I was originally turned off by the huge Facebook logo on the thumbnail. But this is the best video on this. I wish my neurologists were as wonderful as this lady
You are heaven sent ❣️I feel as though you’re the only person n the world that gets everything I’m going through 🙏🏼🙏🏼🙏🏼thank you for your existence ❣️❣️❣️💯🙏🏼💯🤓
I have "essential tremor". Yeah, I can't get a decent doctor about it. Thank you for this info. I can totally relate to ALL of what you are saying, depression and everything! Not a drinker. Can't deal with Gabapentin.
Thank you thank you thank you thank you thank you I am so glad I found you that’s an understatement as I’m trying to navigate my way through everything connected with essential tremor. It was a fabulous lecture and I’m so grateful to you I wish I could write you
Thank you! Please keep posting more info on ET, it helps. I love the last bit on nutrition. Have you seen the research on the Keto diet and it's positive effects on PD. Could this help us with ET? Thank you again!
I was diagnosed with ET and taking gabapentin. I didn't know how it affected me. .if there was an adverse effect I see Med to have it.I realized this after catching a small part of your talk.Looking into it I saw that brain fog had truly made my life miserable! I am going to discuss getting off this with my Dr. ASAP. Thank you.
I think it’s cute in other videos where she talks about writing checks too! No seriously Dr. Sullivan is one of the greatest resources I’ve had in navigating these mysterious symptoms that I’ve seen crop up only the last year. Thank you SO much!
Help! I watched a long video ( I’ve watched most of your videos) and this one was quite long and it discussed many of the “other” tremors not just hand, voice but internal tremors etc. I CAN’T FIND IT AGAIN. I recall you saying this is going to be a long one and if memory (which is as you know affected) serves me it was about 57 min long. Thought I saved it but can’t find it. I actually broke down and cried half way through because I felt like “finally someone get’s it! I could even see a change in him as he watched it. I have just finished all the testing for DBS candidacy and (story of my luck) the day before the committee was to meet the pandemic caused all elective surgeries would be canceled so the committee did not meet. Your video did have so much impact on me that I actually called the neuropsychologist that did my evaluation (5 hours) and asked for a brief follow-up appointment to discuss his report/findings. Anyway,if any of this is sounding familiar I would appreciate the name or link to that video. I want to watch it again and forward to a few people as well. Thanks for all you do! Cheryl Garrett/aka Bubby
Okay, your video and the info you give is so awesome BUT, I have a rubral tremor. I have PMS…progressive multiple sclerosis… I’ve had DBS which has lessened but not rid the tremor. what more do you have for me, here?
Thank you so much for this helpful information about ET and the other symptomatic things of it! It helps me a lot to understand the disease! Lovely greetings from Sarah and stay blessed and happy and healthy in these times right now and take care of you 🙋♀💖👌👍🤗
You talk about the "highly soluble compound" collecting in the brain -- fat soluble? Because otherwise a "highly soluble compound" (water soluble) should pass in the urine.
Hi Dr. Sullivan...it is 2022 now, anything new? How are the new treatments after 4 years? Any hope and good news? I truly love you the way you talk from your heart you are so caring and loving and conscientious Dr.....I am a 66 years old with ET for many many years....but just found out couple of years ago that I had ET...before I didn't know why I was shaking...it is very hard to live like this and you know better than me....couple of years ago my doctor put me on medication but didn't help me...is there anything you can help me with I am so desperate sometimes that I don't even want to live anymore....please if anyone can help me I am begging you all...love you all and God be with you all......tony from New Jersey....thanks
Thank you so much. I'm educating myself and my granddaughter. We're having very frank discussions. I have had ET virtually my entire life. She also had relatively early onset, but milder tremors. Both my sister and I had mood symptoms where mood to go to Flashpoint in a second with no time to think it through. Propranolol gave us both breathing time, the ability to make a thoughtful decision. Adrenaline no longer was in complete control. I don't know if others have that same reaction. I'd like to know about that. Thank you again for caring. So many professionals dont.
My essential tremor, which I have had constantly for years, was bad enough that my handwriting became that of a very old person. For other purposes, I began taking resveratrol and coincident to taking it my tremor reducesd significantly. When I don't take it for a few days the tremor seems to return.
Finally someone is understanding what we are going threw I won't go to a nerolgist or physcoligst for Thay just send you to mental health frustrated with Dr
Does ET have an emotional component? When I am dealing with an emotionally charged situation it often seems exaggerated and includes tremors beyond what I usually experience. (I have not been diagnosed with emotional dysregulation or any related disorder.)
I am not a doctor (yet), but as someone who is diagnosed with ET I can reassure you that there definitely is an emotional component to this. Whenever I experience anything slightly emotional, my body gets out of control big time and it affects my entire body including my voice. I highly recommend seeing a doctor for this though. I am still moved by my doctor's reaction, and now I'm trying out meds. :) all the best to you!
I can say as someone who has ET (as well as my brother and father), when we were at my father's funeral, sitting next to each other and of course very emotional, my brother and I had the worst shaking we've ever experienced! We also have CMT (Charcot Marie Tooth) disorder which is an inherited peripheral neuropathy caused my mutations in the genes involved in the myelin sheath around nerves. Wonder if anyone else w ET here also has CMT?
Thank you SO MUCH for a great talk about ET which I have. What do you do if you are adopted and you don’t know first line relatives? Plus I’m 61 so they’re most likely deceased by now.
I have had ET my whole life, and although I never had luck with the standard medication or even gamma knife brain surgery I was pretty good at hiding my struggle with tremors. I hated complaining or people feeling sorry for me, but now I am 35 and back at my parents dependent on them and with no idea what I will do when they die. It feels as though I succeeded in making my friends and even close family believe that my tremors are a "benign", but now I realize I really need help and for these people to realize how serious this is and that I am not just lazy.
@@usamashahzad6029 life is a struggle, I have figured out techniques like many of us have to cope with the tremors and also I have constructed mechanisms to help steady my hand while doing things like soldering.
My son has a anoxic injury from a 15 minute hypoxic cardiac arrest and has ET. Cannot cut food and wondered if adaptive or weighted utensils are more helpful. Also so much help from you. Thank you. Everything you have mentioned he has challenges with. Diagnosed with LAS myoclonus and ST memory, less than one minute and unable to write. He has always been and still is motivated but neurologists now say to me...since its anoxic and 2 years post cardiac arrest nothing else can help memory, word loss and essential tremors. So I have become his historian and secretary! Thank you for taking your time to help us.
Iam 25 years-old .i have been suffering by Essential Tremor . Your have given good explanation of ET. Could you cure ET ??? Is there no medicine for ET?!
I have little doubt you are well qualified to present the information. I enjoyed your sharing the latest research. Sorry for those who love and sell meat that there are negative health relationships to harmene and cooked chicken and beef that are so dramatic. I am an independant person and the vegetarian diet were all being told to follow in 2018 may indeed be the best advice we have at this time but I like fried chicken and steak. :( too. I can imagine how difficult this news is to the beef and chicken lobby. I did not miss out that you said the longer we cook the meats the greater the amount of Harmain.
A. Not everyone has ET so eating meat for them is just fine. No need to bash the farmers B eliminated meat doesn,t help all with ET. C watching this vegan craze and their diet is horrific...terrible. Needs tb done very carefully. Eating lots of refined flour products, high sugar etc is awful.
I was originally turned off by the huge Facebook logo on the thumbnail. But this is the best video on this. I wish my neurologists were as wonderful as this lady
You are heaven sent ❣️I feel as though you’re the only person n the world that gets everything I’m going through 🙏🏼🙏🏼🙏🏼thank you for your existence ❣️❣️❣️💯🙏🏼💯🤓
The ads are so numerous and clicking skip usually doesn't word. I am finding this video unwatchable.
Could we get the links to the research you talked about regarding diet x
I have "essential tremor". Yeah, I can't get a decent doctor about it. Thank you for this info. I can totally relate to ALL of what you are saying, depression and everything! Not a drinker. Can't deal with Gabapentin.
I don’t think they are very essential. They are more nonessential in that they prohibit me from doing anything that requires a steady hand.
Thank you thank you thank you thank you thank you I am so glad I found you that’s an understatement as I’m trying to navigate my way through everything connected with essential tremor. It was a fabulous lecture and I’m so grateful to you I wish I could write you
Thank you for your love for people.
I've been wondering: why is it referred to as "essential" ?
The bare “essentials” - no external cause. Idiopathic or ,,,, caused by normal. brain
Because it is essential that the muscle is activated for it to tremor. In Parkinson's, the tremor is active when the muscle isn't being used.
The other dude who replied is wrong. Essential in medical terms means unknown cause. Hence an essential tremor
Relative to diet.... can a particular diet reverse or suspend the effects or progression of ET.
Sooo informative! Thanks for posting this talk on ET. I will be following your future posts!
How does essential tremors effect your head temors
Thank you! Please keep posting more info on ET, it helps. I love the last bit on nutrition. Have you seen the research on the Keto diet and it's positive effects on PD. Could this help us with ET? Thank you again!
www.icfyb.com/gut/
You might like this!
I was diagnosed with ET and taking gabapentin. I didn't know how it affected me.
.if there was an adverse effect I see
Med to have it.I realized this after catching a small part of your talk.Looking into it I saw that brain fog had truly made my life miserable! I am going to discuss getting off this with my Dr. ASAP. Thank you.
12:32 “If you’re working on writing some checks to pay the bills…” LOL, that’s kind of old school right there!
I think it’s cute in other videos where she talks about writing checks too! No seriously Dr. Sullivan is one of the greatest resources I’ve had in navigating these mysterious symptoms that I’ve seen crop up only the last year. Thank you SO much!
Keep it up I enjoy this as a student ,,,,but no links posted
Well done talk. Thank you.
Help! I watched a long video ( I’ve watched most of your videos) and this one was quite long and it discussed many of the “other” tremors not just hand, voice but internal tremors etc. I CAN’T FIND IT AGAIN. I recall you saying this is going to be a long one and if memory (which is as you know affected) serves me it was about 57 min long. Thought I saved it but can’t find it. I actually broke down and cried half way through because I felt like “finally someone get’s it! I could even see a change in him as he watched it. I have just finished all the testing for DBS candidacy and (story of my luck) the day before the committee was to meet the pandemic caused all elective surgeries would be canceled so the committee did not meet. Your video did have so much impact on me that I actually called the neuropsychologist that did my evaluation (5 hours) and asked for a brief follow-up appointment to discuss his report/findings. Anyway,if any of this is sounding familiar I would appreciate the name or link to that video. I want to watch it again and forward to a few people as well. Thanks for all you do! Cheryl Garrett/aka Bubby
A complete of all of our lectures can be viewed here on our TH-cam channel: th-cam.com/channels/GXSvK4ZARrlLn5x_c7kz-g.htmlvideos?view_as=subscriber
Thanks so much! I think this is the one! But will let you
Okay, your video and the info you give is so awesome BUT, I have a rubral tremor. I have PMS…progressive multiple sclerosis… I’ve had DBS which has lessened but not rid the tremor. what more do you have for me, here?
Check out our upcoming ET Webinar at www.icfyb.com/webinaret/
Thank you so much for this helpful information about ET and the other symptomatic things of it! It helps me a lot to understand the disease! Lovely greetings from Sarah and stay blessed and happy and healthy in these times right now and take care of you 🙋♀💖👌👍🤗
💖💗😍💖💗😍💖💗😍💖💗😍💖💗😍
Thank you for the education.
You talk about the "highly soluble compound" collecting in the brain -- fat soluble? Because otherwise a "highly soluble compound" (water soluble) should pass in the urine.
I wish there was a cure for it . :(
Science keeps moving forward, there will be one day. Hang in there my friend.
Ultrasound ( deep brain stimulation )therapy & cbd oil capsule supplements. 💜🥁🐉🎤🎶💞
@@spark_6710 do you have any preference for CBD oil capsules supplements?
Does exercise help?
Dr. Sullivan is excellent. Here is Michael Gregor’s Nutrition Facts link: nutritionfacts.org/video/essential-tremor-and-diet/
I am quitting smoking seems because smoking raises blood I m experiencing low mine has always tended to be low making it worse
Hi Dr. Sullivan...it is 2022 now, anything new? How are the new treatments after 4 years? Any hope and good news? I truly love you the way you talk from your heart you are so caring and loving and conscientious Dr.....I am a 66 years old with ET for many many years....but just found out couple of years ago that I had ET...before I didn't know why I was shaking...it is very hard to live like this and you know better than me....couple of years ago my doctor put me on medication but didn't help me...is there anything you can help me with I am so desperate sometimes that I don't even want to live anymore....please if anyone can help me I am begging you all...love you all and God be with you all......tony from New Jersey....thanks
Thank you so much. I'm educating myself and my granddaughter. We're having very frank discussions. I have had ET virtually my entire life. She also had relatively early onset, but milder tremors. Both my sister and I had mood symptoms where mood to go to Flashpoint in a second with no time to think it through. Propranolol gave us both breathing time, the ability to make a thoughtful decision. Adrenaline no longer was in complete control. I don't know if others have that same reaction. I'd like to know about that. Thank you again for caring. So many professionals dont.
Wow- such great information. Spot on with word finding problems. Thank you kindly for your presentation.
My essential tremor, which I have had constantly for years, was bad enough that my handwriting became that of a very old person. For other purposes, I began taking resveratrol and coincident to taking it my tremor reducesd significantly. When I don't take it for a few days the tremor seems to return.
Finally someone is understanding what we are going threw I won't go to a nerolgist or physcoligst for Thay just send you to mental health frustrated with Dr
Does ET have an emotional component? When I am dealing with an emotionally charged situation it often seems exaggerated and includes tremors beyond what I usually experience. (I have not been diagnosed with emotional dysregulation or any related disorder.)
I am not a doctor (yet), but as someone who is diagnosed with ET I can reassure you that there definitely is an emotional component to this. Whenever I experience anything slightly emotional, my body gets out of control big time and it affects my entire body including my voice. I highly recommend seeing a doctor for this though. I am still moved by my doctor's reaction, and now I'm trying out meds. :) all the best to you!
al a Thank you, the insight you shared is very helpful!
I can say as someone who has ET (as well as my brother and father), when we were at my father's funeral, sitting next to each other and of course very emotional, my brother and I had the worst shaking we've ever experienced! We also have CMT (Charcot Marie Tooth) disorder which is an inherited peripheral neuropathy caused my mutations in the genes involved in the myelin sheath around nerves. Wonder if anyone else w ET here also has CMT?
What is your thinking on Botox injections in the forearms?
Thank you SO MUCH for a great talk about ET which I have. What do you do if you are adopted and you don’t know first line relatives? Plus I’m 61 so they’re most likely deceased by now.
Check if your hypermobile
Thank you for the information. I eat a LOT of chicken!
I have had ET my whole life, and although I never had luck with the standard medication or even gamma knife brain surgery I was pretty good at hiding my struggle with tremors. I hated complaining or people feeling sorry for me, but now I am 35 and back at my parents dependent on them and with no idea what I will do when they die. It feels as though I succeeded in making my friends and even close family believe that my tremors are a "benign", but now I realize I really need help and for these people to realize how serious this is and that I am not just lazy.
Hey bro if anything just know you're not alone with this. It's very real and a terrible thing to live with idgaf what anyone says
How you are doing now ?
Gosh...was looking into gamma knife treatment
@@alexandrawhitelock6195 how old are you?
@@usamashahzad6029 life is a struggle, I have figured out techniques like many of us have to cope with the tremors and also I have constructed mechanisms to help steady my hand while doing things like soldering.
Please include citations. You can put the links in the description
When I say citation, I mean a credible peer-reviewed medical journal.
My son has a anoxic injury from a 15 minute hypoxic cardiac arrest and has ET. Cannot cut food and wondered if adaptive or weighted utensils are more helpful. Also so much help from you. Thank you. Everything you have mentioned he has challenges with. Diagnosed with LAS myoclonus and ST memory, less than one minute and unable to write. He has always been and still is motivated but neurologists now say to me...since its anoxic and 2 years post cardiac arrest nothing else can help memory, word loss and essential tremors. So I have become his historian and secretary! Thank you for taking your time to help us.
😊
My Ultrasound cured it
Catherin Hepburn
Social anxiety and head shaking how i end this pls
Thanks!
excellent
Iam 25 years-old .i have been suffering by Essential Tremor . Your have given good explanation of ET. Could you cure ET ??? Is there no medicine for ET?!
Primidone
Targeted ultrasound. Deep brain stimulation.
@@alexandrawhitelock6195 Thank you 😍
Yes,ultrasound, deep brain situmulation therapy ,also cbd oil capsul.💜🥁🐉🎤🎶💞
Can u see Et on mri
I have little doubt you are well qualified to present the information. I enjoyed your sharing the latest research. Sorry for those who love and sell meat that there are negative health relationships to harmene and cooked chicken and beef that are so dramatic. I am an independant person and the vegetarian diet were all being told to follow in 2018 may indeed be the best advice we have at this time but I like fried chicken and steak. :( too. I can imagine how difficult this news is to the beef and chicken lobby. I did not miss out that you said the longer we cook the meats the greater the amount of Harmain.
Lost Hero so what does the research really say?
A. Not everyone has ET so eating meat for them is just fine. No need to bash the farmers
B eliminated meat doesn,t help all with ET.
C watching this vegan craze and their diet is horrific...terrible. Needs tb done very carefully. Eating lots of refined flour products, high sugar etc is awful.
Turn your phone please. Vertical video is annoying.