Battling anxiety and depression myself, it has been one of the biggest challenges in dealing with epilepsy. It is one thing to get your seizures under control or reduce them. It is another challenge to face the emotional and mental impact the side effects of these medications have. It was one of the reasons I hated switching medication when I was young. Each one made me feel different and I felt like my personality changed each time. I've been lucky to be on a good combination of medication now and that I can work on mentally healing.
Both anxiety and depression are common with epilepsy and the thing about anxiety is that it can have u thinking all kinds of negative thoughts especially in a situation that involves a group of people and depression is something that comes and goes one minute you feel depressed and another minute you're happy again I suffer from both especially anxiety I does be afraid of what people may think of me If I say or do something around them it's not easy
I experience both anxiety and depression as well. My doctor has me on a low dose of zoloft which helps to a point, but it is really exercise and painting that help me. I used to worry about what others think, but as I have gotten older, I worry about it less and less. You know what you are going through and you are the strong one, the survivor in all of this. Don't worry about what others think, take care of yourself and live your life to the fullest.
@@gowonclasp7249 thank you. I pray that a miracle does happen for this community before I leave this earth. I would like to see at least the stigma that is being held over us gone, better care for us, and a better quality of life.
Hi. Remember me? I did see a neurologist and he said I did have complex partial epileptic seizure that goes side by side with dystonia. After further examination my neurologist along with my neurosurgeon said I have multiple sclerosis that's explains why I have degenerative disc in my cervical and lumbar. I have multiple spots in the base of the brain and on my spinal cord too. I have depression and anxiety that I can't control. Sometimes I hated being alive and sick at the same time. I'd better die sooner than later. The more I stay alive the worst things could get.
Hi Bob, I'm glad you got some answers. I'm sorry to hear how much you are going through. I can empathize with how you feel. I have felt that way many times in my life. You keep fighting, but after a while you ask why? My fear is I would have to go into a senior center or nursing home which I have told my loved ones I will not do. I would rather die than take that route. Those feelings are understandable. I would suggest when you are anxious or depressed, try to do something that will help you feel better. Exercise, yoga, meditation, gardening, painting, and building LEGOS are what I do to help decrease anxiety and depression. Find something you love to help yourself feel better.
Too bad there is no help here in South Africa. I have generalized epilepsy and suffer from depression due to the side effects of the medication. IF someone can help, it would be to put a shunt thing in my brain to get the medication that way, no side effects. But that's not gonna happen. I wonder if anyone really cares.
I have been to South Africa and sadly the way the healthcare system is set up, there is very limited care for those battling disabilities and differences. I have never heard of putting a shunt into the brain to administer medication, but I'm going to look into it. Being here in the United States, any type of preventative care or mental health care is very limited and almost impossible to get, despite the services out there. It comes down to the medical insurance companies do not make money off of it. I have found in dealing with depression and PTSD related to epilepsy, I had to take charge of my health and come up with coping skills to improve my quality of life. I exercise, read, paint, do yoga, and go for walks. I have had epilepsy for 43 years now. The best thing I can advise you is to try to find some activities that make you happy and incorporate them into your everyday life. Please do not expect the doctors or therapists to do it. You have to take control of your health and well-being.
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Battling anxiety and depression myself, it has been one of the biggest challenges in dealing with epilepsy. It is one thing to get your seizures under control or reduce them. It is another challenge to face the emotional and mental impact the side effects of these medications have. It was one of the reasons I hated switching medication when I was young. Each one made me feel different and I felt like my personality changed each time. I've been lucky to be on a good combination of medication now and that I can work on mentally healing.
Which meds are that ?
Both anxiety and depression are common with epilepsy and the thing about anxiety is that it can have u thinking all kinds of negative thoughts especially in a situation that involves a group of people and depression is something that comes and goes one minute you feel depressed and another minute you're happy again I suffer from both especially anxiety I does be afraid of what people may think of me If I say or do something around them it's not easy
I experience both anxiety and depression as well. My doctor has me on a low dose of zoloft which helps to a point, but it is really exercise and painting that help me. I used to worry about what others think, but as I have gotten older, I worry about it less and less. You know what you are going through and you are the strong one, the survivor in all of this. Don't worry about what others think, take care of yourself and live your life to the fullest.
@@DefeatingEpilepsyFoundation the same to you and let's just pray that a miracle can happen one day for us
@@gowonclasp7249 thank you. I pray that a miracle does happen for this community before I leave this earth. I would like to see at least the stigma that is being held over us gone, better care for us, and a better quality of life.
Hi. Remember me? I did see a neurologist and he said I did have complex partial epileptic seizure that goes side by side with dystonia. After further examination my neurologist along with my neurosurgeon said I have multiple sclerosis that's explains why I have degenerative disc in my cervical and lumbar. I have multiple spots in the base of the brain and on my spinal cord too.
I have depression and anxiety that I can't control. Sometimes I hated being alive and sick at the same time. I'd better die sooner than later. The more I stay alive the worst things could get.
Hi Bob, I'm glad you got some answers. I'm sorry to hear how much you are going through. I can empathize with how you feel. I have felt that way many times in my life. You keep fighting, but after a while you ask why? My fear is I would have to go into a senior center or nursing home which I have told my loved ones I will not do. I would rather die than take that route. Those feelings are understandable.
I would suggest when you are anxious or depressed, try to do something that will help you feel better. Exercise, yoga, meditation, gardening, painting, and building LEGOS are what I do to help decrease anxiety and depression. Find something you love to help yourself feel better.
Tristemente solo está en inglés 😢
Tenemos pasantes que están traduciendo las presentaciones. Una vez que se traducen del inglés al español, los programamos.
Too bad there is no help here in South Africa. I have generalized epilepsy and suffer from depression due to the side effects of the medication. IF someone can help, it would be to put a shunt thing in my brain to get the medication that way, no side effects. But that's not gonna happen. I wonder if anyone really cares.
I have been to South Africa and sadly the way the healthcare system is set up, there is very limited care for those battling disabilities and differences. I have never heard of putting a shunt into the brain to administer medication, but I'm going to look into it. Being here in the United States, any type of preventative care or mental health care is very limited and almost impossible to get, despite the services out there. It comes down to the medical insurance companies do not make money off of it. I have found in dealing with depression and PTSD related to epilepsy, I had to take charge of my health and come up with coping skills to improve my quality of life. I exercise, read, paint, do yoga, and go for walks. I have had epilepsy for 43 years now. The best thing I can advise you is to try to find some activities that make you happy and incorporate them into your everyday life. Please do not expect the doctors or therapists to do it. You have to take control of your health and well-being.