Team Roman - Scarlet & Ben James

On the 11th April 2017 Roman Nathan James lost his fight with NP-C, he was aged just five years old..but due to the enduring love and dedication of his parents, family, friends, and all who encountered him in his short life Roman continues to inspire ❤
At last year's NPUK Annual Family Conference & Interactive Workshop Roman's parents Scarlet and Ben James shared their story and detailed why they continue to advocate on behalf of families affected by Niemann-Pick:
"...we intend to continue Team Roman as a legacy to our little boy. He inspired and continues to inspire - and it would be an injustice to him and his life if we didn't continue to raise awareness and much needed funds for such a worthy charity..."
You can learn more about Team Roman at their dedicated Facebook page #TeamRoman
At NPUK we are a charitable organisation dedicated to making a positive difference to the lives of those affected by Niemann-Pick diseases. Our central goals are to raise much needed awareness, provide practical and emotional support, advice and information and facilitate research into potential therapies for NPD.
To learn more about Niemann-Pick UK (NPUK) and Niemann-Pick disease, please visit us at our site: http//www.npuk.org
#TeamRoman #NiemannPickUK #NPUK

[@goingroundflatearth865]

Great charity get donating guys xx