Chronic Fatigue Syndrome: My 13 Year Crash to Cure Story
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- เผยแพร่เมื่อ 29 ม.ค. 2024
- Learn about all the failed treatments I tried and how I finally recovered from 13 years of ME/CFS through mind-body healing! After chasing everything from Epstein-Barr virus to candida overgrowth, I found relief in the work of John Sarno and Howard Schubiner, as well as Pain Reprocessing Therapy, somatic healing and Polyvagal Theory.
📖 Read my companion blog CFS: My Crash to Cure Story
www.rebeccatolin.com/blog/chr...
🧘🏽♂️ Try a free somatic meditation!
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#chronicfatiguesyndrome #cfsrecovery #mindbodyhealing #somatichealing #brainfog #longcovidrecovery #johnsarno #neuroplasticity #recoveryjourney
“When I am symptomatic and I am just watching the sensations with mindfulness that I am retraining my brain that I am safe. I’m sending signals back through the nervous system to the brain that it can turn off this danger alarm.” This is such an excellent quote.
Thanks for calling that out Cynthia! It's so empowering to know that we can posiitively influence our brain and nervous system through our conscious attention. It's not always easy but it is simple!
This is someone that could easily go back to tv news reporting but she chose to help others to recover from mind body symptoms!
@larryc1964
What a sweet comment, Larry! I appreciate your attention and your engagement in your own healing!
I'm so grateful for everything you do Rebecca. It has brought tremendous healing to me in the my CFS journey and thank you for continuing to share your incredible story. You are a true pioneer in this field and it brings me closer and closer to full recovery everyday (ok, every other day lol). For anyone reading comments and struggling, you got this. This mind body healing approach is transformative and beyond real.
Thank you so much Chase! I'm so touched that I can be part of your recovery! And, I applaud you for your dedication to healing. We all have off days (every other day is not bad!) but I'm proud of you for persevering. You are amazing! I agree that mind-body healing is transformative in so many ways beyond physical recovery. Keep going, Chase!
I just adore you, CFS recovery sister! :) You share in such a soothing way - so grateful to you, your story, your inspiration, your wisdom - thank you for sharing w all of us! For anyone out there wondering if its possible - ITS TOTALLY POSSIBLE to recover from these symptoms and regain a full life. Rebecca is so gifted in the arena of mind-body coaching!
Oh Jenny, I adore you too! CFS recovery sisters unite! Thank you for your kind reflections, which mean a lot to me. And I LOVE hearing your enthusiasm about regaining a full life! Sending love y our way! 💞
Yes please do a video on sleep! Thank you for all you do, your a true inspiration to those of us still healing
Thanks a million! I'm seriously rooting for you and your healing! Got it, I have a sleep video high on my list!
So encouraging to hear your story again! So much hope!
It's lovely to hear from you, Joelle!! I hope you are doing well! Thanks for your kind words. We all need hopeful reminders and I'm glad my video offered that for you! ❤️
I have CFS and fibromyalgia. This is my first encounter with you. You are amazing and you have inspired me to go further and higher in my recovery. Thank you so much Rebecca
❤
@glenanson6963
I'm so touched by your comments! You're so welcome and I'm happy you're resonating with my message. Keep going further and higher! You've got this!
I highly recommend Rebecca’s Be Your Own Medicine Course! Her stories and work have helped me so much on my journey of healing and self love. Another great summary. Love seeing you here on YT! Namaste Rebecca 🙏🏼💜✨
Oh Donna, you made my week! I love knowing that Be Your Own Medicine has helped you find more healing and self-love! You clearly have a heart full of kindness, and I'm so grateful to hear from you. May you continue to follow what lights you up, dear one! 🌟
Your story is so inspiring Rebecca❤. Thank you so much for your presentations! I recently watched your interview with Dan Buglio. Keep up the good work .... getting this information out to as many as possible.
Thank you so much! I'm glad you found my interview with Dan and feel inspired by this healing knowledge! I'm doing my best to get the word out so people can reclaim their life force. Thanks for your interest and for reaching out!
Hey Rebecca! You are so awesome, and such a beautiful soul. 🙂
Aww, thank you for your kind words! From one beautiful soul to another.💞
Wow , you literally explained what happened to me
I remember getting chronic fatigue like that in the beginning and things got worse
@darrend2035
I'm glad you found me and hope my content will aid your recovery!!
Very grateful for your story. Ive gotten burned out trying to get better even after reading Sarnos and listening to Schubiners videos/interveiws, but heard a couple of things youve said that made me have a small epiphany or two, and look forward to rewatching this again. I believe I can recover from fibromyalgia & fatigue, but its a roller coaster, and tried to stop the pain meds but that too causes pain relapses, however, im seeing more some things that may be hindering me, after listening to your video.
Thank you for sharing this and look forward to it again and your other videos -LOVE the words, intuition nutrition, by the way!❤😊d
Thank you for sharing so vulnerably! I SO hear you. It can be essential to hear how to apply the Sarno-esque approach to Fibro and fatigue from people who have been there. I'm glad you had some epiphanies, however small! It can be so hard to believe that recovery is possible through this approach when symptoms are strong. But I've seen it enough to believe it's possible for anyone with mind-body symptoms. We all have neuroplastic brains after all. Yes to intuition nutrition and following your gut! ❤️🩹
Btw, you might enjoy reading the companion blog with my full story here: www.rebeccatolin.com/blog/chronic-fatigue-syndrome-crash-to-cure-story
Thank you so much Rebecca. Listening to your story again is a true gift for my recovery!!
You're so welcome!! I'm happy to hear that my story is a gift for your own recovery! You've got this! 💖
Thank you so much Rebecca! At the 15:00 mark you mentioned the four words that led to your almost spontaneous remission. You are not sick.
Wow that is so awesome. I have been the sick person for years looking for a cure and trying so hard to get well. Now those four words are changing my life!
It seems so simple but the shift is so powerful. Thank you Thank you so much. 🙏🙏
I love that!! Be part of the "I am not sick!" club with me and many others! Once I stopped seeing myself as sick, broken and wounded, I became curious about my symptoms and the patterns behind them. That was a sea change that led to my recovery. I hope it is for you too! I'm rooting for you!
@@rebeccatolinmind-bodycoach thank you Rebecca! I am very grateful to accept the invitation to the club! I haven’t gone jogging yet but this simple shift is changing my life.
I wasn’t really aware of how totally immersed I was in this mindset until I saw your video. Thank you. 🙏🙏
@@Nonessential888 We may be small but we are a mighty club! I'm SO happy that you're making this mindset shift, as it's foundational for healing and thriving in my experience. I love that it's changing your life already! It starts with our thoughts and emotions, and the physical experience will follow. You might also watch my recent video with Angela, as a "no fixing" mindset shift was pivotal for her.
th-cam.com/video/SKxYovsL9Ao/w-d-xo.htmlsi=66_isT63SsVRdKQe
I talk about this in a lot of videos, including this one I believe!
th-cam.com/video/LD7_H6GwGQo/w-d-xo.htmlsi=SPgcThhbYZqmUgWx
Keep following the shifts that feel good to you!
@@rebeccatolinmind-bodycoach Yes! The interview with Angela was great. She too discovered “I am not sick and stopped trying to fix herself! What really hit me was the pure joy on both of your faces I’ve had chronic illness for years and I know how valuable that joy is! Thank you so much!🙏🙏
So beautifully said!@@Nonessential888 Angela really got it. Once she stopped trying to fix herself, her entire outlook and approach shifted. That's how it starts! And this attitude opened the way for a felt sense of joy, peace, compassion and love. If there's a more healing force, I haven't found it! Thanks for your thoughtful attention and for joining our non-fixing club!
Thank you for sharing your amazing recovery story Rebecca ❤. You are helping so many and I am so grateful for you and your program 🙏🏽
Lindsay, it's always such a treat to read your words! I'm grateful for people like you who apply mind-body healing in such a devoted and passionate way. Thanks for the love!
Thank you so much for sharing and for giving me hope. It feels incredibly overwhelming and lonely battling this illness behind closed doors, and getting stumped at every turn when looking for cause and solutions. I look forward to engaging with your content and to consider approaches to healing that I may have not yet considered. Your story has given me the encouragement that I can also be well again in future ❤
I can relate to the loneliness of these symptoms and am so sorry you've been struggling. ❤️🩹 I am also happy you found this approach! It can be hard to believe when you feel so crummy, but there IS hope. More than that, there is a way out of chronic symptoms, including ME/CFS and Long Covid. I'm rooting for you and your recovery!
If you want to read the full blog and try a free somatic meditation, you can do so here: www.rebeccatolin.com/blog/chronic-fatigue-syndrome-crash-to-cure-story
Sending hugs your way! 🌈
You are the light at the end of the tunnel!
You're the sweetest! I was just listening to some beautiful song lyrics, "There is a light that never goes out." That light is in you too! 🕯
This is truly empowering! Such an amazing story of hope and wisdom ♥️🙏🏼
Thank you for your kind words! May my story fuel hope and healing in you! ✨
Thank you dear Rebecca! You are such a light and inspiration! I love listen to your story over and over again! Because I recognize myself in it and most importantly it givs my hope and promise that me too I will recover! Thak you from the bottom of my heart, Rebecca!❣
Wonderful! You are so kind! I'm SO happy that my story is resonating with you, and giving you hope and promise that you will recover. Yes you can, yes you can!!!
Amazing video, thank you!
Thank you!! ❤️🩹
Thank you so much for this, your story gives me hope that i will recover..I know it is possble. Much love and gratitude for all you are doing for the me/cfs community ❤
You are so welcome! I truly appreciate your gratitude! May this story inspire your own wellbeing!
Thank you ❤
You're so welcome!@@squirrelnut55
Hi Rebecca it’s thanks to coming across your videos that I recovered from debilitating long covid. Using the knowledge and strategies I feel as though at last I have my life back - and am passing on this information as much as I can.
I wondered whether you would class restless leg syndrome as a Mind Body syndrome? I’m trying to use the strategies for this, in the hope that I can improve sleep, but finding it difficult to relax into my symptoms, which can be intense, in the middle of the night.
A massive congratulations, Sarah!! Yah you! I'm thrilled to hear this! Thanks for letting me know. Feel free to reach out if you'd like to share your recover story: course@rebeccatolin.com
Yes, as long as doctors have ruled out structural or medication issues, we typically see restless leg syndrome as Mind-Body Syndrome and treat it as such. I can't give medical advice but I believe it can also be caused by certain medications or withdrawal from medications. You might consider asking your doctor about that. I'd also continue the mind-body strategies that helped you recover from Long Covid as I've seen RLS resolve for people as well!
One more thought: I see it as a flight-fight response in the nervous system. Sometimes movement is better than stillness when we have a lot of activation. It can help discharge the stress hormones faster. Wishing you well and thanks for reaching out!
Hello Rebecca, thank you for sharing your story! I noticed you mentioned autoimmune illnesses(Hashimotos and Sjogrens) in your blog post. I don’t notice many people posting about recovering from autoimmune illnesses using mind body approach. I am am dealing with a lot of AI symptoms currently. Can you please explain how those with AI illnesses and symptoms benefit? Is it the same approach as other TMS symptoms or is it more tailored?
Hello and great questions! I'm glad you read the blog too. With autoimmune illnesses, it's recommended to seek treatment from a physician since there's evidence of tissue damage. In contrast, TMS symptoms are creating solely by learned neural pathways in the brain and not pathological issues.
For thyroid issues, it's best to consult with your doctor and consider any treatment they recommend. That said, I was diagnosed with Hashimoto's and several kinds of thyroid hormones made me feel worse! (fast heartbeat etc.) I went off the hormones and eventually my thyroid levels normalized. I was also diagnosed with Sjogren's but the rhematologist's treatments didn't help me and I didn't have too many symptoms characteristic of that diagnosis. Thankfully, I recovered through this work. Many people combine this approach with their existing treatments to find deep healing!
Even with AI illnesses, I've seen people experience improvements with mind-body healing! For one, they can work with the symptoms that are TMS. For two, as you start to regulate your nervous system and turn down the brain's danger alarm signal, the body and mind find more homeostasis which can mean less symptoms.
One client just told me her mom did my Be Your Own Medicine course and hasn't had RA symptoms for two years! Wishing you the very best!
Thank you so much! This helps allot!
I'm so glad my story is helpful for you! Wishing you wellbeing!
Hi I’m so happy for your recovery, I have questions about EBV? Did you had antiviral treatment for EBV or Did you just use the TMS aproach to put EBV remission ?
Thank you 🙏
@grapesc2940
Hello! During my 13 years with ME/CFS, I did a number of anti-viral treatments for EBV, including intravenous IV medication. Those made me much worse, unfortunately, even through they brought the titers down. I came to realize that the EBV antibodies weren't the cause of my symptoms and treating them was ineffective. I recovered solely through this TMS approach and through regulating my nervous system. Our bodies know how to find balance when we feel safe!
You might also watch Matt's recovery, as he had EBV concerns too!
th-cam.com/video/t9dVpMM7Sx0/w-d-xo.htmlsi=teTTqmmNx1nCuYlu
Thank you for your story 🙏🏻
@AnderWestgaard
It's my pleasure! May it support your own wellbeing.
You look great Rebecca :)
I’m back to doing my dinosaur drum show through gradual pacing 😊
Also what is the book Howard Schubiner has that speaks about cfs ? I wanna read it too !!!
Hello Eric! I love that you posted the first comment on this video and that you’re doing your dinosaur drum again! Schubiner’s Unlearn Your Pain book applies to fatigue and a whole range of symptoms. Can you get that in Australia? It lays out the science and offers loads of practices too. Keep going, my friend! 🥁🦕
Haha of course I would be the first to comment!
Well I figured out that I had to change the way I play in order to not get crashes, a more relaxed style of drumming, i can order it online easily the book !
@@ezza1236 What an amazing message from your mind and body… to play in a more relaxed way! Great discovery. So good to hear from you right out of the bat! You’re going to love the book.
@@rebeccatolinmind-bodycoach I’m not sure if I can ever play the way i used to but it’s awesome to know I have a plan b, not all or notthing approach, the same concept has worked with my exercise, when I go less intense I get less symptoms, maybe I should keep it that way for a while haha whilst I’m comfortable
@@ezza1236 Yep, it can be that your brain likes a less intense pace, at least while you're building up. But in general, intensity ramps up the nervous system and turns on the brain's danger alarm. So there may be a message to find more ease in your way of relating to yourself and your life!
Hi you mention a book you read. “Unlearn your pain” is this correct? I can’t seem to find it. Do you have a link?
@isabelaoliver2568
That is correct! Look for "Unlearn Your Pain" by Dr. Howard Schubiner. A truly great resource!
Hallo rebeca how can I contact you. I leave in Germany 🇩🇪? Or how can I know how much is your program? Thank you for sharing your experience. And helping us.
Hello and thanks for reaching out! Quite a few German students have taken my Be Your Own Medicine course with great results! I'm currently creating a self-paced version of the program to be released soon and would love to have you. You can find out more on this page:
www.rebeccatolin.com/course
Check out student stories here:
www.rebeccatolin.com/success
To get an early bird discount on the course, and get a free somatic meditation, you can sign up for my email list:
www.rebeccatolin.com/newsletter
You might also enjoy the companion blog I wrote on my CFS Crash to Cure story: www.rebeccatolin.com/blog/chronic-fatigue-syndrome-crash-to-cure-story
I'd love to support you in your recovery!
Amazing
@jack-dy7cx
Thank you! Glad you enjoyed it!
Love your story❤
I'm wondering if brain retraining works with my condition as well. I don't know if I have ME/CFS, but what I do have is neurological and brain symptoms diagnosed as anxiety. I believe my symptoms are from an antidepressant injury but could be wrong ( i had much fewer symptoms previous to SSRI). Could be from covid also.. anyway, I'm wondering if this could apply to my case as well because some people in my predicament believe that brain receptors have been damaged from the medications, but I'm not sure what to believe anymore. Thank you
Thanks for reaching out! Doctors are quite good at finding physical or pathological damage in the body/brain. If your doctor can't find tissue damage, then it's safe to assume your symptoms are mind-body symptoms caused by the way the brain and nervous system are processing stress. Anxiety is a common mind-body diagnosis, for instance. There are lots of theories about potential damage etc. In order to recover, I had to stop focusing on unproven theories that were scaring me further and not providing any viable route to recovery. Lots of people who have been on SSRIs recover from these symptoms and you may as well be one of them!!!
@rebeccatolinmind-bodycoach1258 Thank you so much for always replying and being kind. I've seen multiple doctors, including neurologists, and they all say it's anxiety, yet my anxiety is secondary to my neurological and brain symptoms and not primary like in an anxiety disorder. I seem to react poorly to histamine foods as well (and almost any food for that matter). Do you know if MCAS is a mind-body issue as well? Or does it stem from the gut? Thanks again❤️
@@Eliokd You're most welcome! Kindness is medicinal and I know what it's like to feel misunderstood.🤗
My primary symptoms were also brain related, including brain fog, cognitive issues, head burning/pain, insomnia etc. All these can be neuroplastic in nature. And since you've already seen a neurologist and multiple doctors, it sounds like you've ruled out pathological issues. The next step is to rule in mind-body symptoms, which behave a certain way. You could get Dr. Schubiner's Unlearn Your Pain book or take my Be Your Own Medicine course for this. Many people react poorly to histamine foods when the nervous system is dysregulated but only a tiny fraction of people actually have MCAS. I see so many people recover from gut issues!! You might watch Renate's story here:
th-cam.com/video/7FT3S5U_r5E/w-d-xo.htmlsi=f2XIV-OmM-tABFVZ
Know that you can feel better again!
@rebeccatolinmind-bodycoach1258 is your course pre-recorded, or do you give it live?
@@Eliokd I am going to offer a self-guided course with pre-recorded videos soon! Otherwise, I teach it live once or twice a. year but that won't likely be until the Fall. The self-guided course is less expensive too. You can sign up for my mailing list to find out when we open registration plus get a free meditation!
www.rebeccatolin.com/newsletter
hi rebecca do you still offer 1 on 1 coaching?
@mattsmith4459
Hi there! I found that my clients needed a download of knowledge and practices to recovery in a lasting way. So I spent several years creating my Be Your Own Medicine course. Many people are recovering through this program! When my schedule allows, I sometimes offer single sessions for people enrolled in the program (and I recommend my team coaches). I also offer live, group sessions! You can learn more here:
www.rebeccatolin.com/course
www.rebeccatolin.com/success
Hi. Did u have pots symptoms?
@e.williams13
Yes, I experienced lightheadedness, weakness and sometimes dizziness when standing, as well as other POTS symptoms.
Sounds like me😮
@kusamagaming7375
I'm sorry for your suffering but glad you see some parallels!
Omg this is my life.
@ChosenCosmoCoach
Know that it can get better! May this knowledge help you on your journey.💓
@@rebeccatolinmind-bodycoach listening to your video last night kept me from completely giving up. And with the supportive loved ones I will be checking myself into inpatient tomorrow to work through my pain that I have been pushing down since 2009. As soon as I get home, I will continue to listen to your videos. God bless you.
And be day I will be just like you and help others!
@@ChosenCosmoCoach
Dear one, I am sending you healing thoughts and love! It sounds like you're going through an immensely challenging time. May you receive the support you need.
🙏❤
@@ChosenCosmoCoach Yes, you will!! 💞
You might enjoy one of my somatic meditations. They helped calm my system. There's a free one on my blog. And you can get a longer one if you sign up for my newsletter. Sending hugs your way!
www.rebeccatolin.com/blog/somatic-tracking
www.rebeccatolin.com/newsletter
Do you work 1 on 1? How can I contact you?
Hello! After doing 1 on 1 coaching for years, I found that my clients needed a thorough program with knowledge and practices in order to recover. That's why I created my Be Your Own Medicine program! I'm not converting it into a self-paced course to be released soon. It walks you through the steps to recovery. You can learn more here!
www.rebeccatolin.com/course
www.rebeccatolin.com/success
How did you manage to qualify for Social Security Disability since SSDI doesn’t recognize this condition?
@larryc9060
Hi Larry, It was great to see your name on the Zoom call! I had a huge medical file over a number of years. My agent says I had enough evidence of disability at that time.
Who was your mind body coach ?
Jim Prussack... he's great!
Thanks😊🙏 you once mentioned in another video that your mum suffered from arthritis. Did she also benefit from the mind body approach?
Dear Lord, protect your daughter who is helping save do many lives in Jesus name, Amen 🙏
So*
Do you really think you could have been better earlier? Or your body just needed all that time to recover?
@heikebleher7594
100%! My body didn't need 13 years to recover. I was treating the wrong cause so the treatment would never have worked. My symptoms were not caused by a pathological disease process in the body. They were caused by the way repressed emotions, trauma and stress were impacting my brain and nervous system. When I had a proper diagnosis, I was able to begin recovering!
If you haven't watched my new video, I explain this a bit more!
th-cam.com/video/WFeMEq159Dg/w-d-xo.htmlsi=cthXYCw0D6Vpfg1Z
Thanks for your great question!
Did u experienced panic attack
No, I didn't have a full-blown panic attack. But I did experience anxiety.