This has been the best presentation about MM I’ve seen. Thank’s for this . After two year of MM treatment’s and transplant I can say I have never been Ill or nauseous. Lucky
i was diagnosed with multiple myeloma july this year. in January I will undergo an autologous stam cell transplant. this is the most enlightening presentation I've found. thanks!
I am of Irish descent also & female. Diagnosed March 30, 2024. Just started chemo treatment last week July 8th, 2024. This was so helpful, thank you so much.
I am currently working towards stem cell transplant now. I'm sitting at dialysis at the moment. My kidneys have responded and are now almst 50% function. Will be treated at St Louis University hospital.
Top shelf bak2bak vids! Wow! I'm so grateful to find all that critical information in one place. The slideshow was especially helpful and I don't feel as confused. Thank you for putting in so much effort. It has paid off in spades for me And many others I am sure!
I was diagnosed multiple myloma in 2018. Then doctors started chemotherapy treatment 15 months till transplant .. Transplant was done at Apeksha hospital transplant unit Maharagama,Sri Lsnka by the great , most experienced doctor Prasad Abeysingha ,Dr. Devinda, and his kind staff . After that they followed blood count 24 months and stopped the medicine lenalidomide after making nomal of seram proteen electrophoresis . Thank you very much wake up the patients . Important definition to us. Appreciative ...my respect .
The two weeks after my transplant were the worst. I was totally spent , no energy at all , I never felt sick or nauseous but just tired. It got better day my day.
If you are ever unsure or uncertain about whether your doctor knows the newest and best treatments, you can always speak to an MMRF Patient Navigator by calling 1-888-841-6673.
Is it possible to obtain a copy of the slides to take to my first appointment? So much information. Very much appreciated. My primary concern is to ensure that when I have my bone marrow biopsy that I know which tests to request. Living in Canada (socialized healthcare) I understand that often only a few tests are ordered and things are either missed or patients are misdiagnosed. Its critical to attend my first appointment well researched. Would also likely seek a second opinion in the U.S.
Yes, you can find the slides from this video on our website: themmrf.org/resources/education-programs/. Scroll to our Patient Webinars section and go to the May 3rd webinar. This webinar contains the slides you are looking for.
I am just starting my treatment. Doctor wants to do stem cell eventually. I dont have any caregivers to help me out. I have no clue what I am going to do.
Their presence does not always mean a myeloma pathology, in a healthy person. But in a person with a Hx of MM or other plasma cell dyscrasia, that result would possibly be interpreted differently. If you would prefer, you're welcome to contact the PNC to talk about this further, they would be happy to help. But research shows that faint bands do not always have a clinical significance.
Great video, i just had my bone marrow results. I am waiting to go through it all with my dr. One of the fish tests stated i have a LOW POSITIVE FOR PARTIAL 5'. My research says that puts me at stage 1. I am ready to fight this thing and get the cells down to zero. Can i get treatment at stage 1? Again, I appreciate this video. It really reinforced what I've been learning. I am working on putting together a great care team. Im really not trusting who i have right now.
But how does the protein produced by the plasma cell relate to the antibody with the light and heavy chains of protein? No one ever explains that. They talk about the m spike...the paraprotein...the light and heavy chains... and the kappa and lambda....how do all these things relate...they are all produced by one plasma cell? Are some of them synonymous? Everyone assumes the patient has a background of knowledge that we don't have.
My 47 yr old mother just got diagnosed with MM. She's 100% white. It's not 100% confirmed she has it but her symptoms are MM symptoms like bone fractures and such they are doing biopsies and all that.
This is not just the best Myeloma video on youtube, this is the best youtube video overall!
This has been the best presentation about MM I’ve seen. Thank’s for this .
After two year of MM treatment’s and transplant I can say I have never been Ill or nauseous. Lucky
Wow. How about after ASCT??
i was diagnosed with multiple myeloma july this year. in January I will undergo an autologous stam cell transplant. this is the most enlightening presentation I've found. thanks!
What is the cost of stem cell transplant
Best wishes and prayers for you.
Very good information and is presented in a manor that is easily understandable. Thank you for taking the time to explain our options. 👏🏾👍🏾🎗
Excellent excellent excellent. Thank you sir!
Thank you for taking your time to give this comprehensive and excellent presentation!
I'm glad I watched this;
I'm just in the beginning of this
53f and Irish decent
Thank you from the bottom of my heart for helping me understand this
Me too diagnosed 2 days ago also irish decent 60 year old
I am of Irish descent also & female. Diagnosed March 30, 2024. Just started chemo treatment last week July 8th, 2024. This was so helpful, thank you so much.
I am currently working towards stem cell transplant now. I'm sitting at dialysis at the moment. My kidneys have responded and are now almst 50% function. Will be treated at St Louis University hospital.
Top shelf bak2bak vids! Wow! I'm so grateful to find all that critical information in one place. The slideshow was especially helpful and I don't feel as confused. Thank you for putting in so much effort. It has paid off in spades for me And many others I am sure!
I was diagnosed multiple myloma in 2018. Then doctors started chemotherapy treatment 15 months till transplant .. Transplant was done at Apeksha hospital transplant unit Maharagama,Sri Lsnka by the great , most experienced doctor Prasad Abeysingha ,Dr. Devinda, and his kind staff . After that they followed blood count 24 months and stopped the medicine lenalidomide after making nomal of seram proteen electrophoresis . Thank you very much wake up the patients . Important definition to us. Appreciative ...my respect .
Excellent presentation and information. Thank you for helping me understand so much as a newly diagnosed MM patient. Will watch this again and again.
The two weeks after my transplant were the worst. I was totally spent , no energy at all , I never felt sick or nauseous but just tired. It got better day my day.
When you say worst, was it from physical pain or just exhaustion/nausea? Wishing you continuous health!
Excellent presentation, thank you both so much!
Thank you so very much for an excellent and highly informative video-especially with the special emphasis on African Americans.
Can you also provide your views on photon therapy instead of chemo pls.
How are you supposed to know if your doctor knows the newest and best treatments around?
If you are ever unsure or uncertain about whether your doctor knows the newest and best treatments, you can always speak to an MMRF Patient Navigator by calling 1-888-841-6673.
Ask him/her?
@@steveludwig4200 can't just ask your doctor if he thinks that he knows it all. Of course he's gonna say he knows all about everything.
@@Livetoeat171 If that's the case YOU have a horrible doctor so get a new one...
@@TheMMRF15:59 a?!
Good Explanation of MM! Appreciate it
Excellent information. Thank you
Is it possible to obtain a copy of the slides to take to my first appointment? So much information. Very much appreciated. My primary concern is to ensure that when I have my bone marrow biopsy that I know which tests to request. Living in Canada (socialized healthcare) I understand that often only a few tests are ordered and things are either missed or patients are misdiagnosed. Its critical to attend my first appointment well researched. Would also likely seek a second opinion in the U.S.
Yes, you can find the slides from this video on our website: themmrf.org/resources/education-programs/. Scroll to our Patient Webinars section and go to the May 3rd webinar. This webinar contains the slides you are looking for.
Johns Hopkins has done me well. I was diagnosed in 2017. Had a transplant in 2018. I have been enjoying good health but with some infections.
Thank You...🎉🎉🎉 For This Info. Very Refreshing
❤❤❤
I am just starting my treatment. Doctor wants to do stem cell eventually. I dont have any caregivers to help me out. I have no clue what I am going to do.
can faint kappa and IgG bands be normal to have acutely or does their presence, regardless of the "strength", mean a myeloma pathology?
Their presence does not always mean a myeloma pathology, in a healthy person. But in a person with a Hx of MM or other plasma cell dyscrasia, that result would possibly be interpreted differently.
If you would prefer, you're welcome to contact the PNC to talk about this further, they would be happy to help. But research shows that faint bands do not always have a clinical significance.
@@TheMMRF that answers a lot thank you!
Great video, i just had my bone marrow results. I am waiting to go through it all with my dr. One of the fish tests stated i have a LOW POSITIVE FOR PARTIAL 5'. My research says that puts me at stage 1. I am ready to fight this thing and get the cells down to zero.
Can i get treatment at stage 1?
Again, I appreciate this video. It really reinforced what I've been learning. I am working on putting together a great care team. Im really not trusting who i have right now.
Good overview
But how does the protein produced by the plasma cell relate to the antibody with the light and heavy chains of protein? No one ever explains that. They talk about the m spike...the paraprotein...the light and heavy chains... and the kappa and lambda....how do all these things relate...they are all produced by one plasma cell? Are some of them synonymous? Everyone assumes the patient has a background of knowledge that we don't have.
I AM IN THE SMOLDERING STAGE
CAN YOU ENLITGHTEN ME
My 47 yr old mother just got diagnosed with MM. She's 100% white. It's not 100% confirmed she has it but her symptoms are MM symptoms like bone fractures and such they are doing biopsies and all that.