23 years MS. 72 this year. one of the symptoms I had was someone literally had shoved a huge knife in the front of my leg and was twisting it. the pain was unblearable i wanted to die with it, then my left arm was the same, i had to have ECG to check my heart ok. the pain again like a knife being shoved in my arm. I had this for 2 weeks leg, then arm, then it disappeared like it came. all i can say is keep healthy, keep active you will be ok hun, positive attitudue goes a long way. after 16 years undiagnosed finally i was told i had primary progressive MS. i was told also the doctor wasnt sure it was MS as i was too old for it lol. but PPMS usually starts later in life. ANYWAY GIRL YOUR STRONG, you will be ok. xxx oh i am still mobile sort of lol.
I feel so sorry for this beautiful young lady but the message of hope still peeks through those dark clouds. As someone who was diagnosed with MS less than a year ago and experienced many things mentioned in this video, I find it completely relatable. None the less, there is hope. Everyone battling MS is a warrior and we are in this fight together. Don't give up and don't lose hope. GOD bless. 🙏🏾💛🙏🏾
Trust me, being older we get to be dismissed. Being a woman and old is a double no no. I am so tired of the bs. Who knows our body the best? Listenind does matter.
It is true doctors will treat some better than others, it is human nature. But in general doctors treat people who don't have easy to diagnose symptoms like GARBAGE
I'm going through the Hell you're going through too! MRI's and bloodwork have shown little to no results, yet my neurologist knows something is seriously wrong with me. Now I'm waiting to set up a spinal tap, and hopefully that will finally reveal something. I've been battling this for 7 years full-time (5 of it very painfully), and likely much longer without knowing something was very wrong with me. So many people just don't have any clue as to what we suffer through in so many ways battling with this, and people always saying "oh nothing is wrong with you, you're just getting older!" Any kind of a diagnosis would be such a relief!
William, I am going through the same hell. Started in my feet and they completely lock up if I stay in a position. It spread into arms and my hands are burning saw rheumatologist, neurologist and did all the tests. DId MRI in my neck and found pinched nerve but it did not explain all symptoms. Now it has gotten worse and they are doing MRI of my brain as family doctor is worried its MS.
It starts with ur family who will believe u when u say something is wrong....if they wont believe...then u r doomed Next if the doc does not believe in u ,then u r finished cos only they can diagnose n prescribe meds to u N lastly U have to be positive to get better results .... I had ms maybe for a long time n i had to do for others while my kids suffered ....undiagnosed cos my kids were also very sickly(autoimmune) but noone(even my husband)wanted to help or believe us Their retort was 'everyone is sick 'just an excuse ....so that we stop complaining As if everyone( family n friends)have an autoimmune condition.... It is a hard life
The very same thing happened to me before I was diagnosed although I am not a dancer. My legs were hurting so bad. They still hurt to this day 26 years later from diagnosis. Stay strong!
Thank you for sharing! I don't relate to many MS stories but I definitely did do this one! I'm a self-employed cleaning lady and I now know that the physical work actually helped keep my muscles strong and I'm probably doing better than I would be otherwise. I started developing symptoms 25 years ago. I also related to how you get tired if you stand for a long time. For me, standing in the same place is worse than moving around. I also thought I had a pinched nerve for a long time. I wanted to share how much a lumber support belt helps to stave off the fatigue when I am on my feet. Shopping is so much easier for me with it!
Be careful with your cleaning products, and use gloves. A lady I used to work with had lupus. When she was little she helped her mom my clean houses for work. Today she attributes the cleaning products she used to have contributed to her disease. Many main stream cleaners have harsh chemicles in them, that if you use them over time they can effect you-
I felt the same way once my diagnosis was confirmed. 'Ok, now that we know for sure, we can move forward.' The problem with an MS diagnosis, is that there's so much else to rule out first.
@@imveryhungry112 Lesions can be caused by other things (trauma, virus, infection, and some others). And MS Symptoms can mimic many other disease symptoms. Even the oligoclonal bands in the spinal fluid do not prove MS. It only supports the diagnosis. Doctors need to rule out other things, then look at the whole picture to make the MS diagnosis.
It’s a frustrating long process. I tested positive for autoimmune disease possible systemic sclerosis and it’s been over a year and a half. So many specialist just see you and send you home after putting you on meds or running a test. It’s specially hard when you tell them your symptoms and how it persists and they just shrug it off. Meanwhile I have to live with seizures, heart problems, joint pain, swollen legs etc. because they need to rule out other stuff first.
This is the bad thing with western medicine. They make you have a different doctor for each speciality. They never get together and compare notes.. I miss when one doctor covered most things and only sent you to a specialist when they were stumped.
I’ve had symptoms since i was 14…at 15 i collapsed was super sick and rushed to the hospital that was the first time I heard multiple sclerosis…all test but the spine tap showed it…so they said i didn’t have it…then i did this again at age 17, 23, 26, 32 and i finally said forget it till i coulsn’t ignore the tripping, the slurring of words, passing out , dizzy, vertigo, i was forgetting things, shaking etc so they checked for lupus, Lyme, Parkinson’s and then MS again…. I found out 5 days before Christmas that i had MS when i was 38. I am now 43. My husband said thank God we got answers and now all the Sickness I’ve had over the years make sense …I also have walking issues I’m wobbly at times some days I’m ok…it always get worse in the evening so i try to stay home in the evenings…Do you also have drop foot that’s what mine does how your leg and foot is. My left side is my bad side. I can’t do a lot of those things falling down steps i dislocated my hip and tore up my knee so i just walk the best I can, …I have an allergy list a mile long so i don’t take anything for the ms but i am changing my eating doing planted based diet. Vegetarian since I’ve heard from many it helps kinda my last resort. Keep going keep pushing. God bless you
What Dr. says then, there is no medicine or solution for these problems or we have to survive with that issues and going worse. I have similar but less issues and am in US but did not have any solution.
My grandfather had this, and auto immune issues run on both sides of my family. Much more awareness is needed! These diseases are tricky to diagnose and hard to handle. They are hereditary, and run in 1 out of 5 families. Most people have heard of some of them, but so many are unheard of. It's like you're fighting a silent enemy! Keep at it, don't give up, all your history dancing will help you, I'm sure- And, when you're able, pay it forward, it can really give you a purpose, believe it or not! :)!
Wow thanks for sharing your journey. I don't have MS but I broke my labrum in my hip 2.5 cm and lost fluid in the joint after giving birth. Suffered in pain for 6 years. All because of gaslighting by my Doctors...getting sent for ultrasounds instead of MRI. My chiropractor was the one who saved me. She pushed me to push back against the doctor one final time to get an MRI at all costs. I finally received treatment and although I'm not 100%... I'm around 90-95% ok. I don't understand why patients have to fight so hard to get diagnosed with things. I hear the stories so often across different diagnoses for various issues. I'm happy that you got some kind of answers, and I hope you can continue dancing. 🙏
I have the exact same symptoms and steps you had but in my left calf. And now Im just awaiting my appointment for a neurologist. I really thought no one else knew my pain
There are not enough words to express the frustration we all have with the medical profession. Persistence and strong strong self advocacy is needed when dealing with the system...unfortunately many Doctors also hate strong advocacy. It ends up being about time , money and ego.
Everything you said and videoed is me. What a shit of a disease. Struck by a bolt of lightning. But we MS Warriors will keep going. We can’t be broken 💪🫶
Thanks for sharing your story. I'm waiting for my MRIs. I feel like I'm not being taken very seriously so I'm looking forward to having my MRIs so I can have some kind of idea of what's going on with my body.
I know! It’s ridiculous! It’s not as if MS is unheard of, it’s not a super rare disease. More doctors should know the signs and symptoms. And this goes for other diagnoses as well. Good grief!
Thanks for sharing. I've had two MRI's and both showed lesions on the brain. I have paralysis on the right side of my body at times. Tingling and numbness, cognitive issues, headaches etc... It's been 5 months and no diagnoses. Tomorrow I'm scheduled for a CT scan of the lungs to rule out any other disease. I can't lie, It's tough having this pain and not really know for sure what's going on. Take care everyone ❤️
@@Lifesepanga One doctor says it's MS, but neurologist is still not saying. I've been tested for everything under the sun, and all those test came back negative. He stated I have all the symptoms, but he has a checklist. Now, he wants to do a spinal tap.
@@Uzuri-Love How many times did they test you for Lyme disease? 3 or 4 times so far for me. My worst problem is I’ll start going for tests but then I get so discouraged when my primary care doc say “Well T you’re just a mystery!” 🤷🏻♀️🤦🏻♀️ I end up giving up for awhile until it gets so bad again that I’ll go back. It’s not easy to set up and go to these appointments when you feel horrible to begin with and then have to hear from the people who are suppose know or be able to figure it out that I’m just a mystery! Seriously WTF! It’s like I have to find a Dr. House to get any answers! Lol
@@TaraConti Since this post, I've been officially diagnosed with Multiple Sclerosis. I understand what you're going through. I really hope it gets better for you.
I was diagnosed with multiple sclerosis last year and I weigh 270. I began to change my diet and it did wonders. I am no longer fatigue and I do not have brain fog anymore. plus I exercise all of these things will help you trust me!!!!
Just received initial MS diagnosis at 50. Unfortunately, many of the symptoms hid behind the cormobidities of ulcerative colitis, endometriosis, and adenomyosis so I am in a progressive state. BUT, she is so right that it is good to finally have answers!
Diane, you are a very good communicator. You explained what you went through in a way that was easy to follow and understand. I hope that you are doing as well as possible. 🤗
I went through the same thing - no answers why I had foot drop or numbness all over my right side - nerve damage etc was ruled out - compressed disks also ruled out until I saw my second Nuero - great to Have an answer to the problem
@@kennyo673 it was multiple sclerosis- at first I just thought it was my knee and nerve damage but finally got to a neurologist who got me in for an mri and then lumbar puncture and they saw the lesions and finally - The culprit was identified as MS
I've noticed that a lot of women in menopause or perimenopause are being diagnosed with MS. Earlier this year. I got to the point where I could barely walk myself. My joints were hurting. My muscles were aching and weak was dizzy and it seemed all of my items were also leading to MS. But I realized after much research I was actually deficient in a few things. And I found that because I was entering menopause my estrogen and progesterone had dropped and it was exasperating the conditions.... Blood test are misleading. They only test what's in your blood not in your cells which is where you really need to test I started taking additional sodium as in sea salt in my water. And I started taking vitamin C from acerola cherry as well as through citrus. And then I also started taking b1 mainly through food but also through benfo tomine. I increased my potassium. And I've noticed a marked improvement. I'd like to note that B1 deficiency depletes your myelin sheath which protects your nerves and at leaves to myopathy and it also affects your brain... Sodium acts as a conductor in the body and your body is electrical... You need salt.
SOOOOOOO TRUE. these symtoms were like mine ALTHO im not in peri or menopause. took benfotiamine and potassium and it was like a miracle from god. Not Ms, but probably beriberi for me.
i fell. then my leg went numb, like totally numb. so then my good leg got week from overcompensating so i started falling more. like 2 or 3 times a week at least. so i finally went to the doctor thinking i'd come home with an immobilizer on my leg. instead i had a ton of labs that confirmed positive ANA, and i'm waiting now for an MRI. I fall a lot. My doctor said to keep track of falls and stumbles. In reality i lose my balance and stumble/and or fall multiple times day. right now i'm just in shock and while we know for sure i have an autoimmune disorder of some kind, now we're trying to rule things out which is how you have to diagnose ms. i have given my doctor 100 options as to what this could be. she feels sure she is right about what this will prove to be. my legs won't work how i need them to, it's frustrating.
My legs kept hurting and swelling up at one point. I kept going to an orthopedic who kept on trying to get me to do surgery for my Achilles. I told them no and I rather go to a pt. He gave me a few stretches, and I felt better but then My legs flair up again and then he was angry and same with his nurse like I did something Wrong. He said there’s nothing he can do for me but he can suggest me a neurologist. So I even ask how there’s nothing you can do yet you can push surgery. I took the offer for a neurologist and got diagnosed with ms around august 12. It’s scary but I hope all keep fighting this and not give up.
This video is so informative. Ty for sharing your life and ty for posting this. My daughter is 3 yrs old progressively going paralyzed. Last week they noted in the pain clinic notes possible MS. This actually makes more sense than anything else they’ve guessed on her.
I've been wondering if this is my issue too. I have similar issues in many ways and so far everything else has come back negative. So I hope I find the answer. Thanks for sharing your story because it makes so much sense and helps me figure my issues out.
I have primary progressive multiple sclerosis for 8 years now and it really really sucks. It's frustrating how little the medical community actually knows about this so it's ironic when they call themselves "specialists" but in the same breath, saying they don't really know what it is. They say the immune system is so strong that it attacks itself and then in the same breath, they say it's an autoimmune disorder where the person's immune system is so vulnerable. So which is it? Too strong or too weak? They don't know what it is and that's the truth. It's a collection of symptoms. A lot of different diseases/conditions mimic MS including black mold and Lyme disease. It's kind of hard to fight back when one of the major symptoms is brain fog and fatigue and depression. Not to mention isolation. Fed up with this. Ppms is like a slow steady toboggan ride to hell. Once an athlete, now I'm not weight-bearing. Slowly turning into a paraplegic. Yay. I find myself asking questions like what will I be like this time next year? This time next year I will be wishing I was in the same health I am now. Like so many others, I had never known anything about Ms and when I was first diagnosed, so many people in my life claim that they "knew people who had MS and with absolutely no symptoms at all" and I have "nothing to worry about at all." Yeah right. It's been the bane of my existence. Gets to the point where I just don't even want to think about it and it's pretty rare that I want to talk about it but I'm watching this video now after my Big 3 hours of "sleep"... so-- kind of topical.
The immune system is naturally strong but it can be weak from poor nutrition and lifestyle. Alot of medical professionals seem to misunderstand what's taking place when the immune system is "attacking itself". The immune system removes old/bad/synthetic minerals, organisms, chemical compounds from the body 24/7 and proteins in the immune system transport new minerals to replace those removed with the assistance of other micronutrients. Medical professionals mistake this natural process as the immune system attacking itself. They make the mistake because the patient is always deficient in key micronutrients needed to transport and replace the old minerals with new. So it appears one sided. So technically one could cure the autoimmune disease by healing the body with proper nutrition, healthy lifestyle, plenty of restful sleep, low mental stress, and proper fasting.
While they don't know what causes MS, they pretty much do know exactly what it is, and it's not a collection of symptoms. It's a degradation in the insulation of nerves, and which symptoms you get depends on which particular nerves are degraded.
Same here. Danced from 8 years old for 4 decades. 4 Neurologists and many specialists to get dx. I miss dancing so much. It is a loss you have to grieve. Falls are our enemy so keep moving and stay strong ❤️
Thank you for your video. I'm feeling a sensation in my right leg and being a diabetic for over 30 years and 49 years old I want to figure out what it is. I made an appointment to see my doc. I'm a bachata dancer myself so I'm hoping I find out it's something that can be helped. Your an inspiration thank you again.
8 years and all the dr lied to me I shared it so many times I have lesions in my brain but I still have no diagnosis because I have migraines and neck and scoliosis so they just concentrate on that instead of seeing if I have Ms
Similar story. I had a long wait for diagnosis and it was picked up by the physiotherapist before the general practitioner. It is a relief to know the cause. Rather than searching for a cure you can regroup and start to manage the condition.
I understand the issue you went through cause I was also was a professional dancer and thought dance, and it’s devastating to not have the ability to do what you love. I have been on disability since 2005 and have had 6 major back surgeries and the chronic pain just keeps coming back. I’ve tried every treatment they have and nothing is working. I pray and hope you have better odds than me!
well I was healed from MS then. I am.73 years old now and still healed from MS when I was 40. When I try it at this age for other ailments it wont work for me ofcourse. I have God who heals me now.. there are always hope
Been dealing with SOMETHING wrong with me feeling for atleast 20 years. I have been DXed with fibromyalgia and RA. I cannot take steroidal anti-inflammatory meds as they can bring back on a MRSA infection I had in the past. I have no life anymore. Basically home bound. My husband is sick of my complaining about being in pain and how tired I am all the time. This isn't life. This is just existing thru one day to the next.
Can you make a video explaining what is a relapse, what is a lesion, what is a flare, and the different types of MS, how to apply for disability or resources. 😢I feel like doctors don’t know how to or don’t bother to take the time to explain or listen to patient’s needs.
My foot pulls and cramps. My left arm pulls backwards. I was told I had foot drop. The nerves in my legs constantly twitch. Some of my cousins have MS but the symptoms are all different. I don't know how to tell my doctor?
I have something debilitating pain going on with my thighs and my butts and my hip and my lower back. The doctor told me the only way that if you can tell if a person has multiple sclerosis is to do an MRI on the brain. They don't think I have ms. Some doctors think my SI joints are getting bad. Over 3 years now of this and still no answers
I should have been diagnosed in 2017...I was MEDEVAC from Iraq because my left eye went out...test after test...physically therapy for years....then my symptoms got worse. My left and leg was cramping horribly and I felt like I was being tazed. Now it's 2022 and I was literally diagnosed 10 days ago. It got ro the point that I couldn't walk on certain days and began having the MS hug....that scared me...felt like a heart attack.
I am going through this now. Over the last 6 years I watched and felt myself deteriorate. My mobility is so bad and can't hardly lift my legs or walk for very long. It hit my short term memory and family is strategically making arrangements around me because of it. I can't hold on to things, they fall, spill and break. Pressure in my head so bad that it feels like it will explode! Numbness and tingling and then it attacked my eyesight. My right eye, all I see is pea soup fog and lost color vision. I had an MRI as they thought I had a stroke and it showed the lesions in my brain!! Deep white matter signal abnormalities with cerebral deterioration. The doctors immediately tried to play it down and said I just have anxiety and they know I have been looking for answers to what is happening too me. They refused to refer me to a neurologist and tried to not let me have the results to my brain scan and then told a doctor to reword it and I told them If they reworded it, I would sue them. You cannot alter my records! The Neuro will physically see the MRI anyway! I had to go to my primary to get the referral and even the doctor who saw had me do the MRI said it that they don't usually see this far deterioration in my brain and all the lesions in someone my age! I flat out asked him why he was playing it down then and go out of their way to hide my results or change my record? He denied it. I filed a complaint after that. Anyway, I got my referral and near every appt they call and cancel the appointment and reschedule it! WTF? 3 times already. Now it is Dec. 13th. I told them every time they do this, the longer I remain sick and undiagnosed. All I need is confirmation as my primary said it was MS, but wants the Neuro confirmation.
Dr Coimbra, a neurologist in Brazil, has been reversing MS with a high dose vitamin D3 protocol. There is also a doctor on TH-cam that reversed her MS through a whole food plant based diet.
I am going through that very thing....all this discomfort and off balance, yet no one comes to a conclusion yet...and my sister has MS. I think I have it too.
My achilles and calves always hurt and can randomly flair up and cause severe pain and nothing has worked. Stretching has made is worse and physical therapy was the same thing. I wonder if I have ms in my legs.
I’m so sorry this happened to you. I’m. Single mom of 2 boys and they found spots on my brain now I’m supposed to see a neurologist. Because I may have ms! Which I’m praying I don’t 😢
Hi Dianne. I started having symptoms at 12, but did not get diagnosed until 32. I am now 37, also a dancer and after a really bad relapse, I'm coming back. It's all about our come backs, right?
My same story. Only difference is i cnt get an mri. I was diagnosed off of my symptoms and spinal tap.. i feel as tho i still need other opinions because my walking and pain and moving around i rlly hard. Its lik i have to think before i try to walk. I have to paste myself. Its rlly different and no one seems to understand fully.. i force myself to do things and i just want to be my normal again..
I understand ur frustration with out proper mindset an consistency with routine believe in a better U I’ve been Diagnose since 2002 it’s a challenge keep head up😊
Excellent positive information. I love how you encourage to keep moving. There are days of exhaustion and or inability to walk. Allow yourself rest, good nutrition, and gentle movement (may be while you are in bed) Physical Therapy is so important and truly helps.
I used dance to check my balance . 25 yrs of ms but I had to demand a neurology consult. See a RN knew i had ms . No one would listen. No new lesions but mri in 23 = Leukoencephalopathy. Recently bad sinusitis has caused an exacerbation. One month later I still can't walk. In another month I will outwalk many because I don't do interferons or prednisone or any meds. Those meds were toxic . Walking fast and dancing works. Retired RN who states when its bad it's bad and when its good its good . 67 yrs old I don't have to work but i insist to do what some may call menial jobs. But those jobs keep me moving and help w cognitive. And crying does help but that is not depression.
What about severe cramping and tighting drawing of the toes and ever tendon in my foot from each toe swells bug stretch's so tight I cry and cry u never has this befor the past 1yr 8 do have seizures the Dr says my MRI may show MS SO IS THESE SIGNS EVEN OF MS? I TRULY HOPE YOU SEE THIS GOD BLESS YOU ✝️🙏❤️ THANK YOU
Thank you for sharing…… I to have the leg dragging and getting in the car I to also physically pick up my leg…. I’m recently walking with a Cain…. I’m undergoing a series of mris and brain sans……. I wish you well 😊❤
I spoke with a man who treats his MS by eating mounds of veggies. His mentor was once crippled with MS and wheelchair bound. This woman was determined to walk again and did research. She ate "mounds" of leafy veggies and now she runs marathons. God bless you and all you love. God bless us all.
I've been misdiagnosed many times for years. Most doctors at least here in Mexico, just don't care. They're honestly, lazy and here doesn't exist anyway like a structure, model to follow when a patient like with several symptoms, signs. I have some diagnosis, (autoinmune) but there are other things illnesses that again doctors just don't care. I had to investigate by myself and I got my autoinmune diagnosis it's a strange disease that I should have been diagnosed since 2017, why? Because there was my labwork with this specific antibody test that any doctor cared about!!! I feel emotionally terrible 😔 and like in a jail. Like no matter what happens to me they (doctors) are gonna to look at me as an alien and being humiliated for being sick. 😑😶 Sometimes I just want this all finish soon, no matter how. Years ago, I went through a medical negligence, and several times with humiliations. Because being sick without diagnosis has broken totally my life, dignity, because most doctors sees you as a thing nor as a human like them. 😪 P.s When doctors don't have idea, or well they don't even investigate they love to diagnose with "Fibromyalgia", chronic fatigue, plus depression. And send you gabapentin, Lyrica, etc for pain... 😑🤦🏽♀️ If I'd have accept that "diagnosis" I'd be dead by now since years ago. I don't understand why doctors don't just listen!? Why they don't care!? Well I have to keep investigating by myself, figure it out, because doctors never care! 😔😞
I am being passed from doctor to doctor....from specialist to specialist. CT scans, X-rays, MRIs, over 100 types of blood work...Nerve conductivity study....spine people, neurologists...you name it. No one dares to make a diagnosis. Probably out of fear...of being wrong. Meantime I suffer in pain, 24 x 7. I don't take the pain meds...Last thing I need is my mind fogged up.
My ms symptoms started in my early teens. I kept thinking I had Hashimoto's, I was constantly tired and the migraines and eye issues were out of this world. I was told it was basically all in my head and anxiety by a family doctor at the time . That it was stress, viral, literally everything under the sun but autoimmune. Even when I asked my family doctor for an mri I was basically deterred by her and told mri's take years to get one and that they would find one tiny aneurysm and I would be a hot mess and my anxiety would be worse.. I was literally a hot mess all throughout my youth living in constant fear of physical symptoms manifesting and would literally blame myself if they occurred. The family doctor had convinced me I was basically a hypochondriac with mental issues. Nothing like living your youth thinking you are going to die young. Well suffice to say I ended up in ER at 32 with a massive brainstem lesion that they said could have cause "certain morbidity" on my medical report. I hastily fired this family doctor who I had trusted for her expertise for half my life. Also learned to never let anybody ever dismiss my symptoms again.
Do you live in the UK? Just wondering because you said it would take so long to get an MRI. I’m in the US and I’ve been able to get an MRI the same day.
@@samsensation786 I have been taking Gilenya for the past eight years. I have had one tiny lesion show up in that entire time, so working considerably well considering I had really agressive RRMS .
I feel you. Im a dancer or former dancer. I have had chronic pain for 9 or 10 years. They can´t find the root cause......I have been seen by all kinds of doctors. Im still chasing to get pain free so I can dance again, but im also getting older. 42 years old now. I miss dancing...........very much
I have severe neuropathy in my feet, legs and hands, coupled with really bad sciatica in both legs. I live in pain every day the second my feet hit the floor each day. Sometimes I wonder if I have MS.
Maybe it's herniated discs? I had horrible sciatica last year and it was due to disc herniation...it can press on the nerves and you will feel weakness in your legs
@@dovlab3089 I have 4 bulging discs and severe scoliosis , definitely is the issue. They want to do a multilevel fusion but at 68 years old I am not going through that.
@John Doe yes...I see..I had severe herniated disc, I am 37...to the point where I couldn't walk at all...and couldn't pee...I went to emergency and was treated with all kinds of narcotics to calm it down...from that episode I still have weakness in one of my legs and I think because of such an accute episode, it's now permanent...maybe you need some narcotics or strong medication to calm it down? Maybe injections?
Also treat you as finished when you heading to your last year's.Doctors generally aren't what they were meant to be.You are treated as a something.Courage...God be with you.
23 years MS. 72 this year. one of the symptoms I had was someone literally had shoved a huge knife in the front of my leg and was twisting it. the pain was unblearable i wanted to die with it, then my left arm was the same, i had to have ECG to check my heart ok. the pain again like a knife being shoved in my arm. I had this for 2 weeks leg, then arm, then it disappeared like it came. all i can say is keep healthy, keep active you will be ok hun, positive attitudue goes a long way. after 16 years undiagnosed finally i was told i had primary progressive MS. i was told also the doctor wasnt sure it was MS as i was too old for it lol. but PPMS usually starts later in life. ANYWAY GIRL YOUR STRONG, you will be ok. xxx oh i am still mobile sort of lol.
I feel so sorry for this beautiful young lady but the message of hope still peeks through those dark clouds. As someone who was diagnosed with MS less than a year ago and experienced many things mentioned in this video, I find it completely relatable. None the less, there is hope. Everyone battling MS is a warrior and we are in this fight together. Don't give up and don't lose hope. GOD bless. 🙏🏾💛🙏🏾
You may find my comment a few above yours, of interest. Occult B12 deficiency may wrongly be diagnosed as MS…….
I hate how doctors treat you differently when you are young or have a cheap insurance
Or a mental illness, everything is just in my head they say
It continues into old age especially for women.
Its true
Husbands who r earning ,r treated better by docs than their wives cos some women dont earn
Trust me, being older we get to be dismissed. Being a woman and old is a double no no. I am so tired of the bs. Who knows our body the best?
Listenind does matter.
It is true doctors will treat some better than others, it is human nature. But in general doctors treat people who don't have easy to diagnose symptoms like GARBAGE
I'm going through the Hell you're going through too! MRI's and bloodwork have shown little to no results, yet my neurologist knows something is seriously wrong with me. Now I'm waiting to set up a spinal tap, and hopefully that will finally reveal something. I've been battling this for 7 years full-time (5 of it very painfully), and likely much longer without knowing something was very wrong with me. So many people just don't have any clue as to what we suffer through in so many ways battling with this, and people always saying "oh nothing is wrong with you, you're just getting older!" Any kind of a diagnosis would be such a relief!
William, I am going through the same hell. Started in my feet and they completely lock up if I stay in a position. It spread into arms and my hands are burning saw rheumatologist, neurologist and did all the tests. DId MRI in my neck and found pinched nerve but it did not explain all symptoms. Now it has gotten worse and they are doing MRI of my brain as family doctor is worried its MS.
Being trying to get diagnosed since 1998. 🙏
@@duggywild I have all of this currently. My legs and arms feel stiff at all times. It suvks. MRI’s show nothing. Frustrating.
It starts with ur family who will believe u when u say something is wrong....if they wont believe...then u r doomed
Next if the doc does not believe in u ,then u r finished cos only they can diagnose n prescribe meds to u
N lastly U have to be positive to get better results ....
I had ms maybe for a long time n i had to do for others while my kids suffered ....undiagnosed
cos my kids were also very sickly(autoimmune) but noone(even my husband)wanted to help or believe us
Their retort was 'everyone is sick 'just an excuse ....so that we stop complaining
As if everyone( family n friends)have an autoimmune condition....
It is a hard life
I’m going through the same thing. The pain is horrible. The tingling and spasm
The very same thing happened to me before I was diagnosed although I am not a dancer. My legs were hurting so bad. They still hurt to this day 26 years later from diagnosis. Stay strong!
Three years later. I hope you are well and getting the care you deserve. Thank you for posting this.
Thank you for sharing! I don't relate to many MS stories but I definitely did do this one! I'm a self-employed cleaning lady and I now know that the physical work actually helped keep my muscles strong and I'm probably doing better than I would be otherwise. I started developing symptoms 25 years ago. I also related to how you get tired if you stand for a long time. For me, standing in the same place is worse than moving around. I also thought I had a pinched nerve for a long time. I wanted to share how much a lumber support belt helps to stave off the fatigue when I am on my feet. Shopping is so much easier for me with it!
Be careful with your cleaning products, and use gloves. A lady I used to work with had lupus. When she was little she helped her mom my clean houses for work. Today she attributes the cleaning products she used to have contributed to her disease. Many main stream cleaners have harsh chemicles in them, that if you use them over time they can effect you-
Thank you for sharing that tip about the lumbar belt! I will try it.
I felt the same way once my diagnosis was confirmed. 'Ok, now that we know for sure, we can move forward.' The problem with an MS diagnosis, is that there's so much else to rule out first.
Yes, and then you're slowly getting worse b/c you aren't treating it!
I don't see why don't they usually see lesions on the spine during an mri?
@@imveryhungry112 Lesions can be caused by other things (trauma, virus, infection, and some others). And MS Symptoms can mimic many other disease symptoms. Even the oligoclonal bands in the spinal fluid do not prove MS. It only supports the diagnosis. Doctors need to rule out other things, then look at the whole picture to make the MS diagnosis.
It’s a frustrating long process. I tested positive for autoimmune disease possible systemic sclerosis and it’s been over a year and a half. So many specialist just see you and send you home after putting you on meds or running a test. It’s specially hard when you tell them your symptoms and how it persists and they just shrug it off. Meanwhile I have to live with seizures, heart problems, joint pain, swollen legs etc. because they need to rule out other stuff first.
@hotcupnoodle81 yes exactly 😢
This is the bad thing with western medicine. They make you have a different doctor for each speciality. They never get together and compare notes..
I miss when one doctor covered most things and only sent you to a specialist when they were stumped.
I’ve had symptoms since i was 14…at 15 i collapsed was super sick and rushed to the hospital that was the first time I heard multiple sclerosis…all test but the spine tap showed it…so they said i didn’t have it…then i did this again at age 17, 23, 26, 32 and i finally said forget it till i coulsn’t ignore the tripping, the slurring of words, passing out , dizzy, vertigo, i was forgetting things, shaking etc so they checked for lupus, Lyme, Parkinson’s and then MS again…. I found out 5 days before Christmas that i had MS when i was 38. I am now 43. My husband said thank God we got answers and now all the Sickness I’ve had over the years make sense …I also have walking issues I’m wobbly at times some days I’m ok…it always get worse in the evening so i try to stay home in the evenings…Do you also have drop foot that’s what mine does how your leg and foot is. My left side is my bad side. I can’t do a lot of those things falling down steps i dislocated my hip and tore up my knee so i just walk the best I can, …I have an allergy list a mile long so i don’t take anything for the ms but i am changing my eating doing planted based diet. Vegetarian since I’ve heard from many it helps kinda my last resort. Keep going keep pushing. God bless you
Interesting that you said it gets worse in the evenings.. it does for me too!
What Dr. says then, there is no medicine or solution for these problems or we have to survive with that issues and going worse.
I have similar but less issues and am in US but did not have any solution.
My grandfather had this, and auto immune issues run on both sides of my family. Much more awareness is needed! These diseases are tricky to diagnose and hard to handle. They are hereditary, and run in 1 out of 5 families.
Most people have heard of some of them, but so many are unheard of. It's like you're fighting a silent enemy! Keep at it, don't give up, all your history dancing will help you, I'm sure- And, when you're able, pay it forward, it can really give you a purpose, believe it or not! :)!
Wow thanks for sharing your journey. I don't have MS but I broke my labrum in my hip 2.5 cm and lost fluid in the joint after giving birth. Suffered in pain for 6 years. All because of gaslighting by my Doctors...getting sent for ultrasounds instead of MRI. My chiropractor was the one who saved me. She pushed me to push back against the doctor one final time to get an MRI at all costs.
I finally received treatment and although I'm not 100%... I'm around 90-95% ok.
I don't understand why patients have to fight so hard to get diagnosed with things. I hear the stories so often across different diagnoses for various issues.
I'm happy that you got some kind of answers, and I hope you can continue dancing. 🙏
Wish you all the best❤ Got MS in 2002, ups and downs, but still life is beautiful. Thanks for sharing, take care!
MS sister in Norway 💃🇧🇻
Hello I was dx’d in 03’. Life is still beautiful ❤. Have a wonderful peaceful day.
I have the exact same symptoms and steps you had but in my left calf. And now Im just awaiting my appointment for a neurologist. I really thought no one else knew my pain
Any updates on neurologist appt
There are not enough words to express the frustration we all have with the medical profession. Persistence and strong strong self advocacy is needed when dealing with the system...unfortunately many Doctors also hate strong advocacy. It ends up being about time , money and ego.
Yeppers exactly
I’m going through the exact same thing. Stay strong and keep your head up. Thanks for sharing 🙂
You Tube Alan MacDonald : MS is a parasitosis
I went through the same thing. Just received my diagnosis today. Thanks for sharing 🙏🏽
How do I ask for help? A neurologist?
Stay strong❤ never give up ❤
Everything you said and videoed is me. What a shit of a disease. Struck by a bolt of lightning. But we MS Warriors will keep going. We can’t be broken 💪🫶
Thanks for sharing your story. I'm waiting for my MRIs. I feel like I'm not being taken very seriously so I'm looking forward to having my MRIs so I can have some kind of idea of what's going on with my body.
Was you ok?
same!
Same here, but they're saying my MRI'S are clear. I am seeking a 2nd opinion.
@@lynnehood4944 did you get any clue about what you have?
Seriously! It’s like doctors don’t even care, I won’t say all of them BUT A LOT of them are sooo dismissive!!!
Thank you for sharing! Its ashame we have to search for confident doctors AND do research on our own. I was diagnosed Dec 16.. keep up the hard work!
I know! It’s ridiculous! It’s not as if MS is unheard of, it’s not a super rare disease. More doctors should know the signs and symptoms. And this goes for other diagnoses as well. Good grief!
Thanks for sharing. I've had two MRI's and both showed lesions on the brain. I have paralysis on the right side of my body at times. Tingling and numbness, cognitive issues, headaches etc... It's been 5 months and no diagnoses. Tomorrow I'm scheduled for a CT scan of the lungs to rule out any other disease. I can't lie, It's tough having this pain and not really know for sure what's going on. Take care everyone ❤️
Do u have MS ?
@@Lifesepanga One doctor says it's MS, but neurologist is still not saying. I've been tested for everything under the sun, and all those test came back negative. He stated I have all the symptoms, but he has a checklist. Now, he wants to do a spinal tap.
@@Uzuri-Love How many times did they test you for Lyme disease?
3 or 4 times so far for me.
My worst problem is I’ll start going for tests but then I get so discouraged when my primary care doc say “Well T you’re just a mystery!” 🤷🏻♀️🤦🏻♀️ I end up giving up for awhile until it gets so bad again that I’ll go back. It’s not easy to set up and go to these appointments when you feel horrible to begin with and then have to hear from the people who are suppose know or be able to figure it out that I’m just a mystery! Seriously WTF! It’s like I have to find a Dr. House to get any answers! Lol
@@Lifesepanga Yes.
@@TaraConti Since this post, I've been officially diagnosed with Multiple Sclerosis. I understand what you're going through. I really hope it gets better for you.
In the hospital now working on the diagnosis. My aunt has had it for over 20 years. I’m 35 now. Thsnk you for the information and the positive vibes
Same story but my moms brother….. what was your diagnosis in the end?
I was diagnosed with multiple sclerosis last year and I weigh 270. I began to change my diet and it did wonders. I am no longer fatigue and I do not have brain fog anymore. plus I exercise all of these things will help you
trust me!!!!
Just received initial MS diagnosis at 50. Unfortunately, many of the symptoms hid behind the cormobidities of ulcerative colitis, endometriosis, and adenomyosis so I am in a progressive state. BUT, she is so right that it is good to finally have answers!
How can we confirm MS ?? I’m having pain in my both legs specially in outer hip bones pl plz help
Thanks for sharing your story! I can relate so much to it *hugs* from a fellow MSer
Poor little girl. She suffered way too much before being properly diagnosed! 😢❤
I've looked at numerous YT videos on this and yours has helped me the most. Thank you.
Im in the frustrating process of finding out. Thank you for your advice!!! U rock
Same here, did u find out
I saw in a documentary that taking out dairy helps alleviate symptoms and eating a more of a balanced plant based diet helps too.
Diane, you are a very good communicator. You explained what you went through in a way that was easy to follow and understand. I hope that you are doing as well as possible. 🤗
I went through the same thing - no answers why I had foot drop or numbness all over my right side - nerve damage etc was ruled out - compressed disks also ruled out until I saw my second Nuero - great to Have an answer to the problem
So what was the outcome? Any cure? Share, thanks.
@@kennyo673 it was multiple sclerosis- at first I just thought it was my knee and nerve damage but finally got to a neurologist who got me in for an mri and then lumbar puncture and they saw the lesions and finally - The culprit was identified as MS
@@GregoryLanceLugo how did u treat it
I've noticed that a lot of women in menopause or perimenopause are being diagnosed with MS. Earlier this year. I got to the point where I could barely walk myself. My joints were hurting. My muscles were aching and weak was dizzy and it seemed all of my items were also leading to MS.
But I realized after much research I was actually deficient in a few things. And I found that because I was entering menopause my estrogen and progesterone had dropped and it was exasperating the conditions.... Blood test are misleading. They only test what's in your blood not in your cells which is where you really need to test
I started taking additional sodium as in sea salt in my water. And I started taking vitamin C from acerola cherry as well as through citrus. And then I also started taking b1 mainly through food but also through benfo tomine. I increased my potassium.
And I've noticed a marked improvement.
I'd like to note that B1 deficiency depletes your myelin sheath which protects your nerves and at leaves to myopathy and it also affects your brain... Sodium acts as a conductor in the body and your body is electrical... You need salt.
SOOOOOOO TRUE. these symtoms were like mine ALTHO im not in peri or menopause. took benfotiamine and potassium and it was like a miracle from god. Not Ms, but probably beriberi for me.
i fell. then my leg went numb, like totally numb. so then my good leg got week from overcompensating so i started falling more. like 2 or 3 times a week at least. so i finally went to the doctor thinking i'd come home with an immobilizer on my leg. instead i had a ton of labs that confirmed positive ANA, and i'm waiting now for an MRI. I fall a lot. My doctor said to keep track of falls and stumbles. In reality i lose my balance and stumble/and or fall multiple times day. right now i'm just in shock and while we know for sure i have an autoimmune disorder of some kind, now we're trying to rule things out which is how you have to diagnose ms. i have given my doctor 100 options as to what this could be. she feels sure she is right about what this will prove to be. my legs won't work how i need them to, it's frustrating.
My legs kept hurting and swelling up at one point. I kept going to an orthopedic who kept on trying to get me to do surgery for my Achilles. I told them no and I rather go to a pt. He gave me a few stretches, and I felt better but then My legs flair up again and then he was angry and same with his nurse like I did something Wrong. He said there’s nothing he can do for me but he can suggest me a neurologist. So I even ask how there’s nothing you can do yet you can push surgery. I took the offer for a neurologist and got diagnosed with ms around august 12. It’s scary but I hope all keep fighting this and not give up.
This video is so informative. Ty for sharing your life and ty for posting this. My daughter is 3 yrs old progressively going paralyzed. Last week they noted in the pain clinic notes possible MS. This actually makes more sense than anything else they’ve guessed on her.
I've been wondering if this is my issue too. I have similar issues in many ways and so far everything else has come back negative. So I hope I find the answer. Thanks for sharing your story because it makes so much sense and helps me figure my issues out.
I have primary progressive multiple sclerosis for 8 years now and it really really sucks. It's frustrating how little the medical community actually knows about this so it's ironic when they call themselves "specialists" but in the same breath, saying they don't really know what it is. They say the immune system is so strong that it attacks itself and then in the same breath, they say it's an autoimmune disorder where the person's immune system is so vulnerable. So which is it? Too strong or too weak? They don't know what it is and that's the truth. It's a collection of symptoms. A lot of different diseases/conditions mimic MS including black mold and Lyme disease. It's kind of hard to fight back when one of the major symptoms is brain fog and fatigue and depression. Not to mention isolation. Fed up with this. Ppms is like a slow steady toboggan ride to hell. Once an athlete, now I'm not weight-bearing. Slowly turning into a paraplegic. Yay. I find myself asking questions like what will I be like this time next year? This time next year I will be wishing I was in the same health I am now. Like so many others, I had never known anything about Ms and when I was first diagnosed, so many people in my life claim that they "knew people who had MS and with absolutely no symptoms at all" and I have "nothing to worry about at all."
Yeah right. It's been the bane of my existence. Gets to the point where I just don't even want to think about it and it's pretty rare that I want to talk about it but I'm watching this video now after my Big 3 hours of "sleep"... so-- kind of topical.
The immune system is naturally strong but it can be weak from poor nutrition and lifestyle. Alot of medical professionals seem to misunderstand what's taking place when the immune system is "attacking itself". The immune system removes old/bad/synthetic minerals, organisms, chemical compounds from the body 24/7 and proteins in the immune system transport new minerals to replace those removed with the assistance of other micronutrients. Medical professionals mistake this natural process as the immune system attacking itself. They make the mistake because the patient is always deficient in key micronutrients needed to transport and replace the old minerals with new. So it appears one sided. So technically one could cure the autoimmune disease by healing the body with proper nutrition, healthy lifestyle, plenty of restful sleep, low mental stress, and proper fasting.
While they don't know what causes MS, they pretty much do know exactly what it is, and it's not a collection of symptoms. It's a degradation in the insulation of nerves, and which symptoms you get depends on which particular nerves are degraded.
Vitamin d at large doses may help when diagnosed early
I’m so sorry ur going through this. People just don’t get it.
🙏❤️
This video is very relatable, my story is an echo of yours. I appreciate you sharing it
Same here. Danced from 8 years old for 4 decades. 4 Neurologists and many specialists to get dx. I miss dancing so much. It is a loss you have to grieve. Falls are our enemy so keep moving and stay strong ❤️
I also miss dancing so much 😢so heartbreaking 💔
My thing was having to stop wearing high heels. My cruel mom told me "you'll never wear heels again" 😢😢😢
Thank you for your video. I'm feeling a sensation in my right leg and being a diabetic for over 30 years and 49 years old I want to figure out what it is. I made an appointment to see my doc. I'm a bachata dancer myself so I'm hoping I find out it's something that can be helped. Your an inspiration thank you again.
You are so sweet and so brave. I hope you will get better soon.
Thank you for taking the time to share your story
8 years and all the dr lied to me I shared it so many times I have lesions in my brain but I still have no diagnosis because I have migraines and neck and scoliosis so they just concentrate on that instead of seeing if I have Ms
Similar story. I had a long wait for diagnosis and it was picked up by the physiotherapist before the general practitioner. It is a relief to know the cause. Rather than searching for a cure you can regroup and start to manage the condition.
I understand the issue you went through cause I was also was a professional dancer and thought dance, and it’s devastating to not have the ability to do what you love.
I have been on disability since 2005 and have had 6 major back surgeries and the chronic pain just keeps coming back. I’ve tried every treatment they have and nothing is working.
I pray and hope you have better odds than me!
well I was healed from MS then. I am.73 years old now and still healed from MS when I was 40. When I try it at this age for other ailments it wont work for me ofcourse. I have God who heals me now.. there are always hope
How were you healed
Meanwhile your "god" doesn't give two shts about the millions of us quietly suffering and falling apart. Good luck to you.
Thanks I have been having the same issues for year now, I have neurological appointment in 2 weeks 🙏for a concrete diagnosis god bless you
Been dealing with SOMETHING wrong with me feeling for atleast 20 years. I have been DXed with fibromyalgia and RA. I cannot take steroidal anti-inflammatory meds as they can bring back on a MRSA infection I had in the past. I have no life anymore. Basically home bound. My husband is sick of my complaining about being in pain and how tired I am all the time. This isn't life. This is just existing thru one day to the next.
Can you make a video explaining what is a relapse, what is a lesion, what is a flare, and the different types of MS, how to apply for disability or resources. 😢I feel like doctors don’t know how to or don’t bother to take the time to explain or listen to patient’s needs.
wow, you are amazing! I'm so glad you are a fighter. I pray that you get stronger every day. Thanks for your telling your story. Great video!
Thank you so much for sharing your story.
My foot pulls and cramps. My left arm pulls backwards. I was told I had foot drop. The nerves in my legs constantly twitch. Some of my cousins have MS but the symptoms are all different. I don't know how to tell my doctor?
SO ISPIRING BELLA. GOD BLESS YOU ALWAY S. GOD IS STRENGTH .. YOU ARE THE BEST MIND SPIRIT AND SOUL
Lots of prayers that you get well and walk and dance again thank you for sharing
Have you tried a 40 day water fast? So no food for 40 days.
I have something debilitating pain going on with my thighs and my butts and my hip and my lower back. The doctor told me the only way that if you can tell if a person has multiple sclerosis is to do an MRI on the brain. They don't think I have ms. Some doctors think my SI joints are getting bad. Over 3 years now of this and still no answers
I should have been diagnosed in 2017...I was MEDEVAC from Iraq because my left eye went out...test after test...physically therapy for years....then my symptoms got worse. My left and leg was cramping horribly and I felt like I was being tazed. Now it's 2022 and I was literally diagnosed 10 days ago. It got ro the point that I couldn't walk on certain days and began having the MS hug....that scared me...felt like a heart attack.
God bless you. Thoughts and prayers are with you 🙏
I am going through this now. Over the last 6 years I watched and felt myself deteriorate. My mobility is so bad and can't hardly lift my legs or walk for very long. It hit my short term memory and family is strategically making arrangements around me because of it. I can't hold on to things, they fall, spill and break. Pressure in my head so bad that it feels like it will explode! Numbness and tingling and then it attacked my eyesight. My right eye, all I see is pea soup fog and lost color vision. I had an MRI as they thought I had a stroke and it showed the lesions in my brain!! Deep white matter signal abnormalities with cerebral deterioration. The doctors immediately tried to play it down and said I just have anxiety and they know I have been looking for answers to what is happening too me. They refused to refer me to a neurologist and tried to not let me have the results to my brain scan and then told a doctor to reword it and I told them If they reworded it, I would sue them. You cannot alter my records! The Neuro will physically see the MRI anyway! I had to go to my primary to get the referral and even the doctor who saw had me do the MRI said it that they don't usually see this far deterioration in my brain and all the lesions in someone my age! I flat out asked him why he was playing it down then and go out of their way to hide my results or change my record? He denied it. I filed a complaint after that. Anyway, I got my referral and near every appt they call and cancel the appointment and reschedule it! WTF? 3 times already. Now it is Dec. 13th. I told them every time they do this, the longer I remain sick and undiagnosed. All I need is confirmation as my primary said it was MS, but wants the Neuro confirmation.
Dr Coimbra, a neurologist in Brazil, has been reversing MS with a high dose vitamin D3 protocol. There is also a doctor on TH-cam that reversed her MS through a whole food plant based diet.
Google Dr. Terry Wahls. She reversed her ms. Her story is fascinating!
Hope you are doing well, keep strong 👍
What an inspirational success story. Thanks for sharing!!!
I am going through that very thing....all this discomfort and off balance, yet no one comes to a conclusion yet...and my sister has MS. I think I have it too.
I hope youre doing well.
My achilles and calves always hurt and can randomly flair up and cause severe pain and nothing has worked. Stretching has made is worse and physical therapy was the same thing. I wonder if I have ms in my legs.
I’m so sorry this happened to you. I’m. Single mom of 2 boys and they found spots on my brain now I’m supposed to see a neurologist. Because I may have ms! Which I’m praying I don’t 😢
R u fine ??
Hi Dianne. I started having symptoms at 12, but did not get diagnosed until 32. I am now 37, also a dancer and after a really bad relapse, I'm coming back. It's all about our come backs, right?
Right! That is the best attitude! *Come backs, yeah!* 💪😄
My same story. Only difference is i cnt get an mri. I was diagnosed off of my symptoms and spinal tap.. i feel as tho i still need other opinions because my walking and pain and moving around i rlly hard. Its lik i have to think before i try to walk. I have to paste myself. Its rlly different and no one seems to understand fully.. i force myself to do things and i just want to be my normal again..
I'm a new subscriber from Maryland amazing video 🎉
I understand ur frustration with out proper mindset an consistency with routine believe in a better U I’ve been Diagnose since 2002 it’s a challenge keep head up😊
Thank you for sharing your experience💕
Did you try the Wahl's Protocol diet?
Going for my brain scan tomorrow! I will know one way or the other! I just want my legs back to normal!
Excellent positive information. I love how you encourage to keep moving. There are days of exhaustion and or inability to walk. Allow yourself rest, good nutrition, and gentle movement (may be while you are in bed) Physical Therapy is so important and truly helps.
I used dance to check my balance . 25 yrs of ms but I had to demand a neurology consult. See a RN knew i had ms . No one would listen. No new lesions but mri in 23 = Leukoencephalopathy.
Recently bad sinusitis has caused an exacerbation. One month later I still can't walk.
In another month I will outwalk many because I don't do interferons or prednisone or any meds. Those meds were toxic .
Walking fast and dancing works.
Retired RN who states when its bad it's bad and when its good its good . 67 yrs old
I don't have to work but i insist to do what some may call menial jobs. But those jobs keep me moving and help w cognitive.
And crying does help but that is not depression.
What about severe cramping and tighting drawing of the toes and ever tendon in my foot from each toe swells bug stretch's so tight I cry and cry u never has this befor the past 1yr 8 do have seizures the Dr says my MRI may show MS SO IS THESE SIGNS EVEN OF MS?
I TRULY HOPE YOU SEE THIS GOD BLESS YOU ✝️🙏❤️
THANK YOU
Thank you for sharing…… I to have the leg dragging and getting in the car I to also physically pick up my leg…. I’m recently walking with a Cain…. I’m undergoing a series of mris and brain sans……. I wish you well 😊❤
I spoke with a man who treats his MS by eating mounds of veggies. His mentor was once crippled with MS and wheelchair bound. This woman was determined to walk again and did research. She ate "mounds" of leafy veggies and now she runs marathons. God bless you and all you love. God bless us all.
Leafy veggies are full of antinutrients, that makes no sense. It’s because of going into ketosis, that has a healing effect, not veggies
I believe that woman is Dr. Terry Walhls! She revered her ms.
@@TangoKiloAlpha54plz guide me I have only legs pain hips outer side is this sign of ms
Gluten free diet
@@dalenemarie really 😳thanks it will help ?
I'm starting to have really painful legs now, having ms for many years new symptoms Occurs again 😢
I am sorry to hear this but at least you finally got a diagnosis! Do you have an aggressive form of ms?
Omg I'm going through same thing, doctor told me im old only 39 been working out, today I just found out is sclerosis
I've been misdiagnosed many times for years. Most doctors at least here in Mexico, just don't care.
They're honestly, lazy and here doesn't exist anyway like a structure, model to follow when a patient like with several symptoms, signs.
I have some diagnosis, (autoinmune) but there are other things illnesses that again doctors just don't care.
I had to investigate by myself and I got my autoinmune diagnosis it's a strange disease that I should have been diagnosed since 2017, why?
Because there was my labwork with this specific antibody test that any doctor cared about!!!
I feel emotionally terrible 😔 and like in a jail.
Like no matter what happens to me they (doctors) are gonna to look at me as an alien and being humiliated for being sick. 😑😶
Sometimes I just want this all finish soon, no matter how.
Years ago, I went through a medical negligence, and several times with humiliations.
Because being sick without diagnosis has broken totally my life, dignity, because most doctors sees you as a thing nor as a human like them.
😪
P.s When doctors don't have idea, or well they don't even investigate they love to diagnose with "Fibromyalgia", chronic fatigue, plus depression.
And send you gabapentin, Lyrica, etc for pain... 😑🤦🏽♀️
If I'd have accept that "diagnosis" I'd be dead by now since years ago.
I don't understand why doctors don't just listen!? Why they don't care!?
Well I have to keep investigating by myself, figure it out, because doctors never care! 😔😞
You Tube Alan MacDonald : MS is a parasitosis
@@djk7439 Hi! Sorry for knowing you're struggling too.
How are you?
What are your symptoms?
Warm Regards!
Wishing you the best! ❤
I am being passed from doctor to doctor....from specialist to specialist. CT scans, X-rays, MRIs, over 100 types of blood work...Nerve conductivity study....spine people, neurologists...you name it.
No one dares to make a diagnosis. Probably out of fear...of being wrong.
Meantime I suffer in pain, 24 x 7. I don't take the pain meds...Last thing I need is my mind fogged up.
R u fine ?
Are you joking? @@nidhisindhwani9871
They thought I had MS but said no because there were no lessons on my brain?
Look up Mshope, he had a surgery in his neck. That in returns brought more blood to the brain. Just thought I would share. Praying for you !
I got MS at 40 years old. I joined a group that only ate fruit and drank fruit juices deluted with water. Within 3.months i was TOTALY HEALED!!
can I join the same group and gets benefits
That sounds very risky.
Thank you sharing...very similar experience in with my MS.. minus I'm not a dancer. 😊
My ms symptoms started in my early teens. I kept thinking I had Hashimoto's, I was constantly tired and the migraines and eye issues were out of this world.
I was told it was basically all in my head and anxiety by a family doctor at the time . That it was stress, viral, literally everything under the sun but autoimmune.
Even when I asked my family doctor for an mri I was basically deterred by her and told mri's take years to get one and that they would find one tiny aneurysm and I would be a hot mess and my anxiety would be worse.. I was literally a hot mess all throughout my youth living in constant fear of physical symptoms manifesting and would literally blame myself if they occurred. The family doctor had convinced me I was basically a hypochondriac with mental issues. Nothing like living your youth thinking you are going to die young.
Well suffice to say I ended up in ER at 32 with a massive brainstem lesion that they said could have cause "certain morbidity" on my medical report. I hastily fired this family doctor who I had trusted for her expertise for half my life. Also learned to never let anybody ever dismiss my symptoms again.
Do you live in the UK? Just wondering because you said it would take so long to get an MRI. I’m in the US and I’ve been able to get an MRI the same day.
@@snowwhite5842 Canada 🇨🇦
How are you now, any treatments
@@samsensation786 I have been taking Gilenya for the past eight years. I have had one tiny lesion show up in that entire time, so working considerably well considering I had really agressive RRMS .
This has helped me so much thank you!
I feel you. Im a dancer or former dancer. I have had chronic pain for 9 or 10 years. They can´t find the root cause......I have been seen by all kinds of doctors. Im still chasing to get pain free so I can dance again, but im also getting older. 42 years old now. I miss dancing...........very much
I have the same story. It's now 4yrs just was told I have MS. My rt.leg sucks
Thank you for helping me realize what I have😢❤😢❤
Feel like this but I also have lots of other Different conditions that is neurological
I appreciate your story but what were your symptoms?
I have severe neuropathy in my feet, legs and hands, coupled with really bad sciatica in both legs. I live in pain every day the second my feet hit the floor each day. Sometimes I wonder if I have MS.
Maybe it's herniated discs? I had horrible sciatica last year and it was due to disc herniation...it can press on the nerves and you will feel weakness in your legs
@@dovlab3089 I have 4 bulging discs and severe scoliosis , definitely is the issue. They want to do a multilevel fusion but at 68 years old I am not going through that.
@John Doe yes...I see..I had severe herniated disc, I am 37...to the point where I couldn't walk at all...and couldn't pee...I went to emergency and was treated with all kinds of narcotics to calm it down...from that episode I still have weakness in one of my legs and I think because of such an accute episode, it's now permanent...maybe you need some narcotics or strong medication to calm it down? Maybe injections?
My wife has neuropathy and lately major twitching in her legs that has actually made her fall.
I am so sorry that doctors didn’t listen to you. I have MS and my body and mental capacity is not like it use to be
Also treat you as finished when you heading to your last year's.Doctors generally aren't what they were meant to be.You are treated as a something.Courage...God be with you.
Very strong women very proud of you