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- เผยแพร่เมื่อ 28 ต.ค. 2015
- #gravesdisease #hyperthyroidism #thyroidhealing
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In December 2013 I was diagnosed with hyperthyroidism and graves disease. In this video I tell my story of the lead up to being diagnosed and my experience and symptoms with the disease.
I did go into remission for 9 months but in late 2016 I relapsed and went into a thyroid storm. I was no longer responding to any medication. In April 2017 I had a total thyroidectomy. I have continued to share my thyroid healing journey and spread awareness about thyroid disease and healing.
I want to spread positivity and hope for my community who are also healing from thyroid disease.
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DISCLAIMER: The content of this video is provided for informational and/or entertainment purposes only. Nothing contained in these videos should be construed as providing medical advice, diagnosis or treatment. You should immediately consult with your doctor for any medical concerns that you may have. - แนวปฏิบัติและการใช้ชีวิต
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The saddest thing is it's an invisible disease. I have Grave's disease as well and have been dealing with chronic fatigue and anxiety. People think you look okay, yet they don't understand that you don't feel okay (including physicians).
Oh my gosh yes! It's so hard for people to understand just how hard it is to live with. Everything constantly hurts! Unless you have lived with the disease you really can't understand how much it effects you.
I got it too. It feels good to know Im not crazy. I keep wondering why am i this tired! Im not excessivly overweight. What is going on.
i think i have it since 10 years old ? i got headache everyday , i sweat a lot , i had (not v severe) panic attacks , i’m always scared , my heartbeat was fast , i got sick very easily . i only knew when i was 13-14 years old. i went to the doctor countless times as i was unwell . but the doctor thought it was just normal flu everytime i went . until my parents were annoyed as i couldn’t go sch almost once every month as i was sick and they thought i was playing truancy . they scolded me a lot . so they brought me to a neurologist since i had migraine almost everyday . then from there i discovered it . the amount of pain i went through :’) i almost cried when the endocrinologist said “ you must’ve suffered a lot , it must’ve been pain . how much did u went through ?” my thyroid level was really high back then and it was this serious that the doctor told me that i’ve to be hospitalized at that very moment ..
I have the problem that I am naturally muscular and of small stature. Grave's disease causes me to lose weight rather than gain it. I also have the eye disease. Only my restrictive, healthy vegetarian, gluten free diet (and lots of it) keeps me in reasonable shape. I sometimes feel extraordinarily weak, shaky, sore and the irregular heart rate is horrible. There are times when I'm actually terrifically ill. I liken it to what it must feel like to be very, very old. The trouble is my physical appearance i.e. being thin in a fat world and healthy lifestyle that keeps me in remission, belies how I actually feel on the bad days, and people think I'm super healthy, especially when they are overweight and unfit. I've actually had the experience of desperately needing physcal assistance from my now ex-husband who wouldnt give it and who told me I was just making it up. Well, good riddance, I say. Even my far more considerate boyfriend doesnt seem to understand how serious it is, and says I am the healthiest person he knows. So on those bad days it can be a bit confusing. It's a lifelong disease and we who have Graves or any of the related conditions really do suffer. Storms are the worst thing EVER! Unfortunately that's the only time that people can actually see that something is wrong, but by then it is too late.
Exactly.. If your not in a wheel chair, or wearing bandages or battle scars..it seems the average person can't allow themselves to relate or even try to learn about our disease..yet they all are full of uninformed advice. It makes it more hard and frustrating trying to explain as to why 1 hour we are ok..and the next 3 hours we don't feel like stopping by... Yes its invisible, its almost just easier to stay home and not have to explain our sweating or tiredness, weight gain, then having to hear all their advice again and again.and again. The worst them telling me if I go on a diet I won't t be so tired.. Wow...okay.. Lets do that with this thyroid medicine that only reversed my hyperthyroid into hypothyroid. I feel for us all.
The most annoying thing about hyperthyroid to me is how you go all your life as a normal person and then all of a sudden you're sick for life, also the increased heart rate, it makes you focus on your heart beat which makes you scared and that causes your heart rate to go up even more, very annoying.
Heubert Comberdale PREACH!
Sometimes I'm afraid to go to sleep because I can hear the pounding. It's terrifying and then my mind goes all over the place which causes me to start crying because I can't help but think about the horrid possibilities.
That has happened to me :( I was a normal human being, never being sick and never had a serious condition that requires me medication. But suddenly, after a severe tachycardia and various examines, doctors are telling me that I'm going to be medicated my whole life :(
Its the same wid me
Heubert Comberdale yup, iv been like this for yeaaars, now i got diagnosed for graves, i feel like im on speed all the time, although im on a vegan diet now with a multivitamin, b-complex, magnesium and aswhaganda at night its alot better
Heubert Comberdale
You are absolutely right 100% agree. This is what I'm going through now and it's really hard😐😢 everyday I wake up and think how it's going to be? It also makes me afraid to go outside or even get a job. I really don't want to focus on that 😑
I also have hyperthyroidism, been struggling for 2 years too, I know the struggle, wish us all a quick recovery. 😀
I wish you a fast recovery too :)
How is journey Busayo Olabintan? Are you better now?I am a mum of three and have hyper thyroid. Please let me know what is happening with you now...
@YOSHIHIDE SUGA I have a hyper thyroid problem. My weight is 32. My weight also decrease. So how to increase my weight. Pls any suggestion. I have a more lot of problem😭😭😭 pls reply.
I just got diagnosed 😢😢😢😢I’m 41 and scared . GOD BLESS YOU AND YOUR FAMILY 🙏❤️
I was diagnosed with hyperthyroidism and Graves’ disease August of last year , after suffering for months with drastic weight loss , extreme tiredness , tachycardia & high blood pressure and anxiety and tremors . I was relieved to finally be diagnosed , however I’d never heard of graves before , I’m 14 so it was a lot to take on for me . I started medicine and from August to now i have still been so ill and had 4 thyroid storms , I’m currently on carbimazole, proplythiouricil and beta blockers . It’s obvious the medication isn’t working so I’m getting a thyroidectomy soon .
I’m sure everyone with graves feels the same but I just feel like no body understands how much it changes your life , and I often get told I don’t look sick etc , I’m grateful that I don’t but Graves is most definitely a silent life debilitating disease . My heart honestly goes out to everyone with the disease as I know how horrible it is . This video really made me feel like I’m not alone xx
Hi Mia. Oh my gosh I can't believe you had 4 thyroid storms. You poor thing. You are not alone and we are all here to support you. I hope you feel better after your surgery. I felt better the next day! I'm not even kidding. It took a while to fully heal but I could feel a difference straight away. Goodluck and I wish you all the best with your recovery xxx
I have graves as well are you on medication for the rest of your life after surgery?
@@paigecock4440 If the thyroid is fully removed, then yes. You need to replace the missing thyroid's function after all.
Noooo ur only a baby 😔 I feel exactly the same way. I’m always tired always sleepy everything hurts and I was just diagnosed with Graves’ disease. I’m so sorry that you have to go through this terrible disease that’s such a young age. wish you the best
Letty V aww thank you so much I’m 16 now, and I’ve come such a long way. Got my surgery and my health is the best it’s been for years❤️.
I hope you get well soon it’s such a horrible disease to deal with it left me not being able to go to school, or even get out of bed really. Not to mention the anxiety and depression that comes with it all😣
just got my lab test. and its positive hyperthyroidism. i know this is gonna last forever. but 'm not losing my hope. i trust that Nothing is impossible for God. i believe we can be healed.
I agree with you. Good luck with your healing :)
you can
35% healed!
most cases it doesnt last forever if you are diagnosed early. (before your eyes start bulging).. get on those tablets and eat healthy.avoid eggs. diary. I was diagnosed when i started getting hot flushed..pins and needles in legs..heart rate fast..hair loss and scalp itchiness, overactivity, sweating, anxiety. Your body will adjust (hopefully).
@SHUBHANKAR SHARMA hi!! Gluten free diet and selenium supplementation (there is scientific evidence, you can read about it)
I was diagnosed 4 months ago and I'm struggling. I feel fatigued and it's such a difficult thing to explain to people when they ask what's wrong. thank you for telling about your story it helps all the rest of us ❤❤
Thank you so much Emily. Wishing you all the best xx
I have recently been diagnosed with Graves' disease. I don't feel people really understand it.
I'm sorry to hear you have Graves' Disease. Yes I agree, there is still so much research to be done to fully understand the thyroid and disease. I wish you all the best ♡
I agree most people just think you are being lazy when you sleep all the time. If they only knew.
Fully agree, people do not understand a disease they dont see... its so hard
Umanga Senaka they dont really get it...but we know..
@@sweetpeach3293 try checking dr tom rofrano video about hyperthyroidism
I too have a hyperthyroid with graves disease. I am of that rare percentage that is morbidly overweight. I struggle losing weight. I took diet pills for years to lose weight. Now I cannot take diet pills; losing weight feels like a battle I am constantly losing. I am intolerant to heat and become tired very easy. Until watching your video, I thought me getting tired was just because of my weight. I drink water all the time and I have periods where I do not eat much at all and periods where I feel like a garbage disposal. I am a pescatarian and I still struggle with not eating enough protein, which I know contributes to feeling drained. All of the side-effects of hyperthyroidism, with graves disease, are horrible, but for me the worst one is anxiety. I have anxiety all of the time and that alone is physically, mentally, and emotionally exhausting. Knowing I am not alone in this struggle does offer some support, so thank you for sharing your story!
Hugs and Love
Jama`l Schide
Hello. Thank you for writing to me. I'm sorry you have struggled for so long. I am currently going through a period of weight gain. It is so horrible to feel so tried and bad on the inside. I can feel my medication is just putting my body through so many changes and it feels terrible. Don't give up and keep nourishing your body with clean food and exercise. Focus on how you feel inside and you will start to feel better. I sometimes have anxiety too. I have started to mediate each morning and has helped me alot. I wish you all the best xxx
I'm 22 and I just got diagnosed with hyperthyroidism last month. Watching your video helped me feel like I'm not alone in this struggle. So thank you so much for uploading this ❤
Hi Taylor. I'm glad my video helped you. Thank you for watching and I hope you start to feel better. All the best xx
I’m so grateful to have found so many people who are going through the same thing.. I’m a firefighter and started going downhill quick fast and in a hurry OUT OF THE BLUE, I was so confused until I went to a doctor that finally understood what was going on and now I’ve been on light duty for weeks.
It’s a horrible feeling to be around the station with everyone “looking” fine so they think I’m milking the situation just to not work but they truly don’t understand what it feels like to be going through this..
Thank god I’m moving into a different avenue of fire where I won’t have to be physically active the way I have been as a fighter, but can still keep my career.
Thank you everyone for sharing your stories and making our community not feel so alone.
Thank you for sharing your story, hon! I was diagnosed with the same thing at age 14. And I am 33-years-old now. While everybody's prognosis is different, I am here to say that it definitely does get better for many of us. Flare-ups still happen when I am under stress, but they seldom last for more than a week or two. I know for me going through therapy and learning to have a 'live and let live' attitude has made a big difference. Less stress = less pain! I hope that this upcoming year brings you relief and better health.
Cheers!
My wife was recently diagnosed with this disorder and I'd like to thank you for sharing your experience. She and I viewed your video and it sheds much light on this for me also.
Thank you Isaac. That is so kind of you. I hope your wife is feeling better. Sending you both much love and health xx
Thank you for this video! I was diagnosed today and I feel so alone. I was asymptomatic and went in for a routine physical and my doctor caught it. I have had some difficulty with cardio, but associated it to being out of shape and I have been losing a lot of hair but I just moved and I was attributing it to the stress. I have been crying all day and seeing you persevere gives me hope that this diagnosis is not going to define me. Thank you very much for sharing your story.
+Michelle Rabi Hi Michelle. Thank you for writing to me and watching my video. I hope now that you have been diagnosed you start to see improvements in your health. I can get upset at times too because it is so frustrating but try to stay positive. Let your body rest so it can get stronger again. I am sure you will start to feel better soon. I wish you all the best with your health. Take care :) xx
Yes, I cried as you understood how normal daily activities simply meant taking a long sleep. Yes its hurt many of my relationships, especially with family...they being the least understanding or willing to read about it to learn what is happening to me, mainly 2 sisters act as if I'm being a hypochondriac, and keeps telling me I just need to exercise and diet, and they feel I'm being stuck up not going shopping or anything with them.. As I told them I can't fake the sweating and shortness of breath.. Everything, every activity just takes to long to recoup from. They never have been able to adjust my medicine, they constantly raising and lowering it.. Seems with Graves they have one cookie cutter method of treating it, yet we all vary so much in things that effects the most. Its such a terrible disease to have. This us a great platform you have opened up for us. Thank you.
Thank you so much. The symptoms of graves disease were so hard to deal with. Everyday was different. I hope you are starting to feel better and heal xx
I also have Graves' disease and I just want to say thank you so much for sharing your story. You're such an inspiration! xx
+Lindsey Huber Thank you for watching. It means so much to me. I wish you endless health and happiness xxx
Thank you so much for posting this; I was just diagnosed with Graves disease and it's so helpful to hear other people's story. Thank you so much!!
You are welcome. I'm so happy this helped you. All the best with your healing.
I’ve also recently be diagnosed with Graves’ disease. My heart rate is through the roof sometimes and honestly yes it scares me but I’m putting my faith in god and protects us all who are going through this ❤️
I hope you are feeling better 💜
@@EmmaTara Yes I am thank you. 🙂💖
Thank you so much for sharing your story. I feel far less lonely in my journey with Grave's Disease seeing this and reading the comments section. The silver lining with the diagnosis is finding a medical reason for all of the horrible symptoms that, like you, I have lived with and thought was 'how it is' but knowing deep down something was wrong. Best of luck with your recovery and stay brave
Hi Cecilia. Thank you so much for writing to me. It can be such a hard disease to live with but you are never alone. I am so happy finding this community has helped you. I wish you all the best and hope you are feeling healthy and strong. sending much love ♡
this comment explained it perfectly! I apparently had childhood graves’ disease and my parents didn’t notice and i would always complain about how weak i was. I found out at 21 years old that it was true and I did have graves’ disease. I have been crying all week and everyone keeps telling me to shut up and that I should be happy i’m alive, but the only thing i can feel about is how neglected my younger self was. How she was struggling so much and this whole time she had an immune disorder. I don’t know if i’m overreacting but wow this sucks so much
omg its so good to know that there are people who can relate to my every day life its horrible. I just saw your video,I pray you made a full recovery and is dancing again.
Thank you so much Tiffany. I hope you recover fast too xx
Thank you so much for making this video. I just got diagnosed with Graves’ disease and going to do the uptake test next week. I have the same symptoms as you and it really makes me sad at times because I am also active and I like working out and going out. This disease is something we can overcome. I really pray for everybody’s recovery 💞😍
Hello. I hope you are recovering and feeling healthy and strong 💙💖💜
Thanks for sharing your story. I was diagnosed with Graves flair up but also diagnosed with Hashimoto’s Disease after have symptoms for several years. I wish more doctors were able to recognize the symptoms of thyroid disease sooner since most people have gone so long before a blood test is performed to diagnose thyroid disease.
Hello ,
I recently got diagnosed with Graves’ disease as well. This week has been the craziest of my life. Lost about 24 pounds in 1 month , extreme tremors, tachycardia, and anxiety. The best way to describe it is like having someone sit on your chest well running a marathon and trying to do you normal daily things. It’s aggravating and your mood literally jumps from ok to overwhelming. I’ve been doing a lot of meditation and been listening to HTZ music. This helps tremendously. Positive attitude is key to your recovery even when it nearly feels impossible. I’m determined to fight this and will not let this disease consume my being. If anyone needs and help of some one to just listen to you , please reach out. Sending positive vibes to everyone who is going through this.
I love how positive you are. Meditation helped me so much during the time I had graves disease. I wish you all the best and hope you are feeling happy, healthy and strong xx
@@EmmaTara you said had....so did you overcome it and if so what were some of your practices or rituals
The hardest thing I’ve ever watched. I was recently diagnosed with graves. Happy to have a informative channel. Thank you
Thank you for watching. I hope you are feeling well and are healing 💜
My exact story. I was even diagnosed over Christmas! I researched this today because I'm feeling down. Feel better knowing I'm not alone. Hope all is well with you now.
Hi Cathy. You are not alone. There are many of us going through this. I hope you are doing better and I wish you all the best xx
thank you so much for sharing your story, there are so many parts of this disease that are so hard to describe, i can't imagine having this before the internet they must have felt so alone, glad all of us can share our experiences
I know, we are so lucky to be able to connect to people all over the world and share stories.
OMG this is 100% my story! They also misdiagnosed me saying it's allergies, later as I started loosing weight they said I have a eating disorder it was so frustrating until one day when I passed out because my heart rate was so high they finally tested my thyroid. Two years into it I feel ok most of the time but like you said I can't do a whole days of work. Thanks for sharing your story.
Wow are stories are the same! I'm glad your feeling better and will film my update in a week or so :)
Thankyou, hearing your story helps.😃
3 doctors later I have been diagnosed with Graves. I have been crying for days but I think that's because my heart is no longer fluttering and bouncing out of my chest! U have given me hope, it's strong people like u who are willing to share their story who let us all know we are not alone.❤️
+Jess White Hi Jess, Thank you so much :) That means so much to me. I hope you are feeling better and are full of health and happiness xxx
Thank you for sharing this. I was diagnosed with Graves almost a year ago. I'm happy to hear that you're doing well and can perform again. It's inspiring. :)
+missdrealoves Thank you :) I hope you are on the road to recovery xx
Hi Emma I find your story so helpful I to suffer from hyperthyroidism and right now it's took over so much of my life I've 3 small children and I can't be the Mum I need to be right now. People don't understand how debilitating it call be I'm only 29 and my symptoms have made me feel like I'm literally dying so many times... x
Thank you for sharing your story. I am studying hyperthyroidism and while text books are great, hearing it from people who have the disease/disorder helps me to understand things from the personal point of view. You have an inspiring outlook on life. I wish you health and wellbeing on your journey.
+Carly Hi Carly. Thank you so much :) I hope my video helped you. Good luck with your studies xx
I do the same thing while studying
yup, these videos are great
i love seeing what the actual patients have to say, its always more illuminating than what just a book has to say.
Carly P I've been making informative videos about graves and thyroid eye disease this is the playlist to my videos I'm trying to bring awareness Graves disease videos: th-cam.com/play/PLDX6qNqNXfU8No0xKeG2Y5E4-aKLOgdZX.html
amr mousa Graves disease videos: th-cam.com/play/PLDX6qNqNXfU8No0xKeG2Y5E4-aKLOgdZX.html
Thank you so much for posting this video! I was 14 when I got diagnosed and it has completely changed my life, during treatment I had a 'thyroid Storm' which is life threatening and I was taken into hospital to get treated, now 17 I have had the radio iodine treatment and been put on many different beta blockers to try and slow my heart rate down. I use to love my sport too and play for different teams but it's now a struggle to climb a set of stairs without feeling breathless. Thanks for posting this video and sharing your experience
+Hello There Hello. Thank you for waching. It is such a life changing disease. It's been 2 and a half years and I am still daling with daily. I hope you get better soon :)
Thank you for making this video, I'm 16 and was just diagnosed with Graves' disease. So comforting to know that I'm not alone :)
Thank you for watching. I hope you have a fast recovery xx
I was diagnosed with thyroid graves disease last year I just can't do my normal life i can't walk I feel went I'm waking that I'm going to fainting or collapse I just feel everyday that I'm going to die I just don't feel normal anymore I feel a lot of anxiety and depression and panick attack I feel dizzy everyday this just sad for me to drink everyday medicine I feel my body wear that this is not me who else feels just like me
Me too. I pray you feel better real soon. I hate this.
@@preshessgaines5724 thank you
Hi Silvia. I'm so sorry to hear you have been feeling like this. I hope you are starting to recover and are feeling better.
@@EmmaTara thank you but everyday I just feel the same
Silvia Bautista sometimes it's the foods we eat that are causing us to feel terrible and also make sure you're getting enough calcium, potassium and magnesium. I hope a medical doctor or a naturopath doctor can help You heal. ♥️
I am crying because I am going through this now. I am on a heart monitor as I speak. They keep saying Im fine and Im not. Tonight I notice my neck swelling....I hope to get somewhere tomorrow at the doctors. You are telling my story 😢
Hi Anastasia. I hope you start to feel better soon. Stay positive and let your body rest when you feel you need it. It is scary at first but it will get better once your doctor works out exactly what is going on. I hope you heal soon xx
Anastasia Viney how are you doing today?
Going through this now
Anastasia Viney I’m going thru the exact same thing my coworkers treat me like shit they think I’m just trying to avoid work they think I’m lazy but they have no idea how bad bad I feel 🤦♂️
I hope you found answers ! Can you share ?
I just got diagnosed with Graves two days ago and am feeling very confused and sad and upset. Thank you for your video. Knowing someone who has pulled through it and is doing well gives me the strength to figure this out and battle it.
Hello. I'm sorry you are feeling like that. My biggest advice would be to listen to your body and give it what it needs like rest and healthy food. That is what I did and still do and it worked for me. I wish all much health and happiness xx
Hi Tara! I was diagnosed with Graves' disease in November and it's been tough! I've lost tons of relationships like you said, my eyes are starting to get bigger and I feel like meds aren't working. I do have a crappy diet so that may be what makes me feel worse. I'm glad I saw this video because I can relate. I can never get out of bed and I'm always hungry. It's good to know that I'm not alone.
+Amy Patino Hi Amy. I'm sorry to hear you have Graves disease. Thank you for watching my video. I'm happy it helped you. Good luck with your journey to recovery :)
I was diagnosed with hyperthyroidism 2 weeks before and I'm 18.the doctor said that I was lucky to being diagnosed early as the condition grows worse without medication.im a bit happy that I got to know the reason behind my symptoms like because whenever I tell my friends, family anyone about how I'm having extreme hair loss and weight loss they'll be like,ohh there's nothing to worry your stressed because of your final exam and you'll be okay when the exams over.i had anxiety all along in my everyday life.it sucks to being not understand by your closed one but somehow I choosed to see a doctor and after the TSH test I got diagnosed.its still only have been 2 weeks but I had all those symptoms long ago.my day to day life and my studying have been affected badly by this.im having mental breakdowns every now and then. I hope to get better soon with the medications.hope everyone will get better too.
love that you shared! much love to you from a fellow Graves Warrior!
+Jennifer Lambdin Thanks so much. Haha I love that, Graves Warrior :) xx
I have Graves' disease as well and I'm going through the stage where I haven't slept well in over a month. I'm so exhausted and have no energy but at least my hair is starting to grow back. Thank you for sharing your relatable story!!
Hi Mena. I know how that feels. It's so horrible. I'm sure it will pass though. Keep eating clean healthy foods to help your body. I use coconut oil in my hair as a mask every week and it helps my hair grow so much. I hope you start to feel better soon xxx
So happy to see this vid and know other people are going through the same thing. I was diagnosed with Graves' disease about 6 weeks ago. My Endocrinologist put me on Tapazole and it's really starting to help. The hand tremors have stopped and my heart no longer feels like it's trying to burst out of my chest. My greatest discomfort was the heat intolerance and itchy skin. It made me feel like I was going crazy.
The itchy skin is so bad! I still have itchy and puffy eyes every morning. I hope you are feeling much better now.
Hi Emma, I have suffered with hyperthyroidism since 26 years old. I have suffered with panic attacks my whole life, cant focus my eyes despite having A1 vision from the optician, my mind is foggy, I forget things and feel like I am walking in a dream. People do not understand that I am unable to function properly on a daily basis and it took 4 doctors before they diagnosed me. I guess its time for me to go back on the carbimazole as I have felt terrible for the last 3 weeks now. I refuse to have the thyroid out as this can spell more problems, so will see what the bloods say on Monday. Thankyou for sharing x
+Anneka Svenska (GreenWorldTV) Hello. I'm sorry to hear your are feeling bad again. I have had ups and downs too for the past 2 years so I understand the frustration. I hope you find a balance soon and your health restores again :)
Hello Emma can you tell me why people are not keen to have their thyroid out? I have Graves disease I'm just diagnosed.
My levels are 0.001 and I'm taking carbimazole 5mg one after breakfast and one after dinner .
Kindly suggest should I take together after breakfast ? Should I increase my dose ? as I feel I should increase because I'm not feeling well at the moment , heart is pulping all the time and anxiety all the time
@@izh666 Speak to ur doctor. Don’t u make that decision. Let them!
@@georgia4407 ok
I have Graves, I was diagnosed with it when I was 17. I was extremely hyperthyroid (meaning my thyroid was working too fast).. on heart pills, throwing up everyday, severe anxiety, shakes and tremors, extreme weight loss, ect.. I had it all! I did many treatments of radioactive iodine to kill the thyroid hormones.. Lost a lot of my hair during the process. Finally after a couple years of treatments I'm no longer hyper, now I am hypothyroid (hypo. meaning too slow). However I am now 24 and I am still suffering, not as bad as once was, but I'm still not healthy. I just pray they can figure out the right amounts of medications to give me so I can live a "normal" life! A lot of people don't realise that your thyroid controls almost every part of your body.. even your brain! Its a serious thing.
Good luck to you, hope you stay healthy!! 💜
I'm sorry to hear you are still working your levels out. It can be so hard! I'm having my thyroid removed in 3 days so hopefully it won't take me too long to get my hormones level. Yes, your thyroid controls everything. So many people dont understand this. Good luck and I wish you all the best xx
Good luck with your surgery!! Hope it all goes well.
Thank you so much ♡
Michelle B your comment really speaks to me .. I thought i was alone with this illness . im not diagnose with it yet but iv had your same symtoms for 5 years today
Definitely not alone! I was recently diagnosed (I'm 17), although they suspect I've had it for years. You should go to the doctor, all it takes is a blood test and you'll be on the track to getting treated. You shouldn't leave it - I actually went into the doctors for recurring tonsillitis and they checked my heart rate. The nurses flooded me lmao my resting heart rate was 154 after sitting down for almost an hour. I'm on heart ad thyroid medication now, but if I had have left it and not gone to the specialist (and I really didn't want to go) I would probably be in the hospital with heart issues right now lol, so if that's happening to you, please don't just leave it!
Thanks so much for sharing your story Emma!! I also have Graves Disease, got my thyroid removed this summer though.. It's been really tough for my body to adjust to the new situation, but I'm getting through it:) and I'm really glad to see improvents everyday! All the best to you!!
+FranklyFranca08 Thanks for watching :) I'm so happy for you that you are seeing improvements. All the best to you too xxx
Thank you for your story, I respect you and wish blessings your way. I was born with lingual hypothyroid and just the past few months have been hyperthyroid after years of stability on meds, which I also dispise taking. I notice eating vegan and exercising exclusively has had a difference on my tsh levels. I do more the tsh goes down right now it's .05! I'm headin to the Dr tomorrow. I agree every cell of my body is affected and your story qas comforting and I truly believe in self healing.
I know this was posted 4 years ago. I just found out from my doctor today that I have an overactive thyroid. Hoping i could overcome this, same as how you managed yours. Thank you for sharing your story.
Same. Must have gotten my anxiety due to worrying for my parents during the pandemic. My heart would jolt up so fast I would be out of breath in the middle of sleeping. I’m taking metoprolol now
@@jimmyeatstheworld574 I am on medication for over 2 months now. I have lost too much weight for the past couple of months and slowly gaining weight again maybe because of the medication. My doctor told me that this is going to be a long term disease, still I am not losing hope. Hope everything's doing well on your end.
Hello. I’m sorry you have Graves. I hope you have a good recovery and are feeling healthy and strong 💜
Hey girl, I’m a model here in Canada and I have been struggling with Graves Disease/Hyperthyroid for about 3.5 years now. It was devastating when I started to lose my hair, and my eyes began to protrude. And although my family & friends noticed my eye changes, from the outside I looked fine. It was so hard, and I felt so misunderstood. I was tired all the time and had such bad anxiety. My friends couldn’t understand why I would decline an all-day hangout (I would just stay in my room...). Modelling became so tough. Being in heels, on my feet, contorting my body to make the shot great, just exhausted me.
I am talking in past-tense as I DO feel much better now, and can FINALLY do cardio without feeling like I am going to collapse or have a heart attack. I think there is not enough awareness with this disease, and support is so critical. Thank you for sharing this with all of us ❤️
Hi Stephanie! Oh my gosh modelling would of been so hard to do with Graves. You are so strong for pushing through! That’s fantastic that you are feeling better now. I hope you are feeling strong and healthy. Wishing you all the best 💖💖
Hi there every body I have Graves Disease now for 5 years my weight was 89 kg now 109 yes terrible was off meds for 3 months now went back to clinic it was slightly high he put me more tablets the Dr yes I drink my tablets every day and just. pray alot for. my recovery strongs everybody who have this Disease positive attitude and belief you will get better and family support is gonna get all of us throught his illness I pray for all of yous out there God Bless ❤🙏🙏🙏🙏😘
Thanks so much for sharing... I've only just been diagnosed with Graves Diease and I've been on medicine just shy of a week - it's lovely to hear you're still so positive after all you've been though
It gives me hope 🍀
How are you doing on the medication? I’ve been on it for a week, unsure how it’s making me feel
Hi Samantha. I hope you are feeling better. Thank you for your kind words. I wish you all the best with your recovery xx
Thanks for sharing your story. I recently got blood work back and my doctor is in the process of discerning what my hyperthyroid is due to. I really am suffering and I have begun feeling like I’m crazy. It’s good to hear I’m not alone.
I have Graves' disease too. Much love and luck to you. This is a hard disease.
Thanks so much. Goodluck to you too xx
Hawaiian Mermaid 23. I just got diagnosed with Grave's disease and Hashimotos thyoritis yesterday. I'm pretty scared, i don't even know what to expect.
Hawaiian Mermaid 23 I too had this disease and it is too hard...I feel like my depression was getting worse.
Will your eyes cure back without operation?
It's so good to hear that there are other people going through the same thing as me. I've heard lots of people who have hypothyroidism, but no-one with hyperthyroidism. I was diagnosed in August, and they're still trying to balance my meds.
I've been experiencing anxiety, heart palpitations, chest pain and a huge lack of energy.
Has anyone else been feeling things like this? If so, how have you been able to manage your symptoms?
Thank you for making this video Emma, and for being so honest with your feelings. You're so brave xx
Hello. Thank you so much for writing to me. Everything you listed I experience. I recently relasped and have been struggling to find the balance between being active and resting. It can be a fine line sometimes. What has helped me the most is resting when I can feel I am starting to get tired or am starting to shake and eating a really clean diet. When I eat bad foods like take out I can instanly feel the diffrence in my body. I hope you start to feel better and recover fast xxx
RosyCheeksOfMerlot I had the exact same symptoms and during a heat wave which makes everything worse. Some days, walking 2 blocks was exhausting. The lack of sleep and energy was the absolute worse. But when the meds start working is like a new beginning!!! Stay positive! At least is a treatable disease 😊
I can sleep for 10 hrs, a lot of times feeling that I have zero energy (with enough calorie intake)so now I am thinking this is the cause. Thanks for sharing
Mangie Cuadros What meds are you taking for your hyperthyroidism?
Well thank you !!! I was just diagnosed and have been very confused and upset but at the same time grateful to have some answers for all my symptoms finally !! For years I was misdiagnosed with insomnia and panic attacks !!
Hi Nicole. I hope you are starting to feel better. It's so hard being misdiagnosed for so long! Wishing you all the best xx
Thank you for sharing. i am 14 and i was diagnosed last year with hyperthyroidism and graves disease too. it has definitely been hard because of the constant labs. im terrified of needles and blood so i was so stressed about having my blood drawn. its gotten easier but im taking things one day at a time and i will beat this disease. stay positive babe. Much love!💞
Hi Elizabeth! Sending much love to you too ♡
I have hashimotos and have experienced alot of the same things...I go from hyper to hypo back to hyper. Saw 9 doctors, they all thought I was crazy... one even said he thought I had MS... finally switched clinics and was diagnosed. However, they wouldn't give me meds because my thyroid bounces around. I went last year from 153lbs up to 214lbs this year. Was working out like crazy then started putting on weight like crazy no matter if I tracked calories and worked out. I'm going off dairy, wheat and sugar to see if that helps. I get vertigo too which I am hoping someone else can relate with. Thanks for making this video!
Wow what a journey you have had! Thank goodness you finally have an answer. I hope the change in diet helps you. Eat lots of foods that are high in antioxidants like mushrooms and blueberries as they help to stop the free radicals in our bodies that damage our health. Good luck and I hope you recover soon xx
I've just been diagnosed with Hyperthyroidism. Misdiagnosed with anxiety disorder
Well I hope now that you know its your thyroid you start to feel better. Best wishes xx
@tara thanks so much for making this video. I was just recently diagnosed with Graves Disease. Your video has just given me hope!
+Erica Baxter-Watts Hi Erica, Thanks for watching. I am happy it helped you. All the best with your recovery xxx
I have this as well. Thank you for sharing this. Hope you are doing well! It's a journey every day but with support from loved ones, it makes it easier.
Absolutely Hannah! I hope you are doing well too ♡
Hi:) I also have Graves Desease:( 3 years already. Same symptoms at the beginning. I gave up gluten, corn, soy products and processed foods. I feel great. Next week I have a blood test. Wish me luck. Finally I have the energy to workout:)) I recovered my metabolism. It's so hard to deal with this desease:''( Good luck. I love your personality😘
Hi Karla. That's great you are getting your energy back! Good luck and I wish you all the best xxx
Karla H. Ur. Bulginess cured?
Can I eat organic corn?
Hi Emma,I was diagnosed the first time with hyperthyroidism when I was 21 went on medication for 6 months and then my thyroid returned to normal and I came off the medication.i was fine for another I think 6 years then I got the symptoms again but this time it wasn't a gradual build up of symptoms it hit me all at once.again it was my thyroid but this time I had a thyroid storm,went on medication and it went back to normal after a month.im now thinking I have it again all the symptoms!the one I really struggle with is the shaking and the feeling weak andlike I'm going to pass out also the hair loss.i have anxiety already but do notice it's more enhanced although I take cbd oil for my anxiety which has helped dramatically.its definitely good to hear similar stories.🙂.thanks for sharing.
Hello> I'm sorry your symptoms have come back. I agree the tremors are awful. I hope you start to feel better soon xxx
Everyone sharing is so great!
What’s helped me a lot is eating well, lots of good anti inflammatory foods, making sure I make rest a priority (learning to say “no”) and eliminating as much stress as possible. Yoga with Adrienne is on TH-cam and gentle and calming. Meditation is so good and of course prayer too. Be kind and loving to yourself, our bodies are already in over drive so it’s extra important to nurture and slow down.
Yes!!! I love your energy Tracy 🌸✨💙
Thank you so much for sharing your experience! I was recently diagnosed with hyperthyroidism. My thyroid scan is coming up soon, so I am still unsure of the cause. My thyroid antibodies indicate it is not due to an autoimmune disorder.
I had been lethargic and increasingly sick a lot lately in the past year and I have been experiencing things such as hair loss, changes in my cycle, and anxiety.
I just assumed it was because I started a new job and then changed to graveyard shift. I thought the changes in sleep habits and in stress levels were affecting my immunities. The tachycardia and palpitations are what finally got me to see a doctor. I didn’t piece these things together as one cause. It just snuck up on me like that...
I have been fortunate to have understanding and supportive people in my life. Educating others about what you are going through really does help. I’m reassured knowing that I’m not alone in my journey.
Thank you again for your story. Stay strong.
Hello. I’m sorry to hear you have hyperthyroidism. The palpitations can feel so scary. I hope you are feeling better after seeing a doctor. Give yourself lots of rest so your body can heal. I wish you all the best 💙
I went through the radioiodine treatment for mine. I know it sounds scary but the result is that I feel so so much better afterwards and it is safe.
Hi Hannah. That's great you are feeling better! It's so wonderful xx
How are you feeling now ?
@@dmitriyyurchenko3047 Still good
@@hannahdavis5725 that’s good to hear , I’ve been taking Methimazole, and ever since I started taking it I been having panic attacks anxiety and depression . I just want to know if you took the same medication? I’ve been taking it for a while not and nor I’m in the low normal range .
@@dmitriyyurchenko3047 It's been a long time so I can't remember what I took before the Iodine Treatment. I think it was methimazole. I do recommend going through the treatment but you absolutely need to talk to your doctor about the option. Afterwards you'll probably be given levothyroxine to take as your thyroid will no longer be producing the hormones you need. In truth though I feel so much better this way, my hands no longer shake, and I don't have the muscle weakness I used to and I can tolerate heat a lot better.
The anxiety you have will probably be reduced as well though I can't say anything about other factors.
My doctor told me that I have Graves Disease this last Thursday. I am scared. My doctor wants me to get the radioactive iodine treatment, but I am afraid of the side effects. I have other people telling me to get a second opinion, but my life is so busy I don't have much time to do that. I've been going to college and working amdgoing to the doctors and getting tests done the last month only to be diagnosed this last month. I have a consultation with the radiologist next Wednesday. I'm scared because I am only 25 and thyroid issues run in my family on my dad's side. I wish there was an easier cookie cutter solution to all of this. All I can do is remain positive and hope for the best. Thanks for sharing your story.
I'm no doctor but having had Graves' myself for many years and been put through the ringer as far as incompetent practitioners of medicine is concerned, I would *strongly* suggest you get a second and even third opinion. You only have one thyroid in this life. I personally suffered from it for years and with plenty of nutritional research, supplements, rest, a prescription of anti-thyroid meds, I did eventually recover from it and continue to recover from it today. Destroying the thyroid doesn't even solve the problem. It destroys the organ that is first in line to be affected by the problem. The autoimmune cytokines and other attack cells will move onto a different organ such as your eyesight if you have the thyroid removed like this. Very common side effect of radioactive iodine is that the attack cells have nothing to work on so find something else. Again, i'm not a doctor but as someone who lived with Graves for the majority of my young-adult life I am 100% certain from experience that Graves' is EXTREMELY treatable and very much within the possibility of being managed and ultimately overcome, and that the majority of practitioners are just far too invasive and keen to start cutting out organs. 25 is very young to live without a thyroid for the rest of your life, let me tell you that much. Don't let them pressure you into something you're not sure about. Personally I would suggest taking anti-thyroid meds for at least 6 to 12 months before even considering any other options. The fact is that you can either have your thyroid removed and take thyroid drugs every day (and if you don't take them you become very ill) or you can take anti-thyroid drugs every day for an unspecified period and there is always the chance that your Graves' starts to fade away. People with Graves' can and do go into remission, you just have to find what is causing it or aggravating it to the point where it is out of control. Graves' is essentially an allergic reaction gone rogue - in this case your immune system has lost its ability to correctly recognise its own tissue. There are all sort of environmental and chemical modulators of your immune system, overstimulation of your immune system through the repeated ingestion of foods you have allergies to (think dairy, eggs, common food allergies, in my case it was large amounts of casein found in cottage cheese and milk that i was allergic to) is a huge factor in your immune system going haywire like this. At the bare minimum: Closely examine your diet for food allergies or intolerances, get a vitamin / mineral deficiency test, stock up on the basics your body needs like magnesium, vitamin D + K, plenty of leafy green vegetables, vitamin C, and most importantly high quality sleep, keep a sleep diary or use an app or whatever. Creatine (like what bodybuilders take) and Acetyl-L-Carnitine, another bodybuilder supplement, are both unintentionally almost perfectly designed for people suffering from Graves' disease. Be sure to have your levels tested frequently and don't let them tell you that just because your values are between X and Y you are fine, if you FEEL ill then listen to your body. Graves' can be healed, it just takes time and care and attention, and the majority of doctors nowadays have an extreme deficiency of all of the above. Peace out, Chris.
Hi Chris. I agree with you when you say diet and sleep are so important. I started keeping a food diary so I can write what I eat and how it effected me. I saw patterns and it really helped me make the changes I needed. Thanks for your advice :) Take care.
Hello. I know it's so hard and radiation/surgery are the last things we want. I am currently talking to my doctors about choosing which procedure I will get as I have had Graves for more than 3 years now. Rest, light exercise and eating a clean and gluten free diet have really helped me. I wish you all the best and hope you feel better soon ❤
C Hill i was 14 when i was diagnosed with hyperthyroidism and 15 when i took the radioactive iodine and now i have hypothyroism. I was very allergic to one of the medications that was treating my Grave's disease so the doctors believed radioactive iodine was the last option. I hate how i was only 15 though, because i felt like i had no say in anything really and didn't even fully understand what was going on with me. After switching, my weight has been fluctuating all over the place and it is really terrible. Every 6 months to a year, I have to get my blood drawn to see where my T-4 levels are to see if they need to raise my levothyroxin mcg. I am currently on 137mcg i believe, and i think i need to be given a higher dose because i feel pretty lousy. Either disease is terrible, but the fact that hyperthyroidism can be *reversed* is what makes me sad because i couldve been in remission by now; its been 5 years! :(
Argent Hi, I just saw your comment about considering rai treatment. Did you end up getting the treatment? If not, i would strongly suggest you look into it thoroughly as well as being hypo thyroid. The point is to make you hypo because it is easier control, but everyone reacts differently. My own personal experience not being so good. Best of luck
T hank-U sooo much for telling this disease as it is, and even your wise words are not enough, I struggled for so many years, becoming a hermit, because of this problem. You can never explain it to someone that does not know, and you said it so well, Thank-you Linda
Hi Linda. No one can understand unless you have lived it. It consumes you everyday. It's so horrible but I am grateful through this experience I have been able to connect with people like you to know we are not alone. Wishing you all the best xx
Graves Disease is a very difficult disease! I have had the disease for 13 years now. You are handling it with such grace and positivity. Currently, the worse of my symptoms is hair loss. I hope that i can get a handle on this symptom and recover with my change in medication. God bless you for sharing and i wish the best for your recovery as well. Many suffer from this disease and are each fighting the battle to get better. It is not easy, but try to stay positive.
Hello. Thank you so much for your beautiful message. That is so kind of you. I'm sorry to hear you have been suffering for so long. Have you tried using coconut oil in your hair. I swear by it. I use it once a week as a treatment and it have hydrated and thickened my hair up so much. I wish you much health and happiness xx
Hey Emma, just listening to your story reminds me of what I'm going through it made me cry because now I know I'm not the only one who is suffering this just like I am, I found out that i had hyperthyroidism when I found out I was pregnant with my 1st child 2 years ago I've had preterm labor 6-7 times into the pregnancy luckily she's here today, I was anemic in the pregnancy with my 1st because of my thyroid problem I looked like I was drained out, completely been losing weight constantly I am now 111lbs considered medically anorexic cause of age & height. but my normal weight was 125lb before having kids.. but nobody understood why even though I explained it all the time but that's because they don't have it to go through it to understand it takes more than that .... now here's the problem, I've tried everything with working & I can't even last that I feel so hopeless all the time I'm so emotional I just wanna give up, I've felt like a bad mom even tho I know I'm not but thats because everyone's ignorance made it seem that way because I don't work anymore people would say so many hurtful things that me myself would even believe it dont help any when i have severe depression as is, no one really understands my disease cause I'm getting called "lazy" or that I need to "grow up" "its no big deal" thing is that they don't even get it, I stress to them that I can die i told all the possibilities of what could happen to me but not everyone seems to care cause they think its a "cry out for attention" when thats not true, im scared outta my mind. I had a mini stroke last month & I'm pregnant with baby #2, I feel so tired all the time, I can't even stand for more than 5 mins without feeling like I'm gonna fall over & pass out, I have anxiety & depression & panic attacks been had that but my thyroid disease makes it 10x worse, I'm so tired all the time don't help with the insomnia, but as a parent I still do what I gotta do etc.
but till this day living this life is so hard without a simple judgment I just wanna hide & never come out 😭
I take meds for it but doesn't always work, been getting sick a lot more frequently like every week after I get over it, its back to back, I eat more than anything cause nothing satisfies me at all & not just because of the pregnancy, its just so hard dealing with this, I just also got a biopsy done a week ago & they couldn't even finish it because my heart rate was over the 100s & they had to put me on oxygen & I was having cramps which scared the living crap outta me I was having an anxiety attack while the procedure was going on. just want to feel like a normal person including as a mom. I'm the one who provides for my kids, I get some support from my mom which thankful for, the father of my children very little when convenient to him. so basically doing it alone 90% of the time. needing prayers I'd appreciate that 💞 love yah all!
+Charity Ern Hello. Thank you for your message. I am so very sorry to hear you are having such a hard time with hyperthyroidism. I understand how tough it can be especially when you are feeling judgement from others. I have not experienced pregnacy with this condition yet but I have been told by my doctors that it will be hard. I hope you stay positive and start to feel healthy and normal again soon. I am sending you much love, health and happiness xxx
Thank you love I appreciate it, its very hard especially with pregnancy 😯
Wow, this is the exact same thing that happened to me in 2013-2015. The main issue I had was feeling paralysis in my legs after leaving the gym or waking up in the middle of the night; anxiety, panic attacks, heat intolerance, and so much more. I had to quit my job as a probation officer. It wasn’t until I almost had a heart attack and collapsed that I found out what was going on. I’ve been on methimazole and metoprolol since 2015. Even though I’m trusting for the Lord to heal my body, along with continuing to eat healthy and doing my best to stay fit, people truly do not understand what I go through on a weekly to daily basis. Half the time, I’m still trying to grasp what’s going on with my body after being a fitness nut pretty much my whole life...lol. I refuse to get the radioactive iodine or surgery to remove the thyroid. I believe there has to be a better way. I definitely understand the fatigue, and trying to mentally grasp and manage the reality of what’s going on can be a challenge. This video really blessed me. Thank you for sharing! I pray that the Lord would help you overcome the battles that you fight with Graves’ disease, just as he has done and is doing for me. Bless you!
Thank you so much. This is such a lovely message. I truly hope you are on the road to recovery and are full of health and happiness xxx
Melchizedek Lockwood I truly hope Your body is healing nicely and You are feeling great these days. ♥️
I was diagnosed with Graves’ disease earlier this week. It’s nice to hear about someone’s recovery❤️
Hello Allana. I hope you are feeling well and healthy
Omg so much of what your saying is ringing true. I’m currently being tested for thyroid problems after some very mixed blood results. The hospital have mentioned Graves’ disease but aren’t ruling out thyroiditis and I’m terrified. Plus my hair has also been falling out recently so I think it’s time I got a proper diagnosis.
Hi Carolina. Did you find the cause yet? I hope you are feeling better xx
Had all of the same problems for several years prior to diagnosis ultimately had lost so much weight and would collapse with fatigue. Along with the eye issues I also experienced balance issues.
Some 15 years ago I had radio iodine treatment and after a short period of regular adjustments to medication, I have been able to lead a pretty normal life, I had laser surgery on my eyes to help correct the vision issues, the bulging has regressed to normal.
I am able to play tennis competitively several times a week, I run & can cycle apart from the racing heart (left side High output problem often associated with Graves) so don't despair on diagnosis, I take two tiny tablets each day (levothyroxine) and it has transformed my life from the misery prior to radio iodine back to a full and rewarding one.
Good luck to you all
Hi Laurence. Thank you for sharing your story. Hearing positive stories like this is wonderful. Wishing you all the best!
I have been recently diagnosed with Graves’ disease and my Endocrinologist doctor wants me to drink some kind of radiation drink and then I would become Hypothyroidism and on medication for the rest of my life-Not Happening! She also told me that a lifestyle change nor diet change wouldn’t help either-I don’t think so! When she was telling me all of this bad news, I was thinking “Oh she’s a Big Pharma advocate, and her goal for me is pumping me with medication for the rest of my life.” Therefore, I am my own health advocate now and I will surround myself with natural path doctors that knows that clean food and water are essential for optimal health outcomes along with physical activity. Doctors that will run other types of test results to go deeper into what is going on with my body besides the basic test routine and call it a day. I’m doing some research too on the internet and library books on this matter. I do know now that once you drink that poison my doctor wants me to drink, it is ALL over and then no correcting health problems just down hill from there.
P.s., your story was very touching and you had me in tears. Good luck with your health journey wishing you WELLNESS for now on. 😊👍🏽😊
Perhaps you have come to this already.... but... Graves' is result of a leaky gut and reversing that would also remove Graves'... so... do a research on leaky gut and diet that would heal damaged gut lining... probiotics like sauerkraut are mine #1 choice as it would outperform any pharma produced probiotic... but besides probiotics other dietary measures are necessary... in my case it is a KETO diet... wish you fast and complete recovery.!
(I'm Brazilian, but I'll try to make this comment in English. I hope everyone can understand and I'm sorry for the mistakes, I'm studying English.)
I don't know how the healthcare system works in other countries, like the United States or European countries.
I read a lot of comments and they all just talked about medicine and more medicine and surgery.
Doctors don't advise on vitamins? There are several vitamins that work together with the thyroid and you need to make sure they are in good levels. Thyroid-friendly vitamins: vitamin A, Zinc, Magnesium, Selenium, vitamin D, Vitamin B12 + methylfolate, Iron.
I had a lot of symptoms and I already feel much better. My vitamin D was very low and is now at a good level that allows me to sleep (I couldn't sleep, I believe it was because of very low vitamin D).
And as for the accelerations, I managed to win!
Attention! Healing begins in the intestine! Don't believe doctors who say that it doesn't make any difference what you eat or don't eat. It's a lie!
I discovered that what was causing my speedups was sugar! It happened whenever I ate sweet nonsense like cookies and cakes. Simple carbohydrates (rice, potatoes, bread) turn into sugar in the blood and can also cause heart acceleration.
Watch what you eat. If you can, cut out sugar and control your carbohydrate intake and this will help you feel better.
No doctor told me this, I discovered it on my own because I started to remember what I had eaten in the last meal before the heartbeat happened.
Please write down what you eat and compare when happen, you may find a pattern and find out what is causing it.
Hope this helps!
Peace, love and good health to all of us!
i am stunned with your story. i also have this disease for almost two years now. i am much better now but not fully recovered, i am still on my medicine. i literally cry a little when you said you feel devastated that you cannot perform, as a dancer i feel that too :(. i was so weak, i worked out hard before i was diagnosed and wondering why my muscles are not growing enough, my eyes are popped out (sadly now i am wearing sunglasses most of the time because people are afraid of my eyes and that looses my confidence honestly) but because of your story i feel better now. Thank you so much for sharing, it really calms me down and make me believe i can be recovered. I pray for the best for you!
Awww thank you so much. I am so happy this video helped you. That is exactly why I made it :) I wish you all the best xxx
Thank you so much. I'm 24 and was recently digenosed with graves disease or hyperthyroidism. Thank you so much for sharing your story. I'm still learning about it and trying to eat healthy.
Hello. Thank you so much for watching my video. I hope you are healing. Sending much love ♡
I have graves disease too. On Friday I was told that I have to have radio-Iodine. I am scared but then I juts think some people have it so much worse. Much love and luck to you. X
I'm sorry to hear that. I hope you feel better soon and are on the road to recovery! Good luck xx
Don't be afraid Bella. Everything will turn out alright. I was diagnosed in 2007 and had the radio-iodine treatment in 2010.
bella ask for a second opinion!!!! I have it too and won't do it..
I suffer from hyperthyroid it’s making me feel really bad. It changed the way I look which makes me very very very sad :( I don’t feel normal I just want to be healthy.
Hello. I'm sorry to hear you haven't been feeling well. I hope you start to feel better soon xx
You we so beautiful on the inside and out. Thankyou for sharing your story in such an open and honest way. xxx
+AlyssaJadeCasey Thanks sis xxx
watching this made me cry. i’m at work, feeling so bad, and thought maybe watching videos about this disease (i was diagnosed 2 months ago) would help me feel better and less alone, and it did, but it also made me sad. especially reading the comments. it made me realize i’m really going to have to suffer for the rest of my life. i hate feeling like this all the time.
Hello. I’m sorry you have this disease. It gets easier I promise. I wish you much health and strength ✨💙🦋
I reversed my graves disease with pranayam, yoga and satvic food. Started with 70mg carbimazole and the doctor cut it down to 50 in 1 month and 25 in the next month. By the end of the fourth month the doctor was surprised at my reports and told me I domt need to take them anymore
Please tell me more
@@healingwithangelica hello, +919829227444 here is my whatsapp, I will send you audio notes of all the things I did to reverse it its easier that way.
Hey guys. I've been suspicious I have a thyroid condition for years. My mom, sister, few aunts and cousins have one. Currently I have really bad hip and lower back pain to the point where it almost feel like appendicitis. My hair is falling out. I go through pretty bad depressions, one of my toe nails is falling off (I'm glad you mentioned that because I was so confused that I didn't remember subbing it) I recently got gout and I'm only 30. I'm always so exhausted but my anxiety keeps me up late. I always get swollen lymphnods out of no where on my neck and behind my ear so I feel like my body is infected too. I have totally lost my labido and drive to go out and do things, or work out. Anyone else have my symptoms?
Hello! How are your symptoms now? Have you been back to the doctor or been diagnosed? I hope you are doing better.
You are such a strong and beautiful soul, thank you for sharing your story xx
+tiah jean Thank you that is so kind of you xxx
Thankyou so much I have the same problems going on and I feel so alone at times and this has honestly changed the way I see things
Hi Vivianne. You are not alone. There are many of us going through this too. I'm so happy my video has helped you. You will get better. It just takes time and some lifestyle changes :) I wish you all the best ♡
I also have been surviving Graves Disease.. The worst part is never knowing what to expect!! I won't lose hope that it gets better
I know how you feel. Somedays I feel amazing then the next I just want to sleep! Keep staying positive xxx
I was diagnosed with hyperthyroidism two months ago and my doctor at the time had suspicions that I also had graves disease but that night I looked it up and found very little about it. December 20 is when I went to a specialist and was diagnosed. I'm currently seeking a date for thyroid surgery but all through the doctors appointment she scared me with death and blindness. These few weeks have been testing my relationships with everyone. I'm not sure how to cope with these new changes in my life I can't even cope with how I look like in the mirror. I'm 21 years old weigh 79lb and I'm scared. How did you over come these over whelming feelings?
Hi Amara. I'm sorry to hear you have been unwell. At first I was so upset with the changes of my body and having to create a new lifestyle for myself. It does get eaiser once your body starts to heal but each day is different. Give your body the rest it needs, nourish it with a clean diet and try to stay positive. I also have found that when I am upset and focus on the disease I feel worse. I always try to stay positive that I will heal and listen to my body when it needs rest. I wish all the best and hope you start to feel better soon. xxx
@@EmmaTara I
watching this for my girlfriend, she possibly has it, the reports are yet to come and its along with a heart problem, so just want to understand everything i can about it, been researching and all. Hope you are doing fine and staying safe now, thanks for the video!
I hope your girlfriend is feeling ok. You are so caring doing research for her.
It sounds like you've had a pretty tough journey, Emma - I can see your such a strong person and I believe that positive thinking, and a healthy diet/lifestyle will help your body get better.
It's so wonderful that you have opened up about this - I have no doubt that sharing your story will help others who are struggling with something similar. Beautiful! xx
+ELLAROSE Thanks beautiful :) It has been interesting but I have learnt so much about health and fitness from this so in a way it was a blessing xxx
your eyes seem normal, after they bulged how long did it take to return to normal. I have graves, and ended up having the thyroid removed, it was 10times the normal size, now Im suffering with the eye bulge, my thyroid is balanced now, so Im not sure why my eyes have not returned to normal. I may have to do decompression surgery, which scares me to death. I don't even recognize myself in the mirror, it has hurt my self esteem so bad, and after 33 years of marriage, my husband left me to marry his girlfriend, and now I feel worse. Its very discouraging.
I am so sorry to hear you are still having troubles. It is so hard sometimes. My eyes went down after about a month but now that I have relapsed they are puffy every morning. My doctor told me to take selenium to help this so maybe ask your doctor if this would help you too. I might have to have radiation therapy or surgery soon. I am also scared but am trying to stay positive. I wish you all the best ♡
Hi Koren, I had exactly the same case as you right now, all T3, T4, and TSH went back to normal ranges but still have the eye bulge, and much worse one eye is a bit different from the other one. the reason is basically that the tissues pushing the eyeballs got an inflation during the hyperthyroidism times, this inflation left a scare with these tissues and should talk a bit long time to come back.... So, to speed up this process, just keep 4 things 1- Stop smoking if you do 2- Stress Management (Sleeping well, yoga, etc) 3- anti-inflammatory diet 4- exercise 5- Using eye drops lubricants. Best Wishes
Hi Islam, thanks for sharing. I have been diagnosed with hyperthyrodism by my seconds doctor, after my first one completely ignored my eye problem. This has been going on for about four months and the bulge just gets worse. I hope that the imflammation will go away, everyone is noticing it and it makes me feel very uncomfortable.
Hi ! You might consider info at this site: shileyeye.ucsd.edu/specialties/thyroid
Koren Crosby I'm so sorry about what did your husband did to you: ( Hey cheer up ok? we will all make it,
I've been diagnosed with Hyperthyroidism a week ago and have been doing all the research possible since then... The anxiety/ panic attacks are the most severe symptom for me, which is very hectic for someone that hasn't had any anxiety or stress problems before. What did you do to suppress or control that anxiety/panic symptoms ?
Hello. I’m sorry to hear you are having anxiety. It’s such a horrible feeling. Meditation and breath work really helped me during those moments. I’ll link a sound healing I made on my other channel. Also speak to your doctor so they can help you too. I wish you much healing 💙
th-cam.com/video/7ba84Pn8KAY/w-d-xo.html
Hello how are you feeling today, My hyperthyroidism success story started when I came in contact with doctor Isibor Herbal supplement that totally change my life and cured me completely after 6 years of battling
This is really helpful.... I have diagnosed from hyperthyroidism in October and trust me from that day despite taking medicines I forgot how to feel absolutely fit and fine i m not feeling good for even consecutive days at this point I can't explain to anyone how i m feeling but this experience is horrible. Despite of doing regular workout and meditation this happened to me sometimes I feel so hopeless the pain in my body is just unbearable I can't even walk or get up from my bed.....but for sure I will be fine i have faith on my god and on myself just don't loose hope and work on yourself.
To everyone who is suffering this u r not alone and trust me u will be fine❤️❤️
hello! i was recently diagnosed with Graves’ disease and it is really nice to hear someone else’s story. It all started with the anxiety for me and then it led to insomnia and clinical depression. I had to drop out of public school and join public school. my mother noticed my huge popping eyes and shaking tendencies. I got diagnosed and at first I was terrified. of the fact after two years I may have to get my thyroid removed due to the severity of my future situation. not many people are aware of this disease which makes it hard to talk to others about it. I take hormone blockers which completely stops the hormones and then I take thyroxine injections each day to provide the medicine. I just thought I’d share my story in case anyone is feeling alone with their disease. I really love your video and I’m happy you’re getting a lot better! love, Hannah
Hi Hannah. It is such a horrible disease and not talked about much. Thank you for sharing with us. I hope you are on the road to recovery xx
I would like to know are you cure now? Im going through the same thing
I am much better now but still have bad days. I still have to get blood tests incase my levels change but I would say I feel pretty normal again.
+Emma Tara i have bulging eyes for some reason i fuckin hate it my thyroid is normal aswell if i had graves i would feel better atleast i would know thats the cause ah
I have found if my TH3 & TH4 levels are on the lower side of "normal" I have symptoms. Could this be the reason? Itchy budging eyes are the worst!!! I feel your pain.
sadly there's no cure, only drug replacement treatment.
Ally Vander Veen, watch Dr John Bergman videos, also try Homeopathy. But Bergman says its all fixable , and i am experiencing this, even worst is this dr says it heals naturally th-cam.com/video/_cTmhCLeB5M/w-d-xo.html
or else we would have had famous historic figures who suffered or died of thyroid problems, but allopathy is evil .....
hi I got diagnosed in February 2016... I've just started to take the medication. I'm on 20mg carbimazole, I take one daily and have been doing for the past 2 weeks. i feel alot better.. however I am currently trying to lose weight since I have my energy back but it's not happening. I work out in the gym at least 4 times a week and eat in moderation - before having this medication I would at least lose 2/3 pounds a week but now nothing is shifting :( I need to lose weight because I look unhealthy right now and I am just hiding in baggy clothes. I'm 5ft2 and 14 stones :(
I'm struggling with weight gain on carbimazole too.. have you managed to shift any of it?
Hello. I'm sorry I am only just seeing your message. I have trouble gaining muscle so I always look and feel soft. I have really cleaned my my diet and I find this really helps with not weight loss but my energy too ♡
Thanks for sharing. It's nice to see how other people are dealing with it. It was a nightmare to go through and it still is after being diagnosed at times. I ate so much that even my friends would ask me if I was okay haha despite losing weight (one day I had 6000 calories). My hairbrush would get full every week from losing so much hair and I noticed when I would try to do my eyeliner I would mess it up every time from the tremors. The hunger and panic attacks were probably the most intense for me. It's scary to feel your heart race like that. Stay strong!
+Sarah Gray Hi :) Thanks for writing to me. Tremors are the worse! I still have them almost everyday. I am so happy my hair has grown. I had no idea why it all fell out at the time. I hope you are healthy and living an amazing life xxx
Thank u for doing this video. We need more of these about Graves so we know more about the symptoms as a lot of doctors don't tell u much and don't know enough. I had a near-total thyroidectomy in 2005. I still have so many of the symptoms though. My sister is the total opposite....hers is underactive and is very small and sort of shrivelled up where i grew a goiter. 2 of my cousins also have thyroid problems so it's in the family. Stay well :)
+Suzie Charles Hi Suzie. Thanks for watching my video. I agree, the doctors didnt tell me anything so all the symptoms were such a shock to me. I am so happy people have responded to my video as I have learnt so much from other people dealing with thyroid problems. I wish you and your family much health and happiness :) xx
As a guy who's had graves for 10 years and was only diagnosed in the last 6 months I'm super relieved to hear how your hair grew back, I lost a significant amount of hair and it's only now starting to slowly grow back. Btw your discussion about how you lost so many friends and it just wrecked your life and left you isolated really speaks to me and my experience of the last decade. It's been very, very hard. Edit: Actually I just got to the end of your video and you asked for some tips and tricks and the same thing occurred to me and I do go into that on a video I made this morning about my experiences with graves and I discuss the vitamins/minerals/supplements that really helped me th-cam.com/video/Xc-J6wJY_RU/w-d-xo.html
+-C. Hill my hair, was almost completely gone last year, but it has grown back a lot :)
my hair grew back eventually too!! Super thick :) Use coconut oil on it as a mask before you shower .. maybe on a lazy sunday. It promotes growth and is all natural
Hi. Sorry i'm only just seeing your message now. I will take a look at your video. I always want to learn more ♡
C Hill Hey I'm a guy too and I was diagnosed with Graves' disease around 5 months ago. I have been losing my hair like crazy. My levels have been normal for around 4-5 months now. But I'm still losing a ton of hair. The top of my head is really patchy and my hairline has receded a little. My doctor says it'll come back but I'm still losing a ton and I don't know if it'll come back. How long did it take for your hair to stop falling out and to grow back? I've been searching the internet like crazy and I can barely find any other guys that have graves and if you could help me out I'd really appreciate it.
Hey man. See my post below responding to Argent for more info. But in answer to your question, and to save you dozens of hours of reading as I had to do, as far as your hair is concerned there are several different causes and factors in why you are experiencing hair loss. Hair loss is multi-factoral, you could be suffering from a Graves' induced nutritional deficiency (extremely common, magnesium / vitamin D+K / creatine etc) as well as a variety of food intolerances (try keeping a food diary and tracking how you feel, if you start to notice a pattern after eating certain things, narrow it down and try to cut it out). In terms of immediate causes, my personal experience is that the beta blockers often prescribed for GD cause appalling hairloss and doctors never bother to mention it. In hormonal terms, it is not the GD itself necessarily that causes hair loss directly (although it does cause premature greying from the excess peroxide your body produces as a side effect) but rather rapid up- and down-swings of your TSH / T3 / T4 levels e.g. I noticed that after my levels stabilised after initially dropping quickly from taking anti-thyroid drugs, the hair loss would level out, but then coming off them would also cause a refractory upswing and further hair loss. The other problem is that significant hair loss is also a side-effect of HYPOthyroidism i.e your levels being too low, which is obviously also a side-effect of anti-thyroid tablets especially if your dosage is even slightly too high. Are you tired? Is your sleeping pattern disrupted and unpredictable? Dry skin? Depressed? Again you have to work out if your dosage is correct or not. Unfortunately hair is just one of those things the human body does not look at as being priority number 1. If your body is healthy and has plenty of energy left over and isn't overstressed, you will produce healthy hair - genetics aside. The only way to give your hair the best chance for recovery is to get a nutritional panel / check for deficiencies, get your GD under control and try - when appropriate - to slowly reduce the dosage and come off all medications so your system can get back into balance. This will probably take time. That said, if somebody had told ME all of the above, I could've saved myself a tremendous amount of time and suffering. Hope that my advice helps. Chris.
I hear you sis, I’m going thru it now thank you for sharing your story this sucks 😰😔
I hope you are doing well. This disease can really mess you around!
thank you for sharing. everything in my life makes a bit more sense now
Thanks Im newly diagnosed by myself after many surgeries that triggered me into storms, heart attack, kidney failure, lung failure, and lost 6o pounds of mostly muscle. I am a type one diabetic Dr's thought it was due to my diabetes only. Thanks and be well my friend.
This is 100% my story! Thanks for sharing. I have been off medication for almost a year now and after the monthly bloodwork it turns out that Graves is back. It was the second time I relapsed so the doctor thinks it would be best to remove part of my thyroid. The thing is that during the year of having stellar bloodwork results, I still felt horrible. My heart was still beating too fast, I was still sweating, shaking and losing weight. I'm so relieved that you made the same experiences, because i was beginning to think that I was crazy. I hope you're much better now! Sending much love your way!
Thank you and I hope you are feeling better too. It's so horrible to feel like that every day! xxx
You both need to look up nnEMF, especially in this modern world of radio-frequency. If an athletic fish lives in a dirty fish bowl, but an average fish lives in a clean fish bowl, what happens to both fish over time? Seafood is your friend...shrimp, oysters, etc. Why? Iodine+selenium+potassium+DHA. You're welcome.
Thank you! I was diagnosed last month and you can understand my confusion and coming to terms with all that it comes with. I am taking each day as it comes learn more to readjust to the situation. I took down my braids and saw how much hair I had lost, it was heartbreaking!
Hello. How are you feeling now? I'm sorry I'm only seeing your comment now. I'm wishing you all the best for your recovery xx
My last blood works came back with great results. Normal thyroid level because I went cold turkey with my diet, now I have to maintain a healthy lifestyle to stay healthy.
Thank you for this video! I know this is an old video but I just got diagnosed with the same thing and people don’t understand. I’m getting scans done tomorrow on my thyroid as well because I also have hyperthyroidism. Thanks for this again and for sharing.❤️❤️
Hi Tiffany. I hope you are feeling well. Wishing you all the best xx
I was diagnosed at the age of 12 with pretty advanced stage. I was hospitalized for a months on strong sedative medication. After that I had home schooling for 2 years. Living with it for more than 20 years by now. I have eyes problem too, went through hormonal therapy to get them back where they supposed to be.
I was off medication from 19 until 32. Now it’s slowing down as immune system never stops attacking your thyroid. I have a blood test every 3 months as well as endocrinologist supervision. This enables me to live as close to normal life as possible.
What’s still left is: my skin and hair are thinner, fragile nails, heat intolerance (I faint if I have to stand still), emotionally I am more sensitive, can overreact with emotional outbursts, and it’s so hard to control. Not that much at work, way more in the personal life. However my energy levels are great, I work out a lot, I work and actually managed to get at a pretty high level professionally. You are right, it’s a condition for life but we can do a lot to keep it as much under control as possible. Just run those blood tests regularly and do what doctor tells you to do.