The case of the disappearing essential tremor

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  • เผยแพร่เมื่อ 27 ส.ค. 2017
  • Professor Wady Gedroyc and his colleagues at St Mary’s Hospital cure Dinesh Kotecha’s debilitating tremor.

ความคิดเห็น • 138

  • @artn2950
    @artn2950 หลายเดือนก่อน +4

    I had this exact procedure done in southern California in June 2021. After the procedure was completed and I got dressed, I could not walk. The doctor disappeared and I never saw him again. When I got home, it was time to go to the bathroom. I had to crawl to the bathroom. When I was finished, I tried to get up, but I instantly fell onto the toilet. Then once I got myself un entangled from the toilet, I had to crawl back to my bed. The next day was my follow up with the doctor. He was nowhere to be found. I was only met by the department administrator and a physical therapist. The long and short of this procedure was but I sustained a stroke and absolutely no improvement in my tremors. The ultrasound waves were so strong that they literally bounced around on my forehead because they were too strong. Again, the only thing I got out of this procedure was a stroke, no improvement of my ET and a bill for $1250!

  • @nafs53
    @nafs53 6 ปีที่แล้ว +25

    I have ET to a slight degree and take tablets to keep it in check. I hope that this proceedure goes worlwide and becomes available to everyone who needs it....🙏

  • @thepict837
    @thepict837 4 ปีที่แล้ว +7

    That is fantastic. I totaly understand the appreciation of the patient, it really brings about an amazing boost to quality of life.

  • @markmesses9624
    @markmesses9624 6 ปีที่แล้ว +14

    My brother who now is 30 suffers from ET, hands and head. It's so painful to watch him picking up a glass with two hands, and the more people look at him, the worst his tremor goes. A month ago in Verona (Veneto region) in the main hospital, a machine like this one was installed, and I hope that something for my brother will change, like for the man in the video. A big encouragement to all the people who is suffering from this.

    • @rattmotor9865
      @rattmotor9865 3 ปีที่แล้ว +1

      @ Mark Messes any help for your brother? Thanks

  • @KishanKotechaArtist
    @KishanKotechaArtist 5 ปีที่แล้ว +55

    This is my father and I can say the treatment has been life changing. I watched the entire procedure and it's a medical miracle in my opinion. He is so much better and has his life back. Dr Peter Baines is just awesome at St Mary's hospital. I hope they approve under the NHS for all patients who are suitable for it.

    • @sharifwalo4257
      @sharifwalo4257 5 ปีที่แล้ว +4

      how much does it cost? I have essential tremor and i am suffering

    • @sudhirwankhade3932
      @sudhirwankhade3932 5 ปีที่แล้ว

      Mam is this treatment available in India...nd how much does it cost?

    • @beahansen3581
      @beahansen3581 4 ปีที่แล้ว +1

      I am so happy for your father. I myself am suffering from Essential Tremor. But unfortunately, we don't have this treatment in Denmark. Congratulations to you all, the whole family. It is a miracle. Your father deserves the best life he can get.

    • @govardhanvennu1661
      @govardhanvennu1661 4 ปีที่แล้ว

      Hello sir could you please reply about the cost and is it available in india?

    • @alnawabalnawab5231
      @alnawabalnawab5231 3 ปีที่แล้ว +1

      Can you talk to your father on whatup about the operation you performed? I suffer from the same disease and I hope to relax from this thing that hinders my daily life. I hope to talk to you. My number is 006947717855743

  • @acohen3951
    @acohen3951 5 ปีที่แล้ว +13

    For severe cases of ET, this may be the future of treatment. Kudos to the doctors who designed and implemented this treatment.

  • @mirko85
    @mirko85 6 ปีที่แล้ว +10

    Incredible! Greetings from Argentina, hoping this procedure becomes a worldwide phenomenon.

  • @lmeadows8276
    @lmeadows8276 2 หลายเดือนก่อน +2

    My heartnached for.this man and his caring family. It seems that the Doctors could have avoided unnecesary pain in the beginning. Best wishes to this family.❤

    • @janettedavis6627
      @janettedavis6627 หลายเดือนก่อน

      I have Essential Tremor for years It has become much worse this year. I was at hospital recently and the Doctor noticed it. I told him I hope to get the procedure done. He knew nothing about the procedure. He never heard of it. 🥰🥳😇🌹⛽

  • @Straightdeal
    @Straightdeal 2 หลายเดือนก่อน +4

    These days those horrendous screws aren't used.

  • @kokoono7543
    @kokoono7543 4 ปีที่แล้ว +5

    That is amazing. I suffer from the seem this video proves to me that it can be treated. Thanks

  • @skinnynappyheadedchannel5961
    @skinnynappyheadedchannel5961 6 ปีที่แล้ว +4

    That's a blessing

  • @tonyrae9453
    @tonyrae9453 6 ปีที่แล้ว +4

    Amazing!!!

  • @rosylalnunpuii3813
    @rosylalnunpuii3813 4 ปีที่แล้ว +7

    I hope they can treat voice tremor too.... Its so frustrating to have voice tremor too.... It effects our personality it made me timid and lose my confident most of the time and i also dread talking on the phone..... Im so happy for mr.dinesh cos i can relate what he gone through tho our tremor is not same

    • @MuhammadAbdullah-pw1dw
      @MuhammadAbdullah-pw1dw 3 ปีที่แล้ว +2

      Happens with me too sometimes, and this is why I lose confidence.. People think we get nervous, but actually it is a combination of nervousness and tremors

    • @rosylalnunpuii3813
      @rosylalnunpuii3813 3 ปีที่แล้ว +2

      @@MuhammadAbdullah-pw1dw yes exactly. Whenever we have to make a speech our mind wonders if our voice is going to shake that makes us nervous a bit. Then when the actual speech making comes the combination of both makes us mess things up. Its so frustrating sometimes

  • @stevenchapple8987
    @stevenchapple8987 3 หลายเดือนก่อน +6

    I went through this procedure. It was wild what I experienced. During the procedure I saw lights and stars. It was an unearthly experience. The tremor in my left hand has almost disappeared. But it did nothing for the restlessness I feel throughout my body. It’s like having the chills constantly. My ability to cope with this is worse than the tremors. I can’t sleep because I feel the anxiety going through my veins constantly. This is a condition that is highly related to ET. What can we do about that because it’s driving some of us with this condition insane.

    • @abrarangel5706
      @abrarangel5706 หลายเดือนก่อน

      how do you feel right now

    • @stevenchapple8987
      @stevenchapple8987 หลายเดือนก่อน

      @@abrarangel5706 I have found a physical but rewarding job and that in itself has helped a lot. I’m tired when I get home so I sleep better. I feel better than I have in years. I’m in better physical and mental condition. I hope others find this procedure helpful for them. But it’s not the total fix for the condition. Working hard and good coping skills has contributed tremendously to helping with this condition. The tremors and other symptoms don’t make you useless in life. Stay active and persue life in a positive way. This will help you more than any medication they can give you. Stay strong and don’t give up.

  • @aaliya4221
    @aaliya4221 3 ปีที่แล้ว +1

    Wonderful. 💯👏

  • @INANYMIN
    @INANYMIN 3 หลายเดือนก่อน

    This is great ,was hoping to have this non invasive procedure but found out this only helps with hand tremors ,not head or voice

  • @marielevine5624
    @marielevine5624 ปีที่แล้ว +4

    I had this procedure done and it only lasted about 10 to 12 months. i hope it works better for him.

    • @FlyingIgoy
      @FlyingIgoy 5 หลายเดือนก่อน +1

      What is the name of the treatment or procedure?

  • @janettedavis6627
    @janettedavis6627 หลายเดือนก่อน

    This procedure works for Parkinson's disease too. It should be tried on all people with Motor Neurons. ❤

  • @AmusedBanyanTree-eo4lt
    @AmusedBanyanTree-eo4lt 8 หลายเดือนก่อน

    Good job

  • @janettedavis6627
    @janettedavis6627 หลายเดือนก่อน

    This procedure has been carried out in Australia for years now. St Vincent's hospital does it. I think a Melbourne University first discovered it. 🥰☘👍

  • @Withchongloi
    @Withchongloi 5 ปีที่แล้ว +6

    I'm longing for this treatment.ET make my life miserable.😢

  • @colefox2882
    @colefox2882 ปีที่แล้ว +2

    Hate how they don’t mention it only works on one “hand” not side of the body and only lasts at most 3 fucking years before everything goes back to shit 😭

    • @FlyingIgoy
      @FlyingIgoy 5 หลายเดือนก่อน +1

      Understand this is still under study/experimental

  • @mtavakoli
    @mtavakoli 2 หลายเดือนก่อน

    How is this nice man doing today?

  • @christopherivuti4079
    @christopherivuti4079 20 วันที่ผ่านมา

    This is very good, i have this problem, how can you treat me Doctor?

  • @rockyraccoon6861
    @rockyraccoon6861 3 ปีที่แล้ว

    Amazing

  • @gwenakom8619
    @gwenakom8619 3 หลายเดือนก่อน

    My husband has severe tremors, he is ready for this surgery. In the US they only do one side of the brain at a time.

  • @neilwerbeloff1215
    @neilwerbeloff1215 4 ปีที่แล้ว +2

    Excellent!! Do they do this procedure in Australia?

  • @Gemby13
    @Gemby13 2 ปีที่แล้ว

    I want this treatment 😭

  • @gwenakom8619
    @gwenakom8619 3 หลายเดือนก่อน

    Has this lasted so far?!we were told this wouldn’t last much more than 15 years.

  • @rshekar5800
    @rshekar5800 2 หลายเดือนก่อน

    Great

  • @rashidmehta2743
    @rashidmehta2743 ปีที่แล้ว

    Hi, I suffer from this and would really like someone to guide, recommend how I can source this treatment either on the NHS or independently. Thanking all in advance as it is becoming really challenging as the days go by.

  • @yogimaster1
    @yogimaster1 5 ปีที่แล้ว +3

    I wonder if proteolytic enzymes can do the same thing this procedure does to the brain. I've read that proteolytic enzymes in sufficient quantity can pass the blood-brain barrier.

  • @alexandrawhitelock6195
    @alexandrawhitelock6195 3 ปีที่แล้ว

    This is being done in the US…but is approved only for 1 side…

  • @DeepaSavithiriSukumaran
    @DeepaSavithiriSukumaran 6 ปีที่แล้ว +3

    Hi there, I can relate to as my mother has the same ET and parkinson, with ET will there ca be an end to Parkinson as well, without any sideafftects

  • @brucedraney2508
    @brucedraney2508 5 ปีที่แล้ว +2

    my wife had the old surgery for ET can she have this surgery now

  • @deveshmudgal2394
    @deveshmudgal2394 3 ปีที่แล้ว +1

    Please help me.......answer the surgery name.....cost of surgery

  • @rattmotor9865
    @rattmotor9865 3 ปีที่แล้ว

    Any updates? Is this available in US? Thanks!

  • @mohammadranjbar7437
    @mohammadranjbar7437 5 ปีที่แล้ว +1

    I need for focus ultrasound dystonia.my live in iran my city in shiraz

  • @deveshmudgal2394
    @deveshmudgal2394 3 ปีที่แล้ว +1

    Pls reply....surgery name, which surgery he do

  • @bEeP_bOoP....
    @bEeP_bOoP.... 5 หลายเดือนก่อน

    Mums had tremors for years or so. Gp has never mentioned this to her, only drugs, or botox.

  • @LindaPow
    @LindaPow 4 ปีที่แล้ว +2

    Family do you see any kind of effect or changes to your father... for instance sluring speech etc etc?

  • @OkWonderOrWander
    @OkWonderOrWander 6 ปีที่แล้ว +1

    I am Arvind 51 years old and suffering from Ataxia SCA12. Have lots of problem of tremors and hand, wrinting tremors and tremor in tongue which effected my voice quality. Can my problem be cured or can improve my personal and social life??

  • @Monchito129
    @Monchito129 5 ปีที่แล้ว

    Would this work for patients with essential tremor caused by Multiple sclerosis?

  • @wileyearly4831
    @wileyearly4831 5 ปีที่แล้ว +6

    What is the effectiveness of this treatment years in the future?

  • @roncraven7701
    @roncraven7701 5 ปีที่แล้ว +1

    Anyone here get this done? results?

  • @jbengalivlogs
    @jbengalivlogs 3 ปีที่แล้ว

    Is it still he life

  • @valeriemartini6315
    @valeriemartini6315 4 หลายเดือนก่อน

    But, how long does it last?

  • @pattykauth2431
    @pattykauth2431 4 หลายเดือนก่อน

    Can this be used after having a dbs implanted?

  • @balletmeisterin
    @balletmeisterin 6 ปีที่แล้ว +3

    I expect that this wasn't available on the NHS in the UK. What wasn't revealed was the cost of this procedure if done privately. Could Mr Kotecha's family comment on the cost?

    • @KishanKotechaArtist
      @KishanKotechaArtist 6 ปีที่แล้ว +2

      balletmeisterin hi there. My father had it free as part of the trial under NHS. The treatment is in the process of being approved- look in to it as NHS now provide it

    • @sportspro2840
      @sportspro2840 5 ปีที่แล้ว

      Kishan Kotecha hello sir how is he doing now does the tremor returned back

    • @KishanKotechaArtist
      @KishanKotechaArtist 5 ปีที่แล้ว

      He is doing so so well and is life changing for him

    • @besartzejneli6313
      @besartzejneli6313 4 ปีที่แล้ว

      K Kotecha hello, adress of hospital, and city pls?

    • @govardhanvennu1661
      @govardhanvennu1661 4 ปีที่แล้ว

      Sir, Let me know this can be done for both hands? I stay in india also want to know is this procedure available in india?

  • @trilabradorable
    @trilabradorable 4 ปีที่แล้ว +3

    Is this performed in the US? If so, where?

    • @stephanieann6622
      @stephanieann6622 3 ปีที่แล้ว +1

      They did say it's not really performed in the UK that hes one of the first patients so the US may be where it originated. I've been waiting to hear them give this procedure a name so I can look it up

  • @user-ru7vm9jn2d
    @user-ru7vm9jn2d 2 ปีที่แล้ว

    Great, but I didn't understand what this procedure? what It’s called? and its mechanism of action.

    • @avonloma5819
      @avonloma5819 5 หลายเดือนก่อน +1

      It’s called Focused Ultrasound Ablation, i believe.

  • @andrewcosten
    @andrewcosten 2 ปีที่แล้ว

    Wow

  • @lindahe8195
    @lindahe8195 6 ปีที่แล้ว +2

    does this technology work on head tremor? i really need the answer, please.

    • @lindahe8195
      @lindahe8195 6 ปีที่แล้ว

      Jovem Escritor thank you very much.

  • @Hautecakes90210
    @Hautecakes90210 6 ปีที่แล้ว +4

    Who does this procedure in the USA ?

    • @susannebergstrom9129
      @susannebergstrom9129 6 ปีที่แล้ว

      DaBratt
      This is a trial study done in 5 cities theyre being done now too.... Toronto, israel go to clinicaltrial. Gov

    • @shamong9
      @shamong9 5 ปีที่แล้ว +2

      University of Penn. in Cherry Hill NJ.

  • @nitin98goodyear
    @nitin98goodyear 4 หลายเดือนก่อน

    Plz share hospital location and dr. Name. I m and my brother is suffering from all tremor. #Request

  • @karenwhitehead2260
    @karenwhitehead2260 6 ปีที่แล้ว +1

    This is what I am suffering from but not to the extent of this gentleman it happens when I tilt my head back it's in my hands and legs and arms I wear make up and have noticed in this last few months I cannot put my eye make up on for the tremors..I have an impacted left wisdom tooth on the upper jaw and are waiting to have it removed I will be interested to see if my tremors improve after the extraction thanks for this video..👍🏻👍🏻👍🏻👍🏻

    • @jennifercaskie9751
      @jennifercaskie9751 5 ปีที่แล้ว

      karen whitehead I have the tremors also. I noticed when I could not do my eyebrows during make up. I got them micro bladed.

    • @lisad82
      @lisad82 4 ปีที่แล้ว

      please post yiur result

  • @psychojustin3064
    @psychojustin3064 3 ปีที่แล้ว +1

    What the hell is this ... Can we cure this ????? Permanently ????

  • @ChidambaramC
    @ChidambaramC 6 ปีที่แล้ว +3

    I have essential tremor. Is this available in India? I need this treatment really bad.

  • @tracyforsythe5757
    @tracyforsythe5757 3 ปีที่แล้ว +1

    Can anyone please tell me the approximate cost of this procedure in US dollars? I can't imagine anything but very expensive PPO insurance plan covering this

    • @stephanieann6622
      @stephanieann6622 3 ปีที่แล้ว

      You'd have to google it. If doctor finds necessary you can probably be approved by any insurance to cover it. Just like with my breast reduction. Its typically seen as a cosmetic surgery so they dont normally pay for it but because my general physician is stating its necessary I get it done, they approved it.

    • @KishanKotechaArtist
      @KishanKotechaArtist ปีที่แล้ว +2

      It was free my father had it in the UK at the hospital as they were doing research. I believe it may have been approved by NHS now but its best to check with them

    • @ethnagiles4197
      @ethnagiles4197 ปีที่แล้ว

    • @JenJen0582
      @JenJen0582 4 หลายเดือนก่อน

      @@KishanKotechaArtist what is the name of the procedure? I am so glad that it helped your father! My sister really needs this treatment.

  • @user-wf4jz5cs6v
    @user-wf4jz5cs6v 7 หลายเดือนก่อน

    The result is permamnant??

  • @deveshmudgal2394
    @deveshmudgal2394 3 ปีที่แล้ว

    Is this dbs surgery pls reply

  • @pankajhajare7287
    @pankajhajare7287 5 ปีที่แล้ว

    Please let me know if the treatment is available in INDIA.

    • @sudhirwankhade3932
      @sudhirwankhade3932 5 ปีที่แล้ว

      I am having essential tremor since 20 yrs...nd whatsapp group of people who is suffering this.

    • @govardhanvennu1661
      @govardhanvennu1661 4 ปีที่แล้ว

      Did you guys found this technology in india?

    • @alnawabalnawab5231
      @alnawabalnawab5231 3 ปีที่แล้ว

      @Дмитрий Кирсанов hi
      How Much Does Ultrasound Use to Treat Severe Tremors
      Can tell my
      009647717855743what up
      Pls

  • @16borabora
    @16borabora 5 ปีที่แล้ว

    I want this treatment but I can not afford it

    • @16borabora
      @16borabora 5 ปีที่แล้ว

      I'm younger patients

    • @16borabora
      @16borabora 5 ปีที่แล้ว

      Lucky one I want to be a volunteer please

  • @nitin98goodyear
    @nitin98goodyear 4 หลายเดือนก่อน

    Plz sir. Plz tell

  • @roqofort5110
    @roqofort5110 5 ปีที่แล้ว

    What's this procedure called?

    • @winternight2038
      @winternight2038 4 ปีที่แล้ว +1

      I wish they would answer your question ,I want to know also

    • @sajanbookshop7496
      @sajanbookshop7496 3 ปีที่แล้ว +2

      @@winternight2038 u still wanna know?

    • @avonloma5819
      @avonloma5819 5 หลายเดือนก่อน

      Focused Ultrasound Ablation

    • @JenJen0582
      @JenJen0582 4 หลายเดือนก่อน

      @@avonloma5819 thank you!

  • @KishanKotechaArtist
    @KishanKotechaArtist 6 หลายเดือนก่อน +3

    Tremor has not returned

    • @billbyland6599
      @billbyland6599 4 หลายเดือนก่อน

      Have there been any other issues related to the procedure? Thanks

    • @denachubbic9494
      @denachubbic9494 3 หลายเดือนก่อน

      That is wonderful!

  • @niravsiddhena2787
    @niravsiddhena2787 5 ปีที่แล้ว

    Cost of this operation? Anyone in india doing this?

  • @josejoelramostanca4897
    @josejoelramostanca4897 5 ปีที่แล้ว +1

    The effect of this treathment is permanent?

  • @sasavoj
    @sasavoj 4 หลายเดือนก่อน

    I don't believe this. I have it and study about it. There is no cure

  • @kontopoulos3107
    @kontopoulos3107 6 หลายเดือนก่อน

    Shaking hand, dont grab wrist, just place other hands fingers on shaking hand (wont stop just steady it) ❤️‍🩹

  • @truthseeker.108
    @truthseeker.108 6 ปีที่แล้ว +2

    Amazing