Are People With Parkinson's Deep Feelers?
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- เผยแพร่เมื่อ 17 พ.ย. 2024
- Could it be possible that people with Parkinson's feel the up's and down's in life more intensely? This is not a bad thing if your answer is yes. I can't not wonder if this is one part, or a main driver that triggers Parkinson's. Especially with YOPD. Deep feelers experience more intense feelings than most people. What percentage of people would fall into the category 'deep feeler or someone with SPS, or Sensory Processing Sensitivity?
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I’m totally sensitive, even more so as times moves on. Interesting thoughts, my tremor triggered during the worst year of my life; lost my job, lost a 7 yr relationship, lost house, started a new relationship with a sadistic person, multiple driving tickets and started a new job. All within a 6 month period.
Snap! I got divorced, diagnosed with PD and made redundant all in 2013. ❤
Oh Kendra that sounds like a terrible year...So sorry that all that happened and Parkinson's too! My diagnosis came one year after opening my pub, after three serious heartbreaks, one of the three fellas I referred to as soul destroyer. I would definitely categorize myself as a deep feeler. Thank you for your comment! ♥
Yes, felt pretty raw after 30 years’ marriage to Jekyll and Hyde, separated 2019 and left my home behind, shared 24/7 care with my sister of terminally ill mum for 6 mont 0:01 hs, totally devastated (traumatised) when same sister turned viciously on me over mum’s will 2021, diagnosed PD same year. No history at all of PD in my family. Have a brilliant son who keeps me grounded (“mum, stop over-thinking”) and makes me laugh.
@@someonenew9442 Thank you for sharing your story! I really believe there is something to it. And it's not just the devastating life events that happens to us but the way in which we feel and process them. Therapy helped get me grounded, I have no kids...and your son sounds awesome! Sometimes we need to be reminded to stop over thinking and have someone in our life who makes us laugh.🥰
Jennifer, just watched this video off the back of pd, poker and loss. A lot of what you describe is so me. I've known for many years that I was an empath, but 8 years into pd (at 57) I am so much a deep feeler. The pd, poker & loss had me in tears.
Thank for the Wiggles project it's great to have a real person talking about life with pd.❤
Hi Craig! It seems to me that when you are a deep feeler you know it….when I read about it and the listed pro’s and con’s it hit me, this is me. I’ve cried many times over the years seeing dead animals on the road….Thank you for your comment, and letting me know you were moved by my Parkinson’s, poker, and loss video, that was a video from the heart ❤️
Very sensitive. I was called “cool as a cucumber” under stress. Held everything inside. Diagnosed with PD one month ago ago. I’m 72.
It's amazing how good we can be at hiding what's going on in our hearts and minds! I should work on how to welcome people to the PD club, by saying that you should know that there is a great community out there and that you aren't alone! We are all here for you!!🥰
Thank you!
Thanks for the interesting video Jennifer. I definitely feel certain things more and differently more than I used to. I have to be careful when I'm off and my mind wanders.
Thank you David! Most people don't fall into this "category" and I say that lightly because as you say there are some things that some of us feel more than others.
Movies make me cry. I'm a deep thinker for sure.
Thank you Tony!
Yes, I'm like that, empathic I mean. My dad was overtly so. There was no mistaking it. You just described our lives, in fact. He didn't have Parkinson's, but did have essential tremors like me, and it's possible that he would also have been diagnosed with PD at some point. For all I know, he had PD when he died. But you did mention age. I was 64 when diagnosed so it's not early onset. I don't remember a time when my dad didn't have essential tremors, though, and I had that from an early age as well.
Shingles! Ack! I am so sorry. That's a dreadful thing to go through, and I didn't miss what you said about med interactions. I'm glad you're on the other side of that now. Shingles is torturous.
Something that got my attention was your mention of overthinking, so I'm going to throw some words at it. Are you really inclined to overthink, or is it that you're the one working toward the most accurate conclusions, and you know that resting on superficially-based answers won't suit in the long run. I ask this because in my line of work, fire prevention then occupational safety and health, there are specific methodologies used to arrive at the causal factors of an incident. In safety, the method is called root cause analysis, and it can look a lot like overthinking to the casual observer. Nobody in my office would tell me I'm overthinking at my own desk, though, because they know what I know. If we don't get to the correct causal factors for mishaps we're investigating today, we might be investigating fatalities the next time because we will have missed crucial details. I seem to naturally carry that basic method into my personal life, and that's when somebody is likely to tell me I'm overthinking. I do hear that on occasion.
Basically, I would say that overthinking is having reached the most correct conclusion, but failing to proceed with that information for fear that it still might not be correct. If experience in life tells you that you've gathered all the facts possibly at your disposal, then you have what you should need to conclude. So, you conclude. Then you proceed based on that logically derived conclusion. The person who proceeds before having done that work is only lucky when there's a positive outcome. Jennifer, my entire career existed because of people like that. For that matter, the NFPA and OSHA exist because of people like that.
In short, there is disaster planning, and there's planning to have a disaster. I suspect that you're in the former category, and that's a beautiful thing. If that's the case, it means two entire government agencies exist at the expense of the taxpayers because most taxpayers don't think like you. So, if somebody complains about the expense of those agencies you can reply with a clear conscience, "Ain't my fault."
Thank you Betty! I am totally in the former category. My hubby and I watched our wedding video the other night together and we hadn't seen it a while. And in it I make a joke about how much I plan 🥰 There are diversions I would say, or ruminations at times when my focus may go astray and I spend a bit too much time thinking about something that may lead nowhere. Ideally we'd always make the best use of our time, energy, and mental resources, but it's not how it works. It's an admirable goal 💕
@@ParkinsonsWigglesProject I do have to apologize. I wrote a book instead of a comment. Ugh. There is something I do better, though. It does mean writing more here to explain. I haven’t been able to contribute much of anything anywhere this year, but I’m back in business now. I was looking for a forum for people with PD, and thought you might have one. This idea may not be of interest, but it also may. I know how to start and maintain a subreddit, and if you would like, I would be happy to do the same for the Wiggles Project. It would be your subreddit because it’s your project, and I run the subreddit as you would direct me. Your subreddit, your rules. If you’d like to think about it and find that it appeals, you only have to say the word. This may also not be a good idea for the project. It’s just something I know how to do and can do right now, and I am at your disposal. Okay. That is all.
You might be on to something, Jennifer. I have always felt things very deeply, sometimes to my detriment. I am a musician, and the breakup of a successful band sent me into a spiral a couple of years before my PD diagnosis. I started having symptoms as the band started to falter, and while I don't believe this caused my PD, it's very possible it accelerated the progression. Thx for another insightful video! Glad you are feeling better!
Thank you for sharing your story Jeremy! "Sometimes to my detriment" resonates with me. Even though I have never been in a band, I was almost a music major and love music. So I will say, many musicians are deep feelers....and then the breakup of a band is also a breakup/loss of friends that you've have amazing times with and have struggled with. Band mates form unique and powerful bonds, so to lose them can be equally as powerful! ♥
@@ParkinsonsWigglesProject Well said!
Correct I considered myself a deep healer. Good to hear from you again. Beautiful flowers. Stress and emotional stress caused by parkisons I think.. Beautiful video.
Hi David! I love "deep healer." That's so great :) My hubby is very proud of his petunias, so I will pass along the compliment. I am with you on the stress and emotional stress, and think it's is accumulative. There are a few other suspects, like a head injury, and working for Macy's in the cosmetics department in the toxic chemical stew of perfumes being sprayed all day. Like many things in life we may never have the answer, but this is what I believe 🥰
SPS - oh, those hit quite a few checkboxes. I need to get out and go camping and hiking, a great way to decompress and relax. Please remember the first rule: take care of yourself. Refrain from pushing yourself to get blogs or vlogs out (A three-minute video might have taken three hours).
Thank you Tom! Two days :) My first recording I wasn't happy with so I redid yesterday. I am definitely a DF 🥰
Wow, yes, I have to vote for this. I get millions of thoughts going through my brain every day 😅.
Yeppers! Interesting to ponder and see our own tendencies 🙃
Yup. Highly sensitive person all my life though I didn’t know it was a “thing” until I was in my 50’s. I was diagnosed with PD in 2022. Blessings to you ❤
Thank you for your comment and sharing Carol!! ♥
Totally. I’m most definitely all of the above. And the emotional stress of feeling all of the feels is definitely my trigger for symptoms. Not sure though which came first, PD or all of the feels, as I have genes for YOPD and juvenile PD… I’ve always been very sensitive.
Hi Dizzy! I didn't know there are genes for juvenile PD. I have resisted genetic testing but am finding myself more and more tempted. "All of the feels" I love this because I know exactly what it means 🥰
Doing the genetic testing was helpful for me to come to terms with my diagnosis and blame myself and my parents less for the environmental exposures I’ve had… but I also understand your hesitancy! ❤
Very interesting! I would call myself a deep feeler/ empath. I will check out the articles. I too do a lot of reading and listening to videos like yours.
Glad to hear you are getting over the shingles. My sister had them. She really suffered :) I have PD but she doesn't Looking forward to the results of your poll. Thanks for sharing.
Hi Sharon! Please do check out the articles, I would love to hear your thoughts on them, especially the identical brothers, but they are both really good. Being that they lived in the same environments/place their whole lives they presented researchers with a unique opportunity to investigate. Shingles suck big time, ugh!! Hope I never get them again, unfortunately I found out that my grandfather used to get them quite frequently, though rare. His brother had PD so it's in my family line. Take care!! 🥰
Such an interesting video. I would most definitely consider myself a deep feeler!
Yep! Knowing what I know about you I agree 🥰 and I am there with you!
Yes, I am an empath. I had a brain bleed in 2009. As time has gone by I developed sensitive hearing smell and sensitive to light. I was diagnosed. with Parkinson’s three months ago, I have had it for at least 10 years before diagnosis. After a traumatic loss in 2020 I went through a spinal awakening. I see things differently and other than the difficulties Im ok with my PD. I consider it a New adventure to add to my life path. Which is a 9. I have an extensive history with the hospital but thats boring. Its more a mental stress than physical. Oh yea I’m 65
Keith
Thank you for sharing your story! I hope you're doing good 🥰
I’m a huge empath. I take on peoples feelings. I have to be careful sometimes. I think you’re definitely onto something here. I think heartbreak might have been the spring board; however, I believe two significant head traumas in 2018 time frame sped my PD up.
Me too! A friend just sent me an article about Virginia Representative Jennifer Wexton and I was in tears instantly. She was diagnosed as having PD but it turns out it's supranuclear palsy, a rare and more uncurable aggressive neurological disease. As you have read my short story about the Kumba roller coaster ride at Busch Gardens, I had a head injury as well. Read peoples comments so far....there definitely something here. And for heartbreak it's not just the romantic kind I speak of. Thank you for you comment! ♥
www.washingtonpost.com/dc-md-va/2023/09/18/jennifer-wexton-parkinsons-diagnosis-progressive-supranuclear-palsy/
@@ParkinsonsWigglesProject I had seen an article about her quitting before I read this…didn’t realize it was cause of PD. I’ll pray for her. Thanks for sharing.
I was just recently diagnosed at 43 and you have really helped me navigate through my diagnosis. I really enjoy your scientific approach you take to tackling the vast subjects you speak about. I'm thinking about youtubing my journey. I dont find myself very interesting but my friends tell me I should share. Are there any suggestions you would have as it relates to starting a parkinsons channel?
Matt
Hi Matt and thank you for your comment! You should totally youtube your experience! My advice would depend on how serious you want to get. Good audio is essential I think as is good content. I think those along with being yourself are the bare basics. But I geeked out forever on all kinds of other creator videos to see how to do this and that...how to make thumbnails...what kind of gear would I need....all kinds of rabbit holes for me to go down on how to create a channel and great videos :) Send me one of your videos if you start making them. It's a wonderful way to meet other people with PD and build a community! Hope that helps!! 🥰
I vote yes. I wondered if my sensitivity to my wife and marital problems was the cause of PD.
All the people I know with Parkinson’s have many sensitive deep feeler characteristics. Yes for me too 🥰
I’m very sensitive to suffering of other people, animals and our world.
I am as well. Thank you for your comment!
Jenn, I hope that you got the Shingrix shot, it hurts but it’s worth it. My late wife never got the vaccine, and she paid a terrible price with post-hermetic neuralgia, idiopathic urticaria, and overall terrible discomfort over the last 3-1/2 years of her life.
I got Shingles in October and it was awful!! I also had a bout of pneumonia in June and had just got my flu and covid shot so wanted to wait until all was good to get shingles shot. Even though you get it, apparently it does reoccur in some people! Ugh!
Such an interesting topic. For me though, the thinking and feeling roller coaster is a post diagnosis phenomenon. Pre-PD I was a extremely chilled, low care, black and white kinda chick. Definitely no overthinking and definitely no excessive emotions. To the point that my brother-in-law, who I adore, tagged me correctly, as an “emotional desert “. So I don’t believe I had an emotional “trigger” for my PD.
Post diagnosis though, holy moly…..I said roller coaster at the start….that’s the polite descriptor….it’s been a f$&king tsunami of every emotion, idea and thought I didn’t have in the first 43 years of my life.
I was slammed from every direction and when I thought I’d learned to swim a little, the menopause tsunami hit. And, that was scary. Deep feeling was actually drowning.
So, do I overthink and over feel everything these days? …oh yes……
Do I dream of my carefree, “emotionless” past life? ….oh yes…..
PD is tough, hey?
An interesting topic….🙃
Fascinating!! Do you think the flood of thoughts is coming from the "emotional desert" you once were. Meaning feelings were there all along and PD has inspired you to let go or you've just swung from one extreme to the other? It is an interesting topic and I am so glad that you agree! The upside down smile emoji is one my favorites too, I love it! 🙃Thank you for your comment and beautiful photos!! 💕
I have been pondering this for many a year now and I’ve not got a clear answer really.
But I must say, (keeping my analogy going) in the path of the receding tsunami, there’s a few pluses. You mentioned my photos….the creativity I have uncovered is my life saver and I’ve learned to use it in stressful times as a mindfulness tool.
@@bash547 try separating mood swings from parkinson's vs perimenopause, menopause, or being post-menopausal. I don't think it can be done. Being a deep feeler isn't about mood, it's a deep feeling, I see them as different. Notice depression wasn't on the list. It could be a potential outcome of being a deep feeler. But from the one article I read it's about your nervous system, not mood.
@@bash547LOL…”mood swings” seems a gentle descriptor for the craziness that beset my previously happy corner of the world. And yes, I am aware of the vast list of possible effects of PD, having lived with it for a while now but thanks for the advice. 🙂
As far as the poll, yes, I consider myself an empath.
Thank you!! 💕
Jennifer, when you were figuring out your dosage how did you know you needed more?
My body told me. I began to feel the second I started going off...I moved slower ect. It's the same thing when the med's kick in. I can feel it that second, and I start moving normally. 🥰
Well the same i viEw that some people get allergies to food or things and some dont. Or people who are can do drugs for long time vs people who did drugs once and died. I dont know but im living with Parkinsons im empathetic and love music but miss singing and playing my accordion.
I love music....you should keep singing and playing your accordion, even if only brief or for a moment each day. I love singing ❤
@@ParkinsonsWigglesProject i Try but Its difficult . I hope oneday they ffind a C URE 🥲🥲🥲🥲
Yeah i cught covid twice and along with my parkinsons it was terrible
Covid kicked my butt!
Do you have internal tremors and vibrations while sitting laying down and resting in bed?
I don't. I am not tremor dominant. My issues are more with walking, being slow and stiff.
@@ParkinsonsWigglesProject wow I heard of people who have Parkinson's have internal vibrations and internal tremors while resting
HSPs (highly sensitive people) are those who react more strongly to things such as bright light, sounds (music, screaming) , smells both pleasant and garbage, art work, other’s emotions-MORE deeply than normal people do.😐. This is neither a good thing nor a bad thing. Evolutionarily, HSPs we’re needed to make others aware that saber tooth tiger was nearby, or other potential predators were around. Some of us still carry that gene. There is a book titled, The Highly Sensitive person. It will explain a lot. And yes, I believe you are a HSP. Look at the outside background you chose to make this video.😁. You are awake of beauty and want to be near it.
I am a book lover and will check it out! I think I am a HSP too.... Thank you for your comment 🥰
Yep dèep feeler hsp empath very rich inner life, creative music lover artist and dare i say sometimes psychic😂
Pun intended....I feel ya! 🥰
Nope, not an Empath. (I looked it up). ❤
But are you a deep feeler :) According to the one article I read there is a difference. Deep feelers about 15-20% of population. A true empath they said are even rarer but didn't give a number. Thank you as always for your comments!
bonjour dear
Bonjour! 🥰
I often experience fatigue what about you