Freaky IV Antibiotic Reaction: I TURNED RED! 😱 (11/17/17)
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- เผยแพร่เมื่อ 17 พ.ย. 2017
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Just found Jaquie today. So sorry she passed. I’m sure her videos will continue to help people.❤️
Hey y'all, I am okay today! Just absolutely drained, understandably. I am not up for replying to individual comments like I usually do, but I wanted to let you know I am alright. Also, your comments are giving me some much needed laughs! Now that the scary part is over, it's kind of funny. Gotta laugh or else you'll cry! I really needed the chuckles today, so thank you for that and all the love/encouragement!
Chronically Jaquie glad you're better ☺
Chronically Jaquie That was so so sweet of Judd❤️ HOLEY RUDOLF'S NOSE! I know it's serious, but I thought you were playing with settings for color. Glad you're better and we are cheering you up!
I'm glad you are doing better!! It looked like you had a spray tan gone wrong! Praying for you this weekend! Love you Jaquie
Chronically Jaquie the frey life was talking about red man syndrome too
Running the vancomycin slower and premedicating with benadryl got rid of the red man syndrome for me. I was able to finish out my course by running it much slower!
Hey, Did you know that you can ask the people who work in the meat departments at grocery stores to cut up chicken and meat for you? Just give them the packages of whatever you're buying and request them to cube it for you. It's a great service that saves prep time. Keep hwaiting(fighting)! Have a great day, Cat
Girl! I'm so glad you didn't have breathing issues. Big hugs.
I love how the first half of the nurse being there she’s askes a lot of questions so she feels like she’s being helpful. Literally reaching out wanting to help. XD too sweet
She probably like “Damn she can do this herself very well.”
OK, so that was literally jaw dropping, you were RED RED RED! I can only imagine how bad it itched. I'm so glad you had a nurse with you and I'm glad you are ok.
Re watching your videos. I love and miss you Jackie 😔🥺❤️
Mary Frey was just talking about this!
I was gonna say the same ! I think they are friends too
I have been watching the Frey Life for a very long time. She is so inspirational. Peter is a great husband and caregiver.
Ive had the same problem with vancomycin. That’s why I infuse it in double the time prescribed. Red man syndrome isn’t an allergic reaction, but a side effect when it’s given to fast (that’s why Benadryl doesn’t really work). Probably if you infuse in 3 hours (just lower the rate) you won’t have any problems whatsoever. At first they also said to me no more vancomycin, but 2 days later they restart it at a slower rate. They put my on 24 hour iv vancomycin (2 gram in 24 hours on a very slow rate) and I was totally fine, didn’t have any red man syndrome after.
Agree!! There is a difference between allergic reaction and side effect. I have many drugs that make me sick (more side effects). I have always been taught be to careful when you say you have an allergy to medications because it could impact a physicians ability to prescribe needed medications and resort to using second string drugs. For instance, I had an antibiotic in my records as an allergy because someone mistook my side effect as an allergy so they wrote for a second string drug and it was not killing the infection in my blood as fast as a first strung drug would have. Once we cleared up the confussion and switched to the medication that would have been choosen in the first place, I was better in no time. We simply treated the side effects before they occured or as they occured. I ALWAYS mention meds that have made me sick but preference it with what the side effects were. From there they can determine if it's worth the side effects or not.
Liesbeth Bruinekool
That's really important. Because it all does have some ... affect....till you get tuned in/cleared up/toned up
It’s definitely a rate related issue when it comes to vancomycin iv. I’ve seen it in chart records, but never in person and now this is something i can’t forget.
I have to say thank you! I'm a nurse but I never saw before the red men syndrome! You are teaching me a lot of things I never saw before so thank you! I hope you will find an antibiotic that will work for you!
Hey Jaq! A quick tip use a damp cloth under your cutting board to prevent sliding 😊
I just wanted to let you know I got my ASD diagnosis today. I never would have pursued it without watching your videos and relating so much to you when you talk about how your autism affects you. Thank you for making your vlogs! The education and outreach you provide really do change lives.
Who else watches the Fry life?
Claire Dancer Sometimes, when I can stand it.
Claire Dancer it is spelt the Frey life by the way :)
Skyler Gray why when you can stand it that’s rude why do you watch them if you don’t like them
I actau;y was thinking about mary when i watched this acure on video. As i think that is the medcation that they done med challenge on few days ago. Trying figure out medcation to help Mary
Me
Aww! I had vanco at home IV also. My scalp got really itchy almost immediately, but no red mans syndrome thankfully.
I hope you get alot of rest today! ❤
I don’t know if you remember me, but they cured my leukaemia
Isabelle B Praise God!!!
Isabelle B thats amazing! congrats! I'll pray for your continued health!
Nice 😀
AMEN!!!
That's fantastic!
I totally get the "I can't deal with this so I'm going to bed" feeling. I'm glad the redness and itchiness resolved. Har was such a good girl throughout.
I just want to thank you for posting these videos and showing how you deal with your chronic illnesses. I have an autoimmune disorder and have been refusing to wear a mask because I was embarrassed. I love going to concerts and events but I would always get sick after because of all the people and germs my body couldn't handle. After watching your videos, I finally bought a mask and wore it to a concert last night for the first time! I was so nervous but I got so many compliments- even one of the musicians on stage pointed at my mask and mouthed "cool mask!" It feels good to do the right thing for my body and I really owe it to you and your confidence. 💜
Those are soooo cute socks. He knows how to make u smile. U do really great job taking care of ur port care everyday. I donno how u do it, but ur amazing. It's kind of strange that u teach the nurse how to hand prime it. I was assuming nurses knows everything. But ur a pro at it.
So glad you are doing better, thank goodness you had someone with you.
Oh no! I'm so sorry you went through that. I'm very familiar with the all-over, deep, intense itching, but not red man's syndrome. Praying all is well today and that your medical team can find the right med for you soon. ❤
The nurse was so sweet.
I know this is old and you're gone, but I was thinking of you and wanted to re-watch some of your videos ❤
Ur nurse seemed so sweet!! Glad u had someone to help u thru this. Hope u start feeling more rested soon after that reaction.
I like watching you since I am getting educated with everything! You explain things so thoroughly and easily, and you are inspiring with everything that is going on!
Oh no!! Sorry for jinxing you -- yesterday when you said you were taking Vancomycin I thought "oh, you and Mary can be antibiotic twinsies -- hope you, too, don't get redman's syndrome" Hope it's short-lived and doesn't last the full 2 weeks!
I’m so sorry that you had this reaction :( Really hope that they get a better plan together for you soon x
Oh Jaquie! That is a scary reaction! Hope your Saturday was easier! xxxx
So cool that the nurse was ok with being filmed :). How funny that she 'learned something new' from you.
It sucks though that you have to go through all this hassle because of the MRSA.. as if you didn't have enough on your plate. You're really strong!!
Oh, you poor thing! I understand what you are going through. My husband picked up staph when he broke his shoulder. He fought the infection for 3 years, had 12 surgeries and ended up with a prostatic humorous bone. It was a long road for us and very costly even with insurance. I pray that all works out well for you! GOD BLESS you and yours.
Aww you and Judd are so cute ! It’s beautiful how he cares and takes care of you.❤️
Man that is some intense sunburn
😂
Glad you're feeling better in all seriousness though
Omgosh Jaquie!!! You were soo red, I’m so glad it got a little better 🤞
Poor baby! I’m watching this in July, 2018 and think you really are an amazing trooper, kiddo. And you always look beautiful no matter how ill you feel! God bless!
i saw the thumbnail and i was like "ok that HAS to be edited" i can't believe how red you were, how freaky!! 😱 glad you're doing a little better, keep on keeping on 💪🏼🥄💕
I could not give it a thumbs up as I felt so bad for you, but you are always a thumbs up, I pray that made sense. Sweet socks.Kudos to you Jaquie, you are excellent at being efficient with the raw feeding, makes me keep getting better at it, I am a sloppy woman at it but getting better, mind you I have been feeding raw to dogs for years now but with my family I could never get more than 1-2 days in order as we also had 3 sick senior dogs with individual needs that we rescued. They taught me lots on how to feed myself and my family, now we hardly eat any junk and if we do we make it ourselves or look for really natural stuff, no process or by products, wow are we all better. In fact I hardly ever get those mild gastroparesis issues anymore. Wow you started turning red as you started complaining of the itchy head, you can see it in the video. Forgive me, if you are reacting to the med why take more? Did I miss something in your explanation? Wow when I turned red like that it would then go crazy into hives too and start my mast cell craziness. So sorry for all that happening to you. Maybe ask your Doc on more natural things, it may be worth aksing
Thought of you today and watched this. Miss you, beautiful soul. ❤️
Sorry you're having so much trouble with the antibiotics! I live in the Sarasota/Bradenton area and recently got my port removed. I have a lot of supplies that I do not have use for, and was wondering if you wanted any? Such as dressings, tegaderms, needles, dressing change kits, or sterile field saline flushes. Let me know!
I have a similar reaction. Half dose benadryl pre med, 3x time (3 hrs) and don't take within 3 hours of any other antibiotic. Then I rarely need the other half dose.
It's a hapten response that is mostly commonly seen with pushed antibiotics (as in most times you see one is with the IV push). It of itself is not an allergic reaction but can lead to one.
I spent a whole summer on the outside of a hapten response dying tissue culture during an undergrad internship and 6 days over 6 weeks inside.
I have multiple anaphylaxis triggers. It was a pharmocologist from the local CF clinic that helped us figure out a protocol as this was when MRSA was just raising its ugly head. (She was a friend from before my accident when I did basic CF pseudonymous antibiotic research in the late '80's.) Mary Frey has the same reaction (and this week too by coincidence). My friend suggested, (called her as soon as I saw red man starting), to have your team talk with a pharmocologist (not immunologist the most common first stop) attacked to your local CF clinic. If possible, since its know vancomycin works on the bug to stay with it if possible and not go to the second tier antibiotics from a stain resistance development perspective (again why the CF pharmocologist). Over use and misuse of antibiotics is one of the main reasons resistian a trained develop.
That the 2 cents worth from your friendly old microbiologist's corner. Oh the iche rivals measles and chicken pox... Ask your mom for the tricks to cope with it scratching (which is what Harlow was trying to figure out. You where scratching in the wrong spots for the practice but didn't have the stuff that makes an actually alerting thing. Onyx did the same thing and that's my dog behaviorist theory anyway).
Just passing this along. You figure out something; you always do.
Poor you, Jacquie. I’ve had the same reaction to vancomycin, with huge hives on back as well. I am sure you felt pretty awful. Thank goodness you had a nurse with you! I hope you are back to normal today. Xoxox
Oh my! You did so good not itching. I am glad the doctor made the call to stop the medicine. Hopefully they can find a good treatment solution. Thinking of you. Hugs
My love, you went through so much! Now, by watching this all l see how much Jaquie "heroed" me through it all! Thank you, my dear! Love you!
Mary from the fry life was talking about the the same drugs and red man syndrome. she got around with how the drugs where administration. it was a few days ago. might want to watch her vlog.
OMG oh my goodness I'm sure glad you're feeling better much love just rest you're an inspiration I'm telling you that I'm so glad you're here and you have a channel but educate a lot of people much love and your socks are amazing I collect really we're past the knee socks and I always say my socks are amazing I'm glad your mom's there
Oh hun!!!! I can relate to this so much!!! This happened to me with vancomycin two years ago!!!!! It's sooooo itchy and so scary! You feel better and get some rest!!! ❤️
You are so strong Jaquie 😇
I was itching just watching you, im glad that the systems subsided for you god it looks so painful
I have this reaction to Vanco as well! Highly unpleasant and I'm sorry you had to go through that. First time they were treating me for sepsis and becuase of how quickly I was going down hill they wanted to get it in me as fast as possible. That plan backfired lol! The red man's syndrome stuff almost landed me in ICU but thankfully, like you, the acute phase didn't last more than 4 hours. We cautiously gave it a try about a year later with the oral form to treat Cdiff and whilst I still had some itching nothing like the RMS. About a year ago I had meningitis and they really wanted to use iv vanco what we found was that if we infuse it SUPER slow than I don't get the reaction, this was inpatient though so very diffrent circumstances but maybe there's still a chance if you absolutely have to in the future. Praying that they can truly find SOMETHING to treat with that doesn't make you sicker. Hang in there Jaquie!
Was wierd watching this, had a port placed about 36 hrs ago and seems like I'm having a histamine response which is turning me red and itchy so I feel for you! Praying!
Oh Jaquie I'm so sorry . You can't seem to catch a break. I hope docs figure something out soon. That was a scary reaction. Praying for you
Thinking about you! I was really worried when I saw you getting so red! I am glad it went down!
Wow, that was super crazy!!! I am soooo glad that it cleared up! But, did you feed Harlow egg shells? Is that okay for her?
After about 3-4 weeks on vanco I also started turning red. Thankfully I was about done with the hospitilization and home care. Hope you feel better soon! Xo
Jaquie, With your port, any time you access it or put any Med thru your port, should you not have gloves on (and when opening caps on the syringes using in your port)?? At work we have to for any central lines and when I had my picc, I also have to use gloves any time I flushed or changed the IV bag.
Wow!!! I have never seen that ..so crazy..glad your okay Jaquie.
hope you are feeling better, sending hugs. I had the same reaction its miserable I feel for you.
My brother just got diagnosed with MRSA and I just thought of you instantly and I'm very gald that his meds didn't go like urs (i got really scared it would)
Hope you’re feeling better. Mary Frey is in the hospital and she predosed Benadryl to help stop red woman syndrome.
Oh my god! I was thinking you photoshopped the thumbnail...i got a little spooked when i found it was real! I hope it clears up soon :)
If I took that much Benadryl I'd sleep for a week!
Kentucky Ranger lol well when we take that regularly our bodies adjust to it. I can take the max dose without a bit of sleepiness really
The iv one hits me way faster then the pills but sometimes i have to take more to get relief
She likes the high from it...
Wow... that was bright bright red. So sorry for the bad reaction 😕 feel better!
I am so so sorry. Please get better soon.
Same color as my bright fushia curtains. I can't wrap my head around that color! Glad it cleared up tho!
Felicitaciones por ser TAN VALIENTE.
the monterey bay aquarium in monterey, california is awesome!!!!! gotta check it out if youre ever near the bay area
I had the same reaction with Vanco. It's miserable. I'm glad yours went away fairly quickly, and that you didn't need your epipen.
You are SUCH an AMAZING fur Mama! 🏅🏆 🐕
Glad your airway stayed open through all of this.
This happen to me when I was on IV Ceftriaxone. A cool or lukewarm bath helped me the best. I also tried the Aveeno baby soothing bath treatments for eczema as well, but I don’t know if it helped! It definitely didn’t hurt so it’s worth a try! I know the itching burn is crazy uncomfortable. I’m sorry you’re dealing with this now on top of everything else 😢 stay strong ❤️
I mean taking the bath while you’re taking the antibiotic because as soon as the antibiotic stops the itching burn lessens!
i'm not sure one cant take baths with a feeding tube and infusion port though
Oh Jaquie....I feel so sorry for you! Reactions are exhausting and can be scary. I had an IV Vanco reaction...raised hives, huge lips, tongue, face....it was an anaphylactic reaction. I was in the hospital at the time. I'm glad you have a nurse with you! I just want you to know that you are always in my prayers. Also, do you have a P.O. Box...if we would want to send you fuzzy socks to add to your collection? We have some good ones up here in Minnesota :-)
Oh my goodness.., Mary Frey had that before... Feel better soon!
I had it with vank when I went septic because they left a percutaneous nephrostomy tube in my kidney that would no longer drain as it had somehow come out of place. There was urine in the line that still had some access to the inside of my body. I was in terrible pain, with a fever that continued to rise, along with lots of nausea, chills, & incoherence at times. So I finally made the dreaded trip to the ER. They discovered I had staph in my blood & urine at that time. As soon as the vank was administered, I knew I had MORE trouble. Almost immediately my scalp got very itchy & then it began to BURN. I have hot flashes from my hormonal imbalance due to polycystic ovarian syndrome, so I know hot, but this was insanely hot. I felt like my scalp was on fire, the fire spread to my face & began to move it’s way down my body. I didn’t know but I was almost as red as you when the nurse walked back into the curtain & dropped some things as she gasped. They quickly determined it was red woman’s (haha that gave me a chuckle when you said it!) syndrome. They quickly called for IV Benadryl & pushed it FAST. Another dose followed not long after. While feeling like I was in the 6th circle of hades, I started having tightness in my chest & a bit of trouble breathing. I feel it was part anxiety, part reaction to the med. I now list it as my only allergy. I have been given gentomyacin, rosephnin (spelling?) without incident as I have a rare genetic lottery kidney disease called Cystinuria & I rapidly form very rare/hard cystine kidney stones. I have had 59 procedures since 1999 to remove stones, 36 of which punctured my back (percutaneous), the rest went up the urethra (ureteroscopy). Due to my incredibly active stones, I have had lots of UTI, bladder, & kidney infections. I’ve also had pneumococcal pneumonia, strep throat many times, & so on. So I’ve been exposed to a wide variety of antibiotics, but none were as bad as vancomycin. I am sorry to hear of your recent troubles. I know you probably hear this often, but I think you handle your health issues very well & love your upbeat/positive attitude. Sending prayers your way that you can put all this behind you soon, as you have many other things! Hang in there & God bless!
Those socks are adorable! I also LOVE the Georgia aquarium!!!! I have a pair of socks like the sharks.
Wow I’ve never seen anything like that before with the redness. I’m glad you are okay. As always I wish you well my friend. Xx’s
How do you keep Harlow clean in regards to raw feeding? I just started my dog and want things sanitary.
Good morning beautiful pups!
I experienced red mans syndrome a few years ago while on vancomycin. It started while I was still in the hospital, but nobody seemed concerned. The rash continued to spread as we continued the infusions at home. Home nursing was very alarmed at how red and itchy I was. They called my Dr who said that we were to continue with Vanco and I was to take Benedryl for the itching. Over the next 4-5 days the rash went away, but I was miserable while it lasted. I had never heard a name for the red, itchy rash until seeing your vlog. It's funny that red mans syndrome is a common side effect while taking Vanco, but no one on my medical team at the time seemed to know about it.
Omg hope you feel better feel so sorry for you
I've never seen a red woman! :D This is so cool! Thank you! Glad you managed to make it go away of course.
You two should visit the Newport Aquarium here in Northern Kentucky sometime! I live near it and it's amazing. :)
That nurse was so awesome and chill! That looked so uncomfortable:( glad youre okay!
BringOnTheRainxx3 Yeah! Definitely wouldn't have helped if the nurse started freaking out lol.
Jaquie ! You might have answered this before . But what is the straw for outside on the porch ?
I'm on both antibiotics at the moment and I take the pill form of Benadryl about 5 minutes before my Vancomycin or I get red man syndrome which I've had before. It's a pain in the butt tho to deal with. Along with everything else we have going on.Mary Frey was talking about this issue aswell. Sending you healing thoughts and prayers
Love your videos, could you tell me what you use for your video editing 😁
Holy cow!! You looked super sunburnt!! (Like barbeque pork, actually!!) Glad you are okay.
She looked like Hellboy's sister.😁 Hope you are feeling better.✌
LOL
You should check out the Boston aquarium when you're able to travel. It is so cool there!
If you go to California sometime there is a really good aquarium called Monterey Bay. There is a shark tunnel a wave machine it's really fun and if you are lucky you might see some of the rescued otters in front of the aquarium with sea view!
You looked like you had major sunburn wow....the nurse was awesome and she even learned from you how awesome..you two made a great team...hope you were able to sleep and when you woke up all the itchies were gone. Go Warrior!
You poor thing! I'm sorry you're itchy but the red made me laugh. It was so bright!!! Hope you're feeling better today! I've just been laying in bed catching up on your videos lol guess I'll get up now!
How do you do them at home I get three infusions a month and have port. I have autoimmune diseases and never feel good enough to go anywhere.
Those socks are the cutest. Mary Frey also gets redman syndrome with some of her antibiotics. Hope things get better for u.
You are so brave!
There is the Shedd Aquarium in Chicago too :)
I used to have a port in my arm, I was supposed to take IV antibiotics for a year, but I was stopped early because I got severe rashes from it, it was one of my first reaction to anything
Hope they can figure something out, I've seen that if they pre dose w benadryl and slow it down super slow that even if you had a reaction once you might not have it again. I hope that's the case for you bc my hubby n i both had mrsa n I knw how limited the antibiotics are for that. Im glad the rms went away fairly quickly so you didn't need to goto the er. Lots of prayers for you Jaquie and your family. ❤💜🐕
My mother had a lot of trouble with allergies and respiration problems so my parents got this air purifier that worked really good.
Some time later they started getting a bad smell in the house that had gone on for about 2 weeks. No one could really identify or locate the source of the smell, but it was getting worse and worse over about 2 weeks. I found the cause eventually when I was there and used a step ladder to get into the cabinets above the fridge. I found a package of frozen shrimp on top of the fridge.
Apparently they got the shrimp from Cosco then forgot to put it in the freezer.
Was the red considered an allergic reaction or a side effect? That was a lot of red! So glad you are better now.
Just noticed I have the same mini fridge in my dorm right now as you except it has a separate freezer door 😀😀
Come to California our aquariums are amazing if you ever come to Cali let me know I’ll show you the amazing aquariums!
I recommend Baltimore’s aquarium.
Wow! I’ve never seen anyone that red! Mary Frye is doing Vancomycin now, too. Hers was done over two hours because she has had redman before.
The Newport Aquarium is wonderful! If you’re ever up for a drive to northern Kentucky haha! The people there are great with disability accommodations, too, which is a plus!
I get Red Man’s when I’m on Vanco! I just got off it for my MRSA in my lungs a few weeks ago. I slow it down to about an hour and a half or 2 hours. I haven’t turned red but I get super hot and itchy all over. Especially in my head and chest. I’m so sorry it happens to you too!! It’s never fun I know. The things we have to go through to stay healthy.