i am literally lying in a hospital bed preparing for a below knee amputation due to a similar injury and your video popped up completely out of no where and it’s really made me feel ready for what is happening to me in just under an hour thank you so much for helping me
Sounds like a few of us have gone through what FootlessJo has. Mine began in 2011 with a fall from a 2.5 story height. 2015 the surgeries began. They were sub talar fusions. Three surgeries and none fused. So i was given a choice. Being there was nothing left to work with, I could have A: Lived with the pain for the rest of my life,or B: Below Knee Amputation. It was a no brainer. The pain was 24/7 so I went with option B.
dave behm it’s so nice to find people who understand even if it is on youtube because all my friends who have visited just think i’m crazy and in the last few days people have actually accused me of doing it for attention when all i need right now is my friends and there support
I had a car wreck 10 months ago and have been battling setbacks with a non union fracture. Infections, failed hardware, etc. 4 days ago, my doctor said it is finally time to look at amputation. I am trying to digest this new reality. It is so great to see your video. Thank you and I will be checking out more of your videos.
Thank you. I have had an above knee amputation for 57 years-since I was 11. You verbalized a lot of what I have experienced and that validation is quite comforting. I would have liked to have been told that I still would have had the sensation that I had my leg after I woke up. And about bad electrical-like shocks in my stump. Gabipentin helps a lot for those. Thanks again. Keep up your spirit.
I’m not an amputee at all, but I love all of your videos and watching your journey. The highs and the lows. You are one of the few TH-camrs who shows it all and are vulnerable online and that’s just such an authentic thing and I absolutely love it.
I wanted to thank you for your video. I am not an amputee but became disabled 14 years ago. Watching you being as positive as you are really helped me today. It's easy to be upset with Doctors that don't listen and to realize things could have been different. It is what it is and you drove that point home to me. Thank you.
These points are 100% spot on! I'm not an amputee but a two-time cancer survivor. I believe anyone who is about to undergo a life-changing event needs to hear and understand these points. Indeed, the medical staff does not distribute a brochure detailing how your life will change after whatever event occurs.
"Learn how to fall" I can't tell you how many times this one skill has saved my bacon. I trained as a paratrooper, and we spent two solid weeks learning how to fall - to the point it all became a reflex. I've fallen off of planes, trains, and even the top of armored personnel carrier with nary a broken bone. So yes, practice, practice, practice!
I really enjoy spending moments with you every now and then. And whether you’re an amputee or not a lot of what you just said can be very helpful. And put towards any sort of healing you were going through. No matter what the situation don’t base your healing on other people.
What you said about not being able to blend into a crowd and feeling unsafe because of that really resonated with me. I started using a wheelchair a little over a year ago to help with my chronic illness and fatigue, and maybe I was a bit naive but I didn't expect to be closely observed by literally everyone I met. I totally understand it but it's such a huge energy drain for me, so it's still very energy demanding to be out and about. Because of this I try to walk my dog early in the mornings and late at night, when there are the least amount of people outside.
My mom had to be in a wheelchair for a few months following an automobile accident and her experience was that people often walked into her because she was below their usual line of sight! Maybe a few extra looks from others might be a good thing...(good lick with your situation...not trying to be a smart alec here...)
i have found that most people are really nice about holding/opening doors going in and out of stores. That can sometimes be really tough, doors get much heavier when you are in a wheelchair. I don't mind the stares, what I DO dislike is when people think they have to literally get up in my face and speak like I'm deaf. Feel like telling them they are at the wrong end! Kids are actually pretty funny, I take the time to explain what happened (got bit by a brown recluse spider and ended up with an infection they couldn't stop), in simple, non-scary terms and they are just fascinated. They will ask questions from time to time and I answer them honestly. Then they, knowing all about this, proceed to "teach" their friends what it's all about!
Very helpful information...I'm a nurse and this is stuff it would be great to be able to pass on to patients. Also, could you maybe do a FAQ aimed at the elementary school crowd...might be able to cut down on some of the random stares🙂
Your list is spot on. There is not enough information on amputation elective or from injuries. You would make a amazing peer visitor for amputees. I just love this video. Would love a part 2.
Awesome, she has explained things that have happened to me, after my surgery the docs just kept pushing me to get up and walk and live life, doesnt go like that, thank you for telling us how it is Jo.
@@puma101076 Maybe if I'm camping, but if I have access to a toilet, I'm using that. There is a reason that, in the age of indoor flush toilets most people no longer use chamber pots. Nasty nasty nasty.
It is my dream to become a prosthetist. I am likely to become an amputee myself and I have always been interested in the medical part behind it. Your videos really help me! ❤️🙋🏼♀️
Thank you for a serious and sober explanation of amputees. For many years, I considered amputation in my own life. Fortunately, it was not necessary in my life. However, your statement was quite informative and I do like to learn.
You are good speaker. If I ever have someone come into my life that finds themselves in the position of requiring an amputation or they have had this procedure recently performed, I will direct them to this helpful video.
Great points! I love that you can share all of this. I think its so informative. I would say there is a 11th point you didn’t mention, “You get tired of telling your story”. When you say you don’t always mind people asking questions, AS LONG AS IT IS NOT YOUR STORY. As an amputee you tell your story when you want, but if it is constantly solicited, it get incredibly annoying. Anyway, glad to see you are wearing your leg more and seem to be doing better. Im so proud of everything you have gone through and accomplished. I look forward to more videos!
As someone who has dealt with physical challenges (birth defects) all my life, I have experienced some of what you face(d). But I withdrew from the world for the first 20+ years of my life, while you have embraced it. Thank you Jo, and inspire whomever you choose. You owe us nothing, but you give so much.
Yes yes yes!! I totally agree with the whole list! I am glad I knew about most, but I still fell into the trap of wanting my leg sooner rather than later. But I realize that my leg needed more time to heal. I do not call it a stump or anything other than my leg cause it is what feels right to me. Speaking of which, my leg got all casted up today, get my check socket next Thursday! 💜
Wishing you the very best with your test socket, make sure to speak to your prosthetist if it feels uncomfortable and do not leave until it feels right. It’s so exciting getting your first prosthetic but go easy and at your own pace 🤗🤗
@@bluedeva thank you! He is very good at his job so I know he will make sure its done right. My oldest will be with me to crack jokes and learn all about it. He is 32
Raven Rose oh fantastic and having your eldest with you will help as he will keep you entertained 😄Make sure to take both shoes with you - I completely forgot 😂🤣 im sure you’re so excited 🤗🤗
You have no idea how helpful these videos are, finally after 24 years of living without an ankle joint and other birth defects, we've decided below the knee amputation is the way forward. Your videos helped me make this decision, so thank you Jo, you have no idea how much you've helped me and probably many others. And well done for how far you've come already, smashing it 👏
3 and 4..... not an amputee, but my physical disability and mental illness fit these. actually all, in pieces . I have to say, you are doing really well for 3 months post 2nd surgery 👏💪❤️
Thank You!!! Such a needed post. I am also a below the knee amputee from diabetic infection about 4 years ago. Ever single point you made is absolutely correct and needs to be shared along with so many more. Continue please, people need to know. Pain. fear. relationship pressures and strain etc. Appreciate You.
I started watching your videos because Aaron asked for his followers to come over and check you out. Subscribing to a TH-cam channel is a personal commitment so I don't do it without a lot of thought. In fact, I sometimes anguish over letting go of a youtuber that I no longer enjoy their content because I am here for the person as much as their content. You are only the 2nd amputee I know, the first being way back in the day when I worked at Circuit City. A coworker had lost his dominant arm in a car crash a few years before we started working together. I share all this because we get to know a lot of about you but you rarely get to know much about the people that watch your videos and their motives. I simply enjoy you as a person. If I still had a job that brought me to the springs on a regular basis, I feel you'd be someone I'd enjoy hanging around. You are an inspiration but you are also authentic. You share the good, bad, and sometimes the ugly. I am very happy Aaron gave you a shoutout on his channel because following your journey is interesting, inspiring, and I learn a lot. Who knows, one day I may cross paths again with someone that is an amputee and I will be more knowledgeable so hopefully I won't embarrass myself or them. My former coworker got named "One armed Keith" because there were multiple Keith's that worked there and after a month or two no one even thought about the fact he didn't have an arm unless he needed to tie his shoes. So thank you Jo for sharing your journey, it is appreciated.
My dad has a below the knee amputation done in 1979 in communist Romania. I wasn't even born at that time and even afterwards, it was difficult for me to explain it to people. Thank you for sharing your story and speaking about these things.
I've had a 10 hour working day, I'm tired and a little bit ill. But I could listen to you for hours. The way you talk about this is unique and its calming me down. Such an emotional theme but you handle it so confident. Thank you
Your videos are so helpful & informative! I’m a retired ortho nurse with a daughter who’s been an above knee amputee for 35 years, I’ve been shocked over & over again about the myths & misinformation about amputation out there. Thank You!!!
I became an btk amputee 9 months ago and I've been learning how to use a prosthetic leg for the last 3 months , your videos have been so extremely helpful in my journey so far , keep up the good work and thank you .
Thank you so much for telling people to not compare their experience with other people's. I tried doing that from TH-cam stories and just scared the living heck out of myself! Completely different situation for me bone marrow transplant. Everybody has a different journey. I'm sorry about the speed bumps on your recovery I hope everything straightens out soon!
Do you ever get people come up to you and say “oh I’m really sorry for you”, and if so, how do you feel about it? I’d love to get your honest opinion if you feel comfortable sharing.
It gets real annoying real quick... I’m an amputee, not a charity case. I’ve had enough time to feel sorry for myself (and still have moments) that I don’t need to be reminded about how shitty it is to not have a leg. Not sure how others feel about, but that’s me, personally.
@ I did not serve in the military and most people do not ask questions until they know me. I dont mind sharing my story and I wear shorts outside of work. People at my work know but wearing pants makes it out of sight out of mind. I also have a lawn and landscape business with my son and ive had some funny stuff happen with that. I believe that people will do what they do but its my opinion that's counts and I dont feel sorry for myself so why should they.
I used a power chair after a car accident. I'd tell car accident,,,, and quickly change the conversation to a I can still do most things. Plus how much I've learned. It was fun educating them. Moved to Denver for a bit where a terrific Dr had helped me. Im able to walk,,, at this moment
Definitely would love a part 2 of your important things to know. You are so very correct on trying not to compare yourself to others who had/has the same procedure. I spent so many months online talking to people and although it was nice to hear their stories, I had to force myself to stop going to online Facebook groups for CRPS or Fibromyalgia. The stories can really scare you and put you into major depression, especially when you are healing or just living with it now. I love your hoodie!!! If you don't mind me asking where did you find it? I'm looking for Christmas ideas for my 22 year old daughter.
Why arent you running a marathin yet? Well, i couldnt run when i had 2 legs, so pretty sure im not gonna bother when ive only got 1, would be my answer! 🤣
Basically my friend recently had HER leg amputated and I wait for her during the morning so I can help her on the bus (I've known her since I was 3) ( Also I'm a transman -female to male- but dont look it so I do get missgendered) we are sitting on the seats reserved for people with difficulties like pregnant women, elders etc. This 50 year old started screaming at me and my friend as "We're stupid 8 year olds and we need to sit where we are SUPPOSED TO!!" (We are 12 and look it) I tell the lady I'd be glad to give her my seat but then she starts complaining that her daughter (18-25 years old) after about 3 mins of her complaining my friend stand up and pulls up her trousers to her knee. The look of this ladies face, she was MORTIFIED. She ran to the back of the bus and we couldnt stop laughing about it
I am considering an elective amputation and I can’t thank you enough for sharing these two videos of the 19 things but also your entire journey. We often only hear the good and inspiring. But I NEED to hear the bad and the ugly too. So thank you!
I had to have my R leg amputated due to an infection in my toe that spread to my foot & leg August 3, 2023. Its been 6 mos & surgical wound is almost healed. Gotta be 100% healed before wearing a shrinker then getting a prosthetic. Im so glad i stumbled upon your videos Jo. I am comparing myself to others in healing. I know i shouldn't do that. I cant drive yet. I'll have to complete a road test to get my licence back.. All in good time.
Your video is excellent for anyone with any medical condition, not just amputees. I think it is also good for people who are family members and support members of the team. Thank you.
Jo, It is unfortunate you were so misled about timing. We were told the prosthetic fitting and mastery process is a year from first socket fitting to a final (definitive) socket and leg. In that 12 months, there were 20 or more visits to adjust the fit. Trying to move too fast was always advised against. Being exposed has its advantages. People tend to put you at risk by walking too close. Seeing your leg can help them understand the need to not get knocked over. The ability to be an evangelist for the amputee community has been good. The kids are great. A few ready to go comments for the kids can be great. "What do you think of my robot leg?" or "Do you like my robot leg? It's cool isn't it" Being able to talk to strangers about one's leg can be helpful with self-image and coming to terms with those around you. It was good to see you smile. I hope your socket treats you good.
This is a great list. I lost my leg 3 years ago and still have a lot of problems off and on. Two months after my amputation I fell and broke a bone in my good foot. Falls are the worst!! Thanks for your videos! ☺️ keep up the good work!
This was a real eye opener. Thanks for sharing this. I love learning about other people and their trials and triumphs. So interesting. Love from Denmark
I’m so thankful you did this, these are awesome tips in preparation for my upcoming surgery in a week and a half. Above the knee amputation, right leg. I already function as if I have one limb so am hopeful that will give me a leg up, lol. But like you, with Chiari, EDS, Dysautonomia, etc I know it’s going to still be a GIANT challenge. I tend to put a lot of pressure on myself as well. So I truly appreciate these tips. They are perfectly helpful! Did you do a video part 2 on this? I’ll have to go look.
While not related to surgery, i moved last year and severaly underestimated how it would effect my mental/physical health. While move sounds pretty basic, the amount of stuff we had, the energy it took for me to get shit done, it all equaled an unexpected mess. I did some pre planning but not enough. Back up plans. Much needed and theres was tears when i realized we didnt have any. There was this notion that i had stuff ready but the reality didnt fit that and it took a toll
Moving can be very stressful indeed. I remember I had to move suddenly. I had assignments due in university and my husband was in the hospital. And yes, over time the accumulation of stuff is insidious and is overwhelming when it is time to move. Thankfully I had some great support. But I was so exhausted omg.
This is very relatable. I had a big move a few years ago that took a huge toll on me. I was moving from a terrible situation into my own place for the first time in my life but it was all so marred by the PTSD of the previous (and all previous) living situation and how utterly wrecked I was from the move. I dealt with months of depression after. 💕
That's one of those small but oh so important no one bothered to mention to me after they did the hatchet job below the knee. That is, you use 40-50 percent MORE energy to get around or even in a wheelchair. Finally had to search the internet and find it. It's frustrating because if you were an active person before, after you don't realize you have to pace yourself.
I am a Veteran who helps other Veterans with PTSD. And I have fallen off a running horse also... I just got luckier on the landings. I can help people with allot, but amputation is out of my experience set. This video just made my list of of "I can't help you with this directly because I don't live with it" resource videos. I can't tell someone how it feels from the inside... But you can. And the next person who I can help deal with things, that has lost or will lose a limb will get pointed to your channel. I know you may think this may be a part of the final problem you listed, but it truly is not. The fact that I wanted to tell you this is so you know that you are doing something meaningful. Not grand, inspired, or magnificent in a way to puff you up. But that your effort is worthwhile to others. The fact that you show and discuss the real issues involved in that life will help others. I know from personal experience that helping others can be the best way to help yourself. So take it from a grumpy, old vet who tell many of a younger generation that "I have boots older than you..." while beating them at various games. You are doing something truly useful. I won't tell you to be proud, because that is a bad thing; but have... satisfaction that what you has value. So if you get value out of sharing this with others, know that it is useful to others. And if it isn't... Well... Stop and don't worry about it. Do what you think is best and move on. The world doesn't own your life. And you are 100% correct about comparing your journey to the journeys of others. And those boots are not older than you. (They were issued to me when you were 5... but you get the point.) 😉 Though I would happily (and jokingly) offer to introduce them to some of the people you mentioned. Just thought you might like a bit of the encouragement you are offering others. Cheers.
What an honest video. Explaining some of the things you wish you had been aware of before surgery. People should be more honest with those who are going to have surgery and explain everything a bit better too.
Hello I am a new below my left knee amputee, I love all your videos they're very educational, i researched below knee amputation and that's how I found you, always keep your head up stay strong and positive, I just got my temporary prosthetic and impressed my prosthesis I started walking immediately, once again thank you for your videos take care God bless you, you are truly amazing and one of God's greatest angels 😇 ❤ 💖 💙 ♥
PSA: being “disabled” does not automatically make you a superhero. It makes you a regular human being who just so happens to be “different” and that’s okay.
Thanks for sharing this top 10. There's a lot of things we don't realize (or take for granted) until our life changes. I'm sure this video will be useful for a lot of people!
Many years ago, when my children were small, I tried to teach them to accept the people in the world around them regardless of how different they might seem. I'm proud to say they took that lesson to heart. When my boy was four we were out for the afternoon. A making mail deliveries was on his route. He was roughly my father's age and sported a hook prosthetic. My son could not take his eyes off the mechanical device and I was caught between wanting to educate him and not putting the man in an awkward decision. Finally, I decided to take the problem head on. Respectfully I introduced myself and told the man my son didn't understand the equipment. If we were not being offensive would he mind taking a few minutes to explain his situation in any way that was comfortable for him so that my son would not grow up thinking the loss of a limb was somehow a thing to be ashamed of. His eyes lit up. Turns out he was a WWII veteran who had lost the limb (I believe--it's over half a century ago) on D-Day. He showed my son the device, opened and closed the twin hooks to show how they could grasp, and allowed my son a peek at the complicated series of leather straps that kept it in place. My son took it all in with the seriousness only a four-year-old boy can muster. I was proud of how he dealt with it, asking very intelligent questions and even shaking "hands" with the gentleman. I was so proud of him--and of myself for finding a good way to deal. He does not stare, but neither does he look away.
Hello Jo, Had my Blk amputation just over 3 weeks ago. Blood clot issues caused all my health problems. Been doing limited physical therapy so far. Waiting to go to Rehad. Thanks for the information.
I'm having a lower leg amputation on 10/1/2020. I love you have researched so much of what goes into the amputation before, during and after the procedure. I'm very aggressively exercising and doing a lot of specific exercises to build myself up to prepare for life after surgery. You are an inspiration, I know that you don't like to hear that but you have helped me a lot! Thank you! And I look forward to seeing your informational videos in the future! Keep up the great work!
I'm not totally sure why the TH-cam algorithm recommended me your videos, but I really like that you are sharing your story with us. I'm no amputee, but I sometimes asked myself how life would change after such an impact, since I'm a very curious person. I would never ask an amputee, I do consider this as disrespectful. So your videos are great to feed my neverending desire for knowledge. Just some question: Had there any a time when you regretted the decision?
Another great video Jo! I really liked both #5 (advocating for yourself) and #6 (mental fatigue) as I can really identify. Anyone in our situation really needs to advocate for oneself as I've discovered that the medical professionals we work with really need our feedback as badly as we need their treatment and advice since it's not a one-treatment-fits-all world. Regarding mental fatigue, I find that the constant problem solving I do every day really keeps me on my toes but then makes me quite tired by the end of the day. I'm hoping all this problem solving will stave off memory loss in my receding years, lol! Also I'm hoping that in a few years many of these puzzles will have been solved and that I can devote more time and energy to regular living and personal development. Thanks Jo!
Thank you SOOO MUCH for this video!!! I sustained a TBI 4 years ago and thankfully I got a TON of support, but I ALSO feel like I have to be *inspirational* ALL the time now...and do *incredible* things now!!! (YOU ARE ***NOT REQUIRED*** TO BE ANYONE’S INSPIRATION!!!) You saying that...totally changed me life!!! (Yeah...I know...sounds dramatic, but I’ve *struggled* with it for YEARS!!!) THANK YOU SOOO MUCH!!!
You are such an increadibly bright light in this world. Beautiful inside and out. Also you really are an inspiration to me because your're strong, intelligent, helping so many people and you have self respect. The things you do are very special.
While I don't have any missing limbs I think this is very helpful to those who do. No a subject that most want to talk about, but something that needs to be addressed. Thank you.
I got this as a random recommendation - go figure. I know you spoke about the pressure of being an "inspiration", but I can't help but admire your tenacity and perseverance. Good for you!
I hope this list reaches the people who need it, there's lots in here that I wouldn't have considered. It really is a completely life changing thing to go through, physically, mentally and emotionally
To hear Jo's voice, its so hypnotizing.. Nice motivation with golden voice.. Only with hear Jo's voice it already motivated me..👍 Keep the good things done Jo, GBU..👍👍
Thank you so much for the information. I am one of those people that will have to have this surgery one day. The doctors say one day my pain and problems with my ankle with get too bad and my only option is to remove the foot. I am grateful to get this kind of info before to help educate me. thanks
Good list. I’ve learned how to fall, it’s the landings I’m still working on. Went down the other day and there were so many pretty stars to look at. I fell well but messed up the landing and hit head first. I got tangled up in a dog leash. LoL I hope your feeling good today. Want to hear some good advice go inside a nursing home some of those folks have lots of wisdom. Thanks
Thank you for this you tube channel. My wife (Rachel) just found this and we love it. Rachel will be having her left leg removed in a couple of months so this video was extremely helpful for us. I was wondering if you have a similar list of things you wish you had or had not done before the amputation in preparation for the amputation. Also, as a husband, I was wondering how your husband has handled this? I am very supportive of my wife’s decision for the amputation but i am wondering what things that did or did not happen that may have caught your husband by surprise.
I am NOT an amputee, but I did recently go through a significant episode wherein I severely tore my calf muscle as a result of having lymphedema. It took me just about 13 weeks to heal, and I live alone in a condo with 2 flights of stairs. So much of what you said resonated, because it has become clear to me that for future thinking, I will either have to move to a more adaptive home, or be prepared to take into account all of the things you spoke about. It was an exhausting 13 weeks. I admire your grit and resilience! Much respect to you.
I've watched a number of your videos and want to tell you I think they (and you) are terrific. While I have not had an amputation, I have spent many years (most of the 1990s and then some) on crutches, in boots/casts, etc. as the result of a fracture to the dome of the talus which just would not stay healed and nearly a decade of surgeries to try to fix it. And I find a lot of your advice and experiences are just as applicable to someone with a bad orthopedic injury, multiple surgeries, etc., as to the amputee "community." Case in point: thinking in advance of a surgery what you need to be safe in your own kitchen/house/bathroom. I especially want to tell you that your intelligent and honest discussions of health issues, healing issues and dealing with the medical providers is spot on and very, very helpful.
As a recent amputee i have to agree with quite a bit o what you said. The mental effort is spot on. While luckily I to am an upbeat positive person. learning to mentally deal with the daily challenges can lead to frustration (not depression at least for me). Simple tasks like going to the bathroom, or even getting a drink from the kitchen become much more involved and require effort and a number of steps to make happen vs just jumping up and getting something during a commercial like we all use to.. Learning to adapt to my expectations vs reality as I mentally adjusted to my new circumstances has probably been the toughest part of my journey so far. But like many, i refuse to give in, ill keep tackling my problems one at a time slowly moving forward, and thank god every day for the blessings he has given me rather than sit miserable and complain about everything i "cant" do. Thank you for your words of encouragement and keep posting your videos!
Thank you, seasoned warrior! For sharing your thoughts and experiences. Hope you are doing okay and the nubbin is feeling good. If its not, take time for yourself. All the love from a university student who should really focus on her exams...
Thank you for making this video. Some of these things I knew, some I didn't. When you talk about being an inspiration it seems like that is me with my friends. The thing that inspires me is that I am walking again - and I didn't think I would do that since I now think that I may have to get my own revision surgery. Keep doing what you do Jo, and I'll keep watching.
Hi Jo 👋 Thank you for your vids I had a motorbike accident 7 days ago and since then had two operations. I am now a below knee amputee . Your videos are very helpful keep doing what your doing ,your such a beautiful. Really helping through my initial week. Math x
I'm not an amputee but sustained a chronic pelvic floor injury in childbirth. I can relate to a lot of these especially the mental aspects. I have the luxury of people not being able to see it in my every day life, which has advantages and disadvantages. I don't draw public attention but people sometimes don't understand why I can't do the things I used to do. There is also a fetish for this particular injury but it's far easier to avoid people stealing your photos or approaching you disrespectfully because basically people don't know unless I tell them. I think your description of the mental exhaustion was spot on. This takes up so much space in me head that I didn't get to enjoy my child infancy because I was dealing with it. Thanks for putting yourself out there!
Your vulnerability especially in #9 was very enlightening and well said. Don’t know how or why appeared on my feed but I wish you only the very best. Blessings and light ❣️
Though neither I nor anyone I'm close to has had to face the prospect of amputation, I enjoyed learning from you. :) Thank you for sharing. You give off a sense of being very kind and wise beyond your years.
I do understand your thinking. The advandidge with a prostetes fixed direktly on your leg is that it is much easier to put on and you could even feel if you step on a pebble. I do admire your attitude about the loss of the leg.
I had a physical difference until I was 18 years old, and I can tell anyone that staring really sucks. I hated people staring at me, especially since I had no escape from it. Now that I don’t have that difference anymore, it’s so relieving to blend into a crowd. I would suggest to anyone not to stare even if your curious, because it really affected me in a negative way, and I still feel some of those mental effects today.
Great points about making sure your home is liveable! We've moved around quite a bit, and "accessible" seems to take on different meanings in different places...some are hits and others are misses. It's a point that people take for granted, though. If you're frustrated by activities of daily living because of your environment... if the structure limits your ability to do things independently, your feelings will vent somewhere else, or with someone who's not part of the problem
i am literally lying in a hospital bed preparing for a below knee amputation due to a similar injury and your video popped up completely out of no where and it’s really made me feel ready for what is happening to me in just under an hour thank you so much for helping me
I hope everything went smooth for you.
i went really well with no complications wooooooo
Hermione Rivers YaY 😁
Sounds like a few of us have gone through what FootlessJo has. Mine began in 2011 with a fall from a 2.5 story height. 2015 the surgeries began. They were sub talar fusions. Three surgeries and none fused. So i was given a choice. Being there was nothing left to work with, I could have A: Lived with the pain for the rest of my life,or B: Below Knee Amputation. It was a no brainer. The pain was 24/7 so I went with option B.
dave behm it’s so nice to find people who understand even if it is on youtube because all my friends who have visited just think i’m crazy and in the last few days people have actually accused me of doing it for attention when all i need right now is my friends and there support
"Comparison is a thief of joy." Something I needed to hear.
My daughter had a below the knee amputation in Oct 2020. Your page has helped us a lot. Thank you
I had a car wreck 10 months ago and have been battling setbacks with a non union fracture. Infections, failed hardware, etc. 4 days ago, my doctor said it is finally time to look at amputation. I am trying to digest this new reality. It is so great to see your video. Thank you and I will be checking out more of your videos.
Thank you. I have had an above knee amputation for 57 years-since I was 11.
You verbalized a lot of what I have experienced and that validation is quite comforting.
I would have liked to have been told that I still would have had the sensation that I had my leg after I woke up.
And about bad electrical-like shocks in my stump. Gabipentin helps a lot for those.
Thanks again. Keep up your spirit.
I agree this meds was originally design for soldiers coming home from war who had lost limbs best thing have found for phantom pains
4:20 "Comparison is the thief of joy" That needs to be printed on stickers, t-shirts, everything!
That’s a famous quote, man
“Comparison is the thief of all joy”
My mother used to say that to me when I was small, so this touched me.
I’m not an amputee at all, but I love all of your videos and watching your journey. The highs and the lows. You are one of the few TH-camrs who shows it all and are vulnerable online and that’s just such an authentic thing and I absolutely love it.
I wanted to thank you for your video. I am not an amputee but became disabled 14 years ago. Watching you being as positive as you are really helped me today. It's easy to be upset with Doctors that don't listen and to realize things could have been different. It is what it is and you drove that point home to me. Thank you.
These points are 100% spot on! I'm not an amputee but a two-time cancer survivor. I believe anyone who is about to undergo a life-changing event needs to hear and understand these points. Indeed, the medical staff does not distribute a brochure detailing how your life will change after whatever event occurs.
"Learn how to fall"
I can't tell you how many times this one skill has saved my bacon. I trained as a paratrooper, and we spent two solid weeks learning how to fall - to the point it all became a reflex. I've fallen off of planes, trains, and even the top of armored personnel carrier with nary a broken bone. So yes, practice, practice, practice!
Robert, can you teach me how to get out of the bed in the middle of the night, without stubbing my toe 🤣
Robert Lawton how to practice falling out of trains without getting yourself killed?
@@timefliesaway999 survival of the fittest, buddy
J
My granddaughter is a horseback rider, she took a class on how to fall
I really enjoy spending moments with you every now and then. And whether you’re an amputee or not a lot of what you just said can be very helpful. And put towards any sort of healing you were going through. No matter what the situation don’t base your healing on other people.
“Comparison is the thief of joy.” Say that again! I randomly clicked on this video and that really resonated. Thanks for sharing your experiences.
What you said about not being able to blend into a crowd and feeling unsafe because of that really resonated with me. I started using a wheelchair a little over a year ago to help with my chronic illness and fatigue, and maybe I was a bit naive but I didn't expect to be closely observed by literally everyone I met. I totally understand it but it's such a huge energy drain for me, so it's still very energy demanding to be out and about. Because of this I try to walk my dog early in the mornings and late at night, when there are the least amount of people outside.
My mom had to be in a wheelchair for a few months following an automobile accident and her experience was that people often walked into her because she was below their usual line of sight! Maybe a few extra looks from others might be a good thing...(good lick with your situation...not trying to be a smart alec here...)
i have found that most people are really nice about holding/opening doors going in and out of stores. That can sometimes be really tough, doors get much heavier when you are in a wheelchair. I don't mind the stares, what I DO dislike is when people think they have to literally get up in my face and speak like I'm deaf. Feel like telling them they are at the wrong end! Kids are actually pretty funny, I take the time to explain what happened (got bit by a brown recluse spider and ended up with an infection they couldn't stop), in simple, non-scary terms and they are just fascinated. They will ask questions from time to time and I answer them honestly. Then they, knowing all about this, proceed to "teach" their friends what it's all about!
Very helpful information...I'm a nurse and this is stuff it would be great to be able to pass on to patients. Also, could you maybe do a FAQ aimed at the elementary school crowd...might be able to cut down on some of the random stares🙂
Your list is spot on. There is not enough information on amputation elective or from injuries. You would make a amazing peer visitor for amputees. I just love this video. Would love a part 2.
You got it then - part two is in the works. 😊
Thank you Jo, my husband is scheduled for surgery for below the knee amputation Wednesday. You have given us food for thought and good advice.
Awesome, she has explained things that have happened to me, after my surgery the docs just kept pushing me to get up and walk and live life, doesnt go like that, thank you for telling us how it is Jo.
When I need to use the bathroom in the middle of the night, I just crawl.
Hey it's safe and easy and gets the job done!
Hey !!!! Use a urine bottle like me 😅😅😅😅😅
@@puma101076 Maybe if I'm camping, but if I have access to a toilet, I'm using that.
There is a reason that, in the age of indoor flush toilets most people no longer use chamber pots.
Nasty nasty nasty.
Real talk! I have 2 from the hospital still. Kinda gross, but hey, it’s a lot more convenient and safe 😬 That shit can wait to be flushed the next day
@@rjgraddy11 yes
It is my dream to become a prosthetist. I am likely to become an amputee myself and I have always been interested in the medical part behind it. Your videos really help me! ❤️🙋🏼♀️
Yes, part 2 please! I am just starting to share my own journey and it's hard to be so vulnerable, thank you for sharing
Thank you for a serious and sober explanation of amputees. For many years, I considered amputation in my own life. Fortunately, it was not necessary in my life. However, your statement was quite informative and I do like to learn.
You are so spot-on about the mental exhaustion that comes with major life changes!
You are good speaker. If I ever have someone come into my life that finds themselves in the position of requiring an amputation or they have had this procedure recently performed, I will direct them to this helpful video.
Great points! I love that you can share all of this. I think its so informative.
I would say there is a 11th point you didn’t mention, “You get tired of telling your story”. When you say you don’t always mind people asking questions, AS LONG AS IT IS NOT YOUR STORY. As an amputee you tell your story when you want, but if it is constantly solicited, it get incredibly annoying.
Anyway, glad to see you are wearing your leg more and seem to be doing better. Im so proud of everything you have gone through and accomplished. I look forward to more videos!
As someone who has dealt with physical challenges (birth defects) all my life, I have experienced some of what you face(d). But I withdrew from the world for the first 20+ years of my life, while you have embraced it. Thank you Jo, and inspire whomever you choose. You owe us nothing, but you give so much.
Yes yes yes!! I totally agree with the whole list! I am glad I knew about most, but I still fell into the trap of wanting my leg sooner rather than later. But I realize that my leg needed more time to heal. I do not call it a stump or anything other than my leg cause it is what feels right to me. Speaking of which, my leg got all casted up today, get my check socket next Thursday! 💜
Raven Rose u only have one sub u are a genuinely good person u need more subs everybody go sub now SUB ARMY
Wishing you the very best with your test socket, make sure to speak to your prosthetist if it feels uncomfortable and do not leave until it feels right. It’s so exciting getting your first prosthetic but go easy and at your own pace 🤗🤗
@@bluedeva thank you! He is very good at his job so I know he will make sure its done right. My oldest will be with me to crack jokes and learn all about it. He is 32
Raven Rose oh fantastic and having your eldest with you will help as he will keep you entertained 😄Make sure to take both shoes with you - I completely forgot 😂🤣 im sure you’re so excited 🤗🤗
You have no idea how helpful these videos are, finally after 24 years of living without an ankle joint and other birth defects, we've decided below the knee amputation is the way forward. Your videos helped me make this decision, so thank you Jo, you have no idea how much you've helped me and probably many others. And well done for how far you've come already, smashing it 👏
3 and 4..... not an amputee, but my physical disability and mental illness fit these. actually all, in pieces . I have to say, you are doing really well for 3 months post 2nd surgery 👏💪❤️
Thank You!!! Such a needed post. I am also a below the knee amputee from diabetic infection about 4 years ago. Ever single point you made is absolutely correct and needs to be shared along with so many more. Continue please, people need to know. Pain. fear. relationship pressures and strain etc. Appreciate You.
I started watching your videos because Aaron asked for his followers to come over and check you out. Subscribing to a TH-cam channel is a personal commitment so I don't do it without a lot of thought. In fact, I sometimes anguish over letting go of a youtuber that I no longer enjoy their content because I am here for the person as much as their content. You are only the 2nd amputee I know, the first being way back in the day when I worked at Circuit City. A coworker had lost his dominant arm in a car crash a few years before we started working together. I share all this because we get to know a lot of about you but you rarely get to know much about the people that watch your videos and their motives. I simply enjoy you as a person. If I still had a job that brought me to the springs on a regular basis, I feel you'd be someone I'd enjoy hanging around. You are an inspiration but you are also authentic. You share the good, bad, and sometimes the ugly. I am very happy Aaron gave you a shoutout on his channel because following your journey is interesting, inspiring, and I learn a lot. Who knows, one day I may cross paths again with someone that is an amputee and I will be more knowledgeable so hopefully I won't embarrass myself or them. My former coworker got named "One armed Keith" because there were multiple Keith's that worked there and after a month or two no one even thought about the fact he didn't have an arm unless he needed to tie his shoes. So thank you Jo for sharing your journey, it is appreciated.
My dad has a below the knee amputation done in 1979 in communist Romania. I wasn't even born at that time and even afterwards, it was difficult for me to explain it to people. Thank you for sharing your story and speaking about these things.
I've had a 10 hour working day, I'm tired and a little bit ill. But I could listen to you for hours. The way you talk about this is unique and its calming me down. Such an emotional theme but you handle it so confident. Thank you
Your videos are so helpful & informative! I’m a retired ortho nurse with a daughter who’s been an above knee amputee for 35 years, I’ve been shocked over & over again about the myths & misinformation about amputation out there.
Thank You!!!
I love the good vibes that come out from you and your good energies. I wish you the very best!
I became an btk amputee 9 months ago and I've been learning how to use a prosthetic leg for the last 3 months , your videos have been so extremely helpful in my journey so far , keep up the good work and thank you .
Thank you so much for telling people to not compare their experience with other people's. I tried doing that from TH-cam stories and just scared the living heck out of myself! Completely different situation for me bone marrow transplant. Everybody has a different journey. I'm sorry about the speed bumps on your recovery I hope everything straightens out soon!
Do you ever get people come up to you and say “oh I’m really sorry for you”, and if so, how do you feel about it? I’d love to get your honest opinion if you feel comfortable sharing.
It gets real annoying real quick... I’m an amputee, not a charity case. I’ve had enough time to feel sorry for myself (and still have moments) that I don’t need to be reminded about how shitty it is to not have a leg. Not sure how others feel about, but that’s me, personally.
It is uncomfortable when people thank me for my service and I have to tell them I was not in the military. Gets really awkward at times.
@@kikuasov83 but you did serve. As a conversation starter? Sorry Im being silly :)
@ I did not serve in the military and most people do not ask questions until they know me. I dont mind sharing my story and I wear shorts outside of work. People at my work know but wearing pants makes it out of sight out of mind. I also have a lawn and landscape business with my son and ive had some funny stuff happen with that. I believe that people will do what they do but its my opinion that's counts and I dont feel sorry for myself so why should they.
I used a power chair after a car accident. I'd tell car accident,,,, and quickly change the conversation to a I can still do most things. Plus how much I've learned. It was fun educating them. Moved to Denver for a bit where a terrific Dr had helped me. Im able to walk,,, at this moment
Definitely would love a part 2 of your important things to know. You are so very correct on trying not to compare yourself to others who had/has the same procedure. I spent so many months online talking to people and although it was nice to hear their stories, I had to force myself to stop going to online Facebook groups for CRPS or Fibromyalgia. The stories can really scare you and put you into major depression, especially when you are healing or just living with it now.
I love your hoodie!!! If you don't mind me asking where did you find it? I'm looking for Christmas ideas for my 22 year old daughter.
Why arent you running a marathin yet? Well, i couldnt run when i had 2 legs, so pretty sure im not gonna bother when ive only got 1, would be my answer! 🤣
Basically my friend recently had HER leg amputated and I wait for her during the morning so I can help her on the bus (I've known her since I was 3) ( Also I'm a transman -female to male- but dont look it so I do get missgendered) we are sitting on the seats reserved for people with difficulties like pregnant women, elders etc. This 50 year old started screaming at me and my friend as "We're stupid 8 year olds and we need to sit where we are SUPPOSED TO!!" (We are 12 and look it) I tell the lady I'd be glad to give her my seat but then she starts complaining that her daughter (18-25 years old) after about 3 mins of her complaining my friend stand up and pulls up her trousers to her knee. The look of this ladies face, she was MORTIFIED. She ran to the back of the bus and we couldnt stop laughing about it
Thanks for this video. I am a recent amputee and currently in process of setting up a prosthetic consultation for my limb. Thanks again.
I am considering an elective amputation and I can’t thank you enough for sharing these two videos of the 19 things but also your entire journey. We often only hear the good and inspiring. But I NEED to hear the bad and the ugly too. So thank you!
Elective amputation? Why would you do that?
@@chengliu872 poor quality of life due to a motorcycle wreck.
@@ElectiveAmputation: Ah, I see. Idk if I would consider that elective, but good luck on the surgery.
Why elective amputation?
I had to have my R leg amputated due to an infection in my toe that spread to my foot & leg August 3, 2023. Its been 6 mos & surgical wound is almost healed. Gotta be 100% healed before wearing a shrinker then getting a prosthetic. Im so glad i stumbled upon your videos Jo. I am comparing myself to others in healing. I know i shouldn't do that. I cant drive yet. I'll have to complete a road test to get my licence back.. All in good time.
Your video is excellent for anyone with any medical condition, not just amputees. I think it is also good for people who are family members and support members of the team. Thank you.
You should narrate children's books. You have such a calming voice
you sound so professional and eloquent! just had to say that☺️
I am a PTA student and thank you so much for your video! I know this will help me to give patients all the right kind of support that I can.
Jo, It is unfortunate you were so misled about timing. We were told the prosthetic fitting and mastery process is a year from first socket fitting to a final (definitive) socket and leg. In that 12 months, there were 20 or more visits to adjust the fit.
Trying to move too fast was always advised against.
Being exposed has its advantages. People tend to put you at risk by walking too close. Seeing your leg can help them understand the need to not get knocked over. The ability to be an evangelist for the amputee community has been good. The kids are great. A few ready to go comments for the kids can be great. "What do you think of my robot leg?" or "Do you like my robot leg? It's cool isn't it" Being able to talk to strangers about one's leg can be helpful with self-image and coming to terms with those around you.
It was good to see you smile. I hope your socket treats you good.
Loved the statement "Comparison is a thief of joy" 😊
This is a great list. I lost my leg 3 years ago and still have a lot of problems off and on. Two months after my amputation I fell and broke a bone in my good foot. Falls are the worst!! Thanks for your videos! ☺️ keep up the good work!
This was a real eye opener. Thanks for sharing this. I love learning about other people and their trials and triumphs. So interesting. Love from Denmark
I don't know how I got to this video. You seem like a delightful person and you are living your best life.
I’m so thankful you did this, these are awesome tips in preparation for my upcoming surgery in a week and a half. Above the knee amputation, right leg. I already function as if I have one limb so am hopeful that will give me a leg up, lol. But like you, with Chiari, EDS, Dysautonomia, etc I know it’s going to still be a GIANT challenge. I tend to put a lot of pressure on myself as well. So I truly appreciate these tips. They are perfectly helpful! Did you do a video part 2 on this? I’ll have to go look.
While not related to surgery, i moved last year and severaly underestimated how it would effect my mental/physical health. While move sounds pretty basic, the amount of stuff we had, the energy it took for me to get shit done, it all equaled an unexpected mess. I did some pre planning but not enough. Back up plans. Much needed and theres was tears when i realized we didnt have any.
There was this notion that i had stuff ready but the reality didnt fit that and it took a toll
Moving can be very stressful indeed. I remember I had to move suddenly. I had assignments due in university and my husband was in the hospital. And yes, over time the accumulation of stuff is insidious and is overwhelming when it is time to move. Thankfully I had some great support. But I was so exhausted omg.
This is very relatable. I had a big move a few years ago that took a huge toll on me. I was moving from a terrible situation into my own place for the first time in my life but it was all so marred by the PTSD of the previous (and all previous) living situation and how utterly wrecked I was from the move. I dealt with months of depression after. 💕
That's one of those small but oh so important no one bothered to mention to me after they did the hatchet job below the knee. That is, you use 40-50 percent MORE energy to get around or even in a wheelchair. Finally had to search the internet and find it. It's frustrating because if you were an active person before, after you don't realize you have to pace yourself.
Thank you for all of the information,I'm almost healed and you are helping me to understand what is next
I am a Veteran who helps other Veterans with PTSD. And I have fallen off a running horse also... I just got luckier on the landings. I can help people with allot, but amputation is out of my experience set. This video just made my list of of "I can't help you with this directly because I don't live with it" resource videos. I can't tell someone how it feels from the inside... But you can. And the next person who I can help deal with things, that has lost or will lose a limb will get pointed to your channel.
I know you may think this may be a part of the final problem you listed, but it truly is not. The fact that I wanted to tell you this is so you know that you are doing something meaningful. Not grand, inspired, or magnificent in a way to puff you up. But that your effort is worthwhile to others. The fact that you show and discuss the real issues involved in that life will help others. I know from personal experience that helping others can be the best way to help yourself.
So take it from a grumpy, old vet who tell many of a younger generation that "I have boots older than you..." while beating them at various games.
You are doing something truly useful. I won't tell you to be proud, because that is a bad thing; but have... satisfaction that what you has value. So if you get value out of sharing this with others, know that it is useful to others.
And if it isn't... Well... Stop and don't worry about it. Do what you think is best and move on. The world doesn't own your life. And you are 100% correct about comparing your journey to the journeys of others.
And those boots are not older than you. (They were issued to me when you were 5... but you get the point.) 😉 Though I would happily (and jokingly) offer to introduce them to some of the people you mentioned.
Just thought you might like a bit of the encouragement you are offering others. Cheers.
What an honest video. Explaining some of the things you wish you had been aware of before surgery. People should be more honest with those who are going to have surgery and explain everything a bit better too.
Hello I am a new below my left knee amputee, I love all your videos they're very educational, i researched below knee amputation and that's how I found you, always keep your head up stay strong and positive, I just got my temporary prosthetic and impressed my prosthesis I started walking immediately, once again thank you for your videos take care God bless you, you are truly amazing and one of God's greatest angels 😇 ❤ 💖 💙 ♥
PSA: being “disabled” does not automatically make you a superhero. It makes you a regular human being who just so happens to be “different” and that’s okay.
Wait a minute! So disabled people arent here to give able bodied people inspiration?
Thanks for sharing this top 10. There's a lot of things we don't realize (or take for granted) until our life changes. I'm sure this video will be useful for a lot of people!
Great video Jo. It was a very eye opener to hear and see it from ur perspective.
Many years ago, when my children were small, I tried to teach them to accept the people in the world around them regardless of how different they might seem. I'm proud to say they took that lesson to heart.
When my boy was four we were out for the afternoon. A making mail deliveries was on his route. He was roughly my father's age and sported a hook prosthetic. My son could not take his eyes off the mechanical device and I was caught between wanting to educate him and not putting the man in an awkward decision. Finally, I decided to take the problem head on. Respectfully I introduced myself and told the man my son didn't understand the equipment. If we were not being offensive would he mind taking a few minutes to explain his situation in any way that was comfortable for him so that my son would not grow up thinking the loss of a limb was somehow a thing to be ashamed of. His eyes lit up. Turns out he was a WWII veteran who had lost the limb (I believe--it's over half a century ago) on D-Day. He showed my son the device, opened and closed the twin hooks to show how they could grasp, and allowed my son a peek at the complicated series of leather straps that kept it in place. My son took it all in with the seriousness only a four-year-old boy can muster. I was proud of how he dealt with it, asking very intelligent questions and even shaking "hands" with the gentleman. I was so proud of him--and of myself for finding a good way to deal. He does not stare, but neither does he look away.
Hello Jo,
Had my Blk amputation just over 3 weeks ago.
Blood clot issues caused all my health problems.
Been doing limited physical therapy so far. Waiting to go to Rehad.
Thanks for the information.
I'm having a lower leg amputation on 10/1/2020. I love you have researched so much of what goes into the amputation before, during and after the procedure. I'm very aggressively exercising and doing a lot of specific exercises to build myself up to prepare for life after surgery. You are an inspiration, I know that you don't like to hear that but you have helped me a lot! Thank you! And I look forward to seeing your informational videos in the future! Keep up the great work!
Hi Mark, I’m watching this video today, 10/12/20 hoping you have had a smooth procedure and looking after yourself x
I'm not totally sure why the TH-cam algorithm recommended me your videos, but I really like that you are sharing your story with us. I'm no amputee, but I sometimes asked myself how life would change after such an impact, since I'm a very curious person. I would never ask an amputee, I do consider this as disrespectful. So your videos are great to feed my neverending desire for knowledge.
Just some question: Had there any a time when you regretted the decision?
Another great video Jo! I really liked both #5 (advocating for yourself) and #6 (mental fatigue) as I can really identify. Anyone in our situation really needs to advocate for oneself as I've discovered that the medical professionals we work with really need our feedback as badly as we need their treatment and advice since it's not a one-treatment-fits-all world. Regarding mental fatigue, I find that the constant problem solving I do every day really keeps me on my toes but then makes me quite tired by the end of the day. I'm hoping all this problem solving will stave off memory loss in my receding years, lol! Also I'm hoping that in a few years many of these puzzles will have been solved and that I can devote more time and energy to regular living and personal development. Thanks Jo!
This is a great list Jo! Very interesting and thorough and it will help people learning about amputation and how it actually effects us
Thank you SOOO MUCH for this video!!! I sustained a TBI 4 years ago and thankfully I got a TON of support, but I ALSO feel like I have to be *inspirational* ALL the time now...and do *incredible* things now!!! (YOU ARE ***NOT REQUIRED*** TO BE ANYONE’S INSPIRATION!!!) You saying that...totally changed me life!!! (Yeah...I know...sounds dramatic, but I’ve *struggled* with it for YEARS!!!) THANK YOU SOOO MUCH!!!
You are one of the handful of amputees of youtube who are really honest and genuine.
You are such an increadibly bright light in this world. Beautiful inside and out.
Also you really are an inspiration to me because your're strong, intelligent, helping so many people and you have self respect. The things you do are very special.
While I don't have any missing limbs I think this is very helpful to those who do. No a subject that most want to talk about, but something that needs to be addressed. Thank you.
I got this as a random recommendation - go figure. I know you spoke about the pressure of being an "inspiration", but I can't help but admire your tenacity and perseverance. Good for you!
The 2nd amputation was only 3 months ago it feels so much more recent
Did you stay in the hospital the same length of time with your second amputation as you did with the first ?
I hope this list reaches the people who need it, there's lots in here that I wouldn't have considered. It really is a completely life changing thing to go through, physically, mentally and emotionally
To hear Jo's voice, its so hypnotizing.. Nice motivation with golden voice.. Only with hear Jo's voice it already motivated me..👍
Keep the good things done Jo, GBU..👍👍
I was just thinking "I would totally listen to any audibook with her reading"
Thank you so much for the information. I am one of those people that will have to have this surgery one day. The doctors say one day my pain and problems with my ankle with get too bad and my only option is to remove the foot. I am grateful to get this kind of info before to help educate me. thanks
Good list. I’ve learned how to fall, it’s the landings I’m still working on. Went down the other day and there were so many pretty stars to look at. I fell well but messed up the landing and hit head first. I got tangled up in a dog leash. LoL I hope your feeling good today. Want to hear some good advice go inside a nursing home some of those folks have lots of wisdom. Thanks
Thank you for this you tube channel. My wife (Rachel) just found this and we love it. Rachel will be having her left leg removed in a couple of months so this video was extremely helpful for us. I was wondering if you have a similar list of things you wish you had or had not done before the amputation in preparation for the amputation. Also, as a husband, I was wondering how your husband has handled this? I am very supportive of my wife’s decision for the amputation but i am wondering what things that did or did not happen that may have caught your husband by surprise.
Hi Jo, thanks again for sharing, you are looking particularly beautiful and animated in this video. You have made me smile, love from France
Comparison is the thief of joy. Powerful words. I'll remember and share that. Thank you for being open.
I am NOT an amputee, but I did recently go through a significant episode wherein I severely tore my calf muscle as a result of having lymphedema. It took me just about 13 weeks to heal, and I live alone in a condo with 2 flights of stairs. So much of what you said resonated, because it has become clear to me that for future thinking, I will either have to move to a more adaptive home, or be prepared to take into account all of the things you spoke about. It was an exhausting 13 weeks. I admire your grit and resilience! Much respect to you.
I've watched a number of your videos and want to tell you I think they (and you) are terrific. While I have not had an amputation, I have spent many years (most of the 1990s and then some) on crutches, in boots/casts, etc. as the result of a fracture to the dome of the talus which just would not stay healed and nearly a decade of surgeries to try to fix it. And I find a lot of your advice and experiences are just as applicable to someone with a bad orthopedic injury, multiple surgeries, etc., as to the amputee "community." Case in point: thinking in advance of a surgery what you need to be safe in your own kitchen/house/bathroom. I especially want to tell you that your intelligent and honest discussions of health issues, healing issues and dealing with the medical providers is spot on and very, very helpful.
Please do a part 2 to this Jo. Invaluable to us 'pre-amp' viewers. Looking to have btk amp early 2020, and there is so much to prepare for.
Best of luck!!
As a recent amputee i have to agree with quite a bit o what you said. The mental effort is spot on. While luckily I to am an upbeat positive person. learning to mentally deal with the daily challenges can lead to frustration (not depression at least for me). Simple tasks like going to the bathroom, or even getting a drink from the kitchen become much more involved and require effort and a number of steps to make happen vs just jumping up and getting something during a commercial like we all use to.. Learning to adapt to my expectations vs reality as I mentally adjusted to my new circumstances has probably been the toughest part of my journey so far.
But like many, i refuse to give in, ill keep tackling my problems one at a time slowly moving forward, and thank god every day for the blessings he has given me rather than sit miserable and complain about everything i "cant" do.
Thank you for your words of encouragement and keep posting your videos!
Thank you, seasoned warrior! For sharing your thoughts and experiences. Hope you are doing okay and the nubbin is feeling good. If its not, take time for yourself.
All the love from a university student who should really focus on her exams...
My dad has had an amputation last on Friday watching this to get help and focus on the future
Thank you for making this video. Some of these things I knew, some I didn't. When you talk about being an inspiration it seems like that is me with my friends. The thing that inspires me is that I am walking again - and I didn't think I would do that since I now think that I may have to get my own revision surgery. Keep doing what you do Jo, and I'll keep watching.
Hi Jo 👋
Thank you for your vids I had a motorbike accident 7 days ago and since then had two operations. I am now a below knee amputee .
Your videos are very helpful keep doing what your doing ,your such a beautiful.
Really helping through my initial week.
Math x
Hope you are coping okay
I'm not an amputee but sustained a chronic pelvic floor injury in childbirth. I can relate to a lot of these especially the mental aspects. I have the luxury of people not being able to see it in my every day life, which has advantages and disadvantages. I don't draw public attention but people sometimes don't understand why I can't do the things I used to do. There is also a fetish for this particular injury but it's far easier to avoid people stealing your photos or approaching you disrespectfully because basically people don't know unless I tell them. I think your description of the mental exhaustion was spot on. This takes up so much space in me head that I didn't get to enjoy my child infancy because I was dealing with it. Thanks for putting yourself out there!
Your vulnerability especially in #9 was very enlightening and well said. Don’t know how or why appeared on my feed but I wish you only the very best. Blessings and light ❣️
Awh goodness, thank you so much. 💜 I truly appreciate you saying that.
This was so well explained and thought out! Thank you!
#5 is really important. I know more about prostheses than my PCP. I have learned a lot about wounds and ulcers, mostly by trial and error.
Though neither I nor anyone I'm close to has had to face the prospect of amputation, I enjoyed learning from you. :) Thank you for sharing. You give off a sense of being very kind and wise beyond your years.
I'm 7 weeks away from my RBKA surgery. This video has answered so many of my questions. Thank you.
I do understand your thinking. The advandidge with a prostetes fixed direktly on your leg is that it is much easier to put on and you could even feel if you step on a pebble. I do admire your attitude about the loss of the leg.
I had a physical difference until I was 18 years old, and I can tell anyone that staring really sucks. I hated people staring at me, especially since I had no escape from it. Now that I don’t have that difference anymore, it’s so relieving to blend into a crowd. I would suggest to anyone not to stare even if your curious, because it really affected me in a negative way, and I still feel some of those mental effects today.
This may have been the best one you've done! Love Ya!
Great points about making sure your home is liveable! We've moved around quite a bit, and "accessible" seems to take on different meanings in different places...some are hits and others are misses. It's a point that people take for granted, though. If you're frustrated by activities of daily living because of your environment... if the structure limits your ability to do things independently, your feelings will vent somewhere else, or with someone who's not part of the problem
You have a positive attitude. Your videos are great. Thanks.