Thank God for strong people who will continue to advocate and fight for people who are suffering with this illness. Growing - up my best friend had illness. She tried so hard to to live like a normal teenager. She missed so many days from school because of being in the hospital. Some teachers did not understand her illness and would make nasty comments about her absence’s.
I CANNOT stand that sickle cell patients have to even explain their pain they seem to be treated so poorly by medical staff at times and it baffles me because you would think with knowing how sickle cell operates and what sickle is they’d be sympathetic I’m not surprised at all though I pray things start looking up with the research of this horrible disease. 🙏🏾
Thank God for strong people who will continue to advocate and fight for people who are suffering with this illness. Growing - up my best friend had illness. She tried so hard to to live like a normal teenager. She missed so many days from school because of being in the hospital. Some teachers did not understand her illness and would make nasty comments about her absence’s.
Story touches me a lot. As a Virginia born child and post BMT transplant survivor here in NW/NE Ohio, I am proud of your journey. Stay healthy
I CANNOT stand that sickle cell patients have to even explain their pain they seem to be treated so poorly by medical staff at times and it baffles me because you would think with knowing how sickle cell operates and what sickle is they’d be sympathetic I’m not surprised at all though I pray things start looking up with the research of this horrible disease. 🙏🏾
My beloved big brother passed at age 47 from Sickle Cell on Nov. 30, 2021. He had a crisis in his sleep and passed. I miss him dearly.
❤