I know exactly what your describing...it’s so hard to put into words. One minute your as ok as you can be will this illness then the very next minute you can’t even think straight. Praying for all of us that one day someone figures this out. ❤️
@@carolynchamness3039 I'm not sure, I know I'm interested in the current clinical trial she is doing. I've read some of her articles on the foundation website, that just click with me. I'm thinking of signing up for her trial.
Beautifully Broken I thought about it awhile back but decided to try the treatment in NY. Unfortunately it didn’t help me but still glad I went. For those 5 days it was so nice someone really understanding what we are all going through.
@@carolynchamness3039 she's using deep magnetic stimulation. I do know that much :) It doesn't involve meds, and I agree with her studies ive read that she's done on the brain, and her plausible links, so, I'd love to be a part of her trial, let her take a peak in the ol' noggin 😉
Oh my gosh... I am currently going through this. It happened the same day we got a storm, and I also think my period is due soon. I was doing fine and it got SIGNIFICANTLY worse yesterday to the point I am bed-bound. I almost fell into the door in our bathroom. It feels like I rock back, sink, rock forward and go upwards. Hard to explain. Intense gravitational pull and weird head sensation. I am praying that this will ease. I also got worse following a viral infection. I wish we understood this disorder and had better treatments. I wish I could be in a Mal De debarqument study with Dr. Cha. I live in KY and also don’t know where to go for a diagnosis. I have spontaneous onset Mal De debarqument and I am 22 years old.
Beautifully Broken I’m really praying that what I’m experiencing now eases and isn’t stuck this way. It’s the worst it’s ever been, for the longest. It’s been over a day so far.
@@petlover345 stress makes it worse. Try to rest and relax, you'll get back to your baseline soon. If a really large storm rolls through, it can throw me off for a good week. I feel like I rock back to front mostly, but, when I'm super triggered I start bobbing too, knees buckle, and I have a gravitational pull side to side, most of the time to my right
I know exactly what your describing...it’s so hard to put into words. One minute your as ok as you can be will this illness then the very next minute you can’t even think straight. Praying for all of us that one day someone figures this out. ❤️
🙏me too!!!!! I think Dr. Cha is onto something.
Beautifully Broken Is there something new out from her?
@@carolynchamness3039 I'm not sure, I know I'm interested in the current clinical trial she is doing. I've read some of her articles on the foundation website, that just click with me. I'm thinking of signing up for her trial.
Beautifully Broken I thought about it awhile back but decided to try the treatment in NY. Unfortunately it didn’t help me but still glad I went. For those 5 days it was so nice someone really understanding what we are all going through.
@@carolynchamness3039 she's using deep magnetic stimulation. I do know that much :) It doesn't involve meds, and I agree with her studies ive read that she's done on the brain, and her plausible links, so, I'd love to be a part of her trial, let her take a peak in the ol' noggin 😉
Oh my gosh... I am currently going through this. It happened the same day we got a storm, and I also think my period is due soon. I was doing fine and it got SIGNIFICANTLY worse yesterday to the point I am bed-bound. I almost fell into the door in our bathroom. It feels like I rock back, sink, rock forward and go upwards. Hard to explain. Intense gravitational pull and weird head sensation. I am praying that this will ease. I also got worse following a viral infection. I wish we understood this disorder and had better treatments. I wish I could be in a Mal De debarqument study with Dr. Cha. I live in KY and also don’t know where to go for a diagnosis. I have spontaneous onset Mal De debarqument and I am 22 years old.
I’ve been to an ENT who didn’t know what this was. And the spontaneous onset is even more rare, so docs really don’t have a clue.
I am so sorry. You're so young 😭 yes, I get really bad like that with severe storms. My symptoms amp up around my cycle too.
Beautifully Broken Is yours bobbing, side to side, or forward and back? Mine is a combination. Feels like I move elliptically.
Beautifully Broken I’m really praying that what I’m experiencing now eases and isn’t stuck this way. It’s the worst it’s ever been, for the longest. It’s been over a day so far.
@@petlover345 stress makes it worse. Try to rest and relax, you'll get back to your baseline soon. If a really large storm rolls through, it can throw me off for a good week. I feel like I rock back to front mostly, but, when I'm super triggered I start bobbing too, knees buckle, and I have a gravitational pull side to side, most of the time to my right