Xolair: Treating MORE than My Mast Cell 👊 (3/27/19)
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Your Godfather is adorable and so sweet! Hope you feel better soon!
Don't mess with Texas!
I think the hanky thing is more of a generation thing. My dad never left the house without one.
Its an old school. Not even a southern. My dad learned it from his dad, my father always carried hankies for blowing his nose but also had some for his ladies.
He even taught my fiance how to do it and he does it as well. You godfather should teach Judd how to do it. It honestly sometimes is a lifesaver to have those in situations.
My husband is in his late 30's, I've known him since he was 15 and he has always carried a hankerchief in his back pocket. I believe his dad does as well. They were both born and raised in the South. Your Godfather seems like a great, fun guy!
OMG Your Godfather just made me really miss my dad so badly. He always went to work dressed in a tailored three piece suit when I was little and every Christmas I would hand embroider a set of handkerchiefs for him which he wore in his top pocket. Thank you for that memory
I recognized Richard's accent instantly. I'm from Fort Worth Texas and now live in Georgia so it's always nice to see another Texan. Glad he's so sweet to you. :3
Hope you feel better soon Jacquie sorry your feeling ill today your godfather seems like such a sweet man sending love your awesome Jacquie
Hey Jaquie I know you probably won't see this because you're so famous and busy being a warrior. But I wanted to say that I just got brain surgery after finally getting a diagnosis to explain my symptoms I had for over a decade. This last month has been pure hell especially since my body rejected all pain med options except steroids and Tylenol. Anyway you have been a huge inspiration and you help me keep going. And I especially love that you talk about the low moments.
I have love for you Jaquie. Gentle hugs ~
I hate it that you're feeling sick but I love that you're able to talk about it. I'm not at that point yet. I wish I had someone to talk to when I'm feeling terrible but I don't want to bring down my family. Happy you have a great family and a great furkid.
I know the feeling.
Sleep well! I’m praying for things to be better for you tomorrow-or even more tolerable, but if that’s not possible-in the next couple of days! We are cheering for you!!!
I know a Texan’s drawl anywhere! It’s where I was born and raised!!! What a sweetheart he is!
Hope you feel better soon. Enjoyed “meeting” your Godfather Richard. He seems like a very nice man with a great sense of humor. Love Harlow.
just got my pots diagnosis today :( sending you judd and hippo lots of love and prayers 💗
Your godfather is so lovely! Aww 🥰
Hope you start to feel better soon Jac
Today has been a hard day. In fact, the last few months as symptoms have been worsening has been mentally and physically challenging. I hope you feel better tomorrow. I am going to start Xolair in about 2 weeks. I didn’t know there might be a “hangover,” but I am glad to hear it gets better the next day or so. I was concerned about the anaphylactic response that is possible after injection, but I think I am moving forward despite that. Feel better! We fellow warriors appreciate your content and the positive thoughts sent our way!
I know about feeling awful! For the past month I have been having episodes of syncope, and my doctors keep shuffling me to new doctors, and nobody has had answers for me. The last time I went to ER, Wednesday, they did an angio and told me I have carotid stenosis. That means that I am a ticking time bomb for a stroke, it is so bad I may need surgery. So I know about terrible, and I'm only 41, too young for this.
Praying for u Jaquie! Waiting for my first xolair shot. Not sure what to expect but hope it helps my asthma and skin rashes!! They said the mast cells are ok but I’m really sick so prob mitochondria issues. Looking to move to Florida cause Vegas is lacking EDS doctors, Mayo in Az is not on my insurance plan so the doctor are unable to care for my multiple chronic illnesses here and feeling like I’m dying so I’m praying God can help me w this move. Looked into Cali last summer twice Ucla decided not to see me after 6 hr drive I was 15 min late due to gps issues. Planning a trip to FL in September to go to Disney and hopefully look at some properties
Looove his accent. I got to live in the south of the US for a while, Mississippi/Texas and it was awesome and I miss it so much. I wish I could come back.
Today was the first time I have had to leave school because of my episodes....it was kinda scary....My band director is kind and caring... he lets me sit in his office when I don’t feel good... today was the second day in a row that I had to sit out....I don’t know what doctors I should see... Jaquie, I want you to know how much you have inspired me....I don’t think that me finding your channel was a coincidence.... I think God put you in my path to show me that even when things are tough... I can still move forward.....💜
I have Dysautonomia. It’s hell on earth. I was given Midrodrine and sent on my merry way. I don’t take it because it makes me violently sick. I’ve ended up so many times with POTs and they don’t have a clue. They give me a bag or two of saline and goodbye and good luck.
I wish you all the best xxxx
I've been watching since before I got sick and you always make me remember to be greatfull. Today I'm having a hard day with depression about being sick and this video really helped. Thank you
Your videos are so awesome and I love your family! Watching your journey had really helped me through a very similar journey. I got to learn about things before I got official diagnosis and it actually helped in my search to answers. Thank you so much for making these videos, they really brighten my day and give me hope.
My resting heart rate spikes to around 110 sometimes and I thought that was exhausting! Your such a strong fighter!!!
My dad always carries a hankie! So did my grandpa on my mom's side.
Your God Father is so sweet. You and your family are always in my prayers 💗
Jacquie, thank you. I'm having a really bad day with my neck pain flaring up really bad. Thanks for reminding us at home, that we're not alone. P.S. Hippo is a sweet heart.
I hope that you feel better now and that the xolair soon starts to kick in again. Your godfather seems to be a very nice pleasant man - the k9 handkerchief is super cute 😊
Wish you all the best from Germany 🇩🇪
My father was raised in Canada by European parents. He always had a fine linen handkerchief with him.
I hope you feel better soon. Sleeping for four hours is your body's way of saying I need this now.
Oh and handkerchiefs are a thing here in Texas. My grandpa has one.
Your godfather is a very sweet man, Jaquie. Here is hoping and praying that you now feel a lot better after having your injections. 🤗❤️🙏🏻🙏🏻
So sorry you are having a very challenging day and hope you are your usual cheery self soon. Xxx
Glad you were able to get your shot. The handkerchief is definitely a good thing for a man to carry with them. They may need it, and it also is a generational thing. My husband and my son both carry one with them. Yes you do use it for you nose if necessary. Might be gross, but it is reusable.
Richard is a real southern gentleman, ready to offer up a hankie when needed. Nice job. And I guessed Texas before the hint. Yay me.
So glad you’ve been able to manage without needing the hospital!
I saw your face and knew it would be rough. ❤️ Hope you feel better.
And the hanky is traditionally a male thing. Very old fashioned thing!
I feel ya sister. I need to find several better doctors for my stuff. I’m not happy with them. The struggle is so exhausting. I can’t seem to find a doctor who will allow me to have a port for fluids at home. They’ve all said, those aren’t good for ppl with autoimmune diseases. What they don’t seem to understand is I’m so exhausted and I have to lay down the majority of my day due to the disautonomia and pots, etc... I’m not able to drink the amount of water I need to stay hydrated. My pain management specialist is also no good. I wish I was closer to Florida so I could see the doctors you have already tested out and who seem to be helpful. I dread the hunt. Sending you spoons. Btw, that is so cool that Harlow tells you when your heart rate goes up. I hate it when that happens and I get out of breath and fainty
Praying you keep your head up. You do perk up around family and friends, so I hope this year is filled with love from them, and pain is manageable.
Its an old school thing, my grandfather always carried one, he taught my dad to carry one.
Started immunotherapy Thursday. After math is all over pain with spasms,and the usual extra stuff. Hope you feel better sweetie. Hope the shot helps out.❤❤❤ Hippo 💘
I'm being tested for Dysautonomia in a little over a week! Nice to know about that coat hanger pain thing, I get it a lot but never had a term for it. Thanks for having such informative videos!
Hope you will feel better soon. I have a spine mutation and today I had a tough day as well .. or have. Can't walk, cause my back hurts so much. I feeel youu.. greetings from germany.
I do hope you'll feel better soon.
So sorry you weren’t feeling well. I loved getting to see your God Father! He seems so amazing and sweet! 💜
I KNEW IMMEDIATELY THAT HE WAS FROM TEXAS
oh my god are our accents really that aggressive?? 😂😂😭😭
Have you considered getting a yup collars counterbalance for increased support on you and Harlow? They come in pink and are not too expensive. It might give you a little extra help when your health gets rough.
I take Xolair for asthma. Not sure it helps, wish it did. I am still on a maintenance inhaler. Your godfather is great!
Hope you feel better soon ❤️ what a great day buddy to hang out with today 👌🏻
I have my heating pad on my cape or coat hanger pain this morning is bad as well. I do not have the same disease. Mine is from Klippel-Feil Syndrome. My whole spine hurts. I pray you feel better soon. Get your Zolair asap
My uncles carry hankies. It's and old gentleman's thing. But a good thing.
I had to go to urgent care today. I told the nurse doing my check in the scale should moo when you get on.
Hope the shots help and you feel better soon. 🎈
You have a great dog. I hope you feel better soon. I have bells palsy for 6 months now. I am still recovering.
Your godfather is so sweet! I'm glad you have so much support.
Enjoyed seeing and meeting your Godfather. My Dad always carried a hanky. He passed in 2001, so I have most of his hanky's. I have them put away with other mementos of him. It is a Southern thing and generational too. My (Immediate) family were all born in Texas but moved out to California in 1960, when I was 8 years old. I still have a accent at times. When I talk to cousins still in Texas my accent comes out then a lot. LOL
Hope you’re feeling better!! 💚
I love your videos! Lots of love from Sweden!!
So glad to hear your mom covers her eyes too. lol I'm a needle freak. Hate them. I cover my eyes when I take my kids to the Dr too.
I'm also wondering if swapping from the saline or LR to the D5/10 has anything to do with it. There isn't as much/any sodium in it.
Update: you mentioned the same thing I was thinking!
Go Astros!!
your videos inspire a lot. keep doing and good luck.
sorry your not feeling well Jaquie!
Your Godfather is sweet. I have learned a lot about the illnesses that you have. Harlow is amazing :).
God bless you sweet girl. LOVE and PRAYERS ALWAYS from Gainesville Florida.
OMG Cotton Candy is my favorite flavor too, it is sooooo good!!
Your God father makes me smile. Lol I carry a hanky too though so that's funny. His accent is awesome.
I always think I’ve been thru allot you win the thing I love about you know everything that’s happen to you when I go thru my list I get lost I need to get organized keep on going👍
i would have said austin Tx
Is there any specific treatment you use for the resting tachycardia other than the fluids? Resting heart rate of 145 must be extremely uncomfortable. Thankfully, you have Harlow to watch out for your well being. I'm hoping you'll be better tomorrow. Lots of love.
I'm from Texas but people think that I am from England because people think that I have an accent.
Go Astros!! 🎉
That’s funny, my little cousin is obsessed with Jose altuve and named their golden doodle after them. When you mentioned coat hanger pair is it muscle soreness that you experience? I have problems with the coat hanger shaped give the muscle tightness and almost a pulling sensation. Not fun 🙁
Great southern thing!
Hey Jaq, I was wondering if u take anticonvulsants, how did u stop the seizues..? Are they def never coming back? My cousin has epilepsy too. Have a good day xx
You are Beautiful and Strong!
my grandfaher always had two one for him one for a lady but i wish they would come back
He seemed like a decent guy I must say
Sorry you're feeling like garbage today....boy, do I know that feeling! Your Godfather, Richard is not only adorable, but he's a true gentleman. Is he single???? Lol's. Hey, I've always wanted to move to Texas anyway! Lol's.....quite tired of the snow. Funny thing is, I've been looking to move to either Texas or Florida, but leaning more towards Texas because of Florida's humidity and the amount of bug spraying that goes on. On a serious note....can your godfather give me some recommendations? Love and Blessings, Grannie Annie from Maine
My dad carries hankies around 🤧😁
Hey jaquie
Do your teeth hurt?
Are hanky’s for snot or tears or both
So sorry you feel this way, don't video for us, take care of yourself, I mean we appreciate it, but really we are good with taking care of you. For those who do not know with help you can sit in a chair and play ball to get the dyst. to stop or slow down, it is something my dog got me to do and it works, it was hard and you do need someone around to keep an eye on you but the sitting up pressure with the movement has been known to help, so if you want to try it get support. Here is one link www.dysautonomiainternational.org/page.php?ID=43
www.dysautonomiainternational.org/pdf/CHOP_Modified_Dallas_POTS_Exercise_Program.pdf
Yahoo for Godfathers. Some of my ancestors are from Texas, so awesome to you Richard. Like the funny photo peace bombs.lol
Medicine can be one component, but look into them all and at different times, as various combinations can work for different people, just get help figuring it out with someone who know. Also using a method like fast intermittent training can allow for the same results in less training, again do this with help. I rarely get my attacks, my dog has been good at signalling me and even when to quite, I know not all SDs can do that but if you play with your dog often enough they get used to your heart rate and your symptoms, so ball playing with your dog from your chair/couch can be really good. Hope this share helps someone in some way.
I have actually found that hard fruit candy helps my nausea. Sorry it is not helpful for you
Minty gum here.
Yes, fruity hard candy helps my nausea also.
Love your godfather...feel better soon ♥♥♥....
Love you
6:51 You look a lot better between getting the shots and getting in the car
Don't feel bad, the only time my mom held my hand was when I was getting a Cortizone injection in my thumb. I had to look away thought cause THE NEEDLE WAS HUGE!....Why do they use such huge needles when they don't even insert it all the way?
It sounds like mine but not as drawl. I guessed right texan. Im close.
What a awesome and engaging man your godfather ....he is a delight listen to he is interesting !
Love you
Your God father seems like a fun guy lol
I’m in love with your Godfather!
It almost sounds like your in a withdrawal from the Xolair injection, like as if your addicted to it or something. Sorry if I offended, I don't know how else to describe it.
Your Godfathers so nice:)