This video is actually super helpful to me. I work for an insurance company and my main job is processing claims for durable medical equipment, such as wheelchairs. I know exactly what you mean about certain parts not being covered, or only being covered once every six months or some other arbitrary length of time. Seeing how those kinds of policies affect actual wheelchair users is really helpful to me and hopefully will be something I can address with the policy makers at my company.
Anna Brabston We’re not all monsters. I over see the civil right issues and grievance letters our Medicaid members have. The main purpose of my job is to go the extra mile for the member since many Medicaid members lack the resources many of us take for granted. Before that I worked in long term care at a nursing home and rehabilitation facility.
My boss is in a power chair and I call it his command centre because across the front is telephone, computer and monitor, various gadgets. It's a big chair as well, so yeah...his "command centre".
I really expected this wheelchair talk to bore me but you guys are just so entertaining!!! This is actually probably one of my favorite vids of yours. love you both soooo much!
Hi Shane and Hannah, I’m a 14 year old, and only recently starting watching your videos. I’m absolutely blown away by both of your stories, I really enjoy watching both of you go through your lives, (i know this may seem funny to hear lol), one thing i like the most is the sense of humour, every video i watch, even if it is serious intended, always leaves me laughing or with a giant smile on my face. Shane looks like someone who is really easy to get along with, and Hannah is really pretty :). I don’t know whether this will get read, but if so then i want you to know that your videos make me happier than any other, especially when i’m stressed or not feeling very good, but your motivation is almost as if passed on to me. Thanks guys, Nathan.
This is not my normal type of channel. And honestly i would be the type to shy a way a bit(id like to think in a non noticable way) from people with disabilities. But between Shane and some of SBSK videos, my eyes have been opened a bit. Now i wanna get to know them and treat them just like anyone else.
I have social anxiety, so for me any interaction with anyone I don't know very well is awkward, or I fear it will be, and I try to shy away … and if someone is disabled, I have the feeling that the interaction is even more likely to be awkward - not because of the disabled person, but because of my own insecurities and nervousness to say or do something wrong or weird. So I definitely do shy away. Which is an explanation, not an excuse, so I'm trying to be better. I think Shane's videos are helping with that as well. :)
@@b8341 i could have just not admitted this at all. Thanks for the passive aggressive bash, good thing i dont get offended. It was more or less prolly a lack of understanding, toward people with disabilities.
@@721rena thank you! It feels like a spiritual morning stretch the best i can describe. Not to steer anyone from this channel, SBSK has people with some super severe conditions, and the guy who does it is eye opening in how normally he treats everyone. Here Shanes such a cool dude you literally forget the wheelchair. And i see the one person deleted their commented. Thanks for understanding though and taking this the right way. Feels good to admit, despite it being just a comment section to strangers. And being able to discuss a bit. Not something people generally feel open to do.
Right... I kind of hope one of them from the company is watching this and realizes how stupid their policies are... Shane is a great sport about everything I'm sure there are other people struggling as well with these issues
You two bring so much good energy to my life. Im moving soon, and it will be my first time living on my own... so needless to say, Ive been extremely stressed and depressed :/ but I found your channel and its been helping me so much. You guys are great... thank you so much.
When Shane said, “It’s almost impractically small.” I was actually waiting for Hannah to say, “Like you.” Lol I love their sense of humor and how they roast each other. Reminds me of me and my husband.
My grandfather had ms and the only way I knew him was in a wheelchair. Wheelchairs really have come a long way from when he was alive. He's been gone for 20 years now. He had ms in his 20's and they gave him a short amount of time to live but he shocked the doctors by living until he was 68. I remember when I was younger riding around on his wheelchair, I miss him terribly. Thank you for sharing your story with everyone. Medical advances have come so far in 20 years and so has technology. I know people are still uncomfortable around disabled individuals and there's no reason to be at all. I'm hoping one day for a world where there will be no stigma against the disabled, races, religions and people will just be able to live the way want to as long they are not hurting anyone. You two are adorable!
Lololol! The part where Hannah talks about the number of changes she has made to Shane’s “set-up”; each of which no doubt improving his state of well-being exponentially AND the fact that he met each one with “stubbornness & resistance”...and I’m over here like, “so precisely the same situation as with EVERY male/female romantic relationship since the beginning of time??!!” 🤣🤣 Shane’s disability simply provides for a highly specified manner through which Hannah is able to prioritize the needed changes!! Sounds about right!!!👍🏻 I love you two, and have been sharing your channel with a lot of my friends and coworkers, who have also been enjoying your content. Keep up the good work you guys!😘🤣💑🐭🐭
DUDE. Your voice and your breath control have improved SIGNIFICANTLY since I started watching. That spinraza is amazing! I’m so happy for you guys!!!! Also this video is everything. Hannah’s Vanna White moves are life. (When you pulled Ducky out of the chair. 😂🤣)
Guys, I found you recently and I am obsessed. I had to retire from a much loved career recently and have been feeling pretty sorry for myself. TH-cam and other forms of social media have really helped me build a new start of a different type of life for myself and you two have brought some much needed laughter and joy. Thanks. There is a lightness and celebratory air about your videos that is refreshing and fun. You are clever funny which I like and you don’t apologise for being yourselves. I would be proud to have either of you as my son or daughter. Thanks for the much needed lightness.
I used to be a bit shy with disabled people, (I was never rude to them and I always treated them with respect) but now I feel really comfortable with them. So, thank you, for what you do and thank you for posting videos and spreading awareness. I watch you every single day and you make me feel happy. -Ava
I love that you subtitle everything because not only is it helpful for the deaf and hearing impaired but its helpful for people like me that just simply concentrate on and process information better when simultaneously reading and hearing the words.
I have a question for Shane: do you have pain due to the muscle contractures of your hands/wrists and/or hips/tush area due to very little fat padding? Sincere question.
This is an INAPPROPRIATE question! Are you medical professionals attempting to diagnose and present protocols ?? Really.....how unbelievably intrusive!! This is not a question for a lay person to ask anyone!!!! This falks into the same idiotic category as to asking someone do or how they have sex!! Have some discretion and class!!
Hi, Shane and Hannah. I love your videos so much!! You guys are so sweet and kind. You guys are my inspiration. You guys show people all around the world that just because he’s in a wheel he can do anything. He’s unstoppable!! You Guys should set up a meet and greet!! I live in MN so it would be perfect! Pls keep making videos because you guys have made an amazing impact on my life❤️ I love you guys so much🥰
You could use a set of snow chains for those wheels in Minnesota, Haha! Surely insurance will pay for that! Car insurance that is... Shane, thanks to your assistant, Vanna, who pointed out all of your interesting accessories and bonus goodies. Wait, there's more! More towels, velcro, styrofoam, and velour just to make your chair unique. I'm surprised there are no Eagles logo or other Philly paraphernalia. Some bumper stickers might add some color and style to it, and probably hold it together while insurance figures out how they will not pay for something else! Welcome to the fun world of DME and ME! You guys are way TOO much fun! 😂😂😂
Lol the name of this video should have been “what insurance won’t pay for on my wheelchair cuz they suck but i have buttons to remind me” 😂 I’m not going to lie i was cracking up when Hannah was on the floor after being taken out at the shins. Love you guys! Edit: omg the picture of Shane bringing groceries in is too much! I’m literally on the floor laughing!
Where do you live? Because here in the states, requests are pretty much ignored for the actual requirements only. My cousin is a quad and he has fought the insurance company for over 40 yrs just to get things on his chair that would make his life more manageable. I seriously hope you get ALL of your requests but at least half!!!
This was very interesting and presented so intelligently and humorously! I'm really horrified about the cost of replacements and maintainence. I feel as if both of you are part of my family. Grub..your adorableness makes me wild! And Hannah your beauty is breathtaking! Goodnight!
As an Australian, I was shocked by these things not being covered by medical insurance..it honestly seems healthcare/health insurance is TOUGH in parts of the USA :( a lot of people here in Australia both abled and disabled rely on government medical subsidies and cheap basic healthcare and a pharmaceutical benefit scheme so we can afford treatment, medications and ongoing health care and be able to not have to choose between food/rent or your medical needs. Good on you Hannah and Shane for DIYing where you can and reusing :)
Kosanna Lukic It’s more than tough am disabled from endometriosis and SIJD. They keep refusing excison surgery I need for endo. I’m so sick I can barely walk most days and the doctors here are awful. They have no compassion and mock patients most the time. I don’t know why ppl think the USA is perfect Americans are suffering very much here. Here we have to choose between food and medicines because co-pays are so much. And forget going to the ER if you don’t have Ins you’ll go broke and homeless. The medical system here is thrashed pretty bad and so many are suffering cause of it. They even deny Meds for cancer to ppl or t he co-pays are so much ppl have to beg for help on Gofundme pages.
Never seen so much positivity!!! This channel never fails to impress me the two of you are so kind and positive, I hope the world treats you with the same amount of kindness that you give out to the world!
Currently bawling. Hannah, you are the sweetest, kindest, selfless person ever. I have a special needs brother and to know that someone like Hannah may be out there waiting for him gets me so emotional. Don't stop what you are doing. Love you guys
Shane you have no idea how curious I have been about your wheels! It’s really an extension of you so it’s like getting to know you better. Thanks for giving us a tour 🤗
I totally understand you with the snow, I live in Quebec (Montreal) and here we had such a year, there's like 5 inches of ice under 2 feets of snow! You'd probably struggle here too unless you have winter tires on your chair!!! Didn't mention... Really love your blog, so refreshing compared to most, just natural which is rare as many try to change to "fit" what they believe people will like, but you actually seem like if I'd met you anywhere, you'd be exactly as I see you on TH-cam. Really nice, I am mostly alone most of the time besides the moments I am alone but surrounded by other people (mostly ignoring me which I understand), but watching your videos gives me an impression that whoever I am, you'd accept me, which is such a feeling I rarely feel, keep doing your funny videos, you really bring sunshine in my life and I'm sure in other people's life!!
My husband has the same controller - with "Profile" he can use several gears. Its practically, when the children want to sit down on daddys lap and take the control. With the first gear they all will survive 😂
Guys Guys!! You are already a litle bit known in México because of your video of the interview you had in the tv show This Morning, which was shown in a tv show called Venga la Alegria-> Let Happiness Come. They did a very good report about you! Excellent tour of your wheelchair Shane!!
I was recently showed a video of you guys by my sister and subscribed immediately. You guys are both Amazing & Hilarious. I don't have SMA but I'm a C5C6 Quadriplegic paralyzed from the chest down from a diving accident May 11th 2000 when I was 16. I have the front wheel drive Permobil C300 and can relate to a lot of your experiences. Like the foot plates as defense/food catchers, air filled tires going flat and switching to solid tires, even the pouch which I also use to carry other peoples items and so on. We may sit a little lower than everyone else but our outlook on life lets us rise above the rest. Thank you both for sharing your stories and giving others with disabilities including myself someone to admire.
This is just a big "thank you" to the family that donated their own back up seat to Shane and Hannah for his chair. It takes amazing people like you to make this world a better place. What a genuinely kind, thoughtful and beautiful thing to do for such a great young couple.
I THINK SHANE IS SO LUCKY TO HAVE YOU IN HIS LIFE, AND I ALSO THINK YOU ARE VERY LUCKY TO HAVE SHANE IN YOUR LIFE. HE IS SO SMART, FUNNY, AND VERY ENTERTAINING
I know shanes pain too well, my old wheelchair was the most basic wheelchair someone could be given without headlights or all the other “special” features. My seat also has gel in it too which is annoying but thankfully i have a new wheelchair that’s like the tesla of wheelchairs, it’s really fancy at least to me it is.
Mine is like his. Barebones, nothing even remotely fancy. And now it's being held together with black duct tape in a couple of places. (The counselor at the accommodations department at my daughter's college saw my chair and called their maintenence guy. Hahahahaha. Such nice people!) The worst though...it has a poltergeist and once in a while it will just stop and shift to lockout mode. I can't use the controls until I turn it off and then on and go through the mode button back to drive. It's takes about 30 seconds which isn't a lot of time if you're safely on the side of the road, but it did this in a crosswalk on a busy road one day. I've never been so afraid of dying.
Hannah you are so well spoken. I know you've mentioned getting nervous for TV interviews, etc., but you speak clearly and with confidence and I enjoy listening to you explain things.
You are the biggest inspiration that despite you can not do as much as many people you’re always making the most of everything you can do and also always making people smile and laugh. 😃
Would love for you to do a follow up video on the process of getting a wheelchair replaced. Willing to bet most people would assume you could do it without getting independent insurance verification that you are indeed still disabled and they would be WRONG. I'm due for a new chair this year and I am dreading the inevitable fight to the death with my insurance company.
Holy shit, this used to be MY profile pic! The same exact crop even. Where'd you get it cause it's very uncommon and why I used it to begin with. Now, I just change mine all the time to one of my 14 cats and bird. Crazy as Hell tho!
Thanks for the tour of your chair! My son is 19 and has a quantum eyelevel power chair. He drives it with head controls. He also communicates with a device that works with his eyes! It tracks his retinas on a screen and verbalizes for him. So thankful for technology!!
I have a bike bell that I mounted on my wheelchair so I can tell people to get out of the way. I also glued a ton of fun patches to the back of it. My friends love to use me as a pack mule when we go shopping too! I'm cool with it so long as they push me around when my arms get tired. A symbiotic relationship!
I can't get enough of you both thank you for sharing your love and lives with us. My wife and I watch each time we check the channel she just reminded me to subscribe.
Hi Shane my name is Zara, I’m 28yrs old, I live in the UK, and I have Cerebral Palsy. I think your great, you don’t let your disability stop you in anyway. Your girlfriend is fabulous, and very helpful. I’ve not been watching your vlogs for long, but what I’ve seen so far is great, I think you would make a great spokes person.
Shane, how often do you feel like you need to get out of your chair? Or how long is too long to be in your chair? I’m a special ed teacher and I have a couple students in wheelchairs, they’re nonverbal though and I wonder if I need to give them more breaks out of their chairs throughout the day?
Katie Hilton it depends on their age. When I was 11 I just wanted to be in my chair all day so I could move around with my friends. Physio Therapy and hydro are good excuses for getting out of the chair with productive time. That said soft play areas are good. Ideally you want to be getting them out of chair once a day for 20mins or more. Tummy crawling is good for the back.
I used to work with adults with disabilities and I would take each of them out twice. Once at the beginning of the day and then after lunch. A lot of wheelchair users like their chair and don't mind being in it but they should be taken out just like someone laying in bed at the hospital should get up for walks or should be rotated if they've been laying for a while.
It's amazing how many wheelchairs they have out there to fit each person. My best friend is in a wheelchair (electric as well) due to muscular dystrophy, and back when him and I would go shopping I'd put my purse on the back of his handles as well. And I completely understand about the tire situation.. he fights with his as well for new tires which is crazy because it's something they have to have. He gets a new chair about every 10 years and changes the color of his.. his is a lime green right now
You need chains for your wheelchair tires. Well, if anyone doubted ya'll were legit, this proves it. Shane essentially carries Hannah's purse (lipstick, medications, candy, receipts lol).
Thank you for giving us a glimpse into this very private part of your lives. I have never met anyone in a wheelchair, so it was cool to see how everything works.
I love that you call your grandfather Poppop. That’s what I called my grandfather too and no one around where I live did. Everyone was always like “whats a Poppop?!” So that made me smile! I love this video! You guys are awesome
Hannah Shane Juice Guy start thinking about children in the future? Because I'm picking your boyfriend and your soon-to-be husband Shane is going to be a great dad someday
You've got a new subscriber! Your channel has been an excellent source for my 10 year old daughter to learn about others with disabilities. We love watching you two together. ❤
Hi!! When im having a hard day with my chronic illness i head straight to this channel, your humor never fails to pick me up and make me laugh... afterall laughter is the best medicine! You can feel the love you share through the screen and its a beautiful thing to witness so thankyou for letting us be apart of it. Keep thriving and keep smiling! Much love and light. 💕
Shane, the “Profile” setting on my wheelchair ( with the exact same controller), means that you can vary between inside and outside speed modules. Nice tour of your chair. I love my chair as well, but everything moves soooooo slowly..... a lot of disability products seem to be marketed for a much older geriatric demographic. Newsflash, disability comes in ALL ages. Love your videos
Hey Shane and Hannah, this was definitely a great video idea for anyone not in a wheelchair to help get some questions that they might of have had be answered. I'm in a manual wheelchair and can 100% relate to the seat cushion tearing and all the goop coming out of it, and I can also relate to the hassle of having to call the repair services and they tell me, "Umm, we need a written prescription from your doctor for the cushion and then we still have to wait to have it approved by your insurance provider." Ok, so it's Friday night, don't do anything you couldn't tell your grandmother about.
You guys are breathing fresh air into TH-cam!! I LOVE everything about your channel, your personalities, and I literally look forward to your videos more than ANY other channel out there. Continue being absolutely awesome, relatable, and funny as hell. :D
Insurance companies are ridiculous for not covering things you need or you have to fight for what you need ! You two are a wonderful couple with such a great attitude!
Hannah, I understand about the benefit of using Shane's wheelchair to hold your bags. It was really nice when we used the baby stroller to hold a lot of our bags and pocketbooks. We also had a cup holder. Wait a minute. I didn't see a cup holder on his wheelchair. One more thing to add. Love you guys!!
I almost sort of don’t want you both to blow up anymore than you already have because you’re my happy little corner of TH-cam. But you both totally deserve it.
Hey Shane! Came across your channel randomly when surfing youtube. You are such an amazing person and I am in awe of you and Hannah's bond and her patience with your disability. I have a suggestion about your "Profile" button on your chair which I believe is a memory setting for different situations being in your chair which probably stores a certain number of settings for tilting and raising your chair with the touch of a button. Love your videos! I am so thankful for today's advancements in medicine like Spinraza that will help and others live out a longer life.
i love you guys so much, the love you have for each other shows in incredible ways. i am not physically disabled but have mental health issues that contribute to me believing nobody could ever "put up" with me because of it. seeing a healthy loving relationship between a disabled person and an able bodied is beautiful and makes me want to try love myself more, and not doubt my worth as much. i would never call any other disabled/mentally ill person a burden, because they are not, and i don't know why i'd do that to myself! i am only just realising this. p.s so glad to see your channel expanding everyday
I have never ever watched or been interested in watching a wheelchair tour before this channel 😂 And I didn’t get bored and skip parts or click off lol
I work in insurance and you can ask for more frequent tire replacements if they are medically necessary. The medical necessity reason for more frequent tire replacements is the safety risk of having no tread. Have your doctor write a letter stating you need them more frequently for safety reasons and if your insurance denies the request you can keep appealing it up to higher levels of regulators that oversee insurance companies to make sure they aren’t leaving people unsafe by not covering expensive stuff. It can be a fight but it can be worth it. The same is true for customizations to your seating, arm rests, head rest, getting a back up seat cushion, etc... Your doctor can write a letter stating how they are medically necessary to prevent skin breakdown on bony joints (like hips, elbows and buttocks) and prevent breaks and dislocations secondary to your contractures. Any change in your condition is also a medical necessity reason for getting the chair reassessed for necessary customizations or even replacement before the standard insurance time frame (which is usually every 5 years). Good luck and feel free to message me with questions!
My one leg is also longer than the other, because of a broken leg (and i also have SMA type 2). Love your channel, and Hannah is such an amazing person. I can see how she sees you as YOU, and not as a disabled person in a wheelchiar. Wish there could be more people like her. I wish both of you the best. Much love
Hannah had acting skills and Vanna White moves too!! Keep these videos coming! The dilemma of replacement parts is real and so ridiculous -- you are educating the world. 👏🏻👏🏻
Here is just a tip for the gross footplate ( because that happens to me too! ☺️) get a dish scrubber and mix dish soap, baking soda and a bit of water until it makes a thin sludge . Put on the footplate and scub . Rinse and dry . Repeat if needed!
I forgot to mention use a new (cheap ) toothbrush for the where the foot plates lift up . Throw away when done ! PLEASE BE CAREFUL WHEN RINSING !!! WATER COULD REALLY HARM THE MECHANICS OF THE CHAIR!!!!!!
This video is actually super helpful to me. I work for an insurance company and my main job is processing claims for durable medical equipment, such as wheelchairs. I know exactly what you mean about certain parts not being covered, or only being covered once every six months or some other arbitrary length of time. Seeing how those kinds of policies affect actual wheelchair users is really helpful to me and hopefully will be something I can address with the policy makers at my company.
Kelwyn wonderful!
Oh please do!!! What a wonderful way in which you can make huge, positive change in the lives of others for a long time to come, I love that!!!
I hope you can make change happen!
That is great, one of the reasons for these vlogs is awareness! Go get those changes made thanks for caring!
awesome - be part of the change!
This video: Not sponsored by insurance
😂
Anna Brabston We’re not all monsters. I over see the civil right issues and grievance letters our Medicaid members have. The main purpose of my job is to go the extra mile for the member since many Medicaid members lack the resources many of us take for granted. Before that I worked in long term care at a nursing home and rehabilitation facility.
@@ryanawilson8549 And also we wouldn't get to see this video for several months
@@Judymontel 😄😄😄
😂😂😂😂
Fast and the Furious handicap edition. Shane needs to send his chair to get spinner rims, cool flames on the side, and a secret ejector seat.
My boss is in a power chair and I call it his command centre because across the front is telephone, computer and monitor, various gadgets. It's a big chair as well, so yeah...his "command centre".
ADD LASERS
Michael Bennett - Or for Shane's film: Amble & The Occasionally A Bit Miffed
Michael Bennett that would be awesome
don't forget the gatling gun and the spikes that come out of the wheels in case he needs to take out a pursuing vehicle with a *sick* sideswipe
13 minute long video??? friday night turn up
Anna Brabston hahahaha I agree on so many levels 😂🤪
Anna Brabston things have got wild 😜
Same.. a year later lol
You got a problem with that?
Every single video makes me laugh so hard and I loved this so much. The cutest
cassie middles I was thinking the same thing... It's always fun listening and watching them.
I really expected this wheelchair talk to bore me but you guys are just so entertaining!!! This is actually probably one of my favorite vids of yours. love you both soooo much!
Shane: "It's almost like your in a wheelchair now."
Me: Looks down "My god, I am in a wheelchair!" "What is happening!!"
Vampiric Kai 😂😂
OMG! Me too!
I have a manual wheelchair so looks like I’m not as special 😂
Vampiric Kai what minute is this part on?
Same xD Manual, but still xD
Hi Shane and Hannah,
I’m a 14 year old, and only recently starting watching your videos.
I’m absolutely blown away by both of your stories, I really enjoy watching both of you go through your lives, (i know this may seem funny to hear lol), one thing i like the most is the sense of humour, every video i watch, even if it is serious intended, always leaves me laughing or with a giant smile on my face.
Shane looks like someone who is really easy to get along with, and Hannah is really pretty :).
I don’t know whether this will get read, but if so then i want you to know that your videos make me happier than any other, especially when i’m stressed or not feeling very good, but your motivation is almost as if passed on to me.
Thanks guys, Nathan.
Thanks so much, Nathan! We both really appreciate your kind words :)
This is not my normal type of channel. And honestly i would be the type to shy a way a bit(id like to think in a non noticable way) from people with disabilities. But between Shane and some of SBSK videos, my eyes have been opened a bit. Now i wanna get to know them and treat them just like anyone else.
I have social anxiety, so for me any interaction with anyone I don't know very well is awkward, or I fear it will be, and I try to shy away … and if someone is disabled, I have the feeling that the interaction is even more likely to be awkward - not because of the disabled person, but because of my own insecurities and nervousness to say or do something wrong or weird. So I definitely do shy away. Which is an explanation, not an excuse, so I'm trying to be better. I think Shane's videos are helping with that as well. :)
@@b8341 i could have just not admitted this at all. Thanks for the passive aggressive bash, good thing i dont get offended.
It was more or less prolly a lack of understanding, toward people with disabilities.
I truly love this comment! Watching someone grow as a person and evolve is the most beautiful thing to witness!
@@721rena thank you! It feels like a spiritual morning stretch the best i can describe. Not to steer anyone from this channel, SBSK has people with some super severe conditions, and the guy who does it is eye opening in how normally he treats everyone.
Here Shanes such a cool dude you literally forget the wheelchair.
And i see the one person deleted their commented.
Thanks for understanding though and taking this the right way.
Feels good to admit, despite it being just a comment section to strangers. And being able to discuss a bit. Not something people generally feel open to do.
Yeah im on my gfs phone watching this and its pretty cool watching something beside star wars theories and joe rogan podcasts.
If I can be at least half as funny as Shane, that’d be great😂
rylan emarie Hannah is funny too! 😊
Yeah I think hannah is very funny too... They're a great match
rylan emarie right? Me too! 😊
that 1 thumb down is a representative of Shane's insurance company
Cody Anderson lol 😆
Right... I kind of hope one of them from the company is watching this and realizes how stupid their policies are... Shane is a great sport about everything I'm sure there are other people struggling as well with these issues
The 51 dislikes are Shane's insurance company too
I think if you do thumb down you need to explain before it let's you
lol yep
You two bring so much good energy to my life. Im moving soon, and it will be my first time living on my own... so needless to say, Ive been extremely stressed and depressed :/ but I found your channel and its been helping me so much. You guys are great... thank you so much.
We hope your move goes well!
@@SquirmyandGrubs Thank you so much!!!!!
I’m in the same position and will be on my own soon. It’s crazy and stressful! We got this 💪🏼
Living alone is heaven. Don’t worry
Chalky butt is right, living alone is utter utter bliss! (Though pets are welcome)
When Shane said, “It’s almost impractically small.” I was actually waiting for Hannah to say, “Like you.” Lol I love their sense of humor and how they roast each other. Reminds me of me and my husband.
I can’t believe I didn’t think of that!
My grandfather had ms and the only way I knew him was in a wheelchair. Wheelchairs really have come a long way from when he was alive. He's been gone for 20 years now. He had ms in his 20's and they gave him a short amount of time to live but he shocked the doctors by living until he was 68. I remember when I was younger riding around on his wheelchair, I miss him terribly. Thank you for sharing your story with everyone. Medical advances have come so far in 20 years and so has technology. I know people are still uncomfortable around disabled individuals and there's no reason to be at all. I'm hoping one day for a world where there will be no stigma against the disabled, races, religions and people will just be able to live the way want to as long they are not hurting anyone. You two are adorable!
If his insurance company is watching this. Please replace his wheels. He lives in snow country.
Lololol! The part where Hannah talks about the number of changes she has made to Shane’s “set-up”; each of which no doubt improving his state of well-being exponentially AND the fact that he met each one with “stubbornness & resistance”...and I’m over here like, “so precisely the same situation as with EVERY male/female romantic relationship since the beginning of time??!!” 🤣🤣
Shane’s disability simply provides for a highly specified manner through which Hannah is able to prioritize the needed changes!! Sounds about right!!!👍🏻
I love you two, and have been sharing your channel with a lot of my friends and coworkers, who have also been enjoying your content. Keep up the good work you guys!😘🤣💑🐭🐭
“Allowing my Boys to flap around in the wind” 😂
I laughed so damn hard
DUDE. Your voice and your breath control have improved SIGNIFICANTLY since I started watching. That spinraza is amazing! I’m so happy for you guys!!!!
Also this video is everything. Hannah’s Vanna White moves are life.
(When you pulled Ducky out of the chair. 😂🤣)
Marla Mozzer thank you for saying almost everything I wanted to in one comment. Couldn’t like it fast enough.
Guys, I found you recently and I am obsessed. I had to retire from a much loved career recently and have been feeling pretty sorry for myself. TH-cam and other forms of social media have really helped me build a new start of a different type of life for myself and you two have brought some much needed laughter and joy. Thanks. There is a lightness and celebratory air about your videos that is refreshing and fun. You are clever funny which I like and you don’t apologise for being yourselves. I would be proud to have either of you as my son or daughter. Thanks for the much needed lightness.
I used to be a bit shy with disabled people, (I was never rude to them and I always treated them with respect) but now I feel really comfortable with them. So, thank you, for what you do and thank you for posting videos and spreading awareness. I watch you every single day and you make me feel happy.
-Ava
Love you guys! What is a typical date night?
Who are yalls favorite TH-camrs to watch??? That’s my question for daily vlog question
I love that you subtitle everything because not only is it helpful for the deaf and hearing impaired but its helpful for people like me that just simply concentrate on and process information better when simultaneously reading and hearing the words.
I have a question for Shane: do you have pain due to the muscle contractures of your hands/wrists and/or hips/tush area due to very little fat padding? Sincere question.
I wanna know that, too.
I’m not sure about the hands, but yes they have mentioned pain with hips and his tailbone for that reason.
Good question!
This is an INAPPROPRIATE question!
Are you medical professionals attempting to diagnose and present protocols ??
Really.....how unbelievably intrusive!! This is not a question for a lay person to ask anyone!!!!
This falks into the same idiotic category as to asking someone do or how they have sex!!
Have some discretion and class!!
@@miraclesforus2 seriously?
*video idea* since your chair was dusty and covered in food😉 do a deep clean of Shane’s chair! I’d totally watch that.
I was thinking the joy stick area could use a little scrub up as well.
YEEEESSS!!! GOD PLS CLEAN THE CHAIR!! YOU CAN END UP WITH STUFF YOU DO NOT WANT LIKE MRSA!!!!!! 🤢
Hi, Shane and Hannah. I love your videos so much!! You guys are so sweet and kind. You guys are my inspiration. You guys show people all around the world that just because he’s in a wheel he can do anything. He’s unstoppable!! You Guys should set up a meet and greet!! I live in MN so it would be perfect! Pls keep making videos because you guys have made an amazing impact on my life❤️
I love you guys so much🥰
Holy crap I spit my drink out when you used the fork on the wheel...... love you two so much!
You could use a set of snow chains for those wheels in Minnesota, Haha! Surely insurance will pay for that! Car insurance that is... Shane, thanks to your assistant, Vanna, who pointed out all of your interesting accessories and bonus goodies. Wait, there's more! More towels, velcro, styrofoam, and velour just to make your chair unique. I'm surprised there are no Eagles logo or other Philly paraphernalia. Some bumper stickers might add some color and style to it, and probably hold it together while insurance figures out how they will not pay for something else! Welcome to the fun world of DME and ME! You guys are way TOO much fun! 😂😂😂
Do you mean his girlfriend Hannah?
Yes, but she was doing an excellent Vanna imitation.
@@verom8657 Hannah was doing a Vanna White impression. Hence the Vanna humor. Vanna White from Wheel of Fortune on TV.....
Not sure that some people know who Vanna White is, lol!
I love your comments. They're always very well said and sweet. ❤ I tried the say the alphabet in 1 word challenge and omg its so hard lol.
Cole and Charisma and you guys are my favourite couples to watch on TH-cam! 💞
I love Cole and Charisma!!
Lol the name of this video should have been “what insurance won’t pay for on my wheelchair cuz they suck but i have buttons to remind me” 😂 I’m not going to lie i was cracking up when Hannah was on the floor after being taken out at the shins. Love you guys!
Edit: omg the picture of Shane bringing groceries in is too much! I’m literally on the floor laughing!
Getting a new wheelchair next month! I'm so excited and I have a list of all my request!!! ♿😊
Where do you live? Because here in the states, requests are pretty much ignored for the actual requirements only. My cousin is a quad and he has fought the insurance company for over 40 yrs just to get things on his chair that would make his life more manageable. I seriously hope you get ALL of your requests but at least half!!!
I love all your videos. You make my day. You two are beautiful souls. Thanks for sharing with us.
This was very interesting and presented so intelligently and humorously!
I'm really horrified about the cost of replacements and maintainence.
I feel as if both of you are part of my family.
Grub..your adorableness makes me wild!
And Hannah your beauty is breathtaking!
Goodnight!
Thank you so much! Goodnight! :)
As an Australian, I was shocked by these things not being covered by medical insurance..it honestly seems healthcare/health insurance is TOUGH in parts of the USA :( a lot of people here in Australia both abled and disabled rely on government medical subsidies and cheap basic healthcare and a pharmaceutical benefit scheme so we can afford treatment, medications and ongoing health care and be able to not have to choose between food/rent or your medical needs. Good on you Hannah and Shane for DIYing where you can and reusing :)
Kosanna Lukic yes even in UK it’s not that bad.
@@smithy2389 its very saddening.
Kosanna Lukic It’s more than tough am disabled from endometriosis and SIJD. They keep refusing excison surgery I need for endo. I’m so sick I can barely walk most days and the doctors here are awful. They have no compassion and mock patients most the time. I don’t know why ppl think the USA is perfect Americans are suffering very much here. Here we have to choose between food and medicines because co-pays are so much. And forget going to the ER if you don’t have Ins you’ll go broke and homeless. The medical system here is thrashed pretty bad and so many are suffering cause of it. They even deny Meds for cancer to ppl or t he co-pays are so much ppl have to beg for help on Gofundme pages.
Hannah is so funny and so is Shane. Y'all make the BEST couple because y'all compliment each other. Much love from Atlanta.
💖💖
I'm near Atlanta too!!!
@@rachelr.n.3563 Kool, I live off of Chamblee-Tucker Rd.
Never seen so much positivity!!! This channel never fails to impress me the two of you are so kind and positive, I hope the world treats you with the same amount of kindness that you give out to the world!
Currently bawling. Hannah, you are the sweetest, kindest, selfless person ever. I have a special needs brother and to know that someone like Hannah may be out there waiting for him gets me so emotional. Don't stop what you are doing. Love you guys
Shane you should start a go fund me page to modify/customize your wheelchair. Headlights for safety/darkness, all terrain tires for snow etc..
Shane you have no idea how curious I have been about your wheels! It’s really an extension of you so it’s like getting to know you better. Thanks for giving us a tour 🤗
I totally understand you with the snow, I live in Quebec (Montreal) and here we had such a year, there's like 5 inches of ice under 2 feets of snow! You'd probably struggle here too unless you have winter tires on your chair!!! Didn't mention... Really love your blog, so refreshing compared to most, just natural which is rare as many try to change to "fit" what they believe people will like, but you actually seem like if I'd met you anywhere, you'd be exactly as I see you on TH-cam. Really nice, I am mostly alone most of the time besides the moments I am alone but surrounded by other people (mostly ignoring me which I understand), but watching your videos gives me an impression that whoever I am, you'd accept me, which is such a feeling I rarely feel, keep doing your funny videos, you really bring sunshine in my life and I'm sure in other people's life!!
7:17 If Shane actually does this, I’m done 😂
That was freaking great!!! The TSA agent would be shocked 😳😱 for life...
My husband has the same controller - with "Profile" he can use several gears. Its practically, when the children want to sit down on daddys lap and take the control. With the first gear they all will survive 😂
Guys Guys!! You are already a litle bit known in México because of your video of the interview you had in the tv show This Morning, which was shown in a tv show called Venga la Alegria-> Let Happiness Come. They did a very good report about you!
Excellent tour of your wheelchair Shane!!
I was recently showed a video of you guys by my sister and subscribed immediately. You guys are both Amazing & Hilarious. I don't have SMA but I'm a C5C6 Quadriplegic paralyzed from the chest down from a diving accident May 11th 2000 when I was 16. I have the front wheel drive Permobil C300 and can relate to a lot of your experiences. Like the foot plates as defense/food catchers, air filled tires going flat and switching to solid tires, even the pouch which I also use to carry other peoples items and so on. We may sit a little lower than everyone else but our outlook on life lets us rise above the rest. Thank you both for sharing your stories and giving others with disabilities including myself someone to admire.
This is just a big "thank you" to the family that donated their own back up seat to Shane and Hannah for his chair. It takes amazing people like you to make this world a better place. What a genuinely kind, thoughtful and beautiful thing to do for such a great young couple.
I LITERALLY PEED MYSELF AT 2:20 😂😂😭😍
Please take care of yourselves! This is a LOT of video editing and captioning to do each day.
Will Slack Agree! I don’t want them to get burned out and resentful.
I'm pretty sure Shane does the editing while she works. It's his job pretty much.
@@kelseyjay3733 She's in college
Kelsey Jay she’s in college, swims and is a lifeguard
I THINK SHANE IS SO LUCKY TO HAVE YOU IN HIS LIFE, AND I ALSO THINK YOU ARE VERY LUCKY TO HAVE SHANE IN YOUR LIFE. HE IS SO SMART, FUNNY, AND VERY ENTERTAINING
Thanks for being very patient and answering all of our inquisitive questions. You are two great people and really love to hear from you.
Alternative title to this video: Shane Shades Insurance Company for 14 Minutes Straight
I know shanes pain too well, my old wheelchair was the most basic wheelchair someone could be given without headlights or all the other “special” features. My seat also has gel in it too which is annoying but thankfully i have a new wheelchair that’s like the tesla of wheelchairs, it’s really fancy at least to me it is.
Mine is like his. Barebones, nothing even remotely fancy. And now it's being held together with black duct tape in a couple of places. (The counselor at the accommodations department at my daughter's college saw my chair and called their maintenence guy. Hahahahaha. Such nice people!)
The worst though...it has a poltergeist and once in a while it will just stop and shift to lockout mode. I can't use the controls until I turn it off and then on and go through the mode button back to drive. It's takes about 30 seconds which isn't a lot of time if you're safely on the side of the road, but it did this in a crosswalk on a busy road one day. I've never been so afraid of dying.
Hannah you are so well spoken. I know you've mentioned getting nervous for TV interviews, etc., but you speak clearly and with confidence and I enjoy listening to you explain things.
Aww thanks so much!
Can't stop watching your videos. They're really fun, informative and positive. Your happiness is contagious!
Thanks for sharing! Positive vibes from Canada 🇨🇦
Just watched your tv interview it was great!
Thanks so much!
@@SquirmyandGrubs Your Welcome
we need a link to it online somewhere! >_
@@rowanb2355 search this morning on TH-cam the title of the video is "Strangers think my girlfriends my nurse"
@@rowanb2355 th-cam.com/video/QYbzK6yjegc/w-d-xo.html
You are the biggest inspiration that despite you can not do as much as many people you’re always making the most of everything you can do and also always making people smile and laugh. 😃
I love the joy you guys share. From someone who has had mostly abusive boyfriends your respect and love for eachother is inspiring.
Would love for you to do a follow up video on the process of getting a wheelchair replaced. Willing to bet most people would assume you could do it without getting independent insurance verification that you are indeed still disabled and they would be WRONG. I'm due for a new chair this year and I am dreading the inevitable fight to the death with my insurance company.
I love you two ❤️
Holy shit, this used to be MY profile pic! The same exact crop even. Where'd you get it cause it's very uncommon and why I used it to begin with. Now, I just change mine all the time to one of my 14 cats and bird. Crazy as Hell tho!
Thanks for the tour of your chair! My son is 19 and has a quantum eyelevel power chair. He drives it with head controls. He also communicates with a device that works with his eyes! It tracks his retinas on a screen and verbalizes for him. So thankful for technology!!
I have a bike bell that I mounted on my wheelchair so I can tell people to get out of the way. I also glued a ton of fun patches to the back of it.
My friends love to use me as a pack mule when we go shopping too! I'm cool with it so long as they push me around when my arms get tired. A symbiotic relationship!
I'm betting that some real thought went into "foot/feet rests" during this video. I bet there was a discussion on which is correct. 🤣👍💙
Muhaha now we know how to defeat Shane!
-Slides to neutral-
I can't get enough of you both thank you for sharing your love and lives with us. My wife and I watch each time we check the channel she just reminded me to subscribe.
Hi Shane my name is Zara, I’m 28yrs old, I live in the UK, and I have Cerebral Palsy. I think your great, you don’t let your disability stop you in anyway. Your girlfriend is fabulous, and very helpful. I’ve not been watching your vlogs for long, but what I’ve seen so far is great, I think you would make a great spokes person.
Shane, how often do you feel like you need to get out of your chair? Or how long is too long to be in your chair? I’m a special ed teacher and I have a couple students in wheelchairs, they’re nonverbal though and I wonder if I need to give them more breaks out of their chairs throughout the day?
Katie Hilton it depends on their age. When I was 11 I just wanted to be in my chair all day so I could move around with my friends. Physio Therapy and hydro are good excuses for getting out of the chair with productive time. That said soft play areas are good. Ideally you want to be getting them out of chair once a day for 20mins or more. Tummy crawling is good for the back.
I used to work with adults with disabilities and I would take each of them out twice. Once at the beginning of the day and then after lunch. A lot of wheelchair users like their chair and don't mind being in it but they should be taken out just like someone laying in bed at the hospital should get up for walks or should be rotated if they've been laying for a while.
I wish my chair lifted up. It only tilts back
Juan Barrera Same with mine and it’s so annoying!
Shane at the beginning of your vid i saw hannah looking at you with so much love i am overwhelmed by that gift you have be safe and happy brother
It's amazing how many wheelchairs they have out there to fit each person. My best friend is in a wheelchair (electric as well) due to muscular dystrophy, and back when him and I would go shopping I'd put my purse on the back of his handles as well. And I completely understand about the tire situation.. he fights with his as well for new tires which is crazy because it's something they have to have. He gets a new chair about every 10 years and changes the color of his.. his is a lime green right now
My cheer can tilt back to do you know that my chair has different kinds of moods
You need chains for your wheelchair tires.
Well, if anyone doubted ya'll were legit, this proves it. Shane essentially carries Hannah's purse (lipstick, medications, candy, receipts lol).
Thank you for giving us a glimpse into this very private part of your lives. I have never met anyone in a wheelchair, so it was cool to see how everything works.
I love that you call your grandfather Poppop. That’s what I called my grandfather too and no one around where I live did. Everyone was always like “whats a Poppop?!” So that made me smile! I love this video! You guys are awesome
when I watched the interview, Shane wasn’t wearing *his* beanie!🤪🤪
Hannah Shane Juice Guy start thinking about children in the future? Because I'm picking your boyfriend and your soon-to-be husband Shane is going to be a great dad someday
You've got a new subscriber! Your channel has been an excellent source for my 10 year old daughter to learn about others with disabilities. We love watching you two together. ❤
Hi!! When im having a hard day with my chronic illness i head straight to this channel, your humor never fails to pick me up and make me laugh... afterall laughter is the best medicine! You can feel the love you share through the screen and its a beautiful thing to witness so thankyou for letting us be apart of it. Keep thriving and keep smiling! Much love and light. 💕
First
Okay, the clip of Hannah being knocked out was the best!!! Y'all made my day! Hannah, your voice is very soothing!
They are so happy after all, with all the hardships , it teaches me a great lessons and i love to see both of you. GOD BLESS
You guys rock! Only the two of you could keep me glued to a video about wheelchairs. Keeping me laughing at every turn!
Shane, the “Profile” setting on my wheelchair ( with the exact same controller), means that you can vary between inside and outside speed modules. Nice tour of your chair. I love my chair as well, but everything moves soooooo slowly..... a lot of disability products seem to be marketed for a much older geriatric demographic. Newsflash, disability comes in ALL ages. Love your videos
The photo of Shane carrying all the shopping had me floored! So funny! 😂 great video guys, very interesting :). Love Eilidh in Scotland x
Hey Shane and Hannah, this was definitely a great video idea for anyone not in a wheelchair to help get some questions that they might of have had be answered. I'm in a manual wheelchair and can 100% relate to the seat cushion tearing and all the goop coming out of it, and I can also relate to the hassle of having to call the repair services and they tell me, "Umm, we need a written prescription from your doctor for the cushion and then we still have to wait to have it approved by your insurance provider."
Ok, so it's Friday night, don't do anything you couldn't tell your grandmother about.
Your guys humor is literally the best. I am so glad I found your guys channel cause you guys always have me laughing my ass off.
You guys are breathing fresh air into TH-cam!! I LOVE everything about your channel, your personalities, and I literally look forward to your videos more than ANY other channel out there. Continue being absolutely awesome, relatable, and funny as hell. :D
Insurance companies are ridiculous for not covering things you need or you have to fight for what you need ! You two are a wonderful couple with such a great attitude!
Hannah, I understand about the benefit of using Shane's wheelchair to hold your bags. It was really nice when we used the baby stroller to hold a lot of our bags and pocketbooks. We also had a cup holder. Wait a minute. I didn't see a cup holder on his wheelchair. One more thing to add. Love you guys!!
Love it love u both u always have me laughing and the way Hannah looks at Shane makes my heart melt ❤️❤️
I almost sort of don’t want you both to blow up anymore than you already have because you’re my happy little corner of TH-cam. But you both totally deserve it.
You guy's are so cute together
It shows that love has no boundaries. Love you guys
Hey Shane! Came across your channel randomly when surfing youtube. You are such an amazing person and I am in awe of you and Hannah's bond and her patience with your disability. I have a suggestion about your "Profile" button on your chair which I believe is a memory setting for different situations being in your chair which probably stores a certain number of settings for tilting and raising your chair with the touch of a button. Love your videos! I am so thankful for today's advancements in medicine like Spinraza that will help and others live out a longer life.
i love you guys so much, the love you have for each other shows in incredible ways. i am not physically disabled but have mental health issues that contribute to me believing nobody could ever "put up" with me because of it. seeing a healthy loving relationship between a disabled person and an able bodied is beautiful and makes me want to try love myself more, and not doubt my worth as much. i would never call any other disabled/mentally ill person a burden, because they are not, and i don't know why i'd do that to myself! i am only just realising this.
p.s so glad to see your channel expanding everyday
I love how in-sync y’all are! It’s wonderful to have the connection with someone♥️
I lost it when Hannah pulled Ducky out from behind the back rest🤣🐀
Yes an exact replica of your sphincter , now that is unique.🤣 You have all the good ideas Shane. Love u guys❤️
I have never ever watched or been interested in watching a wheelchair tour before this channel 😂 And I didn’t get bored and skip parts or click off lol
I work in insurance and you can ask for more frequent tire replacements if they are medically necessary. The medical necessity reason for more frequent tire replacements is the safety risk of having no tread. Have your doctor write a letter stating you need them more frequently for safety reasons and if your insurance denies the request you can keep appealing it up to higher levels of regulators that oversee insurance companies to make sure they aren’t leaving people unsafe by not covering expensive stuff. It can be a fight but it can be worth it. The same is true for customizations to your seating, arm rests, head rest, getting a back up seat cushion, etc... Your doctor can write a letter stating how they are medically necessary to prevent skin breakdown on bony joints (like hips, elbows and buttocks) and prevent breaks and dislocations secondary to your contractures. Any change in your condition is also a medical necessity reason for getting the chair reassessed for necessary customizations or even replacement before the standard insurance time frame (which is usually every 5 years). Good luck and feel free to message me with questions!
My one leg is also longer than the other, because of a broken leg (and i also have SMA type 2). Love your channel, and Hannah is such an amazing person. I can see how she sees you as YOU, and not as a disabled person in a wheelchiar. Wish there could be more people like her. I wish both of you the best. Much love
Hannah had acting skills and Vanna White moves too!! Keep these videos coming! The dilemma of replacement parts is real and so ridiculous -- you are educating the world. 👏🏻👏🏻
Here is just a tip for the gross footplate ( because that happens to me too! ☺️) get a dish scrubber and mix dish soap, baking soda and a bit of water until it makes a thin sludge . Put on the footplate and scub . Rinse and dry . Repeat if needed!
I forgot to mention use a new (cheap ) toothbrush for the where the foot plates lift up . Throw away when done !
PLEASE BE CAREFUL WHEN RINSING !!! WATER COULD REALLY HARM THE MECHANICS OF THE CHAIR!!!!!!