MY GRAVES DISEASE, HYPERTHYROIDISM AND RADIOACTIVE IODINE TREATMENT
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- เผยแพร่เมื่อ 3 ต.ค. 2024
- I want to share my experience being diagnosed with Graves Disease which caused my hyperthyroidism. I had radioactive iodine treatment and now currently have hypothyroidism which is very treatable!
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Thank you for sharing! I was diagnosed with stage 2 thyroid cancer and had my thyroid removed. I also had the radioactive treatment, but I had a very big dose (isolation for 8 days). I’m now cancer free and taking synthroid everyday. I’m so happy to be healthy and that I’m able to take care of my little ones. GOD bless!
God Bless You I am SO glad to hear that you are healthy and cancer FREE!!
BootsieDior74 ,
Thank you very much! It’s so kind of you to reply. GOD bless!! 💕
Does the radioactive is dangerous to everyone?
Because i have a partner have a thyroid cancer like you.
She was in isolate for 2 weeks and im the one handling her food right now.
JadiNe 18 Shouldn’t be dangerous after the isolation period is over. Radiation is washed out at that time.
Godbless you I'm happy you're doing much better
I was diagnosed at 13 and it’s been 6 years and this made me feel so much better that someone is actually talking about it. Love you jen❤️❤️❤️
There’s no such treasure like health. You deserve all the blessings Jenny ❤️
Thanks for upload this video
I was just diagnosed with Graves’ disease and its nice to hear others stories. It’s hell! I still not feeling good yet... right now I’m on a supper strict diet and I’m writing down what I eat to figure out what foods hurt me. My life has changed a lot getting sick and I hope to share my experience one day like you
How are you doing now with your condition?
Don't take the pill. I took it and I found out that later on in life, that same radioactive pill that u took eons ago, will effect a nerve in your neck and cause it to fail (doesn't always happen but it can). I think the surgery is better because at least u still have a piece of your thyroid that will function and there are other ways to cure yourself with some holistic stuff. I learned this later but can't change my choice now. Just research before u trust your doctor's words.
Please... Whatever you do,? Do not have this Radio Active Iodene. Research absolutely only on the Natural Health Side,! "They" love is so much.... Same as they pretend for the last nearly three years. Doctors are actually in Witchcraft without knowing it! 🫂💞
I just got diagnosed with grave disease too and I would love to know what diet worked for you, thank you.
Is graves desease and hyperthyroidism the same?
Yes, this video was very informative, thank you for sharing. I was just recently diagnosed with Graves’ disease but I don’t plan on taking any radiation iodine and go from hyperthyroidism to hypothyroidism. My mother had hyperthyroidism and my daughter has hypothyroidism and my daughter and I are leaning towards the natural path solution.
Please what natural remedies do you take for hyperthyroidism I have a goiter growing pls help me
what is the natural path solution?
Thyroid radiation update. Before my treatment I used to feel tired, sleepy, and cold my skin was always peeling on my face and my arms.
I didn't want to have the treatment due to scary videos. This video is very informative. I had my treatment two weeks ago. Now I can say do it, it is so different I feel alive no more cold no more skin dryness I have energy. Don't be afraid just want to let you know.
Hello, how are you feeling now?
Thank you for this! I have Grave's as well and am scheduled for radioactive iodine treatment in 2 weeks. Knowing someone went through the same thing and came out strong is very comforting.
Did you take your radioactive iodine treatment?
How do you feel?
Anyone else with Grave's experience any cognitive impairment before treatment? Like memory loss, poor decision making?
I do. This is my 2nd time having Graves disease, so I'm seriously considering RAI. I'm not a good candidate for surgery since I'm having issues with my white blood cell count. But anyway, both times I've had memory loss, so I have a habit of keeping lists and excel sheets. I use Google tasks and calendar to manage my to do list and schedule. I've also developed routines to help with my day to day.
I have it’s linked to your diet ... cheese , rice, anything white really, it’s a list I can email you or look up ... foods bad for thyroid on google
Yes I forget everything and just cant think straight I'm very depressed and just dont feel good. Heart racing. Bowel problems and weight loss despite increased appetite which is also accompanied by nausea.
I have all these symptoms
Yes. It effected my school really really bad !!
Having this discussed. Cant wait to tell my boss "I'm sorry I can't come in I'm radioactive"
you are funny, lol So nice to see you are in a good mood
KMichelle Argus how did it go ?
I got diagnosed with Graves after going to the doctors thinking I had post natal depression. Turns out it was the reason my baby was prem and born at 3lb too. Thanks for sharing 💛 x
My aunt had a thyroid issue as a teen, and she also underwent radioactive iodine treatment and she's been fine ever since (no medication at all anymore). She was lucky the doctor (our internist at the time) discovered it when he did.
Thats great to hear. No other health issues after that? I worry about getting cancer from the radioactive part.
@@sahara6197 She was a teen (young teen, about 14/15) when this happened, and she is going to be a healthy 65 in May this year. :) She's super healthy!
@@amixeblu Hi it's nice to hear. after treatment whether she was able to get pregnant and deliver a healthy baby?
@@krishnapriya9662 Yes. Of course. She had no ill effects after.
@@amixeblu She doesn’t take any medication even though she no longer has a thyroid?
It was really cool to hear your story as hyperthyroidism isn’t all that talked about. I’ve had Graves’ disease and hyperthyroidism for my whole life, which unfortunately means I didn’t notice any symptoms; I’ve always been skinny, got headaches, never slept etc. I wasn’t diagnosed until I was twelve and went into a thyroid storm. Then at sixteen I got the RAI, became hypothyroid and it was the best decision I’ve ever made :)
I was also caught in Thyroid storm. My doctor recommends RAI however i am thinking if weight issues will arise if i will undergo that since literally i will be hypo for the rest of my life. How was your experience after RAI?
@@JennyJay803hello, have you gotten the RAI already? And how is it being hypothyroid if ever
my graves disease destroyed my thyroid because it was left so long . iam so mad at drs because for 3 years before being diagnosed i was sick all the time went on disability eneded up in hospital a few times a year before i was diagnosed , i was light headed all day dizzy weak achy buzzing and tremors in my body and muscles stiff joints swollen hands feet and face and eyes . huge belly , seemed to be allergig to many things suddenly , and drs said it was sinuses and gave me sinus spray , so the day my graves killed my thyroid was when i found out i had graves for many years and didnt know it ! i knew i was sick and was on disability but drs ughhhhh. what good is going to the hospital any more . the last few years of my life was literal hell !
Thanks for sharing! I was diagnosed with Graves literally two days ago and hyperthyroidism last week. It’s been a whirlwind and I still don’t know much about my condition. The medical blogs and diagrams can be really scary! Thanks for sharing your experience, it’s really helpful to see a friendly face. Even 3 years after publishing!
@Jacinto Scheumanntl Hey do you have an email, I'm searching for Help for my Help
I had thyroid cancer and a total thyroidectomy/radioactive iodine in 2009/2010 with no symptoms other than a nodule in my neck. Totally changed my life...thank you for bringing more awareness to butterfly survivorship!!🦋
Claire Dise same 🦋 I had thyroid cancer 3 times :(
The nodule on the side of your neck? I was diagnosed with Graves', I noticed a tiny one. Omg!
@@safmoons752 omg. I hope you're cured now!!!
@@safmoons752 How are you doing now?
@@nunyabusiness408 thank God, I've been cancer free for fours years now!😄
I recently had my blood drawn from lab Corp and like many other thyroid blood work I’ve done most of my adult life said my thyroid is fine. My health just kept declining and I was just miserable. My husband took me to another dr. And they drew blood that was tested in a private lab. To my surprise the results showed I have hypothyroidism. They have found 2 solid nodules which I’m going to need them to biopsy. If you continue to have symptoms of hypo or hyperthyroidism after a few negative lab test results, get a second opinion! It would have been nice to have started treatment sooner. Thanks Jenny for sharing!
I am very lucky. My thyroid is now normal after 4 years of fighting this. Thanks to the radioactive iodine treatment. Feel so much better!
is it mandatory for you to tqke medications for life?
so much better it not heal properly
Do u have to take pills for life?
@@nunyabusiness408 yes!
I am suffering from this. Newly identified. Midnight and cannot sleep due to shortness of breath 😔
thank you so so much for this video. I was diagnosed last week and it's been a weird journey because I originally thought I was having a weird allergy reaction. it was really reassuring to see other people out there who have gotten better!
Am a victim of hyperthyroidism. It sucks. 😔😔😔 you mean Neo-Mercazole or carbimercazol
I'm with you! It can be such a long journey to recovery. How has you's been coming along?
Don’t take those medicines ,,, only 50% success ratio and it will affect badly your bone marrow
@@WifeWithoutKids Mine is getting worst do you have some tips?
@@WifeWithoutKids Please share some tips if u can mine is getting worse.
The meds are super horrible, with hell side effects
Thanks for making this video Jenny! It’s nice to know that I’m not the only one with thyroid issues and you made me more comfortable to get it checked instead of ignoring it
Thanks Jenn for being so open with your life! Love ya OG subscriber
My cat had a thyroid issue and I opted for the radioactive iodine treatment instead of giving her pills - it totally fixed her thyroid issue and she lived to be 22 years old which is a very old age for a 🐈 cat to live.
Hi,
I was dx with hyperthyroidism in July. I was at the doorstep for a thyroid storm and was hospitalized for nearly a week. It was horrific and traumatizing to say the least. I am currently on disability, but looking forward to going back to work soon. Thank you for sharing your story. I still have my thyroid and am taking anti thyroid meds to keep it in check. My endo wants me to get rid of my thyroid because of how severe my case was. He told me two things: if I were older, I would not have made it and said it was good that I had a healthy heart (I’m 40) and if I had waited one more day in getting treatment, I would have not made it. I wish people would talk more about thyroid issues as I never heard of this disease and thought I was going through peri menopause/menopause.
Hearing your story did help calm my nerves a bit and helped organize my thoughts and put a lot of things into better perspective, thank you so much! ❤
My boyfriend was diagnosed with hypothyroidism at age 21 and he tells me how much he can relate to women with the same condition. Thanks so much for sharing part of your story Jen! 😘♥️🙏🏼
Did he go with RAI treatment? How is he now?
Thank you for chatting about this! I’ve been misdiagnosed for years-I was finally diagnosed with Hypothyroidism and Hashimotos last year...after having a partial thyroidectomy in 2012. I would like to add that my endocrinologist only checked T3, T4, and TSH. My numbers were always in “normal range”.
It was not until a naturopathic doctor ran a full thyroid panel that I was diagnosed. It makes a difference when you’re on the right dose and vitamin regiment. You feel normal again when everything is in check! I hope you’re feeling better and it sucks to have all these symptoms!
Emily Myers I passed out on Thanksgiving morning and have been sick since I mean bedbound sick. 7 months finally answers. I told the heart doctor I feel 24/7 that feeling you get when a cop is behind you and you dont know if you were speeding. He said its adrenaline that's the worst. I just want that part gone. I look as if I'm a crack addict itching and shaking. They did a TSI blood that's how I found out. Now I have to see an encronolgist. Good luck.
HUGGS Terrie
I was diagnosed w hyperthyroidism in 2018. This disease has some of the worst symptoms on the body that can affect your everyday life. My doctor prescribed methimazole which I was taking for about 1 yr & three months. But that medication can eventually do a number on your liver and kidneys if taken for a long period of time so I didn’t wanna continue taking the medication. I had to keep up w my LFTs(liver function test) to make sure that my liver was still intact while on the medication. It’s just way too much! My Endocrinologist introduced me to RAI therapy but then assured me that I had to be on the methimazole for up to a year b/c in some cases it (methimazole) reverses the hyperthyroidism. After the yr & some months was up I was administered to take small dosages week by week then just stop the meds. W/o the meds I became ill my body couldn’t function I was back to being weak, having hand tremors, and always irritated w anxiety etc. I was put back on my medication but then had to stop taking the meds for the thyroid uptake which measures how much hormone the body is giving off as well as how much RAI your body will need for the treatment. After that,I just received my radioactive iodine therapy last week & it’s been rough. Hopefully I’ve made the right decision. 🙏🏾
Sharon Williams>>>> THANK YOU FOR EVERYTHING YOU SAID. I WAS GIVIN MY OPTIONS TODAY. IM GONNA GO WITH THE TREATMENT 💜💜💜 PRAY FOR ME AS I PRAY FOR YOU
FRANCESCA YERKS good luck to you darling!!
I’ll be keeping you in my daily prayers 🙏🏾🙏🏾🙏🏾
Hi Sharon! I would love to talk with you to see how you're doing now? How are you doing now since you've received RAI? I'm considering this been battling with it for years....
TamaraC Hi Tamara! After the treatment I became ill but that was due to the RAI treatment destroying the thyroid function. I had my labs done about 2 months afterwards & my numbers were really hi. My doctor explained to me that it was going to take time for me to feel better because my thyroid was releasing extremely hi amounts of t3 & t4 (this was due to the radioactive iodine treatment ). I received the treatment in August 2019. During my second doctors visit around the end of October my doctor put me back on the methimazole (a low dosage) b/c my body couldn’t function, but my Endocrinologist assured me that sometimes it could take up to six months for the RAI treatment to kill the function. You know everyone’s body reacts differently. By November 2019 I was put on 5 mg of methimazole. By December I was starting to feel a whole lot better, it was a feeling that I can’t describe. I was so use to feel tired, weak, achy bones & tremors that when I began to feel better it just felt so good. Meanwhile I went back to work & was still taking the methimazole & missed one of my Endocrinology appointments. Fast forward to the end of February 2020 I started to feel horribly sick again😩 I thought I was just overworking myself. So I was resting eating well balanced meals and still taking my 5mg of methimazole. So now it’s March 2020 I started to feel even worse & started to notice that I was losing my hair.... it began thinning out. I thought I came in contact w COVID-19. I was rushed to the hospital! They was running test & did some blood work. This is how I found out that my levels was through the roof they were really high . So they diagnosed me w hypothyroidism. Now I’m taking the medication Levothyroxine. It took about two weeks but I’m feeling much better. I just got my Labs done yesterday I will update you when I receive my results.
@@sharonwilliams8411 any updates?
My grandma had hypothyroidism. She was originally taking medication but over 2 years her thyroid fixed itself so she's not on medication anymore 😊
Thank you for sharing your story Jenny. I had my Thyroid removed a year ago last month because of Thyroid cancer which is related to hypothyroidism. Had the radioactive iodine last June and had a final scan last month which came back negative! Love your channel and happy that your back. Hugs from Nova Scotia, Canada😀
I had my thyroid removed at age 20 I've been taking synthroid for 8 years. It was so nice hearing someone else's story 💕💕
Jasmine did you have the radioactive stuff.. is been 4 months since i had my thyroid removed do to cancer they told me it didn’t spread anywhere also and till now there is no signs of cancer so my doctor told me there is no need to take the radioactive but I’m doing some research to see if it will be ok not to have that pill
@SHUBHANKAR SHARMA
What's your levels of T4 and TSH. On what medication you are in now..?
@SHUBHANKAR SHARMA
Is it related to hyper thyroid..? Or else.. where did u get treatment..
Does synthroid cause weight gain ?
@@Kidsfamily794 no it doesn’t :) but having hypothyroidism did for me
I too have a hyperthyroidism. Mine has actually a lump now. Ive already gone thru radiation but it reoccured again so now my only option is operation. I was too embarassa because I have this before but now people like you inspires me to not be ashamed of it. I even made a video about it too. Thanks so much for sharing it jen. 💕💕💕
So did you thyroid glad regenerate?
Hey. I was just diagnosed. I've lost 45 pounds in 6months. I know exactly how u feel. I'm so so irritable. It's hard to text due to the hand tremors. Good luck to all that have this terrible disease.
My thyroid storm was almost 20 years ago and I lost 80 pounds from valentines to June 1st had the rai but just diagnosed that it came back :/
I had the RAI done last month and I feel great so far. Not to many symptoms. My eyes were swollen the first 2 weeks but when I started eating right they went down and I'm losing some weight in the process. 💖 one thing I've learned is always think positive. When you think positive you feel positive 💖 you are not alone everyone. I'll be making a video soon on my journey as well
Katie Thrasher omg. Thank you so much. I am schedule for RAI next month and I'm so worried. I have hyperthyroidism and Graves Disease and afraid my eye condition will get worse after the treatment for its already starting to bulge for the past 5 months.
@@jeyviedelatorre6596 I had RAI 7 days ago. I am unsure when I can come out of isolation. How long did you isolate for?
Yup! Without my heart medication my resting heart rate can easily go to 150 bpm. I now have to go to a cardiologist to make sure my heart hasn't been affected by beating like this for about three years.
Jenny , I was diagnosed with Graves’ disease at 19 . I’m 26 nowI also had the eye issues that came with it ( bulging eyes ) I also had my heart rate at 120 resting . I’m on synthroid 200 . I had radio active iodine treatment and then shortly after had thyroid removal . Thank you so so much for sharing your story . I’ve never met any one with graves so this was really cool of you to do .
nisreen saad how you feeling now? Do you have hypothyroidism?
Millys Flores yes I’ve been hypo since radioactive iodine . I take synthroid . I don’t have any issues except routine bloodwork to check thyroid levels
Thanks for letting me know I’m gonna get the treatment next month 😩. Did you gain weight? I know that shouldn’t matter that much but I’m scared to have the hypo. I used to work out a lot and know I can’t due to this hyperthyroidism 😭 I hate it
Millys Flores yea it’s harder for me to lose weight . I got both radio active iodine and thyroidectomy. I am able to lose weight with diet and exercise combined but I do feel it’s harder than before . I hope all goes well !
nisreen saad thank you ;)
Instead of the radioactive iodine i chose to go the medication route with methimazole and it was going very well for about 6 months and then I was having extreme pain in my arms, chest pain,shortness of breathe, and random palpitations went back to the doctors and he took me off it and put me on Metropolol and anxiety medication been taking that for a few months now and it has turned me into a zombie and have been felling down. I will be going to the doctor soon again and I will be going the radioactive iodine route now. Wish I would have done this from the beginning but was afraid of the radioactive part and cancer later on but there isn’t anymore options. Best of luck to anyone going through this!
Hi! Do you have any updates?
Radioactive Iodine Saved My Life🙏 Now I can watch my kids grow. ❤️
Best Deal Window Tint happy to hear that when did you did Radioactive iodine do you feel better what about family planing conceiving a baby pls waiting your answer
Best Deal Window Tint I have just been diagnosed with hyperthyroid, doctor is putting me on carbimozole , I was told there might be side effects etc, and need to be on this for 18 months and see if there is any relapse etc. Just wondering if I should just ask for a radioactive iodine straight away?
Also diagnosed with Graves Disease and hyperthyroidism in 2009 at 18 years old. I was always very skinny growing up and only weighed around 100 lbs at the time I was diagnosed (though I was eating ALL the time). My resting BP was 180 and I definitely experienced tremors, hot/cold intolerance, and mood swings. Went 3 years just on medication then in 2012 decided to have a thyroidectomy. Now on 112 mcg of levothyroxine. Definitely still have my good and bad days.
Thanks for making this video! I was just thinking the other day that there has to be some TH-camr that’s gone through what I have and whaddya know!? Appreciate you sharing your story 💕
So glad to see your experience, I'm sorry to ask this, do you have a child/?
Yes! I can relate! I was diagnosed with hoshimoto’s hyperthyroid 3 years ago and was given the smallest dosage of nature throid and iodine . The symptoms you mentioned were the same symptoms i had , tremors and heart palpitations including hot flashes, feeling depressed and just fatigue and weakness in my joints/muscles. All these symptoms only happened in the past two months or so. I though I was having heart failure. My recent blood work showed my T3-T4 levels were very high, off the charts and was told to stop the nature throid and iodine immediately. So I think it was the meds that caused my hormone overload after taking them for 3 years, probably didnt need to take them for that long. I was pretty upset with that doctor because I would always ask him did I need to stop taking the nature throid? he would say continue taking it. My new doctor wants to make sure that my body can get back to normal levels on my own without meds. I am going to use some natural supplements like bugleweed and motherwort tea, gluten-free diet as prescribed by my doctor, Brazil nuts for my selenium and eat foods that have high concentrations of iodine, take omega 3 fatty acid supplement and foods, vitamin B, C & D if needed and magnesium which will help the tremors I read. I’m really diligent with getting my thyroid back to normal because I don’t want to be on a pill the rest of my life. Wishing you good health and wellness!
How much iodine were you taking?
Clarissa Lucas oh my, I don’t remember , it’s been 2 years. After stopping the iodine and nature thyroid My endocrinologist suggested an ultrasound which discovered nodules then I had fine needle aspiration done, thankfully nothing cancerous! I was put on a very low dose of methimazole every other day for about a year and after recent bloodwork this year May I was told to stop taking it because my thyroid hormone wasn’t hyper anymore but now I need bloodwork to check my antibodies. At this point I can only rely on a strict gluten free diet, exercise and natural supplements. Hopefully the nodules won’t grow otherwise I would have to have surgery if they start getting in the way of swallowing. My endocrinologist left and moved away now I’m just relying on my primary physician for now.
@@sharonb8545 can you give an update?
I,thought I was having heart failure too!!..it was a scary time for sure!
Good for you for taking control of your health the natural way and not feeding your body with all of those unnecessary chemicals the doctors want you to take. I look at those doctors as Big Pharma doctors that are getting kickbacks for prescribing drugs to their patients. My Endocrinologist told me that lifestyle changes and eating healthy will not help me get better-I beg the differ!
Wow thank you so much for sharing this. I was also diagnosed with Graves Disease in 2009 and had the radioactive iodine treatment and am also on synthroid. I'm 27 now and was 19 when I was diagnosed and I've never heard anyone my age share their story with this. This video reminded me that I should get my blood checked soon to make sure I'm still in the correct range! :)
❤️
I received a call from my doctor saying my blood test came back and my T4 levels are a little elevated. I have to wait 6 months before going back again for more test. I’m so nervous. When you mentioned sitting on the couch and your heart just starts beating extremely fast I’m like that’s exactly what happens to me. Yeah you do feel like you’re going to have a heart attack, it’s scary. The only thing that popped in my head was breath slow, idk why but that’s what I do. Your video has helped me and prepared me for when I go back. Thank You
Nicole Fritz-Lascola Waiting 6 months to get tested again, with no other instructions, is bullshit, IMHO. You deserve better. You might consider researching and trying the Autoimmune Protocol (AIP) way of eating. A lot of people have been successful in addressing or at least improving autoimmune disease that way.
Christy Fenzl yeah I’m not sure why they wanted to wait 6 month either. Today I went back and they drew more blood and sent me for an ultrasound. So now I wait for that to come back. My doctor did say when she felt my neck that on the left side it was a little enlarged. So I should hear something by next week.
Nicole Fritz-Lascola I hope you get some relief soon. It is completely feasible to get proper treatment and go on to have a great life. You'll get to the other side of this. 🤗
My doctor wanted me to take radioactive iodine but I refused.. nowadays my test results are perfect. I can't imagine myself depending on medication for the rest of my life. People with hipotiroidismo tend to gain weight and I'm not willing to risk myself. People need to educate themselves and stop depending on drugs. Drugs are not the cure.
i agree bro
AKH319 HHH I stopped eating gluten products, soy and all processed foods. I eat only real food. I cook my own meals. I buy only organic vegetables and fruits and grass feed meats. I take lots os supplements such as iodine, vitamin c, B12, 4000 units of vitamin D. In few words I stopped eating garbage and started treating my body with respect. The thyroid is not the problem. The problem is in the liver and on the adrenals.
*Hypothyroidism?
Blissful Martini Thank you;))
I was diagnosed at 18 (2011) and finally I'm getting the radiotherapy next week. Thanks for your video, I'll look into it.
Mahuta Alex why took so long???
So happy you made this video! I’ve recently been diagnosed with Hashimoto’s (hypothyroid). I had a lot of the symptoms you listed. The first thing I did when I was diagnosed was search TH-cam for videos of people and their experiences and there weren’t many! So I’m glad you put this video out there, I know it will help a lot of people.
Glad to be here.thanks so much I'm booked for my dose next week.been on carbimazoles for almost six months.
I remember being diagnosed with Hypothyroidism/Grave’s Disease when I was in 6th grade. I had to miss out on 2 weeks of school, and during the time I was in school, I had to be taken into the nurse’s office a couple times a day and eat some snacks to keep my weight up - mind you, I was very skinny at the time and unable to gain weight. As it got worse, I would get these very loud and uncontrollable hiccups, plus my neck looked swollen. My parents and I weren’t really aware of the symptoms at the time of this happening, but once we did notice, I was taken into the hospital to get radiation treatment. Fast forward to today and I currently have to take one small pill every day (the dosage size varies sometimes) in order to keep my thyroid stable for the rest of my life. I hope anyone who reads this is able to gain some more knowledge on the subject and thanks for making this video, Jenny! 🙂
Amy did you gain some weight after radioidine ?
I have graves(hypo) I was diagnosed in 1993, I took the radiation capsule (huge mistake)And have had SEVERE stomach issues ever since.
Thank you for being open. I was diagnosed when I was 14 and have had a difficult time. You reassured me there is hope and things will get better!
Were you also emotional?
Thank you for this I’m getting my thyroid biopsy this week. It’s nice to see more people talking about issues like this!
Thankyou for sharing this video. I have graves disease. I was diagnosed 7 years ago and was prescribed with carbinazole tablets. My symptoms was heart palpitations, frequent toilet breaks, weight loss, bulging eyes, hair loss and thinning, trembling hands, feeling nervous. After 2 years I was off the medication as my bloods came back normal. 9 months after being off the medication symptoms started returning. I was back on the carbinazole. I went through this process 3 times until I was told I needed either a operation to remove the tyroid glands or radioiodine treatment. I went along with the iodine treatment and now I have hypothyroidism. I feel tired, lethargic, hungry all the time. I am taking levotyroxine medication currently on 100mg . Doctors are trying to get the right dose sorted.
I will pray for you to recover 100% from this graves disease INSHA ALLAH.💓
Thank you so much for sharing this with us! I've been waiting for this update. I'm so glad that you're well and that your thyroid is under control.
Thanks for sharing your story. It's shocking to know that so many people are struggling with thyroid issues, myself included!
Me too
Same here! Sharing our stories is so helpful!
You're correct, Natural Method will only last so long and you'll eventually need something more serious done.
Thank you so much for this informative video Jenny!! I take Synthroid as well but I've been neglecting my thyroid because I had a heart attack in June 2016. I need to get back to my doctor for blood work because I haven't been feeling the greatest lately. Thank you for reminding me how important our blood work is.
Godbless you! I hope you're feeling better
I dont think it is good to neglect thyroid it has to do for heart because it cause palpitation if you are hyper.
i had hyperthyroidism for over 7years now. i admit i kind of neglected the idea of taking my medicines because i am not feeling any pain of all sort or any other uncomfortable feeling (even though i had been diagnosed) but now i am working on getting better and to have it treated. i was adviced for the same procedure (radioactive iodine) when my hormones are on normal level. im glad saw this video because i am so worried that the treatment might go wrong for me even though my doctor said that taking radioactive iodine is a much better treatment than going through thyroidectomy because the recovery is easier. thank you for sharing your experience. i do hope to feel better soon.
Thank you so much for this video I’m going thru the same thing right now I thought I was going to have a heart attack your words resonated 💯%
Vegashot Boi it’s truly a battle ... 🙏🏽
Hha yes same.happening to me brother 🤣
I'm a guy, i also have hyperthyroidism prob graves disease. I really want to be cured, But my family can't afford it.
If you look up Jeanne Schumacher, she literally has the cure. Diet is the main thing. If you go full vegan and eat the right foods depending on what thyroid problem you have,it can help
You may want to look up Fit tuber's video on Thyroid Cures. I have not personally tried them.
I had similar heart palpitations like you did. I have had bloodwork I've had tests done on my heart all comes back normal. It's depressing when drs can't figure out what's going on with you.
Hi Jenny. I was diagnosed at 23 with hypothyroidism and hashimotos disease. Then at 25 i had to have a thuroidectomy due to thyroid cancer. All those symtoms you listed are exactly what I had but I chose to ignore. People, mostly women need to get checked! There are so many undiagnosed and it could be dangerous. Thank you for making this video. 😄
I think there may be more men out there with thyroid disease, I think a lot of them are undiagnosed because we aren't as good as women are when it comes to being vigilant about our health, we tend to brush these things off out of pride. sadly, it can have grave consequences
I think anyone who has thyroid problems in their family should be vigilant and get routine checks. Thyroid disease does run in my family and when I was younger, the doctor found a few nodules on my thyroid. I was told that because of my family history of thyroid disease and the evidence of existing nodules, I will be at a greater risk of developing a thyroid disease. Years later, I just went into the doctors office because I had an uncomfortable tightness in my throat, doctor told my that my thyroid may be slightly inflamed. I have a follow up appointment in a few weeks
I have hyperthyroidism and mine got ignored for 6 years they predicted. And they only found it because I collapsed and had to go to hospital and they said I nearly died I can’t remember much because it really effected my short term memory . I think that there needs to be more awareness on hypo and hyperthyroidism. Because I ignored the symptoms I but my life a risk. I’ve not known for 1 1/2 years and still recovering. 💕
Tasha Wilson-roberts I completely agree, no one knows there are issues until it's too late. My doctor had told me i developed the disease 10-20 years before being diagnosed.
I think it should be tested for when your young. It’s horrible, I look back and don’t understand why I didn’t go to the doctors sooner but it becomes the norm and you think nothings wrong even though you’re so sick.
My doctor’s term for it is being allergic of your own body. I found out about it 3 years ago but had the symptoms since 6 months before although we thought it was depression because of my insomnia, anxiety, sadness, moodiness and all of that. But we finally went to the doctor when simply standing up made me tired. I had some episodes where I’d ‘faint’ even while lying down when my heart pounds like crazy. The local doctor was... needless to say, terrible. According to my new doctor, she has been giving me meds that wouldn’t allow me to take RAI so I’m restarting the medication process before my RAI treatment on May. I want to get better soon. To be perfectly honest, I hate this skinny body. I hate the itchiness. I hate constantly feeling tired. Hopefully, it’ll be successful. I mean, it was successful for my mom :) Her only problem now is how to remain fit.
Oh! And tip!
Yoga, friends. Yoga is so fantastic. It calms me down and since you can’t do rigorous exercise when you have Hyperthyroidism, it’s the perfect form of exercise to keep your body healthy. Stay out of coffee too. I haven’t had coffee for 3 years now 😂
Hey Jen! I worked at a CVS pharmacy for 2 years and I had so many patients come in with hypothyroidism that requested brand Synthroid instead of generic levothyroxine. I would always tell patients that they’re exact same thing and the generic is a fraction of the cost! Save yourself some money and switch to generic! Plus, synthroid is harder to find and keep in stock in most pharmacies. I’m glad you’re feeling better though! 💊💉
Kelly Marie You are misinformed. There is absolutely a narrow window of margin with thyroid hormones, fillers and inactive ingredients do make a difference. They are not the same. They are "almost" the same. The consistency of generic isn't as stable as the named brand, it's inferior. If you still have a thyroid gland that produces any of its own hormones, then generic should work well but for those of us with no thyroid gland who are "thyroid hormone dependent" to live, it really does make a difference.
You are totally inaccurate I got my thyroid removed at 14 I'm 24 now I have to be on Synthroid because the generic fillers make me sick until you actually take these hormones you have no idea what you're talking about
I just took my radio active iodine pill last week, I am in terrible shape. I'm in thyroid Storm due to very and rare over active thyroid. Can't wait to feel better.
How did you treat the thyroid storm? Was it caused by the radioactive iodine? How long did the thyroid storm last?
My symptoms was since 2008 : low mood ,easily bored ,easily get angry ,stress ,anxiety, low libido I didn't know anything about it endocrinologist never mentioned any symptoms....poorly treated...
Following Dr Bergs advice can really help in a huge way. I’m praying you get better very soon.
Oops, I commented too soon but diet can help a lot as well :)
I have Graves and am getting radioactive iodine treatment in about a week. I was super scared but this helped a lot.
Hello, how are you feeling nowadays? Is the treatment works?
I think its great that you are being open about the condition to help others💜💜
Can you talk about your weight journey?
Eat using rice 5 time a day but loosing bout 7kg weight.
I went through RAIT 3 years ago, and it took over a year to become hypothyroid. I've been on Meds for a year and a half, and although my labs are in range, I don't feel 'normal.' I hope for the day that I get my energy and motivation back, but lately all I can do is work, sleep, repeat.
I'm hypothyroid and on 112 mg synthroid. It's so cool that u are making videos about something so personal. 😊
This helped me so much. I’ve been scared to do RAI after going back and forth between hypo and hyper for years. Being scared of the after affects i think this inspired me to do it. Thank you and good luck on your journey
How are you doing now? I’m about to take mine in a few days 🥲
Thank you for this video I have been bedbound for 7 months 3 days ago I found out I have Graves Disease. I lost 20 pounds in 2 months tremors shaking tachacardia syncope lots of hair loss and I had a head full of hair. So weak I needed help walking to the nurse from a chair. I will be seeing an Endocrinologist asap. I have low blood pressure never had that. I have gone through everything you went through so let me tell you I am so very sorry you had to go through it at a very young age and it took so long to get you healthy. Good luck I wish you the best.
HUGGS Terrie
how do u feel now? , i have same as you low blood , so weak cant even take 3 steps , jus diagnosed 4 months ago graves and my thyroid is destroyed from it . been 4 months and i still am very weak .
i was diagnosed with grave's 3 years ago. everything you shared i can relate 😂💖 prescribed carbimarzole for 1 1/2 years but my thyroid reacts to it so slowly but progressively. and been prescribed with methimarzole with a quite high dosage and no progress at all. recently doctor confirmed that i have to RAI in August 2020. thank you for sharing everything and hope you are in your very good state, even the best ❤️❤️❤️
How are you now? Radioactive therapy worked well or not?
This helped me to understand better what my world is experiencing everyday of her life.. I'm grateful for this option and I'm praying that she will at least look into this ... Especially when I can't see myself waking up without her
So sorry to hear that you've gone through Graves too. I elected to have a total thyroidectomy, and it was a great choice for me. I noticed the same exact issues as you. I laughed when you mentioned the eyeliner issue. My resting heart rate at diagnosis was 130 - miserable! If you have trouble converting synthetic thyroid replacement to free t3 (which is what the body uses to power the metabolism), you could consider trying natural thyroid, such as nature-throid or armour. Switching from synthroid to nature-throid has radically changed my life!! Don't ever let a doctor tell you your labs are "close enough." You deserve to feel your best. 😊
I am convinced I have an under active thyroid. I have all of the symptoms, and thyroid issues run in my family. Thank you for posting your story and sharing it to help people 😊
I was diagnosed 5 1/2 years ago with Graves’ disease. I noticed shaky hands and weight loss first . Weakness in legs and my eyes were Bulging. Always hungry!! Very hot and it was winter/ snowing out side. It’s been a journey with hyper active thyroid. I recommend everyone just like you said if you feel these symptoms or any other sort of weirdness... get blood work done. Health is so important. My mom went thru the same thing but around 30 and I was 21 so yeah a difference in how early I got it. Tomo I go for my radioactive iodine treatment. It apparently isn’t healthy to be on methimozole for long period of time as it can effect the liver. This is the best option for me at this point and I’m happy that this is getting taken care of. Thanks for sharing your story. Xoxo
So after treatment how are your eyes .. are thy still buldging
So after treatment how are your eyes. .. are they still buldging .
How was your eyes after the treatment?
Just diagnosed and found your channel ❤
I have Graves’ disease I was diagnosed when I was 9 in 2014 I’m now 14 and on May the 10th I’m having the radio active iodine treatment. The only thing I’m looking forward to is 1 month off school 🏫 i went to the child clinic last year and they told me they couldn’t prescribe me with the treatment because it wasn’t common in my age group they said you are usually 16-18 so you would be with the adult clinic anyways, so they gave me a brief description on what it would be like they only said 1 week off school or they said I could have a operation to remove my thyroid completely but for me that wasn’t really a option because of all the things they said could go wrong (they said they could end up hitting a vocal chord and I could sound different) but I was so scared and said no to it so they told me to go to the adult clinic made a appointment in October so I went and they said that it wasn’t 1 week off school it was 3 and a half to 4 weeks off school but because of my age my doctor had to check to see if I was able to take it so I went to the hospital at the start of the mont and now I’m having the treatment in exactly 47 days 🙃 I actually can’t wait to have it done and have this shitty illness over and done with I’ve dealt with it long enough and I’m so happy I don’t have to wait another 2-4 years to have it done 👌🏼
I also diagnosed by the hyperthyroidism but still didn't diagnosed any kind of diease like graves or any other. I hope i will be healthy by the grace of ALLAH INSHA ALLAH. THANKS for sharing your personal experience about graves disease .
Yes everything you are saying is true. I was diagnosed with Graves’ disease in September of 2017 so I know exactly what you are going through. We are still trying to get my medicine regulated.
Thanks, for sharing, I had RadioActive Iodine treatment, 12 days ago, aged 77
Does the hair grow back after RAI?
just a few days ago I had several symptoms like high heart rate, sweating and shaking and nervousness, the doctor suspects it is hyperthyroidism and tomorrow I will get the test which I believe it is, right now only taking a beta blocker propranolol 20mg each 6 hrs walking to the bathroom makes me so tired, the heart rate is fine now but I still feel tired and my ears pop, I felt my life was ruined until I saw your video, if I have graves then there is hope I can have a normal life again, I see you so well that it makes me happy and hopeful. thank you
Thank you for posting this video. I hate that your going through all of that. bless your heart darlin'.
Watched this at the start of my diagnosis and now again a couple of years later and this that RAI is going to be the next step for me with how it’s all going . You have put my mind at rest , thankyou xx
All thanks to DR IYAREMOSES on TH-cam. I have been sick from hypothyroidism for several years now but I recovered after I contacted him thank you doc.
Just came back from my doctor's office and was told I have hyperthyroidism. My doctor is sending to to get imaging done on my thyroid and abdomin. Came Home trying to find answers and to calm my anxiety. Watching this gave me a bit of peace of mind. Thankful I came across your video, thank you for sharing your story ♥️♥️♥️
How have things been going with your thyroid? I found that my progress towards healing was quite slow, but it does happen. The anxiety about not knowing much about it initially was tough, but when people share their personal journey it is so helpful.
So pleased I’ve stumbled across this video. All your symptoms down to your mother having I’m so relating to. I just had my doctors appointment last week were they agreed that radioactive iodine is going to be my next step as 2 years taking medication is not helping my thyroid. Was really nervous about it all but watching and listening to your journey as put me at ease slightly. Thank you for that.. 😘
Thank you sister for information. By god's grace one of my loved one was primarily was diagnosed with it, but later confirmed it's not. Love from India.
Thankyou Jenny , I have just watched this for the second time . First time was about 3 years ago when first diagnosed and just now as I am booked for RAI next Thursday . It certainly is very helpful to hear you talk about your experience and you look so well and healthy now . I hope I have as good a result as you for my Graves’ disease 😊💐🦋
How are you doing now?
I was diagnosed as a child, and also did the iodine treatment and It took me back to when I first did it.
Thanks for sharing your experience!
How are u feeling now? Do you have a goiter or swollen neck?
Its crazy how common this is but can manifest so differently with everyone. I had hyperthyroidism at 22 and it was caught at a check up. I had 10 (!) huge growths on my thyroid and had to get it removed because of the high cancer risk. Luckily it was fine, but oddly enough when i first got the blood test my levels were pretty normal! Im on that 175 levothyroxine life now and have discovered other health issues related to my thyroid like pre-diabetes, high tri glycerides, and vitamin d deficiency. Its manageable with medication and diet but its definitely a challenge that most people just don’t understand. Like yes, i look mostly fine, but i feel like CRAP.
Lily8909 Sorry to hear of your issues. I had Graves and a total thyroidectomy too. If you feel like crap on levo (i did too), you might consider trying a natural desiccated porcine thyroid replacement medication, such as Armour. I switched about a year ago. It wa a very easy transition, and it has changed my quality of life. I no longer think about how I'm feeling -- I just LIVE. Not all doctors are open to prescribing non- synthetics, but there are modern, thinking doctors who will. It's a pharmaceutical manufactured under rigorous controls and quality checks just like synthroid and the other synthetics.
Christy Fenzl never heard of it! Thanks for the tip. Ill definitely research and bring it up to my endo.
Thank you so much for sharing. I got all of this and got to know just a month ago .I was totally devastated as i have my exams too and college .
But watching videos like yours really make me feel a bit better now .
Thank you ,it's really a bit depressed one .😔
All thanks to DR IYAREMOSES on TH-cam. I have been sick from hypothyroidism for several years now but I recovered after I contacted him thank you doc.
Hello may I ask if you did the RAI? Im curious because I’m a university student as well and am afraid of the effects after going RAI. Thank you so much
Wow this is crazy. I have just been diagnosed with Graves disease. This has been so helpful for me! Mine is just being watched for now. Thank you so much for this!!! Now I know what to expect ❤❤❤
For anybody with thyroid problems, try to keep your own set of records about your bloodwork levels and how you felt during those times so that you’ll know at what levels you feel better than at other levels. Because just because someone’s levels are within the “normal” range doesn’t mean they’re going to feel great in the higher end of the “normal” spectrum versus the lower end of the “normal” spectrum. Lots of love and healing to anybody that reads this, I personally know how hard it can be. ❤️
I recently got diagnosed and depression set in immediately. Had a break down at work trying to make appointments with an endocronologist
My daughter had her thyroid removed in February 2017. She was 16 and had been diagnosed with Graves Disease in early 2016. She is doing great now although when her numbers are off, she gets super moody! Lol. So glad your doing well.
Thanks Jenny , good to hear about your journey. I have just been diagnosed with a Hyperactive thyroid and fortunately no cancer . It is also good to hear about someone who has come through it . My symptoms have been excess sweating, emotional, slight palpitations occasionally and trouble sleeping. Has been a shock to get this but glad I know the reason for feeling unwell . Now waiting on appt for specialist and treatment. Might be radioactive iodine .
When you say emotional you mean like crying and stuff?
when you say emotional you mean you cried alot?
So I was diagnosed with hyperthyroidism 14 years ago. And I being ignoring it ! I have all the symptoms I was only in the meds when I was pregnant cause I didn’t want to lose the babies. I’m supposed to get surgery to remove it but again I being postponing it. I know all bad . But I’m done I’m finally going to take care of it . But I’m scared and nervous. But I need to take care of it now. I’m glad I found your story. And it’s helping me to just get it done .
Am I the only guy that has hyperthyroidism... it runs in my mom's side of the family, I have to eat every 2 hours or I get rapid heartbeat, muscle weakness, and a black hole in my chest :(
I have hyperthyroidism too. I got that from my dad's side. I take medicines everyday, for like 8 tablets a day (consisted of 2 different medicines). after a weeks taking those medicine, i feel like i am getting better. Now I am able to exercise normally. I used to be out of breath just by running 500 meters. Now, I can run longer without any problem
I have Grave's, too. I've been watching you for years, and I can't believe we went through the same thing. I'm kinda scared to do radioactive iodine if my anti-thyroid isn't effective, though. Hearing your story makes it a little less daunting. Thank you for sharing and spreading awareness!
Hi,I have a question how did you feel during your treatment ?
And what was your diet after the treatment ?
@@joanakorompis998 I'm actually still on an anti-thyroid (it's just a pill called methimazole). I feel a lot better, but a lot of things would feel better than untreated Graves. :) But when I started treatment, I was put on propranolol and methimazole. Over the years, I was able to get off propranolol and now am only taking a very small dose of methimazole. I tolerate it really well, and I haven't had to do an ablation (radioactive iodine). This is what worked for me though, not necessarily what's best for everyone. You'd be best off consulting your PCP or endocrinologist. I did adjust my diet though. I went vegan (for the animals) but it actually did help my Graves, too, which was a nice addition. It lowered my antibody level a LOT, and I do feel a lot better. Hope that helps!
@@Viennafly1 Hi, I took methimazole a very little dose but now my thyroid has become high. I have to do the radiation. Also thank you!
@@joanakorompis998 heyy dia
Did u do the radio active
Wat are the side effects
I'm so scared of treatment. I go see the doctor next week for the millionth time.
Keep God first ive been going through it as well . I cry just about every other day because of this disease but it will get better i was diagnosed a month a go .