It's brutal!!! Did they tell what they think it is? I took 4 covid home tests all negative. They told me it was a respiratory infection, nothing about the flu, or rsv, and gave me a prescription for antibiotics and prednisone. Took care of it, but not quite 100% but way better than I was. We are going to better indeed!! 🥰 Thank you for your comment!!
I’ve been in my wheelchair all last week due to bad involuntary movements and just trying not to fall. I’m looking forward to an upcoming better week,🙏🏻 @@ParkinsonsWigglesProject 0:59
Hi Jennifer, I just went through something similar with two Emergency Room stops and three hospital stays in a row. I hope you find out what's behind your medical issues and get back to your normal baseline soon. For me, what started out as an out patient procedure (hernia repair) ended up with a month in the hospital and as you are fully aware of, Parkinson's makes it more of a challenge. I started putting together little videos about my Parkinson's journey. I have only been home a few days. When I feel better, I will post a video about this past month. Take care.
Oh my goodness a month in the hospital is serious! It's all a reminder that our situations can change fast. What you think is a little something can turn into a big something. Sorry to hear about your challenges but it's good you are back home....so important to be home! You take care too ❤️
I understand the frustration when you have symptoms and they can tell you what it’s “not” but they can’t say what it “is.” Stay well. Very nice artwork, btw.
Hi there New subscriber glad to see U back! Can I ask what your medication regiment is after 10 years in. I was diagnosed about 2 /3 , years ago and medicine is...... It's still a challenge . .. I know everyone is different so just curious . Take care
Thanks for subbing! In this video I got into great detail about my med situation after 10 years in this video. Also it took me about 3 or so years to get used to my Parkinson's body and how my body responds to the medications... th-cam.com/video/AL-86-dZDi4/w-d-xo.html
I’ve missed seeing you here, Jennifer. Sorry this has hung on so long for you! Best wishes…..🫶 Not much change for me except struggling with hip joint pain which interferes with my walking and hiking 😑 Hang in there and stay positive…❤the collages!!! What a great creative outlet.
Sorry to hear about the pain....no fun at all, and especially if it interferes with your walking and hiking! Staying positive for sure and I am happy to hear you love the collages I've made. You be positive too and take care ❤️
Sunday morning here in Kentucky ! So glad you are on the mend! My husband has Parkinson's and we just came across you a couple weeks ago . He needed to hear your story so bad . He was diagnosis 10 years ago when his only symptom was a stiff shoulder . We didnt want to believe it. He barely took any meds then now fast forward, we got covid in 2021 and it seems like everything changed. Now he has more off times then not. He is do sad , i just want to help and feel hopeless😢. You are such an inspiration thank you thank you! Praying for you !
Hi Patty....Thank you so much for you comment and sharing you and your husbands story! I hope this comes across in my videos but I am a big advocate of finding your mental health ninja...this is for everyone but especially us folks with Parkinson's, our brain needs us to find the silver lining, and there absolutely is one. I needed a cognitive behavioral therapist to help me find mine. Sure I have some days of sadness, but I have the tools and my therapist that I can reach out to for help. My husband wants to help me too, and your husband is so lucky to have you. Don't feel hopeless, remember that you are there for him, and love him.....this truly is everything! ❤️
Good seeing you again! So glad you're doing better. Too bad they couldn't figure out what was bringing you down. Looking forward to seeing more of you!
@ParkinsonsWigglesProject When I was first diagnosed with PD, my neurologist prescribed Azilect (rasagaline) which resulted in dizziness and a worse feeling than had I not been on medication, apparently because it shouldn’t be given to people who have a leaning towards low blood pressure. I stopped taking it of my own accord after two weeks because of the vertigo. Orthostatic hypotension is a symptom of PD. I sometimes get it still when walking up stairs quickly.
Hello my friend, I miss you sooo much. I was prescribe Entacapone ion Novembre 24, 2023 . At the beginning I decided not to take it. December 24,2023 I was having too much rigidity on my left side. Especially, at bedtime. Then I decided to start this med but I was skeptical about it. After, 12 weeks I stopped bcb of the vertigo and headache every day. The pharmacist decided to send a memo to my MDS to chg Entacapone for Rasagiline. Now, it’s about 12 weeks with this med but I have dizziness and I have flustuattion with my blood pressure. No Orthostatic hypotension. Since they add this meds I been experiencing more pain. I was diagnosed with pd in May 2019. Which meds are you taking now for pd?❤❤❤
I hope you feel completely well very soon. Sitting in the morning sun, before it gets too warm, can really loosen things up. It looks like you’re doing that already. Also, I’ve noticed more people wearing masks. Not like during Covid but a noticeable increase. So, something is going around. Thank you for being that ray of sunshine.
Yeah, if I’m honest with myself, I reckon even the slightest hiccup/stressor/illness does cause a progression or an alteration in my PD. Sometimes I can ignore it but mostly not. I think my radar for such things is becoming super sensitive.
I am so with you on my body becoming super sensitive! Only someone with Parkinson's knows what is meant when you say...."I feel things in a deep and completely different way." ❤️
Hello from Texas. Summer is in full force here. Have you tried exercising? I was exercising a few days a week & then saw a trainer at the gym & she increased my regimen. I use the treadmill to get my heart rate 60-80% max for 40 min, 3-4 times a week. Then I do strength training 3-4 times a week 3-4 sets each exercise. I do balance exercises throughout the day. I can share my google doc that tracks my exercises. I wouldn't call it a miracle but it's close. It's fairly intense but it levels out my symptoms. Also, exercise is nature's aphrodisiac. :-) Edit. I don't use caffeine & rarely more than 2 alcoholic drinks in a week. I think these are very important.
Hi Ron! I go for a morning hike with my dog pretty much everyday. Different trails offer me longer and more intense hikes, but even the shortest one is 30 minutes. They are all uphill and some steeper than others. Exercise and a healthy diet are KEY!! I quit caffeine as well but will have a cup of coffee maybe once a month, if that. A cold beer is still a weakness of my and I indulge...still working on that one 🙃
Do you think that the tightness in your chest might have been a panic attack? I often have a massive anxiety spike a few days before I'm officially sick, it's kind of an early warning sign now.
It's possible....I hadn't really considered it because fortunately I haven't had any issues with panic attacks. But this doesn't mean that I won't begin to have them....so it's possible. Thank you Nathan!! 🥰
Happy to have found you. I am a 75-year-old male with Parkinson's for 8 years. Stay well. Mike
Happy you found me as well! Thank you and take care Mike ❤️
Wow! That sounds rough, Jennifer! Glad you are back!
Thank you Jeremy! Glad to be back 🥰
Hello, from Auckland New Zealand. Thankyou so much Jennifer for update on progress. Best wishes for getting over the 'bug'
Thank you so much! I am on the mend and getting back into the swing of things 🥰
Thanks for sharing❤❤
Thank you caring ❤️🤗 (it rhymes, lol, and true 🙃)
It’s rampant up here. I’m week 6 and just am starting to be able to think straight.
Saw primary doc yesterday, doing inhaler. Gotta get better.❤️🩹
It's brutal!!! Did they tell what they think it is? I took 4 covid home tests all negative. They told me it was a respiratory infection, nothing about the flu, or rsv, and gave me a prescription for antibiotics and prednisone. Took care of it, but not quite 100% but way better than I was. We are going to better indeed!! 🥰 Thank you for your comment!!
Sorry to hear and hope you pull out of this all very quickly.... eat healthy and push yourself to exercise! Prayers
Thank you so much ♥
Hi Jennifer so glad to hear you are on the mend
Thank you David!! ❤
Thank you for the update and hope you feel better soon. Remember to do things at your speed. Rest !!!😊😊
Thank you Roger! Yep, been taking it slow and lot's of rest. One thing for sure is I've gotten lot's of rest 🥰
I’ve been in my wheelchair all last week due to bad involuntary movements and just trying not to fall. I’m looking forward to an upcoming better week,🙏🏻
@@ParkinsonsWigglesProject 0:59
Fabulous to see you back Jennifer 🥰 Hope you start feeling even brighter soon - sending you healing vibes from Australia ❤
Thank you for the healing vibes 🥰 On the mend!
Hi Jennifer, I just went through something similar with two Emergency Room stops and three hospital stays in a row. I hope you find out what's behind your medical issues and get back to your normal baseline soon. For me, what started out as an out patient procedure (hernia repair) ended up with a month in the hospital and as you are fully aware of, Parkinson's makes it more of a challenge. I started putting together little videos about my Parkinson's journey. I have only been home a few days. When I feel better, I will post a video about this past month. Take care.
Oh my goodness a month in the hospital is serious! It's all a reminder that our situations can change fast. What you think is a little something can turn into a big something. Sorry to hear about your challenges but it's good you are back home....so important to be home! You take care too ❤️
good to have you back on the channel.
Thank you Andrea! Good to be back and finding my rhythm again 🥰
Happy you are feeling better..❤we miss your videos.... be well and have a wonderful Summer 😊
Hi Charles! Will find my video making rhythm again for sure 🥰 Thank you for your comment ❤️
Thanks for posting. Take care of yourself
Thank you Terri! 🥰
I understand the frustration when you have symptoms and they can tell you what it’s “not” but they can’t say what it “is.” Stay well. Very nice artwork, btw.
Hi Ken, thank you!! It’s soooo frustrating but the antibiotic and prednisone I was given on the second visit worked 🤗 Feeling sooo much better!
Good to hear from you, hope the illness clears up. Its difficult when an illness can't be identified. Keep the posting coming 😊
Difficult and frustrating….ce la vie 🙃 Thank you David! 💕
Hi there
New subscriber glad to see U back!
Can I ask what your medication regiment is after 10 years in. I was diagnosed about 2 /3 , years ago and medicine is...... It's still a challenge . .. I know everyone is different so just curious .
Take care
Thanks for subbing! In this video I got into great detail about my med situation after 10 years in this video. Also it took me about 3 or so years to get used to my Parkinson's body and how my body responds to the medications... th-cam.com/video/AL-86-dZDi4/w-d-xo.html
Thanks so much.! I appreciate the response back.
I hope you feel better soon ❤
So much better than I was....thank you so much ❤️
I’ve missed seeing you here, Jennifer. Sorry this has hung on so long for you! Best wishes…..🫶
Not much change for me except struggling with hip joint pain which interferes with my walking and hiking 😑 Hang in there and stay positive…❤the collages!!! What a great creative outlet.
Sorry to hear about the pain....no fun at all, and especially if it interferes with your walking and hiking! Staying positive for sure and I am happy to hear you love the collages I've made. You be positive too and take care ❤️
Sunday morning here in Kentucky ! So glad you are on the mend! My husband has Parkinson's and we just came across you a couple weeks ago . He needed to hear your story so bad . He was diagnosis 10 years ago when his only symptom was a stiff shoulder . We didnt want to believe it. He barely took any meds then now fast forward, we got covid in 2021 and it seems like everything changed. Now he has more off times then not. He is do sad , i just want to help and feel hopeless😢. You are such an inspiration thank you thank you! Praying for you !
Hi Patty....Thank you so much for you comment and sharing you and your husbands story! I hope this comes across in my videos but I am a big advocate of finding your mental health ninja...this is for everyone but especially us folks with Parkinson's, our brain needs us to find the silver lining, and there absolutely is one. I needed a cognitive behavioral therapist to help me find mine. Sure I have some days of sadness, but I have the tools and my therapist that I can reach out to for help. My husband wants to help me too, and your husband is so lucky to have you. Don't feel hopeless, remember that you are there for him, and love him.....this truly is everything! ❤️
Just in case you and your husband haven't seen this video this might be helpful 💕 th-cam.com/video/AL-86-dZDi4/w-d-xo.html
Glad you’re feeling better. You and Jeremy are my faves.
Thank you so much Jack! Jeremy is one of my fav's too ❤️
Thank you for your posts always! You touch on every subject in a real and genuine way.
Awe thank you so much!! 🥰❤️
Hello from Germany, hope you get well soon. Probably a glas of Guinness would work as a kind of medicine. Cheers ❤
Hello and thank you! I bartended today and had a Guinness 🥰 Cheers
Good seeing you again! So glad you're doing better. Too bad they couldn't figure out what was bringing you down. Looking forward to seeing more of you!
Thank you! I am so glad to be doing better too and frustrating they couldn't figure it out.....it happens 🙃❤
Were the doctors able to improve the situation or was it just time which improved the situation?
Both. I was prescribed an antibiotic and prednisone which really took care of things thankfully. And lot's of sleep.
@ParkinsonsWigglesProject When I was first diagnosed with PD, my neurologist prescribed Azilect (rasagaline) which resulted in dizziness and a worse feeling than had I not been on medication, apparently because it shouldn’t be given to people who have a leaning towards low blood pressure. I stopped taking it of my own accord after two weeks because of the vertigo. Orthostatic hypotension is a symptom of PD. I sometimes get it still when walking up stairs quickly.
Hello my friend, I miss you sooo much. I was prescribe Entacapone ion Novembre 24, 2023 . At the beginning I decided not to take it. December 24,2023 I was having too much rigidity on my left side. Especially, at bedtime. Then I decided to start this med but I was skeptical about it. After, 12 weeks I stopped bcb of the vertigo and headache every day. The pharmacist decided to send a memo to my MDS to chg Entacapone for Rasagiline. Now, it’s about 12 weeks with this med but I have dizziness and I have flustuattion with my blood pressure. No Orthostatic hypotension. Since they add this meds I been experiencing more pain. I was diagnosed with pd in May 2019. Which meds are you taking now for pd?❤❤❤
Self care is so important and takes many forms. I like to catch up on what's new in your life. Stay well.
Thank you Jack!! You stay well too ❤️
I hope you feel completely well very soon. Sitting in the morning sun, before it gets too warm, can really loosen things up. It looks like you’re doing that already. Also, I’ve noticed more people wearing masks. Not like during Covid but a noticeable increase. So, something is going around. Thank you for being that ray of sunshine.
Hi Kathie! Thank you for your kind words 🥰 I am on the mend and hopeful. Stay safe out there, something is definitely going around.
I watch Jermey’s channel too. Great rock n roller. 🎺🎸🎷🥁🎤
Jeremy is awesome!! 🥰 Total rock n roller!
Glad you're feeling better, Jenn!
Me too and thank you!! ❤️
happy youre getting better
I know jeremy just like you its a great person
Awe thank you!! 🥰
kiss from France 🇫🇷
Merci 😘
Yeah, if I’m honest with myself, I reckon even the slightest hiccup/stressor/illness does cause a progression or an alteration in my PD. Sometimes I can ignore it but mostly not. I think my radar for such things is becoming super sensitive.
I am so with you on my body becoming super sensitive! Only someone with Parkinson's knows what is meant when you say...."I feel things in a deep and completely different way." ❤️
Exactly! It’s impossible to explain it sometimes. Even to myself!
For me I feel a great fatigue and my balance is not great .....
I have the fatigue thing going on as well....have you been sick/under the weather too?
@@ParkinsonsWigglesProject
not really
Hello from Texas. Summer is in full force here. Have you tried exercising? I was exercising a few days a week & then saw a trainer at the gym & she increased my regimen. I use the treadmill to get my heart rate 60-80% max for 40 min, 3-4 times a week. Then I do strength training 3-4 times a week 3-4 sets each exercise. I do balance exercises throughout the day. I can share my google doc that tracks my exercises. I wouldn't call it a miracle but it's close. It's fairly intense but it levels out my symptoms. Also, exercise is nature's aphrodisiac. :-)
Edit. I don't use caffeine & rarely more than 2 alcoholic drinks in a week. I think these are very important.
Hi Ron! I go for a morning hike with my dog pretty much everyday. Different trails offer me longer and more intense hikes, but even the shortest one is 30 minutes. They are all uphill and some steeper than others. Exercise and a healthy diet are KEY!! I quit caffeine as well but will have a cup of coffee maybe once a month, if that. A cold beer is still a weakness of my and I indulge...still working on that one 🙃
Do you think that the tightness in your chest might have been a panic attack? I often have a massive anxiety spike a few days before I'm officially sick, it's kind of an early warning sign now.
It's possible....I hadn't really considered it because fortunately I haven't had any issues with panic attacks. But this doesn't mean that I won't begin to have them....so it's possible. Thank you Nathan!! 🥰
Hello I miss you
Ooooo, I've been missing everyone too!! Getting back into the swing of things 🥰 Thank you!!