I can't imagine doing that to someone either! But it's happened to me a lot and I've heard of it happening to a lot of other people too :/ You're welcome, thanks for watching! :) xx
@@GeorginasJourney A sibling of mine (who's actually older than me) calls me a "diva" and a "hypochondriac" just because she refuses to come to terms with the fact that I am indeed sick, and I got sick so suddenly that she can't wrap her head around the fact that one little tiny thing can start an immediate and furious cascade of severe chronic symptoms, even when multiple people have tried to explain it to her, and that me getting sick means there have had to be drastic changes made at their house in order for me to not get 10x worse when I'm there (chemicals, mold, and humidity galore have had to be remedied). I honestly wish I could cut her out of my life (at least for the most part for a while), but she still lives with my parents, so I have to deal with her every time I visit them, which is at least twice a year and usually for 3+ weeks at a time. The two of us haven't been close by any stretch since before she finished elementary school, and my going to college out of state (then moving 1,000 miles away from home after graduation) just made her even more set in her ways. I honestly can't tell if she just doesn't care, or if she's secretly scared that it could happen to her and so she's insisting on denying that it has happened to me in order to convince herself that it couldn't possibly happen to her - there are very rare occasions when she seems to truly care and understand, but the rest of the time she's in complete denial and honestly couldn't care less. Thankfully, my best friends all get it and don't mind that it's a factor in my life that wasn't there before. And my illnesses don't keep me from doing the things I love the most (including riding horses and acting), so it's not usually a problem (I still have to pace myself, but I cut all the unnecessary things out 2 years ago, so I have less on my plate to begin with)., and as long as I take the time I need to rest, I'm good).
SnowySpiritRuby I’m sorry to hear about your sister, can you find some information about your condition from a reputable source online and send her that? Reading about it from a factual and reputable source may be the best way for her to understand this & it’s what I’ve had to do for a couple of people in my life. I’m in the UK, so a screenshot from the NHS website is what I tend to use and that generally really helps the situation. And I’m glad your friends get it and that you’re able to carry on with those activities, especially as they require a lot of energy and physical ability, that’s really great to hear :)
One more to add for the young adults: You will struggle to find a job/complete your schoolwork and feel guilty about the financial burden you're putting on your family. I went from the dean's list to academic probation and had to drop out. You aren't a failure if you can't keep going at the pace you were before. Don't listen to anyone that says you 'aren't trying hard enough'. You're doing your best and that's all you need to do.
This one hit me hard. In England there are a lot of accommodations for disabled university students that can make university manageable, but school was a nightmare for me (& I definitely felt like a financial burden too) & I can’t find any work that has low enough hours for me :/
Hey Georgina😊 I agree with absolutely everything you said. Loosing my old very active self feels like a bereavement. Oh yes and the “you look really well” type observations, well yes I do but on the inside it’s a very different story. So true. I people watch, and as you quite rightly say I’m watching them walking feeling envious and wishing I could be like that. You hit upon some amazing and very true points there Georgina. What a lovely video, thank you for sharing.
Neil Bradley Hi 😊 I’m sorry you could relate to a lot of this, the grief and the envy are not easy to deal with. But I’ve found that as my health gets worse, my ability to cope gets a bit better. Keep hanging in there :) You’re welcome, thank you for watching :)
I totally relate to most of these, like becoming an expert on your illness. You have to do most of the research sometimes because you know a doctor won't tell you everything you need to know... I have a kind of different perspective on why I can't have friends, though. Even with really nice people, I am always so exhausted that I can't hold a conversation due to chronic fatigue and brain fog. If I dare make plans, I usually have to cancel them. I'm in college and I use up all my time and energy on classes, maintaining my health, chores and in my spare time I sleep or watch TH-cam. I've done as much research on my illness, time management and coping techniques as I could possibly manage but it's not enough. Sadly, having fun or socializing is kind of last on my list of priorities :(
You are a smart and beautiful young woman, thank you for sharing your experience, I'm sure a lot of us who have a chronic illness can relate. I have been with chronic illness for the past 20 years and it has been a ride!!! Not what I expected but along the way I have encountered amazing people. All that I can say is DON"T STOP DREAMING.
I have had trouble with doctors believing. I have lost friends too, which unfortunately has made me loose faith in people. Have been bewildered at some of the shallow uneducated things that have been said to me over the years in regards to my eds. However the people who are left are usually more genuine and also willing to give assistance. It is sad though how many people judge a book from it's cover. Especially when invisible illnesses are involved.
@@SaturatedCat I'm just a little baffled how shallow some people can be. I've recently lost another (so called) friend recently. Right as I'm going through the worst curveball eds has thrown at me ever. I've spent the last twelve months in chronic pain and even the doctors don't believe me. It can be super frustrating at times.
@@SaturatedCat currently my biggest issue is a tendon/muscle That has somehow shifted in my jaw. (Believe it or not the damage was caused by a soggy gravy coated chip) I've spent the last twelve months hitting walls everywhere. It's effecting my eating, my sleep and I permanently feel like my ear is going to explode along with a whole lot of other issues. Some of which were causes by my medications. I have recently got off targin/endone because of addiction problems from prolonged use. Id prefer to be in pain than on legal smack.
@@SaturatedCat your a kind soul, big thanks. My knee just went so it's taken focus off the jaw. Will definitely be having one now. Knock on wood my next doctor appointment can actually help. Big fingers crossed there.
Thanks for sharing. I did not have to suffer in my 20’s with my chronic illnesses. I can only imagine how many more times exasperated it must be in your prime of life. My downhill chronic illness started manifesting in my late 40’s. Now at 52 In the throws of it it is not easy, but life my surroundings make it more bearable. Peace to you. Blessings to you in this new year. May you hit your goals and grab your dreams. From one chronic illness suffer to another... hugs.
I found that you don't lose the important parts of yourself and over time, you get better at dealing with it and feel a lot more like your old self, or you create a different, but no less brilliant version of yourself :) You can get through this, always here if you need to talk
I have had this invisible chronic illness for 40 years, and I can easily relate to everything which you have included in your positive and practical video. Three more years have passed since this was posted. I also watched last year's video, so I know that your health has deteriorated further since then. Hoping that you and your family and friends are all OK, with the pandemic now in its second year. All the best of health and life in general, to a very inspiring young woman.
Also you have to fight with doctors to get help, and they often dismiss you without even looking at your body or trying to connect the dots with your symptoms 😅 What was the point of those 7 years of medical school then?! (EDS, CFS, FMD, POTS )
I'm going through the stage of losing people now and it's so hard. My friends keep going out without me and I asked if they could invite me and let me decide whether I can do things or not instead of making that decision for me a few months ago and it's still not happening which is really really bringing me down at the moment :( The healthy people thing definitely gets me to as well, I'm doing my alevels and no one bothers to turn up half the time (mainly in my media, to the extent they're close to kicking everyone but me and one other person off the course) and I get so frustrated because I would give anything to be able to revise etc like I used to. I miss proper eduction so so badly!! (Oh yeah, and then they asked me what's on our test because they didn't go to the mock and it's like 'sorry I don't know because I couldn't go because of my constant passing out'). I love the positive spin you've put on things though, I'm working on always looking for a positive in the most negative situations. I guess some of the positives are that chronic illness will make you more empathetic towards others (which is super helpful for me as I want to go into clinical psychology) and there's such a lovely community of people to talk to so you are never truly alone :)
Thank you! I just wish I could not let it affect me as much but it's seriously getting me down, I just want to feel including for once. It's such a struggle! I'm missing studying like crazy, I need some kind of stimulation but sometimes my illnesses make even reading the textbook too hard! (Although I look about that audiobook website and there's some textbooks on there which could be a great help for me!! I was just wondering how you cope with people looking at you when you use a mobility aid? We're going out for my mum's birthday all day and there's no way I can cope with the standing without passing out and making myself really ill so we're thinking of getting a rollator or a wheelchair if it's really bad but I feel really anxious about anything that will draw attention to me :/ xx
You're welcome :) I hope the audiobook service helps! That's a tricky one, I think it definitely takes some getting used to but I just keep reminding myself that I'm using the aid because I need it and that it isn't my fault :) And you're going to feel so much better for it! It might not be helpful but I also remind myself that fainting in front of everyone would be even more embarrassing than using the aid (and definitely feel 100x worse!). I think it also helps to know that it gets easier and more normal the more you do it and that it's okay for it to feel a bit strange/embarrassing in the beginning :) Another thing that helps me is thinking about how I perceived people who used wheelchairs before I needed one myself- I never once questioned their validity of needing it or thought they looked weird or anything, so it's likely that that's how everyone else will see you :) Good luck with your mum's birthday or I hope it went well if you went already! xx
Hi! It's been really helpful so far, I never realised how much easier listening to an audiobook is compared with an actual book. i find it doesn't drain my energy as much etc so is a lot better with chronic fatigue etc. It went really well actually, I got a rollator and I managed an 8 hour day which I would never have be able to do without it! I got one that converted into a wheelchair so I could have a break when I need which was really helpful. I know it could definitely help me at sixth form but I'm still a bit scared to use it! I think I will though once I got used to it :) xx
Bethany Jade Millin wow, that’s amazing!! Both that you managed such a long day and that you were brave enough to use the rollator! I’m soooo proud of you! And I know exactly what you mean, I still only use my walker and wheelchair outside my hometown as I’m less likely to see people I know 😳 And I’ve still only used them a few times so I’m hoping it’ll get easier and less strange in time too, I think it’s natural to have to build yourself up to the point where you feel comfortable to use it more often :) I’m tired so can tell I’m getting my words a bit jumbled aha, hope that made sense!
I don't blame my friends, I can't socialize with my illness and this is the reason why I don't spend time with my friend anymore, I have friends that still call me after many years (when I was healthy I was very popular)but I always decline their invitation. I also don't want them to visiting me most of the time. I don't even have the energy to talk. If I am with friends I want to have fun too! I miss socializing but I am in surviving mode most of my time so I don't spend too much thinking about things I can't do anymore, I am too busy to figure out how I can shower, cook, tidy up the room. I probabily do in one month what most people do in one day! Thank you for your videos, your tips are very useful, I already applies some of them and they are working!!
lilli I understand that, I was more talking about the people who don’t believe you, rather than your friends who just don’t know how to deal with it 😌 I was in the same situation about a year and a half ago, but am doing so much better now, I still have a lot of down days, but there is hope that it gets better :) Keep hanging in there 💕
@@GeorginasJourney I have a genetic metabolic disorder of the muscles and chronic fatigue is part of it. My illness is invisible but if I have a flare up ( and this can happen very easy) I can't think straight, I vomit and my muscles can't hold my body weight any more so people around me will have to assist me. Some people that doubted about my condition wanted to call the ambulance....so I think the positive fact of my condition is that I can't really hide to people around me for long and if I need to give them a proof I can give them one at any time!I have been watching many videos about people with chronic illness but I think you have a special gift because you don't only share your experience but you also give very useful advises to help people to manage the illness. I am going to watch all your videos and take notes I want in the future do some video for people with chronic illness in Italy. I am Italian and there are not so many Italian video about this subject. I don't know anything about video making, but I am looking forward I think is fun!
I'm sorry you have to deal with all of that, sounds really tough! But I think that would be great if you could make videos for Italian viewers! I would imagine that would have a positive impact :) Good luck with everything :)
I know this is an old video but I would just like to say how much this means to me, I've been dealing with symptoms for chronic fatigue for around a year and a half now but only just got a diagnosis a few months ago. I was watching this video and just felt so overwhelmed because it felt like the first time someone else understood it. I've been struggling with dealing with everything and this just gave me a little burst of hope!
Luckily I’ve always had good health but I did have a subtle psychological problem for many years which prevented me from making proper friendships. - I’ve got out of that pretty well thank goodness ...
Luckily I’ve always had good health but I did have a subtle psychological problem for many years which prevented me from making proper friendships. - I’ve got out of that pretty well thank goodness ...
Luckily I’ve always had good health but I did have a subtle psychological problem for many years which prevented me from making proper friendships. - I’ve got out of that pretty well thank goodness ...
Luckily I’ve always had good health but I did have a subtle psychological problem for many years which prevented me from making proper friendships. - I’ve got out of that pretty well thank goodness ...
Hey, I’m a year into cfs after glandular fever, so I can relate with everything you’ve said. I’ve seen you haven’t uploaded in a while, hope you’re doing well.
wakofish I’m sorry you can relate, it’s so tough, isn’t it? That first year is definitely the toughest though, so I hope you can find a bit of comfort in that. I’m still struggling with a lot of severe symptoms, but now that I’ve been ill for a few years, I can honestly say it’s gets better :) Even if only a little bit & even if you don’t know how or when
I found myself nodding to almost all of that. This video was made a year before my epilepsy diagnosis, but I slowly began to realise that I was already chronically Ill but hadn't noticed all the other things until then!
Thanks for watching! I have a few videos on POTS which you may find helpful, it can get a bit better with time and finding ways to manage it which work for you in terms of both medication and lifestyle changes :)
Just found your channel Loving it so much Since November 2017 I like was told I had CFS This channel is so amazing love it so much Can’t wait to watch more of your videos Agree with all of these Can’t wait to watch more Thinking of doing stuff like this on my channel💖💖💖
Millie Beth thank you so much! 💗😊 I’d love to see videos about your CFS, this illness needs all of the awareness it can get! 😊 Hope you’re as well as you can be x
I guess so, although just because other people have it worse, doesn't make what you're going through any less valid! Mine didn't either but luckily I've found friends who do get it now, which has really helped :) Thank you, you too! x
Distraction can be helpful, I try to find a good tv show or a book that interests me, it's still tough, but helps a bit. And remember that you're not alone
hello i have M.E.to but not that bad ...i have about 3 mates i find funny sometime. this is my best one that people say .....you dont look ill.....i have it 27 years i just live with it just smile at evey day take care
Paul Pope people say that to me a lot too! I’m sorry you’re having to live with it too, but smiling at every day is a really positive attitude to have :) Thank you, you too, hope you’re staying as well as you can :)
The jealously thing is so true, I’d give everything I own to feel normal again
wakofish me too :/ It may never be normal, but I do believe it can get a bit better, so keep hanging in there :)
I can't imagine someone telling me they were ill and me disbelieving them, how dreadful. Thanks for such an eloquent video xx
I can't imagine doing that to someone either! But it's happened to me a lot and I've heard of it happening to a lot of other people too :/ You're welcome, thanks for watching! :) xx
@@GeorginasJourney A sibling of mine (who's actually older than me) calls me a "diva" and a "hypochondriac" just because she refuses to come to terms with the fact that I am indeed sick, and I got sick so suddenly that she can't wrap her head around the fact that one little tiny thing can start an immediate and furious cascade of severe chronic symptoms, even when multiple people have tried to explain it to her, and that me getting sick means there have had to be drastic changes made at their house in order for me to not get 10x worse when I'm there (chemicals, mold, and humidity galore have had to be remedied). I honestly wish I could cut her out of my life (at least for the most part for a while), but she still lives with my parents, so I have to deal with her every time I visit them, which is at least twice a year and usually for 3+ weeks at a time. The two of us haven't been close by any stretch since before she finished elementary school, and my going to college out of state (then moving 1,000 miles away from home after graduation) just made her even more set in her ways. I honestly can't tell if she just doesn't care, or if she's secretly scared that it could happen to her and so she's insisting on denying that it has happened to me in order to convince herself that it couldn't possibly happen to her - there are very rare occasions when she seems to truly care and understand, but the rest of the time she's in complete denial and honestly couldn't care less.
Thankfully, my best friends all get it and don't mind that it's a factor in my life that wasn't there before. And my illnesses don't keep me from doing the things I love the most (including riding horses and acting), so it's not usually a problem (I still have to pace myself, but I cut all the unnecessary things out 2 years ago, so I have less on my plate to begin with)., and as long as I take the time I need to rest, I'm good).
SnowySpiritRuby I’m sorry to hear about your sister, can you find some information about your condition from a reputable source online and send her that? Reading about it from a factual and reputable source may be the best way for her to understand this & it’s what I’ve had to do for a couple of people in my life. I’m in the UK, so a screenshot from the NHS website is what I tend to use and that generally really helps the situation.
And I’m glad your friends get it and that you’re able to carry on with those activities, especially as they require a lot of energy and physical ability, that’s really great to hear :)
One more to add for the young adults:
You will struggle to find a job/complete your schoolwork and feel guilty about the financial burden you're putting on your family.
I went from the dean's list to academic probation and had to drop out. You aren't a failure if you can't keep going at the pace you were before. Don't listen to anyone that says you 'aren't trying hard enough'. You're doing your best and that's all you need to do.
This one hit me hard. In England there are a lot of accommodations for disabled university students that can make university manageable, but school was a nightmare for me (& I definitely felt like a financial burden too) & I can’t find any work that has low enough hours for me :/
Yes I relate! I also found that you can be incredibly sad, ill and in physical pain and be grateful and happy at the same time!
Very true!
Thank you people that do not have chronic illness can’t understand. 🤩🤩🤩💖💖
Hey Georgina😊
I agree with absolutely everything you said. Loosing my old very active self feels like a bereavement. Oh yes and the “you look really well” type observations, well yes I do but on the inside it’s a very different story. So true. I people watch, and as you quite rightly say I’m watching them walking feeling envious and wishing I could be like that. You hit upon some amazing and very true points there Georgina. What a lovely video, thank you for sharing.
Neil Bradley Hi 😊 I’m sorry you could relate to a lot of this, the grief and the envy are not easy to deal with. But I’ve found that as my health gets worse, my ability to cope gets a bit better. Keep hanging in there :) You’re welcome, thank you for watching :)
This made me cry, it was so powerful. Thank you for sharing!
Glad it helped you feel understood 💗
I totally relate to most of these, like becoming an expert on your illness. You have to do most of the research sometimes because you know a doctor won't tell you everything you need to know... I have a kind of different perspective on why I can't have friends, though. Even with really nice people, I am always so exhausted that I can't hold a conversation due to chronic fatigue and brain fog. If I dare make plans, I usually have to cancel them. I'm in college and I use up all my time and energy on classes, maintaining my health, chores and in my spare time I sleep or watch TH-cam. I've done as much research on my illness, time management and coping techniques as I could possibly manage but it's not enough. Sadly, having fun or socializing is kind of last on my list of priorities :(
You are a smart and beautiful young woman, thank you for sharing your experience, I'm sure a lot of us who have a chronic illness can relate. I have been with chronic illness for the past 20 years and it has been a ride!!! Not what I expected but along the way I have encountered amazing people. All that I can say is DON"T STOP DREAMING.
Thank you so much!
I have had trouble with doctors believing. I have lost friends too, which unfortunately has made me loose faith in people. Have been bewildered at some of the shallow uneducated things that have been said to me over the years in regards to my eds. However the people who are left are usually more genuine and also willing to give assistance. It is sad though how many people judge a book from it's cover. Especially when invisible illnesses are involved.
educate the people who matter to you, that's all we can do
@@SaturatedCat eds is erhlos danlos syndrome.
@@SaturatedCat I'm just a little baffled how shallow some people can be. I've recently lost another (so called) friend recently. Right as I'm going through the worst curveball eds has thrown at me ever. I've spent the last twelve months in chronic pain and even the doctors don't believe me. It can be super frustrating at times.
@@SaturatedCat currently my biggest issue is a tendon/muscle That has somehow shifted in my jaw. (Believe it or not the damage was caused by a soggy gravy coated chip) I've spent the last twelve months hitting walls everywhere. It's effecting my eating, my sleep and I permanently feel like my ear is going to explode along with a whole lot of other issues. Some of which were causes by my medications. I have recently got off targin/endone because of addiction problems from prolonged use. Id prefer to be in pain than on legal smack.
@@SaturatedCat your a kind soul, big thanks. My knee just went so it's taken focus off the jaw. Will definitely be having one now. Knock on wood my next doctor appointment can actually help. Big fingers crossed there.
You nailed this! I have nothing to add this is literally everything nobody tells you and it was so nice to know I’m not alone thank you x
Miss Adventure thank you Beverly! And you’re welcome 😊 xx
Thanks for sharing. I did not have to suffer in my 20’s with my chronic illnesses. I can only imagine how many more times exasperated it must be in your prime of life. My downhill chronic illness started manifesting in my late 40’s. Now at 52 In the throws of it it is not easy, but life my surroundings make it more bearable. Peace to you. Blessings to you in this new year. May you hit your goals and grab your dreams. From one chronic illness suffer to another... hugs.
Totally relate, well done for nailing them. It's like being reborn with a whole new identity.
Thank you! And that's so true
i have been suffering from herpes for 6 years now, am so happy that i meet DR Rorpopor herbal on you-tube who cured me totally
I can't handle LOSING the old me!!!
I get angry, at myself , at others being inconsiderate....I HATE IT!
I found that you don't lose the important parts of yourself and over time, you get better at dealing with it and feel a lot more like your old self, or you create a different, but no less brilliant version of yourself :) You can get through this, always here if you need to talk
I have had this invisible chronic illness for 40 years, and I can easily relate to everything which you have included in your positive and practical video. Three more years have passed since this was posted. I also watched last year's video, so I know that your health has deteriorated further since then. Hoping that you and your family and friends are all OK, with the pandemic now in its second year. All the best of health and life in general, to a very inspiring young woman.
Hope you’re doing okay! And thanks so much!
I pray for you Georgina. Your vlogs are very nice. Stay strong.
Thank you so much!
Also you have to fight with doctors to get help, and they often dismiss you without even looking at your body or trying to connect the dots with your symptoms 😅 What was the point of those 7 years of medical school then?! (EDS, CFS, FMD, POTS )
All of this is so true! I often feel the same way!!
Georgina, this is a very positive and upbeat video. Thank you. 😊
Thank you so much for watching, glad you enjoyed it ☺️
I'm going through the stage of losing people now and it's so hard. My friends keep going out without me and I asked if they could invite me and let me decide whether I can do things or not instead of making that decision for me a few months ago and it's still not happening which is really really bringing me down at the moment :(
The healthy people thing definitely gets me to as well, I'm doing my alevels and no one bothers to turn up half the time (mainly in my media, to the extent they're close to kicking everyone but me and one other person off the course) and I get so frustrated because I would give anything to be able to revise etc like I used to. I miss proper eduction so so badly!! (Oh yeah, and then they asked me what's on our test because they didn't go to the mock and it's like 'sorry I don't know because I couldn't go because of my constant passing out').
I love the positive spin you've put on things though, I'm working on always looking for a positive in the most negative situations. I guess some of the positives are that chronic illness will make you more empathetic towards others (which is super helpful for me as I want to go into clinical psychology) and there's such a lovely community of people to talk to so you are never truly alone :)
Bethany Jade Millin I’m sorry :( It’s so horrible when that happens, I wish I could help more, I’m sending you a big virtual hug!
Thank you! I just wish I could not let it affect me as much but it's seriously getting me down, I just want to feel including for once.
It's such a struggle! I'm missing studying like crazy, I need some kind of stimulation but sometimes my illnesses make even reading the textbook too hard! (Although I look about that audiobook website and there's some textbooks on there which could be a great help for me!!
I was just wondering how you cope with people looking at you when you use a mobility aid? We're going out for my mum's birthday all day and there's no way I can cope with the standing without passing out and making myself really ill so we're thinking of getting a rollator or a wheelchair if it's really bad but I feel really anxious about anything that will draw attention to me :/ xx
You're welcome :) I hope the audiobook service helps! That's a tricky one, I think it definitely takes some getting used to but I just keep reminding myself that I'm using the aid because I need it and that it isn't my fault :) And you're going to feel so much better for it! It might not be helpful but I also remind myself that fainting in front of everyone would be even more embarrassing than using the aid (and definitely feel 100x worse!). I think it also helps to know that it gets easier and more normal the more you do it and that it's okay for it to feel a bit strange/embarrassing in the beginning :) Another thing that helps me is thinking about how I perceived people who used wheelchairs before I needed one myself- I never once questioned their validity of needing it or thought they looked weird or anything, so it's likely that that's how everyone else will see you :) Good luck with your mum's birthday or I hope it went well if you went already! xx
Hi! It's been really helpful so far, I never realised how much easier listening to an audiobook is compared with an actual book. i find it doesn't drain my energy as much etc so is a lot better with chronic fatigue etc.
It went really well actually, I got a rollator and I managed an 8 hour day which I would never have be able to do without it! I got one that converted into a wheelchair so I could have a break when I need which was really helpful.
I know it could definitely help me at sixth form but I'm still a bit scared to use it! I think I will though once I got used to it :) xx
Bethany Jade Millin wow, that’s amazing!! Both that you managed such a long day and that you were brave enough to use the rollator! I’m soooo proud of you! And I know exactly what you mean, I still only use my walker and wheelchair outside my hometown as I’m less likely to see people I know 😳 And I’ve still only used them a few times so I’m hoping it’ll get easier and less strange in time too, I think it’s natural to have to build yourself up to the point where you feel comfortable to use it more often :) I’m tired so can tell I’m getting my words a bit jumbled aha, hope that made sense!
I don't blame my friends, I can't socialize with my illness and this is the reason why I don't spend time with my friend anymore, I have friends that still call me after many years (when I was healthy I was very popular)but I always decline their invitation. I also don't want them to visiting me most of the time. I don't even have the energy to talk. If I am with friends I want to have fun too! I miss socializing but I am in surviving mode most of my time so I don't spend too much thinking about things I can't do anymore, I am too busy to figure out how I can shower, cook, tidy up the room. I probabily do in one month what most people do in one day! Thank you for your videos, your tips are very useful, I already applies some of them and they are working!!
lilli I understand that, I was more talking about the people who don’t believe you, rather than your friends who just don’t know how to deal with it 😌 I was in the same situation about a year and a half ago, but am doing so much better now, I still have a lot of down days, but there is hope that it gets better :) Keep hanging in there 💕
lilli and I’m so glad my tips are helping you! That makes me so happy :)
@@GeorginasJourney I have a genetic metabolic disorder of the muscles and chronic fatigue is part of it. My illness is invisible but if I have a flare up ( and this can happen very easy) I can't think straight, I vomit and my muscles can't hold my body weight any more so people around me will have to assist me. Some people that doubted about my condition wanted to call the ambulance....so I think the positive fact of my condition is that I can't really hide to people around me for long and if I need to give them a proof I can give them one at any time!I have been watching many videos about people with chronic illness but I think you have a special gift because you don't only share your experience but you also give very useful advises to help people to manage the illness. I am going to watch all your videos and take notes I want in the future do some video for people with chronic illness in Italy. I am Italian and there are not so many Italian video about this subject. I don't know anything about video making, but I am looking forward I think is fun!
I'm sorry you have to deal with all of that, sounds really tough! But I think that would be great if you could make videos for Italian viewers! I would imagine that would have a positive impact :) Good luck with everything :)
This video was wonderful and so on point. Thanks for this!! ✨
Rena M Thank you! And you’re welcome!
In difficult situations even ur shadow will leave u alone ....friends are very weak realization ...u are very right.
I know this is an old video but I would just like to say how much this means to me, I've been dealing with symptoms for chronic fatigue for around a year and a half now but only just got a diagnosis a few months ago. I was watching this video and just felt so overwhelmed because it felt like the first time someone else understood it. I've been struggling with dealing with everything and this just gave me a little burst of hope!
Elodie Thomas thanks for watching Elodie, you’re definitely not alone in all of this
Invisible.. when I look at the mirror..I don't even believe myself 😂.
I feel the same some days hahah 😂
Thanks so much Georgina. A lot of wisdom there. I enjoy watching your shows, they are always uplifting!
Greg Rochlin thank you so much! I’m so pleased you enjoy my videos and I really appreciate your kind words :) Hope you’re as well as you can be :)
Luckily I’ve always had good health but I did have a subtle psychological problem for many years which prevented me from making proper friendships. - I’ve got out of that pretty well thank goodness ...
Luckily I’ve always had good health but I did have a subtle psychological problem for many years which prevented me from making proper friendships. - I’ve got out of that pretty well thank goodness ...
Luckily I’ve always had good health but I did have a subtle psychological problem for many years which prevented me from making proper friendships. - I’ve got out of that pretty well thank goodness ...
Luckily I’ve always had good health but I did have a subtle psychological problem for many years which prevented me from making proper friendships. - I’ve got out of that pretty well thank goodness ...
Hi Georgina I hope your doing amazing. I just wanted to thank you for being strong and serve as an inspiration to others. Love ya! 😘
Thank you so much!
Relatable! Finding your channel is a good news for me but feeling sad for You.I hope you will never lose your gratitude.
What do you mean by never lose my gratitude? Gratitude for what?
This is so true! I’ve been watching all your old videos and I love all of them!❤️
Grace' M thank you so much!
So much truth in this video!! Love love love
Kaitlin's Story thank you!
This was PERFECTLY SAID! ♥️ Thank u.
Mart Ramirez Thank you! & you’re more than welcome ❤️
Why was I crying in the first 30 seconds...👩🏾💻🙋🏾♀️❤️ (thank you...🤗)
Trisha Ann sending you lots of love 💕💗
Hey, I’m a year into cfs after glandular fever, so I can relate with everything you’ve said. I’ve seen you haven’t uploaded in a while, hope you’re doing well.
wakofish I’m sorry you can relate, it’s so tough, isn’t it? That first year is definitely the toughest though, so I hope you can find a bit of comfort in that. I’m still struggling with a lot of severe symptoms, but now that I’ve been ill for a few years, I can honestly say it’s gets better :) Even if only a little bit & even if you don’t know how or when
I found myself nodding to almost all of that. This video was made a year before my epilepsy diagnosis, but I slowly began to realise that I was already chronically Ill but hadn't noticed all the other things until then!
Thank you got sharing. I was recently diagnosed with POTS I'm still learning a lot and trying to overcome the problems it causes
Thanks for watching! I have a few videos on POTS which you may find helpful, it can get a bit better with time and finding ways to manage it which work for you in terms of both medication and lifestyle changes :)
Just found your channel
Loving it so much
Since November 2017 I like was told I had CFS
This channel is so amazing love it so much
Can’t wait to watch more of your videos
Agree with all of these
Can’t wait to watch more
Thinking of doing stuff like this on my channel💖💖💖
Millie Beth thank you so much! 💗😊 I’d love to see videos about your CFS, this illness needs all of the awareness it can get! 😊 Hope you’re as well as you can be x
Georgina's Journey thx u 2
Would love to chat to u at some point
Lots of my friends don’t get it and it would be amazing to talk to someone who does x
You too, love finding people who i can relate to and who understand :) I'm sorry, it's so difficult, isn't it :/ x
yes it isn't easy but i'm not as bad as some so in a way im lucky x
ots of my friends dont get it
jope you are feeling better soon x
I guess so, although just because other people have it worse, doesn't make what you're going through any less valid! Mine didn't either but luckily I've found friends who do get it now, which has really helped :) Thank you, you too! x
i identify 100%
Just being 4 months seizures free
That's great!
That is a great list!
thanks!
My family doesn't believe and it's awful. I wish I could leave
I hope it gets better for you soon, even if only a bit 💗
Please watch chronically Jackie she has EdS pot Gastroparesis hugs xx
Poppy Chocky I’m actually already subscribed to Jaquie’s channel and watch her videos most days! She’s the best! :) xx
Rip
Thank you so much for this video i related to everything you said
Bad Bitch you’re welcome, hope you’re doing okay
One more thing ... healthy people wont watch this video ... that is the saddest thing ....
Mišel Senčar I agree with you on that :(
At this point of my life, being 24 y/o.
I felt like trading anything for health as I tend to get sick alot.
I think anyone with chronic illness would, I was around 19 when I filmed this video
During the day it’s okay. But the hours at night battling with my own mind to get to sleep and not feel so shit
Distraction can be helpful, I try to find a good tv show or a book that interests me, it's still tough, but helps a bit. And remember that you're not alone
Have a doctor disbelieve you, but after said something like "there are rare illness" kinda like avoiding the problem??
bismut life sorry, I’m not sure what you mean?
yes my doctor said that🙂
You loosed friends because of your illnesses?! smh... I can't unterstand some people, I mean, why should you lie about something like that?
EvaMuellerreads yeah! A lot of people didn’t believe me! But I’ve got a wonderful group of friends now so it all worked out ok 😊
hello i have M.E.to but not that bad ...i have about 3 mates i find funny sometime. this is my best one that people say .....you dont look ill.....i have it 27 years i just live with it just smile at evey day take care
Paul Pope people say that to me a lot too! I’m sorry you’re having to live with it too, but smiling at every day is a really positive attitude to have :) Thank you, you too, hope you’re staying as well as you can :)