Tommee Tippee are amazing. My church toddler group had 14 of the cups that they use for the children and they have been sent to you. Tommee Tippee have sent a brand new replacement for every cup we sent! There are some amazing people out there!
So happy to hear this! It is a pretty great looking cup I can see why Ben likes it. Look forward to more videos. Both you and Ben are great advocates. ❤
Not only did Ben get a lifetime supply of his cups, but you've helped raise attention for autism. This event has sparked many conversations. Great work, Marc!
Thank you for your lovely comment, means a lot. I'm very excited about the 'many conversations' and hope they continue to grow, I have a lot more videos planned.
I have 2 autistic boys it is also food. One boy would only eat pizza and i found out by trial and error it is the shape he liked. So i introduced new food by cutting it into pizza shapes. He loves it
Thank you so much for what you said about Autistic children all having their own needs and that as the care givers we know how to meet those needs. My daughter, Jack LOVES a little stuffed bat. A lot of folks don't get it that her little bat is like a member of our family, because that bat helps her get through every day. Any little thing that gives my daughter peace of mind is a good thing in my book.
Well done you! My son has PMLD and autism - his "stim" is tea. He drinks gallons of tea, fortunately he's not fussy about the cup. Congratulations on Little Blue Cup - it's very, very important.
That's THE best news - well done TT for stepping up to help you! All the best for transitioning Ben onto the new cups.Love your idea of a documentary. Maybe approach Landmark Films ( I think thats the right name). They did a super 3-part documentary about the condition my daughter was born with - Craniosynostosis. (She wasn't in the programme, but it was based at John Radcliffe Hospital in Oxford where she had surgery.) She has now been diagnosed with Autism, so I'm interested to follow your story.
I've been following Ben's story and boy can I ever relate, lol. I'm a single mom to two boys (now young men) with Autism, and what you say is so true, when you've met one child with Autism, you've met one child with Autism. Happy to join you on this journey :D
Well done Tommee Tippee! And well done to you sir. I wish you and your family all the happiness and well being life can bring. I can not fathom how anyone would have the gal to criticise you for doing anything to make Ben's life easier. So many armchair experts. You are not alone, Ben is not alone.
My husband works in autism education and tommee tippee saved my sanity when I was physically unable to breastfeed. I have been following your story and shed a fear tears of joy when I saw this news. I want you to know I'm not turning away. Your story MATTERS, your family is IMPORTANT, and I want to help share your messages in any way I can. Best of luck to you, Ben, and the rest of the family. Please let me know if I can support you all in any way.
This is amazing. Having a special kid is not easy but we just have to hang in there. Some days are hard days, but the good days are the ones that keep us going. I'm glad that you had a good day this day.
My son has autism he is 30 now and high functioning . he is married , his wife knows him well and caters for him wonderfully . with my son routine is important . he has a way of things being done and all things have a place ( don't move the coffee jar etc.. ) so going to see him and turning up early ..... it took him a whole week to get over it . as you say every person is different . its just sooo frustrating that people don't get the diagnosis early enough to get the right help at the best time for them . my son was 18 before he was given his diagnosis . good luck in getting Ben to accept his new cups . we are all with you XX
I'm reckognizing myself quite in the videos of you and about your son. I'm myself an adult on the autistic spectrum yet I'm only with aspergers. Yet, I reckognize myself especially since I often have to buy things twice. I may have many caps for the winter but my favorite one is 8 years old. It's been worse with shoes. Even though I may not attach myself it's the texture, design, colors and design of the items that is desirable. Why change if you love the item you already have? The two pairs of shoes I really loved doesnt exist so I have had to change from them after like 6 years with the same ones but still, I feel with you. And your son.
Wonderful news. Having an 11 year old with Autism myself I TOTALLY understand your situation. I was really moved by your story. Thanks for raising awareness! Keep up the good work.
Wonderful news! I know what a relieve that has been! We have an autistic son as well and in the past we also purchased "backups" of his favourite toys and cups and such, to prevent major tantrums if they ever were to break..Our son is highly functional and even surprisingly social, and thanks to the amazing guidance he (and we as parents) received from our local government made all the difference. Today, at six years old he won't freak out so often or badly anymore. But like others said, every case of autism is completely unique in the way it presents itself, how it develops and how "compatible" our kids turn out to be with societies expectations, which is a big fear all parents of autistic children have I expect.. Although by no means a walk in the park either, we realise how lucky we've been so far and how difficult it is for all families, even more so for the ones that are less willing to open up to outside help. I wish there was an international social platform for caretakers actually.. Anyways, seeing heartwarming reports like yours, really means a lot to other parents in similar situations because we all struggle at some point(s) with the acceptance and understanding of our precious children from society. People rarely really understand how even relative mild cases of autism can put big strains on the relationships between the parents, friends, family and certainly also our professional carriers. For example I've gotten job offers to work for amazon and google, but because of the excellent (and insurance covered) help our child receives here in The Netherlands, and how badly information, let alone a special treatment is accessible just about it anywhere it seems, I just can't make use of career opportunities like this. - although also because of the amount of involvement you want to put into your child, which is not often compatable with work. This resulted even in me being unemployed for more time than is comfortable. A conflicting situation to say the least.. I hope you'll keep sharing!! Warm regards, David
I'm so happy for Ben and his family, I've been following and sharing the search for Ben's blue cup since it popped up on my news feed. We all need better understanding of autism it's a complex subject but I would like to understand it better myself. Wishing Ben and his family best wishes and I hope BBC or someone help you make a documentary because I would watch it.
This is a real company run by real people! Too many companies seem to be run by robots that have no connection to people or the world. We need to support companies like this one! Bravo Tommy Tippee! Honestly. I am not surprised the company is owned by a British firm. Some of the best people in the world (minus those UKIP fools!)
I think you could do a huge help for others with special needs if you manage to somehow track down and help other with such loved and lost items which the special persons still need even though it's out of the market. And yes, I say special because he is and I am myself and it's a recognition of that you are different in a unique, positive way that others may not understad (always).
What you have done.. are doing is amazing I can't believe how helpful tommie tippie have been. I have an autistic son who won't eat 90% of the time due to wrong cutlery wrong plates the foods wrong I have spent loads trying to get things right for him it is so hard.. Ben will be so happy when he gets his nice new cups I wish you all the luck in the world that things go well and he accepts the new cups
Absolutely amazing news I'm so happy for you!! Xx you are a amazing father and advocate for your son Ben xx my son has autism as well and your so right when you say if you've met 1 child with autism you've met 1 child with autism they are all so different and amazing, well done you xx
I have a 'Ben" too - in fact he really looks like him as well! Mine is apparently 'high functioning' but cant leave the house without a meltdown. I do understand how everything has to be just right or face a meltdown. I think sharing this story is great and spreads understanding about living with an autism child.
Although no one can know what it feels like to be you, I have a 22 year old daughter with severe autism and I have a small idea of what it might be like. You seem to be an amazing father! This is wonderful news! :-)
I found this on CNN.com health page. As an autism parent of 2, I am always touched when I see people rally around one of our kiddo's. I am really happy for Ben and I know how tough it can be with all of their "eccentricities." Too often, the only interaction people have with our kids is negative and we start to feel isolated. I can only imagine how tough it was to actually send out the Tweet asking for help. I truly feel there are a lot of good people out there willing to help, if we can only ask. Keep your spirits up, and thanks for sharing.
Marc - I am so happy for your family and for Ben . As a father of an autistic individual who can be a rather picky eater I teared up because your not only getting a few but enough to help cover Ben's life time. That IS HUGE! I am more surprised at the company who came through for you , THAT is amazing ! I happy for your family and Ben. I hope he enjoys his new cups.
Thank you Brian, means a lot to hear that Bens story moved you. Please keep,in touch, I have a lot of interesting and in my opinion exciting things to come, maybe you'd enjoy being a part of it :)
If you start a TV program, then I suggest having multiple autistic people as part of the show. You can introduce everyone in the first episode and then continue to follow them and learn more about them as the show goes on. Just an idea. Another idea would be to dedicate individual episodes to unique cases.
Sounds good Michael. I do plan on working with LOT she of families. The main film may well have limited space, but there's nothing stopping me having many small films on here with families I meet :)
As a former SPED teacher, I really think you're bringing so much needed awareness to what severe autism entails. Thank you so much for spreading your message! :) I am so happy to hear that Tommy T. is going to make the cups for you son. Amazing!
I didn't find this boring. You're so passionate about this and it shows! I think a show where people who have their own "little blue cup" are helped along to find extras or a way to have their need met would be interesting!
I just needed to say you're both great parents! I have a two year old healthy baby girl and it breaks my heart and frustrates me at the same time because she chooses to throw tantrums because her routine shifts just slightly. I can't imagine the severity of your situation but I know that Ben is such a blessing and I pray the almighty makes it easy on you and your family and for Ben.
I am #ActuallyAutistic and I also become distraught whenever my routine shifts or things otherwise don't go my way. Although I'm verbal, it's hard for me to tell someone that I'm upset. Some of my favourite interests are Blue's Clues/Blue's Room, RMS Titanic, THE DOG Island 〜ひとつの花の物語〜, いないいないばぁっ！ , PAW Patrol, US Airways Flight 1549, bootleg recordings of theatre shows, Braille, and telegraphy. Regarding the theatre: I go to Broadway a lot but I like to watch/listen to recordings of the shows I like. Yes, I do get the official CDs, but I think bootlegs are better. I especially like listening to certain moments from specific shows over and over. And there have been times when I've had meltdowns at shows because not only they don't let me record the shows but also I get in trouble for getting excited, stimming, and clapping a lot. Once I was at a production of West Side Story in New Jersey, and there was a slip in the Playbill that said that you can't exit/re-enter after the start of Act 2 Scene 4, which is the scene where Anita gets raped and Tony gets shot. I felt that I needed a break, but according to their rules I could not step outside. And when Tony got shot the gun was extremely loud. I screamed even though I knew Tony was going to get shot and I was wearing headphones. And then I heard laughter. I think that the people were laughing at me because people would not laugh when somebody gets shot. And いないいないばぁっ！ is a Japanese TV show, which the company that makes it (NHK) says it's strictly for ages 0-2. They actually put the age limit on the cover of the magazine. And they only let kids of that age group participate in the TV show (such as dancing with the characters). Every so often they let viewers send them drawings and then show a few of the drawings at the end of an episode. I haven't sent a drawing yet but even if I do I don't even know if they will accept it. I have a rattle with 2 of the characters on it (Wan-Wan the dog and his friend U-Tan who I don't know what kind of animal she is) which came with one of the magazines (November 2013 to be exact). I like to spin the rattle around.
This is like a win win win win situation. Not only does this help Ben and his family, the company gets to help which is always a good feeling, they also get well deserved advertising and it raises attention for autism.
mark mate you are a legend i myself am deemed disabled by my country but in all honesty i couldnt bare haveing bens condition you and he are both absolute bloody legends ( and the family as well ) please tell ben he has fans all over the world and enjoy the cups if i had one it would be comeing your way unfortunately TommyTipy never sold to Australia as far as i know stay strong all of you and god bless
I get it. You are not alone. Many parents, of typical kids, think it is easy to change these kids habits -- it's not. Behaviorists can help. I do not know if you have ABA programs in the UK? ... I wish people will listen to you when you refer to your son as "a child WITH autism". Our children should not be defined by their disability. People do not say cancer child or Down Syndrome child. It's rude and offensive. Our kids are all different. If you know one child with autism, you know ONE child with autism and they will fill your life with so much love. I wish you and your family peace, joy and love ... and patience :)
I cried. I just sat and cried. my Ben is called Adrian. He inspires me. He one of the most beautiful things to happen in my life. In a world that is so focused on the 'antidote' or 'fixing the problem', I think there are so many people who don't realize. He is my baby, he is my little boy. He is not a problem or a disability. I want to scream "thank you for you support but he does not need to be fixed" and in fact I may have made it to the end of my rope once or twice, and have said it. My biggest problem is that once you have decided that my son's autism is a problem, people quit enjoying him, and only want to focus on fixing him. once people have designated his autism as a mistake, they don't realize the miracle was sitting right in front of them anymore. This little boy, whose not so little anymore, has inspired me to be my best self. He doesn't understand 'strangers'. They are friends he simply hasn't met yet. And yeah, it can be hard, life can be a hot mess when you have to deal with all the little tics, that a accompany just going to the store, but I don't think people see all the happiness he brings to us. I wish people wouldn't just sum him up as a defect, or "just something werid he can't help, that makes everyone else slightly uncomfortable" He is my son, with more depth and brilliance than they could ever imagine. I have alot to say on the subject of my son (of course my husband says I have alot to say in general) But I feel like its an important job. We are the protectors and voices of those who need a voice. If you ever need to talk I would love to. You can find me on facebook: Brooklyn Grace Sparks (Heard). And I hope you do.
Your points are so concise and in my opinion you have it spot on. People won't agree, but they need to learn this is how it should be. There's nothing wrong with knowing and accepting a person has a condition, and if it means they will interact with you in different ways of course it needs to be really considered, but it doesn't make them less of a person, and it certainly doesn't define them. My Ben is giggly, loving, funny, he loves tickles, he has great taste in music, he's fun to spend time with, he loves travelling, he's very affectionate, he can be very stubborn, he gets grumpy and he likes his own way. He just happens to also have autism and be non verbal. I want to change the way people think about and talk about autism. Long road ahead, but I'm getting a great team of people to support me. Would you be interested in writing some stuff for the LittleBlueCup website in the very near future? No pressure, and it's just voluntary obviously, but it may be a good way for you to say the things you want to say about how you feel. LittleBlueCup.org is going to be an interesting site full of content by parents and carers of autism who think differently. I will control who writes for the site but I won't control what they write and I won't edit their content. Have a think, you can find me on here, I'm on FB but not sure what as, I barely use it, I need to set up a new page so I'll,let you know and invite you once it's done :)
LittleBlueCup I would love too. I have so many things I wish people knew about these beautiful children, people and parents/caretakers,, just from a "momma bear"/caretaker prospective. I actually love writing. I have been pursuing all my life. It was my major in college. Sadly, my mother passed and everything that was going on at home, I had to give it up, at the time. I have written non- professionally for years. Mostly short stories, a little music, and children's books geared for my kids. I would love to hear from you. I thought about leaving my email address, but as this is an open social media website, I didn't want to hand out such personal information. The thought of giving children and parents/caretakers a voice, is absolutely lovely. Please let me know how I can get you my contact information and I would love to discuss it with you. Thank you for responding, and putting your story out there. Hope to hear from you soon.
LittleBlueCup also Adrian was non-verbal for years. It took a long time with picture charts, and flash cards, until little by little we(the royal we.lol) have become more and more verbal. I think people make the mistake of assuming just because my son doesn't talk, he has nothing to say. Nothing could be further from the true. luckily, I had the chance to teach in his class all through elementary. All the other kids (who happen to all be boys) in his class who were on the spectrum were non-verbal as well. it is a hard road I know. Even if your child decides he is more comfortable non-verbal, it can be very hard to watch for a parent. I personally feel that children should not be forced to conform to the world. Please, don't misunderstand, encouraged yes(to the point of everyday skills as far as interaction are considered), and I understand it is our job as parents to prepare our children for the world. However, I refuse to pound conformity into my beautiful, unique son, to ease the uncomfortablness of complete strangers. I'm now ranting. I apologize. As I said before, I'm a momma bear. Anyhow, I know it is hard, but hang in there. You have my support.
Спасибо, я очень благодарен за поддержку и надеемся, что она помогает людям рассматривать аутизм как сложное состояние. Я не говорю на русском, так что я не могу сделать видео, но я надеюсь, что люди понимают, насколько я ценю поддержку.
I found that almost everyone here forget the most important thing is that without chinese factories' priceless producing of those 500 cups. nobody will be happy. I see nobody thank chinese kind people and their factory. OK, I just want to show my thanks to those nice people in china. thank you for your unselfishness kind hard works and good luck.
This was so touching, not just the way the company put people ahead of profit, but the way you love, support, and protect your son. I'm sure it seems natural to you, like there's no other choice, but many autistic kids have relationships with their parents that are... not like this. I know from experience. And I feel a little bit healed witnessing parents like you, knowing that kids in the future will have a better experience. Thanks so much.
LittleBlueCup my little brother has autism. he doesn't have a favorite cup but I couldn't imagine the struggle you must have had trying to help your son. The internet can be a truly wonderful place when it wants to be.
+Dan Sterling the internet has been amazing. I'm hoping it will be amazing again soon as I'm searching for drinks bottles for two fab kids who's parents have asked me to help them find some :)
Alex M. Oh sorry I didn't know it was dumb to ask questions. It just seems like if they acted normal their problems would be solved. I didn't say they have to be road scholars or whatever that is lol
Well your ignorance is very concerning. Autism is a neurological condition - basically the brain isn't wired the same way. You can't 'act normal' - and what 'problems' would it solve? The irony is your comment is very telling of someone with very little comprehension, empathy or understanding of anyone else's needs, these are typical traits of ASC - Autistic Spectrum Conditions. It would be a good idea to get some tests done as there is a lot of help available, and as it's also a genetic condition and can be passed from generation to generation there would be a high probability that your children would have Autism. From my experience of working with hundreds of families with children on the spectrum the condition does seem to be more severe in siblings of people on the spectrum. You may not be trolling, but if you are genuinely not trying to provoke a reaction you either may need help for a nurological condition or you reslly need to start to learn more about the world around you - autism is a very common condition and you will know many people who have it, so be careful you don't offend them.
Technically it's a condition as you don't just catch it, you are born with it, and it can't be cured as there isn't anything really to cure. It's a bit like trying to cure someone of limited intelligence, if they don't have the brain capacity and mental ability to learn and develop then you instead look at different coping mechanisms to enable them to get through life most effectively. Firstly I'd suggest they refrained from posting comments they didn't understand like Z Jones has done. But yes the rest is right, they don't make it up and it's very very real :)
Tommee Tippee are amazing. My church toddler group had 14 of the cups that they use for the children and they have been sent to you. Tommee Tippee have sent a brand new replacement for every cup we sent! There are some amazing people out there!
Just looking at the photo of all the cups they've sent, they've sent at least double what we sent you! Amazing!
So happy to hear this! It is a pretty great looking cup I can see why Ben likes it. Look forward to more videos. Both you and Ben are great advocates. ❤
Not only did Ben get a lifetime supply of his cups, but you've helped raise attention for autism. This event has sparked many conversations. Great work, Marc!
Thank you for your lovely comment, means a lot. I'm very excited about the 'many conversations' and hope they continue to grow, I have a lot more videos planned.
I have 2 autistic boys it is also food. One boy would only eat pizza and i found out by trial and error it is the shape he liked. So i introduced new food by cutting it into pizza shapes. He loves it
thats awesome.creative solution
Thank you so much for what you said about Autistic children all having their own needs and that as the care givers we know how to meet those needs. My daughter, Jack LOVES a little stuffed bat. A lot of folks don't get it that her little bat is like a member of our family, because that bat helps her get through every day. Any little thing that gives my daughter peace of mind is a good thing in my book.
Well done you! My son has PMLD and autism - his "stim" is tea. He drinks gallons of tea, fortunately he's not fussy about the cup. Congratulations on Little Blue Cup - it's very, very important.
That's THE best news - well done TT for stepping up to help you! All the best for transitioning Ben onto the new cups.Love your idea of a documentary. Maybe approach Landmark Films ( I think thats the right name). They did a super 3-part documentary about the condition my daughter was born with - Craniosynostosis. (She wasn't in the programme, but it was based at John Radcliffe Hospital in Oxford where she had surgery.) She has now been diagnosed with Autism, so I'm interested to follow your story.
I've been following Ben's story and boy can I ever relate, lol. I'm a single mom to two boys (now young men) with Autism, and what you say is so true, when you've met one child with Autism, you've met one child with Autism. Happy to join you on this journey :D
Well done Tommee Tippee! And well done to you sir. I wish you and your family all the happiness and well being life can bring. I can not fathom how anyone would have the gal to criticise you for doing anything to make Ben's life easier. So many armchair experts. You are not alone, Ben is not alone.
So touched by your story! Thank goodness you will get the cups from Tommee Tippee. Praise God. Each child of autism is different.
Fantastic news!! One amazing Dad and family! Well done TT and the World for helping Ben! xxx
My husband works in autism education and tommee tippee saved my sanity when I was physically unable to breastfeed. I have been following your story and shed a fear tears of joy when I saw this news. I want you to know I'm not turning away. Your story MATTERS, your family is IMPORTANT, and I want to help share your messages in any way I can. Best of luck to you, Ben, and the rest of the family. Please let me know if I can support you all in any way.
I just love Tommee Tippee and all the wonderful folks that were trying to help Ben!
This is amazing. Having a special kid is not easy but we just have to hang in there. Some days are hard days, but the good days are the ones that keep us going. I'm glad that you had a good day this day.
My son has autism he is 30 now and high functioning . he is married , his wife knows him well and caters for him wonderfully . with my son routine is important . he has a way of things being done and all things have a place ( don't move the coffee jar etc.. ) so going to see him and turning up early ..... it took him a whole week to get over it . as you say every person is different . its just sooo frustrating that people don't get the diagnosis early enough to get the right help at the best time for them . my son was 18 before he was given his diagnosis . good luck in getting Ben to accept his new cups . we are all with you XX
Im not autistic yet everybody hates me and i cant even get a girlfriend
Dude tell your son he is the man!!!
I'm reckognizing myself quite in the videos of you and about your son. I'm myself an adult on the autistic spectrum yet I'm only with aspergers. Yet, I reckognize myself especially since I often have to buy things twice. I may have many caps for the winter but my favorite one is 8 years old. It's been worse with shoes. Even though I may not attach myself it's the texture, design, colors and design of the items that is desirable. Why change if you love the item you already have? The two pairs of shoes I really loved doesnt exist so I have had to change from them after like 6 years with the same ones but still, I feel with you. And your son.
Wonderful news. Having an 11 year old with Autism myself I TOTALLY understand your situation. I was really moved by your story. Thanks for raising awareness! Keep up the good work.
Wonderful news! I know what a relieve that has been!
We have an autistic son as well and in the past we also purchased "backups" of his favourite toys and cups and such, to prevent major tantrums if they ever were to break..Our son is highly functional and even surprisingly social, and thanks to the amazing guidance he (and we as parents) received from our local government made all the difference. Today, at six years old he won't freak out so often or badly anymore. But like others said, every case of autism is completely unique in the way it presents itself, how it develops and how "compatible" our kids turn out to be with societies expectations, which is a big fear all parents of autistic children have I expect..
Although by no means a walk in the park either, we realise how lucky we've been so far and how difficult it is for all families, even more so for the ones that are less willing to open up to outside help. I wish there was an international social platform for caretakers actually..
Anyways, seeing heartwarming reports like yours, really means a lot to other parents in similar situations because we all struggle at some point(s) with the acceptance and understanding of our precious children from society.
People rarely really understand how even relative mild cases of autism can put big strains on the relationships between the parents, friends, family and certainly also our professional carriers. For example I've gotten job offers to work for amazon and google, but because of the excellent (and insurance covered) help our child receives here in The Netherlands, and how badly information, let alone a special treatment is accessible just about it anywhere it seems, I just can't make use of career opportunities like this. - although also because of the amount of involvement you want to put into your child, which is not often compatable with work. This resulted even in me being unemployed for more time than is comfortable. A conflicting situation to say the least..
I hope you'll keep sharing!!
Warm regards, David
I'm so happy for Ben and his family, I've been following and sharing the search for Ben's blue cup since it popped up on my news feed. We all need better understanding of autism it's a complex subject but I would like to understand it better myself. Wishing Ben and his family best wishes and I hope BBC or someone help you make a documentary because I would watch it.
This is better than any Christmas Ad. Delighted for Ben.
This is a real company run by real people! Too many companies seem to be run by robots that have no connection to people or the world. We need to support companies like this one! Bravo Tommy Tippee! Honestly. I am not surprised the company is owned by a British firm. Some of the best people in the world (minus those UKIP fools!)
I think you could do a huge help for others with special needs if you manage to somehow track down and help other with such loved and lost items which the special persons still need even though it's out of the market. And yes, I say special because he is and I am myself and it's a recognition of that you are different in a unique, positive way that others may not understad (always).
What you have done.. are doing is amazing I can't believe how helpful tommie tippie have been. I have an autistic son who won't eat 90% of the time due to wrong cutlery wrong plates the foods wrong I have spent loads trying to get things right for him it is so hard.. Ben will be so happy when he gets his nice new cups I wish you all the luck in the world that things go well and he accepts the new cups
So happy this is one hurdle jumped, wish you the best for the rest
Other than the 500 Tommy Tippee cups made, did someone locate one for Ben in the mean time?
Yes we did thank you, which is great because we need 'used' cups to transition him to the new cups.
Absolutely amazing news I'm so happy for you!! Xx you are a amazing father and advocate for your son Ben xx my son has autism as well and your so right when you say if you've met 1 child with autism you've met 1 child with autism they are all so different and amazing, well done you xx
I have a 'Ben" too - in fact he really looks like him as well! Mine is apparently 'high functioning' but cant leave the house without a meltdown. I do understand how everything has to be just right or face a meltdown. I think sharing this story is great and spreads understanding about living with an autism child.
Although no one can know what it feels like to be you, I have a 22 year old daughter with severe autism and I have a small idea of what it might be like. You seem to be an amazing father! This is wonderful news! :-)
I found this on CNN.com health page. As an autism parent of 2, I am always touched when I see people rally around one of our kiddo's. I am really happy for Ben and I know how tough it can be with all of their "eccentricities." Too often, the only interaction people have with our kids is negative and we start to feel isolated. I can only imagine how tough it was to actually send out the Tweet asking for help. I truly feel there are a lot of good people out there willing to help, if we can only ask. Keep your spirits up, and thanks for sharing.
Boy, he almost died from dehydration? That sucks. Sure looks like he never held back from eating, though.
LOL
I really hope continue to report on the progress especially how the transition to newer cups works out. I think that could be very useful.
Marc - I am so happy for your family and for Ben . As a father of an autistic individual who can be a rather picky eater I teared up because your not only getting a few but enough to help cover Ben's life time. That IS HUGE! I am more surprised at the company who came through for you , THAT is amazing ! I happy for your family and Ben. I hope he enjoys his new cups.
Thank you Brian, means a lot to hear that Bens story moved you. Please keep,in touch, I have a lot of interesting and in my opinion exciting things to come, maybe you'd enjoy being a part of it :)
If you start a TV program, then I suggest having multiple autistic people as part of the show. You can introduce everyone in the first episode and then continue to follow them and learn more about them as the show goes on. Just an idea. Another idea would be to dedicate individual episodes to unique cases.
Sounds good Michael. I do plan on working with LOT she of families. The main film may well have limited space, but there's nothing stopping me having many small films on here with families I meet :)
As a former SPED teacher, I really think you're bringing so much needed awareness to what severe autism entails. Thank you so much for spreading your message! :) I am so happy to hear that Tommy T. is going to make the cups for you son. Amazing!
I didn't find this boring. You're so passionate about this and it shows! I think a show where people who have their own "little blue cup" are helped along to find extras or a way to have their need met would be interesting!
Thank you, I'm going to keep going, I have lots of things planned :)
I just needed to say you're both great parents! I have a two year old healthy baby girl and it breaks my heart and frustrates me at the same time because she chooses to throw tantrums because her routine shifts just slightly. I can't imagine the severity of your situation but I know that Ben is such a blessing and I pray the almighty makes it easy on you and your family and for Ben.
I am #ActuallyAutistic and I also become distraught whenever my routine shifts or things otherwise don't go my way. Although I'm verbal, it's hard for me to tell someone that I'm upset. Some of my favourite interests are Blue's Clues/Blue's Room, RMS Titanic, THE DOG Island 〜ひとつの花の物語〜, いないいないばぁっ！ , PAW Patrol, US Airways Flight 1549, bootleg recordings of theatre shows, Braille, and telegraphy.
Regarding the theatre: I go to Broadway a lot but I like to watch/listen to recordings of the shows I like. Yes, I do get the official CDs, but I think bootlegs are better. I especially like listening to certain moments from specific shows over and over. And there have been times when I've had meltdowns at shows because not only they don't let me record the shows but also I get in trouble for getting excited, stimming, and clapping a lot. Once I was at a production of West Side Story in New Jersey, and there was a slip in the Playbill that said that you can't exit/re-enter after the start of Act 2 Scene 4, which is the scene where Anita gets raped and Tony gets shot. I felt that I needed a break, but according to their rules I could not step outside. And when Tony got shot the gun was extremely loud. I screamed even though I knew Tony was going to get shot and I was wearing headphones. And then I heard laughter. I think that the people were laughing at me because people would not laugh when somebody gets shot.
And いないいないばぁっ！ is a Japanese TV show, which the company that makes it (NHK) says it's strictly for ages 0-2. They actually put the age limit on the cover of the magazine. And they only let kids of that age group participate in the TV show (such as dancing with the characters). Every so often they let viewers send them drawings and then show a few of the drawings at the end of an episode. I haven't sent a drawing yet but even if I do I don't even know if they will accept it. I have a rattle with 2 of the characters on it (Wan-Wan the dog and his friend U-Tan who I don't know what kind of animal she is) which came with one of the magazines (November 2013 to be exact). I like to spin the rattle around.
This is like a win win win win situation.
Not only does this help Ben and his family, the company gets to help which is always a good feeling, they also get well deserved advertising and it raises attention for autism.
mark mate you are a legend i myself am deemed disabled by my country but in all honesty i couldnt bare haveing bens condition you and he are both absolute bloody legends ( and the family as well ) please tell ben he has fans all over the world and enjoy the cups if i had one it would be comeing your way unfortunately TommyTipy never sold to Australia as far as i know stay strong all of you and god bless
I get it. You are not alone. Many parents, of typical kids, think it is easy to change these kids habits -- it's not. Behaviorists can help. I do not know if you have ABA programs in the UK? ... I wish people will listen to you when you refer to your son as "a child WITH autism". Our children should not be defined by their disability. People do not say cancer child or Down Syndrome child. It's rude and offensive. Our kids are all different. If you know one child with autism, you know ONE child with autism and they will fill your life with so much love. I wish you and your family peace, joy and love ... and patience :)
I cried. I just sat and cried. my Ben is called Adrian. He inspires me. He one of the most beautiful things to happen in my life. In a world that is so focused on the 'antidote' or 'fixing the problem', I think there are so many people who don't realize. He is my baby, he is my little boy. He is not a problem or a disability. I want to scream "thank you for you support but he does not need to be fixed" and in fact I may have made it to the end of my rope once or twice, and have said it. My biggest problem is that once you have decided that my son's autism is a problem, people quit enjoying him, and only want to focus on fixing him. once people have designated his autism as a mistake, they don't realize the miracle was sitting right in front of them anymore. This little boy, whose not so little anymore, has inspired me to be my best self. He doesn't understand 'strangers'. They are friends he simply hasn't met yet. And yeah, it can be hard, life can be a hot mess when you have to deal with all the little tics, that a accompany just going to the store, but I don't think people see all the happiness he brings to us. I wish people wouldn't just sum him up as a defect, or "just something werid he can't help, that makes everyone else slightly uncomfortable" He is my son, with more depth and brilliance than they could ever imagine. I have alot to say on the subject of my son (of course my husband says I have alot to say in general) But I feel like its an important job. We are the protectors and voices of those who need a voice. If you ever need to talk I would love to. You can find me on facebook: Brooklyn Grace Sparks (Heard). And I hope you do.
Your points are so concise and in my opinion you have it spot on. People won't agree, but they need to learn this is how it should be. There's nothing wrong with knowing and accepting a person has a condition, and if it means they will interact with you in different ways of course it needs to be really considered, but it doesn't make them less of a person, and it certainly doesn't define them.
My Ben is giggly, loving, funny, he loves tickles, he has great taste in music, he's fun to spend time with, he loves travelling, he's very affectionate, he can be very stubborn, he gets grumpy and he likes his own way.
He just happens to also have autism and be non verbal.
I want to change the way people think about and talk about autism. Long road ahead, but I'm getting a great team of people to support me.
Would you be interested in writing some stuff for the LittleBlueCup website in the very near future? No pressure, and it's just voluntary obviously, but it may be a good way for you to say the things you want to say about how you feel. LittleBlueCup.org is going to be an interesting site full of content by parents and carers of autism who think differently. I will control who writes for the site but I won't control what they write and I won't edit their content.
Have a think, you can find me on here, I'm on FB but not sure what as, I barely use it, I need to set up a new page so I'll,let you know and invite you once it's done :)
LittleBlueCup I would love too. I have so many things I wish people knew about these beautiful children, people and parents/caretakers,, just from a "momma bear"/caretaker prospective.
I actually love writing. I have been pursuing all my life. It was my major in college. Sadly, my mother passed and everything that was going on at home, I had to give it up, at the time. I have written non- professionally for years. Mostly short stories, a little music, and children's books geared for my kids.
I would love to hear from you. I thought about leaving my email address, but as this is an open social media website, I didn't want to hand out such personal information.
The thought of giving children and parents/caretakers a voice, is absolutely lovely. Please let me know how I can get you my contact information and I would love to discuss it with you. Thank you for responding, and putting your story out there. Hope to hear from you soon.
LittleBlueCup also Adrian was non-verbal for years. It took a long time with picture charts, and flash cards, until little by little we(the royal we.lol) have become more and more verbal. I think people make the mistake of assuming just because my son doesn't talk, he has nothing to say. Nothing could be further from the true.
luckily, I had the chance to teach in his class all through elementary. All the other kids (who happen to all be boys) in his class who were on the spectrum were non-verbal as well. it is a hard road I know.
Even if your child decides he is more comfortable non-verbal, it can be very hard to watch for a parent. I personally feel that children should not be forced to conform to the world. Please, don't misunderstand, encouraged yes(to the point of everyday skills as far as interaction are considered), and I understand it is our job as parents to prepare our children for the world. However, I refuse to pound conformity into my beautiful, unique son, to ease the uncomfortablness of complete strangers. I'm now ranting. I apologize. As I said before, I'm a momma bear.
Anyhow, I know it is hard, but hang in there. You have my support.
what I should of said is, "I would love too".
Удачи, люди со всего света молодцы, они остались не равнодушны
Спасибо, я очень благодарен за поддержку и надеемся, что она помогает людям рассматривать аутизм как сложное состояние. Я не говорю на русском, так что я не могу сделать видео, но я надеюсь, что люди понимают, насколько я ценю поддержку.
This is incredible!
I found that almost everyone here forget the most important thing is that without chinese factories' priceless producing of those 500 cups. nobody will be happy. I see nobody thank chinese kind people and their factory. OK, I just want to show my thanks to those nice people in china. thank you for your unselfishness kind hard works and good luck.
This was so touching, not just the way the company put people ahead of profit, but the way you love, support, and protect your son.
I'm sure it seems natural to you, like there's no other choice, but many autistic kids have relationships with their parents that are... not like this. I know from experience. And I feel a little bit healed witnessing parents like you, knowing that kids in the future will have a better experience. Thanks so much.
I'm not crying there's something in my eye
LittleBlueCup my little brother has autism. he doesn't have a favorite cup but I couldn't imagine the struggle you must have had trying to help your son. The internet can be a truly wonderful place when it wants to be.
+Dan Sterling the internet has been amazing. I'm hoping it will be amazing again soon as I'm searching for drinks bottles for two fab kids who's parents have asked me to help them find some :)
Why can't autistic children just act normal? it's not hard, just act normal. it's like they want all the attention. I'm glad my kids are normal.
Alex M.
Oh sorry I didn't know it was dumb to ask questions. It just seems like if they acted normal their problems would be solved. I didn't say they have to be road scholars or whatever that is lol
they dont make this up. its real. thats the disease
*****
Right anybody who asks a question is trolling
Well your ignorance is very concerning. Autism is a neurological condition - basically the brain isn't wired the same way. You can't 'act normal' - and what 'problems' would it solve? The irony is your comment is very telling of someone with very little comprehension, empathy or understanding of anyone else's needs, these are typical traits of ASC - Autistic Spectrum Conditions. It would be a good idea to get some tests done as there is a lot of help available, and as it's also a genetic condition and can be passed from generation to generation there would be a high probability that your children would have Autism. From my experience of working with hundreds of families with children on the spectrum the condition does seem to be more severe in siblings of people on the spectrum. You may not be trolling, but if you are genuinely not trying to provoke a reaction you either may need help for a nurological condition or you reslly need to start to learn more about the world around you - autism is a very common condition and you will know many people who have it, so be careful you don't offend them.
Technically it's a condition as you don't just catch it, you are born with it, and it can't be cured as there isn't anything really to cure. It's a bit like trying to cure someone of limited intelligence, if they don't have the brain capacity and mental ability to learn and develop then you instead look at different coping mechanisms to enable them to get through life most effectively. Firstly I'd suggest they refrained from posting comments they didn't understand like Z Jones has done. But yes the rest is right, they don't make it up and it's very very real :)