I'm 9 weeks post AHSCT for PPMS (edss 3.5) Increased spasticity started around weeks 6-9 post. Although I've been told that spasticity tends to increase in most MSers post HSCT for many months I didn't have an increase until as I said week 6. As it got colder in Toronto this December 2023 and I stopped walking 8 -10 blocks outside and got out of my daily habit and my spasticity increased so it has been a downward spiral for the last few days but today I'm up earlier and doing the MSgym spasticity exercises. Today, I feel more hopeful that this spasticity was mainly due do to HSCT (which supposedly tends to last for several months and the last week's diminished activity and exercise - and less likely my PPMS actually having progressed markedly in the last week or two. I like these you tube videos as they are way easier to navigate and find things than the Kajabi which makes it hard to at a glance all the lovely MSgym vids that trevor has graciously given. Feeling gratitude!
Hi Trevor I have HSP (Hereditary Spastic Paraplegia) instead of MS but will be using your Free Spasticity Exercise Guide daily since I do fall and generally rely on a cane. I like the exercise routine and will share with some of my HSP and MS friends. Thanks
I've shared this to more ms groups too. The challenge for me is that I can't work on the floor. I need things I can do while sitting in a chair or possibly while standing holding onto a rail or rollator. Spasticity and tightness are huge issues. These are great videos.
Thank you so much. So glad you are these videos are helpful. Welcome to the tribe. You can try these on your bed and I do some chair exercises seated in the spasticity program. With this, I am doing a whole series of chair exercises next week in our Facebook group. You should join: facebook.com/groups/themsgym
Thank you, I did! I'm in a levo standing wheelchair atm. I can use a rollator for a couple steps to transfer and I would like to build up to a measurable distance. The limiting factor at present, is leg weakness.
I had a stroke at 34 and have had these symptoms hit me like a wall of bricks a month into the recovery process.. have had the symptoms for several months now and the stretching/massaging doesn't cure it, but it does bring relief!
We’re here for you! Take your time, partner with your body, and you can come back from this. Use this channel, check out our website. Daily movement, breathing, good food, and stress reduction will be KEY! 👊
@@TheMSGym I'd also add that it is very hard for me to lift the toes on my left foot (affected foot). They usually curl under but even against a flat surface it's extremely difficult, almost numb or paralyzed. The neural area of the brain that was damaged controlled that area. So I'm fighting a dual issue I think.
Hi Trevor… any thoughts on exercises to help reduce/prevent clonus during sleep for the side of my shin. Very disrupting to my life! Any thoughts are much appreciated!
My foot wants to pull back to my shin and i use kt tape down my foot and up the back of my leg. First time in 5 years i stood on my tip toes. 3 days on 1 day off. It helped more than botox
I find that I don't have that much problem with my left foot and toes which I can raise pretty well...it's my bum right leg that is weaker with the foot drop. I find I can only raise my right big toe and second toe and the other three don't want to move! I can't seem to be able to get them to rise up! Should I encourage them to do that by manually raising them with my hand? Would my brain get the message better if I did that? Thanks for another great video with much needed info!
Massage tender areas on bottom of foot. Stretch and more toes, stretch and move ankles. Your nerves are being smooshed (medical term) by your spastic muscles.
Per researching the You tube sight for you, I found all the collection of videos to handle body spasticity. I feel like this may be something I might work on exclusively OR is that crazy? How do you see this working best, generally speaking, especially for someone like me, excited for results but not sure about mixing it up when I'm so spastic & unbalanced to begin with- let me know - like I said, I tend to get so enthused I lose perspective easily.
I have a severe spasticity, i had a spine surgery 4 years ago and became paralyzed from chest below. I'll try to implement your videos now to improve my walking, thank you. My IG @owenoeel
I try to do other exercises like kettlebell, trx, pilates, yoga, etc. Do you think that I should do these spasticity reducing exercises prior to or after a workout? Before and after?
Ok so I was massaging the ball of my foot and just as you said Trevor, "when you come to a tender spot, continue to massage that area" I panicked a bit because I felt a hard spot and my thought was, "oh no, what's this?" Well, I felt the other foot and low and behold, I have the same thing on the other foot...It's called a bone/joint Kelly:/ Silly me..lol..Thanks again Trevor for being on this journey with us MS'ers.
Been trying this exercise but I find that I cannot lift any of my toes on the right foot (which is my weakest). If I continue with these will Nero plasticity kick in eventually?
My spinal cord MRI is patchy so doctor suggested me brain MRI, spinal fluid and blood tests but all are normal. But I am not able to pull my right ankle and feel weaknesses while walking.(from 2years ) Any suggestions
Lisa, you can do these exercises in your bed or in a chair. A chair is a great way to release your feet if you can get bring your foot up onto the opposite knee. If you can't do that you could place a lacrosse ball or tennis ball under your foot and roll the ball using your foot.
Neuroplasticity is a real thing!! Believe in your body!!
I’m not an ms person, but thank u so much for this video! I am paraplegic now and my toes and feet benefited tons from your video!
Just found your site today.have lived withMS for 50 yrs…wish I’d seen this years ago!!!😮
Thank you so much. I'm basically trying to be a physical therapist for my sister who suffers from MS and these videos are a life saver
Happy to help!
I'm 9 weeks post AHSCT for PPMS (edss 3.5) Increased spasticity started around weeks 6-9 post. Although I've been told that spasticity tends to increase in most MSers post HSCT for many months I didn't have an increase until as I said week 6. As it got colder in Toronto this December 2023 and I stopped walking 8 -10 blocks outside and got out of my daily habit and my spasticity increased so it has been a downward spiral for the last few days but today I'm up earlier and doing the MSgym spasticity exercises. Today, I feel more hopeful that this spasticity was mainly due do to HSCT (which supposedly tends to last for several months and the last week's diminished activity and exercise - and less likely my PPMS actually having progressed markedly in the last week or two. I like these you tube videos as they are way easier to navigate and find things than the Kajabi which makes it hard to at a glance all the lovely MSgym vids that trevor has graciously given. Feeling gratitude!
thank you, great stuff!
I shared this Playlist in two big german FB MS groups (4600 and 7600 members )
andigmxat thank you much! Let's rock this out. If you want to join our closed Facebook group, here the link: facebook.com/groups/themsgym
The German invasion began last night! Thank you! Did you join The MS Gym on Facebook yet: www.facebook/groups/themsgym
This is was so needed I have been struggling with the spasm in my feet.Thank you for this
Hi Trevor I have HSP (Hereditary Spastic Paraplegia) instead of MS but will be using your Free Spasticity Exercise Guide daily since I do fall and generally rely on a cane. I like the exercise routine and will share with some of my HSP and MS friends. Thanks
Ken, that sounds like a plan! Glad to have you aboard and that you are already finding value.
I've shared this to more ms groups too. The challenge for me is that I can't work on the floor. I need things I can do while sitting in a chair or possibly while standing holding onto a rail or rollator. Spasticity and tightness are huge issues. These are great videos.
Thank you so much. So glad you are these videos are helpful. Welcome to the tribe. You can try these on your bed and I do some chair exercises seated in the spasticity program. With this, I am doing a whole series of chair exercises next week in our Facebook group. You should join: facebook.com/groups/themsgym
Thank you, I did! I'm in a levo standing wheelchair atm. I can use a rollator for a couple steps to transfer and I would like to build up to a measurable distance. The limiting factor at present, is leg weakness.
QuantumTwist, let me know in the FB group who you are. Type Quantum Twist in your comments
I had a stroke at 34 and have had these symptoms hit me like a wall of bricks a month into the recovery process.. have had the symptoms for several months now and the stretching/massaging doesn't cure it, but it does bring relief!
We’re here for you! Take your time, partner with your body, and you can come back from this. Use this channel, check out our website. Daily movement, breathing, good food, and stress reduction will be KEY! 👊
@@TheMSGym Thank you so much for your support! I haven't been myself of late so any kind words are appreciated.
@@TheMSGym I'd also add that it is very hard for me to lift the toes on my left foot (affected foot). They usually curl under but even against a flat surface it's extremely difficult, almost numb or paralyzed. The neural area of the brain that was damaged controlled that area. So I'm fighting a dual issue I think.
I have exactly what you described. I can't thank you enough
hi trevor. i have a foot drop..i wanna ask how if i couldn't pull my toe back? cause i couldnt do it
Excellent.
My feet became extremely cold when I did these exercises. Love the videos
Hi Trevor… any thoughts on exercises to help reduce/prevent clonus during sleep for the side of my shin. Very disrupting to my life! Any thoughts are much appreciated!
Any ideas for me I’m having problems knowing where my feet are while driving I’m afraid and I’m the main driver in the family
My foot wants to pull back to my shin and i use kt tape down my foot and up the back of my leg. First time in 5 years i stood on my tip toes. 3 days on 1 day off. It helped more than botox
Thank you for your videos. Seen my neurologist yesterday and she suggested your workouts. Told her I was already subscribed to your channel
Thank you for this video! How often would you suggest doing these stretches?
Daily my friend. Gotta change those brain patterns
Footwork on the Pilates Reformer would cover many of these stretches. Maybe less words and more demo.
One of my arms and hands are hard to move and I’m just wondering if this will still be effective with one hand?
What do I do if all my toes do not move when I try and pull them back from the wall. ( my 4 smaller toes on my left foot don’t move)
What if your toes & ankles are super tight ? I can't sit up like that either.
I find that I don't have that much problem with my left foot and toes which I can raise pretty well...it's my bum right leg that is weaker with the foot drop. I find I can only raise my right big toe and second toe and the other three don't want to move! I can't seem to be able to get them to rise up! Should I encourage them to do that by manually raising them with my hand? Would my brain get the message better if I did that? Thanks for another great video with much needed info!
What if there is numbness in your toes? Mine are a struggle to move.What do you suggest for toe flexes?
Massage tender areas on bottom of foot. Stretch and more toes, stretch and move ankles. Your nerves are being smooshed (medical term) by your spastic muscles.
Per researching the You tube sight for you, I found all the collection of videos to handle body spasticity. I feel like this may be something I might work on exclusively OR is that crazy? How do you see this working best, generally speaking, especially for someone like me, excited for results but not sure about mixing it up when I'm so spastic & unbalanced to begin with- let me know - like I said, I tend to get so enthused I lose perspective easily.
I have a severe spasticity, i had a spine surgery 4 years ago and became paralyzed from chest below. I'll try to implement your videos now to improve my walking, thank you.
My IG @owenoeel
I try to do other exercises like kettlebell, trx, pilates, yoga, etc. Do you think that I should do these spasticity reducing exercises prior to or after a workout? Before and after?
Before Michelle. It will allow your body to move better and reduce MS Symptoms.
Ok so I was massaging the ball of my foot and just as you said Trevor, "when you come to a tender spot, continue to massage that area" I panicked a bit because I felt a hard spot and my thought was, "oh no, what's this?" Well, I felt the other foot and low and behold, I have the same thing on the other foot...It's called a bone/joint Kelly:/ Silly me..lol..Thanks again Trevor for being on this journey with us MS'ers.
Ha Ha, Yes Bones in your feet are a good thing Kelly. Great job keeping up on exercises. Press on
Been trying this exercise but I find that I cannot lift any of my toes on the right foot (which is my weakest). If I continue with these will Nero plasticity kick in eventually?
My spinal cord MRI is patchy so doctor suggested me brain MRI, spinal fluid and blood tests but all are normal.
But I am not able to pull my right ankle and feel weaknesses while walking.(from 2years )
Any suggestions
I have significant spasticity and cannot get on the floor. What would be another way to do these exercises?
Lisa, you can do these exercises in your bed or in a chair. A chair is a great way to release your feet if you can get bring your foot up onto the opposite knee. If you can't do that you could place a lacrosse ball or tennis ball under your foot and roll the ball using your foot.
What do you do if you can't bend your leg to reach your feet?
Can you use a yoga strap or a belt to help you bend your leg so you can reach your feet?
You should not put the subtitle there coz it hides what ur demonstrating.😑
CLICK Here For Your FREE Stretching To Reduce Spasticity Exercise Guide:
themsgym.mykajabi.com/pl/3141