Fighting the good fight against ALS

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  • เผยแพร่เมื่อ 26 ก.ย. 2024
  • Brian Wallach has beaten the odds after being diagnosed with ALS (amyotrophic lateral sclerosis, or Lou Gehrig's disease). Given six months to live, remarkably he has survived six years. During that time, he and his wife Sandra have lobbied for funds for promising drugs and treatments. Two years after first meeting Wallach in 2021, correspondent Lee Cowan revisits with him to find out how he and his grassroots organization I Am ALS helped pass a law (Act for ALS) funding more than $100 million a year for five years for various ALS initiatives, and why Wallach himself is hopeful for the future.
    ‪@IAMALS‬ #als
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ความคิดเห็น • 74

  • @JiminPalmSprings
    @JiminPalmSprings 10 หลายเดือนก่อน +41

    Makes you think about not complaining so much about what’s going on in your own lives when this family is dealing with this… Really inspirational

    • @bobsturgis4674
      @bobsturgis4674 10 หลายเดือนก่อน +1

      I agree with you very much.Also has i have thought for sometime now.When you think you are having a bad day.Go turn on the news,i will bet someone else is having it worse then you.

    • @RobdeKlerk-qg6lc
      @RobdeKlerk-qg6lc 8 หลายเดือนก่อน

      Is lhermitte sign present in als

  • @romstar
    @romstar 10 หลายเดือนก่อน +21

    To have a wife like Brian does in Sandra ❤😢makes you believe that there are angels 💖 among us! Everything about her is beautiful 😍

    • @ronniebattle1310
      @ronniebattle1310 10 หลายเดือนก่อน

      Encounter Ministries TH-cam channel. Mark Hemans

  • @schawnettarobinson8584
    @schawnettarobinson8584 10 หลายเดือนก่อน +7

    He is surviving longer because he has real and genuine support. I’m so happy for him. May God continue to bless him and his beautiful family.

  • @hankmike3283
    @hankmike3283 10 หลายเดือนก่อน +14

    He is a blessed man to be loved lile he is by his wife.

  • @captainnima
    @captainnima 10 หลายเดือนก่อน +4

    What a man and frankly what a wife and woman. Amazing couple.

  • @tfrauenhofer1309
    @tfrauenhofer1309 10 หลายเดือนก่อน +14

    I had a friend who suffered with ALS for almost 20 years before she passed. She fought the good fight up to the end. I wish Brian a long life with his family, and that he can keep fighting the good fight!

  • @rose03cruz
    @rose03cruz 10 หลายเดือนก่อน +15

    Thank you Brian and Sandra and all who have worked for those with ALS. My mother passed away from ALS in 1979.

    • @sandranorman5469
      @sandranorman5469 10 หลายเดือนก่อน +1

      My condolences. My nephew has ALS.

  • @lprice5583
    @lprice5583 10 หลายเดือนก่อน +15

    I love CBS Sunday Morning! Thank you for all of the great stories.

  • @ADRgman
    @ADRgman 10 หลายเดือนก่อน +14

    I lost my 4th grade teacher to ALS and it must have been hard for her family to see her like that.

    • @DavidLesterStraight-lb1ps
      @DavidLesterStraight-lb1ps 9 หลายเดือนก่อน

      Here it comes!!
      A lot has been happening recently, I hope you are aware of the sudden GCR?

  • @libertyann439
    @libertyann439 10 หลายเดือนก่อน +16

    What a sad, cruel disease. Addy Barkin just recently died from ALS after being an activist for years in. Washington.

    • @jolness1
      @jolness1 10 หลายเดือนก่อน

      I saw that. Tragic, he fought so hard and that legacy lives on

    • @ronniebattle1310
      @ronniebattle1310 10 หลายเดือนก่อน

      @@jolness1 Encounter Ministries TH-cam channel. Mark Hemans

  • @lucindaarmstrong1162
    @lucindaarmstrong1162 10 หลายเดือนก่อน +11

    My husband’s doctor refused to come to our house to see him when he could no longer safely leave our house. He was connected to so many machines, it was impossible. ALS took him but I still resent the medical profession that cited rules about security.

    • @ronniebattle1310
      @ronniebattle1310 10 หลายเดือนก่อน

      Encounter Ministries TH-cam channel. Mark Hemans

    • @Asherman27
      @Asherman27 10 หลายเดือนก่อน

      I can totally understand this. I’m so so sorry this has happened to you and your husband.

    • @ronniebattle1310
      @ronniebattle1310 10 หลายเดือนก่อน

      @@Asherman27 Encounter Ministries TH-cam channel. Mark Hemans**

  • @davefarr4596
    @davefarr4596 10 หลายเดือนก่อน +11

    I lost my grandma my mother my aunt and my little sister to ALS. I’m no stranger to this heart breaking disease.

    • @Elena-kc3vw
      @Elena-kc3vw 10 หลายเดือนก่อน +1

      So terribly sorry for such losses. ❤

    • @schawnettarobinson8584
      @schawnettarobinson8584 10 หลายเดือนก่อน

      I’m so sorry: May God continue to continue and keep you. I hope you have a good and stable support system.

    • @ronniebattle1310
      @ronniebattle1310 10 หลายเดือนก่อน

      @@schawnettarobinson8584 Encounter Ministries TH-cam channel. Mark Hemans++

  • @lukodaian
    @lukodaian 7 หลายเดือนก่อน +2

    Many thanks to his wife ❤

  • @c.golden8280
    @c.golden8280 3 หลายเดือนก่อน

    I’m grateful to Brian and Sandra for cofounding Synapticure. I was diagnosed with Parkinson’s and am now benefiting from their work.

  • @addiemclain1183
    @addiemclain1183 10 หลายเดือนก่อน +7

    What a great story!! This is my fight song!!

  • @dianabarrick4663
    @dianabarrick4663 10 หลายเดือนก่อน +6

    May God bless you and keep you and your family ❤

  • @adelaferreira4575
    @adelaferreira4575 10 หลายเดือนก่อน +3

    Wow ,we should stop complaining about the little things that happens to us ,my deep respect for both of them ,wonderful couple,horrible disease ,brave people ,many blessings !

  • @kb8990
    @kb8990 10 หลายเดือนก่อน +2

    God bless these people.

  • @carolsopinski4549
    @carolsopinski4549 10 หลายเดือนก่อน +1

    God bless him and his family❤

  • @user-sx4si6jv9x
    @user-sx4si6jv9x 10 หลายเดือนก่อน +1

    My beloved aunt passed from this truly awful disease. Patients should absolutely have the right to opt for unapproved medications.

  • @cherylmillard2067
    @cherylmillard2067 10 หลายเดือนก่อน +7

    Dogs can get a canine version of ALS called degenerative myelopathy, the same mutated genes are involved, it can also be inherited along familial lines.

  • @yvonnecooper5004
    @yvonnecooper5004 10 หลายเดือนก่อน

    Research is so important. Proper care expensive. Glad there have been advances during his journey and I hope they continue. Give the torch to someone else for awhile and enjoy your family.

  • @panchamama
    @panchamama 10 หลายเดือนก่อน

    You are amazing...sending all my love ❤

  • @67marlins
    @67marlins 10 หลายเดือนก่อน

    The wife is an angel.....

    • @DavidLesterStraight-lb1ps
      @DavidLesterStraight-lb1ps 9 หลายเดือนก่อน

      Here it comes!!
      A lot has been happening recently, I hope you are aware of the sudden GCR?

  • @wdh47211
    @wdh47211 10 หลายเดือนก่อน +8

    My brother died from ALS....misdiagnosed over and over again....then finally it was too late and he lost his quality of life and died from it. Horrible death. Basically, just waste away and lose your speech and abilities to function.

    • @ronniebattle1310
      @ronniebattle1310 10 หลายเดือนก่อน

      Encounter Ministries TH-cam channel. Mark Hemans

  • @chrischristoferson1191
    @chrischristoferson1191 10 หลายเดือนก่อน +1

    I cannot imagine being so young being so disabled.

  • @caeserhuitron9967
    @caeserhuitron9967 10 หลายเดือนก่อน

    A beautiful story❤

    • @DavidLesterStraight-lb1ps
      @DavidLesterStraight-lb1ps 9 หลายเดือนก่อน

      Here it comes!!
      A lot has been happening recently, I hope you are aware of the sudden GCR?

  • @mattwatson-h5t
    @mattwatson-h5t 10 หลายเดือนก่อน +2

    Sorry Mr.Henry Louis Gehrig. The Iron Horse is officially.... forgotten 😢

  • @jeris33
    @jeris33 10 หลายเดือนก่อน +1

    He could get his voice back with I Will Always Be Me.

    • @ronniebattle1310
      @ronniebattle1310 10 หลายเดือนก่อน

      Encounter Ministries TH-cam channel. Mark Hemans++

  • @ryancampbell5039
    @ryancampbell5039 10 หลายเดือนก่อน +3

    My god, what a horrible disease. Makes me angry that people are robbed of time.

  • @Spring-26
    @Spring-26 10 หลายเดือนก่อน

    God bless and hill him❤️💯🙏

  • @yvonnecooper5004
    @yvonnecooper5004 10 หลายเดือนก่อน

    I wish a person néeding a quality caregiver could apply for a grant to cover the cost. Access is a real problem.

  • @susankamaka745
    @susankamaka745 10 หลายเดือนก่อน +1

    My brother-in-law was diagnosed with ALS in 2019. He passed away in 2021. His illness progressed very quickly. He never complained. I was so fortunate to stay with him and my sister for the last year and a half of his life, and witness how he handled his life with such grace. ❤️. Your dedication to helping and pushing for the medication so desperately needed is truly selfless and inspiring. Thank you, thank you, thank you. 🤗❤️

  • @JMD7379
    @JMD7379 7 หลายเดือนก่อน

    My cousin just died last week from ALS. She got the covid vaccine and then started showing strange symptoms and thought that was the cause. It took her within 2 years. Horrible disease.

  • @ludovicoc7046
    @ludovicoc7046 10 หลายเดือนก่อน +2

    Thanks for not referring to ALS as "Lou Gehrig's Disease, " even though I see it in the episode notes. Now that there is a medically accurate term--ALS, it's time to retire his namesake moniker because several generations have no idea who Lou Gehrig was, and he should be remembered for his exploits on the baseball diamond instead of having the bad luck to have come down with a disease that would be named after him.

  • @carolcalton4720
    @carolcalton4720 9 หลายเดือนก่อน +1

    I have lost three loved ones to this horrible cruel disease with another one dealing with it now.

  • @007peeper1
    @007peeper1 10 หลายเดือนก่อน +4

    ALS is a horrible disease. My best friend just passed away. What is the cause of ALS? Maybe if we find the cause, toxins in our food, utensils, air. ?

    • @Asherman27
      @Asherman27 10 หลายเดือนก่อน +2

      100% this. It’s not just a “genetics” thing. They need to do MORE to help the ALS community. My mom fights everyday with this disease and she won’t give up

    • @ronniebattle1310
      @ronniebattle1310 10 หลายเดือนก่อน

      @@Asherman27 Encounter Ministries TH-cam channel. Mark Hemans++

    • @DavidLesterStraight-lb1ps
      @DavidLesterStraight-lb1ps 9 หลายเดือนก่อน

      Here it comes!!
      A lot has been happening recently, I hope you are aware of the sudden GCR?

    • @ronniebattle1310
      @ronniebattle1310 9 หลายเดือนก่อน

      @@DavidLesterStraight-lb1ps Encounter Ministries TH-cam channel. Mark Hemans++

  • @soniaalvarado5372
    @soniaalvarado5372 10 หลายเดือนก่อน +1

    There is a cure, we just haven’t uncovered it yet.

    • @DavidLesterStraight-lb1ps
      @DavidLesterStraight-lb1ps 9 หลายเดือนก่อน

      Here it comes!!
      A lot has been happening recently, I hope you are aware of the sudden GCR?

    • @ronniebattle1310
      @ronniebattle1310 9 หลายเดือนก่อน

      @@DavidLesterStraight-lb1ps Encounter Ministries TH-cam channel. Mark Hemans++

  • @INTERSTELLAR1111
    @INTERSTELLAR1111 3 หลายเดือนก่อน

    DRUGS DON'T HELP !!!!!!!!!!!!!!!!

  • @janetjohnson7279
    @janetjohnson7279 10 หลายเดือนก่อน +3

    ✨✨ First!! ✨✨

  • @Scott-pe6te
    @Scott-pe6te 10 หลายเดือนก่อน +6

    Both Brian's and Chris' stories are inspiring. In fact, we need a new word for inspiring after watching this. There are so many diseases that not only rob people of their lives but steal their dignity as well during prolonged suffering. ALS is an especially cruel one. I had a close family member pass away from ALS several years ago. I know firsthand what this terrible affliction can do.
    Science inevitably will beat ALS. I remain optimistic of this after watching this touching video.

  • @angellosmalefakis1321
    @angellosmalefakis1321 10 หลายเดือนก่อน +2

    Wow! This is beyond words the dedication of family for their right for medicine and care. Wow! Words are not enough here.

  • @Theantichryst
    @Theantichryst 8 หลายเดือนก่อน +1

  • @lbbean6544
    @lbbean6544 10 หลายเดือนก่อน +4

    I personally know people who are currently in the process of reversing their ALS symptoms and they are not ‘hanging their hat’ on the hope that 1 ‘miracle drug’ is going to cure them.

    • @Asherman27
      @Asherman27 10 หลายเดือนก่อน

      Yes!!!!! Love this. My mom is doing the same. The medical community has let so many down with alternative ways to help research and treat this horrible disease.

    • @ronniebattle1310
      @ronniebattle1310 10 หลายเดือนก่อน

      @@Asherman27 Encounter Ministries TH-cam channel. Mark Hemans++

    • @motorevving9529
      @motorevving9529 5 หลายเดือนก่อน

      How to reverse als symptoms? Can you help me?