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Thank you for your interest and comment! I am working on something and will get in touch when the details are worked out ❤️

Let me know if it works for you....It's been a great addition to my tool box but sometimes it doesn't work. Hope I didn't jinx myself 🙃

Pun intended....I feel ya! 🥰

I have the opposite problem, and feel like I am eating all the time 🙃❤️

Also, Dopamine makes me horribly nauseous unless I take it with crackers, then I can tolerate it. But without it I cannot move. Definitely not a feel good drug for me. I need it to live.

I do indeed, but not all the time.

I get dystonia. It can get complicated when you look into it, and sometimes it can be challenging to differentiate. This is a good article on it ❤️ davisphinneyfoundation.org/dyskinesia-dystonia-exercise-parkinsons/

She's a total sweetheart! ❤️

Thank you so much!! ❤️

I totally agree and have almost always had a woman gynecologist but not this time. I saw a woman doctor after his recommendation and she agreed with me. There are other options and the partial hysterectomy was aggressive and necessary for treatment.

Awe thank you! I tried one of the sleeping blankets and it was too heavy for me. I have the naysayer tendency too but I am open always to trying new things, within reason....and I love a nice blanket so I went for it....and I know plenty of people it does help ❤️

@@ParkinsonsWigglesProject actually - I was referring to a grounding mat or a grounding sheet. If you Google it, you’ll see it’s all the rage and I can confirm it truly helps one sleep. TH-cam also has documentaries on it

Thank you...he was nice about it but not everyone will be and it's the after the question, especially if they don't have PD that worried me most.

I am a sweaty mess and it's the worst!!! 🙃 Ice water constantly and if it's really hot out I will put an ice pack on my chair at my back....totally works 🥰

@@spiritsciences2012 I sure have 😂 🩷

I suffered with similar symptoms for 2 years before finding a neurologist that connected the dots and ran the right tests… 5 neurologists! Don’t give up and keep your head up!

​@@lisaclyburn1501man what diesease yiu have

It's very common to see a number of doctors before getting diagnosed. Many of us know how hard it is to be going through what you are going through, I feel for you. It might get old hearing it but you really do need to hang in there, be patient, and find the right doctor....❤️

I love a good pun and thank you for your comment! It's important to let go of the fear and anger, it's one of the best things we can do for our brain...so good thinking 🥰 ❤️

Send an email to jennifer@thewigglesproject.com and when and if something comes together I will drop you a line 🥰 Thank you!

Awe thank you Roger!! 🥰 You too!!

Send an email to jennifer@thewigglesproject.com and when and if something comes together I will drop you a line 🥰 I’m working on it ❤️ Thank you!

Thanks babe! ❤️

Me? Not yet. Curious to see where stem cell research goes 🥰

Thank you Jeremy! ❤️

@@shakinginmyboots1Yes!! I will be in touch ❤️

@@lisacox9062 My hot flashes are insane 🔥 My hair gets so sweaty on hikes it looks like I went for a swim 🙃Thank you! ❤️

@@tombaskin3397 we are connected here and people can email me on my website. I usually respond to every email but sometimes get swamped and delayed 🙃

@@garyc9908 Sometimes yes and sometimes no 🙃 it’s a tool in my toolbox though but ain’t that Parkinson’s for you. What works one day doesn’t the next!!??

I love puns, another thing in common 🙃 Thank you for your comment and subscribing! You too take good care of yourself ❤️

One thing I avoid are articles about the mortality rate of PD. With that said after your comment I took a look to see what was out there. Michael J Fox has had Parkinson's for over 30 years and I know some people who've had it for 20 years. No magic elixir except I do everything I can to minimize stress in my life, a find a way to snap myself out of feelings of sadness and depression. I have an amazing Cognitive Behavioral Therapist who is part of my health care team. If I need help or to find a fresh perspective, she's there for me, and there are few words to express how much help she's been on my Parkinson's journey ❤️ Thank you for your comment!! ❤️

Sometimes 🙃

It depends on what negative consequence you fear. For me it's a quality of life issue and any side effects for me outweigh what my life would be like without C/L. We are all different and must make decisions that are best for us, in consultation with our doctors, and make our healthcare decisions with the most accurate information available to us 🥰

The answer in the video 🥰

Tardive Dyskinesia it’s a side effect

Hvala za vaš komentar! Da, ostati moramo pozitivni in sladki ljubljenčki so tisti, ki to storijo ❤️

Zelo sem vesela, da so ti všeč videoposnetki, ki jih ustvarjam. Najlepša hvala!!! 🥰

Yay!! I am so happy to hear that it works for you too 🥰 Happy to hear you enjoy the videos as well! ❤️

We are all different and it can take time to find what works best for us.

I need to walk and move and can't do it with C/L. Wish it wasn't the case but that's how it is for me ❤️

Thank you Jake!

Dairy has protein which can definitely interfere.

Happy to hear it helps you get moving 🥰

Hi Ann...It's called Inbrijia. It's a dry powder levodopa rescue inhaler that is a life saver for me when I need my meds to work when they aren't ❤️

This may be my longest reply ever....because I have lot's of cuts and pastes but some helpful information I hope 🥰 Asymptomatic: adjective (of a condition or person) producing or showing no symptoms. "infection is usually asymptomatic" noun a person affected by a condition but producing or showing no symptoms of it. "asymptomatics may be potential carriers of the infection" I am a dictionary lover. Getting diagnosed can be tricky, very tricky for some people and "Parkinsonism is a broad term comprising a clinical syndrome and presenting with various neurodegenerative diseases, which manifest with motor symptoms such as rigidity, tremors, bradykinesia, and unstable posture, leading to profound gait impairment." What is interesting is that I recently read in a study that says the following.... "Parkinson disease (PD) is a progressive neurodegenerative disorder pathologically characterized by the loss of dopaminergic neurons in the substantia nigra and the presence of protein inclusions termed Lewy bodies. Previously, the disease was largely considered to be a movement disorder, classically characterized by a tetrad of motor deficits, including resting tremor, bradykinesia, postural instability, and rigidity of the neck, trunk and limbs. However, PD is now understood to be a multi-system disorder with notable neuroinflammation and immune dysfunction that has been implicated in the development of various non-motor symptoms such as sleep and gastrointestinal dysfunction, which can precede the disease diagnosis by decades3,4,5." www.nature.com/articles/s41577-022-00684-6#Sec22 It's not only complicated for neurologists but for us regular people trying to understand what on earth is happening to our bodies. My Parkinson's is progressing and I do everything I can to stay mobile and keep moving. I too have seen a PT for Parkinson's and she was great. This was years ago and I am feeling it is time for an update. Thank you for sharing your story and your comment! ❤️

And I am glad to hear that the trick worked for you!! 🥰 Yay!!

​@@ParkinsonsWigglesProject Thank you for your response and information. I am trying to learn as much as I can and your response has added to that search. Keep up the good work and the good fight.

Thank you Tony! A bank of knowledge or toolbox of tricks is a life necessity 🥰

@@ParkinsonsWigglesProject And, Jennifer, a treasure trove big movements may serve us well too :)

Hello! A PD diagnosis is something no one wants to hear....but it was a huge eye opener for me and chance to turn a HUGE negative into hopefully a HUGE positive. I am happy to hear the content I make is relatable, I do hope it resonates and is helpful. Thank you for watching and for you comment ❤️

And protein. All sorts of things can get in the way....One not spoken of often is hormones....big monthly impact on my medications working normally. Thank you for your comment ❤️

@@ParkinsonsWigglesProject we are all different. If I mix proteins with gluten then my body will just not turn on. I eat lots of protein. 3 months ago I switched to a Keto diet and now I feel much better meds work better. But now I notice my Thyroid meds are causing inflammation. So I need to talk to my endocrinologist body and PD symptoms are more under control if I suspend thyroid med. 🤔

Thank you for sharing your story and commenting ❤️

🥰

Oh my goodness, thank you so much for your comment! I like to think I have finally gotten to "that point" which does "take a lot" you are right. I know that the journey is ongoing and am open to it. Thank you for doing the work you do, because my therapist and the questions she asked me, the space she gives without judgement were essential to the place I am. You are doing the same for others and we need more people like you in the world helping people navigate a chronic/serious illness and help them find their path ❤️

I love to hear happy DBS stories, so I am happy to hear your. The keto diet has intrigued me but for most people it's too strict, and from the research I have done should be done under doctor supervision because it's so restrictive, that it can be dangerous. Diet and exercise are HUGE and I know I can do better! 🙃 Thank you for your comment ❤️

I am happy too!! I am collecting all the tricks I can do to keep my body moving 🥰