Loving Our Parkinson's Body

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  • เผยแพร่เมื่อ 29 ก.ย. 2024
  • Loving Our Parkinson"s Body...even for healthy people loving ourselves can be hard. How do we love our Parkinson's Body if it makes us feel embarrassed or ashamed, or doesn't do what we want it to do. This is a short meditation on loving ourselves Parkinson's and all!

ความคิดเห็น • 48

  • @alittlebitshaky
    @alittlebitshaky ปีที่แล้ว +6

    Being confident and comfortable with yourself can be a battle. And adding PD to the mix is challenging.
    Finding a way to accept and cherish your life, your body and even your disease isn’t easy but it is essential, I think.
    A stanza from a poem I love….
    Try, as best you can, not to let
    The wire brush of doubt
    Scrape from your heart
    All sense of yourself
    And your hesitant light.

  • @robcleminson7062
    @robcleminson7062 ปีที่แล้ว +3

    Thanks for sharing. I can identify with this Dyskinesia and experience it both when I’m wearing off and when I’m coming back on. The on sensation is so nice and I often tell my wife “here it comes” as I’m jerking all over 😀

  • @davidhughes5998
    @davidhughes5998 ปีที่แล้ว +3

    You are inspiring and brave, thanks again.

  • @clicgear100
    @clicgear100 ปีที่แล้ว +2

    You are so brave, and such a good outlook. God bless you.

  • @ericzeidman9845
    @ericzeidman9845 ปีที่แล้ว +2

    God Bless you, you are wonderful

  • @MikeMercury
    @MikeMercury ปีที่แล้ว +2

    so brave lady .....merci for sharing

  • @sharoncribbs7516
    @sharoncribbs7516 ปีที่แล้ว +4

    Jennifer, you are very brave to show this side of PD. When is your dyskinesia the worst, when your meds are running out? I am going into my 3rd year. I havent had the dyskinesia but i do have restless legs. What you are going thru in this video seems to be similar but your whole body is involved. I can only imagine how uncomfortable that is. Do you feel it is a side effect of meds or progression of the disease? Thank you for sharing your life with pd with all of us. ❤ 🙏

    • @ParkinsonsWigglesProject
      @ParkinsonsWigglesProject  ปีที่แล้ว +2

      Thank you Sharon!! Typically when I get it is when I am nearing my next dose time, so when my meds are running out. And I don't always get it either...some days it's very mild to none or other days it's more intense 🥰

    • @stellasweden
      @stellasweden ปีที่แล้ว +2

      So brave❤ And you are a beautifull young lady, I can see it❤ Havnt got my diagnos yet bcs I have panicattack just thinking to go to a doctor bcs think every one will look at me and said that Im drunk. I have just start with vitamin B1 bcs many doctors on TH-cam recomended it. Thanks from Sweden for the video ❤

    • @sharoncribbs7516
      @sharoncribbs7516 ปีที่แล้ว +1

      @@stellasweden I am taking B1 as well. I hope it helps you.

    • @toryberch
      @toryberch ปีที่แล้ว +2

      ​@@stellasweden hey Stella
      I'm sorry for your anxiety holding you back. I too know what panic attacks can do. Is there someone who can go with you for moral support? You could conceal/hide your face some with a hat and scarf i knew someone with agoraphobia and that's what she did. If you do have Parkinson's, meds will calm your anxiety down and make life more manageable. Wishing you the best 😊

  • @SDWP
    @SDWP ปีที่แล้ว +2

    I love this! We have to treat ourselves like we'd treat others....with respect and love. You're absolutely right...we all have something amazing to offer. Love the way you did this video....very cool.

    • @ParkinsonsWigglesProject
      @ParkinsonsWigglesProject  ปีที่แล้ว

      Thank you so much!! & love and accept our Parkinson's body....our bodies, our selves 🥰

  • @MikeMercury
    @MikeMercury ปีที่แล้ว +2

    accepting the way we are is real important

  • @leonardgebhart2064
    @leonardgebhart2064 ปีที่แล้ว +2

    Thanks so much for this 🤗🥰

  • @JeremyMcdonald
    @JeremyMcdonald ปีที่แล้ว +3

    What a fantastic perspective! We all need to hear this, Jennifer! Thx for being so vulnerable 😎

  • @andyfletcher3150
    @andyfletcher3150 9 หลายเดือนก่อน +1

    For some people social nudity is a great way to learn about body acceptance and loving the skin you're in. Through nudism you learn that without our clothes we are all the same no matter what shape. This is expecially true for those with Parkinson's. Accept your body as it is.

    • @ParkinsonsWigglesProject
      @ParkinsonsWigglesProject  9 หลายเดือนก่อน

      Yes absolutely accept your body as it is! For each of us our paths are different in how we get there. But here in California there are lots of hot springs people go to and most are clothing optional. In these safe spaces it becomes very clear we are all human, come in many shapes and sizes, and life goes on 🥰

  • @jimmcconnell7328
    @jimmcconnell7328 11 หลายเดือนก่อน +1

    Your wriggling seems so much worse. Is this due to the meds wearing off or the condition itself? I’m a senior and I feel my body is starting to let me down a little more each year that passes. My morning stiffness is worse and so is my balance issues. I’ve been trying out B1 and it does help with the fatigue. There is always the concern about depression coming into the picture. I can’t take antidepressants due to advancing kidney disease. How are you doing ? How do you keep your spirits up?

    • @ParkinsonsWigglesProject
      @ParkinsonsWigglesProject  11 หลายเดือนก่อน

      Hi Jim! Yes in this video my dyskinesia is at its worst. I am totally fine and not like that all the time. This is my not a doctor answer about it. As you know it is complicated but it happens from peak dosing of carbidopa/levodopa, I have too much in my system. What I have also noticed that impacts whether or not I am dyskinetic is stress, have I had any alcohol (even the night before sometimes) caffeine, and hormones. How do I keep my spirits up? Great question, I am actually going to make a video about that today :) I do my best to live in the moment and not look to far ahead...when I am having a rough day I don't let it sink in or get to me....I focus on what I can do and also look to create....I love walking with my dog. I also have a network of people with Parkinson's friends who I can turn to. If I am really struggling I make an appointment with my therapist 🥰

  • @LifewithParkinsons
    @LifewithParkinsons ปีที่แล้ว +2

    Hi Jennifer thank you for those positive thoughts and excellent reminders❤🎉😊

  • @viproo6302
    @viproo6302 ปีที่แล้ว +2

    ❤‍🩹❤❤‍🩹

  • @meganransmeier
    @meganransmeier ปีที่แล้ว +1

    This is beautiful! Thank you for sharing so vulnerably with this community.

  • @Longshanks1956
    @Longshanks1956 ปีที่แล้ว +1

    Sending you much love.❤

  • @bonnieschwartz8087
    @bonnieschwartz8087 ปีที่แล้ว +1

    You said it perfectly... once again. A reminder we all need at some point in life, and at whatever point we are in this PD process. 💜

  • @MikeMercury
    @MikeMercury 5 หลายเดือนก่อน

    youre still a lovely person

  • @nickmaffei5123
    @nickmaffei5123 ปีที่แล้ว +2

    Go Girl! You are. Still attractive.

  • @TheMuseCoffeeco
    @TheMuseCoffeeco ปีที่แล้ว +2

    Hello, how do I reach out to you directly?
    Can you message me?