I'm glad that the reactions are tolerable, and I do agree that it is possible that the time of year may contribute to the attacks. I would call them seasonal allergies but for a chronic warriors. It would make sense, since many people's bodies normally act up this time of year. Thank you for including us in your adventure!
I love your pragmatic attitude towards these constant readjustments with your health. God gives us our struggles to shape our character. You are amazing.
Hey Judd, Did you know there was a caterpillar on your upper lip??? (just joking :-) ). I agree with you Jaquie that your allergic reactions could be seasonal. With the weather being cooler you are outside more so it could be just about anything that could be triggering them. I hope with more IVIG treatments you will see them lessen. Here's an idea for all of the mashed potatoes you got from Judd's mom. Freeze them in ice cube trays and then take them out of the ice cube trays and put them in a freezer bag. And when you would like to have mashed potatoes take out as many cubes that you think you can eat and heat them up in the microwave. Easy Peasy! Glad you had a good time this weekend! Thanks for taking me on your adventure!
I’m gonna have to agree with you about time of year and allergies. My allergies have been crazy this year, and usually my chronic bronchitis flares (and autoimmune deficiency acting up too) up more during the fall and spring, which also makes my severe anemia worse. I have been sick for the past two weeks because I had an allergic reaction to latex...and I’m still sick on week 3.
I was also wondering if the allergic reactions were something do to the time of year. And it's nicer outside so youre able to go outside more and are exposed to what ever it is. Hopefully what ever it is, the ivig keeps it manageable!
This is the best time weather wise in my state too but everyone is congested and coughing lol. You know your body and your limits! Have fun while you can!
I am a special education teacher who works with students with significant behavior issues. As I was listening to you talk about about your reactions I thought about my students and the way we track behaviors and other elements that effect behaviors. One of the things I do is graph behaviors using Microsoft Excel so that I can see a trend (are they happening at certain times of the month or year). Since you have documenting your reactions on video over the past year or so you can go back and make a list of the dates you had reactions and see if you can find a trend. A list of dates and the severity of the reactions (mild, moderate, severe) would probably be really helpful for your medical team. It may not show much now but over time it could give you some valuable information. I know you are big on your research and I couldn't guess what the triggers are but watching back your videos could be a great way to see if you notice any patterns!! Just a suggestion from someone who thinks the human body and brain are really interesting things!!
I have allergy issues that flare up during different times a year. The cooler weather has been great as I haven't had an allergic reaction out of the house. At home right now I have to deal with one of my allergens while I do my spring cleaning( well fall cleaning for me lol). I also have to say I'm doing better! I have a new GI that is willing to do a colonoscopy on me with my spleen and liver in larged. I also saw a Neurologist for my migraines and they put me on medications to prevent them that wont cause any issues with my liver. I have been on the starting dose since Friday and am happy to say I feel it is helping already. Still getting the migraines but not as bad feeling. I also will be seeing a genetic Doctor in Feb.2018 to figure out what other immune issues are causing my symptoms. GI and Neurologist said it was a good idea as it would help to better treat the cause of the symptoms and not just the symptoms. The Neurologist thinks I may have EDS or a similar condition with just some of the issues we talked about.
New bed, new wheels, happy Harlow. Fun times. I sincerely hope the bed and the wheels provide you with more comfort and independence. Jaquie your a rock star!
8:30 Those flowers are the exact same ones my friends got me for my recent admission. I am glad they are making you smile, too. It’s a pretty kind of flower :)
Boo for allergy attack. But yay for new computer. Looks like you had so much fun this weekend! I don’t know who was more excited about the new computer: Jaquie or Harlow!!
I am so sorry you are having these allergic reactions! I do think the change in seasons could be a factor. I have vertigo and I noticed they become more frequent and severe in mid-fall and mid-spring. It gets so bad I cannot move or eat anything, sometimes for days on end. But, we keep moving forward! And congratulations on your new computer! I just upgraded from a Lenovo desktop to a Dell desktop! I love it! 💟💟💟💟💟💟💟
Ugh, I have vertigo, too, and it's been really bad lately. It is no fun! I get cervicogenic dizziness caused by pinched nerves in my neck and shoulders which affects my ears. My doctors thought I had either Meniere's disease or vestibular migraines but I don't meet the criteria for either. It turns out that my chiropractic adjustments of my neck were much more helpful than the medication my ENT and neurologist were giving me. I've dropped them and gone to my chiropractor instead (I haven't been in a while due to other health issues). :-)
MissLeopard28 you know, I get cervocogentic migraines, which got significantly worse in 2014 when I was rear-ended at a stop light by driver traveling much too fast on an icy road. I ended up with whiplash and a tear in my right shoulder blade! I wonder if there is a connection...I can't believe I have never thought of that! I do wish you better days ahead. Feeling constantly dizzy like a never ending spinning rollercoaster is completely exhausting! 💟💟💟
I'm glad I could help! My neurologist and ENT were giving me meds for vestibular migraines because it was a diagnosis of exclusion (plus, I never felt headaches). I hated taking pills without knowing what was really wrong - one I took was a calcium channel blocker (Verapamil) and the other was a strong antiepileptic (Topamax). Both came with their own side effects which made me feel worse and did nothing for my dizziness. I even underwent balance therapy thru a PT program and, while it helped slightly, there was not enough of an improvement. It was only when I went to a chiropractor (which I was very leery of, by the way) that I started getting relief. Now, it's been 3 months since I've been back and my neck and shoulders need another adjustment. If you're thinking about seeing a chiropractor and never have before, make sure you do your research and get references from friends/family. Some of them are "snake oil salesmen" and want to sell you a bunch of vitamins and herbal crap you don't need. Mine focuses solely on fixing the body's alignment.
MissLeopard28 thank you so much for all the information! We have the worst healthcare where I live in Indiana! GP's are changing $400 just for an office visit for refills, so I have to pick and choose my doc appointments. So frustrating! I am very nervous about seeing a chiropractor, but I am looking into reflexology and massage therapy. I also have a new tinse machine coming so keeping fingers crossed! Xoxo! #happyhealthwishes
TENS units are very helpful, but make sure you use it on the lowest setting first. When I got mine, I didn't check where the dial was before turning it on and it had somehow gotten all the way to the highest setting. It felt like an electric shock and was VERY uncomfortable. My chiropractor has all his patients do TENS and either hot/cold packs before their adjustment to loosen the muscles and make it easier for him to adjust where he needs to. And that truly sucks about the price for your office visits! Do you live in a rural area? Do you have access to telemedicine? If you have a health insurance plan, most of them allow for teledoc visits - some even encourage it because it's not as expensive. Something to look into. :-)
It might be a time of the year thing. I live in Orlando and have had more problems with my allergies now than I've had in my time here since June. And a work colleague mentioned that her allergies were also getting worse this time of year. So I'm just hoping it will get better for all of us as the season "changes" :)
Jacquie I've lived in the Tampa Bay area my entire life, and I always have allergy flare-ups in the fall and spring. My sinuses have been feeling awful in the last few weeks. Hopefully what you're experiencing is just a seasonal thing!
Not the last! We're just at the end of season 5! Can't wait to finish it! Love the vlog, even though I'm a little late watching. Keep on going, one day at a time!
I remember your allergy attacks from last year and was also wondering if they're seasonal/if it's a time of year thing. I hope you're able to find some answers! Keep hanging in there!
Fall in the South has pollen such as ragweed, molds from fallen leaves and some native plants produce pollen in the fall. I live in Tennessee and these definitely set my allergies off. Peace to you!
Dianne Linam I’m in Louisiana!! I have the same issues! When I lived in Fort Worth, the mountain cedar was so bad I ripped the cartilage in one of my ribs bc I was coughing and sneezing so much!!
Joan Milano I'd say at least a few in a million as I have people in my live similar to Jackie's. Its a good thing for all of us who battle with our bodies to have those around us who don't/won't coddle us, but step in when we need the help (even when we are being stubborn). For me- I feel less like a broken fragile doll or the plant in the corner, which are good analogies for many who are around me.
Jaq how do you not get so frustrated? Black belt, so active before! Judd I wish I had been able to find somebody as devoted as you are to Jacqui it's beautiful to see!
I love your videos I'm praying that your allergies with the help of your doctors will get to the best that you can do you understand that I think and I'm also very interested in the wheelchair backpack being in a wheelchair as long as I have I've never heard of it that would be awesome & also I shout out to my service dog it's her birthday and her sister would y'all live in the same house yeah anything if you do a video once you get all your stuff for your wheelchair and all your videos I'm very interested sometimes I'm not well enough to talk or make a response but I am paying attention and I am learning thank you both and Harlow prayers God bless and much love
I get angioedema, and have on apparent trigger. I also have autoimmune disease but my face an ips swell up and i look like elephant woman! Ugh! BBut one thing i wanted to mention is that you might benefit like i did from mindfulness training. I do it for chronic severe pain and ptsd but I noticed you getting very nervous as you had red man syndrome and also with this reaction. Anxiety will make reactions worse so it is very helpful. If you see a psychologist you might want to talk to him/her about it. It is a lot of work but so very helpful. I get panic attacks when my pain ramps up which is several times per day and I was just making it worse. Mindfulness helps so much.
Me too i had an ugly weird sensation on the left arm side ..maybe it's that time of year yes...and eating certain foods like nuts..hope you feel better soon ..i am slowly feeling ok but I still have those ugly autoimmune attacks..the dr in the ER said not to eat for now only liquids..but I know it's the connective tissue disorder.oh and sometimes the doctors give you a diagnosis to get the insurance to pay for therapy..sad but true
I have a few bags from a brand that might be good for your chair, they're from Ju-Ju-Be--- the bags are technically diaper bags, but they have a ton of different sizes/patterns and they have videos of each bag so you can see how many pouches it has inside--- they're also anti-microbrial and can be thrown in the washer. Lots of them have crumb holes in case little ones have crushed snacks lol, but it can easily be sewn shut, or be used for other tubes?
Does Harlow have the dog seat belt when she is in the car? I would, like one for Tucker, when we go to Door County, WI, which is a 4 hour drive. He sits in the back with me.
Ok. I will check it out. I put a Calming Collar on Tucker, but when he smells snacks, he wants to go up front, also when we make a sudden stop on the highway,he will get of the seat.
Torie Smith, I have been going to Door County, since 1990. My family and I had 2 different trailers, from 1992-2006. Had to sell it in 2007, because my Mom was diagnosed with cancer and passed away. After that we go to motels. We stay at a dog friendly one in Baileys Harbor, called Baileys Sunset Motel and Cottages
Your new laptop looks good. I'm a total computer nerd and just got a new laptop myself. I made an idea suggestion on yesterdays vlog that may help to prevent your GJ button rotating. I was a bit worried when you didn't comment on yesterdays vlog but it looks like you just had a big day. :)
COMPUTER ADVICE: I have an Inspiron 13 7000 series which is VERY similar to the laptop you ordered. Watch out if your laptop develops "ghost touches." That's where it behaves like you're touching the touchscreen but you're not. I would have a line of ghost touches across my screen. It got worse and worse until I had to disable my touchscreen because it made it impossible to use my laptop. (Basically it would click on things, close things, type things, make it so that I couldn't click on anything bc it would immediately click away, etc.) It's a common problem with both of our laptops, and it happens because the part of the computer that makes the touchscreen work is easily bent which messes up electrical signals. Hopefully you wont have to deal with this.
For me, some days (like today, for instance!) I get multiple people cutting in front of me in line, like “Um, hi?!” That baffles me. Other days, it’s people staring or being excessively familiar. Sometimes it’s fine!
I've been a wheelchair user for 5 years and find that most places it's almost the opposite. Although it seems to be dependant on the people I'm surrounded by and also if I'm on my own vs having a family member with me. People seem to really want to help when I'm on my own. As a new smart drive user it has been a bit of a learning curve navigating crowds and knowing when to turn it off. I think it will be interesting to see how it is for Jaquie and Harlow working as a SD team in a wheelchair and the new dynamics, especially with the smart drive.
It is hit or miss for me when it comes to being seen, with no rhyme or reason to it. Regardless of whether its a place I frequent regularly, the time, or crowdedness, it varies between being unseen, people bring hyper reactive (turning around and going to another isle to get something else), or just treated like a normal person who happens to be shorter than most. I've been using a ' chair since over 5 years, and still cannot predict what will happen. It doesn't bother me except when people run into us, or more often ignore we are in line also. If you almost run us over in line and apologize but still cut in just boggles the mind.
I had a reaction on the road to my Dr appt. today, luckily I keep benedryl, Thessaloniki and exceeding with me wherever I go. By the time I got there it was so much better and then he gave me my first epi pen. Glad to have it but scares the crap out of me. Sorry you had to go through that.
Have you thought about getting a water resistant camera bag for the back of the wheelchair? Lowepro has some great options that could possibly work well for you store.lowepro.com/streetline-sl-140
I have the same computer, be careful not to have your computer in between your legs or leaning against something. I constantly hit the power button, I finally bought a case that covers the button enough so that I don’t hit it. It’s a great computer/tablet, otherwise, I use it for school and work!
The leaves moldering in my area is messing me up. With them falling and then raining is creating lovely allergic reactions for me. Me and Benadryl are really close now. Love l!
Are you still on the Cromolyn sodium? If so, your body may have developed a tolerance to it and you might need a higher dose or a different mast cell stabilizer. Make sure your allergist/immunologist is aware. Hopefully, they will be able to help you. I hate that your allergy symptoms are coming back. :0(
Fall is a very hard time of year for mast cell patients. I'm so sorry. You are struggling, but I'm glad the IVIG is helping. www.mastattack.org/2017/10/the-dying-season/
my MCAD and allergy attacks were being caused by Mold exposure...it can really mess with the immune system...have you ever looked into this? (i should clarify...not outdoor mold allergies, but actually CIRS from toxic mold exposure). once treated my reactions and MCAD completely stopped!
If it's not a seasonal allergen maybe it's because you go outside more this time of year than in the summer? I'm trying to be helpful but you definitely know your health best! I hope you and your doctor can figure something out soon. Wishing you the best! P.S. You're awesome and I love your videos.
They know I vlog, and I show them certain bits of the vlogs if it is relevant to my treatment! But I do not think they watch just because they want to keep the relationship professional.
I just got my first vogmask for my asthma yesterday, and i was wondering if you ever get used to the looks you get from people? Cause lastnight i went to the store and a lady looked at me and B lined for the other isle -sigh-
Ashwolf8 same here! I didn't think it would bother me because everyday I get looks or comments over my silver ring splints, but this was different. I think because I felt weird in it I was more self conscious.
I wonder if it's because the cold weather hitting off and the leaves falling my Asthma been good till now and it's getting bad again then again we have weather at 3 degrees
I hav that computer!! It works well, but make sure u keep it updated so that it keeps going fast. Also I hav an allergic reaction “season,” but mine is at th beginning of th summer.
My asthma and allergies get worse in fall; I have an appointment with my allergist coming up to see if it's something this time of year. Maybe mold blooms from the rain starting? I don't know.
I get a similar allergy reaction where you don't know the trigger. We think it is a compounding issue with multiple unpercived low ecposures, then one too many and you cross the reaction threshold. Annoying.
I also was thinking it could be seasonal or probably this time that is a little bit colder you get out more frequently and get in contact with allergens 😕 anyway let’s hope they don’t wet worse and disappear soon 🙏🏼🙏🏼
Jaquie, don't feel like you and Judd are late bloomers on the Game of Throne action!! My husband and I haven't watched it either!! Is it Throne or Thrones? Anyway, geeze. I'm sorry you're having all these scary reactions!! I'm not gonna suggest anything--1.) bc I wouldn't know what to suggest and 2.) bc I know you and your drs have and will figure it out. Just sending you virtual hugs!!
2:24 That sounds so familiar. My dad is the same way. 12:45 I'm impressed with Cortana. I don't hear Siri talk that way when I reinstall macOS. 13:01 Did you figure out why Cortana didn't appear to accept your answer?
Any way that your "attacks" are triggered by the way your body reacts to the seasons? They started last winter and only lasted through the spring, right?
Jaquie, I was watching a fellow chronic illness wariors video and saw something that I thought would be fun! It's a "spoonie" subscription box! The link for you to check it is www.spoonieessentialsbox.com/ . Maybe it would be fun receiving it!
Kura-chan I get these! They are cute! Lots of neat products and you never know what you will get. Things like Ipsy Glam Bags usually have so many chemicals and at least the Spoonie Boxes try to stay more natural.
I am fortunate to only have one chronic illness but to all those that have multiple chronic illnesses: if you could choose to get rid of one which one would you and why? Just purely curious x
Simply Me Definitely my dysautonomia (POTS/NCS)! It is so hard to treat and there is not much you can do when the autonomic system doesn't work properly! Great question!
Hey guys! I need your help! My parents saw Har's sort of hammock she has in Jaquie's living room. They'd like to find one for our dog, do you guys know where they are sold?? THANKS FOR THE HELP! Love from France guys
Could it be seasonal in that in the cooler weather you can be out more so you’re more exposed to your allergens? Not trying to be nosy, just a thought.
Judd, always please use a GPS when u go out, even tho u know where ur going plus there might be constructuction on the roads. And listen to ur wife, cuz she is correct. Woman are more right than man. Nice computer. Good research u did.
Why are your infusion bags kept in the fridge and does refrigerated iv fluid make you cold? Room temperature normal saline makes me super cold. I can't imagine receiving cool iv fluid.
Maybe it's because you went to Disney. I read an article recently about how they had to shut down 2 of their cooling towers to clean and disinfect them because they contained harmful bacteria that spread through the air. I'm not sure totally but it's a possibility I guess
![PASULOL รามเกียรติ์ ตอนที่ 4 นนทกพบรัก [Ramakien Ep.4: Nonthok in love]](http://i.ytimg.com/vi/tMUQgmZzf_A/mqdefault.jpg)
Even though you have such a hard time sometimes, you still find time for this channel. Thank you on behalf of all of us.
I'm glad that the reactions are tolerable, and I do agree that it is possible that the time of year may contribute to the attacks. I would call them seasonal allergies but for a chronic warriors. It would make sense, since many people's bodies normally act up this time of year. Thank you for including us in your adventure!
I love your pragmatic attitude towards these constant readjustments with your health. God gives us our struggles to shape our character. You are amazing.
I love that.. *God gives us our struggles to shape our character*.
Hey Judd, Did you know there was a caterpillar on your upper lip??? (just joking :-) ). I agree with you Jaquie that your allergic reactions could be seasonal. With the weather being cooler you are outside more so it could be just about anything that could be triggering them. I hope with more IVIG treatments you will see them lessen. Here's an idea for all of the mashed potatoes you got from Judd's mom. Freeze them in ice cube trays and then take them out of the ice cube trays and put them in a freezer bag. And when you would like to have mashed potatoes take out as many cubes that you think you can eat and heat them up in the microwave. Easy Peasy! Glad you had a good time this weekend! Thanks for taking me on your adventure!
I’m gonna have to agree with you about time of year and allergies. My allergies have been crazy this year, and usually my chronic bronchitis flares (and autoimmune deficiency acting up too) up more during the fall and spring, which also makes my severe anemia worse. I have been sick for the past two weeks because I had an allergic reaction to latex...and I’m still sick on week 3.
I was also wondering if the allergic reactions were something do to the time of year. And it's nicer outside so youre able to go outside more and are exposed to what ever it is. Hopefully what ever it is, the ivig keeps it manageable!
I would hate to not be able to enjoy this weather :/I hope IVIG helps too!
This is the best time weather wise in my state too but everyone is congested and coughing lol. You know your body and your limits! Have fun while you can!
I am a special education teacher who works with students with significant behavior issues. As I was listening to you talk about about your reactions I thought about my students and the way we track behaviors and other elements that effect behaviors. One of the things I do is graph behaviors using Microsoft Excel so that I can see a trend (are they happening at certain times of the month or year). Since you have documenting your reactions on video over the past year or so you can go back and make a list of the dates you had reactions and see if you can find a trend. A list of dates and the severity of the reactions (mild, moderate, severe) would probably be really helpful for your medical team. It may not show much now but over time it could give you some valuable information. I know you are big on your research and I couldn't guess what the triggers are but watching back your videos could be a great way to see if you notice any patterns!! Just a suggestion from someone who thinks the human body and brain are really interesting things!!
I have allergy issues that flare up during different times a year. The cooler weather has been great as I haven't had an allergic reaction out of the house. At home right now I have to deal with one of my allergens while I do my spring cleaning( well fall cleaning for me lol). I also have to say I'm doing better! I have a new GI that is willing to do a colonoscopy on me with my spleen and liver in larged. I also saw a Neurologist for my migraines and they put me on medications to prevent them that wont cause any issues with my liver. I have been on the starting dose since Friday and am happy to say I feel it is helping already. Still getting the migraines but not as bad feeling. I also will be seeing a genetic Doctor in Feb.2018 to figure out what other immune issues are causing my symptoms. GI and Neurologist said it was a good idea as it would help to better treat the cause of the symptoms and not just the symptoms. The Neurologist thinks I may have EDS or a similar condition with just some of the issues we talked about.
New bed, new wheels, happy Harlow. Fun times. I sincerely hope the bed and the wheels provide you with more comfort and independence. Jaquie your a rock star!
8:30 Those flowers are the exact same ones my friends got me for my recent admission. I am glad they are making you smile, too. It’s a pretty kind of flower :)
Boo for allergy attack. But yay for new computer. Looks like you had so much fun this weekend! I don’t know who was more excited about the new computer: Jaquie or Harlow!!
I am so sorry you are having these allergic reactions! I do think the change in seasons could be a factor. I have vertigo and I noticed they become more frequent and severe in mid-fall and mid-spring. It gets so bad I cannot move or eat anything, sometimes for days on end. But, we keep moving forward! And congratulations on your new computer! I just upgraded from a Lenovo desktop to a Dell desktop! I love it! 💟💟💟💟💟💟💟
Ugh, I have vertigo, too, and it's been really bad lately. It is no fun! I get cervicogenic dizziness caused by pinched nerves in my neck and shoulders which affects my ears. My doctors thought I had either Meniere's disease or vestibular migraines but I don't meet the criteria for either. It turns out that my chiropractic adjustments of my neck were much more helpful than the medication my ENT and neurologist were giving me. I've dropped them and gone to my chiropractor instead (I haven't been in a while due to other health issues). :-)
MissLeopard28 you know, I get cervocogentic migraines, which got significantly worse in 2014 when I was rear-ended at a stop light by driver traveling much too fast on an icy road. I ended up with whiplash and a tear in my right shoulder blade! I wonder if there is a connection...I can't believe I have never thought of that! I do wish you better days ahead. Feeling constantly dizzy like a never ending spinning rollercoaster is completely exhausting! 💟💟💟
I'm glad I could help! My neurologist and ENT were giving me meds for vestibular migraines because it was a diagnosis of exclusion (plus, I never felt headaches). I hated taking pills without knowing what was really wrong - one I took was a calcium channel blocker (Verapamil) and the other was a strong antiepileptic (Topamax). Both came with their own side effects which made me feel worse and did nothing for my dizziness. I even underwent balance therapy thru a PT program and, while it helped slightly, there was not enough of an improvement. It was only when I went to a chiropractor (which I was very leery of, by the way) that I started getting relief. Now, it's been 3 months since I've been back and my neck and shoulders need another adjustment. If you're thinking about seeing a chiropractor and never have before, make sure you do your research and get references from friends/family. Some of them are "snake oil salesmen" and want to sell you a bunch of vitamins and herbal crap you don't need. Mine focuses solely on fixing the body's alignment.
MissLeopard28 thank you so much for all the information! We have the worst healthcare where I live in Indiana! GP's are changing $400 just for an office visit for refills, so I have to pick and choose my doc appointments. So frustrating! I am very nervous about seeing a chiropractor, but I am looking into reflexology and massage therapy. I also have a new tinse machine coming so keeping fingers crossed! Xoxo! #happyhealthwishes
TENS units are very helpful, but make sure you use it on the lowest setting first. When I got mine, I didn't check where the dial was before turning it on and it had somehow gotten all the way to the highest setting. It felt like an electric shock and was VERY uncomfortable. My chiropractor has all his patients do TENS and either hot/cold packs before their adjustment to loosen the muscles and make it easier for him to adjust where he needs to. And that truly sucks about the price for your office visits! Do you live in a rural area? Do you have access to telemedicine? If you have a health insurance plan, most of them allow for teledoc visits - some even encourage it because it's not as expensive. Something to look into. :-)
It might be a time of the year thing. I live in Orlando and have had more problems with my allergies now than I've had in my time here since June. And a work colleague mentioned that her allergies were also getting worse this time of year. So I'm just hoping it will get better for all of us as the season "changes" :)
Jacquie I've lived in the Tampa Bay area my entire life, and I always have allergy flare-ups in the fall and spring. My sinuses have been feeling awful in the last few weeks. Hopefully what you're experiencing is just a seasonal thing!
Not the last! We're just at the end of season 5! Can't wait to finish it! Love the vlog, even though I'm a little late watching. Keep on going, one day at a time!
That was the most adorable "fight"you guys had in the car 💙
They definitely sounded like a married couple! LOL!
"Taking it out to the pasture" Hahaha your reaction was too cute, Jacquie!
I remember your allergy attacks from last year and was also wondering if they're seasonal/if it's a time of year thing. I hope you're able to find some answers! Keep hanging in there!
So glad your ok and you got your new computer. I love you excitement. We are all heart broken that we have to wait so long for Game of Thrones lol
Fall in the South has pollen such as ragweed, molds from fallen leaves and some native plants produce pollen in the fall. I live in Tennessee and these definitely set my allergies off. Peace to you!
Dianne Linam I’m in Louisiana!! I have the same issues! When I lived in Fort Worth, the mountain cedar was so bad I ripped the cartilage in one of my ribs bc I was coughing and sneezing so much!!
Judd is one in a million!
Joan Milano
I'd say at least a few in a million as I have people in my live similar to Jackie's. Its a good thing for all of us who battle with our bodies to have those around us who don't/won't coddle us, but step in when we need the help (even when we are being stubborn).
For me- I feel less like a broken fragile doll or the plant in the corner, which are good analogies for many who are around me.
oh no girl stay strong :( you'll get through it
Jaq how do you not get so frustrated? Black belt, so active before! Judd I wish I had been able to find somebody as devoted as you are to Jacqui it's beautiful to see!
I love your videos I'm praying that your allergies with the help of your doctors will get to the best that you can do you understand that I think and I'm also very interested in the wheelchair backpack being in a wheelchair as long as I have I've never heard of it that would be awesome & also I shout out to my service dog it's her birthday and her sister would y'all live in the same house yeah anything if you do a video once you get all your stuff for your wheelchair and all your videos I'm very interested sometimes I'm not well enough to talk or make a response but I am paying attention and I am learning thank you both and Harlow prayers God bless and much love
Jacquie! I️ went to my in-laws house for Fakes-giving this weekend too! Even the worst symptoms and scares are okay when you’re with people you love.
Glad your home ,Get some rest and enjoy your new computer. xx
Perfect location to practice doors are underground parking garages. Also Elevators and ramps.
In 2013, when we went to Orlando, the condo, we stayed at was exit 65, the GPS, kept making us go to the Disney exit 67
I love your videos they are do real it reminds me to keep fighting as I sit on the couch everyday with my service dog and it makes me happy
Hopefully they're seasonal, and the IVIG is helping lessen them. You're a tough woman!
I get angioedema, and have on apparent trigger. I also have autoimmune disease but my face an ips swell up and i look like elephant woman! Ugh! BBut one thing i wanted to mention is that you might benefit like i did from mindfulness training. I do it for chronic severe pain and ptsd but I noticed you getting very nervous as you had red man syndrome and also with this reaction. Anxiety will make reactions worse so it is very helpful. If you see a psychologist you might want to talk to him/her about it. It is a lot of work but so very helpful. I get panic attacks when my pain ramps up which is several times per day and I was just making it worse. Mindfulness helps so much.
Me too i had an ugly weird sensation on the left arm side ..maybe it's that time of year yes...and eating certain foods like nuts..hope you feel better soon ..i am slowly feeling ok but I still have those ugly autoimmune attacks..the dr in the ER said not to eat for now only liquids..but I know it's the connective tissue disorder.oh and sometimes the doctors give you a diagnosis to get the insurance to pay for therapy..sad but true
I'm sorry you've been ill! I'll be praying for you guys!
I really enjoy it when Judd vlogs 😂
A day that finished on a good note. That laptop looks awesome and so convenient to have.
I have a few bags from a brand that might be good for your chair, they're from Ju-Ju-Be--- the bags are technically diaper bags, but they have a ton of different sizes/patterns and they have videos of each bag so you can see how many pouches it has inside--- they're also anti-microbrial and can be thrown in the washer. Lots of them have crumb holes in case little ones have crushed snacks lol, but it can easily be sewn shut, or be used for other tubes?
Does Harlow have the dog seat belt when she is in the car? I would, like one for Tucker, when we go to Door County, WI, which is a 4 hour drive. He sits in the back with me.
I have one, it is in my gear video
Ok. I will check it out. I put a Calming Collar on Tucker, but when he smells snacks, he wants to go up front, also when we make a sudden stop on the highway,he will get of the seat.
I love door county!
Torie Smith, I have been going to Door County, since 1990. My family and I had 2 different trailers, from 1992-2006. Had to sell it in 2007, because my Mom was diagnosed with cancer and passed away. After that we go to motels. We stay at a dog friendly one in Baileys Harbor, called Baileys Sunset Motel and Cottages
Kimberlee_Tucker do you live in Wisconsin? I live in central Wisconsin
Your new laptop looks good. I'm a total computer nerd and just got a new laptop myself.
I made an idea suggestion on yesterdays vlog that may help to prevent your GJ button rotating.
I was a bit worried when you didn't comment on yesterdays vlog but it looks like you just had a big day. :)
I've just been busy with my family to answer comments like I usually do
COMPUTER ADVICE: I have an Inspiron 13 7000 series which is VERY similar to the laptop you ordered. Watch out if your laptop develops "ghost touches." That's where it behaves like you're touching the touchscreen but you're not. I would have a line of ghost touches across my screen. It got worse and worse until I had to disable my touchscreen because it made it impossible to use my laptop. (Basically it would click on things, close things, type things, make it so that I couldn't click on anything bc it would immediately click away, etc.) It's a common problem with both of our laptops, and it happens because the part of the computer that makes the touchscreen work is easily bent which messes up electrical signals. Hopefully you wont have to deal with this.
As a wheelchair user, do you ever feel like you get ignored?
No I have not noticed that but I have not had my chair very long
For me, some days (like today, for instance!) I get multiple people cutting in front of me in line, like “Um, hi?!” That baffles me. Other days, it’s people staring or being excessively familiar. Sometimes it’s fine!
I've been a wheelchair user for 5 years and find that most places it's almost the opposite. Although it seems to be dependant on the people I'm surrounded by and also if I'm on my own vs having a family member with me. People seem to really want to help when I'm on my own. As a new smart drive user it has been a bit of a learning curve navigating crowds and knowing when to turn it off. I think it will be interesting to see how it is for Jaquie and Harlow working as a SD team in a wheelchair and the new dynamics, especially with the smart drive.
It is hit or miss for me when it comes to being seen, with no rhyme or reason to it. Regardless of whether its a place I frequent regularly, the time, or crowdedness, it varies between being unseen, people bring hyper reactive (turning around and going to another isle to get something else), or just treated like a normal person who happens to be shorter than most.
I've been using a ' chair since over 5 years, and still cannot predict what will happen. It doesn't bother me except when people run into us, or more often ignore we are in line also.
If you almost run us over in line and apologize but still cut in just boggles the mind.
wasn't the last one while in Orlando also? maybe different trees or grass in orlando
The last one was at home
I hope your reactions get better
lol Jaquie memorizing all the computer stats 💜
I just wanted to tell u that ur beautiful &so strong to deal with this stuff and be so young 💜 u r an inspiration
I had a reaction on the road to my Dr appt. today, luckily I keep benedryl, Thessaloniki and exceeding with me wherever I go. By the time I got there it was so much better and then he gave me my first epi pen. Glad to have it but scares the crap out of me. Sorry you had to go through that.
Have you thought about getting a water resistant camera bag for the back of the wheelchair? Lowepro has some great options that could possibly work well for you store.lowepro.com/streetline-sl-140
The wind can stir up alleges and blow them throughout the air. When you were at the shopping centre it was really windy.
I have the same computer, be careful not to have your computer in between your legs or leaning against something. I constantly hit the power button, I finally bought a case that covers the button enough so that I don’t hit it. It’s a great computer/tablet, otherwise, I use it for school and work!
The leaves moldering in my area is messing me up. With them falling and then raining is creating lovely allergic reactions for me. Me and Benadryl are really close now. Love l!
Are you still on the Cromolyn sodium? If so, your body may have developed a tolerance to it and you might need a higher dose or a different mast cell stabilizer. Make sure your allergist/immunologist is aware. Hopefully, they will be able to help you. I hate that your allergy symptoms are coming back. :0(
I am, I cannot tolerate the oral but I do well with the nebulizer. I use it 2x a day but my doc may want me to go back to 4x
Hopefully, they'll allow you to go back up since your symptoms seem to be returning. :0(
Fall is a very hard time of year for mast cell patients. I'm so sorry. You are struggling, but I'm glad the IVIG is helping.
www.mastattack.org/2017/10/the-dying-season/
THATS THE LAPTOP IVE GOT! Its so good just be super careful with the screen
my MCAD and allergy attacks were being caused by Mold exposure...it can really mess with the immune system...have you ever looked into this? (i should clarify...not outdoor mold allergies, but actually CIRS from toxic mold exposure). once treated my reactions and MCAD completely stopped!
For a backpack look for a skater backpack like from Zumiez. They are pretty big and have extra Velcro straps on the outside.
I thought your home screen on your new computer was Harlow for a second lol!!
It looked like Harlow waived goodbye XD
I just finished game of thrones last week!!! It was so good 🤗
Before todays Video I had that exact thought of seasonal..I had thought wait it was this time of year that you were having the attack issues.
If it's not a seasonal allergen maybe it's because you go outside more this time of year than in the summer? I'm trying to be helpful but you definitely know your health best! I hope you and your doctor can figure something out soon. Wishing you the best!
P.S. You're awesome and I love your videos.
Do think your doctor's watch your vlogs sometimes? 🤔
They know I vlog, and I show them certain bits of the vlogs if it is relevant to my treatment! But I do not think they watch just because they want to keep the relationship professional.
I just got my first vogmask for my asthma yesterday, and i was wondering if you ever get used to the looks you get from people? Cause lastnight i went to the store and a lady looked at me and B lined for the other isle -sigh-
Ashwolf8 same here! I didn't think it would bother me because everyday I get looks or comments over my silver ring splints, but this was different. I think because I felt weird in it I was more self conscious.
Awsome..and yesss you know all about your new laptop..
Omg! We have the same computer now! I don't use the tablet mode that often tho. I hope you enjoy It! I like mine a lot
I wonder if it's because the cold weather hitting off and the leaves falling my Asthma been good till now and it's getting bad again then again we have weather at 3 degrees
Have you ever tried to do something with your hair? Like a French braid?
I have that same computer..won it from Miss Tiffany Ma's channel
I hav that computer!! It works well, but make sure u keep it updated so that it keeps going fast. Also I hav an allergic reaction “season,” but mine is at th beginning of th summer.
I can't remember if you've said in other blogs but, is Harlow able to alert you when an allergic reaction starts?
Yes, Harlow alerts her when she sees her scratching. :0)
Scary thought but you’ll get through it! I know you will!
P.S I have noticed Vera Bradley doesn’t have much in the way of big backpacks...
Claire Elizabeth Blake I have the laptop backpack, i think thats the largest.
Do you take notes on your health? I've been logging mine in my phone calendar, like when I get nausea or diarrhea.
Hapezibah Skacy I do that too. I log everything that isn't "normal" and I take it to my doctor when I see her, it helps a lot
The vlogs are a pretty good notes system, in all honesty!
Could it be fungi? By now all the pollens are done, but mushrooms and fungi are flowering now xxxx
My asthma and allergies get worse in fall; I have an appointment with my allergist coming up to see if it's something this time of year. Maybe mold blooms from the rain starting? I don't know.
Omg, you have the exact same laptop as my mum and brother they both love their laptop.
Jacq you’re so pretty! ☺️
I have the same computer and LOVE it!
I get a similar allergy reaction where you don't know the trigger. We think it is a compounding issue with multiple unpercived low ecposures, then one too many and you cross the reaction threshold. Annoying.
I also was thinking it could be seasonal or probably this time that is a little bit colder you get out more frequently and get in contact with allergens 😕 anyway let’s hope they don’t wet worse and disappear soon 🙏🏼🙏🏼
I have had a Dell laptop for years. I have had my laptop hard drives crash many times.
Jaquie, don't feel like you and Judd are late bloomers on the Game of Throne action!! My husband and I haven't watched it either!! Is it Throne or Thrones? Anyway, geeze. I'm sorry you're having all these scary reactions!! I'm not gonna suggest anything--1.) bc I wouldn't know what to suggest and 2.) bc I know you and your drs have and will figure it out. Just sending you virtual hugs!!
Also maybe because when it gets cooler out you are able to go outside more, which exposes you to more allergens?
Is Harlow able to alert you while in the car?
2:24 That sounds so familiar. My dad is the same way.
12:45 I'm impressed with Cortana. I don't hear Siri talk that way when I reinstall macOS.
13:01 Did you figure out why Cortana didn't appear to accept your answer?
No but it worked later
Glad you got one 😊😊
Any way that your "attacks" are triggered by the way your body reacts to the seasons? They started last winter and only lasted through the spring, right?
Oops! I guess I shouldn't comment before I finish the video. Great minds think alike, right? 🙈🙈
Lol I figured you would get to that part
Chronically Jaquie yeah haha my bad! Sometimes I just read the title/see the teaser and think of something helpful.
I also just finished watching game of thrones 😂 I'm so sad we have to wait to 2019 😭
Jaquie, I was watching a fellow chronic illness wariors video and saw something that I thought would be fun! It's a "spoonie" subscription box! The link for you to check it is www.spoonieessentialsbox.com/ . Maybe it would be fun receiving it!
Kura-chan I get these! They are cute! Lots of neat products and you never know what you will get. Things like Ipsy Glam Bags usually have so many chemicals and at least the Spoonie Boxes try to stay more natural.
I am fortunate to only have one chronic illness but to all those that have multiple chronic illnesses: if you could choose to get rid of one which one would you and why?
Just purely curious x
Simply Me Definitely my dysautonomia (POTS/NCS)! It is so hard to treat and there is not much you can do when the autonomic system doesn't work properly! Great question!
My IBS-M is BY FAR the worst chronic illness. Even my GI said it is the hardest of the IBS forms to treat. :0(
Hey guys! I need your help! My parents saw Har's sort of hammock she has in Jaquie's living room. They'd like to find one for our dog, do you guys know where they are sold??
THANKS FOR THE HELP!
Love from France guys
Watch my gear video
Chronically Jaquie Thanks a lot Jaquie! Love you all!
Nice to know I'm not the only one Cortana didn't like listening to...thought it was just something I was doing.
I just love you guys.
Could it be seasonal in that in the cooler weather you can be out more so you’re more exposed to your allergens? Not trying to be nosy, just a thought.
Maybe but no way to know for sure
Judd, always please use a GPS when u go out, even tho u know where ur going plus there might be constructuction on the roads. And listen to ur wife, cuz she is correct. Woman are more right than man.
Nice computer. Good research u did.
At least Benadryl is pink
How are you feeling today?
I am sleeping and resting
Hope things improve
Why are your infusion bags kept in the fridge and does refrigerated iv fluid make you cold? Room temperature normal saline makes me super cold. I can't imagine receiving cool iv fluid.
Janie Fetter she stores it in the fridge, however she takes it out several hours before she uses it in order to bring it back to room temp
I was just curious to why she stores it in the fridge. IV fluids are generally shelf stable.
Janie Fetter she talks about it in a couple of her videos, I don't remember which one specifically, but she does. Sorry I can't help more!
Thank you for the response, none the less!
Maybe it's because you went to Disney. I read an article recently about how they had to shut down 2 of their cooling towers to clean and disinfect them because they contained harmful bacteria that spread through the air. I'm not sure totally but it's a possibility I guess
Judd should shave his mustache lol its throwing me off! But I hope you feel better Jaquie!
Maybe it was the flowers in the truck? Stay safe!
Gabriela Guardia Nah, Judd brought her them a few days ago.
No most likely not
I haven't seen GofT.