Voices of the 1 in 17 - Rare Stories

Voices of the 1 in 17 - Rare Stories
Introducing Dermot Devlin, who lives with a rare disease called Mucopolysaccharides Morquio. ‪@MyWayAccess‬
"Our 'Rare Stories' series is a reminder that behind every statistic, there is a person with a unique story. These are the stories of people in Northern Ireland who face extraordinary challenges with strength and grace every day. By lending our ears and hearts to these narratives, we can contribute to a more inclusive and supportive society for all, especially for those with rare diseases who are often left in the shadows. We invite you to join us in listening, learning, and advocating for change."

[@user-hg2kw5op3n]

Dermot, I rem you as a little boy when I would visit my dad in Greencastle. You are a fantastic young man who speaks so clearly & eloquently and has a very important message to us all.
Let's hope those in charge are taking note & make changes, to make your life better as well as for others. Ann. (Martin Eddie!)

[@juliepower5669]

What an ambassador you are for all of us Dermot

[@Missadventure79]

You DO matter, mate. You’re truly inspirational to so many. Thank you for the insight.

[@berniedrayner9002]

Dermot, you were the first person I met with Morquio all those years ago and it had a great impact on me. You’ve been a friend to all of us. Keep up the great work Dermot xxx

[@jessicaabbassi1140]

This was very informative, thank you so much for sharing. 💜💜💜

[@jessicaabbassi1140]

Dermot 👏🏼💜