Did My Diet Cure Me? // Candida, Low FODMAP & Supplements Update [CC]
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- เผยแพร่เมื่อ 14 ม.ค. 2018
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Can a change in diet and taking supplements really make a difference to your health?
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This video is so long! I hope you find it helpful though. Remember that this is just my personal experience and not to start a new diet without talking to your doctor.
Now let’s talk about how amazing the FODMAP diet is: th-cam.com/video/XowS0DeAMiA/w-d-xo.html!!!
I actually have a friend who just started the FODMAP diet like a week ago. I'll let you know how it goes.
Jessica Kellgren-Fozard it's not that long..
It's dandy really..
How much complete b do you take??
And are these based on your body, a 2000 calorie diet, or just what should be taken by everyone??
My wife started eating the FODMAP diet recently, and she's still struggling...
Jessica Kellgren-Fozard omg! Jessica, we now have yet ANOTHER thing in common. I was accused of anorexia because I couldn’t gain weight with my illness. Seriously?? I was hungry ALL the time because obviously. You can’t keep food in you stay hungry. So I’m eating everything and losing weight. Fortunately, my mother yelled back and let them know I was NOT anorexic.
Jessica Kellgren-Fozard I know I just commented. Sorry. Oversharing type person here. While I’m in the US (no I didn’t have any part on our acquisition of SCROTUS. -so called ruler of the US- just for clarification, not to open debate), my illnesses are eerily similar throughout including the spinal puncture gone wrong. My hearing loss is rather rude in that it can’t seem to make up its mind. I’ll have a roaring high pitch noise in my ear then complete deafness. Three days later I’m waking up my husband because his alarm is bugging me. It takes a second before I realize it means I can hear again. Honestly, I cannot believe how similar our paths run other than a few outcomes here and there. Hugs ❤️ and much love while we all manage each day however we can.
My father was a doctor and my mum a nurse, but even so I lost several stone and was told to stop being lazy when I became diabetic. I was sick! Wishing it away wasn’t working! I empathise with the undiagnosed illness as a child problem. What makes you so lovely to watch is your ability to smile through it all.
That and her open honestly and gentle manner.
I would definitely read a book about your life !!
I'll just wait for the movie ;)
Same. Without question.
@@harveyabel1354 oh my goodness I would also love a movie.
i also had doctors saying I had an eating disorder. Because I was losing weight and was having diarrhoea they thought I was abusing laxatives. They refused to do any tests at all and so by the time I was finally diagnosed (with Ulcerative Colitis) I had to have some of my colon removed. My original doctors couldn’t believe I’d been right the whole time (I’d been saying I thought I had either UC or Chrons as I also have other autoimmune diseases). It was the worst time of my life and I’m sorry to hear that you (and others) went through a similar thing.
What's scary is how many of us have had the same or similar doctor experiences...
I 'liked' this,, but I want to 'dislike' it because those doctors sound like complete morons and I'm so sorry you had to go through that. UC is horrendous (not a sufferer myself, but I know one)
Smudgie33 I agree!! I can’t believe so many doctors are so ignorant and that they don’t listen to their patients!
LizTiddington Thank you 💖
I’ve had a love hate relationship with milk and milk based products for my whole life and got accused of being bulimic as a child because I was throwing up. Then they put me on meds for my ADHD and insomnia so suddenly I was anorexic because I just didn’t want to eat most of the time. I think I was 4’8” and 60 lbs in sixth grade? I got off the meds and switched to soy when they finally asked what I wanted.
As a girl (from age of 8) I was really ill. I was diagnosed with IBS, 'abdominal migraine', and, eventually, just that I was making it up. It turned out I had kidney failure for years and had to have an urgent nephrectomy. It was an old-school nephrectomy, i.e. not laparoscopic and I had ribs removed because the kidney was septic (because no one bothered to test me for anything for 9 years). I had the opposite problem, I was on the adult ward with people with colostomy bags who were dying from late stage cancers. I was terrified and delirious on morphine. I have let go all of the hatred because being bitter does not improve my life, but when you said that if you talk about it too much you'd cry, I welled up. I'm sorry this happened to you.
I can relate to the doctors diagnosing you with an eating disorder. When I was 12 I was diagnosed with an eating disorder because after meals I would often vomit. But at the time I had a lot of stress with my schooling and I had anxiety and I just wasn’t hungry and if I ate too much then it would come back up.. my parents took me to a psychiatrist who then put me on heaps of meds to supposedly “help”. But luckily my parents noticed that it was making me more unhappy and they took me to get a second opinion and finally realised I didn’t have an eating problem I was just always anxious. Sorry if this is kind of irrelevant, just wanted to share my story
I have an anxiety disorder and IBS and my IBS is always so severe because of the stress and anxiety and so there's been frequent toilet trips, panic attacks, anxiety and feeling afraid to eat and weight loss and so many doctors were like.... "you don't have an eating disorder do you??" and i was like "NO will you actually listen to what I'm saying to you?" and they eventually GOT it but like anxiety really is that bad so i feel you haha!
It's ridiculous how people are quick to diagnose lots of things as eating disorders. Especially if you're skinny, people find it perfectly ok to joke that you have an eating disorder 😒
Zoe Hogg I don't think such stories will ever be irrelevant. It's your life. It matters to you and I think a lot of people can relate to this. Maybe you were even able help someone to feel less alone.
I had that problem as well, okay I wasn't anxious I just had no time to eat and I ended up eating one meal a day while I started going to a new school And I was like weighing way under my nromal weight. I am 5'4" and I weight like 99 pounds at the age of like 21. And my therapist also suggested that I have an eating disorder. Luckily she didn't give me any pills since I seemed rather well.
I have lupus (technically UCTD or MCTD (American designation)). I can't eat early in the morning sometimes as I'd be sick to my stomach. It sucks, the nausea is sometimes horribly bad with a migraine. I can basically throw up once or twice though and be on with my day...I can semi-function. I've been better within the past year and only had two really bad days in the past year. Before that I didn't really leave my bed...I was in crippling pain all the time. I thought I had Crohn's because my stomach was so off and it ended up being a ton of Candida and mold (which taxes your immune system more).
No amount of antidepressants or antianxiety meds helped my GAD or the pain, off label use is for pain...They made me trip out as it reacted with my lupus fevers plus added in sleep paralysis and night terrors. Super not good for me. I'm happy I'm good now and my stomach is feeling alright now most of the time.
I've had similar problems with doctors telling me my vomiting durning periods is normal for a year and a half..... Also told I just needed to get a boyfriend... How is that supposed to help anything??? Went to see a doctor, she gave me a magical medicine and no more vomiting- no man required
😦🤦♀️
Wow. What was getting a boyfriend supposed to help with, medically? What possible context could there be where a doctor suggesting that is anything other than inappropriate? I guess there was none and it was just super inappropriate, but I'm interested in what mad idea they had and what the context was, I guess in the same way people are interested in what happened in car accidents - i.e. just curiosity really.
Suing is the answer to everything. I'm a huge wimp when it comes to my period, and I absolutely hate it, but I think if I had been under the same circumstances as you, I would've been driven to suicide as soon as it started the first time. You're truly a brave soul.
What was this magical medicine that cured your period pain?
I just came across this .. you need to speak to your Dr immediately that sounds exactly like endometriosis. I'm begging you get tested
I HAVE CLASS TOMORROW I NEED TO SLEEP BUT I HAVE SUDDENLY DECIDED THIS VIDEO IS OF ABSOLUTE HIGHEST PRIORITY
Jay same
Same and yesterday I fell asleep in class lol I hope I don’t fail!!!
Because I had anorexia when I was a teenager, when I got extremely sick in my early 20s and became underweight they told me it was a relapse and also IBS. Turns out I actually had coeliac disease, extremely high levels of gut inflammation (and SIBO due to months of antibiotics). How wonderful it would be if doctors actually listened to patients when they say there is something very wrong with their body and they are not complaining for clout or attention.
I wish nutrition science was not so much of a guessing game. It seems like science should be able to test a person and recommend the best diet for that person. It’s frustrating to be faced with so many choices of what is a “healthy” diet, but still a roulette wheel of what might be healthy for me.
Glad to hear you’re not in as much pain!
Id loce it to be easer to test for enviromentall alergys my boyfriend is alergick to fethers he only lernt this a few months ago hes 30
Scientists are working on this right now - the gut biome of microorganisms is way more important than previously thought. It’s only recently that scientists have been able to connect the gut biome to depression and other mental health illnesses. However, each human has a different one (almost like a fingerprint) for reasons yet unknown, making it hard to study which bacteria do what, and making treatment options hard to study. But maybe soon we will know more!
Momma Cass I completely agree with you! It's taken me a lifetime to figure out that a lot of my pain is from food intolerances!
Ashes H It's also difficult because we don't know the best conditions to grow our own microbiomes so that we can test them or identify them. Instead we rely on genetic sequencing of fragments of our microbial dna for information. This makes everything harder, as you can imagine.
In my microbiology class we were learning about fecal transplants (I have no idea if the concept even went past its testing stages, but we were just learning about the theory and how promising it was looking). The idea was just that they would take someone’s healthy microbiota and put it in the body of someone with a lacking microbiota and that it seemed to work great. The textbook was talking about how a lot of people really needed it to improve their digestion but it never went into what life can be like for someone stripped of their microbiota. Hearing you talk was very helpful to shaping my understanding of what we were learning about because I just thought the book was saying that these people had stomach aches and maybe had to take long trips to the restroom. Just shows how crucial it is to hear personal stories and that you can only learn so much from a textbook. Thank you!
I discovered this channel a few hours ago (TH-cam randomly recommended a video of yours) and, after watching some of your content on your own and with your wife, I got really interested on it since you tackle LGBT and disabilities issues in such a mild way. Also, as a non-native English speaker, I appreciate your expressiveness when talking because it may help me understand everything and even improve mine when doing so. I don't think it means a lot to you, but you sure earned a new suscriber!
Hey Samete, just wanted to say (as an English speaker) that your English is very good! All the best 🙂
Alison Bell Thanks, Alison. I try my best
Samete - "Knowing" Jessica as we do your comment and subscription would mean the world to her. :)
Smudgie33 That's pretty nice
Your English is absolutely flawless.
I have Gastroparesis which means I can't digest food so just thrown everything back up. I also have a connective tissue disorder. Like you I had a hard battle with the doctors and the hospital to try and get them to do something about it. For years I struggle and because I was a teenage girl got told I was making it up that it was involuntary and got told I had an eating disorder. Anyway, it got to the point where I was rushed to hospital with severe malnutrition and was about to die for them to look into. I have now been the proud owner of a PEG-J tube for 2 years and it has changed my life for the better.
.......Sue them..
My mom had a lot of problems with stomach pain and just general stomach bluh-ness. Her doctors always ignored those problems (one told her it was just because she was fat, even though she's only slightly overweight). She went on the low FODMAP diet on the recommendation of naturopath, then slowly introduced new foods. It was amazing to see her get more energy and be in less pain!
I'm so happy that my parents listened to me. I went through a bad bit with my stomach in my early teens. I got tested for physical problems right away. No one told me I was crazy female Dr. Plus parents who are awesome. I never realized what a minefield I lucked my way out of.
Jessica your stomach problems sound like what I've been going through. It's so refreshing to feel less alone and less like a hypochondriac about it. Because finally, I'm not the crazy one. Hospitals do indeed suck ass sometimes.
I know so many people who have some sort of digestive issues (like IBD for example) and the doctors refuse to do any tests, insisting that they have an eating disorder and basically blaming the patient or their parents.
And yes I know how frustrating it is to be underage and have your doctors and parents talk over you and not really having any say regarding your treatment.
I found the info on your supplements really informative, I'm definitely gonna check some of those out!
Juulia Tumanoff my brother and I have stomach issues and he used to take medicine for it but it didn’t help him, so now my parents won’t let me try to take medicine because it didn’t help my brother. But it could still help me?!
When is she going to release sweet potato merch because it needs to happen
Sorry for really long comment, I want to share my story. Finding your channel has been a miracle for me over the last few months. I actually cried when I found I wasn't alone.
As a kid I was constantly hospitalized for infections and had to take a daily antibiotic for years, and thanks to bad genetic lottery pool, I've now got POTS, chronic fatigue, leaky gut- for some reason I cant have any fiber; give me a sliver of bell pepper and everything I intake for the next week will come intact right out the other end- even ramen , also got fibromyalgia, migraines, celiac, and it looks like endometriosis now. For ten years, I would crawl to my doctors crying and begging for help on a daily basis, but they kept saying 'youre just anxious cause your life sucks and you have bad parents, oh and you want to get out of going to school. Here take these anti-anxiety drugs and get back to class.'
I couldn't take them, they'd make me severely ill; I'd bad depression- suicidal style, horrible muscle spasms to the point my whole body would be contorting in pain (I think they may have been seizures but the doctors called me a hypocondriac). Then I started getting vertigo from them- I couldn't walk and even laying down I felt like I was in a centrifuge- even melatonin and migraine medications cause these problems. The last one I was put on was supposed to be the safest with the least side effects, given to me by a psychiatrist when I was diagnosed with PTSD- it caused weight gain and horrible bloating to the point my dad asked if I was pregnant- dad, I'm a lesbian hermit, do you really think I'd get pregnant? So I went to a gastroenterologist and she said I had gluten sensitivity- she was blown away that it was caused by an anti anxiety meds, but hey, those things are poorly understood so who knows. I went on the GF diet for a while and it was a miracle. But I'm poor and my dad and bro are obese and addicted to soda. I eventually had to go back on a diet of strictly cake and bread. Till eventually I started getting what I thought was rheumatoid arthritis :D it was celiac disease. Still couldn't afford to follow the GF diet, so I haven't been able to use my hands for a year and it's started to spread to my feet and knees, plus I'm constantly bloated which is not good for a recovering anorexic
Then a few weeks ago, something went wrong with my tongue, after a deep Google search I found it was oral thrush- I could temporarily get rid of it with some home remedies. Then discovered your channel, and your candida diet story. It just kinda clicked.
I also have a sinus injury, which I thought was the cause of my constantly drippy and clogged nose- after research into candida, I realized it was cause by the same thing causing the oral thrush, and with my medical history/ being on antibiotics from age 4-12 with no probiotics or precautions for the damage it would cause, well its pretty much a given I have it in my intestines.
I haven't been able to get into my main doctor to ask about it, but I've been trying to ease myself into the candida diet. I went to my psychiatrist yesterday and she informed me that if I do have candida, it would be why seretonin effecting drugs give me seizures. They're absorbed through the intestines and if the gut bacteria is off- things go crazy and unpredictably. So now I'm even more dedicated to getting rid of the thing. I did further research, since there's no way I can survive on the strict candida diet toted around on the internet- I discovered an alternative one that's more science focused than health nut focused- the lady who designed it made it specifically for leaky gut syndrome. So I'm trying that, hoping it helps. I see my doc next month and am going to ask for help with it, but for now I'm cutting down and sugar+gluten and switching to artificial sweeteners.
Wow, that is really hard. I really hope your research is able to get you to some relief, best of luck with your diet changes and doctor visits
So sorry you have to deal with all that. I have POTS and definitely went through my fair share of doctors not believing me.
the treatment doctors gave you sucks! not the medical stuff I mean the way they treated you as a person I really hope this goes well for you and your quality of life improves goodluck!
wow, that seriously sucks. Are you in the UK? if you're coeliac you should be able to get some GF foods on prescription, and that prescription might be free if you can get a HC2 form xx
Jean Bean sounds to me like you have a severe case of ocd(obsessive compulsive disorder) its a common thing nowadays and its much more easier to discuss with people now and be more open about it now than it was 25 plus years ago. In other words its much more accepted now and therapists qnd pshychiatrists know how to treat it nowadays better. I have ocd and have had it since i was 5 hears old and it comes in waves. Usually it will come on pretty bad every other year but for only maybe 3-4 months out of they year. So for example you may have episodes of ocd in the year 2018 for a few months like maybe june-october and it may be very bad in june/july but once its over you wont have another case of it until the summer of 2020 (atleast thats how it works with me anyway) ocd can range with all kinds of problems including -worrying about diseases and sickness. For example a person with ocd may have a headache and worry that they have a brain tumor, or maybe a person throws up so the person may think they have a cancerous stomach ulcer, its things like that. Yes it is a major pain in the ass but people always get through the obsessions and it gets better with time and you become more experienced.The best piece of advice I can give you is whenever you feel a new worry/obsession coming on to i recommend to fill yourself up with fear to the point its so bad that you can hardly handle it and just keep doing this-face the fears of your current obsession and eventually you will just get so sick and fed up with it you will forget and will realize how cumbersome it has become. This works great because if I tell a person to stop thinking about bananas whats the first thing they think of after i say that to them? BANANAS exactly ! thats why instead of trying to forget your worry/obsession (cus that will never work)you face your fear head on such as in life were better off facing our problems head on. To be honest it really does sound like you may have ocd coming from someone who has suffered from it for years and years and remember ocd is very common
A good friend of mine got very sick when she was 16, and I remember her telling me she got so pissed off because doctors were telling her parents she had an eating disorder and it was her fault that she had no appetite/couldn't hold down food. She was actually diagnosed with anorexia nervous I think. Nope, turns out she was in acute organ failure because her adrenal glands weren't producing cortisol and had a potentially life threatening endocrine disorder called Addison's disease! Thanks for that one doc's :/
Tell her to sue them for malpractice.
Oh nightmare! I knew someone would mention AI! I only had one person suggest anorexia but yes it was AI at 18! So lucky GP ran tests!
Working in healthcare now and hearing these stories makes me so mad. I know that it’s not difficult to take the time to listen to your patients and take care of them properly. I’m sorry you had to go through that experience Jessica 💔 but I’m glad to see you making videos like this to help others!
I can't BELIEVE ... I'm honestly in shock right now. Someone else has gone through the same dietary trials and tribulations as I have, and also ended up on the low FODMAP diet. I've gotten the, "what can you eat??" question so many times. I've boiled the explanation down to a well honed speech and rattle it off without much of a thought at this point. I've also suffered with "mysterious" and debilitating stomach issues since I was very young. I'm now 37. Went through so many diets, tests. I gave up, at one point, and spent a very long time on a very restricted diet that only improved things a bit. For me, the answer is twofold. My digestive system is pretty poor at what it does. In addition to that, I've got something called "Sphincter of Oddi Dysfunction" where the bile duct opening, even after the gallbladder is removed, raises all kinds of hell. That being connected to the pancreas leads to higher risks of pancreatitis whenever they go poking around. Also found out I'm still producing crystals in my bile (I like that term better than "sludge," which is what its more commonly known as) despite not having a gallbladder anymore. Its been pretty painful. In fact, I was pregnant and didn't know I was in active labor for a LOOOOONG time. I just thought I was having a bad digestive night! Its not a very elegant disorder. I've fainted on the toilet. I've been stuck in some pretty demoralizing public bathrooms for hours on end waiting for the attacks to pass. My husband has had to hold my hand while I was pooping... you know, for moral support. Out of everything I've tried, the low FODMAP diet has improved my life the most. It has been a godsend and I am a FODMAP evangelist now ;) Wow, Jessica - thank you so much for making this video! I'm sorry if this comment is all over the place. Its 3am and I have a hyper toddler. Nuff said. I'm wishing only the best for you in your food goals. Congratulations on the sweet potato! Every little win counts!!!
I know this is two years old but I’m chronically late so:
I have an unspecified connective tissue disorder and I can’t digest red meat or onions anymore. Just seeing this video and knowing that you’re out on the other side is so reassuring. It’s helpful as a point of reference but also helps me feel less alone.
PLEASE WRITE A BOOK ABOUT YOUR LIFE!!
I'm always amazed at how much of an improvement diet makes for many suffering from chronic illnesses. I wish we focused more on diet as a holistic approach to health as the traditional medical community regularly neglects it and sufferers often only discover the importance of nutrition when they do a lot of research on their own.
Its also under researched and called quackery.
It’s honestly so amazing to see creators representing candida and people suffering with it. Especially when lots of doctor blow it off as an eating disorder or something it’s not. Mine resulted from lots of antibiotics and meds and was mostly set off by a body trauma like a heart attack (that was fun) which killed all my stomachs good bacteria. So thank you for sharing this with the world I feel heard 💖
Congratulations 🍾🎈🎊 on becoming an aunt!
Your videos have been so helpful in informing me about my own abelism and what someone who is disabled in any way could be experiencing. Your videos give me so much perspective that I would never have gotten and helped me to be a more informed person. Thank you so so much !!!
Man, the eating disorder diagnosis seems to be a common one in the comments. Unsurprisingly, that was also my experience... "you're throwing up every 5 minutes and can't stop? Must be because you're trying to throw up every 5 mins" 🙄. I had a similar experience with the anti-candida diet. On paper it sounded great, but in reality it made me have horrible CVS episodes as soon as I started it, which I took to be a sign from my body that that was not going to fly (I think my digestive system is similarly touchy). Funnily enough carbs are about the only thing I can eat (if anything) on a bad day. And Canada Dry ginger ale is nectar of the gods. I swear there's something magical in it.
Candida diet and AIP paleo both made me lose my will to live. Like, yes, my body might have less pain, but my SOUL...
Ooof, yeah, I’ve had some terrible GI issues for the past couple of years. I felt so guilty drinking soda but at one point one of the *only* things that didn’t come right back up was Canada Dry gingerale... it actually makes me kinda weepy thinking about it. I can’t help but associate those green cans with how intensely vulnerable I was when I was that ill.
I always have canada dry ginger ale in my fridge, because if I'm sick or struggling to keep food down, canada dry is the only thing I can stomach
I'm glad you've been able to find good foods to eat. I have a really sensitive stomach linked to being autistic and it was only once I turned 19 (I'm 23 now) that I started paying attention to what made my stomach and body hurt. I started an elimination diet and cut out or reduced some things and now I feel so much better! No more headaches and being locked in a bathroom every night! I used to sleep in my tub so i would be near the toilet it was that bad.
I found out I was lactose intolerant and histamine intolerant. So I was basically having an allergic reaction to everything I ate for almost 20 years in a row.
You are definitely not alone! I grew up thinking terrible stomach aches every day was normal, finding out about gluten intolerance in college changed my life at the time. Taking out gluten helped TREMENDOUSLY with all of my symptoms. But as I got older I would keep getting sick with something. And I was getting intolerant to more and more foods. And doctors would look at me like I am crazy or just claim it is all from depression or something when I KNEW something was wrong. Finally I was diagnosed with chronic lyme disease and Chronic Inflammation Response Syndrome (mold/biotoxin illness). Turns out the place I was living/working at at the time had black mold and I genetically am more sensitive and my body cannot effectively remove those toxins by itself. It also caused problems with candida too. So NO WONDER I couldn't eat anything. I am getting better but I found that a paleo-ketogenic diet is the best for me. Whenever I eat heavy carbs or sugar, I feel GREAT for an hour or so but then I feel really sick and it makes all my symptoms worse. But the paleo-keto seems to be my sweet spot for food and I actually FINALLY have been losing weight which I wasn't able to do for over ten years!
Having battles constant nausea for the past nearly twenty years, I absolute understand the struggle of panicking about which foods are “safe” and dealing with doctors who assume eating disorders or stress over a different problem! I actually am doing the low-FODMAP diet thanks to you, and I’ve found it has helped immensely! So thank you for your videos, raising awareness, and all your tips for dealing with nausea and food restrictions! 💖
I loved the editing and they little white board writing 🤗
For a long time I struggled with a medical issue too, not quite as serious as yours, but I was also being misdiagnosed and not really taken seriously. I’ve had joint pain, muscle pain and fatigue for a long long time and my doctor just kept sending me away with ‘low muscle tone’ and did nothing else. After I moved houses recently I also had to get a different doctor who found out that I had a pretty big vitamin d deficiency and prescribed me pills, and I feel much much better! I forgot to bring them on my Christmas holiday and the pain came back so I’m really very sure that it’s all indeed caused by vitamin d deficiency. I’m amazed at how much better I’m doing now! I’m going back to school and everything is getting back on track.
I think I understand your excitement about the low FODMAP diet, I personally want to tell everyone about vitamin d 😂
I'm so sorry Jessica that sounds so painful to go through. So you're saying a bad exam caused problems with your spinal fluid and made you sick, and then after that you did not get the care you needed and you were not heard and had not control over the drugs. I cannot imagine. This makes me angry. Congratulations on taking control over your health and fixing it to the degree you have, it's something to be proud of.
Metaphorically, Jessica deserves the whole world. I hope for better doctors
You are such a positive person Jessica. You face so much and with a smile on your face. I have epilepsy myself and sometimes it buries me in depression. I have recently joined your channel and your videos always make me smile. I just wanted to thank you for this channel and to let you know you are helping me and probably many others.
Jessica, I can’t begin to explain to you how important this video is to me and how much I appreciate you posting this. My 20th birthday is just round the corner, and unfortunately the struggles you explain you went through and continue to fight against are very similar (in some instances identical) to my current circumstances. I too have been a victim of people believing the issue was an eating disorder (even had family joke about it), or that my stress and anxiety were causing me to me sick. You are such an inspiration and the “light at the end of the tunnel” for me. To know others have similarly struggled and prevailed to have a beautiful and loving life gives me hope to going. Thank you. Sincerely. It’s nice to know I’m not alone.
I feel like you are soo strong. I have not seen another person, that has so many debilitating issues but still is so full of optimism and not complaining at all (at least in your videos ;-). I don't know if I could go through all this. You are a role model and I admire you. Thank you!
It's great to hear you've really benefited from the Fodmap. My mum is helped to develop it (she's a dietition). I found your videos whilst looking up videos of lesbians with disabilities (bit niche), my wife has M.S, you have much in common....symptoms wise. thank you for being articulate, it's helping me greatly.
You’re basically my favourite person on you tube. You’re videos are engaging, interesting and so well put together while also being so honest, open and informative. It’s what TH-cam should be .
Thanks for updating on whats going on. I really liked how you went a little more in depth of your diet changes and why you went from one to another. Its great to hear that you are doing better than ever now and I hope it only goes upwards from there.
Ha! I was eating a sweet potato while watching this (I like mine with garlic salt) and then I heard you give a shout out to said food lol.
That said, yeah. Unfortunately, I can relate to some of the crappy and ableist experiences you've had with doctors. I really do think doctors are too quick to dismiss something as psychosomatic etc before they put in the proper work. For so many years, doctors would be like "we can't find anything wrong with you. ever see a psychiatrist" and even some were like "I think you're just doing this for attention" (because apparently I loved doctors SO much that I would do anything to spend more time with them #sarcasm :P ) only to find out 10 years that surprise! She has a benign brain cyst on her cerebellum! (among other things)
Rebelwheels NYC I feel ya. Because I’d been raped I was talked to every time I got sick. They missed my cancers (cervical and breast at different times). My kidney stones I get every 2-3 months were also ignored until I brought them in a jar. I had a collection of over 100 from less than a year. It’s like, Geez! Yes, a horrible thing happened to me, but now worse things are happening and these idiots are willing to let me die rather than admit they were wrong!
Rebelwheels NYC No one cares what you fancy on your sweet potatoes. ( :
While modern medicine is science based, unfortunately many doctors don't get the memo. They get forcefed a giant list of symptoms and diagnoses in school, and instead of learning to make a hypothesis, test it against the symptoms, and be ready to throw it out and try a new diagnosis if it doesn't fit (i.e. the *actual* scientific method), they'll just pick the first thing that they recognise and ignore any conflicting information that disagrees with that, forever. Which is categorically awful! I feel for everyone who has to go through years of agony before they find a practitioner that is open enough to do their damn job properly.
@@PowerToolsnPearls Walk in that office and demand that they treat you with the proper respect and process, or they'll be sued for malpractice by all of your relatives when your body is investigated to see why exactly you died.
You are without a single doubt the most amazing and inspirational woman I've ever "known". Honestly.
Eyyyy Relating with the EDS over here. That vitamin break down was flawless. Thank you for all your time on that! And Claud
I have a friend who went through the eating disorder nightmare when she first had gastroparesis as part of ehlers danlos. And I had years of undiagnosed pain as a kid. So, I’m with you, people need to start listening to what kids say about their own bodies!
I've been really struggling with similar issues lately, and to hear you report that there is something I can try that might help - gives me such hope. Plus, the supplement list was amazing, so informative and well presented. Thank you, so glad you have some relief!
Hello lovely! I did the low FODMAP diet for a while a few years ago. It helped me to identify some foods that were really upsetting my insides. I've slowly reintroduced most of the other foods now and have a fairly happy balance of foods I like and can eat without side effects. I too have supplements but nowhere near as many: magnesium, omega 3, a general multivitamin and a probiotic.
Thank you for sharing your life with us - you're definitely not alone!
I've binge watched quite a lot of your videos this week while I'm on annual leave - I found you through your BSL tutorials. I'm really enjoying all of them. I really appreciate the effort you put in to making them and look forward to watching more :)
Thank you, Jessica! I have some stomach and autoimmune issues that I'm trying to help through diets and maybe supplements, so it's helpful to hear about your journey through lots of trial and error.
Really congrats to you on so many things. On deciding that YOU were going to find out how to feel better and tell those doctors to stop assuming things. And congrats on being an auntie! And congrats on getting through it all and being as cool as you are 😁
When I was a teenager I had a fairly horrific health problem to do with my menstrual cycle that I won't go into detail here because, well, you know. The first time I went to see a doctor about it (a young male doctor) he asked if I thought it could be psychosomatic??!! What?! I then spoke to some female doctors and a specialist in women's health and got the problem solved fairly quickly. Just with the right drugs and a scan to check my organs. Couldn't believe how the other doctors couldn't work out what to do and didn't actually seem interested in helping me.
Your videos have done way more for my health than 15 years of doctors. thank you.
I had sort of the exact opposite of your problem. When I was 17 I suffered from depression and anxiety and an eating disorder. I was hospitalized for a suicide attempt bc 17 year old me didn't believe in medication (I DO NOW, IT'S A LIFE SAVER) But when I was brought to the hospital they didn't think I was sick enough to have an eating disorder, and by so doing, did nothing to help me treat it. It was a large cause of the problems I was facing mentally (and physically but since I was toned and at an average weight they thought I was faking) they refused to acknowledge it at all. I was pill'd up to the max and sent home, only to relapse in my eating disorder and land myself back in the hospital within 6 months... I'm 22 now and FINALLY am seeing a diatician and she has solidified a lot of what I already knew was my problem and has worked with me tremendously to reverse my habits and get me eating correct foods and on correct amounts. Diaticians are life savers when hospitals and 'normal' doctors think, or don't think, an ED is involved. I'm from the US and started watching your videos bc I'm studying ASL in college to be an interpreter, I know your BSL is different but you're still such an inspiration! Thanks from across the sea, I love everything about you so keep on keeping on ❤❤
You're making me want to be brave and adjust my supplements. Thank you so much for sharing! I hope your good (for you) health continues! :)
Hey Jessica, I love your hair in this video 😍 Congrats on being an Auntie!! 🎉
I have CFS and I've heard about a bunch of different diets that are supposed to help, but idk. Too little research and too little energy to change my eating habits. I might consider it in the future, tho. Thank you for the lovely update and thanks for being such a great inspiration! I'm so sorry you had to go through all of that and the struggles you are still facing make me wanna cry (which I have after several of your videos and the guardian article), but I'm so happy you have a good life now and that you can talk about your challenges with a smile.
I'm so happy for you! I have chronic pain, it gives me hope when I hear of other people being able to improve their chronic conditions.
So excited to watch this! But it has to be my reward for revision and not an indulgence, ignore the temptation ignore the temptation... I adore you videos Jessica, especially the hair ones, I recently started using your rollers, setting lotion etc and love the results sososo much! Would love to see cooking videos on your channel to xxx
Honestly I've been struggling with a lot stomach stuff and fatigue for a long time and we haven't been able to figure it out and this gives me a new way to figure it out. So thank you.
I'm so glad you found answers!!!!!
Even if you go to a Dr and they got nothing, try two more (or if a doc says something that's got you a bit 'ehh') you're entitled to multiple opinions. And if several specialists tell you nothing helpful, try alternative methods. And even if that doesn't help. Wait. Research keeps evolving and in 2-5 years there could be a whole realm of new discoveries. Ex. My first concussion I got when I was 14, they basically said "don't take tests or do sports. Proceed as normal" my sisters first concussion 4 years later (and my undiagnosed 2nd) they didn't even tell her she had a concussion for like a month. My 3rd concussion 2 years after that? 2 separate concussion tests, a neurologist and a team of specialists that were able to tell me "don't do ANYTHING but sleep, pee, and eat for a few weeks" then were able to prescribe medication to help with the inflammation, and THEN were able to get me into different therapies to hell with balance, cognition, and eye sight (use avalible saftey equipment at all times kids, cause even doing everything right, a split second miscalculation can leave you dibilitaTed for the better part of a year. And that's WITH my using all advalible safety precautions. Without them I'd be dead, or worse) yes my concussion was worse because it was my 3rd. But the research and diagnostic tools have changed rapidly, even just for this one condition. Just because you don't have answers today, doesn't mean that you won't get them ever. There's always light around the bend.
I know exactly how you feel about your improvements in terms of energy! I, like you, cycled through the diets trying to find SOMETHING that worked. I felt okay on Keto, felt okay on low carb. And then I realized I was anemic. Taking iron was an immediate improvement. Immediate. Within a day I felt as if I could do so much more. But that was just the beginning. Now I realize I likely have a histamine intolerance and I feel pretty great eating that way and taking my vitamins regularly. It’s such a difference from napping two hours every day, not sleeping well, and never having energy. I hope you continue to figure out your issues and improve :) and yes, our wives are the best!!
Admittedly, I don't have any known intollerances or allergies on regards to food but I do often have stomach pain and cramps so your explanation on what might help is worth gold. I've been slowly cutting out dairy (even before I've seen this!) and I can feel some differences. Same with sugar.
Thank you, Jessica.
Trust me, you're not alone with cramping, bloating, stomach pains for no reason and all that.
I'm glad the low fodmap is working for you and I loved the little whiteboard stuff at the end. You have such a lovely voice!!
I'm so happy for you that you finally found a diet that works!
I’ve had chronic constant diarrhoea for over a year now so you’re certainly not alone Jessica, I even spent Boxing Day in hospital from horrid stomach pain, mass fluid loss and mucus an bleeding in my bowels. I’ve been attempting a low fodmap diet for the past few months as well as going gluten free but it seems to have only helped my nausea not my bowels. Specialists keep trying to tell me its irritable bowel but I have my doubts, but seeing your long term success is such a comfort, if you can make it so can I!
I tried the low FODMAP diet as a vegan to address my gastro issues and found it intolerable! 😅 My meal staples and primary protein sources were entirely cut out. And life without mushrooms and avocados seemed impossible. But I'm pleased it worked for you, and am impressed with how many diets you've tried and stuck with. It's a challenge to find food that sits well, satisfies hunger and is nourishing. But you are certainly not the only one searching for a proper balance. Really glad you have seen improvements and have been able to welcome carbs back into your life. And thank you so much for the supplement information (love the visuals too!) I will be adding many of these to my shopping list. Cheers Jessica, this video is so educational and your humor is a delight 💖
New subscriber! I only recently discovered you channel and I love your videos! The fodmap diet was a lifesaver for me four years ago after I went months not being able to keep any food down at all. Gastroenterologist told me that within two days I would start to feel better and I reluctantly said okay only for him to be right! Took me a year to figure out what I could and couldn't eat but that elimination plan is truly amazing.
What a great video! I've had a painful autoimmune disorder for over 30 years, and just happened upon the ketogenic diet, which has helped my pain and depression tremendously. The keto diet is a bit different outside of epilepsy treatment, and I only eat twice daily. I'm so happy that you are having sweet potato! I am also on a low oxalate diet, and sweet potato is high oxalate so causes me impressive joint pain within 4 hours. I'm still surprised that diet was never addressed by any of my doctors... I had to figure it all out, but it's great to make some progress. Sending lots of love from Croatia!
So glad to hear your energy up and your pain is down! Whoo!
I swear you could make anything interesting. I could listen to you talk for hours!
I love your channel! I'm so glad I stumbled across it! I'm sorry you've struggled with digestive issues too among other medical struggles. I'm glad you're doing better now 💓
You really seem like you’re feeling better I’m so happy for you!!
Thank you for making this video! And I'm so glad to see you're feeling better than on the Candida diet, you looked so sad in those videos.
Loved this video!! I love how you included the supplements you take. I’m in nursing school so I find all of this very interesting! Especially when you did your medications video!!! Loved that!!!
Our experiences are SO similar, almost exactly the same. Omg I feel understood for once!! Sending you love! A new update would be great. ❤
Okay so I'm just starting the FODmap diet for my stomach issues and omg am I so glad to have found this! all of the other people talking about it seem to be so negative but she makes me feel okay about what I'm having to do! Yaay (even as my stomach is cramping from eating almonds which are supposed to be okay!)
Oh my goodness!!!
I have not been able to eat any solid food for 4+ years. I've tried nearly EVERYTHING. ALL the things you do are most helpful.
You reminded me of some of the good things i let slide away because i just didn't have much hope. But recently I've seen a little improvement!!!♡♡♡♡
Your Vloging, so very VERY beautifully done, , has helped me a great deal!!!♡♡♡♡♡♡♡♡♡♡♡♡◇
THANK YOU!!!♡♡♡♡♡♡♡♡♡
Nameste ♡
Thank you so much for the vomit talk warning! As an emetophobic it really helps me. I of course still watched the video but I can better prepare myself.
I can imagine how it feels! I have myself struggled with doctors and diagnoses and so on for over 10years. Luckily I have found the best solution. I hope you keep having that amazing feeling of accomplishments with your diet!😃
Thank you for the update as it’s always good to hear how things are progressing with your digestion. I have a sleeping disorder called Delayed Sleep Phase Disorder (DSPD) which whilst not life threatening it does seriously effect my (and my wife’s) life. A lot of the vitamins you take, I also take as well and you’ve also mentioned a couple that I am going to look into. You should take a look at turmeric as I get a lot of knee pain due to arthritis and this has all but eliminated it. It has to do with joint inflammation (my wife, like yours is the researcher, I just take what’s put in front of me) so it maybe good for you as well.
I had similar experiences with doctors when I was a teenager. When I was 16 I woke up as normal on New Years Day and ate me breakfast then without any warning or prior symptoms vomited it up. That then became my life for the next 2 years... I couldn’t even walk past someone with a take away without vomiting. The doctors didn’t take it seriously and some even said I was making it all up for attention. Thanks god my mother was a 5 foot 2 force of nature when it came to her kids. If it hadn’t been for her pushing and not just accepting their opinions then I dread to think how it would have ended. Fast forward numerous tests, hospitalisation (I now weighed under 6 stone and had to be feed intravenously because I was now vomiting up my stomach lining) and one very scared and depressed girl they eventually concluded it was a psychiatric disorder. After my mum did everything in her power to keep me from being sectioned I went into endless therapy and almost 2 years to the day it suddenly started it disappeared! Thankfully I recovered although my relationship with food still isn’t great and I do suffer with anxiety now but I got through it. They basically labelled it as involuntary anorexia for a lack of a better term.
It was a very dark time and I don’t talk about it often but just felt compelled to share it here.
I appreciate you putting a warning in your video about vomiting as I have Cyclic Vomiting Syndrome. Kudos to you!
So glad your stomach issues are improving! Love watching your videos ❤
Your eyebrows are absolutely perfect in this video. I'm mezmerized.
Differently been through similar stuff. Not the major issues, but some of miner. And listening to I realized when I told Doctors of issues and they were clueless why it was happening. I'm now on the keto diet and has made a great difference. Had been vomiting for last few years. Now almost never. And my thinking more clearer. I take a group of vitamins, did research first. I started following you because I love your look and voice. Your very personable. Now a whole nother thing I can appreciate our common similarities. Thank for making this channel.
Hi Jessica, I'm 20 and have some the diagnoses you have, take Gabapentin, and a few of the supplements you take also. I share your love of sweet potatoes! This is my first week of study abroad in Copenhagen (I'm American) and I'm very afraid since I haven't found any dairy alternatives yet. This video really helped to calm me down. I have been on FODMAP for almost a year and while I can really only eat at sushi restaurants exclusively, I found it's helped a lot. The problem is I'm still too sensitive to taper off the diet like my doctor had hoped. You give me the inspiration to talk about disability, use my cane when i need it, but also it helps me to think about what you, Claudia, and the pups are up to because I also happen to be gay. You are my living proof that my life can also be happy and full of love regardless of the state of my disabilities. Claudia did an amazing job finding those supplements!! I take 1 B-complex, D3 every other day, 1 Vitamin C to help digest the 2 Iron pills I take, 1 Chlorella, 1 Omega-3, and supplements called Therbiotic Factor 6 and Saccharomyces Boulardii daily. The most recent addition has been 1 AdreCor w/ sAMe, which I was told to use after doing a bunch of tests. They recommended BioCydin too, but I am allergic to garlic (also onion, nightshades, gluten, + dairy) which is an ingredient. The doctor say sAMe is to help fatigue and I do notice a small difference in energy levels with my chronic fatigue. I am sending you love and thanks for making these videos! Love, Peyton
205k! Congratulations!
Jan 17 at 9pm Pacific time USA
Loved the video, as always! (Two days late commenting, even though I watched the video when it first came out, cuz, you know, I'm living for this!)
Wow props to you for sticking to these diets to figure out what worked
Congratulations on being an Auntie to Claudia and you! Congratulations to the parents and welcome, baby!
Love your handwriting btw...
I feel you with the diet musical chairs! I get chronic migraines so I have been playing around with different diets. I did a huge elimination/AIP diet over the summer where I cut out basically every GI or migraine trigger known to doctors and the internet. So many sweet potatoes!!! When I was adding things back in, I didn't find one particularly thing that was a trigger unfortunately. I'm thinking of trying low fodmap though. I definitely agree that one of the hardest things about keto-type diets was having to constantly eat. Also, for limiting diets, not being able to eat out was so sad because I'm such a foodie :( DIM SUM FOREVER!
I really like your channel. I am so happy to hear that you are able to eat more and to feel a little bit better each day.
Extremely useful & you look stunning as always!
CONGRATULATIONS ON BEING AN AUNTIE!!! I always take a heavy duty probiotic supplement for about a month after I'm ever in the hospital or on any antibiotics, those things are so terrible to your immune system and digestive system in general! I find the one with the MOST different strains to get the most of them back in my body as i can, just because I know how bad it is to recover from even pain killers as well as antibiotics/antifungals. One of the other things I found out I was allergic to was black pepper! The hospitals and almost anywhere use it as a "seasoning" and I would vomit that up as well (even if it was on just a baked chicken breast which i COULD eat!) and they had no clue what was going on, and neither did I until my third round of allergy testing! I wish the doctors I talk to up here would be more informed, but between my two doctors, I'm not only on the FODMAP diet, but the low carb/high fat diet, plus a cross-reactivity diet, seasonal diet, and a rotation diet! I'm so confused I don't know what to do or who to believe, because at some point or another, they all overlap and contradict one another! If I were to live on free range low salt bacon, chicken and spring water, MAYBE I would be ok for life... it seems so absurd! HOW could doctors NOT know more about now nutrition/foods affect our bodies when we have immune system disorders? Sorry for the rant... It's been almost 30 years since I've felt like I was OK with what I eat....
omg!! the supplement section was so fun, I enjoy this little tidbit you worked on!! also, I would buy like 2 copies of your book. I would love to read anything you create. you inspire me!!
Thank you for sharing your experiences. I'm so sorry you weren't believed and suffered for so long. I haven't experienced all of the same issues, but I had candida too. It happened when I was about 16. I was in horrible pain after eating, every day. Months and lots of doctors and testing later, I was diagnosed with fructose intolerance and was told "sorry you're just like that now," More months and more doctors later, we learned it was a byproduct of having candida. I was on the candida diet for 6 months and fortunately it solved my issues. It was probably the longest and hungriest 6 months of my life.
This is super interesting! My boyfriend has digestive issues and his treatment is essentially the opposite. He needs to be on a high-fiber diet for him to not have any cramps or digestive issues. Essentially, legumes, whole wheat things (pasta, bread, rice, cereal), and lots of fruits. I'm so glad you found what's working for you though!
I found your channel yesterday, got hooked, and just subscribed. I just want to say that you absolutely aren't alone. I'm autistic, and got PTSD, asthma and Crohn's Disease. I got very sick, the doctor said all hospital testing came back negative (I know now they lied. My nurse showed me the results from back then), then I was sent to a psychologist, got diagnosed with autism (which is still correct though), and then my doctor explained everything away by stress of autism. No matter what happened, it was stress. I wanted to change doctors, and then she threatened to write me up as a careshopper (which is basically a person who hops from doctor to doctor, until someone agrees. If they write you up, you're never taken seriously again). I got scared, and thus stuck with my doctor. Because of this, every caretaker (teachers, support workers, jobcoaches, social security people, etc) and city government official, decided I was faking, and basically abused me.
All of this took me ten years, until I found out what was physically wrong. That, only after a new psychologist and my mum stood up for me AND I refused to leave my doctor's office without a referral to a bowel specialist. She said 'fine, but I don't expect anything from it.'
And EVEN THEN it was ten years after I actively started searching for a diagnosis. I had been having symptoms for years already.
I'm in extensive trauma therapy for multiple complex trauma right now. Takes years to unravel that.
Side-note: I'm writing this while my bowels have started flaring up again. It's 4:55AM and I'm in a great deal of pain, distracting myself with your videos. I'll call the bowel doctor first thing in the morning, when the desk opens.
Other side-note: I recognise some of your bowel problems. For me it's I can't process plant fibre. I once had a bad response to antibiotics (now I would chalk that up to Crohn's), and have lost the ability to process plant fibres ever since. So I avoid most plant fibres. Only thing that seemed to keep me stable were probiotics. I now wonder if a poo cleanse would work to renew my probiotic culture. What do you think about poo cleanse when your probiotic culture is damaged? Would you do it?
This was a great video. Thanks for sharing and encouraging people to do their own research to find what's best!
The exact same thing happened! I’ve got EDS, Gastroparesis, intentional failure, POTS, MCAS, migraines etc. when I couldn’t eat, they did no testing. Of course a teenage girl who can’t rap has an eating disorder. One of the most traumatizing things of my life
Hey Jessica! I just wanted to say thanks for previous videos where you've recommended diet coke for nausea. I don't have a chronic illness but I've been really ill for the past week and I remembered what you said and it was basically the only thing that didn't make me throw up!
I would LOVE if you wrote a book!!!!
I second that. I'd read it.
As long as she also narrated the audiobook! Her voice is so soothing.
I am in no way comparing what I went through to your situation, but I just want to say that I can relate to the struggle with Candida. A few years back I took an antibiotic for severe acne (for about two months), and it destroyed my gut. I couldn't go a day without taking a long nap, and all of a sudden certain foods bothered me and strange things were happening to my body. Doctors were literally the worst! They made me feel like I was crazy for mentioning my symptoms. So I did my own research and played around with a few diets until my body finally balanced itself out. There are still some foods that bother me if I eat them too often, like tomatoes and salad dressings (this is two years later), but for the most part, I kicked it. It was awful, though! I can completely empathize with the struggles of a restrictive diet and finding a good doctor who will listen to you
I would LOVE to read a book about your life. You're such an amazingly strong person.