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Endoemmm
เข้าร่วมเมื่อ 19 ธ.ค. 2011
Welcome to my channel! This is a safe space for those who are looking for support or education around endometriosis, or just a friendly face to share life chapters with! My channel is a mix of my chronic illness journey and everything in between!
Whether you’ve been formally diagnosed with a chronic illness or are on your way towards finding answers, know that you are not alone in what you’re going through!
*not providing medical advice - just a channel created by a patient who shares her personal endo journey and the research she’s found🤍
Whether you’ve been formally diagnosed with a chronic illness or are on your way towards finding answers, know that you are not alone in what you’re going through!
*not providing medical advice - just a channel created by a patient who shares her personal endo journey and the research she’s found🤍
02. Endometriosis Fertility Index + Stages of Endometriosis and Impact on Fertility
Hi everyone! Welcome to the second episode of my series, Endometriosis and Fertility. In this video, I explore the Endometriosis Fertility Index (EFI)-a critical tool for understanding how endometriosis impacts fertility and pregnancy chances.
The video covers everything you need to know about the EFI, including how it’s calculated, what the scores mean, and the role of factors like ovarian function and the staging of endometriosis (minimal, mild, moderate, or severe) in determining fertility outcomes. If you’re navigating endometriosis and trying to conceive, this video provides essential insights to help you take control of your fertility journey.
Key Topics in This Video:
What is the Endometriosis Fertility Index (EFI)?
How is the EFI scored, and what do the scores mean?
The impact of ovarian function on fertility with endometriosis
How the staging of endometriosis (minimal to severe) influences fertility
This episode is perfect for those trying to conceive (TTC) with endometriosis, researching fertility treatments, or learning more about how endometriosis affects pregnancy chances.
Helpful Resources:
#EndometriosisFertilityIndex #EndometriosisAndFertility #TryingToConceiveWithEndometriosis #EndometriosisAwareness #TTC #FertilityJourney #Endometriosis #OvarianReserves #StageofEndometriosis
Medical Disclaimer
The information provided in this video is for educational and informational purposes only and should not be considered medical advice. I am not a doctor, fertility specialist, or healthcare provider. Always consult with a qualified healthcare professional before making any decisions regarding your reproductive health, fertility treatments, or medical care. If you have concerns about endometriosis and its impact on fertility, please speak with a doctor or specialist that you trust who can provide guidance tailored to your individual health needs.
Video links:
Fertility and Endometriosis - Episode 1: th-cam.com/video/LyvF2DmeAUA/w-d-xo.html
Stage of Endo: th-cam.com/video/YRZQmCYVTZo/w-d-xo.htmlsi=lXf_1dDeTjPceGHS
Research:
www.bing.com/search?q=endometriosis+fertility+index&cvid=71704164ffa14f779a9b49da9e874bee&gs_lcrp=EgRlZGdlKgkIABBFGDsY-QcyCQgAEEUYOxj5BzIGCAEQABhAMgYIAhAAGEAyBggDEEUYOzIGCAQQRRg7MgYIBRAAGEAyBggGEEUYOTIGCAcQRRg9MgYICBBFGDzSAQc4MzRqMGo0qAIIsAIB&FORM=ANAB01&PC=U531
Lee D, Kim SK, Lee JR, Jee BC. Management of endometriosis-related infertility: Considerations and treatment options. Clin Exp Reprod Med. 2020 Mar;47(1):1-11. doi: 10.5653/cerm.2019.02971. Epub 2020 Feb 24. Erratum in: Clin Exp Reprod Med. 2020 Jun;47(2):153. PMID: 32088944; PMCID: PMC7127898.
Bishop LA, Gunn J, Jahandideh S, Devine K, Decherney AH, Hill MJ. Endometriosis does not impact live-birth rates in frozen embryo transfers of euploid blastocysts. Fertil Steril. 2021 Feb;115(2):416-422. doi: 10.1016/j.fertnstert.2020.07.050. Epub 2020 Sep 21. PMID: 32972732.
Steiner N, Shrem G, Tannus S, Dahan SY, Balayla J, Volodarsky-Perel A, Tan SL, Dahan MH. Effect of GnRH agonist and letrozole treatment in women with recurrent implantation failure. Fertil Steril. 2019 Jul;112(1):98-104. doi: 10.1016/j.fertnstert.2019.03.021. Epub 2019 May 24. PMID: 31133384.
Zhong C, Gao L, Shu L, Hou Z, Cai L, Huang J, Liu J, Mao Y. Analysis of IVF/ICSI Outcomes in Endometriosis Patients With Recurrent Implantation Failure: Influence on Cumulative Live Birth Rate. Front Endocrinol (Lausanne). 2021 Jul 30;12:640288. doi: 10.3389/fendo.2021.640288. PMID: 34393990; PMCID: PMC8362597.
Piedimonte S, Volodarsky-Perel A, Tannus S, Tan SL, Dahan MH. Pretreatment with a gonadotropin-releasing hormone agonist and an aromatase inhibitor may improve outcomes in in vitro fertilization cycles of women with stage I-II endometriosis. F S Sci. 2020 Aug;1(1):98-103. doi: 10.1016/j.xfss.2020.06.005. Epub 2020 Jul 4. PMID: 35559744.
Jaafar SH, Sallam HN, Arici A, Garcia‐Velasco JA, Abou‐Setta AM. Long‐term GnRH agonist therapy before in vitro fertilization (IVF) for improving fertility outcomes in women with endometriosis. Cochrane Database Syst Rev. 2019 Jan 8;2019(1):CD013240. doi: 10.1002/14651858.CD013240. PMCID: PMC6353287.
The video covers everything you need to know about the EFI, including how it’s calculated, what the scores mean, and the role of factors like ovarian function and the staging of endometriosis (minimal, mild, moderate, or severe) in determining fertility outcomes. If you’re navigating endometriosis and trying to conceive, this video provides essential insights to help you take control of your fertility journey.
Key Topics in This Video:
What is the Endometriosis Fertility Index (EFI)?
How is the EFI scored, and what do the scores mean?
The impact of ovarian function on fertility with endometriosis
How the staging of endometriosis (minimal to severe) influences fertility
This episode is perfect for those trying to conceive (TTC) with endometriosis, researching fertility treatments, or learning more about how endometriosis affects pregnancy chances.
Helpful Resources:
#EndometriosisFertilityIndex #EndometriosisAndFertility #TryingToConceiveWithEndometriosis #EndometriosisAwareness #TTC #FertilityJourney #Endometriosis #OvarianReserves #StageofEndometriosis
Medical Disclaimer
The information provided in this video is for educational and informational purposes only and should not be considered medical advice. I am not a doctor, fertility specialist, or healthcare provider. Always consult with a qualified healthcare professional before making any decisions regarding your reproductive health, fertility treatments, or medical care. If you have concerns about endometriosis and its impact on fertility, please speak with a doctor or specialist that you trust who can provide guidance tailored to your individual health needs.
Video links:
Fertility and Endometriosis - Episode 1: th-cam.com/video/LyvF2DmeAUA/w-d-xo.html
Stage of Endo: th-cam.com/video/YRZQmCYVTZo/w-d-xo.htmlsi=lXf_1dDeTjPceGHS
Research:
www.bing.com/search?q=endometriosis+fertility+index&cvid=71704164ffa14f779a9b49da9e874bee&gs_lcrp=EgRlZGdlKgkIABBFGDsY-QcyCQgAEEUYOxj5BzIGCAEQABhAMgYIAhAAGEAyBggDEEUYOzIGCAQQRRg7MgYIBRAAGEAyBggGEEUYOTIGCAcQRRg9MgYICBBFGDzSAQc4MzRqMGo0qAIIsAIB&FORM=ANAB01&PC=U531
Lee D, Kim SK, Lee JR, Jee BC. Management of endometriosis-related infertility: Considerations and treatment options. Clin Exp Reprod Med. 2020 Mar;47(1):1-11. doi: 10.5653/cerm.2019.02971. Epub 2020 Feb 24. Erratum in: Clin Exp Reprod Med. 2020 Jun;47(2):153. PMID: 32088944; PMCID: PMC7127898.
Bishop LA, Gunn J, Jahandideh S, Devine K, Decherney AH, Hill MJ. Endometriosis does not impact live-birth rates in frozen embryo transfers of euploid blastocysts. Fertil Steril. 2021 Feb;115(2):416-422. doi: 10.1016/j.fertnstert.2020.07.050. Epub 2020 Sep 21. PMID: 32972732.
Steiner N, Shrem G, Tannus S, Dahan SY, Balayla J, Volodarsky-Perel A, Tan SL, Dahan MH. Effect of GnRH agonist and letrozole treatment in women with recurrent implantation failure. Fertil Steril. 2019 Jul;112(1):98-104. doi: 10.1016/j.fertnstert.2019.03.021. Epub 2019 May 24. PMID: 31133384.
Zhong C, Gao L, Shu L, Hou Z, Cai L, Huang J, Liu J, Mao Y. Analysis of IVF/ICSI Outcomes in Endometriosis Patients With Recurrent Implantation Failure: Influence on Cumulative Live Birth Rate. Front Endocrinol (Lausanne). 2021 Jul 30;12:640288. doi: 10.3389/fendo.2021.640288. PMID: 34393990; PMCID: PMC8362597.
Piedimonte S, Volodarsky-Perel A, Tannus S, Tan SL, Dahan MH. Pretreatment with a gonadotropin-releasing hormone agonist and an aromatase inhibitor may improve outcomes in in vitro fertilization cycles of women with stage I-II endometriosis. F S Sci. 2020 Aug;1(1):98-103. doi: 10.1016/j.xfss.2020.06.005. Epub 2020 Jul 4. PMID: 35559744.
Jaafar SH, Sallam HN, Arici A, Garcia‐Velasco JA, Abou‐Setta AM. Long‐term GnRH agonist therapy before in vitro fertilization (IVF) for improving fertility outcomes in women with endometriosis. Cochrane Database Syst Rev. 2019 Jan 8;2019(1):CD013240. doi: 10.1002/14651858.CD013240. PMCID: PMC6353287.
มุมมอง: 135
วีดีโอ
01. understanding fertility and endometriosis | pregnancy complications + theories of connection
มุมมอง 516วันที่ผ่านมา
Hi everyone - I hope you're doing well and are having a flare free day. If you're like me, you've probably heard that infertility can be a symptom of endometriosis - but how? If you're struggling to conceive or wondering how endometriosis affects fertility, this video breaks down the scientific theories behind endometriosis and infertility-from inflammation to egg quality, hormonal imbalances, ...
How Endometriosis Impacts Your Menstrual Cycle: Phase-by-Phase Breakdown, Symptoms, and Tracking
มุมมอง 2.7K21 วันที่ผ่านมา
Hi everyone! I hope you're all having a flare free day. While most of us have heard about our menstrual cycle and the four unique phases within it -menstrual, follicular, ovulatory, and luteal-the experience of living with endometriosis can make each phase of our menstrual cycle feel completely different from individuals living without endo (or other chronic conditions). From lingering pain aft...
chronic illness journal prompts for 2025 | kick-start your goals, self-care, and symptom tracking
มุมมอง 2.9K21 วันที่ผ่านมา
happy 2025 everyone! I hope you had a wonderful start to the new year and that you've been (hopefully) flare-free so far. I truly believe that 2025 is going to be YOUR year. I cannot wait to see all of the amazing things that come your way - like supportive networks, a doctor that listens, and self-care routines that make you feel amazing. If you've been following along for a while, you know ho...
Step-By-Step Guide to Finding Answers & Gaining Traction in Your Endometriosis Journey | Endoemmm
มุมมอง 328หลายเดือนก่อน
Hi everyone! I hope you’re doing well and are having a flare free day. Are you struggling to get answers for your endometriosis journey? Are you unsure where to start when getting answers? I have you covered! This step-by-step guide will help you understand symptoms, advocate for care, and finally gain traction in your endometriosis journey. Learn how to track symptoms and cycle patters, what q...
Holiday Mental Health Q&A: Endometriosis, Managing Stress, & Finding Calm Moments ☁️🤍
มุมมอง 1422 หลายเดือนก่อน
Hi everyone - I hope you’re having a flare free day! The holidays are just around the corner - which can be an exciting time to connect with close friends and family, but sometimes the season can bring a whirlwind of emotions, anxiety, and stress. The mental load during this time can sometimes feel overwhelming. In this mental health Q A, I'm opening up about how I navigate emotional stress, ma...
managing the holidays with a chronic illness | protecting boundaries, saying no, & HOLIDAY GIVEAWAYS
มุมมอง 43K2 หลายเดือนก่อน
managing the holidays with a chronic illness | protecting boundaries, saying no, & HOLIDAY GIVEAWAYS
Two Years Postpartum: Endometriosis, Motherhood Lessons, Relationships, & A Wish for My 2-Year-Old
มุมมอง 1622 หลายเดือนก่อน
Two Years Postpartum: Endometriosis, Motherhood Lessons, Relationships, & A Wish for My 2-Year-Old
Migraines, Periods & Endometriosis | Hormonal Changes, Birth Control and Real-Life Struggles
มุมมอง 2222 หลายเดือนก่อน
Migraines, Periods & Endometriosis | Hormonal Changes, Birth Control and Real-Life Struggles
Healing Cabin Retreat & My First Healing Energy Experience: Unlocking Inner Peace and Balance
มุมมอง 752 หลายเดือนก่อน
Healing Cabin Retreat & My First Healing Energy Experience: Unlocking Inner Peace and Balance
Fatigue vs. Tiredness | Difference Between the Two | Symptoms of Each | Connection to Endometriosis
มุมมอง 3K3 หลายเดือนก่อน
Fatigue vs. Tiredness | Difference Between the Two | Symptoms of Each | Connection to Endometriosis
Autumn-Inspired Lessons for Life With A Chronic Illness | Letting Go and Growing 🍂🍁
มุมมอง 1053 หลายเดือนก่อน
Autumn-Inspired Lessons for Life With A Chronic Illness | Letting Go and Growing 🍂🍁
Recognizing Subtle Signs of Medical Gaslighting | My Recent Experience in 2024
มุมมอง 1513 หลายเดือนก่อน
Recognizing Subtle Signs of Medical Gaslighting | My Recent Experience in 2024
Thoracic Endometriosis | 9 Common Myths Debunked and the Truth Revealed
มุมมอง 4463 หลายเดือนก่อน
Thoracic Endometriosis | 9 Common Myths Debunked and the Truth Revealed
Fall morning | pumpkin patch, blueberry scones & what I’m thankful for | Thanksgiving
มุมมอง 1543 หลายเดือนก่อน
Fall morning | pumpkin patch, blueberry scones & what I’m thankful for | Thanksgiving
All things PELVIC FLOOR | Dysfunction, Weakness, Symptoms, PF Therapy, and Endometriosis Connection
มุมมอง 2163 หลายเดือนก่อน
All things PELVIC FLOOR | Dysfunction, Weakness, Symptoms, PF Therapy, and Endometriosis Connection
Two things I know to be true in a chronic illness journey
มุมมอง 2875 หลายเดือนก่อน
Two things I know to be true in a chronic illness journey
Day in my life as a mom with a chronic illness | work from home day, family, and health
มุมมอง 2065 หลายเดือนก่อน
Day in my life as a mom with a chronic illness | work from home day, family, and health
A rainy day in my life with a chronic illness + self-care routine
มุมมอง 1925 หลายเดือนก่อน
A rainy day in my life with a chronic illness self-care routine
Tampons STILL toxic in 2024, study revealed. A call for change and support for menstruators.
มุมมอง 24K6 หลายเดือนก่อน
Tampons STILL toxic in 2024, study revealed. A call for change and support for menstruators.
Chatting all things boundaries, deleting social media, protecting mental health, and more!
มุมมอง 2666 หลายเดือนก่อน
Chatting all things boundaries, deleting social media, protecting mental health, and more!
Spotting Between Periods? Causes, Endometriosis Links, and What You Need to Know
มุมมอง 1.8K7 หลายเดือนก่อน
Spotting Between Periods? Causes, Endometriosis Links, and What You Need to Know
What the color of your period means: Health tips and insights
มุมมอง 2077 หลายเดือนก่อน
What the color of your period means: Health tips and insights
Attempting 75 Hard with a chronic condition: Week 2 results + Run to End Endometriosis!
มุมมอง 2147 หลายเดือนก่อน
Attempting 75 Hard with a chronic condition: Week 2 results Run to End Endometriosis!
Understanding Premenstrual Dysphoric Disorder (PMDD): Symptoms, Cause, and Treatment Options
มุมมอง 14K8 หลายเดือนก่อน
Understanding Premenstrual Dysphoric Disorder (PMDD): Symptoms, Cause, and Treatment Options
Unexpected plot twist | First week of 75 Hard with a chronic condition / endometriosis
มุมมอง 1K8 หลายเดือนก่อน
Unexpected plot twist | First week of 75 Hard with a chronic condition / endometriosis
DAY ONE: Attempting 75 Hard with a chronic condition / endometriosis
มุมมอง 5668 หลายเดือนก่อน
DAY ONE: Attempting 75 Hard with a chronic condition / endometriosis
Attempting 75 HARD with a chronic condition / endometriosis
มุมมอง 3718 หลายเดือนก่อน
Attempting 75 HARD with a chronic condition / endometriosis
Thank you for sharing, im newly pregnant and ive felt very alone because of the amount of pain ive endured. God bless you and your baby
Thank you for making this video! I am still in the acceptance stage that I need to make adjustments prior to my diagnosis. I am feeling a lot of resistance especially I used to be very active, everything I love are high impact activities. So yeah, thank you, I feel seen and heard and a little bit more encouraged to move forward towards this life changing journey.
This is great advice I'm trying to get diagnosed however I'm apparently to young to have endometriosis and it's just my anxiety. I've researched and I show all the symptoms, how do I prove it isn't just my anxiety?
Thank you so much for your comment. I’m thinking of you in this journey ❤ An important note that endometriosis impacts youth and teens as well - something we’re trying to raise more awareness around. If you’re feeling painful symptoms - start to track them and bring them up to your doctor (including when they feel worse and pain level). If you’re not getting support for answers or are feeling dismissed for your pain - it’s always okay to get a second opinion from a doctor you trust. I had to go through 8 doctors myself to find a doctor that finally took me seriously throughout the years. Thinking of you. Anxiety in the mix or not - a list of tangible symptoms and when they show up are key to continue the journey for answers for endo. A study that has some good data around endometriosis prevalence in youth can be found here for some background: pubmed.ncbi.nlm.nih.gov/32736134/
@@endoemmm thank you this gives me a better chance to get idea on how to get help and not go in blind.
I have endometriosis snd my ovulation pain is so bad i cant move! Its short lived though. About an hour. But man its painful!!
I got some answers from my second ultrasound. My doctor said I have PCOS and a fibroid. I've always had painful periods and heavy bleeding. No idea how long I've had a fibroid for. I still think I possibly have endometriosis. My doctor has said laparoscopic surgery to detect/remove endo is only done for fertility reasons. It made me pause because I don't know if I am ready to have kids yet, but I would like to. I just don't know when. I'm going to get a hysterosonogram for the fibroid soon.
@@itscarolinemary nooooo that can’t be right!! Anyone should be able to be diagnosed and treated for Endo!!! So sorry you have those. 💐💜
@@itscarolinemary get a second opinion on that for sure!!
@@catturner23and my doctor said she has endo herself?! 😣😳🫠 so strange & frustrating. I hope to get referred to a gynaecologist soon regarding the fibroid.
@ I hope you can get a laparoscopy you should be able to if you feel you have Endo the whole point is get diagnosed at least!! Then they can treat it while they are in there if they see it. Maybe one step at a time!! Blessings to you!!
First thank you Em for making this video. Second I never heard of this index before I had surgery a year ago. I also was never told what stage Endo I actually had from my Dr. after watching this I feel sad and upset that I didn’t know these things to ask about them. So anyone who is going to have surgery please review ALL of Em’s vids and make a very long list of questions and topics for your Dr/surgeon and make sure they are all answered!! I’m not sure if this index is standard!? Does everyone getting the laparoscopic surgery get this information!? Or is this Infertility specialized? Infertility is NOT covered by insurance here in the US.
I’m still learning more about it too! From research, the EFI is not a routine diagnostic tool but is applied after laparoscopic surgery to evaluate fertility potential. Also, while it was originally developed and validated by Dr. David Adamson in the U.S. (published in 2010), it has been widely adopted in Europe, Asia, Australia, and other regions as a tool for assessing fertility outcomes after endometriosis surgery! If you had endo surgery, I wonder if you can connect with that previous doctor to gain additional information on your endo stage - and whether you can take that information to a fertility clinic to assess the EFI score!? Just thinking out loud - not sure if that can work or not - but worth a shot!
@ they won’t even call me back to tell me what stage I have so I’m sure they won’t do that. It’s ok. I’m over it but this was so much knowledge to know!! Wish I knew this a year ago!! I’ve had two kids so based on my age alone they’d prob give me 5% or less which I’m aware of. Thx Em!! Knowledge is power!!
Drink vitamin b complex
Inner thigh of my right leg
Watching this, just started my period....endo is flaring
Thank you for sharing this information.
Absolutely - hope you're well.
34 years of leg pain, no-one told me this. They told me "stopp feeling so much" and "its mental"
Thank you Em! It’s so crazy how the pain you feel can be due to one thing or all the things you mentioned. Someone can feel no pain with Endo or have that one thing that causes severe pain, and everything in between. As a later in life Endo warrior at 45, TTC I’m just trying to gather as much info and listen to as many stories as I can to assess what I can do to help myself. After laparoscopic surgery and the pain returning, I feel like I need to use my own knowledge and intuition to hopefully fall pregnant as I want nothing to do with anything labeled infertility because it’s not covered by health insurance. I’d love to see a vid of some of ways we can help heal or treat our symptoms you mentioned in the vid. Please forgive me if you already have this vid because I know you’ve made a lot!! You’re the best and I’m enjoying my pain cream and teas that I got from the gift card I won from Somedays! ❤💐
Thanks for your comment! I can definitely look into whether treatment options exist for the theories brought forward in todays video. Anything I find will be placed in the third video in this series on "fertility treatments and endometriosis." Thinking of you - and happy to hear about the teas and pain cream!
@ also any home remedies or natural remedies not including drs would be fantastic thx Em! XxOo
You have such a gorgeous and beautiful face 😃
Thank you so much for this video! So informative and affirming what is going in for some of us women.
Glad it was helpful!
I'm so confused. They didn't find any lesions during surgery (only scar tissue), but ovulation hurts like hell! The stabbing is a nightmare. I have severe menstrual cramps and they're less painful. It feels like my ovaries are trying to kill me.
Thank you for this video. I'm experiencing the same symptoms with Endodien (dienogest).
Anyone who experience cough in the morning? Please let me know. I am on my 3rd week of Visanne and i am feeling happier and motivated that’s a good for me but i have cough in the morning. This cough is a bit strange
Did you do a post about your recovery and results? Thank you
I’ve watched so many of your videos they have been so helpful thank you for putting this info out in the world!
You are so beautiful and tysm for spreading awareness for this silent female cancer of a disease. My life since 2016 has been a nightware with endo. I appreciate your channel. ❤
Thank you so much for your comment - I'm so happy that my content resonates with you! Thinking of you during your endo journey
I’m 4-ish days away from starting my period, this is when my pelvis pain begins… since going on BC pill, my ovulation is waaay less painful. Before I started BC I was basically feeling my ovary burst during ovulation and it was sooo painful for days.
I was also finding I was having bladder pressure symptoms more in the follicular phase…
@@TicTacMIme too and bladder infections🙈
Feeling guilty and physically horrible in my 3rd trimester and absolutely needed this. Thank you!
I'm thinking of you during your third trimester! You got this!
@@endoemmmoh thank you 💞
Thank you so much for making this video! Wow, things really are different with endo, huh? No wonder why I didn't feel like all that popular advice on social media resonated with me.
I have my period 2 times a month😢 i’m 36 maybe because of perimenopause
Thinking of you! I hope that you have a great doctor on your team to talk through the double period in the month to receive the care and support you deserve
Great video! Ty so much for this. A year after my laparoscopy surgery to diagnose Endometriosis, I’m putting myself on the patch (birth control). The pain was worsening so much that I thought there’s no way I can get pregnant with this happening. I’m going to treat myself with castor oil packs, teas and Serrapeptase to hopefully rid of some of the scar tissue/pain that may have form since my surgery. It’s a risky plan but I believe I may be able to trigger ovulation by spontaneously stopping the patch to try to trigger it then putting it (the patch) back on to ease the pain/inflammation if I’m pregnant or not. There’s no significant side effects of getting pregnant on birth control so I’m praying this works. I’m basically desperate at this point so, wish me luck! I’m CD 15 and starting week 3 of the patch and no Endo pain yet!!
Thinking of you during this new path!
@ thank you sweetie!
Thank you so much for this video. I’m still learning how to take care of my body post endo diagnosis.
Thank you for explaining
I have Thoracic endometriosis. I was diagnosed four years ago in 2020. I kept having pneumothoraces in my right lung, and they could not figure out why. I finally asked my doctor if I could have anything to do with my period since my lung kept collapsing on the first day of my period. He said there was absolutely no correlation between my period and my lung collapses. Two months later, I finally found a doctor to listen to me and had surgery, and when I opened me up, I had completely covering most of my major organs. I had to remove a portion of my lung and half my diaphragm. Two months later, the lung collapses came back and now the endometriosis has spread to my lymphatic system and they believe it may be cancerous at this point I go next week for a biopsy. Doctors need to be made aware of this and never make a woman feel like she’s crazy or that it’s just anxiety! I had no fertility issues. I have five beautiful, healthy children.
I wholeheartedly understand this as I myself was diagnosed 5/years ago before that I was happy emotionally stable . Now every month I am drowned in this gut wrenching pain hoping it to pass
Watching this video for the first time. I have stage 4 endo, was confirmed in 2018 via laparoscopic diagnostic. I hate it so much, still keeping faith that one day I’ll have beautiful and healthy babies 🙏🏾❤️. I pray the same for every woman watching and that stumble across this post in search for hope one day.
thank you very much for your video! I lost my right kidney due to endometriosis. I visited three gynecologists before the third one, in shock, diagnosed a grade 4 kidney blockage. By then, the kidney was beyond saving.
I know exactly what you talking about, I was 18 when I fond this angel doctor and she fond I have endometriosis, she started the treatment straight away, I have been in pain for just 3 years, then I left brasil and went to London and still with the treatment and when I was 30 I got pregnant, and I thought I was cured, but not, so I went to new zealand and my sintomas started all again, from my 30 until my 40, even though I told the doctors I had endometriosis, the doctors said I did had anything, was all in my head, they send me to the pain clinic, because they think was in my head, I come back to England and nothing change when one doctor said to me the same one in new zealand, was in my head, but I fight and make him to do laparoscoscopia, snd he find out no just the endometriosis,I had the operation and now 5 years later I will probably have again, because is about 3 years I have been having the same sintomas and the doctor last week just confirmed is endometriosis again😢
Watching this again because it gives me a bit of hope that I can experience or might experience pain in early pregnancy as I never did with my first two kids but this last pregnancy might somehow be different. Thank you again for making this video!! 💐💜
Never knew I had it until TTC with baby #3 and I always had an IUD put in as soon as I could after each pregnancy. So….with the IUD I never had my Endo pain. Once the IUD came out baby 1. I had an ectopic after 12 months of trying and conceived after the treatment. I think it may have removed some of the adhesions in my tube. I think it was methotrexate I took. After IUD came out with baby 2. I got pregnant after two cycles so I didn’t really think I had a problem. I did feel pain during implantation but again, didn’t think anything of it. IUD came out Dec 2021 and it’s now Dec 2024 and still no baby, diagnosed with Endo at 44 on Jan 30 2024. At least I know I’m having fertility issues. So, Endo never goes away and even after surgery it comes back. My pain is gradually getting worse every cycle. I feel like I’m back at square one in my journey. Thank goddess for women like Em who talk about their pain and keep fighting to learn and educate others on this terrible condition. 💜💐
Hi Em, thank you so much for your insight and support! I’m so happy that I found your channel. It’s been rough over here. 😅 I had a laparoscopic surgery and received my endometriosis diagnosis February of this year. I am so discouraged that I haven’t experienced any pain relief since. I am in a really dark place right now, almost a year since my surgery, with no relief from this pain, and suffering almost 6 years of secondary infertility. I’m losing hope in this battle. I’ve experienced so much medical trauma, and gaslighting through out the years that I’m so burnt out going to the doctor’s office and have major anxiety when it comes to even making a doctor appointment. I don’t even know what to do at this point or who to turn to. At this point would your recommendation be to ask for a referral to an endometriosis specialist, and continuing advocating for myself despite the medical trauma? I regret not first seeking an endometriosis specialist, it was just my regular gynecologist who performed my surgery. Anytime I’ve been to her since my surgery, she’s been zero help, so I’m really praying she’ll get me that referral. I asked my primary care doctor to give me a referral and he wouldn’t, and wants me to ask my gynecologist for one. I’m so frustrated, and just want help.
This is a great reminder. I find myself half the time getting annoyed with people because I don't want them to treat me differently because of my illness and the other half of the time I'm frustrated because I don't feel they understand that sometimes I can't manage things. I annoy myself 😂
The fatigue can be so bad. That I will wake up so EXHAUSTED and brain fogged that I CAN'T get up out of bed the day before my period. I've had to call out from work every month when this happens. Because I am not functioning and NEED to sleep. Even if I've slept for 8 hours. To me if what I would think a narcoleptic feels like during a sleep attack. It's 100% out of my control. Same with day of my ovulation. Extreme fatigue and PAIN. OMG the pain sometimes is worst than my period itself.
Yes!!! I just talked about this in my latest vid. Highly recommend this form of expression!! Love ya!! 💐💜