My Multiple Myeloma Symptoms: I had Severe Back Pain | Gregory Proctor's Story | The Patient Story
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- เผยแพร่เมื่อ 28 มิ.ย. 2024
- Gregory Proctor started getting severe back pain starting in May 2021. He initially saw his primary care physician who diagnosed it as a muscle pull or sleep disorder. However, the pain persisted and got worse. Doctors then discovered the pain was caused by a tumor in his lower back that was cutting across his sciatic nerve, making it difficult for him to walk.
He underwent numerous tests and was then diagnosed with high-risk multiple myeloma. In this story, he shares undergoing chemotherapy, the financial burden of treatment and how despite obstacles, he achieved remission and began preparing for a stem cell transplant.
Full story & transcript → www.thepatientstory.com/patie...
Part 1: This video!
Part 2: Going through a Cancer Transplant: My Side Effects | • Gregory's Myeloma Stor...
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Contents of video:
00:00 Introduction
00:45 My first symptoms
03:02 I had radiating pain throughout my body
04:44 Undergoing tests: MRI
08:27 Bone marrow biopsy
09:30 Getting the diagnosis
12:24 Chemotherapy
15:19 Treatment side effects
18:32 Financial burden of cancer
24:58 Reaching remission
#cancerstories #cancerpatient #cancersurvivor #patientstories #thepatientstory #mmsm #multiplemyeloma #myeloma #bloodcancer
Wow what a story. I too have MM, been thru chemo. Has been a year and a few months. I am receiving the stem cell transplant in 5 days. I am frightened, but I know it is the right thing to do. It has been an emotional rollercoaster like no other, Wish me luck, I will pray for you.
how you doing now after your transplant?
Yes, it is a bit of a roller coaster ride. I did my best to deal with only one day at a time.
Yes! Health insurance in the U.S sucks!!!
yes indeed! The system here in the USA is dollar driven, not patient driven. Its a travesty!! It takes forever to get anything done. But they sure want their money soon as you go see the doctor or specialist. I have noticed it has gotten more dysfunctional and broken over the last 3 years. Its awful! At this point we are exploring moving to another country where the medical system is actually there for the patient first and its not an ordeal.
I liked how you said ‘once we were diagnosed…’ ! It really shows that it involves everyone in the family/ friends to get you through the other side. I wish you all the best.
My late fiance started with back pain, too! He had 13 lesions! I'm praying for a recovery..
I wish people would say who their ins companies are. This is so important!
I agree
I hope you have a full and complete remission of your cancer…you and your wife have certainly proven you’re fighters! ✨
Insurance companies suck. One day they will have to answer to God for these things.
Thank you for talking in detail about how insurance REALLY works.
Our govt isn’t going after these ins company’s , or taking care of our own citizens first ! There are too many just like this man …… mine cost out of pocket $44,000 plus plus plus, Medicare gives u koolaid instead of targeted treatment ( toe fungus cure not cancer ).
It's seven years since my diagnosis. Had three or four different chemo courses with not huge remission. Now I'm on Daratumumab and Dexamethazone (15 months) and enjoying the best I've been in the last seven years. Treatment is every four weeks now so I have about three weeks each month when I don't have to think about Myeloma. Still low immunity so have to avoid crowds (and close physical contact with strangers! Lol!). I rely on humor, swearing and praying to keep me from going into a funk. I have some pain but not bad - I have to find the balance. Don't like the bone marrow biopsy, but it gives me a captive audience for my terrible jokes! Good luck and blessings to my fellow sufferers. MM is all part of my life's rich tapestry so it can be lived with. I have a great team here in the UK, who have supported me all the way. I feel very lucky to still be here. ❤
Ps. Age 76 so I am feeling my age a bit anyway.
Where in the UK are you getting that good treatment from?
@@user-qh2ok9uk6r Somerset.
I’m praying for you Brenna. Keep fighting. Sending hugs. ❤
@@Sedgies Thanks. I trust in the power of Almighty God and my life is in His Hands. ❤
This patient is very detail orientated. You've breaking it down in segments, God. Blessing.
We are supporting several wars at the same time we cannot afford all these medical expenses!!
Thank you for sharing your story. My myeloma journey started in 2008 at age of 46. I remember driving to work one day (after my stem cell transplants) wondering if there will come a day where I feel normal and where I forgot I had C…. Happy to say that day came at least For a few hours. Lame insurance companies!!!
Thank you for explaining exactly what you went through. You are so young to have to go through such terrible health issues. Thank goodness you are doing well now. I feel so bad that you have to deal with insurance companies. I live in Canada. I know a lot of Americans think that our Canadian health care system is terrible. A few years ago My husband went to the hospital with a bad cough. We did wait a long time in the Emergency Dept., but once we saw the doctor, things moved quickly. They gave him an X-ray. The doctor came to see us shortly after with the results. They saw a mass on his lung. We went home and the hospital called us the next day. He went back for an MRI. Three days later we saw a team of cancer specialists. They explained everything to us. He had a very aggressive lung cancer. They gave him 3 months to live and he lived exactly 3 months. His care was amazing. He had top cancer specialists. We don’t have to find our own doctors and don’t have to worry about how much it costs, and don’t have to worry about any paperwork. Everything is done for us. I can’t imagine the stress it must put on you to be so sick and having to worry about money. And insurance companies. They sent someone to our home to set up home care for when it was needed (no cost to us). We definitely do have some problems with our health care system, but I wouldn’t trade it for yours. My neighbor just had breast cancer. She had very aggressive surgery(all free). She even had free transportation to get her chemo treatments. She received amazing care. Of course we do pay for our health care through our taxes, but we all pay and we don’t feel it as it is deducted out of our paycheques automatically. I am so happy for you that you are doing well and hope you and your family live a long and happy life. Thank you for your very informative video. ❤️🇨🇦
My husband went through some of those same medications that you mentioned earlier in the video. We are on Medicare. We did speak with a lady from the Financial area and she asked IF we were interested in a Scholarship to help pay for Treatment. A BIG YES. From the time he walked into the Oncology Unit and EVERY TEST, or MRI, biopsy, anything relating to his treatment, we NEVER received one BILL. I am saddened, to hear that your Hospital was going to STOP your Treatment because of INSURANCE. Just today I was told I have to have a Biopsy. After being my husbands SOLE CARE GIVER for 2 years with Multiple Myeloma, I am not really concerned of what it may be. However, IF it is CANCER, I also need a SCHOLARSHIP, because I am now just living on his SS. Also, did you know that MM is hereditary, more likely for a male to have it, but a female can as well. Unfortunately my husband is no longer with us. So for you, you are one of the lucky few. I wish you well, my husband is in a box sitting on my Mantle until our children can get time off from work to send him off.
Your husband is in paradise, in heaven, not in a box; he has no more pain
It is hereditary? But as per the google rarely it will become hereditary?
My grandfather suffered
Multiple myeloma in his elderly years. Watching him suffer was painful.
First they make you find your own oncologist rather than referring you to someone which is what they should have done and then they say pay or die instead of helping you fight that miserable health insurance company! After all the money we pay for health insurance this is unacceptable!!!
I have NEVER been told to find my own specialist and I have many health problems and many different doctors. I'm in America and have never had to wait for any medical test or treatment, even for a PET scan for cancer.
@@timestax
You must have a very unique insurance plan. I've met ppo and hmo patients and they are all frustrated by the ever lower care they receive in their health services. Do post your insurance company so we can give them our business.
excellent presentation. Very well explained. May God be with you.
I was diagnosed with MM on march 10 /23 suffering for back pain 5 years I’m into treatment for 4 months my oncologist wants me to get a BMT I’m in that process right now hoping my insurance cover this new treatment praying 🙏🏻 every moment .but I went yesterday for a hip biopsy it was painful in my case too😢wishing you a incredible recovery full of healing keep be strong 💪 it’s my mental state right now for the beginning of have been diagnosed it was awful 😢 took time for me to accepted this is a new day we are going to be better believe
Praying for your emotion & physical health. Healing prayers.🙏🏽
I pray in Jesus name that you are better at this time.
I have a question, did you ever have spine pain?
Pelvis pain?
2021 my Son was out of breath weakness couldn't work went t doctor into hospital a year ..now doing kemo an now the cancer is in his arm they went into his back ..he's in so much pain.
Thank you. You’re the first person I’ve heard that mentioned the rib, bone pain. Your story resonates with me. To help others I’ll say that my bone marrow biopsy was not as bad as yours. So others, please don’t be afraid. It might not be too bad for you. I’m now going to watch your other videos. Thanks again.
I found talking about something else was a good distraction. Not quite as bad as the dentist.
Thank you for sharing! I was diagnosed with MM IgM kappa June/July 2022 at the age of 40. I have a very similar story. Bless you!
Also diagnosed at an age of 40, March 2023..
My Cousin passed on today, he fought so hard. He was only 37 , it's do sad. He was still working in April.
I'm so sorry for your loss 🙏🏻
I pray for you and your family that the Lord Jesus will comfort each and every one of you at this difficult time.
God bless you all in Jesus name 🙏🏻
Was he vaccinated?
Absolutely shameful the insurance situation in the USA. Speaking from Australia, really so sad that what we used to think was a great country now makes you turn circles just trying to get your health insurance to cover what you need, it is really atrocious. You pay a fortune, then wait and fight to get your cover. I'm very sorry you need to go through this, Australia, NZ and the UK have excellent national health. It seems you have to fight for treatment even when you have expensive insurance. I hope as I write this you are getting the proper expert care you need.
National health coverage is not excellent coverage… my mother in law in England waited several YEARS to get a simple bladder repair surgery, because the waiting lists are so long. My dad had many frustrating experiences with his care for his diabetes, heart, etc. I’m not impressed. Plus wealthy people from all over the world leave those systems in the dust and come to the US to the Mayo Clinic for top notch treatment. Plus wealthy Canadians can now pay out of pocket to get better and faster care. There’s no perfect solution that I know of, but I’m thankful we don’t have socialized health care, other than Medicaid ( for the poor) and Medicare for the elderly. As an American whose husband had a good job with great health insurance, we had great health care!
@@ndgrandma1818I'm on Medicare with a free splemental insurance and i pay almost nothing for health care.
I know it's not like that for everyone but if a person puts some research into it, most everyone can get free or reduced medical care in America.
@@ndgrandma1818Not through the ACA. Obamacare sucks from everything I have heard.
@@ndgrandma1818but not everyone has great insurance and if you don't they could care less how you suffer or if you live or die !!! And that's an absolute shame !!!!!
@@thegmom7812 I don’t agree with your generalization that if you don’t have health insurance people don’t get good care. Our system is swamped by people who don’t have insurance, yet end up at the ER for care. No one is turned away, and those of us who pay for insurance end up paying the bill with increased premiums and higher prices for care. I know we have a flawed system , but so does everyone else. The truth is that health care is not a right covered in our bill of rights. We are a free country, and each person should be responsible for themselves. We have safety nets that help the poor. I still think our system is the best. You can think what you want.
Here in New Zealand we just don’t have to worry about the cost, if we need treatment we get sent to the appropriate Consultant, who provides the care needed. It’s bad enough being sick without having to worry about cost, it’s appalling that you have to spend hours on the phone, stressing about money, when you need to rest. To me, this sounds cruel, I just don’t understand why the American people put up with this, especially the cost of medication. My Husband is diabetic, he pays nothing for his prescription drugs, and has excellent care, including diabetic monitoring from the practice nurse, regular doctor meetings, even free Optical and Foot care. My friend gets regular treatment for skin cancer lesions, she even gets help with transport costs!
Agreed. American health care system is a nightmare. They take your homes to give you treatment that eventually kills you. What a disaster the American system has become.
Same here in Canada. My sister had cancer last year and she was able to take a year off work with full pay (her employer offers long term disability insurance), she had extensive surgery, chemo, radiation and she didn't have to pay a single dollar for anything, including all the medications! Nothing! She could focus on her recovery and the cost of all her treatments never even was on her mind. I also don't understand why Americans put up with this - It's appalling how the richest country in the world can do this to its people. Btw, my sister got the best care, is now fully in remission, back at work and doing very well.
Because you have socialized medicine. Also not all that great
While on vacations I’ve met with folks from England,Canada,& other European countries. They all had different experiences with the medical field . They agreed the social medicine was not good & felt if they had more cash they would have received better more advanced care in the US.
@@vickyblaskovich9265that's why so many with socialized medicine pay extra for private insurance.
Insurance is ridiculous and unacceptable.
Only thing sure about it is that you pay.
This story is one of many that demonstrates why we need universal health care. These insurance companies are an insatiable hydra. No one should be price gouging or gatekeeping when it comes to people's health.
Couldn't agree more. ❤
@@brennadickinson2920 No way
@@annmarie1689 "No way," what?
Thank you for watching!
Then we will be forced to allow the government to tell us what we have to do with our bodies !!
Very much a waste of your precious time and money not to have an
MRI Wo/W Contrast!
When iI was diagnosed with
Breast Cancer in 2021. I had to wait months to complete
MRI, CT and PET SCAN!
You are very brave to go through a bone marrow biopsy. How could anyone go through this w/o going under
anesthesia? When you were already in severe pain.
How are you doing at this time?
Hard to imagine the doctor threatening to stop treatment without more money. It’s like Pay more or just die. Cruel and greedy.
What about their Hippocratic oath?!
Absolutely, that's disgusting !!! Every doctor should have to accept whatever insurance someone has also ! Healthcare most definitely needs a major overhaul !!!!!
thanks for sharing your story. I love being in nature too! 🌲🌳🌲🌳
I’m so sorry you had to go through so much stress in dealing with insurance. Hoping you have a complete recovery and can put worry and expense behind you for good!
Wow, so sorry you had to endure so much pain and frustration. Praying for complete healing. May God bless you and your wife.🙏🏽
I am currently on year 46 working in health insurance. The companies are soul sucking vats of greed. But everyone can contact the insurance commission dept in their state and lodge a complaint against the company. Also you usually get a customer service person usually based in another country who doesn't know or care. They run from a script and are annoying as hell. You need to get ahold of a case manager or the manager and deal with them. So sorry the world has to deal with them.
Insurance is such a rip off...so sorry you had to go thru this. We need universal GOOD health care. None of us have catastrophic insurance only rich people. Crazy
Universal free, healthcare should be a guaranteed right EVERYWHERE!
Absolutely 💯 !!!!!!!!
I'm so sorry about the trouble you went through with your insurance. I thought it was kind of odd also that you said the spine Dr. told you that you needed to find an oncologist asap. I thought the Dr's office would refer you to an oncologist or two and help you navigate the administrative side. It's a good thing you are an intelligent and articulate person but how stressful to have to figure out the system while trying to beat this awful disease. I wish you a very successful journey and outcome.
You have given a very specific presentation!! God Bless you and prayers for a full recovery
What a wonderful smile! Blessings and long healthy life to you and yours!
So grateful and very thankful for your story Mr. Proctor!! God bless and stay golden :)
That pain was crazy.. I was Sleep the first time, but the second time I was awake. And it's unbelievable
XXXXXXXXX
Your doctor should have given you the referral.
I have stage 3 multiple myeloma 2 years now with 3 tumors on my spine from the cancer. I decided to do the shots in my stomach instead of the port. And I also take revlimid pills 3 times a week.
WOW this makes me so grateful for our NHS in the UK. We all contribute through our tax deductions, it was set up after WW2 to ensure everyone had access to health care ❤ wishing you well 😘
Thank you for sharing God bless you and yours.. Dr's really don't care. I'm dealing with alot and seems like I don't have a voice..
Thank you so much for sharing your story! Blessings to you and your wife! ❤
I have back pain too , its not severe . I can walk freely right now but its been 2 years since i have that . I am quite obese too
Thank you, brother, for this video my sister has that same cancer.
Wow. I just saw your story. First and foremost, I hope you are well and happy. The diagnosis, scary as hell. The insurance, an absolute unnecessary nightmare. I love how you speak of you and your wife. What an asset for your well being. I wish you both the very best. You both are so strong, resilient and smart. God bless both of you.
Oh my gosh, terrible story but loved loved your attitude and words of encouragement for others. May God continue healing you and keeping your family safe. ❤🙏
Several members of my family, all women are living with multiple myeloma. Thank you for bravely posting this information. My dearest Mum was the first to be diagnosed. My sister and my second mum also has it.
Live well daily and again thank you for sharing this information.
I live in Canada. My sister was young enough to get a stem cell transplant. My Mum and a woman I adopted as my second mum were given an drug regiment. It costs between $5,000 - $15000 monthly but we have coverage through our current health system. They all had chemo as well.
I get screened yearly for various forms of cancer as my Dad who is 93 now, had stomach cancer 26 years ago.
I pray that you have the best possible journey as you continue to live with this change in your life. I'm happy that you have a living wife by your side. That is the strongest of medicines.
Take care.
I'm subscribing to your channel. Thanks again for sharing your experience
The oncologist cared about money more than this poor gentleman suffering because of MM.
It is the insurance system that is the problem.
God bless you. 🙏💕
Thank you so much for sharing your myeloma story.
I was diagnosed mm in 2018. ,Firstly gave me chemotherapy 16 . Then went to a transplant of born marrow . Since then two years I was given thelidomide and after stop ed the treatment when reports S. PROTEEN ELETROPOROCISE...nomal. Thank you for explaining .
Hello! Gregory Proctor. He relates his health struggles, treatment, and financial burden so well. He reminds me of Ben Carson, the retired neurosurgeon, academic, author, and politician.
Health Care. I really dont know what the best solution is to our failing system but I realize we are in a desperate need of an overhaul. Our present health care is unsustainable. The patient has to jump through hoops in order to get any care. It is like a monster that is out of control. I dont like the Canadian system either where the medical profession tries to play God deciding who is worthy of attention n who isn't.
THANK YOU FOR SHARING
I lost my beloved doctor to this sneaky disease. Hang tight and blessings ❤🙏🙏🙏
I appreciate your video. Thank you.
really glad you're not in pain and recovered, nice job w/ the trials & tribulations.
I have had MGUS for 20 years. I am 76 yrs old and my fear is that this will flare its head up and my insurance won’t cover me due to my age s this affects more elderly than young.
I had no symptoms. Mine was found on an MRI for abdominal pain (non related). Bless you.
3:27 I have 4 sisters and I’m the baby’s, although I’m 54yrs old. My second older sister was diagnosed August 2023 with Multiple Myeloma 3rd stage, and it was recommended that my sisters and I be tested. My older sister was negative, my 3rd older sister was positive January 2024 2nd stage and then it there was myself and my tests came back positive, I will find out what stage 3/26/2024. I am so nervous scared however be it that we are experiencing life changing situations we will be each other’s support system. Thank you for sharing! God Bless you!!
That’s crazy I didn’t know it ran in families like that. I’m sorry to hear thsgy
@@markm6059I didn’t know about being tested due to a sibling having blood cancer
My sister had lymphoma and died four years ago I questioned my PCP about my risk for the disease but he never suggested being tested
I have been seeing a nephrologist for my CKD and she ordered labs and the lab work looks like I’m being tested for blood cancer I’ve messaged her but haven’t heard back from her yet
Good luck to you and good health
God bless you and your family. I wish I got to see the rest of your story. It cut off at you wondering how your stem cell transplant was going to be financed. Is there a Part 2?
OMG! WISHING YOU THE BEST. AND HOPING I DONT HAVE THAT ALTHOUGH THE SYMPTOMS SEEM TO BE SIMULAR.
My sister also had MM. Unfortunately she passed away on the 23May 2023😢
My husband also passed away from MM. June 2022. He was 66 years young. His Doctor kept telling us, he was going to go into remission and would have 5 to 10 more years.
@@barbaradw9969 what was his treatment ?
Totally agree with the bone marrow biopsy OUCH
I have severe pain in my low back exactly where you did. It won't subside. Nothing helps, stretching or physical therapy. I have pain at the right low back/right hip or buttocks, inner groin, and it feels like the bony area where I sit on my right cheek is tender. Sitting makes it severe. Moving seems to help it for a while. I have lost weight to the tune of 30 pounds since last april. My bowels have been different ... hard to evacuate or fully go. I am all out of whack. Any suggestions? TY for your story!! God Bless.
Wait, wait, wait, isn't illegal to refuse medical treatment because of lack of payment?
Exactly how my son in laws symptoms started.
I too have multipl myeloma. It seems to me that the variant of multiple myeloma that has afflicted Greg is particularly virulent.
Thank you lord 🙌
Thank You so much for sharing,Such A help.
XXXXXXXXX
Do you mind sharing where you were treated and if you recommend them? I’m in San Antonio as well. Thank you!
This is just heartbreaking!!! If i were to get sick like this, i have no extra money, limited income, or a very good insurance....they will let me DIE!!!😢😢
Actually, I wouldn't even get that far because they would deny my referral period!!!!😢😢
They started doing epidurals on me my lower back, I was diagnosed Multiple MYELOMA on 1-12-2024 from a bone marrow biopsy
How was your experience with the bone marrow biopsy?
Sorry the radiologist presented this to you. Indeed the possible malignancy should have been shared, but the conversations needed to be with the primary, an appointment set up with a cancer center if possible and primary can get you into an oncologist asap. Any health issue requiring long term treatments is financial devastating. I am experiencing cancer number two.
Discussing your experience is really helpful for folks going through this; there are hard decisions to be made, and one just has to put on the warrior suit and just do it.
By the way, the health care in the states is financially devastating and the quality varies, depending who you are and how much money one has. It is a sad situation😢.
I pray God heels you.
You dont need fruits and sugars.
Prlong fasting and kito, what you need.
It becomes a very real issue of paying for Private Health when on an Aged Pension. The premiums have double since we retired, we are holding in there but for how long I don't really know. Considering I personally havehad private health insurance since birth, without fail over my 70 years.
Did your lab work show anything?
Damn insurance, that's why if I ever become terminally ill or whatever, just give me something for pain and let me go. I'm not gonna pay them thousands of dollars to live. I'm gonna get Jesus' life assurance.
I have a lytic lesion and just had a bone biopsy today . This all sucks !
I’m sooooo sorry for the money tragedy , thank god I live in Australia where this doesn’t happen Your country needs to become empathetic I’m so very very sorry 💔💔💔
His chemotherapy medication was $22,500 per week!? In lieu of universal healthcare, the costs of medication, treatment, tests and hospital stays need to be brought down to reasonable levels!
Any outcome???
What did your blood work look like?
I would never never do a bone biopsy never!
I am horrified regarding your treatment from both the Insurance company and your Oncologist.
What a story!!!! What about the stem cell did your insurance pay??
Wow! This makes me scared! It also makes me even more sure that only God can cure the ills of mankind.
God is really very busy at the moment don't you think we should give him a hand and look after ourselves a bit. Take care...❤
Amen!! I fully agree with God for healing ❤️
Insurance companies are the worst
I have this and I have multiple fractures in my vertebrae it started in my lower back to. I found out I have developed six more this year how do you stop the fractures?
shouldn't the fractures heal on their own once the cancer cells have been mostly erradicated?
❤
Losing weight ..taking 12 pills. I feel so helpless
Why can't everybody in America can't get free health insurance? Why he didn't get the government insurance like lots of people have? This poor man has to go through while he is fighting cancer smh.
Why can you all vote for someone who will give everyone free insurance? It's different in Europe, especially in France.
It's shameful.
I hope that you are doing well
It's hard to really grasp what Americans go through when it comes to healthcare. It's bizarre and awful that you have to hunt down your own specialists, hospitals, and treatments. And if that wasn't bad enough, you then have to haggle to have it all paid for. It's like a nightmare. Truly dystopian.
Where I live, you go to a general practitioner - any one will do, doesn't have to be some kind of personal physician - and they refer you to the specialists at your local public hospital for further investigation. Those specialists then organises everything. Blood tests, scans, surgeries, tests, treatments, etc. All of that is done in that same local hospital, and the patient doesn't have to plan or think about any of it. It's all done for you - and it's all free.
I feel incredibly sorry for Americans, having to live with such a barbaric system 😢
That’s American insurance, delay, delay, delay until you’re dead.
M-spike of >6000?
Your story about the financial impact is shocking to someone who lives in a country where there is universal health care (Australia). I cannot understand how a first world country can not have universal health care.
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My prayers for you, Gregory. 🙏 You were so wonderful in describing every detail of your journey so far. I am so glad you talked about the financial stress on top of being in major health crisis, because it's such a huge factor in USA. I hope you will keep us updated with a Part 2 of your journey. 💪
Personally, I feel like the video ended at a halfway point. What’s the rest of his story??
Just read the description, and it says part 2 July 10. Maybe mention part 1 of 2 in the title? That would be helpful 😊
Recent Cholangiocarcinoma Pt stories I was diagnosed with this very rare liver cancer April 10, 2023
Thank you
He is an inspiration