Medical Stories - LEMS: Janelle's Story
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- เผยแพร่เมื่อ 6 พ.ย. 2023
- Janelle, an energetic grandmother in Iowa, developed difficulty walking and climbing stairs “out of nowhere.” It came as a shock when she was diagnosed with a rare autoimmune disease called Lambert-Eaton Myasthenic Syndrome, also known as LEMS, a condition in which the immune system attacks the areas where your nerves and muscles connect.
Watch Janelle's Story in this special episode of Medical Stories: Out of Nowhere.
Featuring renowned expert: Dr. Ericka P. Greene, Director of the Neuromuscular Clinic at Houston Methodist Stanley H. Appel.
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Thank you for doing this, Janelle. I've had LEMS for 18 years now. I was only 24 when diagnosed. I was able to show this to my husband and kids so they could maybe understand it a little better. For those of you who may read this, there are a few support groups on FB for people with LEMS.
I've had LEMS since 2019 and every day is a new fight. Wishing Janelle the best.
It is indeed a difficult disease and has impacted the family. I am sorry for Janelle but yet she does have many positives. Excellent healthcare and access to up to date treatments, such a supportive and loving family and good friends. Not all would have these advantages.
Janelle, I have this disease as well and can relate to your journey and the "new normal" you are learning to accept. Thank you for sharing your story. This disease changes our lives, but you seem to have an incredibly strong spirit, family, and community. Finding support so patients do not feel alone and can navigate the mental health challenges the symptoms can lead to is essential. What a wonderful support group --your husband, family and friends--you are blessed.
I have LEMS and some days it feels like I've experienced the highs and lows of several days in just one day. Each and every moment theres something new. I take Firdaspe and it has improved my strength significantly. Rest is the key. So listen to your body and report all new symptoms.
This was very educational! I have been diagnosed with MG but it seems I have all the symptoms of LEMS.
May healing rain pour down on all of you.
What gorgeous children!
God bless you❤
😔❤️😔
Autonomic, not automatic.
Please look into doing a strict carnivore diet. There are lots of good videos on it and helps autoimmune diseases immensely.