Erin's Multiple Myeloma Story: From Back Pain to a Stage 3 Diagnosis | The Patient Story
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- เผยแพร่เมื่อ 18 มิ.ย. 2023
- Erin H. started getting back pain but he thought it was just related to aging. Several months later, it got so bad that he collapsed to the floor after a sneeze. He went to the doctor who initially prescribed muscle relaxants but finally ordered an MRI which revealed six compression fractures in his spine and cancer.
He was then diagnosed with stage 3 multiple myeloma and 80% of his bone marrow was affected. In this conversation, he shares how he underwent oral chemo followed by infusions and eventually a stem cell transplant.
Full story & transcript → www.thepatientstory.com/patie...
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I was a bone marrow doner for my brother we were a 1 in 20 thousand match he lived for 30 years he died of copd . Then i got cancer they told me i had 2nweeks to live. This is when i was 66nyears im now 71 now . Heres what i can tell you God saved my brother and he lived for 30 years and now i have lived for 7 years after they told me i had two weeks
GOD says and nows 😊 when he is going to take you home. Im so thankful for my lord Jesus he loves his children and this is what i know. GOD BLESS YOU AND UR FAMILY. HIS MERCY AND GRACE ARE SO WONDERFUL .😊
My grandma was diagnosed with myeloma when i was about 9 years old i didnt understand what it was i just knew she had severe back pain when she was diagnosed she was told she had 2 years to live she was determined and actually lived for 23 years bless her
🙏
Alright! Thank God!
Holy cow. I hope she was given something for the pain other than her super will power.
@@DirtyLifeLoveexactly the problem today we need a pill for everything. Research there's simple stuff out there that'll heal us. We don't just need a Dr giving us prescription pills. A doctor will never heal you because if he does he will be out of business.
Think while it's still legal ☝
God bless anyone diagnosed with cancer and their families too.
Amen🙏
I learned that I had Multiple Myeloma in 2010. I thought my back pain was all in my head. After 6 months of pain I reached a day that I could not go into work. Instead I drove to my Doctor. Same day a blood test made my Doc send me to the local hospital. He told me that my blood test showed an abnormal amount of calcium. Which indicated to him that I had Multiple Myeloma. I wasn’t afraid because I had Hodgkins 40 years earlier. After 13 years I have had 4 treatments. One was a Stem Cell transplant. I am still here.
My Mother was gone and my Dad died 2 months after my first diagnosis. My husband, and 2 daughters were troopers.
I know that God has given me a purpose and have felt the hand of Jesus leading me. I am 74 now and have 4 Grandchildren. I am thrill that I have been a part of their lives. Then at the age of 31 I had Hodgkins Disease. There were 2 women that were going through the same treatments with me. One was the poor me type, another was a hippy who refused half the treatments. I learned 2 years later that the poor me person had past away and I do not know what happened to the hippy. Attitude is very important. Now I just want to be a Great Grandmother and live God’s plan for me.
My moms primary is the one that found her multiple myeloma from her yearly physical blood test. Her calcium levels were very elevated. She had a small amount of cancer , I believe 10%, and had a stem cell transplant. It did not work but she lived 10 years before her first vertebrae break. Not long after the first break she broke another. She too had chemo as well as radiation but decided to stop it.
During her 10 years with multiple myeloma, before anything broke, she took care of me when I had pancreatic cancer and later bone cancer. She was an amazing woman and an awesome mom. I am so thankful to have had her as my inspiration through my cancer journey.
It sounds like both of you lived in a carcinogenic environment and you both had a genetic predisposition and your environment turned on the switch.
Amazing women bless you
Robin, thank you for sharing your experience - your mom sounds like she was an incredible person and source of strength for you. So glad you had that. -Stephanie
We did not have the same cancer, not even close! My pancreatic cancer was endocrine related and the bone cancer was a rare tumor. I don’t believe either of us were exposed to anything environmental in nature. Things just happen that we have no control over, unfortunately. But by God’s grace I’m still alive and kickin!
@@robinanderson724 Who said y'all had the same cancer ? The comments are based on your details and sounded like timing was a factor.
Let’s ALL Agree to Complete Healing for Erin!’n
In JESUS Name, Amen🙏🙏🙏
6 compression fractures, prior to diagnosis of cancer, and the xray didn't show anything. I'm so tired of dismissive medical personnel when obviously something serious is wrong.
@@Cwgrlupor the radiologist.
I ONLY had 2 fractures but one of my vertebrae had been eaten away...I now have a cage they built around it
So sorry you are going through this. My husband was diagnosed in 2014. We were told he was terminal and given 6 months. Please remember doctors practice, Jesus heals. My husband still very much alive and though he has Cancer still we haven't given up.
Carol, Praying for your husband. Yes, Jesus heals.
GOD is our great Healer, JEHOVAH RAPHA, our great Healer, Jeremiah 17:14, Amen🙏🙏🙏
Yes."Doctors practice Jesus heals.". I have had the Great Physician by my side all my life, especially The last 18 years with Multiple Myeloma!
Joe Tippens protocol and JESUS ❤
Seven years from diagnosis and still alive and kicking! Still in treatment, still got low immunity, still able to accept that 'it's one day at a time'. I'm 76 now and getting creaky anyway. I skipped the stem cell transplant as I didn't want to be away from my cat or be cooped up for weeks. Getting worried about the increasing pain in my pelvis lately so probably need a scan, so will follow up on that when I go for treatment next week, so one day at a time.
"...didn't want to be away from my cat". ❤
I hope that you will be all right and the pelvis pain isn’t anything ominous.
@@kathyhenderson8703 CT scan said no sign of MM involvement. So no help except for painkillers which I try to avoid. Wondering what is going on. Always the risk of new cancers. Oh well. Just plodding on and hoping for the best. Thanks for your kind words.
@@brennadickinson2920If you still have pain and it gets worse rather than better, pls seek medical care again.❤️
What was your treatment? Amazing success with no stem cell! Would love to hear about your treatments.
I was diagnosed with MM only 6 months ago. Only sign I had was extreme anemia and elevated creatinine on annual physicals. My GP sent me to nephrologist. God bless her she suspected Myeloma and sent me to emergency room. Received complete work up and diagnosis and started my chemo combination on day 5 after admission. Now in complete remission and going in for stem cell transplant next week. Living in Philly suburbs is a blessing and receive excellent medical care.
My late husband had multiple myeloma and it started from back pain. He had 13 fractures in his body. He lived for 5 years, but there are so many new therapies now. God bless you as you battle this cancer. ❤
❤
My dad died in 1979 from this disease 18 months after diagnosis. There are so many more interventions now
My mother in laws spine was almost eat up in several places. The radiation helped her pain. Thank the Good Lord she did t suffer badly
my bf had it was 49 and died at 53, on his 2nd stem cell transplant. He never had fractures. He had chemo and became very thin, he was 13 stone and went down to 8
Hi Erin, And others here,
I appreciate you reaching out and sharing your cancer journey. My story has similar features as yours. Please, allow me to share, as I hope it will help someone else.
Eighteen years ago, at 53…
I was diagnosed with Multiple Myeloma. Had a simular start as you: lower back pain for a year then my chiropractor said please go do blood labs.
I had very high serum calcium, low red blood cells (anemic) and was tired for sure. But i was raising two teenagers and one launched at Hillsdale College (private and expensive So I had to keep working!!). My immune system broke down with a terrible bronchitis (probably was pneumonia). I went yo her graduation in May.(coughing up junk every hour or two) Extremely fatigued.
By July, rocky stools, had and so much pain, rolling out of bed in the morning. I had to carefully choreograph every move! My church women friends finally came over and did an intervention!
I saw my primary and she read the labs, and I was in the hospital room by nightfall getting a blood transfusion!
After a week of testing, the Bone marrow Biposy confirmed it. I had never heard of it and it creeped me out! I was a health nut. Everyone including me thought I was especially healthy!
After family and I talked, we decided to go to Cleveland Clinic. And meet with a MM specialist. They put me right into a hospital room! For a week! Wow!
They offered me a clinical trisl and I accepted it, did all the pre -tests. And for the next 18 months, visited the clinic monthly (two hour drive one way)
and took an experimental drug my mouth. Double blind study.
At my start , 2005…
I had MM in 90% of the marrow! Very sick and over ten compression fractures with pelvic and rib lesions. ( I had a few ribs break too, before I was diagnosed) I had a high pain tolerance, they said!
This drug was brought to the market as the first real "game changer" in MM because of the trial i did. 101 of us brought Revlimid to be FDA approved!
It worked very well for me and four months into it, my M spike was ,04!!! Webt back to work!
Then I went seven years with no chemo or any meds. Just living clean and had great supplements, family, the Grace of God and many prayers, and gratitude in my heart.
Then. I had a big Relapse 10 years ago. And have used many regimens. I'm now at 18 years! Grateful Live!
I live my life as best i can and saw both kids marry wonderful people and each have a grandchild. I am grateful for each day to enjoy my growing family!
Thank you so much for sharing ❤️ would you be interested in sharing your story on our platform? If so are you able to fill out this intro survey: thepatientstory.com/share-your-story/
Thank you!
43 old? I didn’t have my first child until I was 41. 😬 You’re a strong man. All the best.
My boyfriend of 15 years and I went on this journey for 7.5 years. It was the hardest thing we had to endure. He got chemo induced neuropathy in his feet and found that only smoking pot gave him some relief. He tried everything else, all the drugs, creams and acupuncture. I'm so glad that marijuana has been recognized as another tool to give patients relief from pain and other issues. All the best to you and your family throughout your journey.
I’ve got Stage 4 Lung Cancer. Without weed I would have committed suicide. Been 2 yrs and I’m doing ok.
Idk if i could do it with out the pot tbh
Also have stage 3 MM
I had 7 compression fractures when diagnosed at 62 (now 64), then 2 rib fractures. I denied the dilaudid and just smoked weed for the pain, which worked the best.
My dad has Stage 3 Multiple Myeloma himself & is currently at City of Hope doing his stem cell treatment & we're all hoping it puts him in complete remission for the foreseeable future! Good luck to anyone who unfortunately gets this diagnosis!
My husband is going through this right now, but his 76 with kidney problems because of this cancer...
My best friend had her transplant her brother was her cell donor and this year will make it 35 years cancer free she had hers done at Baylor in texas
fab
Bless you! My husband was just diagnosed 5weeks ago, we were blindsided by this yet another cancer diagnosed. It has been a long road, so much stress, May God bless you
My dad had chest pain. Doc thought he had pulled a muscle so sent to physio and it didn’t get better. He then started to get the shakes plus he kept getting like the flu. Not once did the doc do anything not even a blood test. My dad had never been ill. He crashed the car but wasnt hurt but he went downhill fast. He got taken to hospital took 4 days for them to find out the problem-multiple myeloma and they reackon he’d had it 2 years. The shakes were kidney failure they were working bout 12%. He lived 16 years had 2 stem cell transplants was out both times after 16 days. He worked the whole way thro no matter his treatments. Never broke one bone and was very active guy from kid to adult. Docs could never believe he was ill just to look at him. Even when he on treatment and he had to be lifted in jcb bucket to get on his combine he was working 80+ hours a week. The treatment damaged his nerves in hands and feet he could hardly hold a pen yet was still angle grinding and chsinsawing. He was a legend among others his funeral was so packed they couldn’t all get in. He was the most remarkable person not just to me but to even the medical profession. Can’t believe he’s been gone 6 years. Feel for anyone who experiences cancer it robs us all. Big love to you all
He sounds like an amazing man!
I’m so annoyed that he was shuffled around like that. He should have had an MRI earlier. Our healthcare system is so broken.
My husband passed away June 29, 2023 from Multiple Myeloma. He had been in treatment for about 2 years. Never was he told a Stage, of his Cancer, they kept telling us he was going to get better. He never did. Did your Doctors let you know that this type of Cancer is Hereditary ? So it’s a good chance that your children may also have this. I took Care of my husband’s every need. Up until his last day. Never did they tell us that he was going to die. They kept telling us, he would go into remission and have 5 to 10 more years of life left.
I'm So Deeply Sorry. Do You mean 2022? June 29th isn't here yet. God Bless You 🙏.
I'm so sorry for your loss. My husband is battling mm and he will turn 47 next month. It's been almost six years and it's been a living nightmare!
He never had a bone marrow transplant he decided to do the car t cell Treatment and it gave us almost 2 years remission but now it's full-blown out of control.
My grandmother was diagnosed when I was a teenager, and lived for another 10 years, she got to meet and know all my children and they still remember how amazing she was. That was long before stem cell treatment. It seems treatment is really moving forward!!! I wish you a long and joyful life!!!
Forward but often too expensive for most folks.
Sounds like you are doing well!!
Your recount is familiar. I was diagnosed originally in 2014 at 51. I've had two auto transplants, first in '14, second in '22, 7 biopsies and more scans than I can remember. Currently take Velcade as maintenance along with monthly Zometa.
You're right, myeloma is life-long but, you learn to live with it.
I won't go into details as you covered that well..
Good Luck to You!!
Thank you for sharing your story with us. I’m so glad you got the victory over this disease and I pray that you will continue to win the battle. You have an amazing family.
I like this format MUCH, much better. Where the patient just talks and tells their story. No offense, but the lady asking questions in earlier videos was quite distracting and annoying. Thank you for this new format, and please keep it in place. xo
Matey I am so happy for you and your amazing wife. You obviously have a wonderful loving family and friends around you. Your journey truly touched my heart I wish you continued good health and happiness for a long time to come.
Cheers from Australia 🇦🇺 ❤😢
I was diagnosed of MM just 6 months ago and my story is similar to yours, going through chemotherapy now, will get stem cell transplant soon. Still having trouble with treatment. Thank you for the encouragement.
Thank you for your courage in telling people your story, which helps us all recognise symptoms that we may have. God Bless
What can I say! You are amazing. You did not try to sugarcoat anything....if it was bad, then you said so and if it was good you were so elated. I am a breast cancer survivor or hope I am and I just needed this story. I so wish that anyone who has cancer or who may have to look forward to cancer that they would listen to this and the way you told your story. I even laughed out loud a time or two. I was 82 or 83 when they found my cancer and I will be 87 in October. I had an easy time with the cancer. I didn't grieve over it....I lived with it and I made it so far. Just wanted to let you know that this is a wonderful story regarding your cancer journey. God bless you and your family.
😊. Your name is cute. So what treatment cured him ?🎉
I love this patient story because this family is so strong and hopeful. I really think this is a beautiful family.
My father was diagnosed August of last year. He had radiation for the mass on his back. Then started the IV chemo and scheduled after 10 treatments the stem cell transplant. The chemo reeked havoc on his body. He’s also diabetic, has high blood pressure, and afib. In January it put him into heart failure, so they cancelled the stem cell transplant. He was 2 treatments away. They gave him a break, and he bounced back to his normal self. He was outside working like he always did. May we found it spread to his lung. They tried putting him back on chemo, which he couldn’t tolerate. We put him on hospice today.
Hugs to yo u, your daddy and everyone that loves him.💕💕💕💕💕
So sorry for you
I’m so sorry to hear treatment wasn’t working and your dad is now on hospice. We put Mom on hospice 7 yrs ago and they made her life bearable and pain free.The nurses and Chaplains are true angels. Prayers for your dad, you and your family. 🙏🏼❤️
Very much so.
Sorry to hear this husband has CHF. He has lot back pain now I am worried. I dont know you feel about this and I not trying to push anything on anyone but if doesn’t know Jesus Christ it’s a great comfort in hard times and good. I will pray for your dad and your family that you guys can have peace and what joy you can God bless you in this time
Thank you for sharing. My Dad died of Multiple Myeloma at 73 within a month after diagnosis. As we now know he must have been in a lot of pain for a long time but didn't tell anyone. When he did, he had already 3 broken vertebrae and several damaged ribs from the myeloma.
I had never heard of this cancer before and then did a lot of reading and research... Apparently in older patients it often goes undiagnosed for a long time because it is so rare and the symptoms are what a lot of old people experience: backaches, tiredness, and also episodes of confusion from the excess of calcium that goes with the deterioration of the bones.
If I as a family member had known about Myeloma, I could have watched out for my Dad better. It's important to raise awareness.
Even the doctors at the hospital seemed to have little experience with this form of cancer.... I hope that other people will get better care because of more awareness and that one day Myeloma will be curable.
So he hadn't had a blood test in a long time? How long could he have had this cancer?
❤
@@DirtyLifeLove He did have blood tests, one right before being admitted to the hospital for back pain. but they only showed him slightly anaemic, which according to his GP was normal for a diabetic person. To see the early stages of myeloma in the blood, you need to do a special test called serum electrophoresis. And if that shows up abnormal they test for monoclonal antibodies. In my Dad, the cancer showed in the bones but not yet in the blood.
For how long he has had it, nobody will ever now. They say untreated you can maybe live a year.
@@emilytreweek2887 ❤
not rare anymore.....and so many turbo cancers over these past 2 years...even moreso lately on a MASSIVE scale...instantly/SUDDENLY stage 3 but mostly 4😢 ... youtube,social media is with flooded so many new cases
Your story had me in tears remembering my bone marrow transplant! God bless you and Melissa and your families!
My gf has it. Went thru the whole process but after refused to go back to oncologist. It's back after 5 years. She's in a recliner all the time. She was diagnosed by ER for pneumonia. She stopped the harvest half way thru but was enough for one transplant.
I was recently diagnosed with multiple myeloma. Thank you for sharing your story. I start treatment this weekyour story has helped calm my nerves and has given me hope.
You have a wonderful and very supportive Wife. As a stage 4 pancreatic survivor, I can tell you that we have went through hell and back, but the emotional toll it takes on our loved one's is immeasurable. I'm glad you lived to tell your story, and I wish you the very best in the future. God bless.
As a stage 3 MM patient myself I hate that you had to go thru BMB without sedation on top of the pain you were already experiencing. Diagnosed in 2015, treatment then stem cell transplant spring 2016. In remission since then - yay! - but have chronic bone pain I manage in partnership with palliative doc in my oncology practice. But very glad you found a doctor who understands MM and can partner with you and your wife. Bless you! (And let’s hear it for THC!!!)
My mom died from multiple myeloma when I was 18, almost 34 years ago. She kept telling her doctor something was wrong, her back was hurting so bad…they blew her off. Her chiropractor sent her out of town for tests and screening and they found it. A tumor the size of a basketball wrapped around her spine. Stage 4. This was in the late 80’s. Options were grim. They gave her 6 months to a year to live. She was gone in 5 months. Blessings to you. I saw what she went through…it’s beyond brutal!
that was so horrible... even the doctors didn't know what it was.. my bf's doctor said it was a frozen shoulder that wasted six months...
@@beaulieuc8910 Unbelievable! It’s sad we have to advocate for ourselves because the doctors don’t always listen
Similar with my late mother...she dealt with bad back pain for months on end, then ended up in the hospital due to a bad infection. She was diagnosed with stage 3 MM after they did a biopsy when an x-ray showed multiple broken vertebrae.
Mine a similar story. Last October, out of nowhere I got progressive back pain and which spread in spasms around my ribs. Went to A&E they only checked my heart. A chiropractor wrote to my doctor to say I need an x-ray and was ignored. After six weeks of real pain, couldn't lie down, had to sleep in a chair, my wife insisted I have a x-ray and it showed I had severe osteoporosis in my spine and that my T7 vertebrae had totally collapsed and the one below it was fractured. I phoned the Royal Osteoporosis Society and the nurse said the osteoporosis must be caused by something - as I was a very fit 69 year old male - A blood test confirmed I have Multiple Myeloma. I've now finished the four month cycle of immunotherapy and had my stem cells collected. Now waiting to be called in for a stem cell transplant. Forgot to say, in February my sternum fractured while I wrung water from a cloth. Pain very severe, called 111 the paramedics checked ne heart which was fine. They then phoned my doctor and they agreed, without my doctor seeing me, that the pain was from my back, nothing to do with my sternum. Once again my wife insisted on a CAT-SCAN which showed my sternum as horizontally broken. So IF YOU get a similar problem, INSIST on x-rays, don't let them fob you off.
Thank you for sharing your story which will help so many to advocate for ourselves.
Yikes. I have had .M since 2005
Ten years into it, I was preparing a meatball dish in a crock pot for my daughter's baby shower.
I was tired and stood too long.
I didn't realize that my STERNUM was breaking.
It's a right angle shelf now. Looks like a third breast.
So disfiguring...cannot wear v necks anymore.
@@harriethancock Mine too, chest disfigured, looks weird.
well said
im on year 7 myself and still fighting the good fight, wish u many years more my friend, all the best to you.
My story is pretty much identical, I am at 110 days, hope mine has worked as well as yours.
What a heartwarming story!!! God bless you and your family!
My mom had MM since 6 months a go, with complication in renal failure, osteoporosis, and anemia. She is under chemo; bortezomib injection and thalidomide orally. There is no stemm cell tranplant facility in my country.
I rarely read story with the same diagones.
I hope the medication that we have right now can cure MM.
Thank you for sharing ur story, Erin. I hope you well and joyful life ❤
Erin you are incredible, the lord loves you, and your family.
My dad was diagnosed with MM at 52 primary complain was horrible back pain, then 20 years later my mom was MM at age 72 with her primary complaint of dizziness and PCP drew blood and noted elevated calcium level with hip lesion
Thank you so much for sharing. I'm just starting my jiourney. Recently diagnosed with multiple myeloma. You are very fortunate to have such a loving family . God Bless you all,wishing you well.
Thank you for sharing your story so succinctly. I loved the shout out to your dad. Continued blessings for good health.
I'm beyond happy you fought and made it through! I'm happy for your family too.
My husband had stage 3 , 14 years ago. He had full skeletal involement. Also had a deletion of Chromosome 13. Sadly he never made it too the stem cell transplant. He started with rib pain the day out of nowhere couldn't walk. He stayed in a wheelchair for the rest of the 5 months he lived. His was just too aggressive and the felt he had it for 20+ years. I am happy you are doing well.
Sorry for your loss.
What a wonderful daddy to put on your brave face and allow Ansley to enjoy the concert weekend with you.
You told my husbands story, but he was 87 when he was diagnosed. It was too late. It took a year before he made the transition. you are a brave man. Thankfully, you had wonderful family. I wish you many happy years ahead,
What an inspiration you are, Erin, thank you so much for sharing your story! Wishing the best for you and your family going forward! 🕊️🙏❤️🕯️
Whow, that's an incredible story. I'm so glad you shared this with all of us. I'm glad your life changed for the better, and yes, family and best friends are everything
You were young, so that helped you also. May God bless you with continued good health and be an advocate for people to get checked out sooner.
My Dad had it. His back hurt too. I feel like the younger you are the more years you can live with this cancer.
God bless you and your beautiful family.
God Bless you, your wife and family. I lost my husband to cancer 5 years ago, our teenage son and I have pulled together in his loss. I am proud of you and understand your painful journey.
Thanking God for your healing and for all those who provided your care🙏
God bless you and your family
Praise God ❣🙏🙏🙏
Thank you for sharing your hope-filled story. I was especially interested in your experience in getting your stem cell transplant. Our granddaughter was born with an incomplete immune system and received chemo followed by a stem cell transplant. She went through hell. Thanks for sharing your experience.
I just said a prayer for complete healing in Jesus name . Bless you and your beautiful family. ❤🙏🏾
Amen🙏
What a compelling story! So many similarities in our experience. Much older than you, I was diagnosed with Multiple myeloma a year ago. Thank you for giving insight and hope to those who are just learning about this horrible disease. God Bless you and your family.
Erin is amazing. Making sure he kept his promise and went with his daughter to a concert , while doing chemo . Now that is a terrific dad . Telling everyone watching his family is the reason he is doing " all of this for his family ." I am glad he got treatment that heloed him .😊👍🙏
Praying for you Erin, my heart goes out to you for all the pain and suffering your going through! God Bless you and heal you!! 🙏🏻❤️🙏🏻❤️🙏🏻❤️🙏🏻❤️🙏🏻
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I love a happy ending! God bless you.
So sorry. I was diagnosed in 2011 with 3 compound fractures in my spine,going from being bedridden to a wheelchair to a walker to a cane to getting cement in my spine and now being able to walk without anything but I still have bad back pain,and I am still in remission. It can be a long journey. Stay strong 💪 ❤
Have known 3 ladies who got this later in life, but did not survive long enough or qualify for SCT. My only sibling got SCT, also just before Covid, but for lymphoma and luckily now in remission. So I was there for Day 0 transplant and it took another 2 weeks to get released. It’s an scary ordeal but worth it to live normally for as long as possible. Hope they find cures soon for these awful blood disorders and many other terrible things like ALS, MS, etc.
This story is exactly what I went through in the beginning, very painful and scary
My grandma had MM and gotten treatment, but passed @ 67 years old. I miss her so much!!!😢
You did an awesome job explaining this journey. Wishing you the best going forward.
Aleve also causes ulcerative colitis if taken for a long time. I developed it after taking Aleve for back pain. I stopped NSAIDS totally and went back for a follow up colonoscopy 8 months later and the ulcers were gone. I now must note on a medical forms that I am allergic to NSAIDS.
My brother was diagnosed after he tried to donate blood and they told him he couldn’t give.
He has such a great personality
God will be with you every step of the way giving you the strength to fight this. God bless you and your family.
You are such a loving family man.
Ur a amazing person and have a beautiful family I’m sending you all my love … I’m fighting cancer for the second 😢time but have developed terrible back pain I will tell my oncologist it does just give way sometimes. I wish you all the luck in the world your so positive x ❤
I'm an oncology nurse. My hat 's off to you sir. I know it's something that no one can know unless you've gone through it. It ain't for the weak but it can save your life. God bless you!!
❤ to you and your family! may god help you fight along this journey.. I am 32 years old, been having really bad dull aching back pain for 4/5 years especially when lying down i would wake up in agony from it burning agony mostly right side 99percent. recently its travelled up to my higher back left then right side went to a&e told i have a kidney infection, then got intouch with my gp bloody pain to get hold of them! tho now shes concerned i might have it, urine test in the morning then blood work specifacly for mm im worried i have it but ive known it could be something for time now. ive tried and tried with the doctors i was told low vit d a few months back so we put it down to that, in hinesight ha to that the sypmtoms are real man. i am passed being scared now as i know! i just have to face it and be brave im young i try to lift as much as i can so i feel with gods power i can beat anything that might come my way... pray for me kind people my beautiful son bradley is only turning 6 in 2 weeks he needs me and i need to be here for him! 🙏
Sending love and healing to you brother
@@nitigraphicschannel5423 thank you brother much appreciated!
Wishing you the best outcome! I think a happy surprise is forecast.
Thank you for sharing. My 83 years old mom is diagnosed MM recently. She has been suffering from back pains since last summer.
A real story from a real guy. So down to earth. Courage friend, from Malta :)
God bless you and your beautiful family. Prayers for a full recovery.
Amen🙏
What a lovely story. An EXACT blue-print of what my son went through and is still going through but not as strict as before.. He's doing well after back-to-back stem cell t/plants. Now my brother has been diagnosed with this "spitefull" cancer. They both started off with the back pain and my son's doctors just gave him pain relief tablets for 18 months before doing further tests etc...
I wish Erin and his family all the very best in the future.
Keep fighting buddy you are gonna win this battle 👍
☺️ thank you for sharing. Your initial symptoms are similar to other multiple myeloma patients I know. Hopefully it will help others.
Oh god the dextro 😮your so right it’s bloody awful up all night and if someone hasn’t had it they just wouldn’t get it . I hated it but does give you the strength but your right then you just drop . Suppose you got to laugh or cry xx
God bless you! Prayers for continued remission! Nebraska STRONG!!!
You are a wonderful guy. So strong and brave and funny too. May you live long and prosper xxxxxc
I took my wife to see our family doctor. She and I are 75 and 76. While I was there, I told the doctor I needed him to refer me to a shrink for depression. He wanted to do a blood test to rule out anything else. It showed low white blood cell and low testosteron. I have been losing weight. He wants me to come back tomorrow to do a second blood test. I was going to an oncologist for many years to monitor a persistant low white blood cell count. She eventually put me on yearly checks because she concluded the slightly low whit blood cell counld was just my nature . So now I have this. The diffenece is the weight loss and depression. I think the next step will be a bone marrow biopsy. I'm very worried and now in an even deeper depression. Otherwise I am in great condition and health. I walk and jog most days and eat right.
Love your attitude, I hope that you get better and recover from this horrible diagnosis.
My friend was diagnosed when she collapsed after chasing after her son’s escaped dog, took a few weeks of testing, but that was the diagnosis. She did chemo and had 1 early stem cell transplant, a lot of infusions over 2 years time. Found out a donor stem cell was available….Sadly the high dose of chemo that was given before the stem cell transplant killed my friend the morning before the transplant was scheduled. She was doing so well, it completely blindsided us.
Thats what happened to my husband. Between the constant plasma infusions and the 3 different chemos he was on to prepare for the stemcell transplant his body couldn't take anymore. He died from fluid overload. He only lived 5 months post diagnosis. 😪
@@BellaDonna0858 So sorry 😞
Oh my goodness how sad. And thank you for sharing this! I have had MM for 18 years and have not chosen to do a Stem Cell transplant.
The chemo drugs to prepare are very strong. I do not think it would be good for me.
I've done extremely well without a SCT. God is good!
@@harriethancock I wish she hadn’t have tried the donor treatment 😔she might have live a long time. Her 5 year old death day was just last week.
@@harriethancock Wow how is it that you’ve lived 18 years! Amen
It’s amazing what happens to us when we think it might all be gone 💖. Thanks for sharing your story.
So happy for u good ending
What an amazing strong man you are and the wonderful support of your wife, friends and family helping you get through a very tough and frightening time in your life. God bless you 🌻🌻🌻
Thank you so much for sharing the details of your MM journey. A beloved physician of mine recently went through a bone marrow transplant. By watching this video I now have a better understanding of what she endured. I was moved to tears during your story. God bless you and may you enjoy many more years of good health!
Wow, thank you for sharing your story with us….this really defines the impotence of each and every day, do not take it for granted. Plz keep us posted as your beautiful family grows…👍🙏🏻
Thanks for sharing your story! Beautiful family! ❤
My husband passed from Multiple Myeloma 🥲 His journey was pretty much the same (including pneumonia) as yours but he only had 1 1/5 years before it came back. I am so happy for you and will pray you continue to be well. Thanks so much for your story.
Thank you for sharing your story! Lord bless you and your beautiful family. Thank you for reminding us all to have our priorities in the right place.
How are you Sean? Praying for you and your sweet family