Thyroid Update - 7 Months Post Radioactive Iodine (for Graves' Disease)
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- เผยแพร่เมื่อ 25 ธ.ค. 2022
- In May 2022 I had radioactive iodine treatment for my overactive thyroid (Graves' Disease) and now 7 months later I talk about my experience and how I'm feeling now! Sorry this update has taken so long! Not a medical professional - this is just my own personal experience and I'd ALWAYS tell you to go and seek professional advice.
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BRITISH THYROID FOUNDATION: www.btf-thyroid.org/
OVERACTIVE THYROID SYMPTOMS (NHS): www.nhs.uk/conditions/overact...
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I watched ur first video was on my way to get radioactive iodine I have had Graves’ disease since I was 20 & I’m now 26 sadly I was not approved & my doctor said my only option is surgery because I’ve been on meds for to long. in the ending of 2021 I started natural journey. Fast forward to 2023 I now feel 10x better den when I was taking meds. The meds made me worse.
What natural remedies did u use?
Yesterday my Doctor suggested Radioactive iodine, Can I go for this treatment? I have hyperthyroidism
Well done for making this, hope all goes well with your consultation and for the future
It's helpful to hear from people who have been through it. I had an overactive thyroid/Graves for many years. I had radioactive iodine in 2020, started taking levothyrox, and have been feeling great until recently. I now have swelling in my neck, a visible lump - perhaps a cyst like you've got? - and blood test yesterday revealed high thyroid antibodies. I meet with my endocrinologist at the end of the month. I'm perplexed as to what's going on. Enjoy your recipes. Glad you're feeling better.
Well done Sarah, I'm so glad you are feeling better. My daughter had the Iodine treatment in July, and it's taking a long time to work, but her levels seem to be coming down now. She's hopeful of success since she can repeat the treatment rather than have the surgery. It has been quite a journey so I understand where you are coming from. Enjoy life and Happy New Year to you. 💐🥳😀
Bless you i cant imagine what you have been through but its great news you are finally getting somewhere and you look fantastic stay strong and get back to what you love the gluten free cooking videos. Hope to meet you again soon love best wishes. Michael & Kim xx
Thank you for your information. It was really helpful.
Oh goodness what a long trek. I'm glad it's under control now. The only plus with taking levothyroxin is free prescriptions!
Wow this is so strange, I found you looking for a recipe just now then saw this video too which is so helpful! My husband has only just been diagnosed with Graves Disease and has been offered the iodine treatment! I e been going to read up on it and here I am. I hope you are doing well x
I just stumbled across your video and this has given me some hope😊 I am due to have my radioactive iodine treatment in a few days. Wishing you all the best x
Natural herbal treatment from Dr. Okouromi on youTube, his treatment stopped seizures within 21 day’s and my cousin is epilepsy free
💐💐;;;;;;;;
Thank you so much for sharing your journey. I have been living with Graves’ disease since 2012 and had the RAI treatment last week, it’s tough to find out what to expect afterwards so I was reassured by your video. Take care and thanks again x
How fast you became hypo?
How r u now ? After RAI hows ur health
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I had RAI in 2011 when I was 22 years old. I was supposed to destroy my thyroid but it only did so partially. Now my thyroid levels are normal but borderline high. The only down fall for me was that I gain about 60lbs and can’t seem to get some of the weight off. What’s weird is that I never became hypo and still gained a ton of weight. I’m so happy that RAI worked for you!!! Keep us updated!!
I tend to gain when my thyroid is high too! so annoying.
And you don’t have any cancer afterward right? I’m scare to take radioactive iodine and it would cause cancer.
@@wor4314 No, no cancer. I was scared as well but it was the only option. Since my goiter was so large, they didn’t want to do the surgery.
@@brittneyb4475thank you so much for the reply :)
Thanks for sharing your experience! I've been struggling with hyperthyroid for 4 years. I've been reluctant to do the iodine, but you have me thinking about it. I do have celiac as well.
Thanks so much for sharing your story! My endocrinologist is recommending that I do the radioactive iodine I’m not sure what to expect but Im thankful you shared this. Gonna check out your gluten free recipes now lol.
I had radio iodine too. I went onto thyroxine very soon after that. They told me I.d be on thyroxine around 6 months after radio iodine but I felt so ill that blood tests showed I needed it far sooner. I know exactly how you felt, it’s a bit of a journey getting it all sorted and feeling much better. My eyes are much better now as well. I didn’t know till I had swollen eyes that there was such a thing as thyroid eye disease. So thyroid eye specialist for 12 months but thankfully it’s all better now. I also am coeliac and enjoy your recipes. 👍💕
How long it took you to become hypo?
@@SVETIK_NICOLE After radio iodine about 6 weeks but I.m told this was unusual, I was initially told it apparently takes around 6 months for most patients.
@@christinalogan311 My Endo told me it's going to take 4-6 weeks. I'm 4 weeks now still hyper. Hopefully next week I will be hypo) I know couple of people they said around 6-8 weeks. What symptoms did you had when you become hypo?
I appreciate you for making this video. I am curious about your cyst, only because I have some extra things maybe going on for me as well. Will you be posting a video on the some more of your journey?
I’m not sure if I should have this or surgery. Thank you for update.
OMG you kind of scared me. I have a Grave’s disease for 12 years and after recent relapse number 3 I’m considering iodine treatment but I was hoping it’s gonna be smooth and easy process.
I did RAI after first relapse. 1 month ago. I'm very happy I did it. Wish I did it before.
I am am so happy for you.. thanks for sharing your story.. I just had my RAI 2mths ago.. fingers crossed evtg will be ok. I am very hopeful after seeing your video.
My main concern post RAI is the weight gain..
Anybody got experience with managing it, i do hope u can share it
How long it took you to become hypo after RAI?
Has your heart rate returned to normal? How is your exercise going? Do you feel back to normal?
I'm so glad it worked well for you. It's been 10 years since I did it. My life still a mess.
Why is that? How are you feeling?
That’s what I’ve heard from many people. I’ve heard from younger people that it works great. But for older people the symptoms are worse after RAI.
sorry did the radioiodine cause the cyst?? I've had graves for 14 years and finally having this done next month
How fast you became hypo after RAI?
Makes me so sad that you had to go through all that !!! Just not right at all .
Hi dear, how do feel when you take the tablets for the first 3 days any problems or you was fine I'm very thinking about that I will have my radioactive iodine next month
had rai for graves the end of april, i go back for a followup with endo end of june.
I was first diagnosed in 2008 but have managed to avoid RAI!Today I need the RAI because I depend on Zolpidem to sleep and have vomiting and losing weight slowly!But my dr didn’t mention this treatment and is not an Endo!I do need help!I am 51 now!
Я сделала RAI месяц назад и очень рада. Жалею что не сделала сразу как поставили диагноз.
I have a very hyper thyroid - not Graves. Had RAI 5 weeks ago and bloodwork last week showed very very hyper. I’m super anxious, exhausted,etc. Seeing my endo this week and kind of hoping he will put me back on methimazole. How long did it take for your thyroid to go hypo after RAI? Hoping you are feeling much better 😊😊
How do you feel now? I had my RAI 6 weeks ago. Still hyper. Taking Metoprolol and Methimazole. Hopefully this week I become hypo.
I am now very hypo per bloodwork 8 weeks after RAI. I started Synthroid 2 weeks ago and feel awful. Brain fog, very wiped out exhausted. Hoping the Synthroid kicks in soon.
How do you feel now? Is it better?@@shannonjacobson2447
I had RAI mid December. Was very hyper til last week, in three weeks went from tsh 0.01 to 30. So I immediately stopped tapezole and started eutirox. Now a week on eutirox. I have not felt really bad through any of this so far.... Just one day of feeling dizzy and mega cold hands, but 2 days after eutirox I'm not dizzy any more. Freezing hands one week later are getting better...
@@tratcol Had mine in November. Still hyper..
It's not a easy task* right? 🦋
Good day mam,, may i ask how month exactly after your RAI works? Thank you and God bless
Looking forward for.your reply♥️
My doctor said 4-6 weeks. I'm on week 5. Still hyper.
@@SVETOCHKA_NICOLEso you feel any pain or worst after the RAI?
No pain at all. My thyroid went more hyper after RAI first month. And second month it went down to almost normal. I'm still talking heart medication for heart rate. I had low energy before RAI. Now I have more energy after 2.5 month. My heart rate going down. So I'm so Happy that I did RAI. I wish I did it couple years ago when they find out I have Graves disease. @@Iwatcccchhhhonly
I am scare rather to get that treatment or surgery so did you fell better?
Hey did u have the radioiodine (l-31)therapy
How did u feel after.how many days was it.i am scare and worry about it.
How come you had to have this if you had a thyroidectomy? Sorry I'm a bit confused
I had a partial thyroidectomy, so not all my thyroid was taken out
@@GFBlogger oh that makes sense, so may I ask why you didn't opt for a total thyroidectomy?
@@TheBabyjode it was supposed to be total but they couldn’t locate a nerve so had to leave some in
Not helpful at all
Rude!! The lady was sharing her update of her illness.. you didn't have to watch it,the title wasn't confusing! Very clear in what it was about...always 1 knob!