Going through a period of progression of Parkinson disease in Early/Young-onset Parkinson

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  • เผยแพร่เมื่อ 3 ต.ค. 2024
  • I am going through a period of progression with my early and young-onset Parkinson's after learning that my mother also was diagnosed with older onset Parkinson's 6 months ago.

ความคิดเห็น • 27

  • @Foundinthewoodsbushcraft
    @Foundinthewoodsbushcraft 4 ปีที่แล้ว +1

    You are stronger than you will ever know. You help many peopl and your mom is so blessed because you can help her now and shes already ahead of the game. This will strengthen her.💖😇🙏

    • @micheleblair
      @micheleblair  4 ปีที่แล้ว

      Thanks so much for your support.

  • @islamaboutaleb4052
    @islamaboutaleb4052 3 ปีที่แล้ว

    Hi Michele, greetings from Egypt 🤗. I'm Islam, writing you on behalf of my father , He has Parkinson as you since 6 years ago, He's 66 yo.
    We found you searching info about the Imbrija, Big thanks for your videos about your experience with it.
    I have 2 years looking for Imbrija but definitely in our country we can't found it and I'm driving crazy about it.. probably I'm going to order over seas if it's available.
    Get strong Michele !! you're not alone, you have new friends !, keep posting, my father is blessing and praying for you too.

    • @micheleblair
      @micheleblair  3 ปีที่แล้ว

      I have noticed that people have trouble finding it. It is still fairly new so maybe it is not approved yet in your country. It works, but is used to boost the effectiveness of the medication he currently is taking. It gives me a head start on waiting for my sinemet to work, but only lasts about half hour. I have been told it is a very low dose of Levedopa/Carbadona.

  • @carlosnassar7629
    @carlosnassar7629 4 ปีที่แล้ว

    Hi Michele, greetings from Venezuela 🤗. I'm Carlos, writing you on behalf of my mother Vilma, she has Parkinson as you since 4 years ago, she's 67 yo.
    We found you searching info about the Mucuna seeds, Big thanks for your videos about your experience with it.
    I have 2 days looking for mucuna but definitely in our town we can't found it and I'm driving crazy about it.. probably I'm going to order over seas.
    My mom is taking 2,5 mg of generic Sinemet a day but since a month or so symptoms are worsening, she has the same kind of issues as you, tremors are no present except a bit on her neck when she looks down but the stiffness , numbness in shoulder, arms, hands and mobility issues as well she's struggling 24/7, off periods are getting exacerbated.
    Get strong Michele !! you're not alone, you have new friends !, keep posting, my mother is blessing and praying for you too.

    • @micheleblair
      @micheleblair  4 ปีที่แล้ว +1

      Hello Carlos. My mother's family has roots in Venezuela, they later moved on to Trinidad. If you have family or friends in the US they could order a package from Banyan Herbs and send it to you to try to see if it works. I found only the powder works. It would only take a week or so to know if it is working or not, I don't think they ship internationally, but I will check since I get a lot of questions about where to find it outside the US, Say hello to your mother and thank her for her prayers,

    • @carlosnassar7629
      @carlosnassar7629 4 ปีที่แล้ว

      @@micheleblair Hi there, that's nice your mother has family roots in here 🇻🇪🤗.
      I just found a Mucuna seller in another city, it's handmade by them, he said the seeds are roasted then blended to make the powder, it's kinda challenging bc isn't standardized to know the amount of mgs on it but my mom wanna give it a try regardless.. 😶. The guy told me it works wonders on his customers.. I'm going to pick it up by Wednesday to check in person that place thou, Meanwhile I'm contacting some family in US to order from Amazon.
      My mother just added an extra half tablet of sinemet to her daily dosage for a total of 2 1/2 tablets per day.
      Question Michele, Did you replaced Mucuna x any of your Sinemet dosis or you just added to your treatment ?

    • @micheleblair
      @micheleblair  4 ปีที่แล้ว +1

      @@carlosnassar7629 Great! Yes, there are challenges with what dose to take. I would start as low as possible, only 1/2 teaspoon a dose. Remember that it is the same Levedopa that is in the regular medicine just in natural form. I used to replace my entire day of medicine but you still need to take 1/2 a tablet of her regular medicine with it. Warn her it has a horrible taste. I would, however, start slowly and replace one dose. You can use it to boost your regular medication also. It does not work for everyone, but at least you will know quickly if it is or is not. If it does not I have found that what may not work at one point may work further down the line. Let me know how it goes.

  • @hamdababar3149
    @hamdababar3149 3 ปีที่แล้ว

    Nice

  • @davidmerwitz6564
    @davidmerwitz6564 4 ปีที่แล้ว +2

    Hang in.Don't hide out.If your weight is a problem for people, you don't need them. Exercise,exercise, exercise,exercise,fight, fight, fight.

    • @micheleblair
      @micheleblair  4 ปีที่แล้ว

      Thanks for your comment. Currently I have a round of physical therapy just so I can go back to the gym.

    • @davidmerwitz6564
      @davidmerwitz6564 4 ปีที่แล้ว

      M you can still work out at home. Use soup cans for weights.Hang on to a chair for leg work.Any exercise you can think of will help
      Don't make excuses you can do it.

  • @Utillitarian
    @Utillitarian 3 ปีที่แล้ว

    Michele please I hope this finds you in good spirits.
    Please make steps in your nutrition.
    Wheat has been linked to depression, neurological, and psychological issues.
    Please consider cutting out the eating of bread, pasta, cereal, snacks, and candy with wheat in it.
    Try millet, teff, amaranth as substitutes for wheat.
    You may see an improvement in weightloss and cognitive/motor function.
    Also drink plenty of water.
    Cut out all consumption of pork, shellfish, and bottom feeders, this will greatly improve your health by the reduction of the amount of toxins going into your body.
    Eat many berries as grapes which have been found to improve and repair damaged nerves.
    I do hope the best for you.

    • @Utillitarian
      @Utillitarian 3 ปีที่แล้ว

      Also allow 2-3hours between pharmaceutical drugs and herbs.

    • @micheleblair
      @micheleblair  3 ปีที่แล้ว +1

      Great suggestions and that is a good point on using western drugs and herbs. If you are on western medicines you may have to skip herbs, but always check with your western doctors.

    • @Utillitarian
      @Utillitarian 3 ปีที่แล้ว

      @@micheleblair yes some herbs present contraindications when used with medication. Like St. John's Wort is used for depression, but it can render birth control drugs completely ineffective. I hope the best for you♥️

  • @noorulain7066
    @noorulain7066 3 ปีที่แล้ว +1

    🥺

  • @syedrameez8146
    @syedrameez8146 4 ปีที่แล้ว

    Did you try wet cupping ? It is really helpful

    • @micheleblair
      @micheleblair  4 ปีที่แล้ว +1

      I will have to google that. Cupping as in acupuncture?

    • @syedrameez8146
      @syedrameez8146 4 ปีที่แล้ว

      @@micheleblair yes similar. They place plastic cup on your body and creates vacuum and the cut the skin and takes out all the toxic blood from body.

    • @syedrameez8146
      @syedrameez8146 4 ปีที่แล้ว

      @@micheleblair did your doctor ask your for vitamin d3 test ?

    • @micheleblair
      @micheleblair  4 ปีที่แล้ว +1

      Okay, yes it is what I was thinking. I have not tried it but believe it can help relieve some of our symptoms. Here our acupuncturist do it and I have several friends that are in that field. I will try it with one of them. Thanks for your comment.

    • @syedrameez8146
      @syedrameez8146 4 ปีที่แล้ว +1

      @@micheleblair no problem , stay strong❤

  • @Shadow-zi7mh
    @Shadow-zi7mh 4 ปีที่แล้ว

    Hi. do you still take bean powder?

  • @teneshahughes2959
    @teneshahughes2959 4 ปีที่แล้ว

    Hi I know awhile back you did a on rytary I was wondering how did that work for you and did you have any side effects?

    • @micheleblair
      @micheleblair  3 ปีที่แล้ว

      It just did not work for me, but sometimes what does not work for me in the past may work in the future.