her life helped fuel her recovery. * Pacing herself-trying to not overdo it (then suffering from a massive crash afterwards). * She healed her CFS *without* any dietary supplements (she had tried $1000s of supplements the first time she tried to heal her CFS; but she didn't personally notice any changes when stopping all the supplements including probiotic supplements). * Overall, it was really hard work, but doable and definitely worth it! It took her about 2 years to get back to full health, but even after 1 year she was already much better (e.g. doing hour-long workouts regularly). Congratulations Raelan for achieving an amazing recovery! Thank you for sharing your hard-earned wisdom. ☺
A key guide is to use to recognize scams is the exact way she is marketing it which is both unprofessional and not even considering ethical & medical considerations. Over emphasizing emotions and not the lack of ethics in what she is doing by making this video. It is very sad humans can be tricked even with the simple biases and the desire and hope for magical cures. We are all susceptible to this kind of fraud even with medical degrees. So it is vital to not participate in it and do not advocate for unethical practice. The MOST UNETHICAL PRACTICE passing off fake cures to desperate or depressed people looking for hope.
In regards to the "mild chronic fatigue syndrome" label, I've just started calling it myalgic encephalomyelitis around people. The scarier the name the more seriously people take you
Yep. Me too. Well said. People don’t want to show their ignorance of Myalgic Encephalomyelitis (it took 2 years to diagnose). But, if you say “I have chronic fatigue syndrome.”, then the reply is “Everyone gets tired/exhausted/over does it, you just need a good rest/a change of scene/ a holiday (blah, blah, blah). So, I go with ME now.
#facts ME/CFS is no joke and the fact you don’t usually “look sick” convinces people you have to faking. Drives me bananas. The days the lupus butterfly shows up are almost a relief and that’s a horrible thing to have to say. ME/CFS, & other autoimmune diseases, change your life in ways that are incomprehensible to non-sufferers. Frankly, it’s pretty incomprehensible to those of us who deal with it daily.
Thank you for sharing! I can relate to SO much in your story. My wife left me when I was at my worst. We had to sell our dream home. My career stalled. I went from feeling ahead financially to behind. Moved in with my parents. And I’ve spent tens of thousands on recovering. I know I’ll get to 100% eventually! Stories like yours keep me going! Thank you!
Oh wow, David, I know that many of us have similar experiences with this illness, but it sounds like you and I REALLY have! I'm so sorry to hear that you too have had so many of the same massive struggles with this. What a road we've been on. I'm so glad to hear though that you are 100% determined to get past this. I think stubbornness is an invaluable quality with this illness! Looking forward to hearing you share your full recovery story one day very soon 🚀
I'm barely 10 minutes into your video Raelan and you've already got me choked up and crying when you said you felt like a kidnapping victim and someone had stole your life. Your symptoms and how you felt, you took the words right out of my mouth. 15 months with Long Covid. I don't know who I am anymore but I'm giving it my all to heal from this hell. I hope you are well ❤
Your mom’s story is exactly me right now. I was diagnosed two years ago but have been sick longer and all I do is get worse. The depression, the bed, the wheelchair, all of it. And I’m only 35. I’ve been told I will never get better and that none of us do. But when I do gentle yoga... my body starts to feel stronger, less achey, even my migraines start to lessen. That’s how I found you. Your video is the first time I’ve ever seen the word “recovery” next to ME or CFS. Just seeing that I have the tiniest glimmer of hope. I’m conservatively hopeful. I was always healthy, energetic, social, never stopped, had a fit tiny figure that matched my 4’11” height, I was a dancer my whole life. Now I’m told I’ll never dance again. I just hit 200lbs, nothing helps me lose weight, antisocial, stuck in bed most of the time, handicap placard on my car, constant mono pink eye and flu, had to quit my job, fighting with disability, unable to clean my home get pregnant or adequately take care of myself or anyone else. I always hurt I get fevers constantly I can’t think straight I’m just so so sad. The only thing that gives me confidence is my wheelchair because I feel less afraid. Afraid that I’ll be in the middle of target and not be able to get back to my car. Afraid to say yes to a walk at the mall with a friend because even though their kid cries when we stop walking I don’t care he can cry because I CAN’T keep walking. At least I feel like I have control of my body in my chair. I can navigate a store and get what I want without asking for it.. but I struggle with doors, inclines, and straight aways. I absolutely hate being pushed because I feel like an invalid but sometimes I have to be pushed because I just can’t. And it’s so hard to ask for help because almost nobody believes you. Especially if they have ever seen you on a good day. The yoga helps me get up in the morning, helps ease some pain to try to sleep at night. And that gives me hope that I could find the right foods, the right supplements, the right kind of movement, the right mindset... I can NOT give up the thought of dancing again. So I’m hopping on this journey with your channel. Thank you for the hope literally written across your thumbnail. Because we are surviving off of so little income because of all of this. So little help. So little care from doctors. And so I no longer have insurance and have no money to pay for doctors or treatments. So someone like you being willing to share your story without some webinar I have to pay for or magical supplement I have to subscribe for, it means the world. Literally my whole world. And I’m praying to get it back!!! Hope this doesn’t sound overdramatized. But thank you!
ME is rarely a progressive illness and the tendency is to recover to certain extent over time. There seems to be sub set illness. Some recover at about 4 year mark if they manage their illness though I have known many who have recovered despite no management and maybe they did not have authentic ME illness at all. Others make “0ne step forward / one step back type of partial recovery overtime and small number regress or remain very seriously ill. It all depends on type you start out with. I tend to relapse after infections and only option is to rest till better.
Hi, Can I suggest you watch all of Realan's video's on recovery. The one about putting your body into ahealing state is imperative. You have to retrain your brain, change the way you think. cut out stress as much as possible and learn how to keep yourself calm. Mediation really helps this process. Brain plasticicty is real, you can retrain your brain I have been ill for 24 years and tried just about everything... It is only now that I am recovering by brain retraing, keeping myself in a healing state. You can do this!!
@@tracypearson6639 Still healing, I am recovering from FND as well as having four children. I am moving forward though. Creatine is making a difference with energy. I am not climbing mountains yet but I am able to do more housework! LOL
Earlier this year, at four and a half years of illness, I started to have real improvements in quality of life and was even working full time. I still couldn't exercise and still had feeling of general unwellness and malaise, but there were clear improvements happening. In March I had a major crash and it has been a brutal setback. I've almost gotten back to where I was, but the crash has been deeply discouraging. I've always felt like recovery is possible, but since March I've start to notice an almost subconscious belief that I'll never recover. Sometimes I feel totally lost and hopeless. Your channel and videos help me develop that hope again, so thank you. But if I'm being completely honest, even the hope can be exhausting. May we all heal from this oppressive illness!
Hi Casey, thanks so much for sharing this. Wow, what you've been going through sounds frustrating (and truly awful, really). I'm so sorry to hear this. I imagine it is mentally exhausting to have to get your health back up again after you'd been doing so well. I bet "deeply discouraging" is putting it mildly. And yes, you make a great point - hope itself can be exhausting too can't it. But at least for me, lack of hope was even worse. It's understandable that you'd be losing faith that you'll ever be past this, I suspect we all go through phases where we feel that way unfortunately. I have so much empathy for people like yourself who are struggling with this. I am with you 1000% - MAY WE ALL HEAL FROM THIS OPPRESSIVE ILLNESS!!! I hope you are managing alright and I'm glad to hear that these videos are helping in some small way. Hang in there Casey, you've got this ✨
@@RaelanAgle If you’re thinking about committing suicide or struggling with thoughts of suicide, know that God cares about you and you’re not alone in this world. Believe in His son that died on the cross for you and me, you’ll see, He’ll help you in this world to survive. 1 John 4:4 “You, dear children, are from God and have overcome them, because the one who is in you is greater than the one who is in the world. Psalm 34:18-19. “The Lord is close to the brokenhearted and saves those who are crushed in spirit. The righteous person may have many troubles, but the Lord delivers him from them all. th-cam.com/video/hPfGsFjNGlA/w-d-xo.html th-cam.com/video/ROVqptoc2V4/w-d-xo.html
Thank you so much for your concern, that is very kind of you. Thankfully I have been doing great for a long time now and my mental health is strong (and I have all the tools I need to take care of myself in that department now) :)
Thank you so much for sharing your story. I’m 3 years in CFS, all those years I was confident that I will be back on track, but last month for the first time I’ve got discouraged, and hopeless. Like my life is not worth living anymore. Your story gives me hope and inspires me to get going with my healing journey. God bless you 🤍
When Raelyn said that she was worried about mentioning that she felt a vaccine she got played into part of her issues, I pray that people don’t worry about this at all because I’ve had several friends over the past few years that got THE vax and then their health tanked. With what they’re calling long Covid but I’m absolutely sure that vaccine was the straw that broke the camels back for them. And unfortunately, some of them are continuing to get vaxed, but now also with the flu vaccine. I pray that they all find clarity and especially answers to all of this because there are many people on TH-cam that have gone through this and are sharing what has worked. What hope there is! Amen!
I wasn't diagnosed with CFS, but the description is so accurate to my symptoms: feeling like I have a flu, but no fever; heavy head; little to no energy at all times; a little exercise makes me feel like I have a flu or nauseous or get sore throat which goes away in hours; I've had insomnia for 10 years; staying in bed doesn't help; I feel cold easily. I've had a gazillion tests done over the 10 years, and all of them come back normal. I'm just guessing here, maybe CFS is caused by pushing yourself too much for too long, therefore the cure for it is to rest too much for too long :P Did anybody else overdo pushing themselves to extremes before getting these symptoms? I know I've been pushing myself way over the limit since 16 y.o. Even though I was dealing with a lot and working too hard, I never thought of resting. I rest a lot right now and do get minor improvement in energy level.
A lot of PWME rest when they get tired. It is important to rest before tiredness sets in and that is why pacing is successful although it needs Lots of discipline and luck. If you get call to collect sick child from school, pacing has to come second!
I have had ME for thirty two years and my temp has never been more than normal and several other ppl with ME have said same. I have had flu and shingles. When my husband had shingles his temp was 98/102 and mine never went higher than 97. One of the peculiarities of immune response with ME. If you have busy life it is very difficult to rest when medical profession is telling you it is all in the head. You might hear the words ‘attention seeking’ . My sister used to say, nobody is going to get well throwing themselves down in heap in darkened room. Not Prophetic!!
I had a similar experience with my doctor...I kept going back saying I’m not right, she just laughed in my face. I resonate so much with all that you said x
I'd like to share what the key to my recovery was. I exercised slowly and gradually, walking for a minute one day, two minutes the next, until I was walking for an hour every day. I did have to push my physical boundaries and it was so important to my recovery; building up muscle because there are little power houses in muscle cells called mitochondria. They provide each cell with energy. The more muscle you build, the more power houses you get. Lymphatic system: very important to get the lymph moving which removes toxins. Moving your body pumps the lymph system and I think this is why massage made me feel energised. I had terrible insomnia and the less sleep I had, the more ill I felt. I tried so many things to help me sleep and after 8 years of ME/CFS my Dr prescribed Amitryptiline and I slept for 7 hours straight after years of waking up every two hours. This was the biggest thing that helped me recover. Sleep is vitally important. I need 12 house to feel good, which is a lot, but I am well now. My Dr had to increase the dose three times to find the level I needed.
Amitriptyline IS a life changing med for some. It's neurotransmitter effects was what I really needed in my case. I felt 15. I also had a side effect of an increased heart rate and was not able to take it. Having to stop was horrible.
Raelan, your story is amazing!! 🙌🏻 It’s incredible to me that you threw yourself into another culture for so many years despite still being sick and that you stayed in the game of life when I think most of us try to retreat from life while sick. You are an incredibly strong and courageous person! Thank you for sharing your story and for all you do! ❤
25 years with CFS and Fybromyalgia. Its actually insane how i have zero control of my body and mind. In one second i can go from sat up,talking to completely collapsing. Im on my 6 weeks of a crash now and its really upsetting me, but watching this video has echoed everything ive tried. I also have used hypnosis for pain,which has taken away around 60% of pain. A natural healer to help, but its on and off. Im trying to stay positive, but im finding it very difficult at the moment. Its inspirational to watch videos like this though. I feel like its giving me a glimpse of hope 😊
Hi Raelan, i just stumbled on your channel accidentally. My body has had M.E. for over 30 years fluctuating from moderate severe to "mild" (loved you highlighting the absurdity of that term). I resonated with so much of your video and watched the whole thing through which is highly unusual for me as honestly i have pretty much avoided M.E./CFS content for several years, especially forums etc as I tend to find them so demoralising, pessimistic and fatalistic. My heart goes out to newbies joining those forums, as honestly it often feels like the loudest voices there are the ones determined NOT to get better. Not consciously of course, but due to wanting recognitiin of the severity of the illness, they dismiss anyone recovering from the condition as obviously not having had it in the first place. They can be incredibly closed minded. I honesrly tgink it's like a trauma based response to the enormous burden of having such a stigmatised illness and the horrendous treatment at the hands of the medical system. They readily dismiss any mind body connection, equating the idea to the monstrous medical professionals suggesting it's all in our heads. I also went down the path of researching spontaneous/radical remission recovery stories for other serious illnesses which is what has inspired me on my journey of recovery. I think a big issue that differentiates many who recover from illnesses such as cancer is that no one is questioning if their illness is legit to begin with so recovering in no way invalidates the severity of their illness or cast aspersions on the very nature of their character, mental stability etc. I honestly think this is part of the issue. Instead many with M.E./CFS are (understandably) so desperate for medical/societal val8dation of the nightmare theyre living they are ironically waiting around for the same medical system who has utterly failed and even tyrannised them to come up to the rescue with the magic pill/poison or procedure that cures them. Thankfully for me i have never given up hope and have made so much progress on my journey back to full recovery which in many ways has been such a blessed deep dive of personal development and even spiritual growth that I would never have gone through if i wasnt "forced" to because of the great challenges of living in a sick body for many years. I'm so happy to have found your channel. So happy a channel like yours even exists. It is sorely needed but also beautifully timed with so much growing evidence and support for what were once "out there" alternative therapies. Thank you! Inspiring stuff! You or your guests may have covered these in other videos but just to add in two of the techniques that have been game changers in my recovery have been the work of Dr Joe Dispenza and Annie Hoppers DNRS as well as Qi Gong (I practice Spring Forest). You are probably familiar with their work but if not check out their phenomenol testimonials. For me these type of techniques/therapies are the medicine of the future. Sorry for such a long messg. Im not even active on social media but felt inspired to "comment" which then turned into an essay! Thanks for all you do. Really powerful contribution to us all. Blessings your way Raelan. Xx
Commenting before listening, just to say you're awesome. Look forward to this. On 3rd month detoxing 20 years of CFS, been rough, but I KNOW I'll recover. Only paying attention to recoveries, putting the negativity to rest.
Aw Maria your comment here just gave me goosebumps! I am so excited for you and so inspired by people who are determined to recover after many years with this illness. You've totally got this! Yay!!!! And thank you for your kind words (brought me a huge smile!!) - I think you're awesome as well 🤩
@@RaelanAgle You make me smile as well and we know how much that means. I just spilled about $100 of oil of oregano all over me and my room, which is a cluttered disaster, after not sleeping for days. I need smiles at the moment. Losing the oil is bad enough, but burned the hell out of my arm and everything I touched, luckily we have a garden with tons of aloe, combined with a ton of coconut oil, the burn subsided. On the plus side my nostrils and brain are saturated, my hardwood floors have soaked it in, it's on my pillows, so I will be doing some massive aroma therapy for a very very long time. And I smell like a pizza factory, there's that. lol. Gotta look at the bright side, cz I just want to sob right now. I've got this though! I feel the virus and bacteria dying, brain slowly getting clearer. It's hard to explain feeling better when you still need to be in bed, but I'm sure you know what I mean, you just know things are changing. I've had to take months off for bed rest, but exercise, powerlifting, is the one thing that I try to keep in my life when I'm not bed-bound, no matter how tired, or how much pain I'm in, at the expense of crashes. Totally worth it and hands down the #1 thing that makes me realize I've got potential to heal.I'm built like an athlete, so that has allowed me to push physically. Right now with the detoxing, it's a new level of physical exhaustion, I'm still gaining strength but my workouts are "shaky", I don't have that umph. The rest of the time I'm home recovering. The healing mindset is so important. I'm going to add you on IG, I can literally write a book on every sentence you spoke here, maybe I will :) When you said "mild" CFS, I had a laugh, then you said exactly what I started blurting out... Def should be in stages. Which also kind of trivializes how debilitating it is, no matter what "stage". I have endometriosis too, stage 1. With endo, the stages only mean the amount of endo tissue, which is not at all related to pain level; someone can have stage 4 and have no pain, and have stage 1 and be in horrendous lifelong pain, that's me (trying to heal this too, actually a lot of diseases have come from 30 years of endo and 20 years of CFS, believe they are all related and once I get one, I'll have them all). I let myself cry and pout, like right now, honor those feelings then get back to hope. I'm (mostly) slowing down on my obsession with research, seeking diagnosis and tests and accepting baby steps. I can take a bath now, that is a very big deal. I look forward to making friends again and dating eventually, one day at a time, I'm aching for that support. I'm 48, still got half my life left :P
@@MariaAudioChick oh Maria, you have me both wanting to laugh and cry. That oil situation sounds horrible, I'm so sorry. I love the massive aromatherapy comment though (and smelling like a pizza factory!). I'm so glad to hear that you are slowly making some progress. It seems that unfortunately for most of us - "slowly" is the only option for progress. Congrats on the baths! It's wonderful that you can start to do more things and celebrate that as you go. And you're so right - there is no great solution for how to classify illness. And good for you for letting yourself cry and pout - I think that's so important! If we don't feel and process and release these feelings then I think they turn into poison inside of us. This is REALLY freaking hard and there's just no way it can be all smiles. But yes!! You do have half your life left. It's worth working for and you sound like an unstoppable force - excited to see you put this behind you for good ❤️
I have a kitchen full of supplements 😭 just received a package of very expensive gut bacteria this morning..... this video has made me realise I'm not crazy.... Just desperate to be well again.
Definitely not crazy!!! We all do it I think - try absolutely everything we can. And who knows, some of those expensive supplements might help! We each have our own path. Wishing you so the best with your recovery 💛
My CFS was also brought on by a vaccine. Glad you mention this because I sometimes wonder if I have CFS or some other kind of vaccine injury. So sorry to hear about your mom. ❤
Vaccines contain very toxic things, and ultimately any illness is caused by toxins and/or deficiency and/or trauma. The truth is simple! Yet in real life the issues can be so hard to resolve 😵💫
I'm so sorry to hear :( If it's the covaidshot, it's not a vaccine. I have CFS from the infection itself - didn't sign up for it, and I lost my job while on disability). There IS help. I couldn't even use a wheelchair..the wheels I couldn't even turn. There is help and hope, and a lot of it has to do with toxic load and the ability of the body genetically to clear it. Hang in there - I get it, but there is a lot to do!
Raelan thank you for sharing this! Many people have vaccine injuries and it’s such a shame, there is so much stigma around even questioning it all! I think it’s about the perfect storm and often they can just tip you over the edge! Your very brave to share your vulnerability and to be so open, transparent and authentic! I’m staggered by all the stuff you tried, Which I sure many of us can relate to! Your amazing!
Yeah I didn’t get why she felt the need to defend it so much after what she experienced. Anything of unknown substances including dead viruses should always be considered imo
I teared up at the end with your encouragement about the lack of progress not being failure. I definitely try hard and have been at it for almost 4 years. Thank you for offering us your beautiful story, with all its pain and gain, sorrow and joy. I send you a tight hug!
Thanks so much for your generosity in sharing this story and I am so sorry about your mum. Your story parallels mine a lot and I especially related to the disappointment/shock from the doctor and the crazy interventions you tried! I am now doing brain retraining and it has been incredibly helpful and recently added exercise in. Keep up the good work.
Your honesty is very refreshing. This thing feels like a complex puzzle with personalised pieces but you’ve already put so much of it together I think this will save me years of trial and error figuring it out on my tod. Thank you so much for sharing your journey.
Just came across this video, I'm so, so sorry, I attempted my life as well, after a covid infection, my life changed so much, they say I shouldn't be here, but im still fighting. I've never heard of brain retraining and just started, I hope this helps me, hugs to you.
You are an excellent communicator Raelan...and it's so good to hear the whole story. Getting the full picture helps me to identify where I'm at...and hopefully adopt what is appropriate for me. Thank you!
I have Fibromyalgi, bur score 100% on MECFS. Two years in. I'm already on a path to create a similarv envirement to be able to dedicate my body to healing and recovery. I've been mostly bedridden and very limited untill now, but I feel and believe so strongly that I'll win this battle. Your way of recovery resonances well with me. Thank you for your inspirational story! I'll tell a similar one, giving me the time to achieve that! Already on my way! 💕
Hi Gertrud, I'm so sorry to hear about your struggles, but I am also so inspired by your attitude and determination. I'm excited for you and am definitely cheering you on!
Thanks for sharing your story and being so honest and not claiming to have all the answers like some people do. I'm really happy things are good for you now.
Is anyone here experiencing unbareable brain fog and vision problems? I have Fibro too but im too ashamed to share my stories of how it came about.... its comforting to know that there are ppl who understand ... because your family dosent... dey dont know what its like 💔 i need help im only 22 n i have to watch everyone live there life while i feel like 95 i use to go to the gym.. if id only known that mental health could cripple u i wont have done what i did
Raelan, I cannot thank you enough for sharing this story. You are so honest and genuine, and I can relate to SO MUCH of what you have described. I'm 3 years in to CFS and working to get out of it, learning much along the way. Again, thank you!
Omg- the details - I got it around 30 and by 57 I’m pretty much bedridden and very week and extremely sick and nauseous. Lost teaching, medical and flight attendant jobs when walking became too overwhelming. I hope you’re well - this is a torturous and unpleasant condition
I know this is from three years ago, but you are amazing and thank you for sharing your story. I’m purely exhausted with long haul Covid since 4/1/21 30-40 symptoms issues since. I’ve watched a lot of your interviews the past few days and thankful I got to hear your own personal story. Thank you for being someone I can relate to and listen to with these videos! Former nurse, runner, had zero doctors but a OB now I’ve seen so so many, so many tests same as you. I’ll feel like a glimpse of me sometimes then come crashing down with exhaustion I’m pushing through daily for my kids. ❤ Trying it all.
I've had exactly the problems with my Doctors in the UK that you had. For the last 2 and a half years, I've seen 4 differen Doctors, and had every test done multiple times, including hospital visits and tests, with similar results. When they couldn't find anything wrong with me, according to their tests, I began diagnosing myself. My last visit to my Doctor ended with her prescribing me an antacid medication for what she thought was acid reflux, and by instinct, I knew better not to take it. The 37 side effects were also a big part of my decision. I immediately put myself on an Organic food diet, and reduced my stress, sugar and carbohydrates by 75%, with positive noticeable results within a few days. It turned out that I'd been poisoned with dangerous levels of Cortisol, caused by excessive stress, which had concentrated my PH stomach acid so much, that the skin on the back of my throat was being burned away by it, leaving me in agony, and if I'd followed my Doctor's advice, my health problem would have severely worsened, with up to 37 unknown side effects, the results of which my Doctor would have taken no responsibility for. 10 months later, I'm more healthy, knowledgeable and empowered than I've been in any other time of my life, and I'm currently studying 3 years of Naturopathic Medicine.
That was truly an amazing amazing story. People have said to me they did not know anyone who did as much as I did to recover from CFS/Me but I think I could point them to you! what determination and I am so glad it paid off! thank you for sharing parts of your story that may have been embarrassing to share and for your work to help others with CFS/Me.
@@RaelanAgle oh yes , over the years I have found some things that have helped me a lot. I've been able to work full-time since 1997. But I'm still bad at pacing myself and taking it easy. Your channel is going to help me with that. It already has help me with that! And I'm looking forward to watching more of them
Bless you for sharing this story. No one in my circle understands what I’m going through and watching this is a little like having a long conversation with someone that does.
Thank you so much for all the videos, Raelan! I experienced burnout almost a year ago, and your tools to recover from CFS are extremely helpful in my recovery, too.
I absolutely loved this video. It is just honest, raw, powerful and full of helpful tips. I am going to give a few things a go from this video. Thank you so much for sharing and YES I agree with another comment that you would make an awesome health/ life coach!! 💕
3 things you said I definitely relate to. Before I increased my Adderall dose, alcohol was one of the vey few things that actually gave me more energy physically. It was very strange. To this day I have not found an explanation for why this is. I don’t drink anymore because it interacts with stimulant medications, but that’s interesting you experienced that, too. Rice is also something I’m currently eliminating from my diet because it’s so problematic and causes an immediate flare up for me. Actually sugar in general severely worsens my fatigue, especially fruits. The only foods that don’t cause an exacerbation of my symptoms are tomatoes, avocado, cucumbers and bell peppers. Even kale somehow is problematic for me, spinach slightly less so. Beans are more tolerable than meat, and nuts seem okay.
I'm so glad you enjoyed the video and I just noticed you in our FB group! So wonderful to have you there and looking forward to getting to know you more and watching your recovery journey continue to unfold 🌷
Everyone’s journey is different and beliefs matter so much! Changing my thoughts and learning to love myself where I’m at is helping so much. And getting a spiritual life!
My experience is so very similar to yours. Your videos are so reassuring to me. I'm fighting this alone, it's a battle but I have complete faith that my body will heal. Its so hard. Your words are so true. It's good to know that some folks get out of this living death. I thank you for sharing so openly. X
I know this can be a nightmare, I hope you are managing ok. I love your perspective and determination and I hope you find your fastest path out of this ❤️
Thank you very much for sharing your video your life. I believe my circumstance started with the Air Force giving me seem like hundreds of shots vaccinations didn’t affect me right away, but slowly became weaker lost a lot of weight I would just literally pass out with a second notice. I was in my teens when I started, I’m 67 now. And it’s still a battle but it’s better. I have a wife a family so I didn’t have any option of stopping. Had to keep the lights on had a pick jobs that I was able to do which usually did not pay much at allbut gave me the option of working hard when I had the strength and crashing in between. Most people thought I was just lazy. We’re doing drugs or whatever but you explain your symptoms so well a lot of more symptoms lined up. Thank you.
Thank you for being so open and complete as you explain your journey. What you tried.How it helped or didn't help. How you pushed through discouragement. I have a new sense of possibility of bettering my life. I won't dwell so much on what has not helped me and focus on what has.
Hi Realan th ranks again for sharing ur story & im so happy for u to have recovered . It’s sad about ur Mum condolences … My Sister has MS & although Cfs is dibilatating MS is seriously a bad deal & I feel bad when I’ve complained to her.. We rub along always have but she looked into diet & answers for MS .. She puts me to shame with her motivation each day . She can’t walk now & struggles to do anything … but still keeps active . This might sound bad. But I feel completely well & normal at her House ( which messes with my head a bit ) . We also wondered if our conditions were hereditary . Previously generations wouldn’t of spoke about their problems . We heard little about things apart from what we used to think of as. Old age problems …. That s what I appreciate now ppl talking about topics & our younger family need to know . I warn my Daughters about this Cfs … Another thing b4 I forget . Recently I’ve found I do not absorb Vit D & I think this might of been the case for a number of years ! But also that a lot of ppl don’t & it’s very important this Vit D . It’s linked to MS & other things … There needs to be studies done into Cfs Could u start a petition or get in front of Universities or the like !? …. Pss what is the FB support group ? I’ve only found Toby Morisions x
@@EllieKirk, You said you feel normal at your sister’s house. Have you had your house checked for mold? Do you always feel better when you leave your home? Or maybe it’s just the excitement of seeing your sister. I know I can feel “normal” for short periods when I’m running on adrenaline. But, then I crash afterwards!
@@PeaceIsYeshua if this house is not heated I have had Mold in my Bedroom & only this last week heard by Expert Tina Beers that’s Mould need a detoxifying in the Body because a ‘spore’ or something stays in our Lungs !!! X
@@elliekirk6001 Bless your heart!! I’m so very sorry you’re dealing with that. Have you tried nervous system training yet to help your body cope with the mold?
Hi Raelan, thank you for sharing your story in so much detail. I find it very inspiring how you managed to overcome all of these challenges. Some parts of your story brought tears to my eyes, for example when you talked about your mum. It must have been devastating to find out that you have the same illness - and nonetheless you kept believing in recovery and made it. That helps me believe that recovery is also possible for me, no matter how hard or almost impossible it may seem in some moments. Sometimes, I feel that the longer I am ill for, the harder it is to believe in full recovery. Because it starts to feel like the body is being damaged in a way that is irreversible. So, hearing that you managed to fully recover, despite it taking so long, is very reassuring. 😊 I'm really glad I found your channel recently. Thank you for all that you do. ❤ I wish you all the best. ✨
I came across your videos when searching about pacing - and I am inspired to keep going. I wondered how am I going to get done the things I want to do and the things I have to do, combined with resting. It has surprised me how quick things go downhill with ME/CFS. I was in tears knowing somebody understood it when you talked about staying in your zen as I that is what I have realised . I found over the past couple of months I had allowed myself to feel the emotions of life and boy, did I suffer. I am now trying to stay in my zone and if that means I can't do something with excitement then so be it. I need to focus on me. I will be adding your videos to the positive things that make me feel good list. Thank you for sharing your story.
Yes, i've heard tons of M.E. stories linked to vaccines, some obvious immediate acute reactions that heralded beginning of their illness with M.E., others resulting in major deterioration and others suspected cause/contributing to their illness (including my own case). Vaccine injuries are real and there are countless peer reviewed papers, accredited docs/researchers etc that have proven as much linking tgem to many neurological conditions. It is not a stretch to consider they may be a factor in M.E./CFS. The fact that even discussing the possibility that a pharmaceutical product may NOT BE suitable for ALL people and likely results in serious side effects for some is insanely controversial in itself is very telling.
Thank You ❤ I have found your channel a couple of weeks ago and I am watching a lot of recoverystories..You are such an inspiration! ❤ I have had Me/Cfs and fibromyalga for a lot of years..from moderate/severe to mild and now the latest year back to severe..I am getting forward to when I can share my own success storie..I will get there in time..I am not giving up! ❤ Thank you so much for this channel 🙏 Much Love /Veronica from Sweden 🇸🇪
I catched Covid in March and since then I have been struggling with "long covid" that from what I have been researching, is just like ME/CFS but has the lung issues on the top of it. Your videos are really helpful, I need to change my diet and learn to pace properly, along with the different treatments that may be useful for me. I was really scared at the beggining! I don't understand how there's so little information about post viral illnesses.
Completely understandable that you've been scared! I suspect that most of us facing this sort of situation felt something similar. I'm so sorry you've had this long run with covid, sending you tons of love and support - I really hope you kick this beast soon!
Raglan, you are such a honey. I appreciate your authenticity, caring, honesty, supportivness & relatability. Thanks for your channel, thank you for you.
I’m so grateful for finding your channel. Long covid turned into me/cfs and I’m on the verge of getting diagnosed. I already had a holistic background and previous experience with recovery from gut, brain and immune issues so I’ve been able to make some progress on my own. Your channel has helped to confirm everything and provide so much more insight. My heart goes out to you, and especially for being so brave through all this including your mother’s journey. I hope to see a video on how things go with getting back to work! I’m struggling with the idea of stalling my careers again. From a fellow Canadian, thank you again and I hope we can meet one day!
Raelan Agle I really laughed when you said the things about becoming friends with the actors, I just recently bingewatched TBBT and felt te same! Unfortunately right after finishing tbbt I crashed and am in the ‘severe’ categorie:(
@@matthijsreenders5397 I KNEW I wasn't alone in this! I've never heard anyone else say it though so it's nice to have it confirmed 😉 (And to have it also be with TBBT is awesome!) Actors and TV characters really have felt like my friends, my whole world at times. I'm so sorry though Matthijs that you have crashed. Severe ME/CFS looks unimaginably challenging, I really can't even imagine what that's like. So unfair. I wish I could reach through the computer and pull you out of it somehow. I hope you are managing ok and that it eases up soon.
An incredible story of resilience- very raw & inspiring. so much resonates with my story & tools of recovery eg alcohol & coffee - I used these tools unsuccessfully at first later the more... Long term tolls that fuelled recovery - lymphatic drain massage, sleep, movement, pacing & incremental improvement and brain exercise - visualisation & meditation were key
Thanks Christine, I'm glad to hear you enjoyed this. And thanks so much for sharing a bit of your journey here. We have had a lot of similarities haven't we. The one thing I never did much of is the brain exercises and I'm coming to appreciate how powerful this can be .
Dear Raelan, thank you so much for sharing your story and all your other informativ videos!❤ Actually I don't do comments, but now I have to. You give us hope! Greetings from Germany😊
I have had ME/CFS in 4 cycles - since November 1996. The first 3 lasted 4-5 years. I have one currently since July 2022. Trigger - out walking too intensely - then malaise/blood poisoning/going cold after walking (thats a common physiological feeling I have, my subjective experince). This lead to not recovering after 2/3 days like I normally did, and went on and does so currently. Triggers - stairs - at all costs I have to avoid. Trigger - lifthing heavy things (eg shopping back, in particular things above shoulder height are particularly sensitive to triggering symptoms). what I did to cope: 1. yoga 2. progessive muscle relaxation 3. mindful body scanner 4. low carb diet - game changing 5. pace self 6. aim for humour in a day, as worry only increases cortisol and reduces mood, and do things i like - often TV program/movie/read something/youtbube. 7. graded walking - incrementally loading time/frequency/duration/intensity (eg hill or no hill) 8. have a schedule 9. sleep well, get up early as can - and get sunlight 10. be about human beings - not withdraw - even its the supermarket 11. learn things I find interesting - follow my nose 12. adapt mentally to symptoms/life restrictions - not comparing myself to the life I had (manage I should say), and also manage who I compare myself too also - as most people dont have CFS and have no reference point to understand it) 13. Daily journal - 5 minutes, reflect on goals I set myself, and evalute progress - briefly - every day I make towoards these, reaslitically, and fairly - linked to my Future Self 14. have a future self - who am I aiming to be given my limits - in 3 moths? why is it of value to me? ; who do I not want to become in 3 months? why is it worth it? 15. Expect set backs - and have a reasltic, helpful and suitable response - you have to help you; as other people who live with ME/CFS have can relate to you, but those without dont have that same reference point. 16. Remind yourself your stronger than you know, and define you by your own values and principles - as comparing yourself to others without this problem - is not fair or realistic to me Given 27 years in November 2023 living with CFS/ME - the way I would test IF I have fully recovered THEN I can bench press without negative physiolgical reaction, or do a squat, or attend a spin class without symptoms after this. that said - in my experince when recovered (or in period of remission) I have had increased exercise tolerance without symptoms, but have never had the strength or power I had prior CFS/ME. I keep an open mind to full recovery to CFS/ME - and I am looking carefully for the magic bullet. I am still looking.
Watched this in fascination as I never even saw you until I found your video with Mary Ruddick. Thank you for sharing this intimate journey. Bless you for having the heart to help other souls with similar struggles!💕
You are speaking my life. I wish those closest to me could be hearing your podcast. Did you have difficulty with appetite and eating, or anxiety? You give inspiration. I've had those days where ending life seems the only way out of the torture, but more than anything, I just want to return to normal me and live my life!
Thanks for sharing this! I’m just at that point where I’ve found the benefits of a little more movement and slightly faster recovery rate. It’s been 9 years! Although just after this, life stresses crept in (menopause/moving house /grief/ other health issues) and I took a downturn…I forgot my strategies and felt enough was enough, the thought to end my life became scarily overwhelming. I stopped to think. I’m 53 and there is more life to come. It’s ok to acknowledge the bad times, important so we can adapt and move forward. As you say, with love and support we do have a better chance. Life is an opportunity, my son will soon be 24 ( he cared for me in the early years, I’m grateful each day), this year I got married to a kind & caring man who understands ME/cfs. All of us watching you, understand this condition. It unites us. So many blessings! So, life will inevitably bring bumps in the road, setbacks…we can navigate this and who knows what joys will greet us. Thank you for sharing and creating a way to connect our experiences. Wishing you and your viewers every chance at love and living ❤
I've seen a few of your videos and wondered why you never talk about your own experience, now I know why. Many things you said really hit home and I am very moved. I'm sorry that you had to go through everything that you did. Thank you so much for sharing your journey so openly and honestly, Raelan, this is arguably my favourite video of yours (so far, but I have yet to watch the ones you linked to in here, lol)! I can relate to so much of what you said. You have a such an engaging way of speaking, it's not hard to spend a whole hour listening to you, you give so many good nuggets of wisdom, and are so positive and calm. You gave SOOO many important, helpful details about the things you did to get better -- thank you a thousand times! What you say makes so much SENSE! I never believed in supplements until I got Long COVID; I've spent hundreds of dollars since. I'm glad that there might be another way (by drastically changing the diet). Your journey may have seemed hopeless, but look at the thousands of people you're helping. And now with COVID, how many more thousands you will help?! Thank you so very much, and I look forward to watching the other videos, esp. the ones you linked to in this one. Hugs from a fellow Canadian. :)
Omg… I’ve watched bits and pieces of your videos over the last 6 months, while dealing with my own mystery illness (likely ME/CFS or Long Covid). I hadn’t come across the Flu Vax detail until today. My jaw literally dropped. My whole world was flipped upside down after getting the Pfizer covid vaccine. I’ve had all the same debilitating symptoms that your guests (and yourself) have mentioned. Somehow hearing that was comforting because you are obviously much better now, and it makes me optimistic about my chances of getting better some day.
I'm so sorry to hear that you are facing this, Steve. Glad this was helpful in some way - and I hope you find your puzzle pieces to get past this soon!
Although I don't have the exact story, I relate a lot to your experience. I had on and off difficulty with mobility and received little help or direction from the conventional model of health care. I felt lost, angry, and I didn't see a bright future for myself. It's nice to see your hardship turned into helping others with the same hardship by sharing your voice and the voice of others. Thanks!
I'm so sorry to hear you've been through this too Mathew, I know it can be such a harsh journey. I hope that you are slowly finding the support and answers you need for your own recovery too :)
I love how you empathically worked towards your recovery for the last two years. How did you balance doctor’s appointments with the intentional movement and exercise you did over those last two years? As a post-Covid sufferer, I still am going to appointments to assure there are no additional issues. I’m trying to develop a system that will make movement possible every day while not overdoing it on days I have those appointments. Thank you.
Sorry to hear about your health challenges Chimere, it sounds like you are taking a very conscious approach to your recovery though. Good for you! When I first became unwell with this I went to quite a few doctors appointments, but when I finally recovered in those last two years I wasn't seeing a single doctor. Unfortunately, for me and in my specific situation, they seemed to have nothing to offer to my recovery process. The silver lining was that it freed up my time to focus on doing the things I needed to recover 😊
I'm so grateful for content like this. A lot of what is online is discouraging and says you can only "manage" it. I've had long covid and I'm feeling good at the moment but still approaching physical activity with caution. I'm making sure i go slow this time!
Thanks for sharing your touching story ❤. I am sure that my grandfather also got CFS (did not take his own life, but he definitively thought about it several times!). He was my hero, we shared a lot of traits, what makes sense of many things now that I got also sick with CFS. My younger sister is showing also signs of CFS. Definitively run in families.
Do you happen to all have ADHD or asperger's combined all my father's s side have fybromyalgia CFS my mum had severe ms àspergers surely I have fybromyalgia CFS heds the clue hypomobility
Thank you for this. I appreciate the wisdom you have shared - your openness, honesty and vulnerability. It has confirmed much of what I was already thinking and helped me feel more positive about taking baby steps towards recovery. For me, I will make an effort to get the natural probiotics, start stretching more, try the hot/cold shower (hot water bottles help me), sunshine, movement, hydration and finding joy. I'm combining recovery with homeschooling and becoming an author. I write kids books, and am just starting one about a high schooler who gets ME/CFS (I have got it in my 50s, but I write for children/teens)
Wow Raelan..... Just blown away right now I'm so sorry about your mother 😢 But the way you got yourself to better health! It's nothing short of AMAZING 💪💪💪😍👏 You are a warrior. Thank you for helping us to fight too every day!! I love and respect and admire you!!❤❤❤❤🙏🙏😄
Your recent videos sound so much more uplifting and more energy. It shows that you have had way more improvement happening in the last two years. You've had so much growth, you should be proud of yourself and your improvement !
Oh so sorry about your mum. I imagine that situation is made harder by the fact you have healed yourself. There's things I now know that might have prevented my mum dying from cancer and that has been a hard pill to swallow. Of course there's no way of knowing for sure if I could have helped but it's something I've beaten myself with a few times...🙄😏 I do enjoy listening to you. I think you remind me of me in some ways. Thanks for sharing 😊
After finding your story/channel it's highly helped me this last month! My personal story is so similar to yours. Now my healing is just a daily lifestyle that works for me and it's a new level of acceptance & mindset for what I can achieve. Stress management, sleep & gut health is KEY, along with gentle "exercise", limit any cardio, strength and stretch is SO important. Thank you for what you're doing 👌 & giving hope to us all. (Also I brought a hottub & that helps me Alot ☺️)
Wow, Donna, it does sound like our stories are very similar! I'm so glad that you too are finding what's working for you. And wow...a hot tub sounds amazing and very helpful. I'm glad to hear you're finding my channel helpful - thanks for taking a moment to share!
Bravo for the work you had to do. This brought light and hope into my day. You are right we need love, the right kind of love to bring this all together, to heal and make life worth living. Work for yourself. Where you can make your own schedule. Much love. Thank you.
Thanks so much for this and your honesty, Raelan. I could relate to so much here. I had to quit my job as well and move back in with my parents which was not the plan before. I have had Long Covid now for 13 months and trying everything and trying to find out what’s helpful for my recovery. Slowly getting better, with relapses in between…. Thank you for all your videos!
Susanne, I'm so sorry to hear that you've been dealing with this for so long. I hope you find all your puzzles pieces and can finally put this all behind you soon ❤️
Many time cfs come from the stress of feeling unsupported. A sublte deep internal belief that we're in danger. That buried feeling of being unsafe to say no can come from growing up with immature parents teaching you to that you cant say No and feeling like a failure around them.
I got sick as a teenager. Before I got sick, I was happy, confident, had wonderfully supportive parents, plus older mentors who believed in me also, and I had a great future ahead of me, so this wasn’t the case for me. ❤
I'm so, so happy that I found your videos! And I am very, very happy that you succeeded in your recovery, and by sharing your story you give me and others hope and your experience how to do it! Relating very much to your story, it seems I have also made quite a journey over the past 6 years, going through different stages physically and emotionally, trying all available alternative medicine, and reaching finally the stage where I understand how my emotional health is the key! Understanding which thought patterns I should change and finally putting myself and my health first! And with your experience, encouragement and practical advices I trully believe I will also succeed in healing myself! Thank you from all my heart!💚💚💚
Wow Raelan, thank you for your wonderful story, and for your honesty and openness. I just discovered your channel and its really giving me hope, hugs to you x
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I'm quickly figuring out that my chronic fatigue symptoms are returning because of my current 6 month battle with anxiety. All the medical testing comes back normal. I didn't have anxiety 33 years ago when I was first diagnosed with CFS, and I rebounded in 4 months. This has been grueling. You are an inspiration to regaining my health. Bless you.
The shot’s definitely made it worse for me. I researched XMRV’s and stealth adapted viruses that remain dormant until activated by something like a certain shot that causes a strong immune response. Note: stealth adapted viruses were probably introduced to your body at some point by a different “shot”. They have a mixture of virus rna and hence the viruses in your test results.
Western drs can go to hell ,I went through that ,w dr saying how do I know that you just dont want to work? I screamed ,after my friend carried me to drs ,and I was sitting on floor “ I wanna work “
Summary of how Raelan healed her chronic fatigue (from 37:00 - 52:00 in this video):
* Learn to manage stress effectively: stress can be extremely toxic. Having strict boundaries to prevent people/things/places pulling her into too many emotional spaces. Putting boundaries on the content she consumes, on the people she interacts with, etc. Staying in a space of "Zen" seemed to maximize healing.
* Drink lots of water
* Get lots of sun
* Cut out toxic foods and alcohol. In another video, she goes into more detail saying to (A) get rid of all the sugary / processed / junk foods, and (B) get rid of caffeine and alcohol-both are "energy loan sharks" ("they always took way more than they ever gave").
* Keto helped somewhat, but switching to a whole-foods plant-based diet was a "total game changer" (all sorts of things in her body started functioning better e.g. faster recovery from exercise).
* Cutting out gluten didn't make a difference.
* Rice causes her big problems (an example of why it's important to know your own body, not everyone has the same issues with the same foods).
* Various kinds of fasting have helped a lot (intermittent fasting, low-glycemic juice cleanses).
* Fermented foods (kimchi, kombucha, sauerkraut, kefir, etc) did wonders for healing her gut.
* Physical activity throughout the day to build her strength. Some walking, but she put a lot of more focus on light strength training. In the first 6 months, physical activity would make her feel worse, but she noticed that from one month to the next she was building strength so she persevered.
* Gently incorporating movement into her day that didn't make her feel worse.
* Showers alternating between hot and cold helped a lot.
* Full body massages once or more a week helped.
* Making sleep a priority.
* Manage body pain (post-exertion malaise) during recovery with stretches, hot baths, and sometimes painkillers.
* Having love and support in her life helped fuel her recovery.
* Pacing herself-trying to not overdo it (then suffering from a massive crash afterwards).
* She healed her CFS *without* any dietary supplements (she had tried $1000s of supplements the first time she tried to heal her CFS; but she didn't personally notice any changes when stopping all the supplements including probiotic supplements).
* Overall, it was really hard work, but doable and definitely worth it! It took her about 2 years to get back to full health, but even after 1 year she was already much better (e.g. doing hour-long workouts regularly).
Congratulations Raelan for achieving an amazing recovery! Thank you for sharing your hard-earned wisdom. ☺
Thank you. 🙏🙏🙏
But exercises causes PEM and Myopathy in MECFS and LC patients
So if exercise builds your muscles you dont have chronic Fatigue/Me?
Thank you for the récap!! 🙏
Thank you ❤
A key guide is to use to recognize scams is the exact way she is marketing it which is both unprofessional and not even considering ethical & medical considerations. Over emphasizing emotions and not the lack of ethics in what she is doing by making this video. It is very sad humans can be tricked even with the simple biases and the desire and hope for magical cures. We are all susceptible to this kind of fraud even with medical degrees. So it is vital to not participate in it and do not advocate for unethical practice. The MOST UNETHICAL PRACTICE passing off fake cures to desperate or depressed people looking for hope.
In regards to the "mild chronic fatigue syndrome" label, I've just started calling it myalgic encephalomyelitis around people. The scarier the name the more seriously people take you
You are so right! Good strategy
Yep. Me too. Well said. People don’t want to show their ignorance of Myalgic Encephalomyelitis (it took 2 years to diagnose). But, if you say “I have chronic fatigue syndrome.”, then the reply is “Everyone gets tired/exhausted/over does it, you just need a good rest/a change of scene/ a holiday (blah, blah, blah). So, I go with ME now.
@@martinbarnes98 do you get much pain with your me.fybromyalgia pain more nowadays q
#facts ME/CFS is no joke and the fact you don’t usually “look sick” convinces people you have to faking. Drives me bananas. The days the lupus butterfly shows up are almost a relief and that’s a horrible thing to have to say. ME/CFS, & other autoimmune diseases, change your life in ways that are incomprehensible to non-sufferers. Frankly, it’s pretty incomprehensible to those of us who deal with it daily.
@@LaurieAnnCurry do you have much ch muscle pain with it I have had it 26 years now it's more fybromyalgia or the same thing changing
Thank you for sharing! I can relate to SO much in your story. My wife left me when I was at my worst. We had to sell our dream home. My career stalled. I went from feeling ahead financially to behind. Moved in with my parents. And I’ve spent tens of thousands on recovering. I know I’ll get to 100% eventually! Stories like yours keep me going! Thank you!
Oh wow, David, I know that many of us have similar experiences with this illness, but it sounds like you and I REALLY have! I'm so sorry to hear that you too have had so many of the same massive struggles with this. What a road we've been on. I'm so glad to hear though that you are 100% determined to get past this. I think stubbornness is an invaluable quality with this illness! Looking forward to hearing you share your full recovery story one day very soon 🚀
Raelan Agle can’t wait to share it some day soon! Thank you Raelan! :)
i realize it is kinda off topic but does anyone know a good site to watch new movies online?
@@davidhodge8509 how are you doing today ?
@@davidhodge8509 how are you now?
I'm barely 10 minutes into your video Raelan and you've already got me choked up and crying when you said you felt like a kidnapping victim and someone had stole your life. Your symptoms and how you felt, you took the words right out of my mouth. 15 months with Long Covid. I don't know who I am anymore but I'm giving it my all to heal from this hell. I hope you are well ❤
Your story is my story. Good luck to all. 🙏☝️
I feel you - im 1 year in. Hoping for the best.
I can relate too!"
Your mom’s story is exactly me right now. I was diagnosed two years ago but have been sick longer and all I do is get worse. The depression, the bed, the wheelchair, all of it. And I’m only 35. I’ve been told I will never get better and that none of us do. But when I do gentle yoga... my body starts to feel stronger, less achey, even my migraines start to lessen. That’s how I found you. Your video is the first time I’ve ever seen the word “recovery” next to ME or CFS. Just seeing that I have the tiniest glimmer of hope. I’m conservatively hopeful. I was always healthy, energetic, social, never stopped, had a fit tiny figure that matched my 4’11” height, I was a dancer my whole life. Now I’m told I’ll never dance again. I just hit 200lbs, nothing helps me lose weight, antisocial, stuck in bed most of the time, handicap placard on my car, constant mono pink eye and flu, had to quit my job, fighting with disability, unable to clean my home get pregnant or adequately take care of myself or anyone else. I always hurt I get fevers constantly I can’t think straight I’m just so so sad. The only thing that gives me confidence is my wheelchair because I feel less afraid. Afraid that I’ll be in the middle of target and not be able to get back to my car. Afraid to say yes to a walk at the mall with a friend because even though their kid cries when we stop walking I don’t care he can cry because I CAN’T keep walking. At least I feel like I have control of my body in my chair. I can navigate a store and get what I want without asking for it.. but I struggle with doors, inclines, and straight aways. I absolutely hate being pushed because I feel like an invalid but sometimes I have to be pushed because I just can’t. And it’s so hard to ask for help because almost nobody believes you. Especially if they have ever seen you on a good day.
The yoga helps me get up in the morning, helps ease some pain to try to sleep at night. And that gives me hope that I could find the right foods, the right supplements, the right kind of movement, the right mindset... I can NOT give up the thought of dancing again.
So I’m hopping on this journey with your channel. Thank you for the hope literally written across your thumbnail. Because we are surviving off of so little income because of all of this. So little help. So little care from doctors. And so I no longer have insurance and have no money to pay for doctors or treatments. So someone like you being willing to share your story without some webinar I have to pay for or magical supplement I have to subscribe for, it means the world. Literally my whole world.
And I’m praying to get it back!!! Hope this doesn’t sound overdramatized. But thank you!
ME is rarely a progressive illness and the tendency is to recover to certain extent over time. There seems to be sub set illness. Some recover at about 4 year mark if they manage their illness though I have known many who have recovered despite no management and maybe they did not have authentic ME illness at all. Others make “0ne step forward / one step back type of partial recovery overtime and small number regress or remain very seriously ill. It all depends on type you start out with. I tend to relapse after infections and only option is to rest till better.
I hope you are doing better 🤗❤️
Hi, Can I suggest you watch all of Realan's video's on recovery. The one about putting your body into ahealing state is imperative. You have to retrain your brain, change the way you think. cut out stress as much as possible and learn how to keep yourself calm. Mediation really helps this process. Brain plasticicty is real, you can retrain your brain I have been ill for 24 years and tried just about everything... It is only now that I am recovering by brain retraing, keeping myself in a healing state. You can do this!!
@@karenlambert4973 how are you
@@tracypearson6639 Still healing, I am recovering from FND as well as having four children. I am moving forward though. Creatine is making a difference with energy. I am not climbing mountains yet but I am able to do more housework! LOL
Earlier this year, at four and a half years of illness, I started to have real improvements in quality of life and was even working full time. I still couldn't exercise and still had feeling of general unwellness and malaise, but there were clear improvements happening. In March I had a major crash and it has been a brutal setback. I've almost gotten back to where I was, but the crash has been deeply discouraging. I've always felt like recovery is possible, but since March I've start to notice an almost subconscious belief that I'll never recover. Sometimes I feel totally lost and hopeless. Your channel and videos help me develop that hope again, so thank you. But if I'm being completely honest, even the hope can be exhausting. May we all heal from this oppressive illness!
Hi Casey, thanks so much for sharing this. Wow, what you've been going through sounds frustrating (and truly awful, really). I'm so sorry to hear this. I imagine it is mentally exhausting to have to get your health back up again after you'd been doing so well. I bet "deeply discouraging" is putting it mildly. And yes, you make a great point - hope itself can be exhausting too can't it. But at least for me, lack of hope was even worse. It's understandable that you'd be losing faith that you'll ever be past this, I suspect we all go through phases where we feel that way unfortunately. I have so much empathy for people like yourself who are struggling with this. I am with you 1000% - MAY WE ALL HEAL FROM THIS OPPRESSIVE ILLNESS!!! I hope you are managing alright and I'm glad to hear that these videos are helping in some small way. Hang in there Casey, you've got this ✨
@@RaelanAgle exactly what I would say. Sorry about your mom. My family still doesn't get it.
@@RaelanAgle If you’re thinking about committing suicide or struggling with thoughts of suicide, know that God cares about you and you’re not alone in this world. Believe in His son that died on the cross for you and me, you’ll see, He’ll help you in this world to survive. 1 John 4:4 “You, dear children, are from God and have overcome them, because the one who is in you is greater than the one who is in the world. Psalm 34:18-19. “The Lord is close to the brokenhearted and saves those who are crushed in spirit. The righteous person may have many troubles, but the Lord delivers him from them all. th-cam.com/video/hPfGsFjNGlA/w-d-xo.html th-cam.com/video/ROVqptoc2V4/w-d-xo.html
Thank you so much for your concern, that is very kind of you. Thankfully I have been doing great for a long time now and my mental health is strong (and I have all the tools I need to take care of myself in that department now) :)
Dude keep going you're almost there. Your guitar playing is rad btw!!!
Thank you so much for sharing your story. I’m 3 years in CFS, all those years I was confident that I will be back on track, but last month for the first time I’ve got discouraged, and hopeless. Like my life is not worth living anymore. Your story gives me hope and inspires me to get going with my healing journey. God bless you 🤍
I got CFS after a vax while in the Navy. I was treated poorly by the doctors I saw , the surgeons I worked for, and my peers.
How are you today?
When Raelyn said that she was worried about mentioning that she felt a vaccine she got played into part of her issues, I pray that people don’t worry about this at all because I’ve had several friends over the past few years that got THE vax and then their health tanked. With what they’re calling long Covid but I’m absolutely sure that vaccine was the straw that broke the camels back for them. And unfortunately, some of them are continuing to get vaxed, but now also with the flu vaccine. I pray that they all find clarity and especially answers to all of this because there are many people on TH-cam that have gone through this and are sharing what has worked. What hope there is! Amen!
I wasn't diagnosed with CFS, but the description is so accurate to my symptoms: feeling like I have a flu, but no fever; heavy head; little to no energy at all times; a little exercise makes me feel like I have a flu or nauseous or get sore throat which goes away in hours; I've had insomnia for 10 years; staying in bed doesn't help; I feel cold easily. I've had a gazillion tests done over the 10 years, and all of them come back normal.
I'm just guessing here, maybe CFS is caused by pushing yourself too much for too long, therefore the cure for it is to rest too much for too long :P Did anybody else overdo pushing themselves to extremes before getting these symptoms? I know I've been pushing myself way over the limit since 16 y.o. Even though I was dealing with a lot and working too hard, I never thought of resting. I rest a lot right now and do get minor improvement in energy level.
I'm sorry to hear about all that you've been facing, I hope you have some support and are managing ok ❤️
A lot of PWME rest when they get tired. It is important to rest before tiredness sets in and that is why pacing is successful although it needs Lots of discipline and luck. If you get call to collect sick child from school, pacing has to come second!
There are different stages to chronic fatigue which is caused by Epstein bar. Medical medium books by Anthony Williams. Absolutely a game changer .
Thank u for sharing.cds is awful. Glad your ok
I have had ME for thirty two years and my temp has never been more than normal and several other ppl with ME have said same. I have had flu and shingles. When my husband had shingles his temp was 98/102 and mine never went higher than 97. One of the peculiarities of immune response with ME. If you have busy life it is very difficult to rest when medical profession is telling you it is all in the head. You might hear the words ‘attention seeking’ . My sister used to say, nobody is going to get well throwing themselves down in heap in darkened room. Not Prophetic!!
I had a similar experience with my doctor...I kept going back saying I’m not right, she just laughed in my face. I resonate so much with all that you said x
Doctors are so stupid and have chips on their shoulder most of time
I'd like to share what the key to my recovery was. I exercised slowly and gradually, walking for a minute one day, two minutes the next, until I was walking for an hour every day. I did have to push my physical boundaries and it was so important to my recovery; building up muscle because there are little power houses in muscle cells called mitochondria. They provide each cell with energy. The more muscle you build, the more power houses you get. Lymphatic system: very important to get the lymph moving which removes toxins. Moving your body pumps the lymph system and I think this is why massage made me feel energised. I had terrible insomnia and the less sleep I had, the more ill I felt. I tried so many things to help me sleep and after 8 years of ME/CFS my Dr prescribed Amitryptiline and I slept for 7 hours straight after years of waking up every two hours. This was the biggest thing that helped me recover. Sleep is vitally important. I need 12 house to feel good, which is a lot, but I am well now. My Dr had to increase the dose three times to find the level I needed.
Amitriptyline IS a life changing med for some. It's neurotransmitter effects was what I really needed in my case. I felt 15. I also had a side effect of an increased heart rate and was not able to take it. Having to stop was horrible.
What else is this called?
@@sahm2adam Elavil
Did you have a lot of muscle pain
Raelan, your story is amazing!! 🙌🏻 It’s incredible to me that you threw yourself into another culture for so many years despite still being sick and that you stayed in the game of life when I think most of us try to retreat from life while sick.
You are an incredibly strong and courageous person! Thank you for sharing your story and for all you do! ❤
25 years with CFS and Fybromyalgia. Its actually insane how i have zero control of my body and mind. In one second i can go from sat up,talking to completely collapsing.
Im on my 6 weeks of a crash now and its really upsetting me, but watching this video has echoed everything ive tried. I also have used hypnosis for pain,which has taken away around 60% of pain. A natural healer to help, but its on and off. Im trying to stay positive, but im finding it very difficult at the moment.
Its inspirational to watch videos like this though. I feel like its giving me a glimpse of hope 😊
❤✨❤
Your descriptions are 100 percent on target. You described me to a tee...especially the tight pain in muscles
Yep. Mild CFS symptoms would send a healthy person to the ER.
Hi Raelan, i just stumbled on your channel accidentally. My body has had M.E. for over 30 years fluctuating from moderate severe to "mild" (loved you highlighting the absurdity of that term).
I resonated with so much of your video and watched the whole thing through which is highly unusual for me as honestly i have pretty much avoided M.E./CFS content for several years, especially forums etc as I tend to find them so demoralising, pessimistic and fatalistic. My heart goes out to newbies joining those forums, as honestly it often feels like the loudest voices there are the ones determined NOT to get better. Not consciously of course, but due to wanting recognitiin of the severity of the illness, they dismiss anyone recovering from the condition as obviously not having had it in the first place. They can be incredibly closed minded.
I honesrly tgink it's like a trauma based response to the enormous burden of having such a stigmatised illness and the horrendous treatment at the hands of the medical system. They readily dismiss any mind body connection, equating the idea to the monstrous medical professionals suggesting it's all in our heads. I also went down the path of researching spontaneous/radical remission recovery stories for other serious illnesses which is what has inspired me on my journey of recovery.
I think a big issue that differentiates many who recover from illnesses such as cancer is that no one is questioning if their illness is legit to begin with so recovering in no way invalidates the severity of their illness or cast aspersions on the very nature of their character, mental stability etc. I honestly think this is part of the issue. Instead many with M.E./CFS are (understandably) so desperate for medical/societal val8dation of the nightmare theyre living they are ironically waiting around for the same medical system who has utterly failed and even tyrannised them to come up to the rescue with the magic pill/poison or procedure that cures them.
Thankfully for me i have never given up hope and have made so much progress on my journey back to full recovery which in many ways has been such a blessed deep dive of personal development and even spiritual growth that I would never have gone through if i wasnt "forced" to because of the great challenges of living in a sick body for many years.
I'm so happy to have found your channel. So happy a channel like yours even exists. It is sorely needed but also beautifully timed with so much growing evidence and support for what were once "out there" alternative therapies. Thank you! Inspiring stuff!
You or your guests may have covered these in other videos but just to add in two of the techniques that have been game changers in my recovery have been the work of Dr Joe Dispenza and Annie Hoppers DNRS as well as Qi Gong (I practice Spring Forest). You are probably familiar with their work but if not check out their phenomenol testimonials. For me these type of techniques/therapies are the medicine of the future.
Sorry for such a long messg. Im not even active on social media but felt inspired to "comment" which then turned into an essay!
Thanks for all you do. Really powerful contribution to us all. Blessings your way Raelan. Xx
Commenting before listening, just to say you're awesome. Look forward to this. On 3rd month detoxing 20 years of CFS, been rough, but I KNOW I'll recover. Only paying attention to recoveries, putting the negativity to rest.
Aw Maria your comment here just gave me goosebumps! I am so excited for you and so inspired by people who are determined to recover after many years with this illness. You've totally got this! Yay!!!! And thank you for your kind words (brought me a huge smile!!) - I think you're awesome as well 🤩
@@RaelanAgle You make me smile as well and we know how much that means. I just spilled about $100 of oil of oregano all over me and my room, which is a cluttered disaster, after not sleeping for days. I need smiles at the moment. Losing the oil is bad enough, but burned the hell out of my arm and everything I touched, luckily we have a garden with tons of aloe, combined with a ton of coconut oil, the burn subsided. On the plus side my nostrils and brain are saturated, my hardwood floors have soaked it in, it's on my pillows, so I will be doing some massive aroma therapy for a very very long time. And I smell like a pizza factory, there's that. lol. Gotta look at the bright side, cz I just want to sob right now. I've got this though! I feel the virus and bacteria dying, brain slowly getting clearer. It's hard to explain feeling better when you still need to be in bed, but I'm sure you know what I mean, you just know things are changing. I've had to take months off for bed rest, but exercise, powerlifting, is the one thing that I try to keep in my life when I'm not bed-bound, no matter how tired, or how much pain I'm in, at the expense of crashes. Totally worth it and hands down the #1 thing that makes me realize I've got potential to heal.I'm built like an athlete, so that has allowed me to push physically. Right now with the detoxing, it's a new level of physical exhaustion, I'm still gaining strength but my workouts are "shaky", I don't have that umph. The rest of the time I'm home recovering. The healing mindset is so important. I'm going to add you on IG, I can literally write a book on every sentence you spoke here, maybe I will :)
When you said "mild" CFS, I had a laugh, then you said exactly what I started blurting out... Def should be in stages. Which also kind of trivializes how debilitating it is, no matter what "stage". I have endometriosis too, stage 1. With endo, the stages only mean the amount of endo tissue, which is not at all related to pain level; someone can have stage 4 and have no pain, and have stage 1 and be in horrendous lifelong pain, that's me (trying to heal this too, actually a lot of diseases have come from 30 years of endo and 20 years of CFS, believe they are all related and once I get one, I'll have them all). I let myself cry and pout, like right now, honor those feelings then get back to hope. I'm (mostly) slowing down on my obsession with research, seeking diagnosis and tests and accepting baby steps. I can take a bath now, that is a very big deal. I look forward to making friends again and dating eventually, one day at a time, I'm aching for that support. I'm 48, still got half my life left :P
@@MariaAudioChick oh Maria, you have me both wanting to laugh and cry. That oil situation sounds horrible, I'm so sorry. I love the massive aromatherapy comment though (and smelling like a pizza factory!).
I'm so glad to hear that you are slowly making some progress. It seems that unfortunately for most of us - "slowly" is the only option for progress. Congrats on the baths! It's wonderful that you can start to do more things and celebrate that as you go. And you're so right - there is no great solution for how to classify illness.
And good for you for letting yourself cry and pout - I think that's so important! If we don't feel and process and release these feelings then I think they turn into poison inside of us. This is REALLY freaking hard and there's just no way it can be all smiles.
But yes!! You do have half your life left. It's worth working for and you sound like an unstoppable force - excited to see you put this behind you for good ❤️
I have a kitchen full of supplements 😭 just received a package of very expensive gut bacteria this morning..... this video has made me realise I'm not crazy.... Just desperate to be well again.
Definitely not crazy!!! We all do it I think - try absolutely everything we can. And who knows, some of those expensive supplements might help! We each have our own path. Wishing you so the best with your recovery 💛
My CFS was also brought on by a vaccine. Glad you mention this because I sometimes wonder if I have CFS or some other kind of vaccine injury. So sorry to hear about your mom. ❤
Vaccines contain very toxic things, and ultimately any illness is caused by toxins and/or deficiency and/or trauma. The truth is simple! Yet in real life the issues can be so hard to resolve 😵💫
I'm so sorry to hear :( If it's the covaidshot, it's not a vaccine. I have CFS from the infection itself - didn't sign up for it, and I lost my job while on disability). There IS help. I couldn't even use a wheelchair..the wheels I couldn't even turn. There is help and hope, and a lot of it has to do with toxic load and the ability of the body genetically to clear it. Hang in there - I get it, but there is a lot to do!
I got the monkeypox vaccine and it seemed to mess me up. Im not positive though. SO many factors!
@@Jennifer-gr7hnare you hypermobile.wjat are you using to detox
Raelan thank you for sharing this! Many people have vaccine injuries and it’s such a shame, there is so much stigma around even questioning it all! I think it’s about the perfect storm and often they can just tip you over the edge! Your very brave to share your vulnerability and to be so open, transparent and authentic! I’m staggered by all the stuff you tried, Which I sure many of us can relate to! Your amazing!
Yeah I didn’t get why she felt the need to defend it so much after what she experienced. Anything of unknown substances including dead viruses should always be considered imo
I teared up at the end with your encouragement about the lack of progress not being failure. I definitely try hard and have been at it for almost 4 years. Thank you for offering us your beautiful story, with all its pain and gain, sorrow and joy. I send you a tight hug!
Sending you a tight hug right back! 💛
Thanks so much for your generosity in sharing this story and I am so sorry about your mum. Your story parallels mine a lot and I especially related to the disappointment/shock from the doctor and the crazy interventions you tried! I am now doing brain retraining and it has been incredibly helpful and recently added exercise in. Keep up the good work.
This woman is just truly kind.
Your honesty is very refreshing. This thing feels like a complex puzzle with personalised pieces but you’ve already put so much of it together I think this will save me years of trial and error figuring it out on my tod. Thank you so much for sharing your journey.
Wishing you all the best with your own recovery journey, Ian 🌟
Just came across this video, I'm so, so sorry, I attempted my life as well, after a covid infection, my life changed so much, they say I shouldn't be here, but im still fighting. I've never heard of brain retraining and just started, I hope this helps me, hugs to you.
You are an excellent communicator Raelan...and it's so good to hear the whole story. Getting the full picture helps me to identify where I'm at...and hopefully adopt what is appropriate for me. Thank you!
You are so welcome, Dorothy! Thank you for your kind words and I'm so glad that you're feeling more and more on track. It's a journey, for sure 🌷
I have Fibromyalgi, bur score 100% on MECFS. Two years in. I'm already on a path to create a similarv envirement to be able to dedicate my body to healing and recovery. I've been mostly bedridden and very limited untill now, but I feel and believe so strongly that I'll win this battle. Your way of recovery resonances well with me. Thank you for your inspirational story! I'll tell a similar one, giving me the time to achieve that! Already on my way! 💕
Hi Gertrud, I'm so sorry to hear about your struggles, but I am also so inspired by your attitude and determination. I'm excited for you and am definitely cheering you on!
@@RaelanAgle Thank you so much! Good luck with your own life project, nothing can stop you now! 💕🏆💐🎶
Thanks for sharing your story and being so honest and not claiming to have all the answers like some people do. I'm really happy things are good for you now.
You are so welcome! Wishing you all the best with your own journey, Charlotte 💛
Is anyone here experiencing unbareable brain fog and vision problems? I have Fibro too but im too ashamed to share my stories of how it came about.... its comforting to know that there are ppl who understand ... because your family dosent... dey dont know what its like 💔 i need help im only 22 n i have to watch everyone live there life while i feel like 95 i use to go to the gym.. if id only known that mental health could cripple u i wont have done what i did
Raelan, I cannot thank you enough for sharing this story. You are so honest and genuine, and I can relate to SO MUCH of what you have described. I'm 3 years in to CFS and working to get out of it, learning much along the way. Again, thank you!
Omg- the details - I got it around 30 and by 57 I’m pretty much bedridden and very week and extremely sick and nauseous. Lost teaching, medical and flight attendant jobs when walking became too overwhelming. I hope you’re well - this is a torturous and unpleasant condition
I know this is from three years ago, but you are amazing and thank you for sharing your story.
I’m purely exhausted with long haul Covid since 4/1/21 30-40 symptoms issues since. I’ve watched a lot of your interviews the past few days and thankful I got to hear your own personal story. Thank you for being someone I can relate to and listen to with these videos!
Former nurse, runner, had zero doctors but a OB now I’ve seen so so many, so many tests same as you. I’ll feel like a glimpse of me sometimes then come crashing down with exhaustion I’m pushing through daily for my kids. ❤
Trying it all.
You're a good explainer and Jeffrey, what a great guy, willing to take all this on.
I've had exactly the problems with my Doctors in the UK that you had. For the last 2 and a half years, I've seen 4 differen Doctors, and had every test done multiple times, including hospital visits and tests, with similar results. When they couldn't find anything wrong with me, according to their tests, I began diagnosing myself. My last visit to my Doctor ended with her prescribing me an antacid medication for what she thought was acid reflux, and by instinct, I knew better not to take it. The 37 side effects were also a big part of my decision. I immediately put myself on an Organic food diet, and reduced my stress, sugar and carbohydrates by 75%, with positive noticeable results within a few days. It turned out that I'd been poisoned with dangerous levels of Cortisol, caused by excessive stress, which had concentrated my PH stomach acid so much, that the skin on the back of my throat was being burned away by it, leaving me in agony, and if I'd followed my Doctor's advice, my health problem would have severely worsened, with up to 37 unknown side effects, the results of which my Doctor would have taken no responsibility for. 10 months later, I'm more healthy, knowledgeable and empowered than I've been in any other time of my life, and I'm currently studying 3 years of Naturopathic Medicine.
wow❤
That was truly an amazing amazing story. People have said to me they did not know anyone who did as much as I did to recover from CFS/Me but I think I could point them to you! what determination and I am so glad it paid off! thank you for sharing parts of your story that may have been embarrassing to share and for your work to help others with CFS/Me.
It is my pleasure, and I hope that some of these things you've tried are helping you as well 💛
@@RaelanAgle oh yes , over the years I have found some things that have helped me a lot. I've been able to work full-time since 1997. But I'm still bad at pacing myself and taking it easy. Your channel is going to help me with that. It already has help me with that! And I'm looking forward to watching more of them
Wow you got into the nitty gritty !! I love your content
Bless you for sharing this story. No one in my circle understands what I’m going through and watching this is a little like having a long conversation with someone that does.
I'm glad the story helped you feel understood. You're not alone, Damir! Rooting for your full recovery ❤️
Thanks again so much, your honesty and vulnerability helps me so much. My recovery journey includes one of your videos a day. Thank you!
You mom lives on through the lives you're saving!
Thank you so much for all the videos, Raelan! I experienced burnout almost a year ago, and your tools to recover from CFS are extremely helpful in my recovery, too.
I absolutely loved this video. It is just honest, raw, powerful and full of helpful tips. I am going to give a few things a go from this video. Thank you so much for sharing and YES I agree with another comment that you would make an awesome health/ life coach!! 💕
Hey Shoba! I'm so glad you found this helpful. Thank you so much for your support and I really am wishing you ALL the best with your own recovery 💗
3 things you said I definitely relate to. Before I increased my Adderall dose, alcohol was one of the vey few things that actually gave me more energy physically. It was very strange. To this day I have not found an explanation for why this is. I don’t drink anymore because it interacts with stimulant medications, but that’s interesting you experienced that, too. Rice is also something I’m currently eliminating from my diet because it’s so problematic and causes an immediate flare up for me. Actually sugar in general severely worsens my fatigue, especially fruits. The only foods that don’t cause an exacerbation of my symptoms are tomatoes, avocado, cucumbers and bell peppers. Even kale somehow is problematic for me, spinach slightly less so. Beans are more tolerable than meat, and nuts seem okay.
Thank you for another great video. I just joined the new Fb group and am happy to hear it exists. Support seems so important.
I'm so glad you enjoyed the video and I just noticed you in our FB group! So wonderful to have you there and looking forward to getting to know you more and watching your recovery journey continue to unfold 🌷
@@RaelanAgle Thank you.
Everyone’s journey is different and beliefs matter so much! Changing my thoughts and learning to love myself where I’m at is helping so much. And getting a spiritual life!
I am going through so much of the same- and don’t know how you figured out what is going on. Sustainable has become a huge word for me
My experience is so very similar to yours. Your videos are so reassuring to me. I'm fighting this alone, it's a battle but I have complete faith that my body will heal. Its so hard. Your words are so true. It's good to know that some folks get out of this living death. I thank you for sharing so openly. X
I know this can be a nightmare, I hope you are managing ok. I love your perspective and determination and I hope you find your fastest path out of this ❤️
Best video i have seen. Thank you for giving hope
Thanks!
Thank you so much, Patricia! This means a lot 💖💖💖
Thank you very much for sharing your video your life. I believe my circumstance started with the Air Force giving me seem like hundreds of shots vaccinations didn’t affect me right away, but slowly became weaker lost a lot of weight I would just literally pass out with a second notice. I was in my teens when I started, I’m 67 now. And it’s still a battle but it’s better. I have a wife a family so I didn’t have any option of stopping. Had to keep the lights on had a pick jobs that I was able to do which usually did not pay much at allbut gave me the option of working hard when I had the strength and crashing in between. Most people thought I was just lazy. We’re doing drugs or whatever but you explain your symptoms so well a lot of more symptoms lined up. Thank you.
Thank you for being so open and complete as you explain your journey. What you tried.How it helped or didn't help. How you pushed through discouragement. I have a new sense of possibility of bettering my life. I won't dwell so much on what has not helped me and focus on what has.
Hi Realan th ranks again for sharing ur story & im so happy for u to have recovered . It’s sad about ur Mum condolences … My Sister has MS & although Cfs is dibilatating MS is seriously a bad deal & I feel bad when I’ve complained to her.. We rub along always have but she looked into diet & answers for MS .. She puts me to shame with her motivation each day . She can’t walk now & struggles to do anything … but still keeps active . This might sound bad. But I feel completely well & normal at her House ( which messes with my head a bit ) . We also wondered if our conditions were hereditary . Previously generations wouldn’t of spoke about their problems . We heard little about things apart from what we used to think of as. Old age problems …. That s what I appreciate now ppl talking about topics & our younger family need to know . I warn my Daughters about this Cfs … Another thing b4 I forget . Recently I’ve found I do not absorb Vit D & I think this might of been the case for a number of years ! But also that a lot of ppl don’t & it’s very important this Vit D . It’s linked to MS & other things … There needs to be studies done into Cfs Could u start a petition or get in front of Universities or the like !? …. Pss what is the FB support group ? I’ve only found Toby Morisions x
This is my FC recovery group: facebook.com/groups/healingmecfs
@@EllieKirk,
You said you feel normal at your sister’s house. Have you had your house checked for mold?
Do you always feel better when you leave your home?
Or maybe it’s just the excitement of seeing your sister. I know I can feel “normal” for short periods when I’m running on adrenaline. But, then I crash afterwards!
@@PeaceIsYeshua if this house is not heated I have had Mold in my Bedroom & only this last week heard by Expert Tina Beers that’s Mould need a detoxifying in the Body because a ‘spore’ or something stays in our Lungs !!! X
@@elliekirk6001
Bless your heart!! I’m so very sorry you’re dealing with that. Have you tried nervous system training yet to help your body cope with the mold?
Hi Raelan, thank you for sharing your story in so much detail. I find it very inspiring how you managed to overcome all of these challenges. Some parts of your story brought tears to my eyes, for example when you talked about your mum. It must have been devastating to find out that you have the same illness - and nonetheless you kept believing in recovery and made it. That helps me believe that recovery is also possible for me, no matter how hard or almost impossible it may seem in some moments.
Sometimes, I feel that the longer I am ill for, the harder it is to believe in full recovery. Because it starts to feel like the body is being damaged in a way that is irreversible. So, hearing that you managed to fully recover, despite it taking so long, is very reassuring. 😊
I'm really glad I found your channel recently. Thank you for all that you do. ❤ I wish you all the best. ✨
Thanks for courageously sharing your story and as always so helpful and putting out that message of hope💜
You are so welcome, Janie! Glad it was helpful 🌸
I came across your videos when searching about pacing - and I am inspired to keep going. I wondered how am I going to get done the things I want to do and the things I have to do, combined with resting. It has surprised me how quick things go downhill with ME/CFS. I was in tears knowing somebody understood it when you talked about staying in your zen as I that is what I have realised . I found over the past couple of months I had allowed myself to feel the emotions of life and boy, did I suffer. I am now trying to stay in my zone and if that means I can't do something with excitement then so be it. I need to focus on me. I will be adding your videos to the positive things that make me feel good list. Thank you for sharing your story.
Wishing you all the best with this, Barbara ❤️
Thank you for this! My friend got M.E through a vaccine so it’s very possible that was the cause for you too.
I'm sorry to hear that, Lucy. Thanks for sharing though, that's very interesting.
Yes, i've heard tons of M.E. stories linked to vaccines, some obvious immediate acute reactions that heralded beginning of their illness with M.E., others resulting in major deterioration and others suspected cause/contributing to their illness (including my own case). Vaccine injuries are real and there are countless peer reviewed papers, accredited docs/researchers etc that have proven as much linking tgem to many neurological conditions. It is not a stretch to consider they may be a factor in M.E./CFS. The fact that even discussing the possibility that a pharmaceutical product may NOT BE suitable for ALL people and likely results in serious side effects for some is insanely controversial in itself is very telling.
Thank You ❤ I have found your channel a couple of weeks ago and I am watching a lot of recoverystories..You are such an inspiration! ❤ I have had Me/Cfs and fibromyalga for a lot of years..from moderate/severe to mild and now the latest year back to severe..I am getting forward to when I can share my own success storie..I will get there in time..I am not giving up! ❤ Thank you so much for this channel 🙏 Much Love /Veronica from Sweden 🇸🇪
You got this, Veronica! ❤️
I catched Covid in March and since then I have been struggling with "long covid" that from what I have been researching, is just like ME/CFS but has the lung issues on the top of it. Your videos are really helpful, I need to change my diet and learn to pace properly, along with the different treatments that may be useful for me. I was really scared at the beggining! I don't understand how there's so little information about post viral illnesses.
Completely understandable that you've been scared! I suspect that most of us facing this sort of situation felt something similar. I'm so sorry you've had this long run with covid, sending you tons of love and support - I really hope you kick this beast soon!
Sorry this was your journey. So sorry for your great loss. I know it was very difficult for her and your family. Thank you for sharing.
Raglan, you are such a honey. I appreciate your authenticity, caring, honesty, supportivness & relatability. Thanks for your channel, thank you for you.
I’m so grateful for finding your channel. Long covid turned into me/cfs and I’m on the verge of getting diagnosed. I already had a holistic background and previous experience with recovery from gut, brain and immune issues so I’ve been able to make some progress on my own. Your channel has helped to confirm everything and provide so much more insight. My heart goes out to you, and especially for being so brave through all this including your mother’s journey. I hope to see a video on how things go with getting back to work! I’m struggling with the idea of stalling my careers again. From a fellow Canadian, thank you again and I hope we can meet one day!
Purna, I'm so happy to hear that you've found this channel helpful! Thanks for taking the time to share that. Looking forward to that day ❤️
Thank you for this video. You solidified my research and plan for my daughter. I’m having her watch your videos.
I think your story took away years of mistakes in my recovery. Tks a lot 🙏🏻🙏🏻🙏🏻
Oh I hope that's true, Marson!!
U r amazing raelan, you are so good from heart... I always pray for your happiness... thank you for helping people through this channel....
Thank you for sharing your full story, it was really inspiring! I am very happy for you that you got your health back:)
I'm so glad you enjoyed it, Matthijs! And I appreciate your kind words. I hope you are doing well and thanks for taking the time to share this 😊
Raelan Agle I really laughed when you said the things about becoming friends with the actors, I just recently bingewatched TBBT and felt te same! Unfortunately right after finishing tbbt I crashed and am in the ‘severe’ categorie:(
@@matthijsreenders5397 I KNEW I wasn't alone in this! I've never heard anyone else say it though so it's nice to have it confirmed 😉 (And to have it also be with TBBT is awesome!) Actors and TV characters really have felt like my friends, my whole world at times. I'm so sorry though Matthijs that you have crashed. Severe ME/CFS looks unimaginably challenging, I really can't even imagine what that's like. So unfair. I wish I could reach through the computer and pull you out of it somehow. I hope you are managing ok and that it eases up soon.
An incredible story of resilience- very raw & inspiring.
so much resonates with my story & tools of recovery eg alcohol & coffee - I used these tools unsuccessfully at first later the more... Long term tolls that fuelled recovery - lymphatic drain massage, sleep, movement, pacing & incremental improvement and brain exercise - visualisation & meditation were key
Thanks Christine, I'm glad to hear you enjoyed this. And thanks so much for sharing a bit of your journey here. We have had a lot of similarities haven't we. The one thing I never did much of is the brain exercises and I'm coming to appreciate how powerful this can be .
Dear Raelan, thank you so much for sharing your story and all your other informativ videos!❤ Actually I don't do comments, but now I have to. You give us hope! Greetings from Germany😊
Wow, thank you Melanie! 🧡 🧡
I have had ME/CFS in 4 cycles - since November 1996. The first 3 lasted 4-5 years. I have one currently since July 2022. Trigger - out walking too intensely - then malaise/blood poisoning/going cold after walking (thats a common physiological feeling I have, my subjective experince). This lead to not recovering after 2/3 days like I normally did, and went on and does so currently. Triggers - stairs - at all costs I have to avoid. Trigger - lifthing heavy things (eg shopping back, in particular things above shoulder height are particularly sensitive to triggering symptoms).
what I did to cope:
1. yoga
2. progessive muscle relaxation
3. mindful body scanner
4. low carb diet - game changing
5. pace self
6. aim for humour in a day, as worry only increases cortisol and reduces mood, and do things i like - often TV program/movie/read something/youtbube.
7. graded walking - incrementally loading time/frequency/duration/intensity (eg hill or no hill)
8. have a schedule
9. sleep well, get up early as can - and get sunlight
10. be about human beings - not withdraw - even its the supermarket
11. learn things I find interesting - follow my nose
12. adapt mentally to symptoms/life restrictions - not comparing myself to the life I had (manage I should say), and also manage who I compare myself too also - as most people dont have CFS and have no reference point to understand it)
13. Daily journal - 5 minutes, reflect on goals I set myself, and evalute progress - briefly - every day I make towoards these, reaslitically, and fairly - linked to my Future Self
14. have a future self - who am I aiming to be given my limits - in 3 moths? why is it of value to me? ; who do I not want to become in 3 months? why is it worth it?
15. Expect set backs - and have a reasltic, helpful and suitable response - you have to help you; as other people who live with ME/CFS have can relate to you, but those without dont have that same reference point.
16. Remind yourself your stronger than you know, and define you by your own values and principles - as comparing yourself to others without this problem - is not fair or realistic to me
Given 27 years in November 2023 living with CFS/ME - the way I would test IF I have fully recovered THEN I can bench press without negative physiolgical reaction, or do a squat, or attend a spin class without symptoms after this.
that said - in my experince when recovered (or in period of remission) I have had increased exercise tolerance without symptoms, but have never had the strength or power I had prior CFS/ME.
I keep an open mind to full recovery to CFS/ME - and I am looking carefully for the magic bullet. I am still looking.
Watched this in fascination as I never even saw you until I found your video with Mary Ruddick. Thank you for sharing this intimate journey. Bless you for having the heart to help other souls with similar struggles!💕
I'm suffering from chronic fatigue and extreme body weakness from Aug 2019. All medical tests are normal. My situation is really bad.
I'm so sorry to hear that, I imagine this had been an extremely challenging year for you. I hope you find what you need to get past this soon.
how are you now?
You are speaking my life. I wish those closest to me could be hearing your podcast. Did you have difficulty with appetite and eating, or anxiety? You give inspiration. I've had those days where ending life seems the only way out of the torture, but more than anything, I just want to return to normal me and live my life!
Thanks for sharing this! I’m just at that point where I’ve found the benefits of a little more movement and slightly faster recovery rate. It’s been 9 years! Although just after this, life stresses crept in (menopause/moving house /grief/ other health issues) and I took a downturn…I forgot my strategies and felt enough was enough, the thought to end my life became scarily overwhelming. I stopped to think. I’m 53 and there is more life to come. It’s ok to acknowledge the bad times, important so we can adapt and move forward. As you say, with love and support we do have a better chance. Life is an opportunity, my son will soon be 24 ( he cared for me in the early years, I’m grateful each day), this year I got married to a kind & caring man who understands ME/cfs. All of us watching you, understand this condition. It unites us. So many blessings!
So, life will inevitably bring bumps in the road, setbacks…we can navigate this and who knows what joys will greet us. Thank you for sharing and creating a way to connect our experiences. Wishing you and your viewers every chance at love and living ❤
I've seen a few of your videos and wondered why you never talk about your own experience, now I know why. Many things you said really hit home and I am very moved. I'm sorry that you had to go through everything that you did. Thank you so much for sharing your journey so openly and honestly, Raelan, this is arguably my favourite video of yours (so far, but I have yet to watch the ones you linked to in here, lol)! I can relate to so much of what you said.
You have a such an engaging way of speaking, it's not hard to spend a whole hour listening to you, you give so many good nuggets of wisdom, and are so positive and calm. You gave SOOO many important, helpful details about the things you did to get better -- thank you a thousand times!
What you say makes so much SENSE! I never believed in supplements until I got Long COVID; I've spent hundreds of dollars since. I'm glad that there might be another way (by drastically changing the diet).
Your journey may have seemed hopeless, but look at the thousands of people you're helping. And now with COVID, how many more thousands you will help?! Thank you so very much, and I look forward to watching the other videos, esp. the ones you linked to in this one. Hugs from a fellow Canadian. :)
Thank you for telling us your whole story. I really appreciate you being so open and honest with all you had to go through, thank you!
Omg… I’ve watched bits and pieces of your videos over the last 6 months, while dealing with my own mystery illness (likely ME/CFS or Long Covid). I hadn’t come across the Flu Vax detail until today. My jaw literally dropped. My whole world was flipped upside down after getting the Pfizer covid vaccine. I’ve had all the same debilitating symptoms that your guests (and yourself) have mentioned. Somehow hearing that was comforting because you are obviously much better now, and it makes me optimistic about my chances of getting better some day.
So thank you for mentioning that detail. It made a difference to me.
I'm so sorry to hear that you are facing this, Steve. Glad this was helpful in some way - and I hope you find your puzzle pieces to get past this soon!
Thank you Realan for sharing your self! For me this is a full time job, every hour of every day is about recovery, of course in a unstressed way!!!
💓💓💓
Although I don't have the exact story, I relate a lot to your experience. I had on and off difficulty with mobility and received little help or direction from the conventional model of health care. I felt lost, angry, and I didn't see a bright future for myself. It's nice to see your hardship turned into helping others with the same hardship by sharing your voice and the voice of others. Thanks!
I'm so sorry to hear you've been through this too Mathew, I know it can be such a harsh journey. I hope that you are slowly finding the support and answers you need for your own recovery too :)
@@RaelanAgle No worries, I'm great now, thank you! It did take me a long time to find answers though
I love how you empathically worked towards your recovery for the last two years. How did you balance doctor’s appointments with the intentional movement and exercise you did over those last two years?
As a post-Covid sufferer, I still am going to appointments to assure there are no additional issues. I’m trying to develop a system that will make movement possible every day while not overdoing it on days I have those appointments. Thank you.
Sorry to hear about your health challenges Chimere, it sounds like you are taking a very conscious approach to your recovery though. Good for you! When I first became unwell with this I went to quite a few doctors appointments, but when I finally recovered in those last two years I wasn't seeing a single doctor. Unfortunately, for me and in my specific situation, they seemed to have nothing to offer to my recovery process. The silver lining was that it freed up my time to focus on doing the things I needed to recover 😊
Time AND finances.....
I really enjoyed hearing your journey. I've subscribed
Awesome! And thank you!
I'm so grateful for content like this. A lot of what is online is discouraging and says you can only "manage" it. I've had long covid and I'm feeling good at the moment but still approaching physical activity with caution. I'm making sure i go slow this time!
Thanks for sharing your touching story ❤.
I am sure that my grandfather also got CFS (did not take his own life, but he definitively thought about it several times!). He was my hero, we shared a lot of traits, what makes sense of many things now that I got also sick with CFS. My younger sister is showing also signs of CFS. Definitively run in families.
Do you happen to all have ADHD or asperger's combined all my father's s side have fybromyalgia CFS my mum had severe ms àspergers surely I have fybromyalgia CFS heds the clue hypomobility
Just tried alternating hot/cold shower and managed and reduce a ME/CFS headache enough to function. Thank you xo
Thank you for this. I appreciate the wisdom you have shared - your openness, honesty and vulnerability. It has confirmed much of what I was already thinking and helped me feel more positive about taking baby steps towards recovery. For me, I will make an effort to get the natural probiotics, start stretching more, try the hot/cold shower (hot water bottles help me), sunshine, movement, hydration and finding joy. I'm combining recovery with homeschooling and becoming an author. I write kids books, and am just starting one about a high schooler who gets ME/CFS (I have got it in my 50s, but I write for children/teens)
Thank you for sharing your story !! ❤
Thanks for sharing your personal story. I am on the same path, gradually starting to feel better and live life. 🎀
Wonderful, Dolores! ❤️
Thank you so much for sharing your story. I feel hope for the first time in a long while.
Wow Raelan..... Just blown away right now
I'm so sorry about your mother 😢
But the way you got yourself to better health! It's nothing short of AMAZING
💪💪💪😍👏
You are a warrior. Thank you for helping us to fight too every day!!
I love and respect and admire you!!❤❤❤❤🙏🙏😄
Your recent videos sound so much more uplifting and more energy. It shows that you have had way more improvement happening in the last two years. You've had so much growth, you should be proud of yourself and your improvement !
@@Debbie, wow, I thought she sounded energetic and very uplifting in this video too! ❤
Oh so sorry about your mum. I imagine that situation is made harder by the fact you have healed yourself. There's things I now know that might have prevented my mum dying from cancer and that has been a hard pill to swallow. Of course there's no way of knowing for sure if I could have helped but it's something I've beaten myself with a few times...🙄😏
I do enjoy listening to you. I think you remind me of me in some ways. Thanks for sharing 😊
I'm so sorry to hear about your mum. Thank you also for sharing - sending hugs to you 💛💛💛
@@RaelanAgle Thank you 🤗
After finding your story/channel it's highly helped me this last month! My personal story is so similar to yours. Now my healing is just a daily lifestyle that works for me and it's a new level of acceptance & mindset for what I can achieve. Stress management, sleep & gut health is KEY, along with gentle "exercise", limit any cardio, strength and stretch is SO important. Thank you for what you're doing 👌 & giving hope to us all. (Also I brought a hottub & that helps me Alot ☺️)
Wow, Donna, it does sound like our stories are very similar! I'm so glad that you too are finding what's working for you. And wow...a hot tub sounds amazing and very helpful. I'm glad to hear you're finding my channel helpful - thanks for taking a moment to share!
Bravo for the work you had to do. This brought light and hope into my day. You are right we need love, the right kind of love to bring this all together, to heal and make life worth living. Work for yourself. Where you can make your own schedule. Much love. Thank you.
You are so welcome 💛
Thanks so much for this and your honesty, Raelan. I could relate to so much here. I had to quit my job as well and move back in with my parents which was not the plan before. I have had Long Covid now for 13 months and trying everything and trying to find out what’s helpful for my recovery. Slowly getting better, with relapses in between…. Thank you for all your videos!
Susanne, I'm so sorry to hear that you've been dealing with this for so long. I hope you find all your puzzles pieces and can finally put this all behind you soon ❤️
I’m on month 10 of long haul covid. It sounds so much like CFS. Yet headaches and now hyperacusis set in. I’m going to sooo many doctors.
thank so much! appreciated hearing this.
You're so welcome, Dilia! Glad you enjoyed the video. Sending you my absolute best with whatever it is you might be facing 💛
Many time cfs come from the stress of feeling unsupported. A sublte deep internal belief that we're in danger. That buried feeling of being unsafe to say no can come from growing up with immature parents teaching you to that you cant say No and feeling like a failure around them.
This is the answer right here.
I got sick as a teenager. Before I got sick, I was happy, confident, had wonderfully supportive parents, plus older mentors who believed in me also, and I had a great future ahead of me, so this wasn’t the case for me. ❤
Thanks
Thank you so much, Graham! ❤️
I'm so, so happy that I found your videos! And I am very, very happy that you succeeded in your recovery, and by sharing your story you give me and others hope and your experience how to do it! Relating very much to your story, it seems I have also made quite a journey over the past 6 years, going through different stages physically and emotionally, trying all available alternative medicine, and reaching finally the stage where I understand how my emotional health is the key! Understanding which thought patterns I should change and finally putting myself and my health first! And with your experience, encouragement and practical advices I trully believe I will also succeed in healing myself! Thank you from all my heart!💚💚💚
I appreciate that so much, Inese! Thank you ❤️
Wow Raelan, thank you for your wonderful story, and for your honesty and openness. I just discovered your channel and its really giving me hope, hugs to you x
sending huggss! 💗
Thank you for sharing your full story, it was so helpful 💖 You're resilience is amazing, so glad you made it through.
Thanks Harper, that’s so kind of you to say!
Really appreciate this video. Thanks so much for sharing. Love and support is really important indeed.
You are so welcome, Rachel. And yes, I agree!
Thank you so much for sharing!!