What’s The Worst Part of Being Disabled? / Squirmy and Grubs
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- เผยแพร่เมื่อ 30 มิ.ย. 2024
- Welcome back to another edition of Monday Grubbag! Comment your questions for us below!
MORE INFO ABOUT US AND OUR CHANNEL:
Follow us on Instagram at:
Shane: / shaneburcaw
Hannah: / hannahayl
Chloe: / chloesayspetme
Our address:
Squirmy and Grubs
PO Box 16411
Minneapolis, MN 55416
GRAB A COPY of Shane’s latest memoir, STRANGERS ASSUME MY GIRLFRIEND IS MY NURSE, featuring many never-before-told stories about Shane and Hannah’s relationship, right here: us.macmillan.com/author/shane...
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SUBSCRIBE for more! 👉 / squirmyandgrubs
NEW YEAR, NEW INTRO! Big thanks to mattcem?hl=en for our new intro animation!
Intro jingle made by Caitlin Kalafus! Check out her Instagram page to see more of her awesome work: / caitlinkalafus
Shane Burcaw (he/him) is the author of several award-winning books about disability. He is the President of a nonprofit organization called Laughing At My Nightmare, and a renowned public speaker who has performed across the country at places such as Harvard University, The University of Florida, The University of Connecticut, Princeton University, and many more.
Hannah Burcaw (she/her) graduated from Carleton College, where she studied Sociology and Anthropology. She films and edits the “Squirmy and Grubs” vlog, which has over 800,000 subscribers on TH-cam. Hannah has spoken at prestigious universities and Fortune 500 companies alike about the realities of ableism. On her popular Instagram account, she advocates for acceptance of all people and works to improve the way society thinks about disability.
Shane and Hannah have been together for over four years. They got married in September of 2020 in the midst of a global pandemic in their backyard, with their officiant conducting the ceremony via Zoom. Their interabled relationship often confuses people, because much of society still cannot fathom people with disabilities being involved in loving, intimate relationships. Anyone who watches these episodes will quickly see their relationship is just as “normal” as any other. Sure, Hannah helps Shane use the bathroom and brush his teeth, but those activities do not detract from the emotional, intellectual, and physical connection they experience together.
"He's tiny, he must be sad." Made me choke on my coffee, lol. ☕
You're surrounded by kind and lovely people, have a great sense of humor and wit, and live in a frickin cool house. Yep, Shane's miserable, lol.
Right that house is a mansion!
I cracked up too 😂
Same. I laughed so hard.
👋 Shane and Hannah
white nationalist lookin' ass fuck outta here
it's so comforting to "talk" to you guys... i play these vids while i'm eating and it's so fun like we're all talking at dinner haha
Same 😅
That's adorable :)
Same! I feel less alone haha
Haha I always watch them on my lunch break at work and it makes me feel like that too! 😊
Aww, I love that!
Question: If Chloe could talk but only to answer 3 questions, what would you ask her? What would her responses be?
I vote to have this answered next week 🤣
@Lamp Of Truth . can you explain this more, where did you find this out?
Good question!!!
@@Lippymama seconded!
As someone in the class of 2022, I thank you for that incredible speech. I am very moved. 😂 ready for my dreams to wither
🤣😂
😂
🤣🤣
I can see you have a great sense of humour..... like Shane.
You are goingto do just great in life. Wishing you all the best and a happy future. Dont sweat the small stuff. 😊
@@sharonobrien661 Thank you so much!!
The worse part for me being disabled is that it slows me down walking as I wear a full leg brace of all 10lbs it weighs and my arm dangles when I walk. I suffered a cerebral hemorrhage at age 20 which resulted in a stroke. At 65 yrs I’ve gotten over it. I had 2 children after the stroke. Changed diapers faster w/one hand then someone with 2. I can do everything thing w/1 hand so I’ve adapted! I’ve got a lot of empathy that I probably wouldn’t have had I not had the stroke. I wasn’t suppose to live but I’m SO grateful I did. I live life to the fullest now! Love your channel you inspire me!
Love this! I don’t think anyone wants a disability for good reason but I do feel people with disabilities have far greater understandings and abilities that able bodied people simply don’t. I appreciate you sharing your experience as it has confirmed my wonderings.
You rock Jan!
Life changing injuries sure change how you see the world =/
Jan. U inspire me thank u for doing what u did.
Hannah u look so good today.. Shane.u.a great guy love u both so much
2:47 "He's TINY, he MUST be sad" hahaha Shane you got me there!!! You're hilarious, I love it!!! 👍
I thought Hannah was going to say the best perk was the abilitity to carry so many bags on Shane's chair. I loved that clip in whatever video it was where there were like 12 bags hanging off of Shane's chair. 😂 I am loving the Monday Grubbag series.
The worst part of my disability is it's unseen and people don't believe you have a disability! The Best thing! Samething!
MS’er here- abso-fuckin-lutely. Sometimes I won’t even park in a handicap so I don’t have to deal with it.
Me too. MS also.
you are not disabled person ...you are differently able person dear..
I feel ya! Trying to nail down a definitive diagnosis for 15 years…new Neurological work up com8ng soon
@@anu3950 no we are disabled. Some of us don’t have an issue with the word and don’t need y’all that do changing the words we use. Thank you.
Question for next time: Hannah, what advice would you give a woman about marry a disabled man? And Shane, what advice would you give a man about to marry a non-disabled woman?
I had a very small intro into the disability world when my 4 year old son was on high dose cancer treatments. He was in a wheelchair for about a year. The worst part of him being disabled was obviously the heath issues. The best was the people we met. In that short time we encountered so many wonderful, kind, intelligent, capable, caring and talented humans. I know this might make people uneasy but the contrast between the quality people in the disabled community vs the able bodied community was quite shocking. Nearly every single person in the disability community was generous, kind and incredibly self aware and motivated. It’s a strong contrast to general public who take for granted so many things because they simply haven’t had to worry about health issues or even their own mortality. It’s a perspective that I think many people with disabilities are blessed with as it changes the they appreciate the world and life in general. Watching my son navigate that time in his life has grounded me in a way that I probably never would have experienced otherwise.
I think that’s why so many people say horrible things like “I’d rather die than be disabled” because it has been hammered into their head that their physical appearance and abilities are the most important things in life and that you can’t be happy without that. Being disabled forces you to look within yourself to find happiness and it seems many disabled people find true sources of happiness more easily and don’t take as much for granted.
@@morgangonnelly5683 Spot on!
@@scrumps101 🤍
Shane’s life has great value because he makes people laugh, he has written for a TV show, he is making the world a better place with his (Hannah’s too) work to bring awareness of accessibility issues to the public. More importantly he and Hannah show us all how to live a happy life and what a great couple is.
@@mincedmash796 oh yeah me too, and how do people dare to call Shane “disable”, he’s just a guy in a wheelchair
@@mincedmash796 I don't see the downside. Would you rather they were being fat and miserable in a cardboard box? Your jelly is showing.
@@KatieM786 he's a constant jerk.
Being mean to someone you have never met is a disability.
I hope he gets help.
@@mincedmash796 why are you here every video with your rude stupid comments that aren't even funny.
I mean some trolls have a sense of humor at least.
Every video. Being a complete jerk
Being a troll is a sad disability. I hope you get help.
@@mincedmash796 just say you’re broke and alone and go
Monday grub bad question: if you or Shane could view life through the perspective of an inanimate object, what would you choose and why? This could be in any setting, house, school, workplace, outdoors etc. love your videos!
Such a creative question!
@Bottle Of Blue Glowing Marbles . ??? literally some of the last people who should be there 😫
@@mincedmash796 eww
I love that you guys and Hannah’s parents live together.
My parents moved just a few blocks away from me and it’s so wonderful and mutually beneficial!
It shows, I think, how much more relaxed you are with each other these days. The love was always evident and now the comfortableness is, too.
Love y’all! If you are comfortable sharing more about your fertility journey, I imagine the decision to live with your folks was one in which they will be excited to enjoy grand parenting but also having their own space with a little one around. My folks and I did the same thing 18 years ago. I was so lucky and grateful to have them in my home with my baby boy. Have you and your folks talked about expectations for grand parenting roles being in the same household? Thank you for sharing so much of your life with us!
I just want to say thanks for showing the authentic moments. I've been struggling with navigating a new diagnosis that changes the outlook of my life, and watching you guys address real moments has given me some peace.
I just adore you both! My 20 year old son, Noah has Autism and honestly, I don't know life would be like if he were neuro-typical. Having him in my life just makes me have a different perspective of life and for that, I am grateful. Thank you for being such an inspiration! :)
When I first saw you guys, I thought you were childhood sweethearts. I can feel your love for each other. I just love you guys!!! Shane’s laugh is great! Many hugs 🤗 ❤️❤️
It's so funny and calming listening to you while working home on monday mornings. I like you both very much, and I learned a lot all these years with you. Thank you!
Thank you for sharing your life stories with all of us! It is amazing how much people just assume about the two of you and your lives. I look forward to your videos and hope we can all enjoy them for many years to come.
Thank you both for letting us into your lives.
Thanks! This was a good one, very interesting and informative. I love little glimpses into your everyday lives!!!
Glad you enjoyed it!
These are two awesome people... Their connection with each other is amazing... You can feel their joy even thru their vids... I wish I can meet them one day . It'll be a true blessing..
You both are cosmic. Completely compassionate. Thank you for all of the hard work 💜
Never been more excited for a Monday!
Hey hey hey, don't tease Shane about being excited for his birthday. 😊He was born a one of my three favorite days of the year. My second daughter's birthday!!
Happy Birthday 🎉 Shane!!
Thank you both for all you do and sharing your lives with us.
This has been the best Grub Bag! I like the mix of fun and serious. Great job!
yaaay, I was looking for a new squirmy and grubs vid! Makin' my Monday better!
You break my heart with such stark truth. Being seen as having a lesser life, and all the stuff that goes with it.
I never know what Shane will say.... and Shane you totally get me everytime!
I just discovered this channel like last week.
Shane is legit one of the funniest people on TH-cam lol. I've been binge watching because of his sense of humor.
Haha, have fun with the people that like to make up negative stories from the videos. There are a lot of them.
@Bottle Of Blue Glowing Marbles . seek help
I love following your journey. Your honesty is a breath of fresh air, and both of your outlooks on life, and love, is a true testament to how you feel about each other. My Monday Grubbag question is this....what is the one thing that makes your bond the strongest it could be?
I love these episodes. Thank you for sharing, thank you for your openness, you're two amazing people and I think you're a great duo. LOVE YA!!!
For next week's grubbag... what's the most memorable gift that you've ever received from each other for a birthday or anniversary 🤔
Question: If you could only pick 4 characters from The office to do a reunion episode who would you pick?
I really enjoy your videos. The best way to tell if someone is really happy is to look at their eyes, and you both have very peaceful eyes.
Both of you are absolutely beautiful people. The 2 of you compliment each other. Who cares what other people's opinion's are? I love watching the 2 of you. My life has been great. But, watching y'all ( Yes, I'm a Texan ) has just added more happiness to my life. Thank you for the video's and keep them coming. Can't wait to see the kiddo's when they come along.
I can attest to that Shane I have CP as well and I was married to an able bodied woman she past away from breast cancer almost 6 yrs now and I would love to find love like you found your Queen Hanna God bless ya both always
sorry for your loss 🙏
@@lynettesanchez9315 Thats sweet ty love
Shane you are so funny! I love your quick wit! Have you ever considered “sit down” comedy? 😉. Even my husband laughs at your epic humor! And that says a lot. Lol.
You both have a great life! I adore watching your life and love story. How can people feel pity for someone so obviously happy and funny?
thanks for posting these mondays! like someone else said, i play your videos when i’m cooking or doing things around the house and your company is always my favorite! love you guys!
Question: if money or disability wasn’t an issue what hobbies would each of you like to have or participate in?
So very HAAAPPPYYYY😁😆🥰😆 TO see Shane breathing a lot better.
I'm really enjoying these Monday Grub Bag videos! You two are incredibly great together and it's fun learning new things about your lives.
I absolutely love your responses Shane, I actually belly laugh when I watch yalls videos lol, you have such a great personality and laugh for being someone so sad. 😉 Anyone that has been watching you guys for any amount of time can see what a strong connection you 2 have. Happy birthday Shane and here's to many many more 🍻
Monday grub bag question: I've always wondered to what extent youtubers learn the names of people commenting. Do you have any followers that you've memorized the names of because you've seen it a lot? :) Or perhaps a thumbnail rather than the name.
great q
Or maybe have sent them gifts or meet them in person.
I find some other youtubers I watch notice me.
JP Videos
When I first was watching him I was using my son's profile
[ Ugh MOM! ]
So I signed all my comments - Steph Luke's mom
Hanna has said they don’t read the comments, so I am guessing no.
@@mars4697 they just said they read them to get the questions for Monday's.
You’re both so great together. Shane has such a wonderful sense of humor and personality.
Been following for awhile, and have read your books. I was searching for books to teach my children about disabilities and discovered your children’s book “Not so different.” I read it with my kids. They loved it and your sense of humor. More importantly, they learned a lot. Great job.
Grubbag question: did Shane ever have any surgeries to help with mobility (as in moving arms, legs, feet, fingers, joints, etc.) growing up? And would any surgeries help with that now as an adult?
MONDAY QUESTION: Would you rather fight one human sized ant, or 15 cat sized gorillas? No weapons. Befriending is a possibility, but must argue your method.
Ant
Ugh I really would rather befriend the gorillas. I hate how ants look up close
Lol! Shane asked for fun questions, this is a good one.
You both truly are the best. You have such amazing love and devotion to one another and I love that. I’ve watched your channel for as long as I can remember and it brings me great joy to watching your videos. I’m from St. Paul, MN and thrilled to have a connection with you both. Keep up the great work!😃
Such a day brightener!! You are so fun together - Shane, you are hilarious! One of the best things about Mondays. :)
The commencement speech was hilarious!! 😆
Loving having more content lately 😌
Thanks for being a voice for people such as myself and millions of others with disabilities and. Letting people know our lives can be joyful and full of purpose and we can have happy relationships. 🌷💕😀
That was really entertaining and interesting, really great questions! Thanks S&G!
Grubbag question: Hannah, do you have a workout routine now as a former college athlete? If so what is it?
Monday Grub Bag Question: If you were to submit a new chip flavor to Lays for their chip contest, what flavor would each of you choose?
You know Shane’s is gonna be beer flavored lol
You two are awesome and I am always amused by your wonderful banter and sense of humor😄 I miss seeing Chloe! Such a sweet pup💞
I think you're pretty inspiring, life & it's qualities is how we make it. You've done some crazy cool stuff & continue doing it which brings a lot of joy with humor as well as proof a disAbled life is still a good life, showing that is more valuable than you know, you touch so many people.
Monday grub bag question: has there been any country that you've wanted to travel to that would be impractical due to their lack of accessibility?
I bet there’s a lot ! All the cobble stones …..
You are both rock stars. You exhibit love, strength and an amazing humor that really is inspirational.
I’m a relatively new subscriber. Your content is wonderful and enlightening. Please remember you need to just be true to yourselves. Don’t allow the noise into your life. Sending love and continued blessings.
I love Hannah’s reactions to Shane’s silliness. You two are amazing xx
“He’s tiny he must be sad” omg you’re hilarious. Keep up Monday grubs !!
It is refreshing to see a couple so in love , laughing at The idiocies of a small-minded society.
My son is 23 with Duchenne. It's really inspiring watching ya'll and seeing the different possibilities for his future! Love you guys! ❤️
I’m a nurse working stressful 12 hour shifts while 35 weeks pregnant. I spent my one 30 minute lunch break watching your videos (which I often do!) and I’ve laughed out loud so many times. Thank you!
Monday question: What did Hannah major in at college and does she ever intend to pursue this as a career?
In the description of the video they have bios
@RainbowSpringI think your attitude sucks and remember a person can become disabled at anytime during their life. (disease and accident) since you don't know what your future holds it wouldn't kill you to have compassion. You will probably find yourself sitting ALONE if a disability were to occur in your lifetime. Karma! Besides that what do YOU do for a living that men are touching you all the time?
Hannah doesn't seem to be that kind of girl.
Sociology and Anthropology
Hannah do you have any advice for protecting your hair from chlorine? Any product tips? Thank you!
There are products to help with chlorine damage. You can also wear a swimming cap that seals well.
I personally like chlorine in my hair, makes them lighter, like they used to be when I was younger 😉
Doesn't seem to do any damage if washed out after a swim, maybe because I never dyed or otherwise chemically treated my hair 🤷🏼♀️
Amie, you should take heed of the reply. Hannah is not the only person in the world that knows her stuff about swimming! 🙂
@@d-meth cool I’ll check them out. Appreciate your response
@@amie6243 check out trihard products, aqua guard, etc
Also check out swimmers websites for tips and recommendations.
You'll find something that works for you 🙂
This is one of my fave video ideas you've ever done :)
You guys are so amazing! Don't worry about what people are saying. They must be miserable in their own lives they project it to yours. Love that you are living your truth and living life to the fullest and unapologetically. Love you both from Tonga in the South Pacific ❤
MG question: if a beer was named after Shane what would the name be and what type of beer 🍺 would it be?
That's a good one!
Well wouldn't the obvious be Shane beer.? And either you know who he is or not. No biggie
Monday Grubbag questions:
How does Shane eat on his own? (I know you’ve said he can but I don’t think you’ve ever shown him eating.)
Also, is there any part of Shane’s body he can’t move at all? I love u guys so much 🙂
I’m interested in this as well. Like does he eat regular food or does it have to be a softer consistency etc.?
He’s got that robot arm
Oh come on, they showed his feeding robot at least twice.
He cannot eat completely independently, can't prepare his own food. Someone has to either feed him or cut his food and place into the robot and set the robotic plate in an appropriate place.
Shane cannot move his arms, he can only move his hands a little.
@@PrismaticPixie he can eat normal food, it just has to be cut up into small bites (he can't open his mouth too wide) and brought to his mouth (by either his obi or someone).
@@giantfatberg he also has an obi, a feeding robot
I haven't finished the video but so far my favorite question is how has your relationship grown. Like you try to be so perfect in the beginning. You have that shield up. Buy as you spend more time with your significant other you start to relax and be more your true self. And your partner does too. Communication. Authenticity. Love. This video made me laugh and smile. Thank you. Keep up the good work!
You enrich my life and I really appreciate you.
I've been watching you guys long enough to know that when you split your lives with her parents it would work. The secret sauce is in your personalities. There was no doubt you guys would be able to negotiate that successfully. And that speaks to the kind of people you are and the reason your channel is so successful. You're just adorable both of you.
What does Shane do when Hannah wants to go to bed early?
I just love you two! You are so inspirational
Love watching your videos and you both shine with happiness
Squirmy and grubs, as an extreme introvert, watching you all makes me feel like I have friends who I can chat to any time, without actually talking if you know what I mean 😅 thank you for sharing your world with us!
Monday grub bag question: typing from not so sunny Norfolk, England 😁 What are your top 3 favourite places you have visited outside of the USA? p.s love you both ❤
Hey I want to thank you for educating others on what it is like to be disabled, I am now 54 but when I was 27 my husband and I were in a vey bad car accident, I have been disabled since then and so many people have told me * I am so lucky he did not leave me* that was shocking to us that people would now think I am a burden because I am not what they think is normal. We have started dating 37 years ago and will celebrate out 34th Wedd anniversary on July 30th. It does not matter what others say, because the Truth is the Truth and you are Happy together. I know it hurts sometimes, just try to ignore those people what have no idea that in a blink of an eye they too can become disabled. Thank you for sharing your videos !!
You both have become like my awesome, cool neighbors from next door. Watching your videos is something I always look forward to. Stay awesome!✌❤
What animal best personifies your personality and self image?
Grubbag question: what television children’s show was your favorite?
Yesss I asked the same question this time and last time but haven't gotten it answered. Mine is a little more specific tho. I asked what both of there favorite shows were from as far back as they can remember until now. (like from a toddler until now) and do they have a favorite show in common now. I hope one of our questions get picked
@@lc4life369 I spammed the comment section with an arrangement of questions last week. And they answered my alarm question. Lol.
Love this question!
I LOVE you two so very much!! You both are the coolest people I've ever know! Thank you for all you do! So my question is: if you guys were gonna write a funny, silly children's " Squirmy and Grubs" book , which cartoon character would most be like each your own personality that you would portray in the book, and what adventure would your cartoon characters do?
I can be in the crabbiest mood (parenting is hard!) and listening to your videos will have me cracking up almost immediately. Mondays no longer suck so bad!
You both look extremely happy & in love. Enjoy life. You cannot fix stupid or fight trolls. They're unhappy troglodites with empty lives. Much love to you both!
"Unhappy troglodites" 😊😁 one of the most poetic insults I've ever heard.
You can't fix them but you can report them. They will be banned after enough negative reports.
They ask for the type of offense when you report and I use the harassment or bullying option because that's what it is.
Of course they create a new account after being banned...but it still shows them we won't put up with their slime anymore.
Absolutely loved this variety of questions hahahah such a good mix of “real life questions” and nonsensical ones! Haha
Oh they should definitely keep throwing in the nonsensical ones, agreed!
@@mincedmash796 hahaha I’m not sure if that’s a good thing or a bad thing 🤣🤣
That was great! I enjoy the humor and honesty!
I was excited to watch your video today but no CC yet. ❤️❤️❤️
What if any assistive technologies do you use on phones and computers and how do they help you. What if any assistive technologies would you like to see that do not exist today?
Serious question- I always have dark “bags” under my eyes. What is Shane’s secret to such a fresh looking complexion and such handsome smooth and pale under eyes???
Sleep is definitely an important factor. I usually never have bags under my eyes. But every once in awhile when I have a terrible night of sleep or if I take a quick nap during the day, I almost always wake up with bags under my eyes. I know you want them to answer and I hope you don't mind my advice. I think there's lots of other causes too but I don't know what they are.
I have wondered the same thing, 😆 Shane has the opposite of dark under eyes, he has white under eyes 👀
@@maayan1832 I thought it was makeup to cover up dark circles tbh but I think they mentioned it in a video once and said it wasn't. Now I want to look up if there's a reason or cause to white circles under the eye
Same here about the dark under my eyes. You live your life with people saying to you, "Who BEAT YOU up!??" And "Did ya get into a FIGHT!?" Or "Did your BOYFRIEND beat you up!?" There's no end. When you get prescription glasses though the full framed ones deter the onlooking eye from the stupid cursed dark bags. I'd love to know a cure! Not into time consuming glamor, pop culture methods here like slapping cucumbers or muddy avocado on my eyes though- no time for all that nonsense.
@@lc4life369 One time somewhere I read online that it's genetic. Though not to confuse bags with general dark underneath the thin skin below the eyes. Bags are biological and medical, but dark is more genetic I think.
Love you guys. Been out of the loop for a while, been in, am still so in trauma time out. Trying to get back to life..
Guys I just love ,admire,and respect you soooo much. You are so special and inspiring. You are so lucky to have each other. Keep being best friends and being kind to each other. What a wonderful life you have. I'm so envious but happy for you. Thank you for letting me know you all the way from Ireland. God bless you and all your family and friends. Love Emma x p.s but please enable subtitles,I am hard of hearing and subtitles really help me x...p.p.s Hannah your Hair!! I'm obsessed,and Shane,you are getting more and more handsome as time goes on. High 5 you guys!!
I’m living with myasthenia gravis, charcot marie tooth disease, degenerative disc disease and osteoarthritis. Living with multiple disabilities is hard. People without disabilities are usually the most judgmental. I’m so glad you and others have found people to love you. Your videos make me hopeful. They make laugh and joyful.
Why do you not use a staff for your daily self care?
You guys are always so inspiring 💜💜
Nice to see you both, Shane and Hannah!
grubbag question: if you ever got to act in a film, what would you want the genre of the film to be/name of ur character