TheGrumpyDad
TheGrumpyDad
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Sam and his Huggy
A short clip of Sam opening a 'Huggy' one of our amazing Friends found for him.
This is our new buddy Sam. Sam is 2-years old and lives with his family in Ashford, Kent. Sam’s special comforter is his ‘Huggy’, the comforter bought from John Lewis when he was born. Huggy is one of the few words he has learnt to say and Mum has been trying so hard to get hold of more of them. Sam recently lost Huggy while on holiday and they are devastated, he has one more but this is sadly not enough for the future and they worry that he may lose another as he does not understand yet about keeping them safe.
Sam was diagnosed with a rare neurological condition called Sturge Weber Syndrome Type 3 at 9 months old. His parent's lives were turned upside when he had his first seizure at 9 months old. Initially, doctors hoped his seizures could be controlled with medication, but his condition worsened rapidly and he was seizing every two minutes. He was transferred urgently to Great Ormond Street Hospital, however, he continued to rapidly deteriorate. They were left with no choice but for Sam to have a Hemispherectomy - for the right side of his brain to be completely disconnected and partially removed as an emergency operation. This was two weeks after his first birthday.
Sam has recovered amazingly well, he has severe cerebral palsy and has severe issues with his sight as a result of the operation, he can only use one arm, and also has a developmental delay of which they do not know how severe it will be until he is a bit older. His lifeline throughout has been his Huggy.
Huggy is a John Lewis Hippo Comforter, he has grey and white stripes. There were a few toys in this range but it is the comforter Sam loves.
Huggy goes everywhere with Sam, it means everything to him. He is always in his hand everywhere he goes.
He has one Huggy left now, he desperately needs as many as we can find as they mean so much to him. As Sam insists on taking Huggy everywhere with him he’s at more of a risk of going missing as Sam isn’t able to understand about keeping him safe and not losing him.
มุมมอง: 560

วีดีโอ

Mens Health Week 2018
มุมมอง 506 ปีที่แล้ว
This year for Men's Health Week I'm teaming up with My Family, Our Needs. We are focusing on the mental health of Dads who have children with additional needs and trying to get them to talk more about their mental health. We have created our own hash tag #DontForgetDads to get the conversation started. I will be adding several videos over the week, as well as sharing articles and live blogging ...
Ella-Mae gets a frog in the post
มุมมอง 4406 ปีที่แล้ว
Another 'Happy Mondays' video, it's so good to see how happy these little parcels can make our friends. Little Ella-Mae loves her frogs, so much so that she eats them! It's so lovely to see her opening a parcel and getting a new frog to eat, but please don't let that put you off sending more - Ella-Mae gets through a LOT of frogs and always needs more!
Isaac's Hat
มุมมอง 1.3K6 ปีที่แล้ว
Remember when we were searching for Isaac's rather cool hat that he had lost? We didn't find one. Until someone came forward with one and we arranged to get it to Isaac. Watch his reaction as he opens his 'surprise package'...
LittleBlueCup Presentation
มุมมอง 1826 ปีที่แล้ว
At 13:50 on Monday 24th July I will be giving my 5 minute presentation to the decision-making board considering placements for the School of Social Enterprise course for Plymouth University, 2017/18. I have applied and been through a round of interviews, this is the final stage. If I get accepted the course will help me to develop and grow as a social entrepreneur, learning skills I’m missing, ...
HelpMyFriends
มุมมอง 3007 ปีที่แล้ว
You remember #CupForBen right? These are my 3 new friends - Robert, Esmae and Dylan. Dylan needs a little blue cup, Esmae needs a tall orange cup and Robert needs a blue sports bottle. Share this with your friends so together YOU can #HelpMyFriends PLEASE Like and Share this video, the more attention it gets the more likely TH-cam are to feature it, and then it will get more attention. Sharing ...
Ben Visits Bude
มุมมอง 2937 ปีที่แล้ว
Ben LOVES the sea, we visit as often as we can. I didn't plan on making this and it was hard to push the wheelchair and film, so please forgive me for the shaking. The light I couldn't do much about, within minutes of getting back to the car the light had totally gone. Ben and I plan on filming lots more of our trips out and sharing our adventures, but I will plan the filming and take the GoPro!
MASSIVE NEWS (for me anyway!)
มุมมอง 3297 ปีที่แล้ว
Got something BIG to tell you all - little steps maybe but massive in Ben's life.
A Wobbly, Blurry #CupForBen Update
มุมมอง 1857 ปีที่แล้ว
Yeah it's late! Sorry, and it's not even worth it, I just thought I should put a video up for you all. Talking about Ben's refusal to use another cup, my progress and what I've been doing, and looking to the future. I have plans but need a little help to make them happen.
Big #CupForBen Update
มุมมอง 2.6K7 ปีที่แล้ว
Please SUBSCRIBE to my channel to keep updated with the #CupForBen story, the film and so much more. Lots of videos to come for #Carers about a range of things - tell me what YOU want to see! Visit the website LittleBlueCup.org Follow me on GrumpyCarer Find the CrowdFunding page at GoFundMe.com/CupForBen The #CupForBen story in the i Paper - bit.ly/ipaperstory The #LittleBlueCup sto...
Notes from the people who sent a #CupForBen
มุมมอง 1.5K7 ปีที่แล้ว
People who sent Ben a LittleBlueCup to the #CupForBen campaign sent notes too. The ones sent direct to Tommee Tippee were collated and sent to me in bulk. In this video I'm reading them out and trying not to cry. Will I? Won't I? You will have to watch to find out! It's a longer video as I talk about the cups and how Ben hasn't yet managed to transition to a newer one. Watch if you have the tim...
Help Me Make the #CupForBen Film
มุมมอง 6K7 ปีที่แล้ว
Help Me Make the #CupForBen Film
BBC Breakfast Interviews
มุมมอง 3K7 ปีที่แล้ว
BBC Breakfast Interviews
HUGE News - More Cups than we could have dreamt of!
มุมมอง 191K7 ปีที่แล้ว
HUGE News - More Cups than we could have dreamt of!

ความคิดเห็น

  • @MrMarkysimm
    @MrMarkysimm 5 ปีที่แล้ว

    Me, Courtney and our family can’t thank you enough 🙏❤️🙏

  • @MrMarkysimm
    @MrMarkysimm 5 ปีที่แล้ว

    Love it 🙏❤️ you guys are amazing, he loves being there, can tell, he’s so excited to be there

  • @MrMarkysimm
    @MrMarkysimm 5 ปีที่แล้ว

    Such amazing my dear friend, I totally agree, very much life can be hard, maybe as much or more as a dad, stuff upper lip, as the saying goes, 😫, if only non-special parents knew what it’s like in our world, I often say to people it’s a doing a 24 hour risk assessment on the house 😣 is the door locked / anything on the floor that can be picked up / etc 😫 then it’s hiding behind one of these 😆 when really it’s 😰

  • @lolomcspanky
    @lolomcspanky 6 ปีที่แล้ว

    This was so touching, not just the way the company put people ahead of profit, but the way you love, support, and protect your son. I'm sure it seems natural to you, like there's no other choice, but many autistic kids have relationships with their parents that are... not like this. I know from experience. And I feel a little bit healed witnessing parents like you, knowing that kids in the future will have a better experience. Thanks so much.

  • @Zumbagirl517
    @Zumbagirl517 6 ปีที่แล้ว

    He looks just like you! Great grin he has! When he waves his arms I can tell he’s happy!

  • @The18x18x
    @The18x18x 6 ปีที่แล้ว

    Your son is a waste of oxygen. He is good for nothing but turning perfectly good food into shit. He will never contribute ANYTHING worthwhile to society.

  • @joy2dworld595
    @joy2dworld595 6 ปีที่แล้ว

    If I were a little autistic soul waiting to be born I would choose these people to be my family, lucky boy

  • @Lydia130613
    @Lydia130613 6 ปีที่แล้ว

    That’s so lovely, just look at his smile.

  • @darrenwilson8042
    @darrenwilson8042 6 ปีที่แล้ว

    Just a lovely lovely film

  • @roxysimmons
    @roxysimmons 7 ปีที่แล้ว

    Wish I was there to help. I live in the USA but my mum lives just up the road from you. I would love to be part of a community. I have a daughter with autism but am pretty much isolated.

    • @TheGrumpyDad
      @TheGrumpyDad 7 ปีที่แล้ว

      +Roxy Simmons isolation is tough and can really take its toll on you. You are more then welcome to be part of my little online community, it's not as if we all meet up, it's online. The website will have a lot of info and 'stuff' you may find useful, and you'd be most welcome to join our LittleBlueCup Crew - together we help other families in our spare time, all online. If you want to just find me on FaceBook - GrumpyCarer - and message me, I'll invite you to the Crew Group!

  • @Quackapudding
    @Quackapudding 7 ปีที่แล้ว

    Good luck 😊 it is a wonderful presentation.

    • @TheGrumpyDad
      @TheGrumpyDad 7 ปีที่แล้ว

      +Quackapudding Thank you. I gave it all I could, I hear on the 14th August if I'm through to the programme. Considering filming myself as they call, but I might feel a bit silly if I'm not through or if I am and celebrate....

    • @Quackapudding
      @Quackapudding 7 ปีที่แล้ว

      Even if you don't upload it, or even if you don't get in but still upload it - it might be a good memory to keep. If you get through or not, you've made this amazing presentation and given it your all and that's a wonderful thing to acknowledge to yourself :)

  • @jasonbonne8608
    @jasonbonne8608 7 ปีที่แล้ว

    I found that almost everyone here forget the most important thing is that without chinese factories' priceless producing of those 500 cups. nobody will be happy. I see nobody thank chinese kind people and their factory. OK, I just want to show my thanks to those nice people in china. thank you for your unselfishness kind hard works and good luck.

  • @TheGrumpyDad
    @TheGrumpyDad 7 ปีที่แล้ว

    Dylan now has a new cup, it's a direct replacement for the one that was going to last a few more days. Although it's obviously fantastic news we now need to find him many more so he has spares for as long as he needs them. And of course Robert and Esmae need their bottle and cups. And my young friend Trey has joined the LittleBluCup club, he needs a cup too. We can't stop, the more people who are aware the more people we will help. Families need this stuff, it maybe small and worthless to most but to some of my friends out there these little items mean the world.

  • @julielight3111
    @julielight3111 7 ปีที่แล้ว

    We found Dylan's cup!! I just need the momma to call me! She stopped by our little consignment shop this morning just outside of Traverse City MI. I posted to my page...and one of my momma's messaged me!! PLEASE have momma call Small Wonders Consignment!!! 231-943-3880

    • @TheGrumpyDad
      @TheGrumpyDad 7 ปีที่แล้ว

      +Julie Light so amazing Julie! Dylan's parents told me last night they thought it had a week left, if that. I knew it was bad, I've not slept, that just made it worse. We can't stop though, we need to find more. We know they obviously exist, let's see how many more we can find. This one takes the pressure off, but he threw the last two and cracked them, it's going to happen at some point. Let's get Dylan 100 more!

  • @roxysimmons
    @roxysimmons 7 ปีที่แล้ว

    Shared! x

  • @greasemonkey6362
    @greasemonkey6362 7 ปีที่แล้ว

    Awesome :) I love Bude too its such a lovely place , thank you for sharing you day :) looks like Ben had a brill time :)

    • @TheGrumpyDad
      @TheGrumpyDad 7 ปีที่แล้ว

      Ben does love it there, he gets very grumpy if anyone is sat on he bench though - that can be kind of awkward! We visit Bude often, I need to go without him more so I can really explore, Ben just likes the exact same spot each time. To be fair, I'm really glad he doesn't want to explore the shops - those hills would kill me!

  • @BenSwagnerd
    @BenSwagnerd 7 ปีที่แล้ว

    You are an incredible parent! Thank you for sharing your relationship. He clearly LOVES the sea ❤️

    • @TheGrumpyDad
      @TheGrumpyDad 7 ปีที่แล้ว

      Another lovely comment, thank you Jennifer. It means a lot. As I said in mealy above / below I don't think I'm a great parent, I just try to get through the day with as little stress as possible. That means keeping Ben happy, and if we can have some fun doing it, well, that's just great! Thank you for watching, we are off to Dartmoor now to see if we can fit a wild pony in the car - I'll film the attempt!

  • @cadavereye
    @cadavereye 7 ปีที่แล้ว

    What a wonderful father you are to Ben. It's lovely to see you interacting with him with such tenderness.

    • @TheGrumpyDad
      @TheGrumpyDad 7 ปีที่แล้ว

      That's such a lovely thing for you to say, thank you so much, really made me pause and smile. I don't think I'm a wonderful father, I get frustrated with him, I get grumpy, I get bored not being able to do different things that I'm sure he'd love if only he'd try to experience. But I do adore him, we are very close and we enjoy lots of very special times together. I plan on sharing many more of our adventures so keep watching if you enjoy them :)

  • @KibaOuji
    @KibaOuji 7 ปีที่แล้ว

    I love this little updates. In my country we drink "mate". Its a infusion made from yerba mate that you are supposed to drink from a straw and my cousin have a collection of mates, the things is they have to be red. He wont drink from anything that is not red. I see why people dont understand your dilemma but Ben story reminds me of my cousin and Im happy to know you have some progress.

  • @roxysimmons
    @roxysimmons 7 ปีที่แล้ว

    It is massive! Fantastic news! :) Happy Christmas from a fellow autism parent in Colorado, though all my family live in Bideford and Barnstaple! Thanks for sharing your videos.

  • @KatesAdventures
    @KatesAdventures 7 ปีที่แล้ว

    That's fantastic, I hope you have a wonderful new year xx

  • @christinevickers1457
    @christinevickers1457 7 ปีที่แล้ว

    Oh, brilliant, definitely MASSIVE news. I'm so glad you've had a good Christmas. My son's major beef about Christmas is that the tv programmes he watches are put on hold. He's always a bit miserable and out of sorts until the tv schedule is back on track. A suggestion: the text commentary on your videos is sometimes a touch inaccurate, to say the least. It's also quite humorous at times! It's fine for everyone who is familiar with British accents; we can just listen to you, but you have viewers and subscribers around the world and a more effective text commentary might help them. I don't know how you'd go about it. It's not a criticism, just a supportive comment.

  • @g01dHaCkEr
    @g01dHaCkEr 7 ปีที่แล้ว

    Encouraging news! After watching some of your previous updates, I can appreciate that this is a big step for you and for Ben, even though he doesn't realise it. Have you given any thoughts to how you might "pre-distress" the other cups, particularly the top part, to better match his current one? It would need to be done in a way that doesn't compromise hygiene but does fool Ben into not spotting the swap.

  • @bigfatgrits9647
    @bigfatgrits9647 7 ปีที่แล้ว

    Yay! So stoked for you and Ben! A step is a step, no matter how small! <3 Fingers crossed switching out the tops happens soon too! <3

  • @Keyarchan
    @Keyarchan 7 ปีที่แล้ว

    This is like a win win win win situation. Not only does this help Ben and his family, the company gets to help which is always a good feeling, they also get well deserved advertising and it raises attention for autism.

  • @chris93jones
    @chris93jones 7 ปีที่แล้ว

    I'm not crying there's something in my eye

    • @chris93jones
      @chris93jones 7 ปีที่แล้ว

      LittleBlueCup my little brother has autism. he doesn't have a favorite cup but I couldn't imagine the struggle you must have had trying to help your son. The internet can be a truly wonderful place when it wants to be.

    • @TheGrumpyDad
      @TheGrumpyDad 7 ปีที่แล้ว

      +Dan Sterling the internet has been amazing. I'm hoping it will be amazing again soon as I'm searching for drinks bottles for two fab kids who's parents have asked me to help them find some :)

  • @bigfatgrits9647
    @bigfatgrits9647 7 ปีที่แล้ว

    I don't know if anyone has mentioned to you before but there's a guy here in the US named Christopher Ulmer. Check out www.specialbooksbyspecialkids.org/ They are also on fb with the same name Special Books By Special kids. He used to teach children with autism among other things. He is absolutely amazing and travels to meet and make videos with children who the world might consider different but he wants to help educate people and does an amazing job at it. If you haven't already look him/the site up on FB. Perhaps there is something he or the organization can do to help you also be a beacon of education for this cause! I wish you all the best and will continue to follow your familys journey! <3

    • @TheGrumpyDad
      @TheGrumpyDad 7 ปีที่แล้ว

      +big fat grits I've not heard of him but I will look him up, thank you. That's a really nice suggestion, not sure if they can help but I'll give it a go. Thanks for following - it means a lot :)

  • @maxim0666
    @maxim0666 7 ปีที่แล้ว

    I really hope continue to report on the progress especially how the transition to newer cups works out. I think that could be very useful.

  • @jroy90
    @jroy90 7 ปีที่แล้ว

    mark mate you are a legend i myself am deemed disabled by my country but in all honesty i couldnt bare haveing bens condition you and he are both absolute bloody legends ( and the family as well ) please tell ben he has fans all over the world and enjoy the cups if i had one it would be comeing your way unfortunately TommyTipy never sold to Australia as far as i know stay strong all of you and god bless

  • @sasga1994
    @sasga1994 7 ปีที่แล้ว

    Удачи, люди со всего света молодцы, они остались не равнодушны

    • @TheGrumpyDad
      @TheGrumpyDad 7 ปีที่แล้ว

      Спасибо, я очень благодарен за поддержку и надеемся, что она помогает людям рассматривать аутизм как сложное состояние. Я не говорю на русском, так что я не могу сделать видео, но я надеюсь, что люди понимают, насколько я ценю поддержку.

  • @carey3409
    @carey3409 7 ปีที่แล้ว

    It was so nice of you to thank people, it might be a little thing for them but a big thing for you, I wish you the best

    • @TheGrumpyDad
      @TheGrumpyDad 7 ปีที่แล้ว

      It's the least I can do, people have been so lovely. Thanks for your kind words Paul :)

  • @ManaMoL
    @ManaMoL 7 ปีที่แล้ว

    Firstly I would like to say, GREAT video! I am a TH-camr with over 7,000 Subs looking for people to join in on my shoutout series where you can gain 200+ subs! If you want to join in just head over drop a sub and turn my notifications on! Also if you are ever down to collab lemme know on twitter :D

  • @brooklyngracesparks9540
    @brooklyngracesparks9540 7 ปีที่แล้ว

    your hat is brillant. I prefer a fez, but that is only to due to our house holds small (it's bigger on the inside) obsession with the doctor. Excited to see it all come together. It will be wonderful to connect to other parents/caregiver out there. This is a beautiful thing you're doing. Keep up the good work.

    • @TheGrumpyDad
      @TheGrumpyDad 7 ปีที่แล้ว

      Ha! We have a few somewhere, our house is bigger on the inside too, Dr Who is a huge part of my eldest son's life, he's a Whovian and a busy TH-camr - Sammi is his name, I'll find his TH-cam name for you at some point. Thank you for the kind words as always, it really does matter to me, if I didn't get comments and people saying they want more I wouldn't do it, this isn't a vanity project, I want people to feel it has a value. I plan on making many small videos with information, tips, advice, anecdotes and more for Carers - not just in the UK but anywhere they can watch them. Sure the forms and links and places to get support will be different, but with the help of people in other countries there's no reason why I can't share some general advice for many countries and put the videos all up on the website for as many to find as possible. I believe Carers don't want to read pages of text, if a 6 minute video could answer their question, inform and educate a little and with a little humour and a friendly (but ugly) face then people may choose to watch these for their information. Maybe they won't, time will tell! I'd love to hear what everyone thinks, and if you like the ideas I'd love to know what you like to see, ideally stuff that crosses borders not just for your country or even state or town really. We can do that too, but let's try to do some big stuff first. I have one video I'm planning with my little girl showing how I help her when she's having a really tough time, it works for her, helps her calm and relax and feel very loved, safe and secure knowing she isn't being judged, just held tight to make her happy. She wants to tell you all how it works and how it makes her feel and we can give a little demonstration - not while she's stressed of course.

  • @kristenhyland5994
    @kristenhyland5994 7 ปีที่แล้ว

    This really is wonderful. My older brother is autistic and when we were little he would only wear 1 shirt... it was a Looney Tunes shirt... and it was DISGUSTING because it had so many holes and it was very threadbare. My mom and I worked together to duplicate the shirt by tracing it on a new shirt and painting it with fabric paint (didn't have fancy technology back in the 90's). SOMEHOW it worked and he adjusted to it, but I remember his face when we presented it to him... he was very suspicious lol

  • @vibldn
    @vibldn 7 ปีที่แล้ว

    Your story traveled all the way to Brazil, there's a lot of people talking about how amazing your story is. Congratulations for your fight and lots of love to Ben. Im glad people like you exist.

  • @serusse
    @serusse 7 ปีที่แล้ว

    I know how hard that is with the tonsilitis and my step-son only has mild ADHD. But after he had his tonsils removed I was very scared that he would get dehydrated because he refused to drink anything for 3 days. So I know you have to stress and worry even worse with a child that doesn't understand. Prayers for Ben and your family.

  • @jaclynmamer
    @jaclynmamer 7 ปีที่แล้ว

    I didn't find this boring. You're so passionate about this and it shows! I think a show where people who have their own "little blue cup" are helped along to find extras or a way to have their need met would be interesting!

    • @TheGrumpyDad
      @TheGrumpyDad 7 ปีที่แล้ว

      Thank you, I'm going to keep going, I have lots of things planned :)

  • @brooklyngracesparks9540
    @brooklyngracesparks9540 7 ปีที่แล้ว

    I cried. I just sat and cried. my Ben is called Adrian. He inspires me. He one of the most beautiful things to happen in my life. In a world that is so focused on the 'antidote' or 'fixing the problem', I think there are so many people who don't realize. He is my baby, he is my little boy. He is not a problem or a disability. I want to scream "thank you for you support but he does not need to be fixed" and in fact I may have made it to the end of my rope once or twice, and have said it. My biggest problem is that once you have decided that my son's autism is a problem, people quit enjoying him, and only want to focus on fixing him. once people have designated his autism as a mistake, they don't realize the miracle was sitting right in front of them anymore. This little boy, whose not so little anymore, has inspired me to be my best self. He doesn't understand 'strangers'. They are friends he simply hasn't met yet. And yeah, it can be hard, life can be a hot mess when you have to deal with all the little tics, that a accompany just going to the store, but I don't think people see all the happiness he brings to us. I wish people wouldn't just sum him up as a defect, or "just something werid he can't help, that makes everyone else slightly uncomfortable" He is my son, with more depth and brilliance than they could ever imagine. I have alot to say on the subject of my son (of course my husband says I have alot to say in general) But I feel like its an important job. We are the protectors and voices of those who need a voice. If you ever need to talk I would love to. You can find me on facebook: Brooklyn Grace Sparks (Heard). And I hope you do.

    • @TheGrumpyDad
      @TheGrumpyDad 7 ปีที่แล้ว

      Your points are so concise and in my opinion you have it spot on. People won't agree, but they need to learn this is how it should be. There's nothing wrong with knowing and accepting a person has a condition, and if it means they will interact with you in different ways of course it needs to be really considered, but it doesn't make them less of a person, and it certainly doesn't define them. My Ben is giggly, loving, funny, he loves tickles, he has great taste in music, he's fun to spend time with, he loves travelling, he's very affectionate, he can be very stubborn, he gets grumpy and he likes his own way. He just happens to also have autism and be non verbal. I want to change the way people think about and talk about autism. Long road ahead, but I'm getting a great team of people to support me. Would you be interested in writing some stuff for the LittleBlueCup website in the very near future? No pressure, and it's just voluntary obviously, but it may be a good way for you to say the things you want to say about how you feel. LittleBlueCup.org is going to be an interesting site full of content by parents and carers of autism who think differently. I will control who writes for the site but I won't control what they write and I won't edit their content. Have a think, you can find me on here, I'm on FB but not sure what as, I barely use it, I need to set up a new page so I'll,let you know and invite you once it's done :)

    • @brooklyngracesparks9540
      @brooklyngracesparks9540 7 ปีที่แล้ว

      LittleBlueCup I would love too. I have so many things I wish people knew about these beautiful children, people and parents/caretakers,, just from a "momma bear"/caretaker prospective. I actually love writing. I have been pursuing all my life. It was my major in college. Sadly, my mother passed and everything that was going on at home, I had to give it up, at the time. I have written non- professionally for years. Mostly short stories, a little music, and children's books geared for my kids. I would love to hear from you. I thought about leaving my email address, but as this is an open social media website, I didn't want to hand out such personal information. The thought of giving children and parents/caretakers a voice, is absolutely lovely. Please let me know how I can get you my contact information and I would love to discuss it with you. Thank you for responding, and putting your story out there. Hope to hear from you soon.

    • @brooklyngracesparks9540
      @brooklyngracesparks9540 7 ปีที่แล้ว

      LittleBlueCup also Adrian was non-verbal for years. It took a long time with picture charts, and flash cards, until little by little we(the royal we.lol) have become more and more verbal. I think people make the mistake of assuming just because my son doesn't talk, he has nothing to say. Nothing could be further from the true. luckily, I had the chance to teach in his class all through elementary. All the other kids (who happen to all be boys) in his class who were on the spectrum were non-verbal as well. it is a hard road I know. Even if your child decides he is more comfortable non-verbal, it can be very hard to watch for a parent. I personally feel that children should not be forced to conform to the world. Please, don't misunderstand, encouraged yes(to the point of everyday skills as far as interaction are considered), and I understand it is our job as parents to prepare our children for the world. However, I refuse to pound conformity into my beautiful, unique son, to ease the uncomfortablness of complete strangers. I'm now ranting. I apologize. As I said before, I'm a momma bear. Anyhow, I know it is hard, but hang in there. You have my support.

    • @brooklyngracesparks9540
      @brooklyngracesparks9540 7 ปีที่แล้ว

      what I should of said is, "I would love too".

  • @brianmccauley4416
    @brianmccauley4416 7 ปีที่แล้ว

    Marc - I am so happy for your family and for Ben . As a father of an autistic individual who can be a rather picky eater I teared up because your not only getting a few but enough to help cover Ben's life time. That IS HUGE! I am more surprised at the company who came through for you , THAT is amazing ! I happy for your family and Ben. I hope he enjoys his new cups.

    • @TheGrumpyDad
      @TheGrumpyDad 7 ปีที่แล้ว

      Thank you Brian, means a lot to hear that Bens story moved you. Please keep,in touch, I have a lot of interesting and in my opinion exciting things to come, maybe you'd enjoy being a part of it :)

  • @michaelharbach1987
    @michaelharbach1987 7 ปีที่แล้ว

    If you start a TV program, then I suggest having multiple autistic people as part of the show. You can introduce everyone in the first episode and then continue to follow them and learn more about them as the show goes on. Just an idea. Another idea would be to dedicate individual episodes to unique cases.

    • @TheGrumpyDad
      @TheGrumpyDad 7 ปีที่แล้ว

      Sounds good Michael. I do plan on working with LOT she of families. The main film may well have limited space, but there's nothing stopping me having many small films on here with families I meet :)

  • @BlackMasterRoshi
    @BlackMasterRoshi 7 ปีที่แล้ว

    Boy, he almost died from dehydration? That sucks. Sure looks like he never held back from eating, though.

  • @BlueHen123
    @BlueHen123 7 ปีที่แล้ว

    This is a real company run by real people! Too many companies seem to be run by robots that have no connection to people or the world. We need to support companies like this one! Bravo Tommy Tippee! Honestly. I am not surprised the company is owned by a British firm. Some of the best people in the world (minus those UKIP fools!)

  • @zjones9876
    @zjones9876 7 ปีที่แล้ว

    Why can't autistic children just act normal? it's not hard, just act normal. it's like they want all the attention. I'm glad my kids are normal.

    • @zjones9876
      @zjones9876 7 ปีที่แล้ว

      Alex M. Oh sorry I didn't know it was dumb to ask questions. It just seems like if they acted normal their problems would be solved. I didn't say they have to be road scholars or whatever that is lol

    • @brdynali
      @brdynali 7 ปีที่แล้ว

      they dont make this up. its real. thats the disease

    • @zjones9876
      @zjones9876 7 ปีที่แล้ว

      ***** Right anybody who asks a question is trolling

    • @TheGrumpyDad
      @TheGrumpyDad 7 ปีที่แล้ว

      Well your ignorance is very concerning. Autism is a neurological condition - basically the brain isn't wired the same way. You can't 'act normal' - and what 'problems' would it solve? The irony is your comment is very telling of someone with very little comprehension, empathy or understanding of anyone else's needs, these are typical traits of ASC - Autistic Spectrum Conditions. It would be a good idea to get some tests done as there is a lot of help available, and as it's also a genetic condition and can be passed from generation to generation there would be a high probability that your children would have Autism. From my experience of working with hundreds of families with children on the spectrum the condition does seem to be more severe in siblings of people on the spectrum. You may not be trolling, but if you are genuinely not trying to provoke a reaction you either may need help for a nurological condition or you reslly need to start to learn more about the world around you - autism is a very common condition and you will know many people who have it, so be careful you don't offend them.

    • @TheGrumpyDad
      @TheGrumpyDad 7 ปีที่แล้ว

      Technically it's a condition as you don't just catch it, you are born with it, and it can't be cured as there isn't anything really to cure. It's a bit like trying to cure someone of limited intelligence, if they don't have the brain capacity and mental ability to learn and develop then you instead look at different coping mechanisms to enable them to get through life most effectively. Firstly I'd suggest they refrained from posting comments they didn't understand like Z Jones has done. But yes the rest is right, they don't make it up and it's very very real :)

  • @billthecat666
    @billthecat666 7 ปีที่แล้ว

    Other than the 500 Tommy Tippee cups made, did someone locate one for Ben in the mean time?

    • @TheGrumpyDad
      @TheGrumpyDad 7 ปีที่แล้ว

      Yes we did thank you, which is great because we need 'used' cups to transition him to the new cups.

  • @camillemoreau203
    @camillemoreau203 7 ปีที่แล้ว

    Not only did Ben get a lifetime supply of his cups, but you've helped raise attention for autism. This event has sparked many conversations. Great work, Marc!

    • @TheGrumpyDad
      @TheGrumpyDad 7 ปีที่แล้ว

      Thank you for your lovely comment, means a lot. I'm very excited about the 'many conversations' and hope they continue to grow, I have a lot more videos planned.

  • @anthonyohara2132
    @anthonyohara2132 7 ปีที่แล้ว

    Well done Tommee Tippee! And well done to you sir. I wish you and your family all the happiness and well being life can bring. I can not fathom how anyone would have the gal to criticise you for doing anything to make Ben's life easier. So many armchair experts. You are not alone, Ben is not alone.

  • @Russtycat
    @Russtycat 7 ปีที่แล้ว

    Thank you so much for what you said about Autistic children all having their own needs and that as the care givers we know how to meet those needs. My daughter, Jack LOVES a little stuffed bat. A lot of folks don't get it that her little bat is like a member of our family, because that bat helps her get through every day. Any little thing that gives my daughter peace of mind is a good thing in my book.

  • @sandratempleton4117
    @sandratempleton4117 7 ปีที่แล้ว

    So touched by your story! Thank goodness you will get the cups from Tommee Tippee. Praise God. Each child of autism is different.

  • @patschwab4083
    @patschwab4083 7 ปีที่แล้ว

    I just love Tommee Tippee and all the wonderful folks that were trying to help Ben!